The Heart of Hospice Podcast

Alua Arthur on Honoring the Full Humanity of the Dying

Fri, 10 Apr 2026 07:00:31 +0000

Death Doula Alua Arthur brings fresh air, compassion, and humor to her work with the dying. After ten years working as an attorney, Alua found herself burned out, depressed, and looking for deeper meaning. She found her purpose and passion in end of life work. As a Death Doula and founder of Going with Grace, Alua educates clients and future death doulas about working with those experiencing serious illness. She brings an open mind to advance care planning conversations, allowing clients to bring all of their humanity to what they want for their death. Alua believes discussions about end of life need balance, including all the messiness of being human - humor, grief, sadness, joy, and beauty. Going with Grace works to improve and redefine the end of life experience for people rooted in every community. Connect with Alua Arthur, Death Doula and founder of Going with Grace: Website: goingwithgrace.com Going with Grace Death Doula training End of Life Education and Planning Social media for Alua Arthur: Instagram Facebook YouTube

Connect with HaloCare: Website: halocaregroup.com HaloCare services for healthcare professionals: halocaregroup.com/healthcare-professionals Get more info about HaloCare for yourself or a loved one here Socials: Facebook Instagram Twitter LinkedIn Connect with HaloCare by phone at (888) 247-7102

Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. And we believe you deserve to get good hospice care. If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. It’s easy to connect by phone or video. You can book a 30-Minute Navigation Session for just $45 if you’re starting to talk about end of life care. A 60-Minute Navigation Session for $95 provides for an in-depth discussion, and allows for up to 3 family members to get the same expert information at the same time. Book a session with an expert Hospice Navigator at theheartofhospice.com. Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Social media: Facebook Instagram LinkedIn YouTube

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

Learn About the Sacred Mission of The INN Between

Fri, 03 Apr 2026 07:00:25 +0000

By providing end of life care for the homeless population, The INN Between fills a special need in the Salt Lake City community. Executive Director Jillian Olmsted’s journey with The INN Between is both personal and purposeful. Jillian’s connection to the mission was shaped by her own family’s experiences with cancer—within a single year, her mother, father, and stepfather each faced the disease. Two parents required hospice care before their deaths, and Jillian personally cared for her father as he underwent treatment while uninsured, unable to work, and potentially facing homelessness. These experiences gave her a profound appreciation for the dignity and comfort that hospice and respite care provide. Listen to this episode to hear about the work being done at The INN Between.

Connect with The INN Between: Website: tibhospice.org Socials: Facebook Instagram Twitter Linkedin Read more about Ernie’s wedding story here Donate here to support the work of The INN Between

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

Back to Basics: What You Need to Know About a Death Event at Home

Fri, 20 Mar 2026 07:00:24 +0000

This week’s episode features hospice nurse Shelley Henry in an in-depth discussion about what should happen when a death occurs at home. Many hospice patients chose to die at home, in familiar surroundings with their family members. It’s important that patients, caregivers, and end of life workers understand the things that happen at the time of a death.

Here are some highlights to know: • A hospice team member might not be there when your Person dies. • Hospice agencies don’t provide ongoing bedside services when a person is dying unless there are symptoms that need to be managed. • The hospice team supports the family when there’s a death, notifying authorities as required, and providing grief support for those at the bedside. • If the death occurs inside a facility like an assisted living facility or a nursing home, the hospice team will coordinate with the facility staff. • Post-mortem care (respectful, gentle cleaning of a body after death) is often provided. • Narcotics should be destroyed in the home by the hospice nurse according to federal law. • Care at the time of death should never be hurried. Family members and caregivers should feel supported and never rushed.

Get more information about hospice and connect with hospice nurse Shelley Henry at The Amity Group. Website: www.amitystaffing.com Watch Shelley’s Tips for Hospice Nurses videos here or on Facebook, Instagram, YouTube, or TikTok.

Connect with Lasting Remembrance to purchase a memorial blanket at lastingremembrance.com. A personalized blanket is a great way to ease grief, bringing warmth, peace and connection after a loss. Using the code heartofhospice gives you a 10% discount on your blanket purchase.

Find all of Barbara Karnes’ products and resources at bkbooks.com. Read Barbara’s blog at bkbooks.com. Socials for Barbara Karnes: Facebook IG LinkedIn Twitter (X) YouTube

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

Find Help for the Administrative Tasks After a Loss

Fri, 13 Mar 2026 07:00:29 +0000

David Mulqueen has seen first hand the challenges of being an executor of an estate. He’s got some great insight and advice about managing the heavy lift of handling administrative tasks after a death. His company AnnCare was built to solve that problem, making the role of an executor so much easier and easing the grief burden of survivors. So many people avoid conversations about death. Often there’s no end of life or estate planning. It creates a mountain of to-do’s while the executor is grieving and still trying to manage life.

The components that are part of an estate can be fairly simple, but the volume of the tasks can be time-consuming. David describes some of the financial, personal, and business situations that executors deal with. Just finding the one item to do first is a daunting task. Grief is often the biggest roadblock, slowly down thought processes. Being organized is key.

Connect with AnnCare: AnnCare provides support services for clients needing help completing those administrative tasks. You can check out AnnCare services at anncare.io. Read how AnnCare supports their clients here. Download your copy of AnnCare’s free post-loss checklist to get yourself here.

Find all of Barbara Karnes’ products and resources at bkbooks.com. Read Barbara’s blog at bkbooks.com. Socials for Barbara Karnes: Facebook IG LinkedIn Twitter (X) YouTube

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

Learn How Technology Keeps Seniors Happy and Safe at Home

Fri, 06 Mar 2026 12:41:06 +0000

As a caregiver for his wife, David Walsh found purpose and meaning. As a business owner he’s carrying that purpose forward supporting seniors to live safely in their own homes. David’s wife Beatrice faced the end of her life with courage, and asked David to do the same as her caregiver. They had been partners for 30 years when Beatrice was told she had only four weeks to live during the Covid pandemic. While he acknowledged how difficult the caregiving was , David viewed his caregiving experience as an honor.

Recalling this grievous experience, David remembers what a joy it was to spend the last year of Beatrice’s life in her own home. It was one of Beatrice’s end of life wishes, and they were able to honor that. David understands how much support people need as they age. He also knows how valuable it is for older adults to age in their own space. His work reflects what he learned during his wife’s illness. Halo Care provides a safety net for older adults living alone. They believe that everyone deserves the opportunity to live independently at home but when that time is getting more difficult, HaloCare provides additional help. Supported by innovative technology and passionate, caring people, HaloCare utilizes remote monitoring to empower people to live quality, independent lives in their own homes. Always respectful of dignity and privacy, there are no video cameras used in Halo Care’s systems and the technology is backed up by compassionate, real humans.

Connect with Halo Care at halocaregroup.com Learn about the support Halo Care offers to senior adults, those living with disabilities, and people who have just been discharged from the hospital here. Check out HaloCare on social media: Facebook LinkedIn X (Twitter) Instagram

Connect with Lasting Remembrance to purchase a memorial blanket at lastingremembrance.com. A personalized blanket is a great way to ease grief, bringing warmth, peace and connection after a loss. Using the code heartofhospice gives you a 10% discount on your blanket purchase.

Find all of Barbara Karnes’ products and resources at bkbooks.com. Read Barbara’s blog at bkbooks.com. Socials for Barbara Karnes: Facebook IG LinkedIn Twitter (X) YouTube

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

Back to Basics: What to Know About General Inpatient Care

Fri, 27 Feb 2026 08:00:20 +0000

We're getting back to the basics of hospice care, taking a deep dive into hospice General Inpatient Care. Patients (and providers!) need to know the what/when/where of the GIP level of care inside hospice care. Here are some highlights of this episode:

• General Inpatient Care is used for crisis symptom management that can't be done in the patient's home. • GIP is provided in a Medicare-certified facility (so there's 24/7 nursing care). • Medicare does not consider actively dying a crisis. • Every Medicare-certified hospice agency is required to furnish GIP care when it's needed. • Hospice team members (nurse, social worker, chaplain) continue to see the patient while they’re in GIP care.

Find all of Barbara Karnes’ products and resources at bkbooks.com. Read Barbara’s blog at bkbooks.com. Socials for Barbara Karnes: Facebook IG LinkedIn Twitter (X) YouTube

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

Documenting the Final Journey of Hospice Nurse Allyson

Fri, 20 Feb 2026 08:00:22 +0000

What happens when the hospice nurse who has long stood at the bedside of the dying becomes the patient herself? A Butterfly Has Been Released is a death-positive documentary film that follows Allyson from her terminal brain tumor diagnosis to her final breath—revealing courage, love, and the raw realities of letting go. Filmmakers Jason Zamer and Barry Koch capture Allyson’s journey in an intimate way that bears witness to the reflections of Allyson, her family, and friends during her last 39 days. They only spent 12 days filming with Allyson, but the experience impacted them deeply. When you watch the film, you’ll feel the same. Connect with Jason and Barry at TG Beyond: Website - tgbeyond.com Documentary rental, community screenings, and CE class available through a Partnership with Hospice Foundation of America on their website. From Caregiver to Patient: Hospice Nurse Allyson's Final 39 Days. ( https://hospicefoundation.org/product-category/from-caregiver-to-patient-hospice-nurse-allysons-final-39-days/) Instagram - @tgbeyond

Find all of Barbara Karnes’ products and resources at bkbooks.com. Read Barbara’s blog at bkbooks.com. Socials for Barbara Karnes: Facebook IG LinkedIn Twitter (X) YouTube

Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

What You Need to Know About Meditative Heartbeat Therapy

Fri, 13 Feb 2026 08:00:23 +0000

Hospice chaplain and end of life doula Daniel DeLoma is devoted to the sacred task of helping others die well, with dignity, presence, and the steady rhythm of the heart as their guide. His work has purpose. From the very start of Daniel’s work in end of life care, he knew the importance of working with the dying. Daniel’s chaplain work made him realize that presence and prayer were not enough to meet the spiritual needs of his patients and caregivers. The development of meditative heartbeat therapy grew organically through his practice. The therapy connects people with their own heartbeat and is easily utilized by anyone. Using simple techniques, heartbeat therapy has a calming effect, reducing anxiety and pain perception. The therapy can be implemented to help patients fall asleep. Using a special stethoscope (like a Littman or Eko stethoscope) enables recording the heartbeat for playback for both the patient and the family. Hearing a loved one’s heartbeat can be a source of comfort after a death.

Connect with Chaplain Daniel DeLoma and Meditative Heartbeat Therapy: Website:https://www.heartbeattherapy.com/ Purchase a copy of Daniel’s book Meditative Heartbeat Therapy: A Contemplative Guide to Presence, Rhythm, and Care at End-of-Life here

Find all of Barbara Karnes’ products and resources at bkbooks.com. Read Barbara’s blog at bkbooks.com. Socials for Barbara Karnes: Facebook IG LinkedIn Twitter (X) YouTube

Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

The Dementia Darling Shares Practical Tips for Caregivers - Encore Episode

Fri, 06 Feb 2026 08:00:21 +0000

Encore episode - Carrie Aalberts (AKA the Dementia Darling) supports dementia caregivers with her heart and soul, and a whole lot of strength. As the founder of Dementia Darling, Carrie has established herself as a leading voice in dementia education and support. She’s cultivated an online community of more than 63,000 followers, creating a nurturing space for caregivers to find education, resources, and support. Carrie's mission is to empower caregivers by fighting isolation, challenge prevailing narratives about dementia and aging, and foster moments of joy. She continues to push boundaries as an educator and advocate in dementia care, creating a movement that celebrates life and builds a supportive community. Connect with Carrie Aalberts on social media - @dementiadarling, or through her podcast "Gather Darlings" to join her mission of spreading knowledge and understanding the dementia and caregiving community. Website: dementiadarling.com Social media: Instagram LinkedIn Facebook TikTok YouTube Listen to the Gather Darlings Podcast here

Find all of Barbara Karnes’ products and resources at bkbooks.com. Read Barbara’s blog at bkbooks.com. Socials for Barbara Karnes: Facebook IG LinkedIn Twitter (X) YouTube

Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. And we believe you deserve to get good hospice care. If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a 30-Minute Navigation Session for $49 or an in-depth 60-Minute Navigation Session for $95. If you're gathering information about starting end of life care, or troubleshooting the care you’re already receiving, we’re here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. Book a session with an expert Hospice Navigator at theheartofhospice.com. Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Social media: Facebook Twitter Instagram LinkedIn Email: helen@theheartofhospice.com More podcast episodes: The Heart of Hospice Podcast Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

A Palliative Doctor's Personal Story of Her Father's Death

Fri, 30 Jan 2026 08:00:20 +0000

Trigger Warning: The content of this episode includes narratives about suicide. If you need to, catch up with us on another episode and take time to care for yourself.

Dr. Delia Chiaramonte shares the story of her father’s suicide in this deeply emotional and personal episode. She wanted the best end of life experience for her father. Because his renal failure was at the end stage, he had a terminal prognosis. As a palliative care physician, Dr. Chiaramonte made sure she and her dad had the important conversations about end of life. She describes the complicated and disenfranchised grief she’s feeling. Delia’s experience is one that many grievers can relate to. There’s so much to learn from her story.

Connect with Integrative Palliative Physician Dr. Delia Chiaramonte: The Integrative Palliative Institute More information about Dr. Chiaramonte’s Courageous Caregiver program is available at www.CaregivingIsHard.com. Listen to the Integrative Palliative Podcast here. Buy your copy of Dr. Chiaramonte’s book Coping Courageously: A Heart-Centered Guide for Navigating a Loved One’s Illness Without Losing Yourself

Download Dr. Chiaramonte’s free resources here Social media for Dr. Chiaramonte: LinkedIn Facebook TikTok YouTube

If you have experienced a loss by suicide, we hope you find support. Here are some resources that might help. Alliance of Hospice Suicide Awareness Voices of Education

Find all of Barbara Karnes’ products and resources at bkbooks.com. Read Barbara’s blog at bkbooks.com. Socials for Barbara Karnes: Facebook IG LinkedIn Twitter (X) YouTube

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com Social media: Facebook Twitter Instagram LinkedIn Email: helen@theheartofhospice.com More podcast episodes: The Heart of Hospice Podcast

Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

A Rare Look at the Life and Work of Dr. Elisabeth Kubler-Ross

Fri, 23 Jan 2026 08:00:16 +0000

We're honored to feature this intimate and warm conversation with Ken Ross, founder of the Elisabeth Kubler-Ross Foundation and son of Dr. Elisabeth Kubler-Ross. Ken describes the life and work of his mom, as well as her unconventional approach to the dying. Towards the end of Dr. Kubler-Ross's life, Ken was her caregiver. He describes how her open-hearted nature drove her to become one of the most widely known experts in the field of death and dying. Ken is carrying that work forward at the Elisabeth Kubler-Ross Foundation, providing education all over the globe. Her legacy continues on in grief support groups, workshops, and conferences that teach about death, dying, and the human experience.

Connect with the work of Ken Ross: Ken Ross Photography: kenrossphotography.com Elisabeth Kubler-Ross Foundation website: ekrfoundation.org EKR Foundation Education opportunities: ekrfoundation.org/education Social media for the EKR Foundation: Facebook YouTube Instagram LinkedIn Books: Real Taste of Life: A Journal by Ken Ross and Elisabeth Kübler-Ross, 2002 Tea with Elisabeth by Ken Ross, Fern Stewart Welch, and Rose Winters, 2009

Find all of Barbara Karnes’ products and resources at bkbooks.com. Read Barbara’s blog at bkbooks.com. Socials for Barbara Karnes: Facebook IG LinkedIn Twitter (X) YouTube

Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Social media: Facebook Twitter Instagram LinkedIn Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

Spotlight on Pediatric Palliative Care With Dr. Jared Rubenstein

Fri, 16 Jan 2026 08:00:21 +0000

Pediatric palliative care physician Dr. Jared Rubenstein opens up about what it really means to show up for families when there’s no easy fix. Jared and his team support seriously ill kids and their families, bringing compassion and utilizing Dignity Therapy techniques modified especially for kids. The unique medical and emotional needs of those sick kids shape everything the palliative care team does. Dr. Rubenstein unpacks the realities of caring for children and their families in the midst of a flawed healthcare system, and acknowledges the vast rewards of being part of their care.

If you care for a seriously ill child and want to connect with Dr. Jared Rubenstein’s work: Website: JaredRubensteinMD.com Socials: IG Threads Bluesky Youtube

Find all of Barbara Karnes’ products and resources at bkbooks.com. Read Barbara’s blog at bkbooks.com. Socials for Barbara Karnes: Facebook IG LinkedIn Twitter (X) YouTube

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com Social media: Facebook Twitter Instagram LinkedIn Email: helen@theheartofhospice.com More podcast episodes: The Heart of Hospice Podcast

Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

How to Be a Badass Advocate For Your Loved One

Fri, 09 Jan 2026 08:00:20 +0000

Anyone with a serious illness needs a strong advocate who has their back and makes sure their needs are met. Erin Galyean did that for her sister, learning on the job how to be an advocate as a caregiver. When her sister became ill with cancer and a serious lung disease, Erin became a long-distance champion for her sister’s care. Her book Badass Advocate: Becoming The Champion Your Seriously Ill Loved One Deserves covers everything from building a support team for both the caregiver and the patient, to asking doctors effective questions to get the real answers you need. Erin’s advice doesn’t stop there - she encourages every caregiver to learn to find the balance in being both compassionate and assertive as a caregiver.

Although Erin’s online Empowered Advocate Community has since shut down, every caregiver can benefit from hearing her caregiving story, and from buying her book. Find your copy of Badass Advocate: Becoming The Champion Your Seriously Ill Loved One Deserves here. Links for Erin Galyean: Badass Advocate Book Badass Advocate Website Socials for Erin Galyean: LinkedIn TikTok Facebook Instagram YouTube

Find all of Barbara Karnes’ products and resources at bkbooks.com. Read Barbara’s blog at bkbooks.com. Socials for Barbara Karnes: Facebook IG LinkedIn Twitter (X) YouTube

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Social media: Facebook Twitter Instagram LinkedIn

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

How to Live Well by Learning What Matters Most

Fri, 02 Jan 2026 08:00:21 +0000

End of Life Doula Diane Button has been taught how to live well by caring for the dying. Her life’s work has been to support people to find meaning, comfort, joy, and peace in life and in death. One of the biggest influences on how Diane lives was her Grandpa Charlie, and she continues to be inspired by how he lived his life. Diane has collected stories and wisdom from every person for whom she’s provided care while they were dying.

In 2022, during the pandemic, Diane wrote an article for Maria Shriver’s Sunday Paper that remains widely-read and one of their most popular articles. What Matters Most: Lessons the Dying Teach Us About Living is her latest book, written at the invitation of Maria Shriver and published by Penguin Random House. It is available everywhere books are sold. Connect with Diane Button: Website: dianebutton.com End-of-Life Doula Website: Bay Area End-of-Life Doula Alliance Instagram: @dianebuttondoula Facebook:facebook.com/diane.button.12 Get your copy of Diane’s book! – What Matters Most: Lessons the Dying Teach Us About Living

Find all of Barbara Karnes’ products and resources at bkbooks.com. Read Barbara’s blog at bkbooks.com. Socials for Barbara Karnes: Facebook IG LinkedIn Twitter (X) YouTube

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com Social media: Facebook Twitter Instagram LinkedIn Email: helen@theheartofhospice.com More podcast episodes: The Heart of Hospice Podcast

Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

Back to Basics: What You Need to Know About Disease Specific Directives

Fri, 19 Dec 2025 08:00:21 +0000

We’re deep diving into advance care planning with hospice Social Worker Rosie Gaston, talking about diagnosis specific advance directives. With diseases like Alzheimer’s and other types of dementia on the rise, the need to plan for end of life situations for neurodegenerative diagnoses is increasing. It’s hard to predict every scenario, but considering basic care needs and wants is important. Some of the things that should be considered include where the person wants to live out their life, what treatments they want/don’t want, who’ll be the primary caregiver, and how care will be paid for. A dementia specific directive might include directions about treating infections like UTI’s and pneumonia, and choices about feeding, feeding tubes, and VSED options.

Even though it’s not possible to think of every situation that might happen, it’s important to have conversations about needs, wants, and wishes for end of life. Be specific. Those conversations can make decisions so much easier when a crisis arises later in the disease trajectory. Have the conversations early - and often!

Connect with Rosie Gaston, MSW, LICSW, APHSW-C: www.ABetterEnding.org Socials for Rosie Gaston: IG

RESOURCES:

End of Life Choices New York dementia advance directive resource
Compassion and Choices Dementia Priorities and Values Tool
The Conversation Project handout for caregivers for someone with Alzheimer’s and other dementias

Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Social media: Facebook Twitter Instagram LinkedIn Email: helen@theheartofhospice.com More podcast episodes: The Heart of Hospice Podcast

Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

How to Cope With Grief That No One Understands

Fri, 12 Dec 2025 08:00:24 +0000

There isn’t a greeting card for every type of grief. Dr. Ken Doka joins the podcast in this episode to talk about anticipatory and disenfranchised grief. Before death even occurs, people are grieving - anticipating the loss of identity, functional ability, roles, and relationships as well as the actual loss that comes with death itself. This kind of grief is felt by both the person who’s dying and the caregivers and family. Disenfranchised grief occurs when the relationship with the deceased person wasn’t one that’s recognized by society, and can't be publically mourned. Ex-spouses, abusive and estranged relationships can all be situations of disenfranchised grief. It can be difficult to find support for grief like this, making the griever feel isolated. Disenfranchised grief can be more complicated than grief related to healthy and close relationships.

If you need information about grief, check out the Hospice and Grief Info section of the Hospice Foundation of America’s website. Website: hospicefoundation.org Research on grieving: hospicefoundation.org/research-on-grief-and-grieving Grief and other types of loss: hospicefoundation.org/grief-and-other-types-of-loss Facebook: www.facebook.com/hospicefoundation Instagram: www.instagram.com/hfahospice X: x.com/hfahospice

Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

Back to Basics: What You Need to Know About Advance Care Planning

Fri, 05 Dec 2025 08:00:23 +0000

Social Worker Rosie Gaston talks about getting back to the basics of what matters most to start an advance care plan. Reflecting on values and beliefs is a great starting place. The next step is having conversations with people who matter most to us (along with healthcare providers) to communicate the kind of care we want when our bodies begin to shut down, and what embodies quality of life. When should we make an advance care plan? Rosie recommends anyone over 18 make an ACP and revisit it whenever there’s a life change. End of life wishes change and ACP should change to stay in alignment with who we are. Getting a life-altering or serious diagnosis, changing marital status, or having a change in healthcare provider are all milestones where review of an advance care plan should happen. Have the conversations early, have them often.

Connect with Rosie Gaston, MSW, LICSW, APHSW-C: www.ABetterEnding.org Socials for Rosie Gaston: IG

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Social media: Facebook Twitter Instagram LinkedIn

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

Up Close and Personal With Hospice Nurse Julie

Fri, 28 Nov 2025 08:00:25 +0000

Hospice Nurse Julie McFadden is using TikTok to teach over 1 million followers what death really looks like. As a nurse with 15 years of experience in end of life care, she’s seen all the ups and downs of community-based bedside hospice care. Julie also spent years working in ICU, and learned the intense needs of the dying. Her book Nothing to Fear: Demystifying Death to Live More Fully prepares readers for death and dying, with stories interwoven throughout. Her newest book is The Nothing to Fear Journal: Questions and Reflections for Demystifying and Preparing for the End of Life. The journal has four sections that give prompts to help the user’s writing process. The sections cover anything and everything related to dying, including beliefs and fears, how to have end of life conversations, ways to ask for help, and practical tips for planning your own end of life experience. Who should read the books? Hospice Nurse Julie says they’re for anyone who’s going to die.

Links to Hospice Nurse Julie’s book, journal, socials, and website: Nothing to Fear The Nothing to Fear Journal https://www.hospicenursejulie.com/ https://www.instagram.com/hospicenursejulie https://www.tiktok.com/@hospicenursejulie https://www.youtube.com/@hospicenursejulie https://www.facebook.com/people/Hospice-nurse-julie/100077937666311

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com Social media: Facebook Twitter Instagram LinkedIn Email: helen@theheartofhospice.com More podcast episodes: The Heart of Hospice Podcast

Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

A Revealing Look Inside the Hospice Interdisciplinary Team

Fri, 21 Nov 2025 08:00:27 +0000

Dr. Jessica Zitter sees how hard family caregivers work and it inspires her to keep going as a physician and caregiver advocate. Working as a critical care and palliative care physician, an author, and a documentary film maker has positioned Dr. Zitter uniquely to advocate for caregivers and the heavy burden of family caregivers. Jessica has had personal experiences working as part of an interdisciplinary team that have made her a better practitioner and doctor, and more aware of her own biases. Here are some highlights of this conversation: • The size of the caregiver workforce in the U.S. has grown to 63 million as of 2025. • Caregiving from a distance carries its own set of stressors, including increased financial burden. • Working in an interdisciplinary team can create accountability among the various disciplines. • Implicit and explicit bias influences the quality of the healthcare people receive. • Teams need to make space for every discipline, and it’s the responsibility of those professionals to step forward and claim their seats. Connect with Reel Medicine Media at reelmedicinemedia.org Find information about The Chaplain and The Doctor Find information about Caregiver: A Love Story Watch the trailer for Extremis here Find Dr. Zitter’s book Extreme Measures: Finding a Better Path to the End of Life here Text the word “caring” to 66866 to recieve the Reel Media newsletter and get a free resource guide to chaplaincy. Social media for Dr. Jessica Zitter: IG Facebook X LinkedIn YouTube Vimeo

Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Social media: Facebook Twitter Instagram LinkedIn Email: helen@theheartofhospice.com Find more podcast episodes of The Heart of Hospice Podcast

Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

The Powerful Work of a Palliative Care Chaplain

Fri, 14 Nov 2025 08:00:25 +0000

Palliative Care Chaplain Cody Hufstedler shares the end of life experiences of his patients and their families using compassion, healthy boundaries, and a little bit of humor. After 12 years of working as a chaplain, he’s seen the best and worst of death and dying. Cody believes his job is to help people work through changes when bad news happens, and help them pivot back to the values they hold most dear. He’s stepping into the place where panic happens and works to be the calm inside the chaos.

As host of The Dying to Tell You Podcast, Cody features one-on-one conversations with guests who are living with a serious illness—including cancer, ALS (Lou Gehrig's disease), Alzheimer's disease, brain cancer, multiple myeloma, and other terminal diagnoses. These aren't patients of his; ethical boundaries are carefully maintained. These are intimate dialogues with people from across the country and around the world who are willing to share their experiences with mortality. Listen to The Dying to Tell You Podcast Check out The Caring Perspective Podcast here and here.

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com Social media: Facebook Twitter Instagram LinkedIn Email: helen@theheartofhospice.com More podcast episodes: The Heart of Hospice Podcast

Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

This is About Caregiving From a Millennial's Perspective

Thu, 06 Nov 2025 08:00:22 +0000

Jessica Guthrie is more than a millennial caregiver - she’s an advocate using her voice to change how we approach the care of loved ones. When her mom Constance was diagnosed with early onset Alzheimer’s disease at 66 and Jessica was 26, Jessica began coordinating her care from a distance. The trajectory of the disease soon required a move to be closer to Constance. Jessica describes it as “a shock to the system” as she began trying to figure out how to manage her mom’s care. None of her friends were talking about caregiving or Alzheimer’s disease. In the ten years since the diagnosis, there have been ups and downs in Jessica’s caregiving journey, including admission and discharge (and readmission) to hospice.

Jessica Guthrie founded When Career & Caregiving Collide, sharing what she’s learned to empower other caregivers. She’s teaching and speaking, featured in podcasts and webinars. You can find Jessica Guthrie at jessicacguthrie.com Find Jessica on social media: Instagram LinkedIn Check out interviews and articles about Jessica here.

You can find the Approaching Death Support Kit at bkbooks.com. Find all of Barbara Karnes’ products and resources at bkbooks.com. Read Barbara’s blog at bkbooks.com. Connect with Barbara Karnes on Facebook IG LinkedIn Twitter (X) YouTube

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Social media: Facebook Twitter Instagram LinkedIn

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

The Dementia Deck is a Helpful EOL Conversation Starter

Fri, 31 Oct 2025 07:00:23 +0000

When dementia is the diagnosis, end of life discussions can be intense and heartbreaking. Hospice social workers Lisa Pahl and Jessica Empeno shed light on how to make things easier. Whether the dementia diagnosis is the primary (or terminal) diagnosis, or it is happening alongside another serious illness, the topics to be considered are complex. Everything from incontinence management to feeding tubes to ventilator support needs to be addressed. Talks about advance care planning should happen early and often, and include healthcare teams, family members, and anyone who might be involved in the caregiving group.

The Dementia Deck is one of the great tools out there to facilitate advance care plan conversations when there’s a dementia diagnosis in the mix. You can connect with Lisa Pahl (co-creator of The Dementia Deck) at thedeathdeck.com. Purchase your The Dementia Deck here. Check out The Death Deck here. Get a copy of The EOL Deck here. Follow The Death Deck: Insta Facebook TikTok

Visit the Compassion and Choices website to access the Dementia Values and Priorities Tool here. Read more about the Dementia Values and Priorities Tool at compassionandchoices.org Follow Compassion and Choices: Insta Facebook YouTube LinkedIn Bluesky

Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Social media: Facebook Twitter Instagram LinkedIn Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Caring House Provides Dignified Care at End of Life

Fri, 24 Oct 2025 07:00:18 +0000

The team at Caring House is supporting the dying with compassion and respect, and a willingness to say yes to every end of life wish. Caring House is more than a non-profit organization; it’s a home focused on helping residents and families through the end-of-life experience. It’s the only one of its kind in Los Angeles County. Executive Director David Zartman and Resident Care Manager Joanna Franco lead the Caring House team to empower the dying and their caregivers. Admission to Caring House is open to all regardless of who they are, and support is provided 24/7. The Caring House staff take on the caregiving responsibilities, giving families time to simply be at the bedside of their person. Dying with dignity and comfort is their top priority.

Donating to the work Caring House is a great way to honor someone you’ve lost. You can make your donation to support their work here.

If you want more information about the Omega Home Network, visit omegahomenetwork.org

Connect with the work of Caring House at yourcaringhouse.org

Follow Caring House on social media: Instagram Facebook YouTube

Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Social media: Facebook Twitter Instagram LinkedIn

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Bringing Hope to Underserved Populations Who Need it Most

Fri, 17 Oct 2025 07:00:21 +0000

Elizabeth Johnson is the co-founder and Executive Director of the Peaceful Presence Project, a community-based organization in Oregon dedicated to fostering compassionate end-of-life care. Her commitment to supporting end of life planning for the unhoused population is deep, leading her to companion homeless individuals to help them complete their advance directives. The Peaceful Presence Project offers numerous resources, including end of life doula training and a free downloadable resource called End Notes that guides the user in gathering the documents their loved ones will need, and the wishes they want honored, into one place. The End Notes workbook comes in both digital and printable formats.

Find the work of the Peaceful Presence Project: Website: thepeacefulpresence.org Learn more about The Peaceful Presence Project Connect with their End of Life Doula Course Download the End Notes resource here Social media for the Peaceful Presence Project: Instagram LinkedIn

Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

Suzanne O'Brien Reflects On 20 Years Serving The Dying

Fri, 10 Oct 2025 07:00:20 +0000

Suzanne O’Brien has spent the last 20 years serving the dying, and supporting the ones who serve at the bedside. As a hospice nurse and founder of Doula Givers, she finds purpose and meaning in working with patients at end of life. After working most of her nursing career in oncology and hospice, Suzanne saw the gaps in care for people with advanced diseases. This led to the creation of the award-winning program DoulaGivers: End of Life End of Life Doula Training, Eldercare Doula Training, and Doulagiver Care Consultant Training. Today, Suzanne has combined her years of training, education, and experience to create The Doulagivers® Institute for Higher Learning featuring the Doulagivers® Life Class and Wellness Membership. This membership was created to support people everywhere with the tools, education and mentorship they need to live their best, fullest, and healthiest life possible.

Connect with Suzanne O’Brien Website: doulagivers.com Get free resources from DoulaGivers here. Read Suzanne’s blog here. Purchase your copy of The Good Death by Suzanne B. O’Brian at thegooddeathbook.com

Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

Learn Some Surprising Insider Secrets at a Hospice Nurse Roundtable

Fri, 03 Oct 2025 07:00:22 +0000

We’re excited to feature a roundtable discussion with a group of amazing hospice nurses discussing what makes a “good death” and the rituals they’ve created for themselves and caregivers. Jean Ann Menna, Carrie Oram, and Shelley Henry have many years of end of life nursing experience. Along with Helen, they share the many facets of helping patients create good deaths for themselves. This conversation is a great inside look into how hospice nurses care for families when death occurs.

Find Jean Anne Menna and her book “Go with Grace: A Simple Guide to Caring for Someone on Hospice” here.

Connect with guest Carrie Oram at Angel Heart Holistics here.

Find Shelley Henry and Amity Staffing at amitystaffing.com

Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Social media: Facebook Twitter Instagram LinkedIn

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Bedside Wisdom: Powerful Lessons From a Hospice Doctor

Fri, 26 Sep 2025 07:00:23 +0000

Hospice doctor Dr. Alen Voskanian is sharing the lessons he’s learned at the bedside of the dying, including why managing compassion fatigue is so vital. Working with AIDs patients led him to hospice work and to obtaining his board certification in hospice and palliative care medicine. Through his practice, Alen tries to humanize his patients and tries to connect with them. He works to find the best balance of doing his job and seeing the patients as human beings. Debriefing with the hospice team and finding an outlet for his secondary grief has helped Alen create personal wellbeing and sustainability as a hospice physician.

Connect with Alen Voskanian: LinkedIn Purchase a copy of “Reclaiming the Joy of Medicine: Finding Purpose, Fulfillment, and Happiness in Today's Medical Industry” by Dr. Alen Voskanian here.

Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Social media: Facebook Twitter Instagram LinkedIn

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Empowering the Dying for a Better Ending

Fri, 19 Sep 2025 07:00:23 +0000

Elizabeth Uslander is empowering the dying every day to create a better ending. As co-founder and CEO of Empowered Endings, Elizabeth is passionate about helping people with serious illness to find the death that aligns with their values and wishes. Her social worker background equips her with problem solving skills she can use to be an advocate for patients and their caregivers. Elizabeth’s theological training lets her support the religious, faith, and spiritual beliefs of her patients.

Elizabeth is not only an advocate for people who are at the end of life; she’s also a proponent of the interdisciplinary team. She thrives in the collaborative environment that’s the best structure for caring for the complex needs of serious illness. Elizabeth is a passionate change agent committed to humanity, dignity, and choice throughout life, and especially in its final chapters.

Find out more about Elizabeth Uslander and Empowered Endings: Website: empoweredendings.com and empoweredendings.org LinkedIn: @elizabeth-uslander or https://www.linkedin.com/in/elizabeth-uslander/ Instagram: @elizabethuslander or https://www.instagram.com/elizabethuslander/ Facebook: @elizabethuslander or https://www.facebook.com/elizabethuslander/

Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

Learn About the Important Work of The Peaceful Presence Project

Fri, 12 Sep 2025 07:00:26 +0000

Hospice nurse and End of Life Doula Erin Collins puts her heart and mind into helping people make peace with the end of life through compassionate, reflective conversations. As co-founder of The Peaceful Presence Project, Erin has seen the comfort and calm that advance care planning brings to not only those who are dying, but also to their family caregivers and the end of life workers who are serving them.

Facilitating end of life conversations is one of Erin’s gifts. The Peaceful Presence Project offers a printed workbook called End Notes that helps people express their end of life wishes, and to capture memories and messages they don’t want lost. You can find End Notes on The Peaceful Presence Project website. Through the advance care plan conversation, people feel better about the end of life. Medical decision makers also find their grief burden is less, as they simply follow directions that have been given by their Person.

Connect with guest Erin Collins: LinkedIn: www.linkedin.com/in/erin-collins-rn Instagram:@peacefulpresencedoulas Facebook: facebook.com/peacefulpresencedoulas Find more information about The Peaceful Presence Project at thepeacefulpresenceproject.org Check out their End of Life Doula training program here. Get your copy of End Notes here.

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Social media: Facebook Twitter Instagram LinkedIn

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

International End of Life Doula Association is Making Dying Better

Fri, 05 Sep 2025 07:00:23 +0000

The International End of Life Doula Association believes everyone deserves compassionate, respectful care at the end of life. Executive Director Doug Simpson is working with the INELDA team to make that happen. Doug’s journey to EOL doula work began with the death of his own father, followed by the birth of his son. Drawn to end of life work, Doug trained as a doula in 2018 and became an INELDA volunteer in 2019. He moved into the Executive Director position in 2022, and has never lost sight of the personal experiences that have guided his work. Reflecting back, Doug realizes the similarities between birth and death, and the deeply spiritual experiences of both these life events. He works with INELDA now to ensure that everyone has access to end of life care, resources to make that death an enriched experience, and education to promote growth and acceptance of the work of end of life doulas.

You can find the work of the International End of Life Doula Association at inelda.org Read more about INELDA Executive Director Douglas Simpson here. Looking to find an INELDA doula in your area? Click here. Find out how EOL doulas serve the seriously ill and dying here. Facebook Instagram

Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

How a Pediatric Palliative Care Physician Found Spiritual Healing

Fri, 29 Aug 2025 07:00:26 +0000

Trigger Warning: The content of this episode includes narratives about seriously ill children. If you need to sit this one out, catch up with us on another episode and please take time to care for yourself.

In his memoir titled “Because I Knew You: How Some Remarkable Sick Kids Healed a Doctor’s Soul”, Dr. Robert Macauley tells the story of the patients who have impacted his life, and how he’s changed for good. As a pediatric palliative care physician, Bob walks alongside kids and their parents through serious illnesses. Those experiences have shaped who he is, what he believes and how he practices medicine.

Buy your copy of “Because I Knew You: How Some Remarkable Sick Kids Healed a Doctor’s Soul” on Amazon Barnes & Noble Watch Dr. Macaulay’s TEDx talk here.

Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

How a Quality of Life Navigator Improves Patient Outcomes

Fri, 22 Aug 2025 07:00:24 +0000

DNP Elena Prendergast is empowering people with serious illness to find their voices, and advocate for their best quality of life. Working with patients who are dealing with end of life issues showed her how much extra support is needed, even when there’s a healthcare team providing care. Elena helps clients navigate the confusing maze of the US healthcare system. She listens to what they think is important, and equips them with the tools to make their needs and wishes known. Her education as a doctorally prepared nurse practitioner with extensive experience in palliative care, additional training in trauma/resilience, and the sacred work of an end-of-life doula provides a unique perspective of the needs of clients with serious-illness.

If you’re a patient, a caregiver or loved one, or a long-distance caregiver, you can work with Elena at Tree of Life Health Consultant by visiting treeoflifehealthconsultant.com. Connect with Elena Prendergast, DNP on social media: Facebook Instagram LinkedIn

Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

How to Find Hope When the Burnout is Real

Fri, 15 Aug 2025 07:00:24 +0000

Palliative physician Emma Jones knows the real effects of burnout, and now she’s coaching others to rise from the ashes. While working in a high-pressure pediatric palliative care job, she found herself suffering the fallout of severe burnout. Emma was told to go home and figure out what was going on, but she realized there was no guide for how to do that. She began dealing with depression, trying to rebuild her self care. The care started with yoga, and grew to include healthy habits including daily movement, therapy, rest, and boundary setting. She calls them “small, radical changes”. Emma wanted to give other people a way out of their own burnout and validate their experiences. Her book The Phoenix Blueprint: Emerging Stronger From The Blaze of Healthcare, shares the skills and practices that have allowed her to emerge stronger from burnout and rediscover her calling to serve patients and colleagues. The Phoenix Blueprint provides a step-by-step guide to help those in healthcare rise like a phoenix from the ashes.

Connect with Dr. Emma Jones: LinkedIn Facebook Instagram Website: emmajonesmd.com Work with Dr. Jones to reclaim your career from burnout. Purchase your copy of The Phoenix Blueprint: Emerging Stronger From The Blaze of Healthcare here.

Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Social media: Facebook Twitter Instagram LinkedIn Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

Before the Casket Provides Helpful Education for End of Life

Fri, 08 Aug 2025 07:00:22 +0000

With honest information and gentle humor, the founders of Before the Casket are teaching us how to plan for more than just funeral arrangements. Hospice nurses Erin Putney and Amy Hensley have designed workshops that educate attendees about hard end of life decisions, empowering them and their decision-makers and making the whole experience easier. Before the Casket also provides education for healthcare professionals, offering content on end of life interventions and compassionate conversations. Nurses can even get CEUs for license renewal.

Amy and Erin provide education that includes demos of medical devices and relaxed interaction. It’s a great way to create realistic expectations for what care at the end of life looks like. You can connect with Before the Casket at beforethecasket.com Check out the courses offered for nurses and other healthcare workers here.

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Social media: Facebook Twitter Instagram LinkedIn

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

An Authentic Conversation With End Well Founder Dr. Shoshana Ungerleider

Fri, 01 Aug 2025 07:00:25 +0000

In this open and vulnerable interview, Dr. Shoshana Ungerleider talks about her caregiving experiences during her dad’s illness and death. Shoshana discovered early on that she wasn’t prepared for the complicated decision making that comes with serious illness caregiving, despite her medical training. Reflecting back at the experience, she talks openly about what she would have done differently. Difficult conversations about treatment, challenges with appetite and weight loss, and the genetic implications for Shoshana and her sister were all issues surrounding her father’s illness.

You can connect with End Well at endwellproject.org Listen to the Before We Go podcast here Find more information about End Well 2025 here Find Shoshana on Instagram

Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you’re already receiving, we’re here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. We believe you deserve to have good hospice care. Book a session with an expert Hospice Navigator at theheartofhospice.com.

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com Social media: Facebook Twitter Instagram LinkedIn Email: helen@theheartofhospice.com More podcast episodes: The Heart of Hospice Podcast Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

End of Life Options: The Powerful Story of Brittany Maynard

Fri, 25 Jul 2025 07:00:23 +0000

End of life option advocate Dan Diaz is sharing the story of his wife Brittany Maynard and her pursuit of a gentle death. Diagnosed at age 29 with a terminal brain tumor, Brittany chose to move 600 miles to a state that allowed for death with dignity, utilizing Medical Aid in Dying. In this powerful interview, Dan describes the impact of her life and death on compassionate death choices and legislation.

Since Brittany’s death in 2014, Medical Aid in Dying laws have expanded to eleven states in the U.S. Dan continues to tell their story, advocating for expansion of death with dignity laws to every state. We continue to learn from her experience and fierce determination to ensure the kind of death she wanted.

Connect with Dan Diaz on Facebook

Read more about Brittany Maynard at thebrittanyfund.org

Find more information about Medical Aid in Dying (MAID) at compassionandchoices.org

You can find the Approaching Death Support Kit at bkbooks.com.

Find all of Barbara Karnes’ products and resources at bkbooks.com.

Read Barbara’s blog at bkbooks.com.

Connect with Barbara Karnes on Facebook IG LinkedIn Twitter (X) YouTube

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Social media: Facebook Twitter Instagram LinkedIn

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Back to Basics: What You Need to Know About Live Discharges

Fri, 18 Jul 2025 07:00:23 +0000

Hospice nurse Beth Cavenaugh helps to clear up confusion around live discharges from hospice services. Sometimes people on hospice care improve or stabilize, and no longer meet the criteria to receive care from the hospice agency. The discharge process can be confusing, and it’s important to know the things that need to happen. Here are a few highlights from this episode:

Live discharges are initiated by the hospice agency when the patient no longer qualifies.
Sometimes hospice patients improve because the care has become consistent, or their condition simply gets better. Their disease process may stabilize.
Hospice staff are required to give the patient and caregiver notice of the discharge according to state and federal requirements.
Discharge planning should ALWAYS happen - the nurse handles the clinical items (medications, equipment, a new healthcare provider/team), and the social worker handles the psychosocial concerns (caregiving assistance, community resources and support).
The patient or decision maker has the right to file an appeal if they don’t agree with the discharge from hospice services.
The hospice agency is required to continue providing services until the decision about the appeal is received.
Here’s a link with information about hospice appeals: What to Know About Hospice Appeals

Connect with guest host hospice nurse Beth Cavenaugh at bethcavenaugh.com Buy Beth’s book Some Light at the End: Your Bedside Guide for Peaceful Palliative and Hospice Care Buy The Power and Pain of Nursing: Self-Care Practices to Protect and Replenish Compassion.

You can find the Approaching Death Support Kit at bkbooks.com.

Find all of Barbara Karnes’ products and resources at bkbooks.com.

Read Barbara’s blog at bkbooks.com.

Connect with Barbara Karnes on Facebook IG LinkedIn Twitter (X) YouTube

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Social media: Facebook Twitter Instagram LinkedIn

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Alz Authors Bring Powerful, Personal Stories to the Printed Page

Fri, 11 Jul 2025 07:00:25 +0000

Author and Alzheimer’s caregiver Marianne Scuicco shares her powerful story of caring for her mother and stepdad through dementia diagnosis and end of life. She describes the roller coaster of her caregiving journey, all the ups and downs that her family experienced. After her stepfather was diagnosed with mixed dementia and her mother declined, Marianne and her siblings had to find a balance to ensure they were well cared for. She’s able to say she has very few regrets about her time as a caregiver, feeling she gave her best to the caregiving job. As cohost of the Alz Authors podcast, Marianne continues to support other caregivers dealing with the same challenges.

Marianne Sciucco is a founder of AlzAuthors.com, the global community of authors writing about Alzheimer’s and dementia from personal experience. It is the most comprehensive, single source in the world for dementia literature curated by former caregivers and authors. Marianne serves as board president, manager, and producer and co-host of their podcast, Untangling Alzheimer’s and Dementia. A registered nurse who cared for hundreds of individuals and families impacted by dementia, she is a former caregiver to her stepfather who had mixed dementia, and her mother who did not have dementia. She is the author of Blue Hydrangeas, an Alzheimer’s love story.

Connect with Marianne Scuicco, author of Blue Hydrangeas and cohost of the Alz Authors Podcast:

Website: mariannesciucco.com

Website: alzauthors.com

Podcast: alzauthors.co: /podcast

Social Media for Marianne Scuicco: Facebook Instagram LinkedIn Bluesky Threads

Purchase your copy of Blue Hydrangeas: A Alzheimer’s Love Story

You can find the Approaching Death Support Kit at bkbooks.com.

Find all of Barbara Karnes’ products and resources at bkbooks.com.

Read Barbara’s blog at bkbooks.com.

Connect with Barbara Karnes on Facebook IG LinkedIn Twitter (X) YouTube

Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you’re already receiving, we’re here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. We believe you deserve to have good hospice care. Book your session with an expert Hospice Navigator at theheartofhospice.com.

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Social media: Facebook Twitter Instagram LinkedIn

Back to Basics: What You Need to Know About Complaints

Fri, 04 Jul 2025 07:00:23 +0000

We’re getting back to the basics of hospice care, sharing information about complaints, when to make them, and what should happen when you do. Hospice Social Worker Lisa Pahl (creator of The Death Deck and End of Life Deck) helps drive this discussion. Here are a few highlights from our discussion: •Patients and/or caregivers have a right to make a complaint. •There are numerous reasons a complaint might be needed: visits aren’t being made, symptoms aren’t being managed, response time is slow, or the care is out of alignment with the beliefs or needs of the patient. •Care of a hospice patient should never be rough or insensitive - this is always a reason to make a complaint. •If delivery of medications or medical equipment (DME) is very late or doesn’t happen, a complaint should be made. •A complaint can be given directly to the case manager or director/administrator of the agency. •The hospice agency should immediately investigate, talk to everyone involved, and work to resolve the issue to the satisfaction of the patient or caregiver. •If the hospice agency doesn’t resolve the complaint in a timely manner or to the point the patient/caregiver is satisfied, the complaint can be elevated to the state organization that provides licensure to hospice agencies. It might be the Health and Human Services Department for the state. •The hospice agency is required to furnish the patient/caregiver with contact information about making complaints, including the information for their accrediting organization. (This could be Joint Commission, CHAP, or ACHC).

Connect with Lisa Pahl, owner/creator (thedeathdeck.com) The Death Deck and End of Life Deck Find The Death Deck on social media: Facebook IG LinkedIn

You can find the Approaching Death Support Kit at bkbooks.com.

Find all of Barbara Karnes’ products and resources at bkbooks.com.

Read Barbara’s blog at bkbooks.com.

Connect with Barbara Karnes on Facebook IG LinkedIn Twitter (X) YouTube

Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you’re already receiving, we’re here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. We believe you deserve to have good hospice care. Book your session with an expert Hospice Navigator at theheartofhospice.com.

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Socialmedia: Facebook Twitter Instagram LinkedIn

How to Be the Best Caregiver You Can Be Without Being Perfect

Fri, 27 Jun 2025 07:00:27 +0000

Drs. Barry Jacobs and Julia Mayer join the podcast for a great conversation about bringing your best to caregiving, reminding us that caregivers don’t have to be perfect. As authors and clinical psychologists, Barry and Julia support family caregivers, guiding them through the messiness of caring for a loved one. As a married couple, they’ve had lived experience with caring for their parents and in-laws with Alzheimer’s and dementia. Dealing with caregiving issues in their personal lives taught them invaluable lessons, which they now share with clients and readers of their books.

Barry and Julia’s newest book is the “AARP Caregiver Answer Book” - Purchase your copy at caregiveranswerbook.com

Find the AARP Caregiver Answer Book on the AARP website.

Connect with Dr. Barry Jacobs and Dr. Julia Mayer on their website: loveandmeaning.com

Read Barry’s latest blog post “My Care Receiver’s Doctors Don’t Respect My Boundaries” here.

Find Dr. Barry Jacobs on social media: Facebook Twitter (X) LinkedIn

Find Dr. Julia Mayer on social media: Instagram Facebook Twitter (X) LinkedIn Bluesky

You can find the Approaching Death Support Kit by End of Life Educator Barbara Karnes at bkbooks.com.

Find all of Barbara Karnes’ products and resources at bkbooks.com.

Read Barbara’s blog at bkbooks.com.

Connect with Barbara Karnes on Facebook IG LinkedIn Twitter (X) YouTube

Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you’re already receiving, we’re here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. We believe you deserve to have good hospice care. Book your session with an expert Hospice Navigator at theheartofhospice.com.

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Social media: Facebook Twitter Instagram LinkedIn

Back to Basics: What You Need to Know About Transfers

Fri, 20 Jun 2025 07:00:29 +0000

We’re getting back to the basics of hospice with Hospice Social Worker Lisa Pahl, sharing information about transfers from one hospice agency to another. It’s really important for patients and their decision makers to know they can transfer to another hospice agency if the care isn’t a good fit. Hospice team members should be knowledgeable about how transfers work and what needs to be done.

Here are some things you need to know about transfers: • The patient or decision maker has the right to request a transfer to another hospice agency. • There are several reasons a transfer might happen, including being dissatisfied with the care, personality clashes with the hospice interdisciplinary team, or wanting to be cared for by a friend working for another company. • When the patient or decision maker requests a transfer, the current agency is required to coordinate the transfer with the new agency. • The current agency should provide a report of the care being provided, including the plan of care, list of medications, and a discharge summary. • Transfers are allowed only once during a benefit (certification) period. The current agency should make that information available to the patient and caregiver.

Connect with Lisa Pahl, owner/creator (thedeathdeck.com) The Death Deck and End of Life Deck

You can find the Approaching Death Support Kit at bkbooks.com.

Find all of Barbara Karnes’ products and resources at bkbooks.com.

Read Barbara’s blog at bkbooks.com.

Connect with Barbara Karnes on Facebook IG LinkedIn Twitter (X) YouTube

Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you’re already receiving, we’re here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. We believe you deserve to have good hospice care. Book your session with an expert Hospice Navigator at theheartofhospice.com.

Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Social media: Facebook Twitter Instagram LinkedIn

Expert Guidance for Dementia Caregivers

Fri, 13 Jun 2025 07:00:26 +0000

Elder law attorney Patrick Cawley is equipping dementia caregivers with the essential tools they need for estate planning, including advance care planning for end of life. Patrick guides family members as they navigate the health care system and complicated ways to pay for long-term care for their loved one. He is a certified dementia care consultant, and host of the Dementia Empowered podcast. Patrick has lived experience with a family member who has Frontotemporal Dementia (FTD), so he knows firsthand what dementia caregivers face. Here are some highlights from this episode:

Patrick endorses trying care solutions before going straight to legal solutions which might escalate problems and family dynamics.
The biggest challenges for dementia caregivers that Patrick sees are financial issues, forming a care team, and complicated or discordant family dynamics.
Patrick advocates for caregivers to be paid in certain situations, depending on estate taxes and the financial burden on the caregivers.
Recording keeping is vitally important; Patrick recommends keeping a paper trail of transactions and healthcare decisions.

Listen to the Dementia Empowered Podcast here. Connect with Keystone Elder Law here. Connect with Patrick Cawley on LI Find an Elder Law Attorney in your area at naela.org

You can find the Approaching Death Support Kit at bkbooks.com.

Find all of Barbara Karnes’ products and resources at bkbooks.com.

Read Barbara’s blog at bkbooks.com.

Connect with Barbara Karnes on Facebook IG LinkedIn Twitter (X) YouTube

Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you’re already receiving, we’re here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. We believe you deserve to have good hospice care. Book your session with an expert Hospice Navigator at theheartofhospice.com.

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Social media: Facebook Twitter Instagram LinkedIn

Back to Hospice Basics: What You Need to Know About 24/7 Hospice Services

Fri, 06 Jun 2025 07:00:26 +0000

On-call, after hours, 24/7 services - no matter what you call it, hospice care is available to patients and caregivers every hour of every day. Regardless of the day of the week, whether it’s a holiday, or the office is closed, a member of the hospice team is accessible all the time. Some hospice agencies have answering services or triage teams, but the final result of a call is connection with a nurse. If another discipline is needed, that’s going to be coordinated by the agency. No question or concern is dumb. Hospice agencies offer this service to make sure patients and caregivers feel comfortable in their homes while experiencing the end of a life. Here are some of the reasons a caregiver or patient might want to contact the hospice team when the office is closed.

The patient has had a change in condition, and is showing different symptoms.
Your person (the patient) has died.
There’s a question about medications.
A piece of critical equipment isn’t working (oxygen, BiPap, electric hospital bed, air mattress or overlay).
There are spiritual or faith needs, and the chaplain’s (or social worker’s) support is needed.
The patient has had a fall and there’s an injury.

You can find the Approaching Death Support Kit at bkbooks.com.

Find all of Barbara Karnes’ products and resources at bkbooks.com.

Read Barbara’s blog at bkbooks.com.

Connect with Barbara Karnes on Facebook IG LinkedIn Twitter (X) YouTube

Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you’re already receiving, we’re here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. We believe you deserve to have good hospice care. Book your session with an expert Hospice Navigator at theheartofhospice.com.

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Social media: Facebook Twitter Instagram LinkedIn

Email: helen@theheartofhospice.com

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Engaging the Remarkable Energy of Aromatherapy at End of Life

Fri, 30 May 2025 07:00:19 +0000

Blending aromatherapy and sound bathing into the care of dying patients comes naturally to end of life doula and hospice nurse Carrie Oram. Carrie has witnessed deep, relaxing responses from clients as they experience the vibrations of Tibetan sound bowls. Regardless of diagnosis or disease progression, people who are at the end of their lives become more relaxed during treatments with aromatherapy. The benefits are many - calm, an elevated sense of happiness and wellbeing, comfort, connection with pleasant memories and sensations, even appetite stimulation.

Carrie integrates her doula work into her work as a hospice nurse, being sure to separate responsibilities that are under her nursing license from her doula tasks. You can find Carrie at angelheartholistics.com. Carrie is the compassionate owner and operator of Angel Heart Holistics, where she combines her extensive background in healthcare with her deep passion for holistic healing. As a hospice nurse with years of experience, Carrie has witnessed firsthand the profound impact that emotional and physical well-being have on a person’s overall quality of life.

Connect with Carrie on Instagram (@angelheartholistics)

Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you’re already receiving, we’re here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. We believe you deserve to have good hospice care. Book your session with an expert Hospice Navigator at theheartofhospice.com.

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Social media: Facebook Twitter Instagram LinkedIn

Email: helen@theheartofhospice.com

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Back to Hospice Basics - What You Need to Know About Continuous Care

Fri, 23 May 2025 07:00:20 +0000

We’re getting back to the basics of hospice, talking about Continuous Care with hospice nurse Gabby Jimenez of The Hospice Heart. Continuous care can be confusing. We’re talking about when it’s used, how it works, and where it happens.

Here are some highlights from this episode: • Continuous Care (CC) is a level of care within the Medicare hospice benefit. It’s also called Crisis Care. • CC is used for symptom management and is managed by the hospice team in the patient’s residence. • There’s no increased cost for the patient or family if CC is implemented. • Continuous Care DOES NOT have to be continuous - it can be divided into increments that benefit both patient and caregiver. • CC is used when symptoms become unmanageable, things like pain, shortness of breath, or agitation. • CC is temporary. Having Continuing Care DOES NOT mean the hospice team will put staff in the home 24/7 indefinitely; it’s only in place until the symptoms are resolved. • An RN or LVN has to do at least 50% of Continuous Care hours. If medication is being administered, a nurse must be the hospice team member to provide the Continuous Care. • When the symptoms resolve, Continuous Care will be stopped, and the routine hospice care will resume.

Connect with Gabby Jimenez of The Hospice Heart: Gabby Jimenez is a hospice nurse, end-of-life doula, death and dying educator, and author. Her website and Facebook page, which are both named The Hospice Heart, offer support for people who are either terminally ill, or caring for someone who is nearing the end of their life. Gabby has learned from being at the bedside of about 2,000 people who have taken their last breath. Her end-of-life doula training has helped her to truly understand the sacredness of death and dying, and what it means to be present for someone during that intimate and final moment. You can find her information and all of her offerings on her website: www.thehospiceheart.net Contact: thehospiceheart.net/contact Buy Gabby’s books: thehospiceheart.net/books Book Gabby to speak at your event: thehospiceheart.net/book-gabby Social Media for Gabby Jimenez Facebook (The Hospice Heart) Instagram (gabrielle.elise.jimenez)

Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you’re already receiving, we’re here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. We believe you deserve to have good hospice care. Book your session with an expert Hospice Navigator at theheartofhospice.com.

Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Social media: Facebook Twitter Instagram LinkedIn Email: helen@theheartofhospice.com

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

This is What Funeral Planning Should Look Like

Fri, 16 May 2025 07:00:24 +0000

Funeral director Andre Roupp of Roupp Funeral Home believes each person and every family has a story, and he’s sharing all the ways funeral planning makes services personal and meaningful. When advance care planning doesn’t include funeral planning, there can be fallout that makes the family’s grief journey more difficult. Here are some highlights from Andre’s interview:

Pre-planning a funeral can ease the immediate overwhelm of tasks that happen right after a death occurs.
Including funeral plans in an advance care plan eases the emotional, financial, and decision-making burden for the surviving family.
Military ceremonies can provide a personalized, respectful recognition of service.
A lack of pre-planning can cause a lot of anxiety for a family, deepening their grief or causing discord among the family members.

Connect with the resources that Roupp Funeral Home offers at rouppfuneralhome.com

GrandPad is a great gift for Father’s Day to stay connected with a senior loved one. Get more information at grandpad.net/thoh GrandPad website: grandpad.net Social Media for GrandPad: Facebook Instagram LinkedIn YouTube

Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you’re already receiving, we’re here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. We believe you deserve to have good hospice care. Book your session with an expert Hospice Navigator at theheartofhospice.com.

Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Social media: Facebook Twitter Instagram LinkedIn Email: helen@theheartofhospice.com

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Back to Hospice Basics: What You Need to Know About Respite

Fri, 09 May 2025 07:00:25 +0000

We’re getting back to the basics of hospice care with Social Worker Lisa Pahl to talk about respite care and how it works. Respite care is part of the care that hospice agencies provide but the details about it can be confusing. Here are a few things you should know about respite care:

Respite care offers 5 days of care for a hospice patient to allow the caregiver time away.
There is no regulation that states how often respite care has to be provided; many agencies offer it once a certification period (may be a 90 day period or a 60 day period).
Respite care has to be provided in a Medicare-certified facility with whom the hospice agency has a contract. It can’t be done in the patient’s home.
Cost of the respite care (including transportation) is the responsibility of the hospice agency, but there may be a small copy that is charged to the patient/caregiver.
The caregiver doesn’t have to use all 5 days, but that might make it difficult to find a facility willing to accept the patient.
There are many reasons why caregivers might utilize respite - health needs, a family event, travel, or just feeling overwhelmed.
It isn’t easy for a caregiver to choose to use respite. They may feel guilt or fear, have a sense of losing control, or want to be with their person every minute of whatever time they have left. They might even worry their person would die while in respite care. Connect with Lisa Pahl, owner/creator (thedeathdeck.com) The Death Deck and End of Life Deck

Interested in purchasing a GrandPad to stay connected with a senior loved one?

Get more information at grandpad.net/thoh

GrandPad website: grandpad.net

Social Media for GrandPad: Facebook Instagram LinkedIn YouTube

Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you’re already receiving, we’re here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. Book your session with an expert Hospice Navigator at theheartofhospice.com.

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Social media: Facebook Twitter Instagram LinkedIn

Email: helen@theheartofhospice.com

How to Thrive as a Sandwich Caregiver in 2025

Fri, 02 May 2025 07:00:16 +0000

Christy Byrne Yates of Alz Authors has experienced all the unique challenges of sandwich caregiving. Caring for both of her parents with neurodegenerative diseases (dementia and Alzheimer’s disease) while she raised young kids taught her lessons she now shares with other caregivers. In this open and honest conversation, Christy shares the good times and the struggles of her caregiving experience. Christy is a Licensed Educational Psychologist, author, speaker, and coach. In Building a Legacy of Love: Thriving in the Sandwich Generation, she shares her journey as a working mom caring for parents with dementia. A retired school psychologist, she now delivers keynotes, workshops, and coaching to support caregiving families. Christy co-hosts Untangling Alzheimer’s & Dementia, a podcast by AlzAuthors.com, and has been featured in Women’s World Magazine (Jan 2025) and has been interviewed on over 20 podcasts. She’s also a contributing writer on Sandwich Generation caregiving topics.

Connect with Christy Byrne Yates, author of Building a Legacy of Love: Thriving in the Sandwich Generation Website: ChristyYates.com Buy the book: Building a Legacy of Love Media for Christy Yates Links-in-bio: Christy Byrne Yates: Coaching Caregivers Social Media: Facebook Instagram LinkedIn Bluesky YouTube Social Media for GrandPad: Facebook Instagram LinkedIn YouTube

Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you’re already receiving, we’re here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. We believe you deserve to have good hospice care. Book your session with an expert Hospice Navigator at theheartofhospice.com.

Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Social media: Facebook Twitter Instagram LinkedIn Email: helen@theheartofhospice.com

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Back to Hospice Basics: What You Need to Know About the Hospice Team

Fri, 25 Apr 2025 07:00:23 +0000

We’re getting back to the basics of hospice care with Hospice Social Worker Lisa Pahl to talk about who’s on the hospice team and what each person brings to the care of patients and caregivers. This episode focuses on the core members of the hospice interdisciplinary team (doctor, nurse, social worker, and chaplain) as well as hospice aides (Certified Nurse Assistants) and hospice volunteers. Each person on a hospice team brings very specific and essential skills to the care of patients, and the support of their families and caregivers. The best care of a hospice patient includes everyone on the hospice team. This enables the care of the patient to meet all the needs of body, mind, and spirit.

Connect with Lisa Pahl, owner/creator (thedeathdeck.com) The Death Deck and End of Life Deck

Interested in purchasing a GrandPad to stay connected with a senior loved one?

Get more information at grandpad.net/thoh

GrandPad website: grandpad.net

Social Media for GrandPad: Facebook Instagram LinkedIn YouTube

Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you’re already receiving, we’re here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. We believe you deserve to have good hospice care. Book your session with an expert Hospice Navigator at theheartofhospice.com.

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Social media: Facebook Twitter Instagram LinkedIn

Email: helen@theheartofhospice.com

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

The Dementia Darling Shares Practical Tips for Caregivers

Fri, 18 Apr 2025 07:00:20 +0000

Carrie Aalberts (AKA the Dementia Darling) supports dementia caregivers with her heart and soul, and a whole lot of strength. With a Master of Science specializing in Gerontology and over a decade of hands-on experience in various care settings, Carrie has established herself as a leading voice in dementia education and support. As the founder of Dementia Darling, she has cultivated an online community of more than 63,000 followers, creating a nurturing space for caregivers to find education, resources, and support. Carrie's mission is to empower caregivers by fighting isolation, challenge prevailing narratives about dementia and aging, and foster moments of joy. As a full-time educator and advocate, she continues to push boundaries in dementia care, creating a movement that celebrates life and builds a supportive community.

Connect with Carrie Aalberts on social media - @dementiadarling, or through her podcast "Gather Darlings" to join her mission of spreading knowledge and understanding the dementia and caregiving community. Website: dementiadarling.com Social media: Instagram LinkedIn Facebook TikTok YouTube Listen to the Gather Darlings Podcast here

Interested in purchasing a GrandPad to stay connected with a senior loved one? Get more information at grandpad.net/thoh GrandPad website: grandpad.net Social Media for GrandPad: Facebook Instagram LinkedIn YouTube

Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Social media: Facebook Twitter Instagram LinkedIn Email: helen@theheartofhospice.com Find more podcast episodes: The Heart of Hospice Podcast

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com

Today Is The Best Day To Make Your End Of Life Plan - NHDD 2025

Wed, 16 Apr 2025 07:00:22 +0000

It’s National Healthcare Decisions Day 2025! This episode features clips from some of our favorite guests, highlighting wisdom and thoughts about advance care planning for the end of life. You’ll hear some of the brightest and best voices working in the end of life care industry talk about managing hard conversations about dying and death, funeral planning, and choosing a proxy or medical power of attorney who will speak for you. We hope it makes you laugh, cry, think, and make decisions about your own advance care plan! This episode features guests and resources from the following organizations:

Peacefully Prepared - Rhonda Lopresti (peacefully-prepared.com)
How to Train Your Doctor - Matthew Tyler (howtotrainyourdoctor.com)
Death’s Apprentice - Christa Ovenell (deathsapprentice.ca)
Buried In Work - Adam Zuckerman (buriedinwork.com)
The Death Deck and End of Life Deck - Lisa Pahl, owner/creator (thedeathdeck.com)
5 Wishes (fivewishes.org)
The Conversation Project.org

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.co

Back to Hospice Basics: What You Need to Know About Admissions

Fri, 11 Apr 2025 07:00:24 +0000

We’re getting back to the basics of hospice - talking about starting hospice care, and what you can expect from a hospice admission. Hospice nurse Beth Cavenaugh helps to navigate this topic. There are a lot of moving parts that compose the admission to hospice care.

Here are some of the main things you should know about hospice admissions:

The admission process includes assessment visits from the hospice nurse, social worker, and chaplain as well visits from other disciplines like a volunteer coordinator and an aide or CNA (Certified Nursing Assistant).
Within the first 5 days of being admitted to hospice, a patient and their caregiver can expect visits from each of the core disciplines on the team (nurse, chaplain, social worker). This is due to hospice regulations and agency policies.
Patients and caregivers have the right to refuse visits from certain disciplines on the team. A visit from the nurse at least every 2 weeks is required.
It’s always better to allow the assessment visits from each discipline to happen. This is the best way to find out what support each person from the team has to offer.
While the process is lengthy and involves a lot of documentation, the time spent on an admission to hospice helps the team take better care of the patient and learn what matters most to them.

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Social media: Facebook Twitter Instagram LinkedIn

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

How To Manage Seagulls in End of Life Caregiving

Fri, 04 Apr 2025 07:00:21 +0000

Patty Webster of The Conversation Project is talking with me about the swoopers and seagulls that are sometimes part of the caregiving experience. As part of her caregiving journey with her dad and siblings, Patty realized that she had been a “swooper”, offering her opinions about her dad’s care during an intermittent visit. Here’s what Patty says she learned:

Supporting the primary caregiver is an important part of caregiving from a distance.
“Swoopers” and “seagulls” tend to offer input into the actions of the primary caregiver creating a mess in the care of their Person.
Patty and her siblings had to learn from her dad how he defined quality of life, and then support him in the right ways.
Knowing each other’s strengths is the key to success of a caregiving team.
Shifting the approach to communication when it’s not working, and listening to each other is vital to creating the best caregiving environment.
Supporting your Person’s decisions about care contributes to feelings of confidence and comfort.

Patty and the team at The Conversation Project offer multiple resources for end of life conversations, offering resources for making end of life wishes known. Website: theconversationproject.org Social media: Facebook Twitter Instagram YouTube Connect with The Conversation Project with questions (and to donate to support their work!) here Need to have a conversation about end of life? Get started with resources from The Conversation Project. Interested in purchasing a GrandPad to stay connected with a senior loved one? Get more information at https://www.grandpad.net/thoh. GrandPad website: https://www.grandpad.net/ Social Media for GrandPad

https://facebook.com/grandpad

https://instagram.com/grandpad_social/

https://www.linkedin.com/company/grandpad

https://www.youtube.com/channel/UCuFAJCb7_tTneM_ikABq08Q

Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com. Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com

Social media: Facebook Twitter Instagram LinkedIn

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

How to be a Better Advocate for Yourself and Your Loved One

Fri, 28 Mar 2025 07:00:28 +0000

In this fourth and final episode of our special series in partnership with Stanford Healthcare, our guest Susan Evans shares the ins and outs of caregiving, and talks about her work to support other caregivers dealing with the challenges of Alzheimer’s Disease. As a caregiver, Susan worked to ensure her dad was safe and well cared for. She and her brother incorporated humor into their caregiving journey, and now she works to ensure other caregivers have the resources they need.

Here are a few highlights from our conversation:

Susan knows the power of story sharing, and how caregivers can learn from each other.
When her dad began experiencing symptoms of Alzheimer’s Disease, he took himself to his doctor at Stanford Healthcare.
Susan recommends taking advantage of the present time caregivers have, to be in the moment instead of trying to remind your person of things they can’t recall.
Challenges from Alzheimer’s Disease vary from person to person, and caregiver to caregiver.
Despite the hard times, Susan has found fulfillment and meaning in her caregiving roles.

You can find more resources and information about palliative care at caringinfo.org and getpalliativecare.org

Connect with our special series sponsor Kensington Senior Living:

Website: https://kensingtonseniorliving.com/

Social media: Instagram LinkedIn Facebook

Information for Jennifer O’Brien

Website: jenniferaobrien.com

Read more about Jennifer O’Brien here.

Purchase your copy of Care Boss by Jennifer O’Brien here.

Buy your copy of The Hospice Doctor’s Widow: An Art Journal of Caregiving and Grief here.

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

What You Need To Know About Palliative Care For Parkinson's Disease

Fri, 21 Mar 2025 07:00:24 +0000

Dr. Jocelyn Jiao and Social Worker Mike Polisso of the Stanford Healthcare Palliative Team know the value of getting to know patients and families from the start of the care relationship.

As part of an interdisciplinary team providing neuropalliative care for people and families living with serious neurological illnesses, they’re supporting patients and caregivers and training other healthcare workers in palliative care.

Here are some topics discussed in this interview:

Jocelyn discussed the importance of finding out communication preferences when it comes to early conversations about advance care planning and disease progression.
Mike highlighted exploring preference questions with patients and caregivers, and staying curious to create opportunities for personalized care.
Asking what kind of medical information is important to someone to know can create communication styles that are comfortable for the patient and caregivers.
Mike finds many people don’t know that palliative care social workers have a variety of roles, including helping with complex medical decision making and dealing with family dynamics that are impacting care.
Both Mike and Dr. Jiao recognize the need for ongoing self care to support the work they do.

You can find more resources and information about palliative care at caringinfo.org and getpalliativecare.org

Connect with our special series sponsor Kensington Senior Living:

Website: https://kensingtonseniorliving.com/

Social media: Instagram LinkedIn Facebook

Information for Jennifer O’Brien

Website: jenniferaobrien.com

Read more about Jennifer O’Brien here.

Purchase your copy of Care Boss by Jennifer O’Brien here.

Buy your copy of The Hospice Doctor’s Widow: An Art Journal of Caregiving and Grief here.

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Stanford Healthcare Presents a Caregiver's Honest and Powerful Story

Fri, 14 Mar 2025 07:00:26 +0000

With courage and vulnerability, Sheralin Samuels shares her experience as a caregiver for her mom, and their journey through Early Onset Alzheimer’s disease.

Here are a few highlights from this episode, created in partnership with Stanford Health Care:

Sheralin’s mom Carlys began showing symptoms in 2012, and a definitive diagnosis of Alzheimer’s disease wasn’t found until about 10 years later.
Carlys spent a year in hospice care before she was discharged.
As a sandwich caregiver, Sheralin cares for her two kids while working a full time job and ensuring her mom’s needs are being met.
Being a caregiver has impacted Sheralin’s family in numerous ways, affecting family dynamics, relationships, and finances.
Sheralin knows there's strength in self care. Her self care includes getting outside, enjoying nature, and hiking.
By creating YouTube videos to help other caregivers, Sheralin is creating meaning from her experience.

Watch Sheralin Taylor’s YouTube videos: @A_Daughters_Journey

You can find more resources and information about palliative care at caringinfo.org and getpalliativecare.org

Connect with our special series sponsor Kensington Senior Living:

Website: https://kensingtonseniorliving.com/

Social media: Instagram LinkedIn Facebook

Information for Jennifer O’Brien

Website: jenniferaobrien.com

Read more about Jennifer O’Brien here.

Purchase your copy of Care Boss by Jennifer O’Brien here.

Buy your copy of The Hospice Doctor’s Widow: An Art Journal of Caregiving and Grief here.

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

The Truths You Need to Know About Palliative Care from the Stanford Healthcare Team

Fri, 07 Mar 2025 08:00:25 +0000

This episode is the first in a 4-part special series in partnership with Stanford Healthcare, sponsorsored by Kensington Senior Living.

Grant Smith, M.D. and Emily Linderman, BCC from the Palliative Care team at Stanford Health Care are sharing all the basics of palliative care - when to start it, who can benefit from it, and what a PC team does for patients and caregivers.

Here are a few highlights from our conversation:

Palliative care teams are transdisciplinary (consisting of workers with different skills, like physicians, social workers, nurses, and chaplains) and support quality of life
Palliative care can be provided at any age and stage of an illness
Palliative care teams are great at helping patients to understand all the information being thrown at them, facilitating family conferences, and coordinating patient care

You can find more resources and information about palliative care at caringinfo.org and getpalliativecare.org

Connect with our special series sponsor Kensington Senior Living:

Website: kensingtonseniorliving.com

Social media: Instagram LinkedIn Facebook

Information for Jennifer O’Brien

Website: jenniferaobrien.com

Read more about Jennifer O’Brien here.

Purchase your copy of Care Boss by Jennifer O’Brien here.

Buy your copy of The Hospice Doctor’s Widow: An Art Journal of Caregiving and Grief here.

Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Social Worker Rosie Gaston Reveals How You Can Have a Better Ending

Fri, 28 Feb 2025 08:00:21 +0000

Social Worker Rosie Gaston brings energy and compassion to the care of people and families dealing with life-limiting illness. As a passionate clinical social worker, she’s worked for over a decade supporting individuals, families, and professionals through the intricate journey of end-of-life care. Rosie founded A Better Ending in 2022 to focus on personalized support, community education, and fostering professional development in the end-of-life care domain all while continuing to serve part-time as a hospice social worker.

As Rosie says, “A life well lived deserves an ending that honors that life.”

Connect with Rosie Gaston and A Better Ending

Website: abetterending.org

Social media for Rosie Gaston: Instagram @a.better.ending Facebook LinkedIn

Information for Jennifer O’Brien

Website: jenniferaobrien.com

Read more about Jennifer O’Brien here.

Purchase your copy of Care Boss by Jennifer O’Brien here.

Buy your copy of The Hospice Doctor’s Widow: An Art Journal of Caregiving and Grief here.

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

The Truth About Spiritual Care From a Physician's Perspective

Fri, 21 Feb 2025 08:00:21 +0000

Dr. Robert Klitzman has learned the truth about the value of spiritual care through his professional practice and his own lived experience. As an author, he’s written over 180 articles and books on critical issues in bioethics regarding doctor-patient relationships and communication, research, and other areas. Robert realized the whole-person impacts of a traumatic grief event after the death of his sister in the Twin Tower attacks on 9-11.

Speaking with physician colleagues, Robert heard them voice erroneous beliefs about the support that chaplains provide. His book Doctor, Will You Pray for Me?: Medicine, Chaplains, and Healing the Whole Person describes an in-depth look into the work of hospital chaplains. The book demonstrates how chaplains, as part of an interdisciplinary team, help families “make sense of serious disease and threats of death and other medical crises, seeking hope, purpose and larger connections beyond themselves”.

Buy your copy of Dr. Klitzman’s book Doctor, Will You Pray for Me?: Medicine, Chaplains, and Healing the Whole Person here.

Find all of Dr. Klitzman’s works here.

Information for Jennifer O’Brien

Website: jenniferaobrien.com

Read more about Jennifer O’Brien here.

Purchase your copy of Care Boss by Jennifer O’Brien here.

Buy your copy of The Hospice Doctor’s Widow: An Art Journal of Caregiving and Grief here.

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

How to Separate the Myths From the Truth About Hospice Care

Fri, 14 Feb 2025 17:39:58 +0000

My guest Gabby Jimenez and I are busting the hospice myths to get to the truth about end of life care. Because there are so many misconceptions about hospice care, many people don’t choose to have care from a hospice team or they delay hospice care until very close to death. It’s important to know the truth about all the aspects of hospice care - how medicines are managed, how morphine is really used for someone who’s dying, when to start hospice, and Do Not Resuscitate orders work.

Gabby Jimenez is a hospice nurse, end-of-life doula, death and dying educator, and author. Her website and Facebook page, which are both named The Hospice Heart, offer support for people who are either terminally ill, or caring for someone who is nearing the end of their life. Gabby has learned from being at the bedside of about 2,000 people who have taken their last breath. Her end-of-life doula training has helped her to truly understand the sacredness of death and dying, and what it means to be present for someone during that intimate and final moment. You can find her information and all of her offerings on her website: www.thehospiceheart.net

Connect with Gabby Jimenez:

Website: thehospiceheart.net

Contact: thehospiceheart.net/contact

Buy Gabby’s books: thehospiceheart.net/books

Book Gabby to speak at your event: thehospiceheart.net/book-gabby

Social Media for Gabby Jimenez

https://www.facebook.com/thehospiceheart.net

Information for Jennifer O’Brien

Website: jenniferaobrien.com

Read more about Jennifer O’Brien here.

Purchase your copy of Care Boss by Jennifer O’Brien here.

Buy your copy of The Hospice Doctor’s Widow: An Art Journal of Caregiving and Grief here.

Interested in purchasing a GrandPad to stay connected with a senior loved one?

Get more information at https://www.grandpad.net/thoh.

GrandPad website: https://www.grandpad.net/

Social Media for GrandPad

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https://www.linkedin.com/company/grandpad

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Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Mideo is a Breakthrough Method to Digitize Your Advance Care Plan

Fri, 07 Feb 2025 08:00:31 +0000

Dr. Fred Mirarchi is working to create personalized, specific advance care plans for patients, accommodating every stage of life and end of life wish. After seeing clinicians in the hospital struggle to determine exactly what patients’ wishes were, Fred realized documentation of advance directives didn’t truly communicate clearly. He and the team at Mideo Health have developed a best-practice model for documenting health care directives.

Using a video format allows patients to customize their plan. For older adults who might struggle with technology, the team provides concierge service to guide them through every step of the process. There’s space available on the Mideo platform for creating a personal message to family members, and to document disease-specific directives based on the person’s health history. When completed, Mideo is accessible by QR code so it can be accessed quickly by first responders and hospital staff. If you’re younger and in good health, there’s a “do-it-yourself” version of Mideo that’s easy to complete on your own.

Advance care planning is a great way of preventing unwanted care that’s out of alignment with personal beliefs and wishes. The best time to start the ACP conversation is now.

Website: mideohealth.com

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Socials for Dr. Mirarchi: Twitter (X)

Information for Jennifer O’Brien

Website: jenniferaobrien.com

Read more about Jennifer O’Brien here.

Purchase your copy of Care Boss by Jennifer O’Brien here.

Buy your copy of The Hospice Doctor’s Widow: An Art Journal of Caregiving and Grief here.

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Filmmaker Serene Meshel-Dillman Focuses on End of Life Options in a New Documentary

Fri, 31 Jan 2025 08:00:27 +0000

Serene-Meshel Dillman’s documentary series Take Me Out Feet First captures the courage and compassion of people choosing Medical Aid in Dying. In the six part series, Serene features the end of life journeys of people dealing with terminal illness, as well as both her own parents. The struggles, grief, joy, and determination of those dying patients and their families shine through in the films. Serene’s vision is to educate the public about the medical aid in dying process and advocate for state legislation that will allow the right to MAID equitably across the U.S.

You can buy/rent all six episodes of Take Me Out Feet First here.

Website: www.Outfeetfirst.com

Instagram: @Take.meoutfeetfirst

Facebook: www.facebook.com/serene.dillman

Information for Jennifer O’Brien

Website: jenniferaobrien.com

Read more about Jennifer O’Brien here.

Purchase your copy of Care Boss by Jennifer O’Brien here.

Buy your copy of The Hospice Doctor’s Widow: An Art Journal of Caregiving and Grief here.

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Email: helen@theheartofhospice.com

How to Empower the Caregiver as Care Boss

Fri, 24 Jan 2025 08:00:22 +0000

After being a caregiver for her parents and husband, Jennifer O’Brien is empowering caregivers so they come through it healthy physically, emotionally, financially, and mentally. In her new book Care Boss, Jennifer has designed strategies and resources to support caregivers. Her 35+ years in healthcare leadership, partnered with all her years as an unpaid family caregiver, equipped her to write the guidebook that caregivers can use to navigate the care of their Person.

If you’re one of the over 54 million unpaid caregivers across the U.S., the advice that Care Boss offers is a great tool to put in your toolbox. Caregivers take on roles as advocate, spokesperson, decision-maker, mediator, comforter, grievers, and financial manager. Caregivers need great resources. Care Boss by Jennifer O’Brien gives caregivers what they need.

Information for Jennifer O’Brien

Website: jenniferaobrien.com

Read more about Jennifer O’Brien here.

Purchase your copy of Care Boss by Jennifer O’Brien here.

Buy your copy of The Hospice Doctor’s Widow: An Art Journal of Caregiving and Grief here.

Interested in purchasing a GrandPad to stay connected with a senior loved one?

Get more information at https://www.grandpad.net/thoh.

GrandPad website: https://www.grandpad.net/

Social Media for GrandPad

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https://www.linkedin.com/company/grandpad

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Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Email: helen@theheartofhospice.com

The Platinum Rule is the Key to Unlocking Better Care

Fri, 17 Jan 2025 08:00:27 +0000

In this second episode in a two part series featuring Dr. Harvey Chochinov, we’re talking about The Platinum Rule. Providing care through the lens of the end of life provider doesn’t fully recognize the personhood of the patient. Dr. Chochinov teaches us about The Platinum Rule - treating others the way they want to be treated, instead of how we would want to be treated if the situation was ours.

Connect with Dr. Harvey Chochinov

Website: dignityincare.ca Virtualhospice.ca

Social media: Twitter: @HMChochinov LinkedIn: Harvey Max Chochinov

Purchase your copy of Dignity in Care: The Human Side of Medicine here

Information for Jennifer O’Brien

Website: jenniferaobrien.com

Read more about Jennifer O’Brien here.

Purchase your copy of Care Boss by Jennifer O’Brien here.

Buy your copy of The Hospice Doctor’s Widow: An Art Journal of Caregiving and Grief here.

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Email: helen@theheartofhospice.com

How to Know the Difference Between Healthcare and Health-Caring

Fri, 10 Jan 2025 08:00:24 +0000

Dr. Harvey Chochinov is teaching us how to go beyond providing healthcare to provide health-caring for the people we serve. Patients are people before they need to engage with the healthcare system. That personhood should be supported and validated with compassion and dignity. Dr. Chochinov has also led a large program of research on dignity within the healthcare setting, which includes the development and study of Dignity Therapy. As a Distinguished Professor of Psychiatry at the University of Manitoba and a Senior Scientist at CancerCare Manitoba Research Institute, Dr. Chochinov reminds us all that “patients won’t care what you know until they know that you care.”

Connect with Dr. Chochinov

Website: dignityincare.ca Virtualhospice.ca

Social media: Twitter: @HMChochinov LinkedIn: Harvey Max Chochinov

Purchase your copy of Dignity in Care: The Human Side of Medicine here

Information for Jennifer O’Brien

Website: jenniferaobrien.com

Read more about Jennifer O’Brien here.

Purchase your copy of Care Boss by Jennifer O’Brien here.

Buy your copy of The Hospice Doctor’s Widow: An Art Journal of Caregiving and Grief here.

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Email: helen@theheartofhospice.com

Learning About Death, Dying, and How to Do It Better

Fri, 03 Jan 2025 08:00:40 +0000

Death Doula Darnell Lamont Walker is listening to the dying and speaking up to advocate for their needs. As a Death Doula who is also male and black, Darnell works to facilitate conversations about death in the black community. He’s a unique blend of skills and talents - an Emmy-nominated children’s writer, a documentary filmmaker, and a death doula.

Darnell is a listener, a companion to people with serious illness. He’s working to create change around our perceptions of grief, death discussions, and how we approach dying in the U.S.

Connect with Darnell Lamont Walker

Website: Darnell Walker

Social media: IG LinkedIn

Watch Darnell’s talk at EndWell 2023 here

Information for sponsor Jennifer O’Brien:

Website: jenniferaobrien.com

Read more about Jennifer O’Brien here.

Purchase your copy of Care Boss by Jennifer O’Brien here.

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Email: helen@theheartofhospice.com

Death Doula Kacie Brings a New Perspective to Death Conversations

Fri, 27 Dec 2024 08:00:28 +0000

As a nurse and End of Life Doula, Kacie Gikonyo cares for the dying while working to make a lasting impact on end-of-life support. Kacie realized during the pandemic that she was called to work with the dying. She trained with INELDA (the International End of Life Doula Association) to become an End of Life Doula. Her special area of doula practice is with younger persons with a terminal illness, focusing on end of life conversations and legacy projects.

Kacie believes in fostering collaboration over competition, nurturing a community-driven model through the Death Doula Collective. The Collective is a community of Death Doulas from across the country who want to support, empower and guide each other. Kacie is also the founder of the Death Doula School, whose mission is to cultivate successful Death Doulas who are equipped with the knowledge, skills, and confidence to make a meaningful difference in the lives of those they serve.

Connect with Death Doula Kacie Gikonyo:

Website: www.deathdoulakacie.com

Social media: YouTube Facebook Instagram Tik Tok LinkedIn Pinterest

Email: Kacie@deathdoulakacie

Interested in purchasing a GrandPad to stay connected with a senior loved one?

Get more information at https://www.grandpad.net/thoh.

GrandPad website: https://www.grandpad.net/

Social Media for GrandPad

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Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Email: helen@theheartofhospice.com

Making End of Life Care Better With Dr. Ira Byock - Encore Episode

Fri, 20 Dec 2024 08:00:19 +0000

Dr. Ira Byock believes hospice can heal its own dysfunction by holding providers and clinicians responsible for the care we provide and how we provide it.

Physician Dr. Ira Byock is a voice for change in the hospice industry, and an advocate for quality end of life care. His many years of experience in hospice medicine, coupled with the compassion he has for people dealing with serious illness, have made him an industry leader in the U.S. According to his website (irabyock.org), he is “Founder of the Institute for Human Caring at Providence St. Joseph Health. Dr. Byock is Active Professor Emeritus of Medicine and Community & Family Medicine at the Geisel School of Medicine at Dartmouth. He served as Director of Palliative Medicine at Dartmouth-Hitchcock Medical Center in Lebanon, New Hampshire from 2003 through July 2013. Dr. Byock has been involved in hospice and palliative care since 1978. His research has contributed to conceptual frameworks for the lived experience of illness that encompasses a continuum from suffering to wellbeing; related measures for subjective quality of life during illness; and effective life-completion counseling methods. From 1996 to 2006 he directed Promoting Excellence in End-of-Life Care, a national Robert Wood Johnson Foundation program that developed prototypes for concurrent palliative care of people with life-threatening conditions. He is a past president of the Academy of Hospice and Palliative Medicine.”

What Dr. Byock’s bio doesn’t describe is his caring heart. It drives his dedication to identifying the issues we face in the hospice industry and offering evidence-based, practical solutions. He wants the hospice silo of healthcare to correct its own path. Dr. Byock believes hospice can heal its own dysfunction by holding providers and clinicians responsible for the care we provide and how we provide it. His articles in STAT magazine and the Journal of Palliative Medicine describe actionable, practical solutions. Hospice practitioners of every discipline can learn from Dr. Byock.

Connect with Dr. Byock at irabyock.org.

Find and purchase Dr. Byock’s books, including The Four Things That Matter Most, by clicking here.

Read Dr. Byock’s STAT article Hospice Care Needs Saving here.

Read Dr. Byock’s article Core Roles and Responsibilities of Physicians in Hospice Care: A Statement by and for U.S. Hospice and Palliative Care Physicians by clicking here. 28 Apr 2023https://doi.org/10.1089/jpm.2023.0194

Interested in purchasing a GrandPad to stay connected with a senior loved one?

Get more information at https://www.grandpad.net/thoh.

GrandPad website: https://www.grandpad.net/

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Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

How to Have Fewer Regrets at End of Life

Fri, 13 Dec 2024 08:00:41 +0000

As Editor-in-Chief of The Bucket, David Abend takes on the ultimate marketing challenge: rebranding death by showing how embracing mortality can lead to a more fulfilling life. The Bucket is an online magazine that helps people make choices to reduce deathbed regrets (DBRs). With a background in creative direction and copywriting, co-founder and Editor-in-Chief David Abend has spent decades helping people see things differently. The Bucket offers a mix of podcasts, interviews, and articles that go beyond inspiration, providing actionable “how-to’s” for making meaningful life changes. As an extension of The Bucket, David is also a Certified Life Coach where he helps guide clients to make intentional, purpose-driven decisions that won’t leave them wondering, “What If?”.

Connect with The Bucket and The Bucket Life Coaching with David Abend:

Bucket url is: www.Thebucket.com

Facebook: https://www.facebook.com/thebucketonline

Instagram: #Thebucketonline

The Bucket Life Coaching: www.thebucketlifecoaching.com

Interested in purchasing a GrandPad to stay connected with a senior loved one?

Get more information at https://www.grandpad.net/thoh.

GrandPad website: https://www.grandpad.net/

Social Media for GrandPad

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https://www.linkedin.com/company/grandpad

https://www.youtube.com/channel/UCuFAJCb7_tTneM_ikABq08Q

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

The Information You Need to Know About Funerals From an Expert

Fri, 06 Dec 2024 08:00:31 +0000

Licensed funeral director and End of Life Doula Christa Ovenell is busting myths about funerals, and sharing practical tips on how to plan a funeral service that reflects your values and needs. As a community-based Death Educator, Christa is the founder of Death’s Apprentice Education & Planning Inc., a company that specializes in holistic advance care planning for individuals and forward-thinking companies.

Christa leads with her heart when it comes to guiding clients through death and funeral planning. She’s also a great resource for funeral planning, making arrangements after a death to create a meaningful service, and having bold conversations about death and dying to help all of us get more comfortable with our mortality.

Connect with EOL Doula and Funeral Director Christa Ovenell

Website: deathsapprentice.ca

Email: hello@deathsapprentice.ca

Instagram: deathsapprentice.ca

Interested in purchasing a GrandPad to stay connected with a senior loved one?

Get more information at https://www.grandpad.net/thoh.

GrandPad website: https://www.grandpad.net/

Social Media for GrandPad

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https://www.linkedin.com/company/grandpad

https://www.youtube.com/channel/UCuFAJCb7_tTneM_ikABq08Q

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

The Remarkable Caregiving Story of Stanley and Allison Applebaum

Fri, 29 Nov 2024 08:00:26 +0000

Allison Applebaum stood by her dad Stanley as his caregiving partner, respecting his wishes and maintaining his quality of life through the very end of his life. Allison was previously the Founding Director of the Caregivers Clinic at Memorial Sloan Kettering Cancer Center, the first program of its kind in the United States to provide comprehensive psychosocial care to family members and friends of patients who are in the caregiving role.

Her father Stanley, a talented and prolific composer and musician, worked with many great artists for the 50’s and 60’s, including Neil Sedaka, Ben E. King, and Connie Francis.

Allison took a lead role as her dad’s caregiver after the death of her mother, helping him deal with Lewy Body Disease (Lewy Body Dementia). After her mother died, Allison and Stan went forward, dealing with intense and traumatic grief.

Allison’s caregiving story is a beautiful tribute to her dad, and there are many caregivers across the U.S. doing the same job for someone they care about. LBD carries an unusual set of caregiving challenges. Stan defined quality of life as the ability to be creative, grow, and continue to compose his music. As a caregiver, Allison respected his wishes and ensured he lived fully until his death at 96.

Some highlights from Allison’s unique caregiving story include:

Her dad retained his creativity and this contributed greatly to his quality of life
Stan never had a DNR (Do Not Rescucitate) document, and Allison respected that wish through his death
Intermittent hallucinations were part of his disease, a great source of pain for both Stan and his daughter.
Allison considered them partners in caregiving, and worked to build a caregiving village customized to her dad’s needs.

Connect with Dr. Allison Applebaum:

Website: allisonapplebaum.com

Book: Stand By Me: A Guide to Navigating Modern, Meaningful Caregiving

Socials: Twitter Instagram

Interested in purchasing a GrandPad to stay connected with a senior loved one?

Get more information at https://www.grandpad.net/thoh.

GrandPad website: https://www.grandpad.net/

Social Media for GrandPad

https://facebook.com/grandpad

https://instagram.com/grandpad_social/

https://www.linkedin.com/company/grandpad

https://www.youtube.com/channel/UCuFAJCb7_tTneM_ikABq08Q

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

When Professional Grief Becomes Personal: A Conversation with Barbara Karnes

Mon, 25 Nov 2024 08:00:30 +0000

In this final episode of our special 4 part series, Hospice Educator Barbara Karnes shares the personal story of her husband’s end of life journey and death. She opens up about all the emotions she experienced as she and her family supported Jack Karnes after his diagnosis with a terminal illness. Jack died four months after he was diagnosed with lung cancer. Barbara and Jack had been married for 61 years at the time of his death. After working over 40 years in end of life care, Barbara experienced all the aspects of interdisciplinary hospice care, death, and grief in her personal life.

We’re grateful for Barbara’s generosity and vulnerability in telling her story. After all the years she has spent educating hospice workers and end of life caregivers, she’s still teaching us.

We’d like to thank Lisa Pahl, founder of The Death Death and End of Life, for sponsoring this special series in honor of National Family Caregivers Month and National Hospice and Palliative Care Month (National Home Care Month).

Here’s are some details of what Barbara shares in this touching interview:

What the process of a hospice admission is truly like
The impact of staffing changes on the trust bond with a caregiver
Learning to live as a “me” after living as a “we” after 60 years of marriage
The many emotions she experienced when Jack was terminally ill
The music she wants to be part of her advance care plan

Connect with Barbara Karnes:

Website: bkbooks.com

Blog: bkbooks.com

Shop her products: bkbooks.com

Socials: Facebook Instagram LinkedIn Twitter Pinterest YouTube

Email: barbara@bkbooks.com

Thank you to our series sponsor The Death Deck!

Connect with the End of Life Deck and the Death Deck:

Website: thedeathdeck.com https://thedeathdeck.com/

Shop: End of Life Deck Death Deck

Socials for the Death Deck: Facebook IG Twitter (X)

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Caregiver Creates Legacy of Love After Loss

Fri, 22 Nov 2024 08:00:23 +0000

Susan Combs will tell you she had a great dad. Her caregiving experience at the end of his life inspired her to give back to the veteran community. Susan’s dad Major General Roger E. Combs was a huge influence on her life. Roger battled with throat cancer related to Agent Orange for ten years, eventually dealing with a feeding tube toward the end of his life. A simple act - his request to eat pancakes - launched a non-profit organization that supports military veterans.

Susan is the president of Combs and Company, based in New York City. Her movement Pancakes for Roger occurs every February. For every pancake-loving picture posted on social media post using the hashtag #PancakesForRoger, Combs & Company will make a donation to the University of Missouri School of Law Veterans Clinic which helps veterans and their families navigate the VA claims process and secure disability benefits when they are faced with obstacles along the way.

Here’s some advice Susan gives to other end of life caregivers:

Do one thing every day for yourself
Bring in your “crew”, those friends who can support you
Have the advance care plan conversations, even though it’s difficult

Connect with Susan Combs and Pancakes for Roger:

Website: pancakesforroger.org

Book: Pancakes for Roger

Social media: Instagram Facebook Twitter (X) YouTube

Honor your veteran on their Wall of Honor:

Interested in purchasing a GrandPad to stay connected with a senior loved one?

Get more information at https://www.grandpad.net/thoh.

GrandPad website: https://www.grandpad.net/

Social Media for GrandPad

https://facebook.com/grandpad

https://instagram.com/grandpad_social/

https://www.linkedin.com/company/grandpad

https://www.youtube.com/channel/UCuFAJCb7_tTneM_ikABq08Q

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Learning How to Say the Last Goodbye with Barbara Karnes

Mon, 18 Nov 2024 08:00:31 +0000

After a 40 year hospice career, Barbara Karnes knows a thing or two about end of life care. Today’s special episode is part 3 of our 4 part series in honor of National Family Caregivers Month and National Hospice and Palliative Care Month. Barbara calls her introduction to working with the dying “divine intervention” that occurred because of a random connection with a hospice worker. She spent five years working at the bedside, eventually moving into administrative positions and management. As a hospice educator, she supports family caregivers and end of life workers alike.

Highlights from Barbara’s interview include:

A snapshot of Barbara’s advance care plan and why she thinks goodbyes are important
Her recognition of how hard it was to balance work life and family life as a young mother
How Barbara sees hospice work as a privilege

Connect with Barbara Karnes:

Website: bkbooks.com

Blog: bkbooks.com

Shop her products: bkbooks.com

Socials: Facebook Instagram LinkedIn Twitter Pinterest YouTube

Email: barbara@bkbooks.com

Thank you to our series sponsor The Death Deck!

Connect with the End of Life Deck and the Death Deck:

Website: thedeathdeck.com https://thedeathdeck.com/

Shop: End of Life Deck Death Deck

Socials for the Death Deck: Facebook IG Twitter (X)

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

This Innovative Product Is Helping Us Do Death Care Better

Fri, 15 Nov 2024 08:00:20 +0000

Cuddle Cots and Cuddle Blankets allow families to spend more time with a loved one after a death, providing an opportunity for end of life workers to do death care better. Danielle Franck of Flexmort shares her personal experience with a Cuddle Cot in this interview. *Warning - This episode contains a description of the loss of a stillborn infant. It may not be for all listeners. Please take care of yourself.

Danielle is the Business Development Executive of the US at Flexmort, a company that designs and manufactures flexible mortuary solutions for the storage and cooling of a body after death occurs. She is passionate about fostering open discussions around death and loss. Danielle’s personal story is a testimonial to the benefits of utilizing a Cuddle Cot.

Cuddle Cots and Cuddle Blankets keep a body cool after death, enabling families to spend additional time with a loved one. That extra time creates space for meaningful goodbyes, rituals, and post mortem care that supports a healthy grieving process. The Cuddle Blankets are portable and can be used when a home funeral is planned. It’s also a great tool to use when there’s a plan for human composting or aquamation, and eliminates the need for dry ice when a family doesn’t want embalming. A personal quilt or blanket can be placed on top of the Cuddle Blanket to create a personal touch.

Connect with Flexmort:

https://cuddlecot.com/

https://www.linkedin.com/company/flexmort/

https://www.instagram.com/cuddlecot_/

https://www.facebook.com/CuddleCotTM

Thank you to our series sponsor The Death Deck!

Connect with the End of Life Deck and the Death Deck:

Website: thedeathdeck.com https://thedeathdeck.com/

Shop: End of Life Deck Death Deck

Socials for the Death Deck: Facebook IG Twitter (X)

Interested in purchasing a GrandPad to stay connected with a senior loved one?

Get more information at https://www.grandpad.net/thoh.

GrandPad website: https://www.grandpad.net/

Social Media for GrandPad

https://facebook.com/grandpad

https://instagram.com/grandpad_social/

https://www.linkedin.com/company/grandpad

https://www.youtube.com/channel/UCuFAJCb7_tTneM_ikABq08Q

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

The Rich History of Hospice: How We Got Here

Mon, 11 Nov 2024 08:00:14 +0000

In episode two of our special four part series, hospice icon Barbara Karnes shares what it was like working in hospice in the early days, before there was a model for working with the dying. Barbara has worked in end of life care for over 40 years, educating and supporting end of life workers and family caregivers alike. In this conversation, we talk about what hospice work was like early in her career.

Here are some highlights from this episode:

Barbara shares how they cared for patients, learning how people die and the best ways to care for them.
Barbara talks about how other disciplines came to be integrated into the care of patients, and how they learned to collaborate as an interdisciplinary team.
We talk about the myths surrounding hospice that have persisted through the years, and still remain in people’s minds today.

Connect with Barbara Karnes:

Website: bkbooks.com

Blog: bkbooks.com

Shop her products: bkbooks.com

Socials: Facebook Instagram LinkedIn Twitter Pinterest YouTube

Email: barbara@bkbooks.com

Thank you to our series sponsor The Death Deck!

Connect with the End of Life Deck and the Death Deck:

Website: thedeathdeck.com https://thedeathdeck.com/

Shop: End of Life Deck Death Deck

Socials for the Death Deck: Facebook IG Twitter (X)

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

How to Organize Your Life to Make Death Easier

Fri, 08 Nov 2024 08:00:14 +0000

When his dad died, Adam Zuckerman created a highly organized kit for managing his estate. As founder of Buried in Work, he helps people get their end-of-life preparation in place. Adam’s family learned the ins and outs of hospice as they supported his dad at the end of his battle with leukemia. Although their time using hospice care was short, Adam saw the benefits of end of life care first hand.

Adam's mission is to empower individuals of all ages to navigate the intricacies of estate planning with confidence and ease. Through Buried in Work, he seeks to revolutionize the way people approach end-of-life preparations, ensuring that everyone has access to the resources they need to secure their legacy and protect their loved ones. Check out the CLEAR Kit from Buried in Work here.

Connect with Adam Zuckerman and Buried in Work:

Website: buriedinwork.com

Email: press@BuriedinWork.com

Social Media: Facebook IG LinkedIn Twitter (X) YouTube TikTok

Podcast: Buried in Work Podcast

Find all the resources from Buried in Work: BIW Resources

Order your CLEAR Kit today (Comprehensive Legacy & Estate Administration Repository Kit): CLEAR Kit

Purchase the One More Story card deck: One More Story

Purchase the Nothing Left Unsaid card deck: Nothing Left Unsaid

Connect with the End of Life Deck and the Death Deck:

Website: thedeathdeck.com https://thedeathdeck.com/

Shop: End of Life Deck Death Deck

Socials for the Death Deck: Facebook IG Twitter (X)

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Starting Out in the End: Talking With Barbara Karnes

Mon, 04 Nov 2024 08:00:16 +0000

In honor of National Hospice and Palliative Care Month - and National Family Caregivers Month - we’re featuring a special 4-part series with special guest Barbara Karnes, Hospice Nurse and End of Life Educator. In the first episode of the series, Barbara shares how she got started in end of life care back before the Medicare hospice benefit was established in the 1980’s.

Here are some highlights of this special episode:

Barbara thinks she should have been a social worker but her mother talked her into nursing.
She and her fellow hospice nurses learned how to provide their own self care without really knowing what it was.
Barbara’s aversion to causing patients any pain or suffering made patient care difficult for her.
She believes it’s important for hospice leadership to truly understand end of life work, and to have a comprehensive knowledge of hospice care.
Barbara believes sacred rituals and beautiful memories can be created at the time of death.

Connect with Barbara Karnes:

Website: bkbooks.com

Blog: bkbooks.com

Shop her products: bkbooks.com

Socials: Facebook Instagram LinkedIn Twitter Pinterest YouTube

Email: barbara@bkbooks.com

Thank you to our series sponsor The Death Deck!

Connect with the End of Life Deck and the Death Deck:

Website: thedeathdeck.com https://thedeathdeck.com/

Shop: End of Life Deck Death Deck

Socials for the Death Deck: Facebook IG Twitter (X)

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

How to Improve Death Literacy in a Community

Fri, 01 Nov 2024 07:00:08 +0000

Death educator Lee Warren believes preparing for death in advance makes a good death possible.

Over a period of two years, she experienced several deaths in her small community of 125 people, teaching her the best lessons about death as she cared for them.

Those deaths, and the generous people who experienced them, offered an incredible opportunity for Lee to reweave a more holistic approach to end-of-life than the one generally offered to us in the U.S. The outcome of stewarding those deaths together as a community, including after-death care, home funerals, and home burials, was life changing and heart opening for Lee. She has channeled the wisdom she learned into work as a Death Educator and End-of-Life Preparation Guide.

Connect with Death Educator and End-of-Life Preparation Guide Lee Warren

Website: queenofdeath.org/course reclaimingwisdom.com/about

Email: lee@reclaimingwisdom.com

Socials for Lee Warren: Facebook IG

Connect with the End of Life Deck and the Death Deck

Website: thedeathdeck.com https://thedeathdeck.com/

Shop: End of Life Deck Death Deck

Socials for the Death Deck: Facebook IG Twitter (X)

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Grandpad Has Made Innovative AI Available to Older Adults

Fri, 25 Oct 2024 07:00:16 +0000

Serious illness and caregiving can be isolating. GrandPad’s AI technology keeps seniors safely connected to loved ones. Isaac Lien and his dad Scott co-founded GrandPad to meet the needs they saw in Scott’s mom. Their new AI app Grandie offers audio interaction for the user without requiring a certain format, and even learns the user’s voice and way of speaking. Because GrandPad’s network is private and encrypted, users can share photos or videos and make video calls without worrying about robocalls or spam. No one can be part of a user’s network unless they’re been invited by the family administrator.

GrandPad makes a fantastic holiday gift for older adults, especially those living at a distance from family. Its features include:

• phone calls • video calls • video sharing • internet browning • 911 emergency use • 4G LTE data plan

Watch a webinar to hear more about GrandPad’s features here.

Interested in purchasing a GrandPad to stay connected with a senior loved one?

Get more information at https://www.grandpad.net/thoh.

GrandPad website: https://www.grandpad.net/

Social Media for GrandPad

https://facebook.com/grandpad

https://instagram.com/grandpad_social/

https://www.linkedin.com/company/grandpad

https://www.youtube.com/channel/UCuFAJCb7_tTneM_ikABq08Q

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Honoring the Dead with Beautiful Burial Shrouds

Fri, 18 Oct 2024 07:00:18 +0000

Virginia Marcolin’s background in fashion and textiles led her to start designing burial shrouds, experimenting with luxurious natural fabrics and vegetable dyes. The result was Sanctum, a brand of high-end scented burial shrouds for the natural funeral industry. Virginia sources a variety of high-quality organic fabrics which are soft to the touch and biodegradable. Fabrics are colored with non-toxic plant dyes and infused with a proprietary plant-based antibacterial formula, which inhibits germ growth and neutralizes malodor.

The result for families is a comforting, beautiful, aromatic cocoon wrapped around their loved one which will carry them to their final resting place. Shrouds can be part of family-guided death care, green funerals, or human composting. A shroud can even be part of a cremation. According to the Sanctum website, their mission is to enhance the sensory experience of alternative funerals for loved ones while eliminating toxins and pollutants from traditional burial practices.

You can find the full selection of these Earth-friendly, elegant shrouds at sanctumshrouds.com.

Read more about how Sanctum Shrouds came to be here.

Find Sanctum’s line of shrouds for pets, Moonbeam Pet.

Socials for Sanctum Shrouds:

Facebook Instagram Pinterest. LinkedIn

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Quality Care is the Goal at Residential Hospice Homes

Fri, 11 Oct 2024 11:46:29 +0000

My guest Susan Hearn is talking about how she is moved and motivated by her work as executive director of a residential hospice home, and why she stays in this industry. #hospice #endoflife #death #dying #caregiver #caregiving

https://pod.co/the-heart-of-hospice-podcast/quality-care-is-the-goal-at-residential-hospice-homes

Residential hospice homes provide compassionate caregiving support for the dying. My guest Susan Hearn is talking about how she is moved and motivated by her work as executive director of a hospice home, and why she stays in this industry.

Susan has a passion for serving hospice and palliative care patients and families and has been a pioneer in developing hospice programs throughout Oregon since 1993 when she helped to establish the Asante Hospice in Southern Oregon. Susan went on to pioneer a residential hospice model in Oregon, leading the way with both fundraising and the full building and policy development of Celia's House in Medford, Oregon and Hopewell House in Portland. She is motivated to give patients and their caregivers a greater voice in their end-of-life experience and in facilitating meaningful advanced care planning conversations between patients and families.

Social media for Susan Hearn

Interested in purchasing a GrandPad to stay connected with a senior loved one? Get more information at https://www.grandpad.net/thoh.

GrandPad website: https://www.grandpad.net/

Social Media for GrandPad

https://facebook.com/grandpad

https://instagram.com/grandpad_social/

https://www.linkedin.com/company/grandpad

https://www.youtube.com/channel/UCuFAJCb7_tTneM_ikABq08Q

Order your copies of The Hospice Care Plan: A Path to Comfort here, now available in English and Spanish!

Check out the free library of video tutorials from the creators of The Hospice Care Plan hospice nurses Nancy Heyerman and Brenda Kizzire here.

Read more about Nancy and Brenda and their mission to improve hospice care here.

Find Odonata Care on social media: Facebook YouTube IG TikTok

How Death Teaches the Best Life Lessons

Fri, 04 Oct 2024 07:00:12 +0000

The last conversation you want to have shouldn’t be the last one you do have. Filmmaker Johanna Lunn is using her lifelong curiosity about death to bring documentaries about "What happens when we die," to life. She’s the co-founder of the When You Die Project which hosts a resource-rich website, podcast, and documentary trilogy.

The When You Die Project is here to facilitate a cultural dialogue most often avoided — one that begins at the end. From existential afterlife questions such as “What happens when you die?” to palliative care, and the nuts and bolts of preparing for end of life. If it has to do with death, they’re talking about it.

Award-winning producer, director, and writer Johanna Lunn has contributed to many profoundly thought-provoking programs during her 35 years in filmmaking. In addition to film festival awards, her work has received eight Canadian Screen Award nominations and won three. Her work has been shown around the world.

Join When You Die on Nov. 23, 2024 for a showcase of the 3rd film in the When You Die Trilogy - Architecture of Death: The Inner World of Dying Screening, followed by a panel discussion and Q&A!

When: Nov. 23 from 4:30 - 7:30 pm PST

Where: Los Angeles Performing Arts Conservatory

Purchase your tickets here.

Follow When You Die to keep up to date on all future events, receive death-related resources, listen to podcasts, and more!

Website: www.WhenYouDie.org

Facebook: @whenyoudiecommunity

Twitter: @whenyoudie_org

Instagram: whenyoudie_org

YouTube: @whenyoudie_org

LinkedIn: https://ca.linkedin.com/company/whenyoudie-org

LinkedIn Profile: www.linkedin.com/in/johannajlunn

Interested in purchasing a GrandPad to stay connected with a senior loved one?

Get more information at https://www.grandpad.net/thoh.

GrandPad website: https://www.grandpad.net/

Social Media for GrandPad

https://facebook.com/grandpad

https://instagram.com/grandpad_social/

https://www.linkedin.com/company/grandpad

https://www.youtube.com/channel/UCuFAJCb7_tTneM_ikABq08Q

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

The Best Advice From a Devoted Dementia Caregiver

Fri, 27 Sep 2024 07:00:13 +0000

Rosanne Corcoran, host of Daughter the Podcast is sharing her best advice about being a caregiver for a person dealing with dementia. As caregiver to her mother for 12 years, Rosanne learned how to navigate the healthcare system as an advocate, deal with sleep deprivation, and to care for herself along the way.

Rosanne Corcoran is the creator and host of Daughterhood the Podcast. She is also a Daughterhood Circle leader and their Director of Content. She cared for her mother through her journey with vascular dementia, starting as a supportive caregiver to an in-home sandwich caregiver for her mother’s final six years. In each monthly podcast, Rosanne interviews experts in the field, asking questions caregivers want to know the answers to – with topics ranging from dealing with dementia behaviors, to siblings and caregiving, through end of life care, grief and everything in between. Rosanne carries her authenticity and caregiving experience into each interview. Along with strategies and resources, this podcast also provides listeners with the comfort of knowing they are not facing these challenges alone.

Rosanne has been featured in NPR, CNN Health, Barron’s, and Next Avenue and was most recently named one of Next Avenue and American Society on Aging’s 2024 Advocates for Aging.

You can connect with Rosanne Corcoran:

https://www.facebook.com/DaughterhoodThePodcast/

https://www.instagram.com/daughterhood_the_podcast/

https://daughterhood.org/

Interested in purchasing a GrandPad to stay connected with a senior loved one?

Get more information at https://www.grandpad.net/thoh.

GrandPad website: https://www.grandpad.net/

Social Media for GrandPad

https://facebook.com/grandpad

https://instagram.com/grandpad_social/

https://www.linkedin.com/company/grandpad

https://www.youtube.com/channel/UCuFAJCb7_tTneM_ikABq08Q

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Get the Help You Need to Navigate a Hospice Journey

Fri, 20 Sep 2024 07:00:15 +0000

Hospice nurse and End of Life Doula Gabby Jimenez of The Hospice Heart is our guest host for today’s episode, featuring a discussion of Hospice Navigation Services. When you’re looking at making decisions about end of life care for yourself or someone you love, things can seem frightening and confusing. Hospice Navigation Services can help you figure things out. We can help you feel just a little less lost.

Hospice Navigation Services was founded by Hospice and Palliative Certified RN Helen Bauer, a respected voice in the end of life industry. Helen acts as Lead Navigator for Hospice Navigation Sessions and can guide you through discussions about hospice care, how to choose an agency, and whether your current hospice care is the best fit for you and your person.

It’s your journey. We'll be your expert guide.

Book your Hospice Navigation Session today at theheartofhospice.com.

Connect with Gabby Jimenez:

Website: thehospiceheart.net

Contact: thehospiceheart.net/contact

Buy Gabby’s books: thehospiceheart.net/books

Book Gabby to speak at your event: thehospiceheart.net/book-gabby

Social Media for Gabby Jimenez

https://www.facebook.com/thehospiceheart.net

Interested in purchasing a GrandPad to stay connected with a senior loved one?

Get more information at https://www.grandpad.net/thoh.

GrandPad website: https://www.grandpad.net/

Social Media for GrandPad

https://facebook.com/grandpad

https://instagram.com/grandpad_social/

https://www.linkedin.com/company/grandpad

https://www.youtube.com/channel/UCuFAJCb7_tTneM_ikABq08Q

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

How to Train Your Doctor with Dr. Matthew Tyler

Fri, 13 Sep 2024 07:00:24 +0000

Hospice and palliative physician Dr. Matthew Tyler is teaching us how to have conversations with your healthcare team about what matters most to you. In addition to his work as medical director of palliative care services, Matthew educates the public about having meaningful discussions with their healthcare teams, especially the doctor. He calls it “How to Train Your Doctor”. People with serious illnesses, along with their decision-makers, can get better care if they know how to communicate their needs.

Matthew tackles some of the trickiest topics with his How to Train Your Doctor social media posts. Feeding tubes, CPR/DNR decisions, confusing medical jargon, and palliative care are included in YouTube videos and Instagram posts. Matthew says it’s important to determine what the patient considers a meaningful outcome, and what the goals of the patient care are.

Credit for the healthcare "f-word" (medically futile) goes to Dr. Nathan Gray, M.D. of inkvessel.com.

Connect with Dr. Matthew Tyler at howtotrainyourdoctor.com

Download your free Goals of Care Jump Starter document here.

Website: https://howtotrainyourdoctor.com/

Instagram: https://www.instagram.com/howtotrainyourdoctor/

YouTube: https://www.youtube.com/@howtotrainyourdoctor

Interested in purchasing a GrandPad to stay connected with a senior loved one?

Get more information at https://www.grandpad.net/thoh.

GrandPad website: https://www.grandpad.net/

Social Media for GrandPad

https://facebook.com/grandpad

https://instagram.com/grandpad_social/

https://www.linkedin.com/company/grandpad

https://www.youtube.com/channel/UCuFAJCb7_tTneM_ikABq08Q

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

How to be a Great End of Life Advocate

Fri, 06 Sep 2024 07:00:08 +0000

Being an advocate for someone in hospice care is a big job. MSW Jacob Kendall of Demystifying Healthcare is teaching us how to do it well. Advocacy for his own healthcare needs has taught him how to communicate with a healthcare team to get the best care possible. Jacob teaches about the various aspects that influence that care that’s available for patients, including time and communication. He’s also looking from a 30,000 foot view as well, acknowledging that geography, poverty, time, and policies influence the kind of care we receive.

Jacob is a fan of interdisciplinary care. He believes every specialist or discipline should be working together to create more continuity in our healthcare. In addition to clinical providers, Jacob also thinks other modalities add value to our care. Connecting with other people experiencing similar health challenges can be valuable. Jacob brings a multidimensional perspective to his work as a healthcare consumer and an educator.

Connect with Dr. Jacob Kendall, MSW MPH PhD at jacobevanskendall.com.

Talk with Jacob about speaking at your event by clicking here.

Interested in purchasing a GrandPad to stay connected with a senior loved one?

Get more information at https://www.grandpad.net/thoh.

GrandPad website: https://www.grandpad.net/

Social Media for GrandPad

https://facebook.com/grandpad

https://instagram.com/grandpad_social/

https://www.linkedin.com/company/grandpad

https://www.youtube.com/channel/UCuFAJCb7_tTneM_ikABq08Q

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

How to Plan for Your End of Life

Fri, 30 Aug 2024 07:00:12 +0000

As co-founder of Empowered Endings, Dr. Bob Uslander, is working to shift the paradigm of End of Life Care by supporting, guiding, and teaching an empowered approach to Palliative and End of Life Care. He became aware of the gaps in hospice and palliative care that cause patients to struggle. The deaths of his parents and a dear friend provided a personal perspective into caregiving that formed Bob’s determination to meet the needs of people with serious illness in a better way.

Empowered Endings supports both patients and families through the final stages of life. Bob, his wife Medical Social Worker Elizabeth, and the Empowered Endings team ensure each person feels heard, held, and whole throughout the end of life journey. The team utilizes End of Life Doulas, nurses, a chaplain, and a grief and dementia doula.

Connect with Dr. Bob Uslander:

Website: https://empoweredendings.com/

Empowered Endings Community: https://empoweredendings.com/community/

Empowered Endings Foundation: https://empoweredendings.com/foundation/

Social Media for Empowered Endings

LinkedIn: https://www.linkedin.com/in/bobuslander/

Instagram: https://www.instagram.com/empowered_endings_/

Facebook: https://www.facebook.com/empowerendings/

Interested in purchasing a GrandPad to stay connected with a senior loved one?

Get more information at https://www.grandpad.net/thoh.

GrandPad website: https://www.grandpad.net/

Social Media for GrandPad

https://facebook.com/grandpad

https://instagram.com/grandpad_social/

https://www.linkedin.com/company/grandpad

https://www.youtube.com/channel/UCuFAJCb7_tTneM_ikABq08Q

Connect with Jodi Clock, author of It’s Complicated! at jodieclock.com

Purchase your copy of It’s Complicated! here and learn what you need to know about: Social Security, Medicare, Medicaid, Long Term Care, End-of-Life Wishes and more! It’s Complicated! has a customizable “Family Care Plan” at the end of each chapter. This care plan is also downloadable and free, regardless if you have purchased the book.

Social Media for Jodi Clock

Facebook: https://www.facebook.com/AskJodi/

Twitter (X): https://twitter.com/jodiclock

LinkedIn: https://www.linkedin.com/in/jodi-clock-b988908/

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Grief Coach Shelby Forsythia on How to Grow Through Grief, Part 2

Fri, 23 Aug 2024 07:00:07 +0000

In part 2 of our grief series with Grief Coach Shelby Forsythia, Shelby talks about identifying your grief allies, different grief styles, and how to create continuing bonds with the ones you’ve lost. As founder of Life After Loss Academy, she uses what she’s learned in the years after her mother’s death to help other grievers make their way through a grief journey. Shelby uses mindfulness techniques and open-ended questions to guide her clients to welcome grief as a teacher. Shelby’s work has been featured in Huffington Post, Bustle, and The Oprah Magazine. Her heart and compassion is palpable in her book Your Grief, Your Way.

Connect with Shelby Forsythia:

Website: https://www.shelbyforsythia.com/

Instagram: https://www.instagram.com/shelbyforsythia/

Facebook: https://www.facebook.com/shelbyforsythia/

Free Podcast: https://www.shelbyforsythia.com/dear-grief-guide-podcast

Free Workshop: https://www.shelbyforsythia.com/free-workshop

Book, Your Grief, Your Way: https://www.shelbyforsythia.com/your-grief-your-way

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Grief Coach Shelby Forsythia on How to Grow Through Grief, Part 1

Fri, 16 Aug 2024 07:00:13 +0000

Grief Coach Shelby Forsythia is teaching us how it’s possible to grow through grief. As founder of Life After Loss Academy, she uses what she’s learned in the years after her mother’s death to help other grievers make their way through a grief journey. Shelby uses mindfulness techniques and open-ended questions to guide her clients to welcome grief as a teacher. Shelby’s work has been featured in Huffington Post, Bustle, and The Oprah Magazine. Her heart and compassion is palpable in her book Your Grief, Your Way.

Connect with Shelby Forsythia:

Website: https://www.shelbyforsythia.com/

Instagram: https://www.instagram.com/shelbyforsythia/

Facebook: https://www.facebook.com/shelbyforsythia/

Free Podcast: https://www.shelbyforsythia.com/dear-grief-guide-podcast

Free Workshop: https://www.shelbyforsythia.com/free-workshop

Book, Your Grief, Your Way: https://www.shelbyforsythia.com/your-grief-your-way

Find all the resources that Barbara Karnes has to offer at bkbooks.com.

Purchase the End of Life Guideline Series Bundle here.

Find Barbara’s new booklet Always Offer, Never Force: Food at the End of Life here.

Read Barbara’s blog here.

Connect with Barbara Karnes on social media: Facebook Insta LinkedIn Twitter Pinterest YouTube

Order your copies of The Hospice Care Plan: A Path to Comfort here, now available in English and Spanish!

Check out the free library of video tutorials from the creators of The Hospice Care Plan hospice nurses Nancy Heyerman and Brenda Kizzire here.

Read more about Nancy and Brenda and their mission to improve hospice care here.

Find Odonata Care on social media: Facebook YouTube IG TikTok

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

How to Navigate the Dementia Journey With Compassion

Fri, 09 Aug 2024 07:00:09 +0000

Dementia practitioner Mary Anne Oglesby-Sutherly is on a mission to transform the landscape of dementia care. As co-founder of Veranda Ministries, a 501(c)3, Mary Anne has spent two decades telling the stories of people dealing with dementia. Supporting dementia caregivers is her gift, and helping them to remember their person’s legacy is a top priority.

Mary Anne got her start as a family practice nurse, and is now a Certified Dementia Practitioner as well as holding a triple certification as a PAC trainer, consultant, and coach in Teepa Snow’s “Positive Approach to Care” (PAC). As the host of the highly acclaimed podcast, “Aging Angst and Alleluias,” Mary Anne provides invaluable support, education, and encouragement to care partners navigating the intricate journey of dementia care. The care Mary Anne and her team provide through Veranda Ministries recalls the personhood of their patients, validating who they are and promoting their dignity. What an amazing work and life legacy Mary Anne is creating for herself and her family.

Here’s how you can connect with Veranda Ministries:

www.theverandaministries.org

Proactive Perspective in Dementia Care Facebook:

https://www.facebook.com/profile.php?id=61553996411093

Veranda Ministries Facebook:

https://www.facebook.com/TheVerandaMinistries

Veranda's Hidden Heroes Private Support Group on Facebook.

https://www.facebook.com/groups/1851833391499391

Listen to the Aging Angst and Alleluias podcast here.

Find all the resources that Barbara Karnes has to offer at bkbooks.com.

Purchase the End of Life Guideline Series Bundle here.

Find Barbara’s new booklet Always Offer, Never Force: Food at the End of Life here.

Read Barbara’s blog here.

Connect with Barbara Karnes on social media: Facebook Insta LinkedIn Twitter Pinterest YouTube

Order your copies of The Hospice Care Plan: A Path to Comfort here, now available in English and Spanish!

Check out the free library of video tutorials from the creators of The Hospice Care Plan hospice nurses Nancy Heyerman and Brenda Kizzire here.

Read more about Nancy and Brenda and their mission to improve hospice care here.

Find Odonata Care on social media: Facebook YouTube IG TikTok

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Occupational Therapists are an Important Part of Hospice Care

Fri, 02 Aug 2024 07:00:11 +0000

Welcome to Season 9 of The Heart of Hospice Podcast! Occupational Therapists Emilia Bourland and Dr. Brandy Archie are sharing how OTs can improve the quality of life for patients and caregivers on hospice care. OTs are underutilized in end-of-life care, but they’re an essential part of the hospice interdisciplinary team.

There’s a lot of support OTs can offer to make caregiving tasks easier, practical solutions to everyday issues for activities of daily living. Occupational Therapy interventions can include managing equipment, setting up meals, and transfer techniques. It’s about problem-solving to make caregiving tasks easier and promote independence for the patient. Caregivers have a big job, so reducing the caregiving burden goes a long way to improving the end-of-life experience for both the person at end of life and the ones who are providing their care.

Listen to the CareLab podcast here!

YouTube: https://www.youtube.com/channel/UCIieFR9ZQZf4yH59ysOY7aQ or @carelabpodcast

Socials for Dr. Brandy Archie, OTD, OTR/L, CLVT, CLIPP:

https://www.facebook.com/AskSAMIE

https://www.instagram.com/asksamie

https://www.linkedin.com/in/drbrandyarchie/

https://www.linkedin.com/company/asksamie/

https://www.asksamie.com

https://www.youtube.com/channel/UC5kNJnPHL2vU1vv1jTksgJQ

https://www.twitter.com/Ask_SAMIE

Social for Emilia Bourland, OTR, ECHM, CFPS:

https://www.facebook.com/HigherStandardsCaregiverTraining/

https://www.linkedin.com/in/emilia-bourland/

https://www.linkedin.com/company/higher-standards-caregiver-training/

https://www.youtube.com/channel/UCIfN3ImKGD6pVyiVby86zlw or @higherstandardscaregiver

Find all the resources that Barbara Karnes has to offer at bkbooks.com.

Purchase the End of Life Guideline Series Bundle here.

Find Barbara’s new booklet Always Offer, Never Force: Food at the End of Life here.

Read Barbara’s blog here.

Connect with Barbara Karnes on social media: Facebook Insta LinkedIn Twitter Pinterest YouTube

Order your copies of The Hospice Care Plan: A Path to Comfort here, now available in English and Spanish!

Check out the free library of video tutorials from the creators of The Hospice Care Plan hospice nurses Nancy Heyerman and Brenda Kizzire here.

Read more about Nancy and Brenda and their mission to improve hospice care here.

Find Odonata Care on social media: Facebook YouTube IG TikTok

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Helping End of Life Professionals Fill Their Cup

Fri, 26 Jul 2024 07:00:12 +0000

Erin Whalen, founder of Compassionate Coaching, is working to help end of life and grief professionals love their work again. Using her unique gifts, Erin and the Compassionate Coaching theater troop employ “playback theater” to develop engaging programming that centers around giving and receiving empathy. They work with end of life teams to mitigate burnout, enabling the teams to continue providing care for those who are dying.

Erin understands grief, loss, and the importance of caring for ourselves as we care for others. Erin lived her whole life in a state of anticipatory grief for the loss of her older sister, Gina. Gina was born with severe cerebral palsy, and died in 2016. Grief milestones are very familiar to Erin. Now she uses her work at Compassionate Coaching to support those who work to care for the dying.

You can connect with Compassionate Coaching at compassionatecoaching.org.

If you’re interested in playback theater to support your hospice team, click here.

If you’re an end of life worker and want to participate in a Storytelling Workshop, click here.

Find Erin Whalen on LinkedIn here.

Find all the resources that Barbara Karnes has to offer at bkbooks.com.

Purchase the End of Life Guideline Series Bundle here.

Find Barbara’s new booklet Always Offer, Never Force: Food at the End of Life here.

Read Barbara’s blog here.

Connect with Barbara Karnes on social media: Facebook Insta LinkedIn Twitter Pinterest YouTube

Order your copies of The Hospice Care Plan: A Path to Comfort here, now available in English and Spanish!

Check out the free library of video tutorials from the creators of The Hospice Care Plan hospice nurses Nancy Heyerman and Brenda Kizzire here.

Read more about Nancy and Brenda and their mission to improve hospice care here.

Find Odonata Care on social media: Facebook YouTube IG TikTok

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

What You Need to Know About Hospice Medications withPharmacist Ellen Fulp

Fri, 19 Jul 2024 07:00:12 +0000

Pharmacist Ellen Fulp is passionate about using medications appropriately to care for patients who are at their most vulnerable. As a part of the hospice interdisciplinary team, Ellen collaborates with the hospice director and nurse to ensure quality of life is supported, and a patient’s suffering is reduced. Caregivers and patients often misunderstand how medication is used in hospice care. Ellen believes in symptom resolution, keeping the patient’s goals of care in mind.

In hospice care, pharmacists do more than just review medications for side effects or adverse effects. They help the clinical team find the best medication options to keep the patient comfortable. That includes finding the right route, the most convenient and safe times for administering the medications, and ensuring the medications are utilized correctly by the patient. When medication diversion (meds being stolen or used by someone else) is a concern, pharmacists coordinate with the hospice team to furnish the meds in a safe, legally compliant way. Pharmacists might not be part of the “core team”, but they’re a vital part of the care of a hospice patient.

Connect with Ellen Fulp, PharmD, MSPC, BCG, Director of Pharmacy Education at AvaCare, on LinkedIn.

Find all the resources that Barbara Karnes has to offer at bkbooks.com.

Purchase the End of Life Guideline Series Bundle here.

Find Barbara’s new booklet Always Offer, Never Force: Food at the End of Life here.

Read Barbara’s blog here.

Connect with Barbara Karnes on social media: Facebook Insta LinkedIn Twitter Pinterest YouTube

Order your copies of The Hospice Care Plan: A Path to Comfort here, now available in English and Spanish!

Check out the free library of video tutorials from the creators of The Hospice Care Plan hospice nurses Nancy Heyerman and Brenda Kizzire here.

Read more about Nancy and Brenda and their mission to improve hospice care here.

Find Odonata Care on social media: Facebook YouTube IG TikTok

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

What You Need to Know About Finding Your Grief Style

Fri, 12 Jul 2024 07:00:18 +0000

Funeral director and author Jodi Clock knows personally how each person finds a grief style that’s the best, healthy fit for themselves. As host of the “I Woke Up Dead - Now What?” podcast, Jodi is having conversations about our common experiences with death, shares best practices, and asks the tough questions in order to prepare for end-of-life realities we all will face.

Jodi learned valuable life lessons about grief and loss after experiencing the death of both her parents when Jodi was in her 20’s. As a funeral director, she’s seen all the aspects of grief and how every individual has their own personal style of grief.

In her newest book “It’s Complicated!” - What You Should Know About: Social Security, Medicare, Medicaid, Long Term Care, End-of-Life Wishes and more”, Jodi provides guidance to help people advocate for themselves, know what questions to ask. All too often people receive well intended mis-information. Jodi’s book gives expert advice based on both her professional and personal experiences.

Connect with Jodi Clock at jodiclock.com.

Get your copy of “It’s Complicated! - What You Should Know About: Medicare, Medicaid, Social Security, Long Term Care, End-of-Life Planning and more” here.

See all of Jodi’s books at jodiclock.com/books.

Book Jodi to speak at your event here.

Socials for Jodi:

Website: https://jodiclock.com/

LinkedIn: https://www.linkedin.com/in/jodi-clock-b988908/

Facebook: https://www.facebook.com/AskJodi/

Instagram: https://www.instagram.com/jodiclock/

Pinterest: https://www.pinterest.com/askjodi/

YouTube Channel: https://www.youtube.com/@JodiMClock

Podcast: https://jodiclock.com/i-woke-up-dead-podcast/

Find all the resources that Barbara Karnes has to offer at bkbooks.com.

Purchase the End of Life Guideline Series Bundle here.

Find Barbara’s new booklet Always Offer, Never Force: Food at the End of Life here.

Read Barbara’s blog here.

Connect with Barbara Karnes on social media: Facebook Insta LinkedIn Twitter Pinterest YouTube

Order your copies of The Hospice Care Plan: A Path to Comfort here, now available in English and Spanish!

Check out the free library of video tutorials from the creators of The Hospice Care Plan hospice nurses Nancy Heyerman and Brenda Kizzire here.

Read more about Nancy and Brenda and their mission to improve hospice care here.

Find Odonata Care on social media: Facebook YouTube IG TikTok

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

How to Have the Hard Conversations Before the Hard Things Happen

Fri, 05 Jul 2024 07:00:10 +0000

Hospice nurse Eileen Spillane of Befriending Death has learned to be comfortable with the uncomfortable. Eileen is the Founder of Befriending Death and has been a Registered Nurse for over thirty years, specializing in Oncology, Critical Care, and Obstetrics. She is a certified Life Coach from New Ventures West, a former Zen Hospice Project Volunteer, a Meditation Teacher, and an Active Travel Guide. She has been at the bedside of many as they transition through the dying process and cares very deeply about this topic.

On the Befriending Death website, Eileen writes that “if we have conversations about it (death), we might loosen up the fear and anxiety around it. If we prepare and share our wishes, we can give our loved ones the gift of clarity and direction so they feel confident they are following our wishes and have the opportunity to grieve without further unnecessary stress”.

Eileen’s courses can benefit everyone, from people with life-changing illnesses to elder law attorneys and caregivers for someone with a chronic illness. The courses include smaller “buddy groups” that create a deeper connection between participants. The Let's Chat About Death course provides an opportunity to investigate what’s important in our lives and make changes that reflect that.

Find Befriending Death at befriendingdeath.com.

What You Need to Know About Integrative Palliative Care

Fri, 28 Jun 2024 07:00:10 +0000

“What do I need to know about you as a person to take the best care of you?” This is how integrative palliative medicine physician Dr. Delia Chiaramonte starts conversations with her patients. It’s a Dignity Question that lets her patients know she cares about them as a person. Delia works in integrative palliative medicine to care for the whole person.

Dr. Delia Chiaramonte is a caregiver coach as well as an integrative palliative medicine physician. She’s the founder of the Integrative Palliative Institute and host of The Integrative Palliative Podcast. Dr. Chiaramonte is an adjunct assistant professor at the University of Maryland, has published textbook chapters in the fields of integrative and palliative medicine, and was voted a “Top Doctor” by her physician peers. Dr. Chiaramonte believes that self-care is part of the job description of every clinician.

Delia is the author of Coping Courageously: A Heart-Centered Guide for Navigating a Loved One’s Illness Without Losing Yourself. More information about Dr. Chiaramonte’s Courageous Caregiver program is available at www.CaregivingIsHard.com.

Connect with the Integrative Palliative Institute at integrativepalliative.com.

Find more information on the Courageous Caregiver program at caregivingishard.com.

Download Dr. Chiaramonte’s FREE Guide to Caregiving for Women caring for an aging or ill loved one here.

Find all the resources that Barbara Karnes has to offer at bkbooks.com.

Purchase the End of Life Guideline Series Bundle here.

Find Barbara’s new booklet Always Offer, Never Force: Food at the End of Life here.

Read Barbara’s blog here.

Connect with Barbara Karnes on social media: Facebook Insta LinkedIn Twitter Pinterest YouTube

Order your copies of The Hospice Care Plan: A Path to Comfort here, now available in English and Spanish!

Check out the free library of video tutorials from the creators of The Hospice Care Plan hospice nurses Nancy Heyerman and Brenda Kizzire here.

Read more about Nancy and Brenda and their mission to improve hospice care here.

Find Odonata Care on social media: Facebook YouTube IG TikTok

End of Life Doula Provides Beautiful Family-Involved Home Funerals

Fri, 21 Jun 2024 07:00:17 +0000

End of Life Doula Trina Wacasey works to ensure that clients and families have the kind of personalized death care they want. Using family-guided care customized to fit their beliefs, needs, and wants, Trina guides caregivers through deaths, post-mortem care, and rituals after death.

After working in the corporate world, Trina was drawn to the work of an end of life doula. She volunteered at a hospice agency with their bereavement program, and completed training at the Conscious Dying Institute. The deep and meaningful conversations had great meaning for her. She was fascinated by how individual people feel about death and advance care planning.

As part of her Doula services, Trina offers families what she calls A Natural Goodbye. It’s an alternative to the traditional funeral. Here’s how she describes it:

“I offer my clients a unique opportunity to say a Natural Goodbye following the death of a loved one as an alternative to a traditional funeral or formal wake or visitation. They are invited to an intimate two hour, informal gathering in a private, safe space in the community for cherished time with their person.”

Trina is an educator, an encourager, and a companion for those who are walking through a death experience with someone they love.

Connect with Trina Wacasey at creatinghonoringspaces.com.

Get a copy of Trina’s Family Involved Death Care Checklist here.

Learn how Trina utilizes the Mini Mobile Suite here.

Find all the resources that Barbara Karnes has to offer at bkbooks.com.

Purchase the End of Life Guideline Series Bundle here.

Read Barbara’s blog here.

Connect with Barbara Karnes on social media: Facebook Insta LinkedIn Twitter Pinterest YouTube

Order your copies of The Hospice Care Plan: A Plan to Comfort here, now available in English and Spanish!

Check out the free library of video tutorials from the creators of The Hospice Care Plan hospice nurses Nancy Heyerman and Brenda Kizzire here.

Read more about Nancy and Brenda and their mission to improve hospice care here.

Find Odonata Care on social media: Facebook YouTube IG TikTok

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Revolutionary Advocacy for Military Veterans at End of Life

Fri, 14 Jun 2024 07:00:10 +0000

Today’s guest Dr. Qwynn Galloway-Salazar is a Veteran, death doula, compassionate educator, and the founder of In Their Honor, a national initiative raising awareness and addressing Veterans' unique challenges as they approach the end of life. Qwynn is also the spouse of a combat veteran and understands the role of veteran caregivers.

1 in 4 Medicare hospice patients is a U.S. military veteran - a quarter of the Medicare hospice population. Those veterans have special needs when it comes to the end of their lives. Qwynn recognizes the importance of identifying moral injury, a history of combat service, PTSD, and events of military sexual trauma (for both female and male veterans). Discussion of suicidal ideation and depression should also be a part of their end of life care. Often veterans have terminal illnesses that are related to their military service, including Agent Orange and burn pit exposure. The needs of veteran caregivers are unique as well. Their emotional response and grief may include resentment, depression, anger, guilt, and regret.

Find more information about In Their Honor at intheirhonor.info.

Connect with Dr. Qwynn Galloway-Salazar on LinkedIn here.

Find all the resources that Barbara Karnes has to offer at bkbooks.com.

Purchase the End of Life Guideline Series Bundle here.

Read Barbara’s blog here.

Connect with Barbara Karnes on social media: Facebook Insta LinkedIn Twitter Pinterest YouTube

Order your copies of The Hospice Care Plan: A Plan to Comfort here, now available in English and Spanish!

Check out the free library of video tutorials from the creators of The Hospice Care Plan hospice nurses Nancy Heyerman and Brenda Kizzire here.

Read more about Nancy and Brenda and their mission to improve hospice care here.

Find Odonata Care on social media: Facebook YouTube IG TikTok

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Learning the Truth About Autism and Grief

Fri, 07 Jun 2024 07:00:10 +0000

Dr. Kenneth Doka and Alex Lamorie of the Hospice Foundation of America’s Autism and Grief Project are advocates for people with autism. Dr. Doka is a prolific author, editor, and lecturer, past president of the Association for Death Education and Counseling, and a member and past chair of the International Work Group on Death, Dying, and Bereavement.

Alex Lamorie is an undergraduate student at the University of Maryland Global Campus and an autism advocate. He serves as an advisor on the Hospice Foundation of America's Autism & Grief Project. Alex's expressive grief artwork was featured in 2021 in the textbook Superhero Grief: The Transformative Power of Loss.

For any professional who works with grieving adults, having awareness of the needs of persons on the autism spectrum is an important part of their education. Adults with autism can be overlooked by bereavement and grief workers because their grief expression might look maladaptive, perceived as inappropriate, or not present at all. Alex, along with other autistic adults, contributes a vital perspective in his role as an advisor for the Autism and Grief Project.

The Autism & Grief Project provides resources for persons with autism, their families or intimate network, and grief and bereavement professionals. You can find the Project at autismandgrief.org.

Hear why Alex serves on the advisory board here.

If you’re an adult with autism, there’s support for you here.

If you’re a family member, caregiver, or support person for someone with autism who’s grieving, click here.

If you’re a clergy person, grief or bereavement professional, find resources here.

Socials for the Autism and Grief Project: Facebook Twitter (X) Insta YouTube

Find more information about the Hospice Foundation of America here.

Find all the resources that Barbara Karnes has to offer at bkbooks.com.

Purchase the End of Life Guideline Series Bundle here.

Read Barbara’s blog here.

Connect with Barbara Karnes on social media: Facebook Insta LinkedIn Twitter Pinterest YouTube

Order your copies of The Hospice Care Plan: A Plan to Comfort here, now available in English and Spanish!

Check out the free library of video tutorials from the creators of The Hospice Care Plan hospice nurses Nancy Heyerman and Brenda Kizzire here.

Read more about Nancy and Brenda and their mission to improve hospice care here.

Find Odonata Care on social media: Facebook YouTube IG TikTok

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

The Remarkable Story of Humanist Chaplain D.S. Moss

Fri, 31 May 2024 07:00:10 +0000

Devin (D.S.) Moss brings a sense of reverence for life and a curiosity about death to his work as a chaplain. During a conversation with a Zen Master about Buddhist beliefs about the afterlife, the suggestion was made to him that he would make a good chaplain. Devin didn’t think he could do the work of spiritual care because of his humanist beliefs. He doesn’t believe in God. Turns out the Zen Master didn’t believe in God, either.

Despite a religious upbringing, Devin embraces nontheistic, or humanist, beliefs. His sense of exploration led him to attend seminary and become a chaplain. He has found great fullness and human connection in the work of a chaplain. After completing his CPE (Clinical Pastoral Education) internship, Devin accepted a position to provide spiritual care for an inmate on death row in Oklahoma. He spent most of 2023 supporting convicted murderer Phillip Hancock. Their relationship culminated in Hancock’s death by execution in November of that year.

D.S. is also the host of the Memento Mori podcast, a show about spirituality and death he started before he became a chaplain. He’s continuing his exploration and questioning in a new podcast coming the end of summer, 2024. You can find him at mystartingpoint.life.

Connect with Devin (D.S.) Moss on IG or IG for Remember to Die.

Watch Devin’s talk at EndWell 2023 here.

Find all the resources that Barbara Karnes has to offer at bkbooks.com.

Purchase the End of Life Guideline Series Bundle here.

Read Barbara’s blog here.

Connect with Barbara Karnes on social media: Facebook Insta LinkedIn Twitter Pinterest YouTube

Order your copies of The Hospice Care Plan: A Plan to Comfort here, now available in English and Spanish!

Check out the free library of video tutorials from the creators of The Hospice Care Plan hospice nurses Nancy Heyerman and Brenda Kizzire here.

Read more about Nancy and Brenda and their mission to improve hospice care here.

Find Odonata Care on social media: Facebook YouTube IG TikTok

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

How to Best Serve Military Veterans on Hospice

Fri, 24 May 2024 07:00:08 +0000

1 in 4 Medicare hospice patients is a U.S. military veteran. End of life workers need to know how to take care of their special needs and enhance their quality of life. It’s important for EOL teams to know the signs of PTSD and how to listen when these patients (and their caregivers!) are communicating what they need.

Many military veterans experience trauma, guilt, and anger, causing what is identified as “soul injury”. Having a soul injury or PTSD creates a need for specialized care. Opus Peace has a great inventory tool for assessing whether someone has experienced a soul injury. The Soul Inventory is available for free on the Opus Peace website. You can access the Soul Injury Inventory here.

Every discipline on the hospice team, including the End of Life (or Death) Doula, brings skills that seriously ill and terminally ill veterans need. The caregivers providing support for those veterans need support as well. Those caregivers are advocates, coordinators, and spokespersons for the veterans they care about.

Find all the resources that Barbara Karnes has to offer at bkbooks.com.

Purchase the End of Life Guideline Series Bundle here.

Read Barbara’s blog here.

Connect with Barbara Karnes on social media: Facebook Insta LinkedIn Twitter Pinterest YouTube

Register for the Tree of Life Conference from the International Doula Life Movement here.

Want to know more about doulas, or connect with others who are doing death doula work? Visit internationaldoulalifemovement.com.

If you’re interested in becoming a certified death doula through IDLM, click here.

Access all the courses that IDLM provides here.

See all the events that IDLM is offering by clicking here.

Connect with IDLM on social media. Facebook IG YouTube

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

What It Really Takes to be a Hospice Caregiver

Fri, 17 May 2024 07:00:10 +0000

Christina Keys can tell you the realities of being a caregiver for someone with a serious illness - the good, the bad, and the ugly. As the sole caregiver for her mother following a catastrophic stroke, Christina experienced financial, emotional, mental, physical, and relational impacts. The relationship between the two women was complicated, following a history of childhood abuse.

When her mom needed end of life care, Christina was juggling a full-time job as well as all of her mom’s care. The caregiving needs became much more intense, often requiring two people. End of life conversations were frequent so Christina knew exactly what her mother’s wishes were. One specific request was a casket from Costco! The hospice care got off to a rough start at first, but Christina found an agency that was a better fit for her mom’s care. Knowing she would need the additional support, Christina also engaged an End of Life Doula. Christina has taken the memories of her caregiving experience and all the lessons she’s learned to support other caregivers.

You can connect with Christina and the services she provides at christinakeys.com.

Socials for Christina Keys: Facebook TikTok Instagram LinkedIn

Find more caregiving resources at caregiving.com.

Register for the Tree of Life Conference from the International Doula Life Movement here.

Want to know more about doulas, or connect with others who are doing death doula work? Visit internationaldoulalifemovement.com.

If you’re interested in becoming a certified death doula through IDLM, click here.

Access all the courses that IDLM provides here.

See all the events that IDLM is offering by clicking here.

Connect with IDLM on social media. Facebook IG YouTube

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

The Amazing Work of an End of Life Doula

Fri, 10 May 2024 07:00:13 +0000

This trio of End of Life Doulas is educating the public and other doulas about EOL doula work, and how they support people as they die. Diane Button, Gabby Jimenez, and Angela Shook are sharing their wisdom along with practical guidance for doula work. With heart, compassion, and respect for the intensity of death, the three EOL doulas discussed the unknowns about doulas. They openly acknowledge the difficulties doulas face when starting their practice, and the public’s lack of awareness about doula work.

Diane, Gabby, and Angela have collaborated to write The Doula Tool Kit: The Complete Practical Guide for End-of-Life Doulas & Caregivers. It’s the quintessential guide to the services of EOL (or death) doulas, providing tips and templates for new doulas to jump-start their doula practice. Caregivers, nurses, and other hospice workers can benefit from the book as well. Anyone working with someone with a serious illness or their caregivers should know the work of End of Life Doulas.

Purchase a copy of The Doula Tool Kit: The Complete Practical Guide for End-of-Life Doulas & Caregivers by clicking here.

Connect with Diane Button at dianebutton.com

Find Angela Shook at angelashook.com.

Connect with Gabby Jimenez at The Hospice Heart website.

Register for the Tree of Life Conference from the International Doula Life Movement here.

Want to know more about doulas, or connect with others who are doing death doula work? Visit internationaldoulalifemovement.com.

If you’re interested in becoming a certified death doula through IDLM, click here.

Access all the courses that IDLM provides here.

See all the events that IDLM is offering by clicking here.

Connect with IDLM on social media. Facebook IG YouTube

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Shelley Henry is an Advocate for Quality Hospice Care

Fri, 03 May 2024 07:00:11 +0000

Hospice nurse Shelley Henry is supporting nurses working in end of life care with advocacy, video tips, and support for their self care. Shelley uses the two words “divine intervention” to describe how she got ino working with patients at the end of their lives. After 20 years in the hospice industry, Shelley remains committed to preserving the art of hospice nursing. She’s the president of The Amity Group, a staffing firm exclusively catering to hospice. Shelley posts videos across her social media platforms featuring practical tips and guidance for hospice nursing.

Shelley has designed a nurses’ bag that has all the pockets and places that hospice nurses need. Check out the Tip Bag (along with her hospice documentation resources) at amitystaffing.com.

Find all the training and consulting services of the Amity Group here.

Watch Shelley’s videos on her social media. Facebook LinkedIn IG TikTok

Register for the Tree of Life Conference from the International Doula Life Movement here.

Want to know more about doulas, or connect with others who are doing death doula work? Visit internationaldoulalifemovement.com.

If you’re interested in becoming a certified death doula through IDLM, click here.

Access all the courses that IDLM provides here.

See all the events that IDLM is offering by clicking here.

Connect with IDLM on social media. Facebook IG YouTube

If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.

Book podcast host Helen Bauer to speak at your event or conference by emailing helen@theheartofhospice.com.

A Beautiful Conversation About Death with Sarah Cavanaugh

Fri, 26 Apr 2024 07:00:15 +0000

Sarah Cavanaugh believes having conversations about death helps us clear the air and find peace, whether those discussions are in person or in our hearts and minds. Sarah is the founder of Peaceful Exit, a company that explores all aspects of grief and loss. She co-designed a curriculum to open the conversation around the physical, psychological, and spiritual aspects of death and dying.

She also hosts Peaceful Exit, a podcast that explores life, death and grief. In each episode, she talks with an author who has written extensively on the topic to help us normalize death as part of the human experience, no matter who you are, no matter your politics, spiritual faith or socioeconomic status. Peaceful Exit explores how to radically accept our eventual demise, how to talk about it and even plan for it. But it’s not all doom and gloom – there's joy, meaning and connection to be found in exploring the messiness of death, dying and grief.

Connect with Sarah Cavanaugh, host of the Peaceful Exit podcast:

Website: peacefulexit.net

Podcast: Peaceful Exit

Online Courses

Contact Peaceful Exit

Socials: Insta Facebook LI

Register for the Tree of Life Conference from the International Doula Life Movement here.

Want to know more about doulas, or connect with others who are doing death doula work? Visit internationaldoulalifemovement.com.

If you’re interested in becoming a certified death doula through IDLM, click here.

Access all the courses that IDLM provides here.

See all the events that IDLM is offering by clicking here.

Connect with IDLM on social media. Facebook IG YouTube

If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Elizabeth Miller Provides Practical Tips for Being a Remote Caregiver

Fri, 19 Apr 2024 07:00:14 +0000

As a caregiver her entire adult life, Elizabeth Miller has learned how to find the joy in the caregiving life. As a Certified Caregiving Consultant, she helps other caregivers make the best of their own experience. Elizabeth joined forces with her siblings to provide support for their parents, and for her developmentally delayed brother. Each sibling brought his or her own skill set and strength to the care. Elizabeth played the role of primary caregiver, sandwich caregiver (caring for parents and children simultaneously), and remote caregiver (providing support from a distance).

After the death of her father, Elizabeth and her siblings moved their mom and brother Tom closer to where she lived. She describes the impact of that caregiving as stressful, overwhelming, isolating. It affected her mental and physical health in negative ways. Elizabeth learned how to care for herself and set boundaries to maintain her health while she cared for the health of her family and her mom.

If you’re needing support and guidance as a caregiver, Elizabeth Miller can help. Her company, Happy Healthy Caregiver, can help you become happier and healthier.

Connect with Elizabeth’s Certified Caregiving Consultant Services at happyhealthycaregiver.com

Check out the Happy Healthy Caregiver podcast for support and caregiving resources.

Book Elizabeth Miller to speak at your next conference or event.

Connect with Happy Healthy Caregiver on social media: Facebook Twitter Insta LI YouTube

Register for the Tree of Life Conference from the International Doula Life Movement here.

Want to know more about doulas, or connect with others who are doing death doula work? Visit internationaldoulalifemovement.com.

If you’re interested in becoming a certified death doula through IDLM, click here.

Access all the courses that IDLM provides here.

See all the events that IDLM is offering by clicking here.

Connect with IDLM on social media. Facebook IG YouTube

If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

What You Need to Know About Advance Care Planning with Gail Rubin

Fri, 12 Apr 2024 07:00:21 +0000

Gail Rubin, The Doyenne of Death, has been talking about death and dying for years - and she’s still alive. As an award-winning death speaker, Gail uses humor and film clips to educate the public about advance care planning, funeral pre-planning, and estate planning. She’s a Certified Thanatologist and a featured speaker at TEDxABQ, where she spoke on “A Good Goodbye”.

Gail is the author of four books on end-of-life, including A Good Goodbye: Funeral Planning for Those Who Don’t Plan to Die. She also designed the Newly-Dead Game, a thought-provoking way to help start funeral planning conversations in a fun, non-threatening way.

You can connect with Gail Rubin at AGoodGoodbye.com.

Watch Gail’s TEDx ABQ talk on YouTube.

Want to watch people play the Newly-Dead Game? Click here.

Find out how you can host a Before I Die Festival in your hometown at beforeidiefestivals.com.

Register for the Tree of Life Conference from the International Doula Life Movement here.

Want to know more about doulas, or connect with others who are doing death doula work? Visit internationaldoulalifemovement.com.

If you’re interested in becoming a certified death doula through IDLM, click here.

Access all the courses that IDLM provides here.

See all the events that IDLM is offering by clicking here.

Connect with IDLM on social media. Facebook IG YouTube

If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

The Ultimate Gift of Precious Time at End of Life

Fri, 05 Apr 2024 07:00:12 +0000

Jennifer O’Brien is sharing details of her caregiving journey, telling the story of her husband’s life-limiting illness and how she’s learned to make the most of Precious Time. After working 35+ years as a practice management consultant to physicians, Jennifer supported her husband Bob up to and through the end of his life. As a hospice and palliative care physician, Bob knew what to expect from his illness. He and Jennifer experienced all the ups and downs of serious illness and caregiving for someone who’s dying. The art journal she kept as a form of self-care during Bob’s 22-month illness was published as The Hospice Doctor's Widow: A Journal. The book has won several awards for both its content and design.

Jennifer shares her story, wisdom, and experience to help others understand the role of family caregivers and the importance of end-of-life preparations. The concept of Precious Time is a way of communicating gently and respectfully that time is limited, and death is approaching. She also sees it as a way for healthcare practitioners to avoid creating unrealistic hope in the minds of families, patients, and caregivers.

You can get a copy of Jennifer’s FREE Download Precious Time at https://www.hospicedrswidow.com/resources.

Order your copy of The Hospice Doctor’s Widow: A Journal:

Bookshop.org Barnes & Noble Amazon

Jennifer’s website: hospicedrswidow.com Jennifer on social media: Facebook Insta LI YouTube

Register for the Tree of Life Conference from the International Doula Life Movement here.

Want to know more about doulas, or connect with others who are doing death doula work? Visit internationaldoulalifemovement.com.

If you’re interested in becoming a certified death doula through IDLM, click here.

Access all the courses that IDLM provides here.

See all the events that IDLM is offering by clicking here.

Connect with IDLM on social media. Facebook IG YouTube

If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.

Book podcast host Helen Bauer to speak at your event or conference by emailing helen@theheartofhospice.com.

How to Provide LGBTQ Inclusive Care From Kimberly Acquaviva

Fri, 29 Mar 2024 07:00:14 +0000

The story of the terminal illness and death of Kimberly Acquaviva’s wife Kathy is powerful, intense, real… and human. As a hospice social worker and LGBTQ+ community advocate, Kim knows what good end of life care looks like. During their experience with Kathy’s end stage cervical cancer, the women discovered that none of the hospice agencies where they lived had LGBTQ - inclusive non-discrimination statements. Both Kathy and Kim were determined not to settle for anything less than the best care. They made the decision not to use hospice.

In this interview, Kimberly shares the details of their experience, including their communication style, how they connected with friends and family on social media, and the way they made decisions that affected their 19-year old son. Kimberly and Kathy shaped Kathy’s end of life experience in their own way. Quality of life for them meant autonomy, advocacy, and allowing their journey to create change in the hospice industry. They were teachers for the hospice industry, causing a ripple effect of change that expanded awareness of what inclusive care looks like.

Kimberly chronicled the story of Kathy’s illness and death in her book The Handbook of LGBTQIA-Inclusive Hospice and Palliative Care (October 2023). You can order your copy here.

Connect with Kimberly Acquaviva at kimberly-acquaviva.com

Find Kimberly on LinkedIn and X (Twitter).

Order your copies of The Care Plan from Odonata here. It’s available in English and Spanish!

Check out the free video tutorials from Nancy Heyerman and Brenda Kizzire here.

Register for the Tree of Life Conference from the International Doula Life Movement here.

Want to know more about doulas, or connect with others who are doing death doula work? Visit internationaldoulalifemovement.com.

If you’re interested in becoming a certified death doula through IDLM, click here.

Access all the courses that IDLM provides here.

See all the events that IDLM is offering by clicking here.

Connect with IDLM on social media. Facebook IG YouTube

If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Follow The Heart of Hospice: Facebook, IG Twitter (X) LinkedIn.

How a State Senator Improved Hospice Care in Her Home State

Fri, 22 Mar 2024 07:00:11 +0000

Senator Meg Cappel turned her experience as a caregiver for her terminally ill mother into advocacy and now works to promote hospice care in her home state.

Meg believes a true legacy - one that lasts - is a legacy of kindness. Years of working as a special education teacher taught her the importance of seeing people and meeting them where they are. As a caregiver along with her siblings, Meg experienced all the nuances of caregiving for her mom. Her mom chose hospice care when her ovarian cancer grew beyond treatment. Meg advocated for her mother and ensured her wishes were carried out.

As a state senator, Meg has promoted improvements for hospice care in her home state of Illinois. House Bill 1117 allowed hospice programs that own or operate separate hospice residences to serve up to 24 people per location, rather than the current 20 people per location cap. Additionally, the measure expanded the number of licensed hospice locations per county from five to 16. These changes allowed increased access to hospice care for seriously ill people across the state.

Read more about Senator Meg Cappel’s work here.

Order your copies of The Care Plan here. It’s available in English and Spanish!

Check out the free video tutorials from Nancy Heyerman and Brenda Kizzire here.

Register for the Tree of Life Conference from the International Doula Life Movement here.

Want to know more about doulas, or connect with others who are doing death doula work? Visit internationaldoulalifemovement.com.

If you’re interested in becoming a certified death doula through IDLM, click here.

Access all the courses that IDLM provides here.

See all the events that IDLM is offering by clicking here.

Connect with IDLM on social media. Facebook IG YouTube

If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Follow The Heart of Hospice: Facebook, IG Twitter (X) LinkedIn.

Help Texts Offers Expert Grief Support With Text Messages

Fri, 15 Mar 2024 07:00:07 +0000

Supporting people who are grieving is fulfilling, joyful work. Just ask Help Texts founder Emma Payne. After having a personal loss, Emma realized how much we could improve how we support grievers. She’d spent years working in the tech space. That knowledge helped launch Help Texts. Their service provides grief support for events like pregnancy loss, pet loss, and death of a loved one.

The needs of grievers came into sharp focus for Emma when she was asked to deliver a eulogy for a close friend, ten years after the loss of her husband by suicide. The funeral weekend brought her into contact with people who had failed to support Emma after the death of her husband. She realized how deep and complex the needs of grievers are and wanted to change how we support them.

Help Texts gives subscribers the words and encouragement they need in those moments when grief hits the hardest. Services for individuals, employees, clients, and patients are easily available through texts. Organizations and businesses can provide Help Texts to give their members and clients grief support that’s accessible through text messages.

HelpTexts also gives professionals and caregivers guidance about how to support clients and loved ones dealing with grief. Grief literacy doesn’t come easily to everyone. Help Texts can help.

If you need grief support, check out Help Texts to see how they can support you.

Get 10% off Help Texts by using the code theheartofhospice when you sign up.

Find out more about Help Texts for your organization here.

Connect with Help Texts on social media: IG Facebook Twitter (X) LinkedIn Vimeo TikTok

Order your copies of The Care Plan here. It’s available in English and Spanish!

Check out the free video tutorials from Nancy Heyerman and Brenda Kizzire here.

Register for the Tree of Life Conference from the International Doula Life Movement here.

Want to know more about doulas, or connect with others who are doing death doula work? Visit internationaldoulalifemovement.com.

If you’re interested in becoming a certified death doula through IDLM, click here.

Access all the courses that IDLM provides here.

See all the events that IDLM is offering by clicking here.

Connect with IDLM on social media. Facebook IG YouTube

If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Follow The Heart of Hospice: Facebook, IG Twitter (X) LinkedIn.

How to Improve Patient Care With Pastoral Thanatologist Joelle Johns

Fri, 08 Mar 2024 08:00:10 +0000

Joelle Johns believes telling people they’re dying gives them an opportunity to say the goodbyes, do the final things they want to do, apologize, and forgive. Joelle is a death midwife and grief counselor, as well as a pastoral thanatologist and clinical chaplain, having just completed her designation as a Board Certified Clinical Chaplain (BCC). She also holds a certificate in Death Midwifery.

As a pastoral thanatologist, Joelle supports those dying and those grieving, coaching them in healthy psychospiritual habits. Advance care plan conversations are also part of her work. Joelle’s seen the impact of avoiding those discussions about end of life wishes. Her experiences as a Hospice Chaplain have shown her the deep meaning and commonality death carries for all of us.

Connect with Rev. Joelle Johns via email: revjoellejohns@gmail.com.

Find Joelle on social media: FB LinkedIn

Order your copies of The Care Plan here. It’s available in English and Spanish!

Check out the free video tutorials from Nancy Heyerman and Brenda Kizzire here.

Register for the Tree of Life Conference from the International Doula Life Movement here.

Want to know more about doulas, or connect with others who are doing death doula work? Visit internationaldoulalifemovement.com.

If you’re interested in becoming a certified death doula through IDLM, click here.

Access all the courses that IDLM provides here.

See all the events that IDLM is offering by clicking here.

Connect with IDLM on social media. Facebook IG YouTube

If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Follow The Heart of Hospice: Facebook, IG Twitter (X) LinkedIn.

Life Experiences Offer Opportunities for Death Doula Jo-Anne Haun

Fri, 01 Mar 2024 08:00:17 +0000

Death Doula Jo-Anne Haun has found growth and meaning in working with the dying. As co-founder of Death Doula Network International, Jo-Anne works to support and educate about the work of death doulas. Jo-Anne uses her personal gift of gentle humor in her volunteer work as a therapy clown (Code Name: Buttons). Jo-Anne’s habit of incorporating a little fun into a discussion about end of life wishes is a gentle lead-in to deeper conversations about dying and death.

You can connect with Jo-Anne Haun at eola.ca.

Find Death Doula Network International at ddnint.com.

Order your copies of The Care Plan here. It’s available in English and Spanish!

Check out the free video tutorials from Nancy Heyerman and Brenda Kizzire here.

Register for the Tree of Life Conference from the International Doula Life Movement here.

Want to know more about doulas, or connect with others who are doing death doula work? Visit internationaldoulalifemovement.com.

If you’re interested in becoming a certified death doula through IDLM, click here.

Access all the courses that IDLM provides here.

See all the events that IDLM is offering by clicking here.

Connect with IDLM on social media. Facebook IG YouTube

If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Follow The Heart of Hospice: Facebook, IG Twitter (X) LinkedIn.

Francesca Arnoldy Is A Guide For End Of Life Planning

Fri, 23 Feb 2024 08:00:14 +0000

Death literacy advocate and Community Doula Francesca Arnoldy is sharing the role of a death doula and how to support someone through a time of intensity. She’s the author of The Death Doula's Guide to Living Fully and Dying Prepared, a workbook that offers the opportunity to explore mortality and end-of-life care planning. In her work as an end of life doula, Francesca focuses on end of life planning conversations. She’s seen the benefits of exploring those EOL wishes, freeing us to live more fully and recognize the opportunities in the time that’s left.

Francesca recognizes the value of conversation abouts mortality. She’s designed a Death Journal in which she’s writing, and creating her own end of life plan. It includes messages to her loved ones and lists of things that mean happiness and comfort for her. While it’s a creative outlet, it also tells her family how to best care for her as she’s dying. Francesca’s journal includes song lyrics, poems, and memories - so many reflections that tell the story of who she is.

You can purchase a Death Journal to create your own story and end of life wishes. Click here to get started.

Order your copy of The Death Doula's Guide to Living Fully and Dying Prepared here or here.

Enjoy this excerpt from The Death Doula's Guide: https://contemplativedoula.files.wordpress.com/2023/08/excerpt_deathdoulasguide.pdf.

Read what Francesca has to say on how we sustain ourselves in death work: https://francescalynnarnoldy.com/2024/02/09/vital-deathcaring-maintaining-connection-to-our-humanity/

Visit francescalynnarnoldy.com to connect with Francesca.

Find Francesca on Facebook, IG, Twitter, and LinkedIn.

Order your copies of The Care Plan here. It’s available in English and Spanish!

Check out the free video tutorials from Nancy Heyerman and Brenda Kizzire here.

Register for the Tree of Life Conference from the International Doula Life Movement here.

Want to know more about doulas, or connect with others who are doing death doula work? Visit internationaldoulalifemovement.com.

If you’re interested in becoming a certified death doula through IDLM, click here.

Access all the courses that IDLM provides here.

See all the events that IDLM is offering by clicking here.

Connect with IDLM on social media. Facebook IG YouTube

If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Follow The Heart of Hospice: Facebook, IG Twitter (X) LinkedIn.

Barbara Karnes on How to Care for a Person With Dementia

Fri, 16 Feb 2024 08:00:09 +0000

Award-winning End of Life Educator Barbara Karnes takes a deep dive into the unique challenges of caring for someone with dementia at end of life. Caregivers often find their responsibilities accumulating over time as the disease trajectory continues. They’re forced to live in the present, to see their loved one as who they are today. The goal is to bring joy and quality of life to a beloved today, in this moment.

Hospice care for a person with end stage dementia can be tricky. The timing of the admission is often difficult to determine, and patients are often discharged from hospice if their health decline is not evident, which means the patient no longer meets hospice criteria. When a patient needs to be discharged, it’s vital that the hospice team support the caregiver with robust discharge planning. That caregiver needs all the resources and support the team can provide before the hospice care ends. Discharge from hospice can feel like abandonment to a caregiver. Where will the medical equipment, medications, and personal care assistance come from? The hospice team is responsible for helping caregivers set up a system of support that can be there when hospice workers are gone.

Isolation is also a big concern for caregivers providing care for someone with dementia. It’s important to have a support system of friends and community who will fill in when the caregiver needs time away. It truly takes a village. Caregivers deserve to have quality of life, too.

You can find Barbara’s dementia guide “How Do I Know You?” at bkbooks.com.

Purchase “By Your Side” from Barbara Karnes here.

Read Barbara’s blog at bkbooks.com.

Connect with Barbara Karnes on Facebook IG LinkedIn Twitter (X) YouTube

Odonata Care offers help for caregivers at thecareplan.net.

Order your copies of The Care Plan here. It’s available in English and Spanish!

Check out the free video tutorials from Nancy Heyerman and Brenda Kizzire here.

Register for the Tree of Life Conference from the International Doula Life Movement here.

Want to know more about doulas, or connect with others who are doing death doula work? Visit internationaldoulalifemovement.com.

If you’re interested in becoming a certified death doula through IDLM, click here.

Access all the courses that IDLM provides here.

See all the events that IDLM is offering by clicking here.

Connect with IDLM on social media. Facebook IG YouTube

If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Follow The Heart of Hospice: Facebook, IG Twitter (X) LinkedIn.

Valuable Lessons Learned From a Mom Who Lost a Child

Fri, 09 Feb 2024 08:00:10 +0000

*Trigger warning - this episode contains a description of an intense death event and the death of a child. Please make space for your self care if you find the topic overwhelming.

Juli Henderson has turned the loss of her son into meaningful advocacy, sharing her wisdom with other caregivers. Juli and her husband Chris were the parents of a son, Robert. Robert had a rare mitochondrial disorder. Genetic testing revealed that he had a gene alteration that predisposed him to seizures and developmental disorders. Robert’s disease was progressive, and he was eventually diagnosed with cerebral palsy, autism, and intellectual and developmental disabilities (I/DD). Caring for him and managing his symptoms meant spending days in the hospital. Being a caregiver for a child with a rare life-limiting illness changed Juli forever. She describes the experience as fearful, devastating, lonely, life-altering, and angry.

Managing Robert’s medical needs was a big part of their lives, but Robert was so much more. Juli’s stories of Robert include laughter, joy, music, and family. She’ll tell you Robert was known for his big, toothy smile, and his all-embracing hugs, along with his capacity to give and receive love.

After Robert’s death at the age of 18, Juli came to a place of recognition of the joy of caring for Robert. These days, she calls it a gift to have had Robert just as he was. Her website In Our Arms shares insights about her experience through her blog, and includes resources on self care, grief, and epilepsy.

If you have a medically fragile or seriously ill child, connect with In Our Arms at inourarms.blog.

Read about Juli’s story here.

Read Robert’s story here.

Social media for Juli Henderson and In Our Arms: Instagram Facebook

Odonata Care offers help for caregivers at thecareplan.net.

Order your copies of The Care Plan here. It’s available in English and Spanish!

Check out the free video tutorials from Nancy Heyerman and Brenda Kizzire here.

If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Follow The Heart of Hospice on Facebook, Instagram, and LinkedIn.

Dr. Karen Wyatt Shares a Physician's Perspective on Hospice and Healthcare

Fri, 02 Feb 2024 08:00:12 +0000

Hospice physician Dr. Karen Wyatt wants people to get comfortable thinking about death, and have time to plan for the end of their lives. Karen is the host of the End of Life University podcast and author of 7 Lessons for Living from the Dying. She’s considered a thought leader in end of life care. We talked about lots of topics related to hospice in this great conversation, including trends in the industry, advance care planning, and how bedside hospice professionals are giving their best to patients and caregivers.

Listen to the End of Life University podcast here.

Website: www.eoluniversity.com

Connect with Dr. Karen Wyatt on Facebook.

Find all the services and products Odonata Care offers at thecareplan.net.

Order your copies of The Care Plan here.

Check out the free video tutorials from Nancy Heyerman and Brenda Kizzire here.

If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Follow The Heart of Hospice on Facebook, Instagram, and LinkedIn.

Doula Karen Hendrickson Shares Her Powerful Story of Grief as a Teen

Fri, 26 Jan 2024 08:00:12 +0000

*Trigger warning - this episode contains a description of an intense death event. Please make space for your self care if you find the topic overwhelming.

Death doula Karen Hendrickson’s brother died suddenly when she was sixteen years old. That event became a lifelong lesson in death and dying, grief, and how to support teens during a loss.

As co-founder of Death Doula Network International, Karen Hendrickson specializes in end of life planning and education. As a death doula, she provides grief support and guidance for those who are dying and their caregivers. In her personal life, Karen experienced the death of her older brother Ernie when she was only sixteen years old. He was only 22 years old. That life event changed forever the culture of her family. As Karen describes it, it was “the beginning of us tucking our grief into the shadows”.

Karen learned for herself what it’s like to experience a traumatic loss as a teenager. Now she teaches about caring for teens as they grieve - making them feel seen, understanding they’re not responsible for taking care of the adults in the family.

Connect with the Death Doula Network International at ddint.com.

Join DDNI as a corporate or individual member here.

Find Death Doula and DDNI partners working in your area here.

Find all the services and products Odonata Care offers at thecareplan.net.

Order your copies of The Care Plan here.

Check out the free video tutorials from Nancy Heyerman and Brenda Kizzire here.

If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Follow The Heart of Hospice on Facebook, Instagram, and LinkedIn.

Connect with The Heart of Hospice podcast on The Whole Care Network, along with a host of other caregiving podcasts by clicking here.

Gabby Jimenez Offers Guidance on Medical Aid in Dying in Her New Book

Fri, 19 Jan 2024 08:00:13 +0000

Hospice nurse and end of life doula Gabby Jimenez of the Hospice Heart shared her thoughts in our great conversation about supporting MAID caregivers, and her new book Dignity Day. Hospice and end of life workers should know what Medical Aid in Dying (MAID) is, regardless of their personal opinion about MAID. If patients and caregivers ask questions, every EOL worker should be able to answer questions and provide resources.

Gabby wrote her new book Dignity Day to respond to the fear and confusion that surround the use of Medical Aid in Dying. Here’s how she describes the book:

“This book is written from my experience as a hospice nurse and as an end of life doula. I have been present for many people who have chosen to do this, and I have seen how difficult and beautiful it can be for everyone involved. This book is designed to offer clarity, remove fear and uncertainty, and give permission to everyone at the bedside to feel whatever they need to feel, but to still stay present for someone they love. I have no intention of trying to change your mind, my intention is to ask that you not walk away. My hope for this book is that it invites healthy conversation, welcomes curiosity, answers some of the big questions, and supports each person by honoring their different thoughts and opinions about it.”

Connect with Gabby Jimenez of The Hospice Heart at thehospiceheart.net.

Purchase a copy of Dignity Day (or one of Gabby’s other books) here.

Needing a speaker for your event or conference? Click here to book Gabby to speak.

Find The Hospice Heart on Facebook.

If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.

Book podcast host Helen Bauer to speak for your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Follow The Heart of Hospice on Facebook, Instagram, and LinkedIn.

Connect with The Heart of Hospice podcast on The Whole Care Network, along with a host of other caregiving podcasts by clicking here.

Dr. Lucy Kalanithi Tells Her Remarkable Story of Life After Loss

Fri, 12 Jan 2024 08:00:11 +0000

Caregiver, physician, wife, and griever - Dr. Lucy Kalanithi shares her remarkable journey with her husband Dr. Paul Kalanithi, author of When Breath Becomes Air. Lucy’s experience with her terminally-ill husband and his death has shaped how she approaches patient care and thinks about human suffering.

Dr. Kalanithi is a Fellow of the American College of Physicians, a member of the Alpha Omega Alpha national medical honor society and an honoree of Mass General Cancer Center’s “the one hundred” and Stanford’s Medical Staff Awards. She has implemented novel healthcare delivery models in primary care, hospitals and health systems, and served on leadership boards for TEDMED, the Coalition to Transform Advanced Care and the American College of Physicians. She has appeared on stage at TEDMED, on NPR, PBS Newshour, and Yahoo News with Katie Couric. Her award-winning podcast, Gravity, explores narratives of suffering.

Connect with Dr. Lucy Kalanithi on lucykalanithi.

Find Dr. Lucy Kalanithi on X (formerly Twitter)

Read Ady Barkan’s article “I’m Dying. Here’s What I Refuse to Accept with Serenity” in The Nation here.

If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.

Need a dynamic speaker for your event or conference? Book podcast host Helen Bauer to speak by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Follow The Heart of Hospice on Facebook, Instagram, and LinkedIn.

Connect with The Heart of Hospice podcast on The Whole Care Network, along with a host of other caregiving podcasts by clicking here.

Chaplains Complete a Sacred Space Between Machine and Medicine

Fri, 05 Jan 2024 08:00:08 +0000

Chaplain J.S. Park has a powerful voice - raw, transparent, and real. He’s using it to influence how people care for people at the end of life. J.S. will tell you he’s heard all the regrets in his work with the dying. As a hospital chaplain in a Trauma 1 center, J.S. provides grief counseling, attends every death, helps with end-of-life decision-making, and advocates for patients and families in crisis.

He’s also worked as a chaplain for the homeless, including trauma-informed care, grief support, church wound recovery, faith-based programs for low-income families, and staff care for coworkers. J.S.’s IG account has over 102K followers, and his content is powerful. Remembering our own humanity makes us better providers of health care for other humans.

With an open heart and authentic communication, J.S. Park is holding space for respect and compassion. He’s leading with his heart. His voice is needed.

If you’re an end of life worker, connect with JS Park on Instagram.

Read more about JS Park and his work, and read his blog at jsparkblog.com.

Get J.S. Park’s book, The Voices We Carry, by clicking here.

If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.

Need a dynamic speaker for your event or conference? Book podcast host Helen Bauer to speak by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Follow The Heart of Hospice on Facebook, Instagram, and LinkedIn.

Connect with The Heart of Hospice podcast on The Whole Care Network, along with a host of other caregiving podcasts by clicking here.

A Conversation With Diane Hullett of the Best Life Best Death Podcast

Fri, 29 Dec 2023 08:00:09 +0000

Diane Hullet, host of the Best Life Best Death podcast, believes in authentic conversations, holding space for those who are dying, and supporting others as they define their own “best death”. With the experience in her own family of eight deaths supported at home by hospice and having worked as a teacher for many years, Diane felt drawn to combine teaching with end of life work. She completed the Sacred Passage End of Life Doula course at The Conscious Dying Institute and the volunteer training at her local TRU Hospice. As an End of Life Doula, Diane empowers others during their end of life experience. She works to facilitate conversations about mortality that lead people to know what matters most to them. As the host of the Best Life Best Death podcast, she talks with experts working in the death and grief space. Diane brings a compassionate and authentic voice to her show, and to this great discussion.

Listen to the Best Life Best Death podcast here.

Read more about Diane Hullett’s work at bestlifebestdeath.com.

If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.

Need a dynamic speaker for your event or conference? Book podcast host Helen Bauer to speak by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Follow The Heart of Hospice on Facebook, Instagram, and LinkedIn.

Connect with The Heart of Hospice podcast on The Whole Care Network, along with a host of other caregiving podcasts by clicking here.

Dr. Kaishauna Guidry Teaches Doctors How to Have Difficult Conversations

Fri, 22 Dec 2023 08:00:15 +0000

Dr. Kaishauna Guidry is keeping it real when it comes to difficult conversations about hospice, dying, and death. As the host of the Dr. G at the Heart of Healthcare podcast, she’s teaching her listeners about challenging healthcare issues. She’s a fierce advocate for quality care, and empowers others to get the best from their care. She’s comfortable with the hard topics, discussing what people and caregivers need at end of life. Her mobile medical service provides care for patients who may have been discharged from hospice but still need a medical provider wherever they call home. Dr. G also provides consulting and mentoring for other physicians and organizations who need to improvise their physician documentation. Her book Dr. G’s H.O.S.P.I.C.E. Guide: 7 things Hospice Physicians Need to Know to Be Ready for Work provides support for doctors working in end of life care. She’s also the author of The Real Deal about Hospice: Short Stories Highlighting the Advantages of Hospice Care for Patients and Families.

Storyteller, advocate, mentor, and physician - Dr. G’s voice is strong and so necessary for today’s healthcare system.

Find out more about Mourning Dove Medical at mourningdovemedical.com.

Listen to the Dr. G at the Heart of Healthcare podcast here.

Connect with Dr. G on social media. Facebook IG Twitter LinkedIn

Get your copy of Dr. Guidry’s books here.

If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.

Need a dynamic speaker for your event or conference? Book podcast host Helen Bauer to speak by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Follow The Heart of Hospice on Facebook, Instagram, and LinkedIn.

Connect with The Heart of Hospice podcast on The Whole Care Network, along with a host of other caregiving podcasts by clicking here.

Looking Into the Heart of a Hospice Physician

Fri, 15 Dec 2023 08:00:07 +0000

Hospice physician Lauren Templeton knows the power of pausing, taking a moment to reflect on end of life wishes even when things are tense and chaotic. Dr. Templeton is a fierce advocate and a strong voice for advance care planning, palliative care, and upstream discussions about end of life. As a hospice medical director, Lauren walks alongside seriously ill patients and their caregivers. She says she’s learned to appreciate the fullness of her own life from working in hospice. Dr. Templeton will tell you a typical day in the life of a hospice doctor is unpredictable, involving both clinical and administrative responsibilities. Troubleshooting symptom management with nurses, prescribing the appropriate medications, and documenting in the clinical record are some of the tasks included in the medical director job. Lauren brings her heart to this work and finds meaning in the care of her patients.

If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.

Need a dynamic speaker for your event or conference? Book podcast host Helen Bauer to speak by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Follow The Heart of Hospice on Facebook, Instagram, and LinkedIn.

Connect with The Heart of Hospice podcast on The Whole Care Network, along with a host of other caregiving podcasts by clicking here.

How a Daring Nurse From California Began a Hospice in Kenya

Fri, 08 Dec 2023 08:00:09 +0000

Hospice nurse Juli Boit works to care for the dying in Kenya, providing desperately needed care and services. She is an author, community builder, and nonprofit leader working at the intersection of faith, global health, and human dignity. For eighteen years, Juli has lived and worked in Africa, founding and serving as International Director of Living Room International, a community-led nonprofit providing hospice and palliative care services to adults and children in Western Kenya.

A Family Nurse Practitioner, Juli has combined her dual passions of healthcare and social justice into a unique expression of love that provides desperately needed services in an underserved community. That said, Juli would be the first to add she’s the one who has been loved the most by her patients and neighbors in her home village of Kipkaren—most notably by Titus, her Kenyan husband, and their children Sharon, Alice, Ella, Geoffrey, and Ryan.

Connect with Juli Boit and her work at juliboit.com.

Subscribe to receive the Kimbilio newsletter here.

Read about the work of Living Room International here.

You can support the work of Living Room International at livingroominternational.org.

Visit internationaldoulalifemovement.com to learn more about doulas, or connect with others who are doing death doula work.

Register for IDLM’s FREE 2024 Birthday Bash Jan. 8 - 12, 2024 here.

If you’re interested in becoming a certified death doula through IDLM, click here.

Access all the courses that IDLM provides here.

See all the events that IDLM is offering by clicking here.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Follow The Heart of Hospice on Facebook, Instagram, and LinkedIn.

Connect with The Heart of Hospice podcast on The Whole Care Network, along with a host of other caregiving podcasts by clicking here.

Wind Phones Are Helping Grievers in Unexpected Ways

Fri, 01 Dec 2023 08:00:13 +0000

Sending a message to someone we love on the wind using a Wind Phone is a beautiful way to express grief. Amy Dawson knows the power of being able to express grief emotions. She’s a Master Grief Coach and manages the My Wind Phone website. Amy didn’t originate the Wind Phone but she promotes the phones on her website. The first Wind Phone was created in Japan by Itaru Sasaki, using a phone booth and a rotary phone. The phones aren’t connected to any phone lines or modern wireless service. The person using the Wind Phone can talk into the phone, expressing their grief over a loss. It’s a dedicated space for grief, private, secure. Sasaki had created a way to continue communication after the death of a loved one.

Amy knows about grief, having experienced the loss of her daughter Emily from a terminal illness just after the start of the pandemic. Amy had read about Wind Phones, and felt drawn to the phones as a way of staying connected to Emily. Connecting people with the phones, and seeing the comfort they provide, gives Amy joy.

Here’s what Amy writes about her story: As of November 1, 2023, I have located and mapped over 165 Wind Phones, and new ones are added regularly. Exceptional, caring individuals inspired by Itaru have created and installed beautiful versions of a wind phone, sacred spaces for people to reflect and heal their grief. A place where those who grieve can continue and deepen their connection to the people they love on the other side. We often hear that when there is deep grief, there is great love; it is true. Creating this website and helping others ease their pain is where I choose to channel my grief. It is my way of making any sort of meaning from my beautiful daughter Emily dying. I believe it to be a calling that Emily guided me to, and I will live the rest of my life to make her proud.

Read about Wind Phones and how they work at mywindphone.com.

Find a Wind Phone in your location here.

Have a Wind Phone? Register the location of your phone here.

Visit internationaldoulalifemovement.com to learn more about doulas, or connect with others who are doing death doula work.

Register for IDLM’s FREE 2024 Birthday Bash Jan. 8 - 12, 2024 here.

If you’re interested in becoming a certified death doula through IDLM, click here.

Access all the courses that IDLM provides here.

See all the events that IDLM is offering by clicking here.

Get your set of Death Deck cards here! Use the code HOSPICE20 for 20% off your order.

Purchase the End of Life Deck for use with people with serious or terminal illness here.

Find The Death Deck on social media: Facebook Twitter (X) Instagram

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Follow The Heart of Hospice on Facebook, Instagram, and LinkedIn.

Connect with The Heart of Hospice podcast on The Whole Care Network, along with a host of other caregiving podcasts by clicking here.

The Hidden Value of Chaplains at End of Life

Fri, 24 Nov 2023 08:00:11 +0000

Chaplain Wes Moldogo is an advocate for integrating spiritual care into the care of patients, service members, and their families. As a chaplain for the military as well as hospital and hospice patients, Wes educates about the value chaplains bring to the care of people with life-limiting illness. 1 in 4 Medicare hospice patients is a US military veteran. That’s 25% of the patients who utilize the Medicare benefit to pay for their hospice care. Wes learned early how powerful listening can be, and how listening can be used to support people dealing with illness as well as their caregivers.

Wes educates about the differences between pastoral ministry and spiritual counseling (chaplaincy). So many misconceptions surround the work of a chaplain, even inside the hospice industry itself. Grief support, spiritual counseling, and bereavement support are all part of what a chaplain does. Chaplains support the personal faith beliefs and spirituality of the patient and the caregiver, even if those beliefs are different from what the chaplain believes. Chaplains are able to support any faith or spiritual belief systems. Adequate education is vital to ensuring that chaplains are providing care that focuses on the patient’s beliefs, and not the chaplain’s beliefs. Board certification and Clinical Pastoral Education (CPE) are critical to the success of a chaplain.

If you’re interested in education in Chaplaincy, visit the Spiritual Care Association website or the Board of Chaplaincy Certification, Inc.

Visit internationaldoulalifemovement.com to learn more about doulas, or connect with others who are doing death doula work.

Register for IDLM’s FREE 2024 Birthday Bash Jan. 8 - 12, 2024 here.

If you’re interested in becoming a certified death doula through IDLM, click here.

Access all the courses that IDLM provides here.

See all the events that IDLM is offering by clicking here.

Get your set of Death Deck cards here!

Use the code HOSPICE20 for 20% off your order!

Purchase the End of Life Deck for use with people with serious or terminal illness here.

Find The Death Deck on social media: Facebook Twitter (X) Instagram

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Follow The Heart of Hospice on Facebook, Instagram, and LinkedIn.

Connect with The Heart of Hospice podcast on The Whole Care Network, along with a host of other caregiving podcasts by clicking here.

Death Doulas are Expert Guides at End of Life

Fri, 17 Nov 2023 08:00:15 +0000

Death Doula Jill McClennen helps clients transform their fear of death and dying while they work to live life fully, eventually dying with a feeling of closure.

Whether it’s advance care plan conversations or supporting family members when a loved one is actively dying, death doulas provide expert guidance.

Jill McClennen is a certified death doula, a non-medical professional specially trained to provide holistic care for individuals in their final stages of life. She offers comprehensive support, preparation, and deep soul healing to her clients and their families, whether in person or through virtual sessions, as she works as a death doula and end-of-life coach.

Jill's journey into the world of death doula work began when she moved back to New Jersey from California to care for her 90-year-old grandmother during her final days. Faced with the challenges of her grandmother's impending passing, she felt confused and overwhelmed. She didn't know what to expect, and the process was unfamiliar to her. Today, Jill assists families in similar situations, helping them navigate the end-of-life journey with compassion and understanding.

In her virtual practice, Jill helps people prepare themselves and their loved ones for the end of life, offering guidance and emotional support, regardless of physical distance.

In addition to her role as a death doula, Jill is a trauma-sensitive yoga instructor. She also incorporates reiki and shamanic healing techniques to help clients address their fears surrounding death, cope with the dying process, and navigate their grief.

Jill is also the host of the "Seeing Death Clearly" podcast, available on all major podcast platforms. Through her podcast, she talks with guests and they share valuable insights and stories related to end-of-life matters, further extending her mission to promote understanding and compassion about this important stage of life.

Check out the Seeing Death Clearly podcast on your favorite podcast platform or endoflifeclarity.com.

Find all of Jill’s services at endoflifeclarity.com.

Connect with Jill on social media: Facebook Instagram

Get your set of Death Deck cards here!

Use the code HOSPICE20 for 20% off your order!

Purchase the End of Life Deck for use with people with serious or terminal illness here.

Find The Death Deck on social media: Facebook Twitter (X) Instagram

Visit internationaldoulalifemovement.com to learn more about doulas, or connect with others who are doing death doula work.

Register for IDLM’s FREE 2024 Birthday Bash Jan. 8 - 12, 2024 here.

If you’re interested in becoming a certified death doula through IDLM, click here.

Access all the courses that IDLM provides here.

See all the events that IDLM is offering by clicking here.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Follow The Heart of Hospice on Facebook, Instagram, and LinkedIn.

Connect with The Heart of Hospice podcast on The Whole Care Network, along with a host of other caregiving podcasts by clicking here.

Dignity Pajamas are a Great Choice to Provide Comfort and Dignity

Fri, 10 Nov 2023 08:00:14 +0000

Dignity Pajama designer Fran Goldberg used ingenuity to create pajamas for bedbound patients, and created meaning following the death of her parents. As a clothing designer, Fran knows design and fabrics. As a caregiver for both her parents at the end of their lives, she learned the importance of comfort, dignity, and convenience in pajamas. The designs of Dignity Pajamas include features that protect the skin and preserve the modesty of the wearer. When Fran saw a paid caregiver cut a t-shirt up the back for Fran’s mother to wear, she knew her mother would never choose something like that to wear. Fran set out to design something that a woman would choose to wear. Her designs feature beautiful fabrics and styles for women, and dignified designs for me. Fran also incorporated practical design features to help caregivers provide care. The pajamas help the wearer to feel proud of how they look and be comfortable around visitors. Fran Goldberg has created a wonderful legacy as a caregiver with Dignity Pajamas.

Purchase Dignity Pajamas for someone you love at dignitypajamas.com.

Read about Fran’s story here.

Check out Fran’s blog and resources here.

Read the beautiful story of hospice nurse Juli Boit’s work in a Kenyan hospice in her new book “Brave Love” at juliboit.com. All proceeds go to Living Room International, as they work to be a life-giving and transformative refuge for thousands of people all throughout Kenya.

Connect with Juli Boit and read more about her story at juliboit.com.

Get your set of Death Deck cards here!

Use the code HOSPICE20 for 20% off your order!

Purchase the End of Life Deck for use with people with serious or terminal illness here.

Connect with Death Deck co-creators Lisa Pahl and Lori Locicero at https://thedeathdeck.com/pages/about-us.

Find The Death Deck on social media: Facebook Twitter (X) Instagram

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Learning How To Use Music At The End Of Life

Fri, 03 Nov 2023 07:00:06 +0000

Bev Foster with Music Care by Room 217 is using beautiful music to create meaning at the end of life. Using her skills as a musician, Bev founded Room 217 to teach clinicians and caregivers about integrating music into the care experience.

Here’s what Bev says about her own personal experience: As a musician, the effects of what I do have always intrigued me. Using music in my personal caregiving experiences has compelled me to look farther and wider at its use in health care. My vision is that music care, in all its methods of delivery, be accessible to everyone.

Room 217 teaches that there are simple things to do at the end of life, even if you’re not a musician or can’t sing. Breathing in sync with someone who is at end of life can provide comfort and presence. Even humming a single note can be effective. It’s easy to adjust volume, rhythm, and pace. There is great power in these simple actions.

Monitoring the response to the music is key. Not every patient enjoys or is receptive to hearing any type of music, so it’s important to see he reacts. Turning away or becoming agitated might indicate that the music is causing increased stress or stimulation. Music interventions should always be customized to suit the individual’s needs.

You can find all the resources and courses offered by Music Care by Room 217 at musiccare.org.

Read Bev’s personal story and find her music at bevfoster.com.

Check Music Care by Room 217 on social media:

Facebook Twitter (X) LinkedIn YouTube

Learn about Music Care’s approach to using music as part of a caregiving experience here.

Get your set of Death Deck cards here!

Use the code HOSPICE20 for 20% off your order!

Purchase the End of Life Deck for use with people with serious or terminal illness here.

Connect with Death Deck co-creators Lisa Pahl and Lori Locicero at https://thedeathdeck.com/pages/about-us.

Find The Death Deck on social media: Facebook Twitter (X) Instagram

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Follow The Heart of Hospice on Facebook, Instagram, and LinkedIn.

Connect with The Heart of Hospice podcast on The Whole Care Network and other caregiving podcasts by clicking here.

What You Need to Know About Creating Connections in Dementia with Music

Fri, 27 Oct 2023 07:00:11 +0000

Tara Jenkins, founder of Harmony in Dementia, is connecting patients and caregivers with meaningful music one song at a time. As a Board Certified Music Therapist (MT-BC), Tara knows the power of music for reaching those patients dealing with Alzheimer’s and dementia. She knows it takes a team of people to care for someone with dementia, working in harmony to provide quality of life. That’s where the name of her company, Harmony in Dementia, comes in. Tara trains volunteers and caregivers to utilize music in care, and reap those benefits for patients. She teaches that music experiences aren’t universal for everyone, so being aware of the effects of music is very important.

To get started with someone to provide music, Tara recommends asking the patient (person!) what they like. Some people won’t be able to answer, so Tara teaches how to look at the person’s age, what music was popular during their younger years and what area they lived in. A person’s music collection (if you’re caring for them in the home) might tell a lot about the music they enjoy. Even seeing an album cover might connect with a memory. Responses can range from tears to clapping or singing along. It’s important that caregivers be aware of those responses. Music provides choice and expression for those who are dealing with issues related to dementia. Music therapists can help make sense of a patient’s response.

Find Harmony in Dementia at harmonyindementia.com.

Check out the services that Harmony in Dementia offers here.

Purchase a copy of Tara’s book Music, Memory, and Meaning: How to Effectively Use Music to Connect with Aging Loved Ones here.

Partner with National HME to provide medical equipment for your patients at nationalhme.com.

Looking for a copy of the Odonata Care Plan? Click here to purchase it for yourself or your care agency.

NEW** - the Odonata Care Plan is now available in SPANISH - purchase it here!!

Check out the free Care Video tutorials from Odonata founders and hospice nurses Nancy Heyerman and Brenda Kizzire here.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Follow The Heart of Hospice on Facebook, Instagram, and LinkedIn.

Connect with The Heart of Hospice podcast on The Whole Care Network, along with a host of other caregiving podcasts by clicking here.

Death Doulas Offer Powerful Support During Death and Bereavement

Fri, 20 Oct 2023 07:00:11 +0000

An End of Life Doula is a great source of support for someone as they die, and for families after the death has occurred. Anna Adams, End of Life Doula and founder of International Doula Life Movement believes everyone should have a doula. Through vigils, education, rituals, and compassionate presence, doulas help dispel the fear that can come during a death. When someone is dying, an End of Life Doula can offer individualized support that’s a good fit for the patient and caregiver. While the dying process can be very similar for most people, each person’s labor of dying is a unique set of processes and symptoms. Doulas teach families and caregivers what to expect when someone is dying, and how to provide care to ease symptoms that might be distressing. When a family or patient wants someone knowledgeable at the bedside, a doula might provide vigil care. A vigil involves the doula being present and watchful while the death is occurring. The doula’s role doesn’t stop there; there’s additional grief support after the death has occurred.

Want to know more about doulas, or connect with others who are doing death doula work? Visit internationaldoulalifemovement.com.

If you’re interested in becoming a certified death doula through IDLM, click here.

Access all the courses that IDLM provides here.

See all the events that IDLM is offering by clicking here.

Looking for a copy of the Odonata Care Plan? Click here to purchase it for yourself or your care agency.

NEW** - the Odonata Care Plan is now available in SPANISH - purchase it here!!

Check out the free Care Video tutorials from Odonata founders and hospice nurses Nancy Heyerman and Brenda Kizzire here.

Partner with National HME to provide medical equipment for your patients at nationalhme.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Follow The Heart of Hospice on Facebook, Instagram, and LinkedIn.

Connect with The Heart of Hospice podcast on The Whole Care Network, along with a host of other caregiving podcasts by clicking here.

End of Life Doulas Specialize in Advance Care Planning

Fri, 13 Oct 2023 07:00:17 +0000

End of Life Doulas are experts in managing advance care planning conversations. EOL Doula Pam Carter of International Doula Life Movement knows how to get those discussions going. As an EOL Doula, Pam works with people with serious illness and their families to determine their end of life wishes. Choices are often made by weighing benefit vs burden. That means considering questions like “What will I get out of this? Is this what I want to do?”, “Is this something that contributes to my quality of life?”, or “If I spend my time like this, what will it take from me?”, and “What will I have to give up for this (energy, time with family, peace, comfort, respiratory comfort, even money)?”

Pam believes advance care planning should consider all aspects of how we live. Further treatment for an existing illness should definitely be included. Other things to talk about for your ACP is where you want to be cared for towards the end of your life, and who you’d like to take care of you.

Here are some other things that could be included in your Advance Care Plan:

Having visits from a spiritual counselor (chaplain)
Including visitors or having privacy
Returning to the hospital for accidents or injuries
Treatment for infections
How much information you want about your health status
Who will be your healthcare decision maker (Medical Power of Attorney/Healthcare Proxy)
Funeral/memorial service planning
Tradition funeral care, embalming, green burial, or human composting
Using medications that will cause drowsiness or avoiding sedation
Body/organ donation (whole body donation, forensic anthropology donation)
Back-up plan if body donation is disqualified
Rituals or ceremonies

That’s only the beginning of the many things that can be part of an advance care plan. Those ACP conversations should happen early and often. It’s hard to imagine all the “what ifs”, but it’s valuable to talk about different scenarios that seem possible for your life or situation.

Having an end of life or death doula to facilitate those ACP discussions can help!

Want to know more about doulas, or connect with others who are doing death doula work? Visit internationaldoulalifemovement.com.

If you’re interested in becoming a certified death doula through IDLM, click here.

Access all the courses that IDLM provides here.

See all the events that IDLM is offering by clicking here.

Looking for a copy of the Odonata Care Plan? Click here to purchase it for yourself or your care agency.

NEW** - the Odonata Care Plan is now available in SPANISH - purchase it here!!

Check out the free Care Video tutorials from Odonata founders and hospice nurses Nancy Heyerman and Brenda Kizzire here.

Partner with National HME to provide medical equipment for your patients at nationalhme.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Follow The Heart of Hospice on Facebook, Instagram, and LinkedIn.

Connect with The Heart of Hospice podcast on The Whole Care Network and other caregiving podcasts by clicking here.

Get to Know the Special Work of a Death Doula

Fri, 06 Oct 2023 07:00:13 +0000

Anna Adams, death doula and founder of International Doula Life Movement, is educating her community about how doulas support patients and families dealing with serious illness. She’s been a volunteer, a CNA, and now she’s working with hospice agencies as a death doula. Doulas bring a special set of skills to the care of hospice patients. They support, educate, and guide patients (and caregivers) through the experiences at the end of life. Doulas are also part of advance care planning conversations.

Exploring spiritual beliefs and rituals are part of doula work as well. Doulas help those who are dying to identify what they believe and engage in those beliefs the way the patient wants. In support of the family, doulas might also conduct rituals while someone is dying, or even after death. Any support that’s provided is guided by the patient or family. Doulas are flexible in how they provide care.

Want to know more about doulas, or connect with others who are doing death doula work? Visit internationaldoulalifemovement.com.

If you’re interested in becoming a certified death doula through IDLM, click here.

Access all the courses that IDLM provides here.

See all the events that IDLM is offering by clicking here.

Looking for a copy of the Odonata Care Plan? Click here to purchase it for yourself or your care agency.

NEW** - the Odonata Care Plan is now available in SPANISH - purchase it here!!

Check out the free Care Video tutorials from Odonata founders and hospice nurses Nancy Heyerman and Brenda Kizzire here.

Partner with National HME to provide medical equipment for your patients at nationalhme.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Follow The Heart of Hospice on Facebook, Instagram, and LinkedIn.

Connect with The Heart of Hospice podcast on The Whole Care Network, along with a host of other caregiving podcasts by clicking here.

How To Create A Caregiver Team With The Sisterhood Of Care

Fri, 29 Sep 2023 07:00:11 +0000

The Sisterhood of Care is using their superpowers to create a caregiving team. Their podcast, Confessions of a Reluctant Caregiver, is a safe space for anyone who has a role as a caregiver for someone they love.

The three sisters - JJ, Natalie, and Emilie - have created a caregiver village to support their mom, who lives with Parkinson’s disease. The journey hasn’t been easy. They’ve learned a lot about themselves, and how to bring their best skills to the care of their mom. As caregivers, the women know the value of humor and offer each other grace. Each sister has learned tough lessons about what it’s like to negotiate the healthcare system, advocate for a parent, and find appropriate housing for someone who’s dependent for daily care. JJ, Natalie, and Emilie have a heart for service, and it shines through in their caregiving journey.

You can connect with the Sisterhood of Care on their website confessionsofareluctantcaregiver.com.

Listen to the Confessions of a Reluctant Care podcast here.

Read more about the Sisterhood’s story here.

Join the Sisterhood of Care Advantage Club here. The Sisterhood Advantage Club is the go-to place for savings and recommendations on products and services needed for your caregiving journey. The sisters have negotiated discounted rates to save you money and improve your quality of life. From oil changes to insurance, movie tickets to hotels, you’ll find everything you need and more!

Looking for a copy of the Odonata Care Plan? Click here to purchase it for yourself or your care agency.

NEW** - the Odonata Care Plan is now available in SPANISH - purchase it here!!

Check out the free Care Video tutorials from Odonata founders and hospice nurses Nancy Heyerman and Brenda Kizzire here.

Partner with National HME to provide medical equipment for your patients at nationalhme.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Follow The Heart of Hospice on Facebook, Instagram, and LinkedIn.

Connect with The Heart of Hospice podcast on The Whole Care Network, along with a host of other caregiving podcasts by clicking here.

What You Need To Know About Caregiving: A Conversation With Amy Goyer Of AARP

Fri, 22 Sep 2023 07:00:12 +0000

Amy Goyer knows a few things about caregiving. Her journey as a family caregiver began early in her 20’s, caring for great-grandparents, and then each generation after. She holds a bachelor's degree in music therapy, and has held multiple positions of advocacy for older adults, children, and families. Amy is also a Certified Aging-in-Place Specialist (CAPS). Through the years she’s balanced caregiving responsibilities and roles with her personal and professional life. Amy currently serves as AARP’s national Family and Caregiving Expert.

Amy’s learned lessons about caring for others and caring for herself at the same time. Caregiving responsibilities prompted her to change jobs, use her own money to supplement her parents’ care, and to move closer to her family to facilitate their caregiving systems. Amy’s sharing what she’s learned with unpaid family caregivers across the U.S. through her books, blog, and public speaking.

You can connect with Amy at www.amygoyer.com.

Join AARP Family Caregivers Discussion Group here.

Find Amy on LinkedIn Twitter Facebook

Purchase Amy’s books Juggling Work, Life, and Caregiving and Things To Do Now That You’re… a Grandparent here.

Looking for a copy of the Odonata Care Plan? Click here to purchase it for yourself or your care agency.

NEW** - the Odonata Care Plan is now available in SPANISH - purchase it here!!

Check out the free Care Video tutorials from Odonata founders and hospice nurses Nancy Heyerman and Brenda Kizzire here.

Partner with National HME to provide medical equipment for your patients at nationalhme.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Follow The Heart of Hospice on Facebook, Instagram, and LinkedIn.

Connect with The Heart of Hospice podcast on The Whole Care Network, along with a host of other caregiving podcasts by clicking here.

Making End of Life Care Better with Dr. Sammy Winemaker, Epi. 176

Fri, 15 Sep 2023 07:00:11 +0000

Dr. Sammy Winemaker is starting a social healthcare revolution with The Waiting Room Revolution podcast. On The Waiting Room Revolution podcast, Sammy is having insightful conversations about palliative care, advance care planning, and change-making for end-of-life care with co-host Dr. Hsien Seow. Sammy is an Associate Clinical Professor, Department of Family Medicine, in the Division of Palliative Care at McMaster University. She teaches palliative care to healthcare professionals.

Here’s what The Waiting Room Revolution website says about their mission: They started the Waiting Room Revolution movement because they wanted to improve the patient and family illness experience. They want to build a community to share deeply human stories about caring for others. Through interviews with experts, clinicians, patients, and caregivers, they are harnessing the advice of those with lived experience to better prepare those who are just starting their caring journey.

They cannot do it alone. Individuals, families and communities have to be empowered as the catalyst for change. They believe we have so much to learn from one another.

As they say in The Waiting Room Revolution, Together, we can move from being “in the dark” to being “in the know.

Connect with The Waiting Room Revolution with founders Dr. Sammy Winemaker and Dr. Hsien Seow at waitingroomrevolution.com.

Listen to The Waiting Room Revolution podcast here.

Pre-order your copy of Hope for the Best, Plan for the Rest by Dr. Sammy Winemaker and Dr. Hsien Seow by clicking here. Find it on Amazon, Barnes & Noble, IndieBound, or Indigo.

Looking for a copy of the Odonata Care Plan? Click here to purchase it for yourself or your care agency.

NEW** - the Odonata Care Plan is now available in SPANISH - purchase it here!!

Check out the free Care Video tutorials from Odonata founders and hospice nurses Nancy Heyerman and Brenda Kizzire here.

Partner with National HME to provide medical equipment for your patients at nationalhme.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Follow The Heart of Hospice on Facebook, Instagram, and LinkedIn.

Connect with The Heart of Hospice podcast on The Whole Care Network, along with a host of other caregiving podcasts by clicking here.

How to Use Five Wishes to Make Your End of Life Wishes Heard

Fri, 08 Sep 2023 07:00:11 +0000

Joanne Eason, President of Five Wishes, knows it’s important to document our end of life wishes so our voices are heard when we can’t speak for ourselves. Five Wishes was established over 25 years ago through a series of listening tours, asking people what was important to them. From those results, the Five Wishes document was formed with guidance from the American Bar Association and other palliative care providers across the U.S. It's designed for individuals to use when sitting down with their families, a tool for talking about what’s important to the person.

Five Wishes has incorporated three questions into their Five Wishes document: How comfortable do you want to be? How do you want to be treated? What do you want those around you to know about you? Those answers are the voice of the patient. Where health systems use certain forms to document decision-makers and specific medical directives, Five Wishes is about not just the wishes of the person, but who they are.

It can be used like a workbook and comes in both digital and paper forms. The workbook is a living document and should be revisited as healthcare status changes or your spokesperson changes.

Five Wishes can also be utilized by hospice agencies, healthcare organizations, and businesses. It’s legal in almost every state in the U.S. so it’s a very flexible document. If you live in one of only four states (New Hampshire, Kansas, Ohio, or Texas) you can still use the Five Wishes Paper but may need to take an extra step. Five Wishes is available in 30 languages, as well as Braille.

Find out more about Five Wishes at fivewishes.org.

Follow Five Wishes on Facebook, YouTube, IG, and Twitter.

Check out Five Wishes for your personal use here.

Get information about utilizing Five Wishes for your patients or employees by clicking here.

Visit the Five Wishes store here.

Check out the free webinars from Five Wishes here.

Looking for a copy of the Odonata Care Plan? Click here to purchase it for yourself or your care agency.

NEW** - the Odonata Care Plan is now available in SPANISH - purchase it here!!

Check out the free Care Video tutorials from Odonata founders and hospice nurses Nancy Heyerman and Brenda Kizzire here.

Partner with National HME to provide medical equipment for your patients at nationalhme.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Follow The Heart of Hospice on Facebook, Instagram, and LinkedIn.

Connect with The Heart of Hospice podcast on The Whole Care Network, along with a host of other caregiving podcasts by clicking here.

Home Funeral Director Glenda Villegas Educates About Home Funerals

Fri, 01 Sep 2023 07:00:11 +0000

Home funeral director Glenda Villegas helps families to create meaning with home funerals.

After learning valuable lessons about what it’s like to plan a funeral for the unexpected loss of a loved one, Glenda started a career working in the funeral industry. She first worked in pre-need cemetery sales, then moved on to family services where she learned how to serve families at death. During these years, Glenda learned the funeral industry inside and out. She realized her path led to providing home funerals for families after a death. Her desire to serve families through education about laws related to death care, combined with the option of a home funeral experience, led her to become a licensed funeral director. Today Glenda teaches families how to care for their dead, helping to facilitate the grief process by creating meaning with home funerals.

Connect with Glenda Villegas and Thresholds Home and Family Directed Funerals at thresholdsfamilydirectedfunerals.com.

Contact Glenda:

Ph. (619) 719-1156

Email: vglenda79@gmail.com

Looking for a copy of the Odonata Care Plan? Click here to purchase it for yourself or your care agency.

NEW** - the Odonata Care Plan is now available in SPANISH - purchase it here!!

Check out the free Care Video tutorials from Odonata founders and hospice nurses Nancy Heyerman and Brenda Kizzire here.

Partner with National HME to provide medical equipment for your patients at nationalhme.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Follow The Heart of Hospice on Facebook, Instagram, and LinkedIn.

Connect with The Heart of Hospice podcast on The Whole Care Network, along with a host of other caregiving podcasts by clicking here.

Sociavi is a Revolutionary Device to Keep Older Adults Connected

Fri, 25 Aug 2023 07:00:13 +0000

Sociavi founder Paula Muller realized the need to keep her mother connected with all the activities of her family living internationally. That need planted the seed for the Sociavi device. #senioradult #cognitivedecline #dementiacaregiver

https://theheartofhospice.libsyn.com/sociavi-is-a-revolutionary-device-keeping-older-adults-connected

The name Sociavi comes from the Latin word “share” and “unite”, demonstrating their mission of keeping seniors and their families closer together despite cognitive decline. Certified in Alzheimer’s and Dementia Care, Paula used her knowledge of cognitive decline to design the features of the Sociavi device. She refers to it as a “picture frame”, avoiding a technology label that might be intimidating to users.

The Sociavi device fosters a feeling of accomplishment as well as keeping the user connected with family and friends. Through simple games and activities, the user has choices that are customized to someone who needs simplicity. It’s super easy to start using the device, no password or login required. Paula ensured the Sociavi device responds easily to touch and accommodates for hearing loss. The screens are clear, with only one activity displayed at one time. Photos and video calls are a wonderful additional feature. To place a video call, the user simply has to touch the photograph of whomever they want to call. The network is private and encrypted, so spam and robo calls are eliminated. Paula’s in-laws consider a video call a “visit” from a family member.

Users with cognitive decline can utilize many of the functions and games of the device. If the user is nonverbal, Sociavi features a communication board with icons that can be utilized to communicate needs and thoughts. There are also alarms that serve as reminders for medications or tasks, keeping the administrator of the device notified of whether their loved one has turned the alarm off. The only things needed in the home for the Sociavi device are power and internet connectivity. Simple set up, simple to use, Sociavi is a great device for any adult with cognitive decline, helping them to stay active mentally and connected with loved ones.

Find out more details about the Sociavi device at sociavi.com.

Read more about the Brain Fitness functions of Sociavi here.

Purchase a Sociavi device for someone you love by clicking here.

Looking for a copy of the Odonata Care Plan? Click here to purchase it for yourself or your care agency.

NEW** - the Odonata Care Plan is now available in SPANISH - purchase it here!!

Check out the free Care Video tutorials from Odonata founders and hospice nurses Nancy Heyerman and Brenda Kizzire here.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Follow The Heart of Hospice on Facebook, Instagram, and LinkedIn.

Connect with The Heart of Hospice podcast on The Whole Care Network, along with a host of other caregiving podcasts by clicking here.

My Modern Tribute Helps You Tell Your Life Story

Fri, 18 Aug 2023 07:00:17 +0000

Today’s guest is Sarah Turner, CEO and founder of My Modern Tribute. They’re writing life tributes that provide opportunities to celebrate and honor a life while we’re still alive.

Over the years, Sarah learned that we all have stories to share. We’re all interconnected by a shared human story. Sarah believes that everyone deserves a space to express their feelings, and understands the importance of empathy and warmth.

My Modern Tribute offers writing services for anyone looking to have a written tribute, featuring any information about their lives that clients want to share. Achievements, impact, adventures, and experiences - a Tribute captures all the history of a life.

Partnering with My Modern Tribute is an easy process. Each My Modern Tribute client completes the Tribute Questionnaire. This consists of 10 questions to gather the nuts and bolts of your life. My Modern Tribute will then assign you to a writer that best matches your personality and coordinate a date and time for your client interview. The assigned writer connects with you over Zoom or by phone for an interview. The first draft of your Tribute is emailed to you within 10 business days. Up to two edits are offered before the final draft is sent. The final draft is the client’s sole property to do with as you wish.

Clients can share a Tribute, keep it for themselves, or use it as a personalized eulogy during a funeral or memorial service. It’s entirely up to the client to decide how to use it.

Through My Modern Tribute, Sarah harnessed her life experiences and her passion for people to create an invaluable service to clients while providing fulfilling work to professional writers. My Modern Tribute is helping others explore their mortality.

Partner with My Modern Tribute to have your tribute writing at mymoderntribute.com.

Looking for a copy of the Odonata Care Plan? Click here to purchase it for yourself or your care agency.

Check out the free Care Video tutorials from Odonata founders and hospice nurses Nancy Heyerman and Brenda Kizzire here.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Follow The Heart of Hospice on Facebook, Instagram, and LinkedIn.

Connect with The Heart of Hospice podcast on The Whole Care Network, along with a host of other caregiving podcasts by clicking here.

Melanie McMillion Finds Meaning After Decades of Working in Hospice

Fri, 11 Aug 2023 07:00:16 +0000

Melanie McMillion has found meaning in her decades working as a hospice counselor and community educator. Melanie is a Licensed Mental Health Counselor, and has worn a lot of hats as a hospice worker. She worked as the Director of Psychosocial Services, leading a 45-person interdisciplinary team of social workers, counselors, and spiritual care counselors to coordinate psychosocial, spiritual, and bereavement services. As a hospice worker, she was an advocate for her team. Educating her community became Melanie’s focus later in her career. Her work in hospice gave Melanie an understanding of how compassion fatigue affects each member of the team. The unique structure of a hospice team enables each member to support the others to combat the effects of compassion fatigue. Melanie has found meaning in the decades she has spent working in hospice care.

Find all the services and products Odonata Care offers at thecareplan.net.

Order your copies of The Care Plan here.

Check out the free video tutorials from Nancy Heyerman and Brenda Kizzire here.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Follow The Heart of Hospice on Facebook, Instagram, and LinkedIn.

Connect with The Heart of Hospice podcast on The Whole Care Network, along with a host of other caregiving podcasts by clicking here.

Share Your Life Story With the Legacy Letters Journal

Fri, 04 Aug 2023 07:00:12 +0000

The Legacy Letters Journal is a passion project that created meaning for Kera Sanchez after losing her mom.

Here’s how Kera describes the mission of the Journal. “This guided journal is designed to help individuals create a personal legacy for their loved ones to cherish after their time is up. The journal prompts users to reflect on their life experiences, values, and beliefs, and to record these thoughts and memories in writing.”

The Legacy Letters Journal contains thoughtful prompts to help the writer record messages to loved ones to be read at life milestones, like weddings and graduations. It doesn’t have to be completed at one sitting - it might be overwhelming, and our perspectives change as we experience life. Some of the prompts might not be appropriate for every writer, either. It’s ok to write only in the topics that speak to you. It’s a great way to leave a legacy and tell your stories.

As Kera says - write that love down.

Read more about Kera Sanchez and how she created the Legacy Letters Journal at legacylettersjournal.com.

Find Legacy Letters Journal on Instagram and Facebook.

Buy your copy of the Legacy Letters Journal on Amazon.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Navigating Death with Gabby Jimenez of The Hospice Heart, Episode 169

Fri, 28 Jul 2023 07:00:19 +0000

Hospice nurse and EOL doula Gabrielle “Gabby” Jimenez of The Hospice Heart talks about navigating a complicated death, managing grief, and finding your way through the most difficult losses. As an end of life doula, nurse, educator, and author, Gabby has guided many families. She says "Meet them where they are, not where we want them to be". End of life workers strive to support the patient and caregivers in the ways they need during what can be a confusing time. Fear, family dynamics, and grief complicate the situation. Gabby teaches that every griever goes through grief in a different way. It’s important that we allow each other to grieve in their own way. When we can only see our own grief, we need to stop for a minute and remember we’re all going through the same thing.

Concerns about medications are often a big issue for caregivers during end of life care. Pain and symptom management is an important part of hospice. Gabby teaches that disease is what the patient is dying from, and the meds are brought in to manage symptoms - not to end the life. Hospice workers are there to validate the concerns of the caregiver, to educate them, and to understand the caregiver’s perspective.

You can connect with Gabby Jimenez on The Hospice Heart Facebook Page and her website, thehospiceheart.net.

Gabby Jimenez has wonderful books to guide anyone needing information about death and dying - purchase your copies here.

Soft Landing

What Would Gabby Say?

The Hospice Heart

At The Bedside

And her newest book - End of Life Tips

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Follow The Heart of Hospice on Facebook, Instagram, and LinkedIn.

Medical Equipment is Important for the Comfort of the Hospice Patient, Episode 168

Fri, 21 Jul 2023 07:00:14 +0000

Chris Magliocca of National HME knows providing medical equipment for hospice patients is all about service, empathy and quality of life. Part of the service provided by hospice care is what’s called DME, Durable Medical Equipment. DME includes items like wheelchairs, walkers, canes, oxygen, hospital beds, Hoyer lifts, bath equipment, and other pieces of equipment. While DME is 10% of the internal cost of a hospice patient for the agency, it means so much more to the patient and caregiver. Patients at end of life have access to any or all of the equipment the agency covers, depending on what’s needed. Medical equipment companies furnish that equipment so patients and caregivers have enhanced quality of life, stay safe, and are as mobile as possible. Chris had his first experience with hospice when his grandfather was terminally ill. He was fascinated by the service and equipment. After serving in the military, he started working with an HME company. Chris has worked his way up through National HME, starting as a delivery technician. He now serves as Senior Vice President of Business Development. Chris knows empathy training is critical to maintaining high quality care when providing equipment for seriously ill and dying patients.

If your hospice agency is interested in partnering with National HME, connect with them at nationalhme.com.

Connect with National HME on LinkedIn, Facebook, and Instagram.

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Follow The Heart of Hospice on Facebook, Instagram, and LinkedIn.

Connect with The Heart of Hospice podcast on The Whole Care Network, along with a host of other caregiving podcasts by clicking here.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

GrandPad Brings Quality of Life to Super Seniors, Episode 167

Fri, 14 Jul 2023 07:00:15 +0000

GrandPad founders Scott and Isaac Lien recognize how important it is to make older senior adults feel confident and stay connected. Scott’s 80-year old mom was easily frustrated by technology, sharing with him that she felt stupid trying to use online video chat and social media sites. The father and son team founded a company and created a device that provides a myriad of ways to support older adults. While the tech might be designed by 20-somethings, the designs of GrandPad are tested and approved by GrandPad’s group of senior advisors.

It’s more than a product. Scott and Isaac foster a culture of empathy at Grandpad. Each staff member at GrandPad is required to have a GrandPad user in their lives, and to stay connected with them. The importance of relationships between different age groups is at the heart of their work.

New features on the GrandPad include multiplayer games, health monitoring, and telehealth partnering with medical providers. One great new feature is the Moods app, which provides calming scenes and music to promote sleep and relaxation.

A GrandPad subscription comes with its own 4G LTE, so the device doesn’t need wifi. Additional features include 24/7, one-on-one support from a live person and a secure network of connections that shields the user from scammers. GrandPad was born from the idea that older adults need to stay safely connected with loved ones. The device has security and privacy features that don't come with other devices.

Get a GrandPad for someone you love at grandpad.net.

Talk with the team about partnering your healthcare organization or facility with GrandPad at grandpad.biz.

Participate in a free webinar and get 10% off your subscription by clicking here.

Read about GrandPad’s team of GrandAdvisors here.

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Follow The Heart of Hospice on Facebook, Instagram, and LinkedIn.

Connect with The Heart of Hospice podcast on The Whole Care Network and other caregiving podcasts by clicking here.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com).

Leilani Maxera Shares How to Plan for a Good Death, Episode 166

Fri, 07 Jul 2023 07:00:11 +0000

The death of Leilani Maxera’s grandmother changed her, propelling her into a career path she hadn’t predicted. Now she’s a social worker, a home funeral advocate, and a grief worker supporting families who have experienced Medical Aid in Dying.

Hospice was never offered to her grandmother, and this made Leilani an outspoken advocate for advance care planning and end of life care. She’s also a spokesperson for home funerals, and sits on the board of the National Home Funeral Alliance. Leilani provides capacity evaluations for people who are considering Medical Aid in Dying. Those evaluations are required by the state of Hawaii as part of the MAID process. She’s working to correct the misinformation out there about MAID and to reduce the stigma attached to a MAID death.

As the owner of Kaipuokaualoku in Hawaii, Leilani provides individual counseling, grief counseling, and grief support for individuals who have experienced Medical Aid in Dying with a loved one. A safe, nonjudgmental space to talk is important for someone who’s had a MAID loss.

Read more about Leilani and the services that she offers at Kaipuokaualoku at leilanimaxera.com.

Find information about Leilani’s Medical Aid in Dying Bereavement group here.

Connect with the National Home Funeral Alliance at homefuneralalliance.org.

Get your copy of the NHFA Home Funeral Guidebook (available on a pay-what-you-can basis) by clicking here.

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Follow The Heart of Hospice on Facebook, Instagram, and LinkedIn.

Connect with The Heart of Hospice podcast on The Whole Care Network, along with a host of other caregiving podcasts by clicking here.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

A Physician's Perspective of Death, Money, and Healthcare, Episode 165

Fri, 30 Jun 2023 07:00:00 +0000

Hospice physician and podcaster Jordan Grumet is sharing how his work with hospice patients creates deep conversations about end of life planning, money, and life. Dr. Grumet is currently an associate medical director at Journeycare Hospice. After years of blogging about financial independence and wellness, Jordan launched the Earn & Invest podcast in 2018. In 2019 he received the Plutus Award for Best New Personal Finance Podcast and was nominated in 2020 for Best Personal Finance Podcast of the year.

Jordan believes in having end of life conversations early and often. He’s seen the positive influence of those conversations in the lives and deaths of his patients. After losing his dad at an early age, Jordan noticed people didn’t know how to be with him and his family, or what to say to them. Jordan wanted the medical care he provided to align with his patients' end of life wishes, so he joined a hospice interdisciplinary team. He considers his real job to be supporting his fellow team members as they provide the moment-to-moment, bedside care.

Jordan endorses including financial discussions when we’re having conversations about healthcare needs in later life and when we’re approaching death. Caregivers are often dealing with money issues as well as the typical challenges of being a caregiver. Jordan’s podcast Earn and Invest deals with topics like focusing on retirement and determining the things that matter most.

You can win a copy of Jordan Grumet’s book Taking Stock: A Hospice Doctor’s Advice on Financial Independence, Building Wealth, and Living a Regret-Free Life! Here’s how: 1. Leave a review for The Heart of Hospice podcast on Apple podcasts. 2. Just scroll down to the bottom of our show page, select a star rating, and tap "Leave a Review". 3. Send an email to host@theheartofhospice to let us know you left a review. 4. If you’re one of the first 5 people to leave a review, you’ll receive a copy of Jordan’s book. 5. You’ll be notified by email that you’ve won, and we’ll ask for a mailing address. 6. We’ll mail the book to you - enjoy!!

Purchase a copy of Dr. Grumet’s book Taking Stock: A Hospice Doctor’s Advice on Financial Independence, Building Wealth, and Living a Regret-Free Life.

Amazon Barnes and Noble Bookshop BAM

Listen to Jordan Grumet’s podcast Earn and Invest here.

Visit Jordan’s website at jordangrumet.com.

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Follow The Heart of Hospice on Facebook, Instagram, and LinkedIn.

Connect with The Heart of Hospice podcast on The Whole Care Network, along with a host of other caregiving podcasts by clicking here.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

A Physician's Perspective of Death, Money, and Healthcare, Episode 165

Fri, 30 Jun 2023 02:00:13 +0000

Jordan believes in having end of life conversations early and often. He’s seen the positive influence of those conversations in the lives and deaths of his patients. After losing his dad at an early age, Jordan noticed people didn’t know how to be with him and his family, or what to say to them. Jordan wanted the medical care he provided to align with the end of life wishes of his patients, so he joined a hospice interdisciplinary team. He considers his real job to be supporting his fellow team members as they provide the moment-to-moment, bedside care.

Jordan endorses including financial discussions when we’re having conversations about healthcare needs in later life and when we’re approaching death. Caregivers are often dealing with money issues as well as the typical challenges of being a caregiver. Jordan’s podcast Earn and Invest deals with topics like focusing on retirement and determining the things that matter most.

You can win a copy of Jordan Grumet’s book Taking Stock: A Hospice Doctor’s Advice on Financial Independence, Building Wealth, and Living a Regret-Free Life! Here’s how: 1. Leave a review for The Heart of Hospice podcast on Apple podcasts. 2. Just scroll down to the bottom of our show page, select a star rating, and tap "Leave a Review". 3. Send an email to host@theheartofhospice to let us know you left a review. 4. If you’re one of the first 5 people to leave a review, you’ll receive a copy of Jordan’s book. 5. You’ll be notified by email that you’ve won, and we’ll ask for a mailing address. 6. We’ll mail the book to you - enjoy!!

Purchase a copy of Dr. Grumet’s book Taking Stock: A Hospice Doctor’s Advice on Financial Independence, Building Wealth, and Living a Regret-Free Life.

Amazon Barnes and Noble Bookshop BAM

Listen to Jordan Grumet’s podcast Earn and Invest here.

Visit Jordan’s website at jordangrumet.com.

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Follow The Heart of Hospice on Facebook, Instagram, and LinkedIn.

Connect with The Heart of Hospice podcast on The Whole Care Network, along with a host of other caregiving podcasts by clicking here.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Sue Ryan Understands the Challenges of a Caregiver's Journey, Episode 164

Fri, 23 Jun 2023 02:00:14 +0000

Sue Ryan has been walking a caregiver’s journey for 40 years. Now she’s teaching others how to thrive while caring for a loved one. Sue is the founder/owner of Sue Ryan Solutions, a company that offers guidance for non-professional caregivers, helping them to be confident. Caring for various loved ones through the years and now caring for her husband has taught Sue deeply valuable lessons about thriving while providing care. She knows what it’s like to be isolated, scared, and acting blindly. Since those early experiences, Sue has learned caregiver coping and hacks that she now shares with others through Sue Ryan Solutions. Her TEDx Wilmington talk “Ultimate Freedom - Unlocking the Power of Choice” is about massive acceptance and radical presence and what they allow you to do in your life. Sue believes it’s about not judging, so we’re open to potential and possibilities.

Visit Sue Ryan solutions at sueryan.solutions.

Book a Complimentary session with Sue here.

Join the Caregiver’s Journey Online Course here.

Access Sue Ryan’s caregiver resources by clicking here.

Watch Sue’s TEDx Talk here.

Connect with Sue on Facebook, LinkedIn, and Twitter.

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Follow The Heart of Hospice on Facebook, Instagram, and LinkedIn.

Connect with The Heart of Hospice podcast on The Whole Care Network, along with a host of other caregiving podcasts by clicking here.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Mi Alma Supports Grieving Families in Unique Ways, Episode 163

Fri, 16 Jun 2023 02:00:12 +0000

Mi Alma is helping grievers by bringing together friends, family, and coworkers to provide the help they need most. Co-founders Jordan and Scott Arogeti realized we’re not very good at supporting grievers. They’ve created a place that provides opportunities to record legacies through photos, videos, and memory sharing. It was important to Jordan and Scott that Mi Alma’s services provide a sense of intergenerational connection.

Mi Alma was also created with the purpose of making loss feel less lonely. Mi Alma’s Support Registry includes:

Funds: Crowdsource support for medical bills, funeral costs, and more.
Food: Direct supporters toward Mealtrain, meals, and grocery needs.
Volunteer: Organize lists of volunteers for tasks, to-dos, and in-person help.
Memories: Collect pictures and stories in one place

Mi Alma’s site provides one-stop shopping, allowing users to offer whatever support they’re able to give according to the specific needs of those who are grieving. In a time when we’re distanced and unsure of what to do when there’s a loss, Mi Alma offers grievers a place to communicate their customized needs. That includes meals, volunteer needs, financial assistance, and the sharing of memories. They’re supporting grievers by leading with empathy. Jordan’s Big Pop would be so proud.

Connect with Mi Alma’s services at mialma.com.

Start a Support Registry at Mi Alma by clicking here.

Find more grief resources at Mi Alma.

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Follow The Heart of Hospice on Facebook, Instagram, and LinkedIn.

Connect with The Heart of Hospice podcast on The Whole Care Network and other caregiving podcasts by clicking here.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Making End of Life Care Better with Dr. Ira Byock , Episode 162

Thu, 08 Jun 2023 02:05:05 +0000

Connect with Dr. Byock at irabyock.org.

Find and purchase Dr. Byock’s books, including The Four Things That Matter Most, by clicking here.

Read Dr. Byock’s STAT article Hospice Care Needs Saving here.

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Follow The Heart of Hospice on Facebook, Instagram, and LinkedIn.

Connect with The Heart of Hospice podcast on The Whole Care Network and other caregiving podcasts by clicking here.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Hospice is Making End of Life Care Better for Veterans, Episode 161

Fri, 02 Jun 2023 02:00:16 +0000

1 in 4 Medicare hospice patients is a military veteran. Frederick Health Hospice is going the extra mile to meet the unique needs of veterans at the end of life. While Frederick focuses on care, comfort, and hope, they also focus on the needs of U.S. veterans in their community. Executive director Carlos Graveran, an Army veteran himself, created a Hospice Veteran Liaison position to provide more robust care for military veterans in the Maryland community. Navy Veteran Eric Jorgensen serves in the Hospice Liaison position. As veterans, both Carlos and Eric understand the importance of recognizing the experiences of the patients and the needs of their caregivers. According to the Frederick Health Hospice website, the agency provides:

Providing information about state and VA benefits such as Aid and Attendance, pensions, cemeteries, monuments and military honors
Assistance in obtaining discharge documents, records, medals and awards
Recognition ceremony that includes presentation of a certificate of appreciation and veteran pin
Visits from veteran volunteers

The Veteran Liaison is critical in educating the hospice interdisciplinary team about the specific issues a veteran might be dealing with, including guilt, anger, PTSD, regret, and survivor’s guilt. With 25% of all Medicare hospice patients being military veterans, knowing how to provide compassionate and respectful care should be top priority for all hospice agencies in the U.S.

Connect with Frederick health Hospice at frederickhealthhospice.org.

Learn more about the We Honor Veterans program from NHPCO at wehonorveterans.org.

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Follow The Heart of Hospice on Facebook, Instagram, and LinkedIn.

Connect with The Heart of Hospice podcast on The Whole Care Network, along with a host of other caregiving podcasts by clicking here.

Find more podcast episodes from The Heart of Hospice at The Heart ofHospice Podcast (theheartofhospice.com)

Soaring Spirits Helps Widows Know They're Not Alone, Episode 160

Fri, 26 May 2023 02:00:12 +0000

Soaring Spirits International is built by widowed people to support widowed people. Michele Neff Hernandez built the non-profit organization she needed when her husband died unexpectedly, leaving her with a blended family of six kids to care for as she managed her own grief. Michele realized she needed to connect with others who reflected the same kind of grief and loss she was experiencing as a young widow. Now Soaring Spirits has expanded to include multiple projects, including Camp Widow, Widowed Pen Pals, and the You Are Not Alone Outreach. If you’re a hospice bereavement coordinator, Soaring Spirits is a fantastic resource for you to share with caregivers whose loved one has died in your agency’s care.

You can access all the programs of Soaring Spirits International at soaringspirits.org.

Interested in Camp Widow? Click here.

If you’d like to connect with Widowed Pen Pals, click here.

Facebook - https://www.facebook.com/SoaringSpiritsInternational

Instagram - https://www.instagram.com/soaringspiritsint/

YouTube - https://www.youtube.com/user/widowsvoice

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Follow The Heart of Hospice on Facebook, Instagram, and LinkedIn.

Connect with The Heart of Hospice podcast on The Whole Care Network, along with a host of other caregiving podcasts by clicking here.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Postal Service for the Dead Eases Grief Through Letters, Episode 159

Fri, 19 May 2023 02:00:08 +0000

Write a letter to someone you’ve lost, and send it to Postal Service for the Dead! End of life doula and artist Janelle Ketcher founded Postal Service for the Dead to be an ongoing, collective project where people send letters to anyone in their life who has died. People write letters to someone special to them who has died and send them to the Postal Service for the Dead. If the writer wants to keep the letter private, they leave the back of the envelope blank. If the intention of the writer is to share it with only the Postal Service team, they mark the back of the envelope with a heart. If the writer agrees to share the letter publicly, they draw a star on the backside of the envelope. All personal information is removed before the letters are shared on social media. Janelle has found great meaning in receiving and reading the letters. She gets excited just walking to the post office. To her, holding the letters that she is unable to open holds meaning and is a special act. In Postal Service for the Dead, people can find a safe space to share their grief and even find healing.

Check out Postal Service for the Dead here.

Buy your Postal Service for the Dead merch here!

Visit the Sleepy Sue website here.

Connect with Postal Service for the Dead on IG. Follow PSFTD on Facebook.

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Follow The Heart of Hospice on Facebook, Instagram, and LinkedIn.

Connect with The Heart of Hospice podcast on The Whole Care Network, along with a host of other caregiver podcasts by clicking here.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Death Doulas Work to Support the Dying, Episode 158

Fri, 12 May 2023 02:00:10 +0000

Death doulas Jo-Anne Haun and Karen Henderickson are bringing value to the care of people with serious illnesses. They’re the co-founders of Death Doula Network International (DDNI), a passionate community committed to connection, support & education for ANYONE interested in Death Literacy & Positivity.

As a team Jo-Anne and Karen are pragmatic and heart-centered Death Educators and facilitators, Licensed Willow EOL Educators™, speakers and end of life doulas.

With training in coaching, end of life, community death caring, conflict resolution and communications, this team has a passion for using the conversation around death as a pathway to growth and healing for individuals, communities, and the planet. Everything they do is designed to create an intimate, informative, and inspiring container for reflection, and personal action – making the “uncomfortable” comfortable when it comes to our shared mortality, living and dying.

Jo-Anne and Karen are working to dispel misinformation about the work that death doulas (also known at end of life doulas) do. Here’s what the DDNI website says about who they are. “We are practicing Death Doulas, EOL & Death Educators, and Planning Specialists. We have met with many Death Doulas, just like you and consistently hear your longing for an active death doula network focused on gathering like minds together, with a focused intention on building relationships, making personal connections, to grow yourselves, your knowledge, your work, and the Death Doula industry. More than just death education and learning, you want heartfelt connection and camaraderie. You want a true collective where we help each other to grow our relationships, our knowledge, our businesses and the industry.” Karen and Jo-Anne are educating healthcare workers about the role of the death doula, and supporting death doulas as they companion patients and their caregivers. Their passion and dedication show up in their work every day.

Read more about Death Doula Network International at ddnint.com.

Become a member of DDNI by clicking here.

Connect with Death Doula Network International on their social media.

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Email Jo-Anne Haun at jo-anne@ddnint.com.

Email Karen Hendrickson at karen@ddnint.com.

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

Connect with The Heart of Hospice podcast on The Whole Care Network, along with a host of other caregiver podcasts by clicking here.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Human Composting is the Burial Alternative of the Future, Episode 157

Fri, 05 May 2023 02:00:13 +0000

Today’s guest Katrina Spade is changing the landscape of death care as CEO/founder of Recompose, an organization offering human composting as an environmental-friendly alternative to traditional burial and cremation.

Katrina is the founder and CEO of Recompose, a public benefit corporation leading the transformation of the funeral industry. She’s the designer and inventor of a system that transforms the dead into soil (aka human composting). According to the Recompose website, Recompose became the first company in the world to offer the service in December of 2020. The process is now also legal in Oregon, Colorado, Vermont, California, and New York.

Recompose utilizes a natural process that nourishes the earth and regenerates the soil. The Recompose team has been carefully curated to provide empathy and respectful response for the eight to 12 weeks that a body is in their care. Recompose also offers a pre-planning program called Precompose. Human composting is an environmentally friendly and gentle way to care for the dead, and offers an opportunity to give back to the earth at the same time.

Investing in Recompose is now open to everyone during their Community Round to raise $5M. Learn more and invest in Recompose by clicking here.

Learn more about human composting at recompose.life.

Read about how Recompose works with you when a death occurs here.

Learn about the process of natural organic reduction that Recompose uses here.

Meet the Recompose team here.

Plan ahead with Precompose here.

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

Connect with The Heart of Hospice podcast on The Whole Care Network, along with a host of other caregiver podcasts by clicking here.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Hospice Nurses Created The Care Plan to Make Caregiving Easier, Episode 156

Fri, 28 Apr 2023 02:00:08 +0000

Hospice nurses Nancy Heyerman and Brenda Kizzire are on a mission to transform the end-of-life experience through education and support. They know what it takes to be a caregiver for someone with a serious illness. Between them Nancy and Brenda have over 40 years of hospice nursing experience. They’re The Hospice Queens! Like so many hospice nurses in the US, Brenda and Nancy have watched caregivers struggle with providing the best care at home. The two nurses designed the Care Plan booklet to support and educate hospice caregivers, as well as clinicians who were new to the hospice team. According to thecareplan.net, “the Care Plan was born out of the challenges experienced in supporting and educating hospice clients - especially the distressed calls, day and night, from anxious caregivers, family members, and patients asking questions many times over. The Care Plan effectively empowers patients and the care circle with this valuable information that can be accessed anytime, along with HOW-TO VIDEOS demonstrating personal care.”

The Odonata founders are passionate about supporting their colleagues and the caregiving community. Check out all the resources Odonata Care has to offer!

Find all the services and products Odonata Care offers at thecareplan.net.

Order your copies of The Care Plan here.

Check out the free video tutorials from Nancy Heyerman and Brenda Kizzire here.

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

Connect with The Heart of Hospice podcast on The Whole Care Network, along with a host of other caregiver podcasts by clicking here.

Cathy VandenHeuvel Brings Caregivers What They Need, Episode 155

Fri, 21 Apr 2023 02:00:18 +0000

Cathy VandenHeuvel, host of the Caregiver Cup podcast, is helping working women caregivers fill their cups. She’s got a lot of caregiving wisdom to share. Cathy and her siblings formed a caregiving team to care for both of their parents at the end of their lives. Drawing on their individual strengths, they managed both care experiences - one without hospice care and one in partnership with a hospice agency. As Cathy reflects back on the time she spent caring for her dad, she remembers important moments they shared. For her family, it was especially important to honor her dad’s wishes to die in a place that was meaningful for him. That location didn’t allow them to partner with a hospice agency. Cathy’s experience with her mom was just as meaningful, but very different. Hospice care supported the family as they navigated end stage cancer. The end of life journeys of her parents were very different, and Cathy sings the praises of having a hospice team to help. As host of the Caregiver Cup podcast, Cathy is teaching other caregivers what she learned. She also provides personal support in Caregiver Cup Circles. The Circles help to reduce isolation and create community for other unpaid caregivers. Cathy’s approach is to “gather together with other women caregivers who are experiencing similar challenges, struggles and emotions”. She knows it’s important that caregivers know they’re not going through a caregiving experience alone.

Connect with Cathy VandenHeuvel at cathylvan.com.

Listen to the Caregiver Cup podcast here.

Join a Caregiver Cup Circle here.

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

Connect with The Heart of Hospice podcast on The Whole Care Network, along with a host of other caregiver podcasts by clicking here.

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Nathan Kottkamp is the Founder of National Healthcare Decisions Day, Episode 154

Fri, 14 Apr 2023 02:00:14 +0000

My guest Nathan Kottkamp is the founder and chair of National Healthcare Decisions, which highlights the importance of advance care planning. National Healthcare Decisions Day (NHDD) is an annual day recognized as a day to talk about advance care planning. My guest Nathan Kottkamp is the founder and chair of National Healthcare Decisions, which highlights the importance of advance care planning. He’s actively engaged in addressing complex public health issues. He is also a member of the Advance Directives Task Force Committee of the Supreme Court of Virginia Commission on Mental Health Law Reform, and a member of the Legislative Committee of the Central Virginia Overdose Working Group. Nathan also serves on the Williams Mullen Diversity and Inclusion and well-being committees.

Nathan is a prolific writer and regular speaker on a wide array of legal and ethics topics, including HIPAA, digital health and ransomware.

Find out more about National Healthcare Decisions on The Conversation Project website.

Complete your own advance care planning with resources from The Conversation Project.

Access resources to supportNational Healthcare Decisions Day activities in your community here.

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

Connect with The Heart of Hospice podcast on The Whole Care Network, along with a host of other caregiver podcasts by clicking here.

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Elizabeth Miller Shares How to be a Happy, Healthy Caregiver, Episode 153

Fri, 07 Apr 2023 02:00:22 +0000

Certified Caregiver Consultant Elizabeth Miller is helping other caregivers figure out how to stay healthy while juggling caregiving responsibilities. Elizabeth describes herself as a life-long caregiver, a sandwich caregiver, as well as a hands-on and remote caregiver. During the years she spent caring for her parents, Elizabeth learned her own caregiving style. She’s a huge fan of proactive self care - don’t wait for the crisis to hit and the oxygen mask to drop. Elizabeth’s family pulled together to take care of her mom and dad, each of them contributing to the caregiving according to their strengths. She knows the value of caregiving support by employers as well, and speaks to companies often about the impact of caregiving on their workforce. It takes intention to be a great employee and be a great caregiver - and be happy and healthy as well. Nobody knows that better than Elizabeth Miller.

Connect with Elizabeth Miller’s caregiving consulting services here.

Listen to the Happy Healthy Caregiver podcast here.

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

Connect with The Heart of Hospice podcast on The Whole Care Network, along with a host of other caregiver podcasts by clicking here.

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Savina Makalena is a Caregiver for Caregivers, Episode 152

Fri, 31 Mar 2023 02:00:21 +0000

Podcaster, caregiver, and advocate Savina Makalena is sharing what she’s learned as a family caregiver. Savina is the host of the Caring Caregiver podcast and a personal caregiver for her mom. Savy is the Chief Executive Officer and Founder of Gimme A Break, a non-profit organization whose mission is to care for caregivers by giving them an emotional and physical break as well as resources for their continued well-being. As a lifetime caregiver she has recognized the need to support all caregivers worldwide and has made this her life’s mission. Savy is currently the caregiver for her mom who is on hospice care. As the daughter of a hospice patient, Savy is an advocate and part of her mom’s healthcare team. She’ll tell you communicating is the key to getting the best care. She’s telling her caregiving story with honesty, grit, and transparency.

Check out the Caring Caregiver podcast at caringcaregivershow.com.

Connect with Savy and Gimme a Break at gab808.org.

Get your subscription to the Givers Guides online magazine at giversguides.com.

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

Connect with The Heart of Hospice podcast on The Whole Care Network, along with a host of other caregiver podcasts by clicking here.

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Rupert Callender is the Radical Undertaker and Green Burial Expert, Episode 151

Fri, 24 Mar 2023 02:00:22 +0000

Rupert Callender identifies as a radical undertaker. He’s changing funeral services, one personal experience at a time. Rupert was moved to become an undertaker through his experience of bereavement and its aftermath. He spent much of his childhood in the hospice where his mother worked, and the caring humanistic philosophy of the hospice movement is central to his work. He opened The Green Funeral Company with Claire in 2000 and the company is now among the country’s best-known eco-friendly funeral directors. In 2012, they won Joint Best Funeral Director at the first Good Funeral Awards and were described as ‘The best undertakers of all time, by a country mile’ by Good Funeral Guide author, Charles Cowling. Ru and Claire spoke at TEDx Totnes on death, grief, ritual and radical funerals. In 2021, Claire left the company and Ru continues with a new colleague.

Callender, Phillips, Cauty & Drummond: Undertakers to the Underworld was established as a partnership between The Green Funeral Company and The Justified Ancients of Mu Mu (KLF) in 2017. Find out more at: www.thegreenfuneralcompany.co.uk and follow Ru on Twitter @wayswithweirds and RuCallender.com

You can watch Rupert's TEDx Totness talk here.

Buy your copy of What Remains: Life, Death, Ritual and the Human Art of Undertaking here:

Chelsea Green Publishing Amazon

Find more information about hospice philosophy, end-of-life care, and self-care for both personal and professional caregivers here.

Connect with The Heart of Hospice podcast on The Whole Care Network and other caregiver podcasts by clicking here.

Chris MacLellan Makes Meaning From His Caregiving Journey, Episode 150

Fri, 17 Mar 2023 02:00:20 +0000

Chris MacLellan is making meaning from his experience as the primary caregiver for his life partner Richard. Chris and Richard’s story was featured in the 2015 Pulitzer Prize-nominated 3-part story, “In Sickness and In Health: A Couple’s Final Journey,” which told their journey of caregiving. The story told of the challenges LGBT partners have in dealing with the medical and legal system, but it also told of the love and joy my partner Chris and Richard had in their relationship. Chris has a background in social work and also has a unit of CPE (Clinical Pastoral Education). Knowing what they could expect from hospice care made Chris a strong advocate for Richard’s care. As founder of The Whole Care Network, Chris has made incredible meaning from his caregiving experience. Richard’s legacy lives on in the storytelling and caregiver resources.

Connect with Chris MacLellan and the Whole Care Network at https://thewholecarenetwork.com/.

Watch the 2015 Pulitzer Prize-nominated film “In Sickness and In Health: A Couple’s Final Journey” on Chris’s page on the Whole Care Network.

Watch My Green Folder - A Film Based on a True Story on YouTube by clicking here.

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

Connect with The Heart of Hospice podcast on The Whole Care Network, along with a host of other caregiver podcasts by clicking here.

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Finding Growth and Gratitude in Caregiving with Martha Ranon of Southern Caregiver Resource Center, Episode 149

Fri, 10 Mar 2023 02:00:23 +0000

Martha Ranon learned firsthand what it’s like to be a personal caregiver, and now she’s working to support and empower other caregivers. #caregiving #caregiver #dementia #Alzheimers #seriousillness #hospice #endoflife

https://theheartofhospice.libsyn.com/finding-growth-and-gratitude-in-caregiving-with-martha-ranon-of-southern-caregiver-resource-center-episode-149

Along with the team at the Southern Resource Caregiver Center (SCRC), Martha is educating unpaid family caregivers on caregiving and self care. Martha’s first encounter with caregiving was with her great aunt. Those caregiving responsibilities grew over time as her aunt’s needs expanded, to the point where the decision was made to move her aunt into Martha’s home. Full time work, having children, and raising her family were all happening while Martha was providing care for her aunt. The special considerations of caring for someone with dementia also challenged Martha and her family. They found ways to grow and thrive during their caregiving journey.

Martha has channeled her caregiving wisdom into her career as Executive Vice President of the Southern Resource Caregiver Center. The assistance she received motivated her to give back by volunteering and becoming further involved as a member of their Board of Directors. Her background in health and public policy has allowed her to forge relationships and collaborations with community leaders, businesses, elected officials and philanthropists in order to develop programs and services that benefit the community. Having worked directly with several local and state elected officials managing constituent services, further developed her advocacy acumen taking her to Sacramento and Washington DC to increase awareness of health-related policies. Additionally, she has testified on behalf of family caregivers before the California Commission on Aging to expand the benefits and resources for those who care for others.

Martha uses her extensive public speaking skills to bring education programs to community groups throughout San Diego County including being a guest lecturer at San Diego State University, School of Social Work and teaching a course in Gerontology titled “Diversity and Aging.”

You can access the caregiving resources from the Southern Caregiver Resource Center (SCRC) at scrc.care. Be sure to sign up for their newsletter!

Contact SCRC by phone at 1-800-827-1008.

Follow SCRC on Facebook.

Find your Area Agency on Aging here.

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

Connect with The Heart of Hospice podcast on The Whole Care Network, along with a host of other caregiver podcasts by clicking here.

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

How to Create Legacy with the Help of Haven, Episode 148

Fri, 03 Mar 2023 02:00:20 +0000

Haven believes every legacy needs a beautiful Haven to call home.

Maggie Gannon and the Haven team support people at end of life by empowering them to share their legacy. According to Haven’s website, they are “on a mission to improve the quality of all our lives by changing the way the world thinks about death. We do this by giving everyone a beautiful home to preserve their story and grow closer together with loved ones now, while helping everyone stay connected to their memory after death.” Through storytelling, Haven offers one-stop shopping for creating and preserving legacy. It allows people with serious illness to record their memories and life stories, reconnecting them with their past.

Haven also offers a way for hospice agencies to provide this storytelling service to their patients. By integrating Dignity Therapy with technology, Haven partners with hospice teams to allow people at end of life to preserve their life stories.

End of Life Doulas can also partner with Haven. Haven is the first Doula-centric company built from clinical research to help Doulas everywhere support clients and grow private practice.

Find out more about Haven’s services at hvnlegacy.com.

Read Maggie Gannon’s story here.

Email Maggie at maggie@hvnlegacy.com.

Find out how your Hospice Agency can partner with Haven to improve the quality of life for your patients here.

If you’re an End of Life Doula who wants to partner with Haven, click here.

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

Connect with The Heart of Hospice podcast on The Whole Care Network, along with a host of other caregiver podcasts by clicking here.

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Jody Giles on How to Avoid Missing Pieces in Your Advance Care Plan, Episode 147

Fri, 24 Feb 2023 02:00:09 +0000

Plan ahead so you leave a legacy, not a mess. Great advice from CPA Jody Giles, author of the Missing Pieces Plan.

According to her website jodygiles.com, Jody is “the author of the Missing Pieces Plan, a book designed to help people plan for end-of-life. The “missing pieces” are what Jody feels are the most important pieces in a financial plan however, they are often the most neglected. When included, these pieces offer the greatest sense of peace of mind and a priceless gift to loved ones. After a cross-country move and other life events, Jody realized there were many “pieces” missing in her own family’s plan and that no resource existed to help fill in those pieces. She was driven to write the Missing Pieces Plan and help other families fill in their missing pieces and gain peace of mind. Jody has dedicated over 20 years advising families on their financial and philanthropic plans and wants to help others fill in the missing pieces and leave a lasting love letter to their loved ones.”

Connect with Jody at jodygiles.com.

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

Connect with The Heart of Hospice podcast on The Whole Care Network, along with a host of other caregiver podcasts by clicking here.

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Edgar Barens Shares How Prison Hospices are Changing Lives, Episode 146

Fri, 17 Feb 2023 02:00:23 +0000

Filmmaker Edgar Barens works with the Humane Prison Hospice Project to highlight the need for compassionate end-of-life programs in the US. prison system.

https://theheartofhospice.libsyn.com/edgar-barens-shares-how-prison-hospices-are-changing-lives-episode-146

Helping People Through Life's Hardest Times is Their Business, Episode 145

Fri, 10 Feb 2023 02:00:21 +0000

Catherine Hinz is talking about grief and how her company Beyond Words Co. creates curated care packages to ensure no one feels alone through life’s hardest times. After experiencing a grief event in her own life, Catherine realized our responses to hard events in the lives of people we care about is often inadequate. Things like cards and even flowers just don’t provide the relief and comfort we’d like to give. Her company Beyond Words Co. is in the business of caring for people when life’s grief events occur. Beyond Words provides intentionally crafted boxes, with items to nurture mind, body, and spirit. Their mission is simple: to ensure that no one feels alone through life’s hardest times. While most of their boxes are sent for a death, the care packages are also sent for retirement, serious illness, divorce, relationship challenges, job loss, life transitions, and pet loss.

Order a box for someone you care about at beyondswords.co.

Custom design a care package with the BeyondWords team here.

Read more about how Catherine Hinz started BeyondWords Co here.

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

Book podcast host Helen Bauer to speak for your podcast, event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Making End of Life Dreams Come True with Caitlin Crommett

Fri, 03 Feb 2023 18:44:41 +0000

Caitlin Crommett is the founder of DreamCatchers Foundation, an organization creating connections for older and younger generations to fulfill the end of life dreams of hospice patients. Caitlin got her start volunteering in hospice at only 12 years old. After realizing the benefits of matching younger volunteers with older adults, Caitlin founded DreamCatchers Foundation in 2009 as a non-profit organization. According to the Dream Catchers website, “DreamCatchers empowers students and their local communities to fulfill end-of-life Dreams of hospice patients, and creates powerful connections for younger and older generations.” Caitlin would tell you that intergenerational relationships bring wonderful benefits and gifts to both generations.

Read about some end of life wishes the DreamCatchers volunteers have made come true here.

Support DreamCatchers with your donation or time by clicking here.

Is your organization interested in being a Corporate Partner? Click here to start the process.

Want to be a Hospice Partner with DreamCatchers? Click here.

Start a Young Leadership Chapter of DreamCatchers by clicking here.

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

Book podcast host Helen Bauer to speak for your podcast, event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Talking About National Anchor Your Heart Day with Opus Peace Founder Deborah Grassman , Special Episode

Tue, 31 Jan 2023 08:00:00 +0000

Join thousands of people around the globe opening their hearts to allow pain and peace to sit side-by-side together without fear on National Anchor Your Heart Day, at 3:00 pm ET on Thursday, Feb. 2. Sponsored by Opus Peace, National Anchor Your Heart Day includes a free webinar on self-compassioning with a post-webinar discussion guide. The webinar includes a free CE for nurses and mental health professionals.

10,000 dying veterans taught NP Deborah Grassman of Opus Peace the value of dying peacefully and dealing with soul injury. After working with terminally ill veterans for 30 years, Deborah and a team of hospice nurses identified the unique needs of veterans at end of life. According to Deborah’s bio, “the nurses discovered a phenomenon that has become identified as “Soul Injury®.” Led by Deborah Grassman, the five nurses left the VA to start Opus Peace, a non-profit organization with a mission of taking the Soul Injury® message to people who are not veterans and to people who are not dying. These pioneering nurses now provide educational materials and self-help tools to help people learn how to self-compassionately connect with the part of self-holding their pain and shame, allowing people to reconnect with their soul – with who they really are. A Nurse Practitioner, Deborah Grassman is the author of two books, Peace at Last and The Hero Within. She is a contributing author for four textbooks, has 25 published articles, and there are five documentary films featuring her work. Deborah directs the Opus Peace Institute where leaders are trained in how to provide programs that respond to Soul Injuries because, she contends, that 10,000 dying veterans have lessons the rest of us need to learn!”

Click on the link below to register for National Anchor Your Heart Day on February 2nd:

https://us02web.zoom.us/webinar/register/WN_i6YDmbPSQ--tEQ4wsAQGOg

Here’s the link to the Opus Peace website: https://opuspeace.org/

Learn more about Soul Injury here.

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

Book podcast host Helen Bauer to speak for your podcast, event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Tips for Navigating Hospice Care at Home with Barbara Karnes, Episode 142

Fri, 27 Jan 2023 08:00:00 +0000

End-of-life educator Barbara Karnes is back to talk about death in the home, what it looks like, and how caregivers can manage a dying loved one at home. The reality of a death at home is that it's a challenge for caregivers, and can put a heavy burden on the caregiver. Before death became a medical event, it was a psychosocial event that was managed at home, and caregivers were supported by the community. These days people frequently die in the hospital or in a nursing facility. Family often is not present when a death happens. A good death can happen at home; however, with family present. Hospice support can be an important part of that care. End-of-life workers can provide education, support, and encouragement that help caregivers manage the death experience. Barbara describes the dying process as labor, very similar to labor for the birth of a baby. Advance care planning (ACP) can help define how a person wants to die at home, identifying a medical decision-maker (MPOA or healthcare proxy). Seriously ill adults who are living alone need a caregiving system. Hospice social workers and chaplains can help solo agers identify an MPOA and build a support system for their caregiving.

Visit the BK Books website at bkbooks.com.

Purchase your copy of Gone From My Sight by Barbara Karnes here.

Connect with Barbara Karnes on Facebook.

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

Book podcast host Helen Bauer to speak for your podcast, event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Learning How to Reimagine Grief with Lisa Keefauver, Episode 141

Fri, 20 Jan 2023 08:00:00 +0000

Grief activist and founder of Reimagining Grief Lisa Keefauver is talking about her work to transform and expand our understanding of grief and change the lives of individuals, communities, and organizations along the way.

According to lisakeefauver.com, Lisa is “using my personal and professional experiences with grief and loss over the past 20 years to create a grief-smart culture.” She’s the founder of Reimagining Grief, Host of the top-rated podcast, Grief is a Sneaky Bitch, and Adjunct Professor of Loss and Grief at Steve Hicks School of Social Work at University of Texas at Austin. She brings her “whole self to the work, which includes warmth, vulnerability, humor and therapeutic skills”. Lisa experienced the loss of her husband, leaving her a 40-year-old widow with a seven-year-old daughter. She’s spent almost 2 decades as a clinical social worker and narrative therapist and realized grieving individuals weren’t receiving the support they needed from family, community, and cultures.

Connect with Lisa Keefauver at lisakeefauver.com.

Listen to the Grief is a Sneaky Bitch podcast here.

Learn more about supporting grieving employees here.

Find support with Reimagining Grief here.

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

Find more information about hospice philosophy, end of life care, and self-care for both personal and professional caregivers here.

Book podcast host Helen Bauer to speak for your podcast, event, or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Medical Aid in Dying From a Hospice Social Worker Perspective, Episode 140

Fri, 13 Jan 2023 08:00:00 +0000

Medical Aid in Dying is a controversial topic. Hospice Social Worker Lisa Pahl shares what it’s like to support someone who’s utilizing Medical Aid in Dying. Hospice team members are often present when a patient chooses Medical Aid in Dying, or MAID. Lisa’s experience has shown her how intense and intimate it can be to companion a patient and family during a MAID event. Often the conversations about the death, and the details of how the patient wants it to happen, are enriched and deep. Lisa shares that as a social worker, she finds her energy for supporting patients to be refilled rather than depleted. Medical Aid in Dying is not legal in every state in the U.S. It’s important that hospice and end of life workers are aware of what the laws are in the state where they work. Whether or not hospice professionals support a MAID law, they should be able to accurately inform patients and families, and provide education.

Connect with hospice social worker and Death Deck co-creator Lisa Pahl at thedeathdeck.com.

Get your set of Death Deck cards here!

Find more information on Medical Aid in Dying at Compassion and Choices.

Find out if Medical Aid in Dying is legal in your state here.

Listen to the interview with Anita Hannig, author of How I Die: The Untold Story of Assisted Dying in America Epi. 114 by clicking here.

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

Book podcast host Helen Bauer to speak for your podcast, event, or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

How to Provide Quality Hospice Care for LGBTQ+ Families, Episode 139

Fri, 06 Jan 2023 08:00:00 +0000

Hospice social worker and grief counselor Jill Johnson-Young is sharing wisdom and her perspective on end of life care for the LGBTQ+ community. Just like every other patient and caregiver, members of the LGBTQ+ community and their caregivers want to feel safe and be treated with respect during their end of life experience. Although it’s difficult to do, end of life workers need to be aware of their own biases. Members of the LGBTQ+ community might be hesitant to choose hospice care, withhold necessary information from their end of life team, or even go back in the closet during hospice care. While each of us have opinions, hospice interdisciplinary team members should never voice those opinions about patients’ and caregivers’ lives. Quality of care suffers when healthcare professionals show prejudice and judgmental attitudes. The care of people in the LGBTQ+ community should be no different than the care that’s provided to any other patients. Everyone deserves respect, compassion, tolerance, and empathy.

You can connect with Jill Johnson-Young at jilljohnsonyoung.com.

Read Jill’s blog here.

Buy your copy of The Rebellious Widow and Your Own Path Through Grief here.

Want to encourage a caregiver or say thank you to a friend? Order a customized care package from BeyondWordsCo.com.

Find care packages and workplace gift programs for corporate gifting, employees, co-workers and clients here.

Read more about how Catherine Hinz founded BeyondWords here.

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

Book podcast host Helen Bauer to speak for your podcast, event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

How to Communicate to Get the Best Care Possible, Episode 138

Fri, 30 Dec 2022 08:00:00 +0000

Communication is crucial to creating the best end of life experience possible. We’re talking about what to say, how to say it, and when to say it. Knowing how to communicate with their end of life workers helps patients and their caregivers to get better care. Patients and caregivers should feel comfortable talking about symptoms to their hospice team and asking questions. The professionals providing care can’t fix problems they don’t know about. It’s also important to know what concerns need to be reported immediately and what information can wait. The same holds true for the team members providing the care. Patients and caregivers can be confused by medical jargon or terms. Education should be provided in ways that are easy to understand. Providing information quickly can also be very important. Any instructions should be clear and concise. It can be really helpful to leave a set of written instructions in the house for caregivers to reference when they’re providing care on their own. And don’t forget compliments - saying something positive about the care someone is providing can make their day. Good communication will influence the quality of care you provide - and the patient’s quality of life.

Want to encourage a caregiver or say thank you to a friend? Order a customized care package from BeyondWordsCo.com.

Find care packages and workplace gift programs for corporate gifting, employees, co-workers and clients here.

Read more about how Catherine Hinz founded BeyondWords here.

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

Book podcast host Helen Bauer to speak for your podcast, event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Learn How to Love Your Life to Death With Yvonne Heath, Episode 137

Tue, 27 Dec 2022 08:00:00 +0000

Love Your Life to Death founder Yvonne Heath is teaching us how to just show up for someone who’s grieving. Yvonne has been a Registered Nurse since 1988, working in emergency and ICU settings as well as hospice and palliative care. According to her website LoveYourLifetoDeath, Yvonne “witnessed our grief-phobic society and how our reluctance to talk about, plan and prepare for grief, death, and dying causes excessive suffering in life and at the end of life.” She channeled her experience, both professional and personal, into an award-winning book and a celebrated TEDx talk. Empowering people to live life to the fullest and show up for each other to diffuse the fear around death, dying, and grief is at the center of Love Your Life to Death. As Yvonne would say, the most important thing to do is just show up.

Connect with Love Your Life to Death at loveyourlifetodeath.com.

Read more about founder Yvonne Heath here.

Join the #ijustshowedup movement here.

Watch Yvonne’s weekly vlog here.

Order a care package for someone you love at BeyondWordsCo.com.

Find care packages and workplace gift programs for corporate gifting, employees, co-workers, and clients here.

Read more about how Catherine Hinz founded BeyondWords here.

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

How to Find the Benefits of Grief with Jenny Dilts, Episode 136

Fri, 23 Dec 2022 08:00:00 +0000

Certified Grief Coach Jenny Dilts is helping people to find the calm inside the grief storm. Jenny finds incredible meaning in supporting people going through a loss. Jenny defines grief as a loss, change, or absence of connection. Whether it’s from a death, a relationship, or a life role, she guides clients to find both the sadness and joy inside the grief experience. Loss of identity, trauma, independence, finances, unmet expectations and dreams are all sources of grief. Hospice patients and their caregivers deal with grief long before a death occurs. Anticipatory grief includes so many different types of loss. Jenny believes in finding the joy that exists along with the sadness of grief.

Listen to Jenny Dilts’ podcast Sharing Your Story: Exploring Humanity One Heart at a Time on Apple podcasts, Spotify, or Anchor FM.

Connect with Jenny’s resources at Grievingcoach.com.

Follow Grieving Coach on Facebook here.

Check out Reimagine here.

Order a care package for someone you love at BeyondWordsCo.com.

Find care packages and workplace gift programs for corporate gifting, employees, co-workers and clients here.

Read more about how Catherine Hinz founded BeyondWords here.

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Hospice Nurse Penny is a TikTok Phenom, Episode 135

Fri, 16 Dec 2022 08:00:00 +0000

We're talking with Hospice Nurse Penny about how her TikTok videos about end of life care have become a social media phenomenon. After finding her way to hospice nursing, Penny Smith realized there was a big gap in accurate information about end of life care. She decided to educate people in a unique way, utilizing social media. With videos, reels, and dancing, Penny helps expand understanding of hospice care. She normalizes the dying process and helps people to be more comfortable with someone who’s dying. Penny says she gets the biggest response from videos about end of life visioning (seeing dead people or pets) and the dancing videos. Her video about eating at the end of life has over a million views. Using a fun medium, Penny Smith is making a difference in end of life care.

Penny Smith's bio -

Penny Smith is a nationally certified hospice and palliative care registered nurse. She has been a hospice nurse for 17 years and worked in a variety of care settings and roles within hospice including inpatient, home case management, education, quality and regulatory. She currently works as a hospice quality manager. Penny is a passionate advocate for hospice education with a mission to normalize the end-of-life process to remove the stigma and fear around hospice care, death and dying. During the pandemic Penny found her way to social media and discovered a unique way to utilize her death care expertise to provide education to a worldwide audience at a grassroots level. Using a variety of teaching styles including Tiktok trends, dark humor, dancing and storytelling, she has gathered over 450,000 followers on Tiktok and 100,000 on Instagram as @hospicenursepenny.

Connect with Hospice Nurse Penny’s on social media.

Facebook IG

Order a care package for someone you love at BeyondWordsCo.com.

Find care packages and workplace gift programs for corporate gifting, employees, co-workers and clients here.

Read more about how Catherine Hinz founded BeyondWords here.

Book podcast host Helen Bauer to speak for your podcast, event, or conference by sending an email to helen@theheartofhospice.com.

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

When You Need an Expert, Empathy.com is Your Friend, Episode 134

Fri, 09 Dec 2022 08:00:00 +0000

Empathy co-founder and CEO Ron Gura created the company with one mission in mind: to help families deal with loss. It’s the friend we all need when we’re navigating the death of a loved one. According to the Empathy website, Empathy was “designed to help bereaved families find balance during one of life's most challenging moments.” Combining technology and human support, the Empathy app helps families through all the financial, legal, emotional, and logistical challenges after losing a loved one. Grief and loss cost businesses millions of dollars a year, yet most companies are ill-equipped to support employees after a loss. Ron and the team at Empathy partner with individuals, employers, and hospice agencies to help them navigate the many challenges and unknowns after a death. Through the website and an award-winning app, Empathy provides both administrative and emotional support.

Connect with Empathy’s resources for individuals here.

Find Empathy’s resource for supporting an employee through a loss here.

If you’re a hospice agency wanting to partner with Empathy’s services, click here.

Read more articles on Empathy’s Knowledge Base.

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Hospice Social Worker Nathan Yemane Honors His Father's Legacy of Service, Episode 133

Tue, 06 Dec 2022 08:00:00 +0000

Hospice social worker Nathan Yemane is meeting the needs of his community by opening the first black-owned hospice agency in Washington State and carrying on his father’s legacy of service. Nathan grew up in Washington, has his masters in Social Work, and in 2013 obtained his clinical license in social work. He has worked in healthcare since 2010, primarily in the hospice field. Nathan and his business partner David Turner were awarded a Certificate of Need approval from the DOH to establish the first Black-owned hospice in Washington State. Nathan recognized the end of life needs of people of color in King County. Studies show African Americans have the highest mortality rate from 3 of the most common 4 hospice diagnoses, and yet utilization of hospice is reduced. As an agency owner, Nathan is serving his community in a unique way. Opening a hospice agency in Washington State takes numerous steps, resulting in the awarding of a Certificate of Need by the state. It’s a grueling process, but Nathan and his team were patient and persistent. He’s passionate about educating and serving the people of King County and correcting the racial disparity among hospice patients.

Read more about Nathan Yemane’s agency here.

Connect with Nathan’s agency Heart ‘n Soul Hospice at heartnsoulhospice.com.

Interested in purchasing a GrandPad for a loved one? Click here.

Get information about GrandPad purchases for your facility or agency here.

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

How to Survive as a Caregiver Warrior with Susanne White, Episode 132

Fri, 02 Dec 2022 08:00:00 +0000

Caregiver Warrior founder Susanne White is sharing the many lessons she learned as a caregiver for her dad and mom. According to the Caregiver Warrior website, Susanne offers “advice, helpful tips, and strategies based on the experience, strength, and hope I found while surviving my own caregiving journey. It has become my mission to share my stories and the things I learned about being an empowered caregiver.” Susanne is an advocate for surrounding yourself with your caregiving village, to find support in friends and family to help you do the caregiver job. She realizes the lessons she learned about herself, her mom, and how they communicated. Through her caregiving experiences and a lot of hard work, Susanne came to a place of self-awareness in her interactions with her mom. She’s sharing all she’s learned with others who are walking someone else home. Caregiving changed her life, and changed who she was.

Jill Johnson-Young Discusses Intimacy at End of Life, Episode 131

Fri, 25 Nov 2022 08:00:00 +0000

We’re having an open, honest discussion with hospice social worker and author Jill Johnson-Young about intimacy during a serious illness. Jill’s been widowed twice, and knows the importance of physical intimacy even at the end of life. As a hospice social worker, Jill has seen what it’s like for terminally ill patients and their partners to struggle with physical intimacy. Losing physical intimacy is just another loss of identity and who couples are together. It can be a source of anticipatory grief at a time when intimacy is so important. There are many layers to physical intimacy, not just the sexual component. After the death has occurred, it can be important for the partner to be involved in providing postmortem care, to bathe their loved one’s body. Hospice professionals can support and encourage the desire of patients and their partners to be physically intimate. Humans need connection to thrive, and that doesn’t stop in the presence of a serious illness.

Connect with Jill Johnson-Young and her work at jilljohnsonyoung.com.

If you’re interested in booking Jill to speak at your event, connect with her here.

Buy Jill’s book The Rebellious Widow by clicking here.

Purchase your copy of Jill’s workbook Your Own Path Through Grief here.

Interested in purchasing a GrandPad for a loved one? Click here.

Get information about GrandPad purchases for your facility or agency here.

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

What You Need to Know about Conscious Dying with Dr. Aditi Sethi-Brown, Episode 130

Fri, 18 Nov 2022 08:00:00 +0000

Dr. Aditi Sethi-Brown, founder of the Center for Conscious Living and Dying, has devoted her career to promoting positive death experiences. She’s a rare hybrid in healthcare, both a hospice physician and an end of life doula. According to the Center for Conscious Living and Dying (CCLD) website, “CCLD has a vision for death, dying, and grief that involves greater community involvement and connection to the mystery of this season of life. Death is a mirror in which our own lives are reflected”. Aditi feels deeply the importance of supporting dying patients with not only medical skills, but with compassion and empathy. She started volunteering in hospice at age 17, realizing early in her career that she wanted to work in end of life care. Aditi has a beautiful dedication and philosophy that guides the work she does with seriously ill patients and their families.

You can connect with Dr. Aditi Sethi-Brown on her website.

Find the Center for Conscious Living and Dying on Facebook.

Watch The Last Ecstatic Days move here.

Interested in purchasing a GrandPad for a loved one? Click here.

Get information about GrandPad purchases for your facility or agency here.

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

How To Create Treasured End Of Life Memories With The 3 Wishes Program, Episode 129

Fri, 11 Nov 2022 08:00:00 +0000

Dr. Thanh Neville is talking with us about the benefits of granting end of life wishes through the 3 Wishes Program at UCLA Health. Dr. Neville joined the faculty in the UCLA Division of Pulmonary and Critical Care in 2012 and is both a clinician and a researcher. In 2017, she co-founded the 3 Wishes Program and is currently its Medical Director. According to the UCLA Health website, clinical staff works with the patient and family, finding favorite memories or special qualities about the patient to celebrate the unique life of the patient. These memories and qualities are turned into special legacy keepsakes or events. While creating these special memories for families and patients, the 3 Wishes Program team at UCLA health finds comfort and meaning for themselves. The staff is reminded why they work with seriously ill patients and feel their work is elevated by granting these end of life wishes.

If you’re interested in learning more about the UCLA Health 3 Wishes Program, click here.

Communicate with Dr. Thanh Neville, director of the UCLA health 3 Wishes Program by clicking here.

Interested in purchasing a GrandPad for a loved one? Click here.

Get information about GrandPad purchases for your facility or agency here.

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

Learn How GrandPad Can Make Life Better for Seniors with Scott Lien, Episode 128

Fri, 04 Nov 2022 07:00:00 +0000

GrandPad founder Scott Lien is talking with us about GrandPad's best features and how it keeps older adults connected. Older adults often feel isolated, and the pandemic separated them even more from family and friends. The GrandPad device is simple for seniors to set up. Customers can access white glove customer support with questions 24/7/365. The best thing about GrandPad’s convenience is the inclusion of 4G LTE, so it doesn’t require the household to have wifi. Offering things like games, video chats, simplified Zoom capability, email, and mood-enhancing apps, the GrandPad has something for every senior. “Connecting families and creating rich communication has always been at the heart of what we wanted to do at GrandPad”, reports GrandPad co-founder Scott Lien. With guidance from their advisory group of super-seniors, GrandPad has created an easy to use, safe tablet that reduces isolation and loneliness.

Interested in purchasing a GrandPad for a loved one? Click here.

Get information about GrandPad purchases for your facility or agency here.

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

What You Need to Know About Palliative Care From Dr. Arian Nachat, Episode 127

Fri, 28 Oct 2022 07:00:00 +0000

Our guest Dr. Arian Nachat is an advocate for palliative care services, informed advance care planning, and optimizing quality of life. As founder of Pallity, Arian guides the organization to focus on “you, the patient, helping you to manage your disease symptoms and treatment side effects while focusing on your quality of life”. According to their website, Pallity can “help you to better understand the options available to manage the symptoms of your disease and the side effects of treatment so that you can live your life to its fullest”. Dr. Nachat has years of experience guiding patients and their caregivers through difficult conversations for advance care planning. She advocates for comprehensive end of life planning, with frequent review so the ACP reflects who we are in space and time.

Get more information about services from Pallity by clicking here.

Find out more about the Pallity team here.

Interested in purchasing a GrandPad for a loved one? Click here.

Get information about GrandPad purchases for your facility or agency here.

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

How to Write a Spiritual Care Directive with Rhonda Lopresti, Episode 126

Fri, 21 Oct 2022 07:00:00 +0000

End of Life Coach and home funeral guide Rhonda Lopresti is talking with us about spiritual care directives, and their importance as part of an advance care plan. Rhonda Lopresti is a certified End of Life and Life Coach and has been a Holistic Health Practitioner for 30 years. According to her website (peacefully-prepared.com), Rhonda is “passionate in holding and creating sacred space, personal ritual, spiritual practice, and creative choices through dying and deathcare”. She believes advance care planning should be a comprehensive, robust plan for someone’s end of life care, including care of the spirit. Through Rhonda’s organization Peacefully Prepared, you can create a directive for your spiritual care, no matter your faith or spiritual beliefs. Directives for Buddhists, non-theists or those who have mainstream religious beliefs can be a vital component of an advance care plan.

If you’d like to talk with Rhonda about the services she provides, book a Discovery Call by clicking here.

Connect with Rhonda Lopresti via email at rhonda@peacefullyprepared.com.

Find out more about Rhonda’s services at peacefullyprepared.com.

Interested in purchasing a GrandPad for a loved one? Click here.

Get information about GrandPad purchases for your facility or agency here.

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

What You Need to Know About VSED

Fri, 17 Apr 2026 07:00:27 +0000

When Kate Christie’s mom chose to utilize VSED at the end of her life, Kate became a caregiver and advocate, never losing sight of role as a daughter. Kate’s mom faced a diagnosis of Alzheimer’s disease and made the choice to use VSED (Voluntarily Stopping Eating and Drinking). Kate stayed by her mom’s side through the dying process and death, experiencing all the facets of being a VSED caregiver. Now Kate’s sharing her story and advocating for caregivers and anyone with a serious illness who chooses VSED. Her book The VSED Handbook is a guide and resource for anyone needing information about Voluntarily Stopping Eating and Drinking. VSED is an end-of-life option specifically for terminally and seriously ill people that is legal in every state in the U.S. You can learn more at vsedresources.com

Connect with author and VSED advocate Kate Christie: Website: katejchristie.com Goodreads: goodreads.com Barnes and Noble: barnesandnoble.com VSED Resources NW: vsedresources.org

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

How to Manage Death Anxiety With Social Worker Rosie Gaston

Fri, 27 Mar 2026 07:00:34 +0000

Most of us carry some fear of death, even if we rarely say it out loud. In this episode, we talk honestly with hospice Social Worker Rosie Gaston about death anxiety—what it feels like, where it comes from, and how to have conversations that reduce it. Death is a universal human experience that carries mystery, fear, and a lot of anxiety. In western culture, conversations about death don’t happen as early and often as they should to really be beneficial.

End of life and hospice workers deal with death and dying every day; it’s normal daily activity. Emotional boundaries help workers to sustain the work long term. For others, fear of death is common. It takes so many forms - fear of losing a loved one to death, anxiety over finances or legacy, fear of dying too early. Death anxiety takes many forms. Rosie describes the questions that she asks to start discussions that can reduce that fear. Great guidance from an experienced hospice social worker!

Connect with Hospice Social Worker Rosie Gaston: Website https://www.abetterending.org/

Find resources for end of life care from Minnesota Network of Hospice and Palliative Care at mnhpc.com

Connect with Barbara Karnes’ products and resources at bkbooks.com. Read Barbara’s blog at bkbooks.com. Socials for Barbara Karnes: Facebook IG LinkedIn Twitter (X) YouTube

Find all of Barbara Karnes’ products and resources at bkbooks.com. Read Barbara’s blog at bkbooks.com. Socials for Barbara Karnes: Facebook IG LinkedIn Twitter (X) YouTube

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

Creating an Advance Care Plan Series with The Conversation Project, Episode 5

Tue, 29 Nov 2022 08:00:00 +0000

We’re wrapping up our Advance Care Plan Series in collaboration with the amazing team from The Conversation Project from IHI, sharing the lessons we learned during our advance care planning process. Creating an advance care plan is not an easy task, even if you’re not in the middle of a serious illness. Family dynamics have a big influence on how conversations about end of life happen. We learned it’s important to set aside a quiet time and place to talk with the ones you want to make your wishes known when you can’t speak for yourself. There were emotional impacts to the advance care planning conversations as well. Maybe it was awareness of our own mortality, or the recognition that we might not get the time we want with kids and grandkids. There was even some concern that no one in the family feels like a good fit to be a healthcare proxy. As healthcare providers, we gained a new perspective on patients’ and caregivers’ experience with end of life planning. Maybe everyone who works in end of life care should gain this valuable insight into what our patients go through to make their wishes known.

Check out The Conversation Project website here.

Get resources to get your conversation started here.

Follow TCP on Facebook here.

Connect with TCP on Twitter here.

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

How to Create Your Advance Care Plan Series with The Conversation Project Episode 3

Tue, 15 Nov 2022 08:00:00 +0000

In the 3rd episode of our Advance Care Plan series, Rosemary Lloyd talks about how faith communities can support Advance Care Plan discussions using resources from The Conversation Project. Rev. Rosemary Lloyd was formerly the Advisor to Faith Communities for The Conversation Project. She’s also a registered nurse, hospice volunteer, and an ordained Unitarian Universalist minister. Rosemary is an outspoken advocate for including our spiritual beliefs in advance care planning. Using resources from The Conversation Project website, faith communities can promote end of life discussions among their members. Resources on TCP’s website include sermon examples for faith leaders, posters that can be printed, handouts, and a Starter Guide - all available for free.

Find all the resources The Conversation Project has to offer for faith communities:

Coaching the Conversation Guide
- A guide from The Conversation Project on how to facilitate the conversation in groups.
Guide to Organizing Faith Based Events
- An introduction to hosting events and tips for getting started.
How Faith Communities Facilitate Conversations Around End-of-Life Concerns
- Interviews show the benefits of training and engagement on advance care planning.
Post-Event Surveys template.
Example Programs
- New! Thoughtful Endings, a five-part, nondenominational series of events held by The Conversation Project in Boulder County.

Conversation Sabbath
- An invitation to clergy to teach and preach about the importance of having The Conversation. Rather than specify certain dates, we encourage you to pick a time frame that works for your community to host a Conversation Sabbath.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Welcome to The Heart of Hospice Podcast

Tue, 27 Dec 2022 12:50:16 +0000

Welcome to The Heart of Hospice podcast! You might be having to think about hospice care for yourself or someone you love. It's a big decision. Navigating end of life care can be challenging. You'll need to be an advocate for yourself and the person you care about. You're not alone. We care about your end of life experience.

How to Create Your Advance Care Plan Series with The Conversation Project, Special Episode

Tue, 01 Nov 2022 07:00:00 +0000

Need some help with those difficult Advance Care Plan discussions? Welcome to our special Advance Care Plan Series featuring Kate Debartolo and the team from The Conversation Project! Conversations about end of life wishes can happen in different places - in family groups, community groups, or inside communities of faith. No matter where you want to have those ACP discussions, The Conversation Project has a resource you can use. This special series features experts from The Conversation Project team, including TCP Director Kate Debartolo, Improvement Advisor for Community Engagement and Learning Patty Webster, and Rosemary Lloyd, Advisor to Faith Communities. During the wrap-up episode of the Series, Jerry and Helen will be sharing some of the lessons they’ve learned while creating their own personal advance care plans. Stay tuned for some great discussions and tons of advance care plan resources!

Find all the resources you need for starting advance care plan conversations in your faith community here.

Need resources for ACP discussions in your community group? Click here.

Get those ACP conversations started for yourself by clicking here.

If you need to talk with your healthcare team about your Advance Care Plan, use this resource.

Connect with all the resources from The Conversation Project here.

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

How to Create Your Advance Care Plan Series with The Conversation Project Episode 4

Tue, 22 Nov 2022 08:00:00 +0000

Kate Debartolo of The Conversation Project is talking with us about advance care planning, and how to talk about what matters most to you. According to The Conversation Project website (theconversationproject.org), Kate “has worked at The Institute for Healthcare Improvement (IHI) since 2007. She currently leads The Conversation Project team and operations. Additionally, Kate manages and cultivates relationships with national and state-level organizations that help engage the general public in advance care planning.” Individuals can find the Conversation Starter Guide and use it to have discussions with their families. The Conversation Project also has resources for choosing a healthcare proxy, being a healthcare proxy, and what to consider if you’re dealing with a serious illness. The TCP resources come in multiple languages and forms, easily accessed and edited. All the resources and workbooks are available at no charge. Take advantage of all the free guides The Conversation Project has to offer!

Check out The Conversation Project website here.

Get resources to get your conversation started here.

Follow TCP on Facebook here.

Connect with TCP on Twitter here.

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

How to Create Your Advance Care Plan Series with The Conversation Project, Special Episode 2

Tue, 08 Nov 2022 08:00:00 +0000

Welcome to the second episode of our Advance Care Plan Series in partnership with The Conversation Project, featuring TCP’s Improvement Advisor for Community Engagement and Learning Patty Webster! Whether you want to have ACP conversations in a group of 5 of 500, The Conversation Project has the resources to get those discussions started. Through shared stories on TCP’s website, users can find examples of how other community groups are utilizing TCP’s resources. There’s a Starter Guide to take to your group, and other tools and resources to help you all available for free. You’ll find guidance on hosting an ACP event, tips for promoting your message and engaging your community, and ways to network with others. Bring those all-important end of life conversations with your group!

Connect with The Conversation Project at theconversationproject.org

Find TCP’s community resources here.

Follow The Conversation Project on social media:

Facebook - TheConversationProject

Instagram - Convo Project

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

What You Need to Know About Comfort Feedings, Heartbeat Episode 296

Fri, 29 Jul 2022 07:00:31 +0000

We’re talking about comfort feedings today, how they work and the benefits they hold for hospice patients and their caregivers. Comfort feeding, (also pleasure feeding, is the practice of feeding the patient only what the patient likes and wants. It might not be considered particularly healthy. It’s more about enhancing quality of life for the patient. The focus of food intake is on comfort rather than good nutrition. The choices about food and drink are driven by the patient’s ability to swallow, of course. If a patient’s ability to swallow is impaired, he might just take the food or liquid into his mouth and then spit them out. The best guidance about comfort feedings is this: don’t eat or drink anything that’s going to make symptoms worse. Shortness of breath, blood sugar fluctuation and fluid retention (edema) can all be made worse by certain foods. Quality of life depends on managing those symptoms to the patient’s comfort level. Because managing those symptoms is often the job of the caregiver, how comfort feedings are handled affects the caregiver, too. So finding a good balance in comfort feedings is important. The patient, caregiver, and the hospice team can help make that happen.

Connect with The Love Always Project by clicking here and accessing their Resource page for more support.

Interested in anthropologist Anita Hannig’s book The Day I Die: The Untold Story of Assisted Dying in America? Purchase your copy here or here.

Find more information about hospice philosophy, end-of-life care, and self-care for both personal and professional caregivers here.

Find more podcast episodes from The Heart of Hospice here: https://theheartofhospice.libsyn.com/

Connect with podcast host Jerry Fenter at jerry@theheartofhospice.com.

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

Empathy.com Supports Grievers When They Need It the Most

Fri, 22 Jul 2022 07:00:37 +0000

Navigating the maze of responsibilities following a death can be overwhelming. Empathy.com can help. The Empathy founders know that loss-related tasks are many, ranging from writing an obituary to closing out business accounts and subscriptions. On the Empathy website, you’ll find resources to help with choosing a funeral home and celebrant, writing a eulogy, and dealing with issues related to the will. Empathy Care Specialists are available to offer guidance and services to walk through the items that need to be completed after a death. They can even help with writing an obituary. On the Empathy app, there’s grief and bereavement support to ease the hard emotions that come with a loss, including a grief journal. On the days when grief feels overwhelming, listen to Empathy’s brief mindfulness-based guided meditations that support grievers through those hard emotions. Empathy offers services for individuals, insurers, and employers.

Interested in anthropologist Anita Hannig’s book The Day I Die: The Untold Story of Assisted Dying in America? Purchase your copy here or here.

Connect with The Love Always Project by clicking here and access their Resource page for more support.

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

Find more podcast episodes from The Heart of Hospice here: https://theheartofhospice.libsyn.com/

Know Your Patient Rights Series 5, Heartbeat Episode 294

Fri, 08 Jul 2022 07:00:46 +0000

In the final episode of our Patient Right series, we’re talking about the right to choose medications, equipment, and who makes visits to the home. The care that’s provided for a hospice patient is collected into something called a Plan of Care. That Plan of Care includes every intervention the hospice team provides, including medications, any medical equipment that’s needed, and which disciplines on the hospice team will make visits with the patient. There’s a lot of information in a Plan of Care and should be individualized to the patient’s and caregiver’s needs. Medications are a big part of the Plan of Care. The doctor orders what is needed and decides what’s contraindicated (not a good idea to take), but the patient or responsible caregiver gets to determine which meds will be taken. Medications that are related to the patient’s terminal prognosis or diagnosis should be paid for by the hospice agency. Medical equipment that is used to help seriously ill patients is also part of the Plan of Care. The cost of that equipment is covered by the hospice agency, but the agency decides which equipment they’ll cover. Not every patient needs every piece of equipment that’s offered. Sometimes the patient or caregiver doesn’t want bulky equipment in their home. It’s the patient’s right to choose what equipment gets brought in. When it comes to which members of the hospice team make visits with the patient, the patient is the decision-maker here as well. Except for the nurse, visits from the other team members can be refused by the patient. The nurse visits are mandatory to meet regulatory requirements. It’s always best to allow a visit from every discipline on the team (nurse, social worker, chaplain, aide, volunteer) to make the most of the care opportunities. Listen to the other episodes in the Know Your Rights series to get a complete picture of the rights of hospice patients!

Find the full listing of Patient Rights here:

Patient Rights Document from the National Association of Home Care and Hospice

The hosts of The Heart of Hospice podcast would be honored to speak at your event or conference. Send an email to helen@theheartofhospice.com or jerry@theheartofhospice.com. We’d love to partner with you!

Find more information about hospice philosophy, end-of-life care, and self-care for both personal and professional caregivers here.

Find more podcast episodes from The Heart of Hospice here: https://theheartofhospice.libsyn.com/

Connect with podcast host Jerry Fenter at jerry@theheartofhospice.com.

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

Know Your Patient Rights Series #4, Heartbeat Episode 293

Fri, 24 Jun 2022 07:00:37 +0000

Hospice patients have the right to start and stop hospice care. Your hospice, your choices. After a physician determines that a patient has a “terminal prognosis” - a six-month life expectancy, a patient can be admitted to hospice if the patient chooses to start, or “elect”, hospice. The patient might still refuse to start hospice. There are numerous reasons why that might happen. Feeling like hospice is giving up hope, waiting for test results, or wanting to pass a milestone anniversary or holiday are all reasons people delay starting hospice care. Sometimes people have had a bad experience with hospice for a family member, and they’re concerned about receiving poor care. It’s a legitimate fear; mistakes happen. Sometimes hospice just isn’t a good fit. After hospice care is started, it’s the patient’s right (or his decision-maker) to stop hospice. It’s called a revocation. Only the patient or decision-maker can revocate a patient. That right lies with the patient and could happen for several reasons. The patient might decide to resume treatment or wants to enroll in a study. The right to choose when to stop and start hospice belongs to the patient.

Find the full listing of Patient Rights here:

Patient Rights Document from the National Association of Home Care and Hospice

Find more information about hospice philosophy, end-of-life care, and self-care for both personal and professional caregivers here.

Find more podcast episodes from The Heart of Hospice here: https://theheartofhospice.libsyn.com/

Know Your Patient Rights Series #3, Heartbeat Episode 292

Fri, 17 Jun 2022 07:00:31 +0000

In episode 3 of our Patient Rights series, we’re talking about the right to choose a physician to manage a patient’s care while on hospice. When receiving hospice care, the patient or decision-maker has the right to choose which physician will manage care. The hospice agency is required to let the patient know he can choose an “attending physician”, a doctor who works alongside the hospice medical director and the hospice interdisciplinary team. Patients often ask a doctor who’s been their primary care provider, someone who knows them well. Hospice teams are required to include that attending physician in coordinating care. Some physicians may choose not to be an attending physician when they’re asked. There are several possible reasons a doctor might not want to be an attending physician. Maybe symptom management is not their skill set, or they’re not familiar with the kind of care that’s needed at the end of life. Nurse practitioners can also serve as attending physicians for a hospice patient. If there isn’t an attending physician the patient would like to continue providing care, the patient can simply choose the hospice medical director as his/her attending physician. It’s your right!

Find more Patient Rights here:

Patient Rights Document from the National Association of Home Care and Hospice

Find more information about hospice philosophy, end-of-life care, and self-care for both personal and professional caregivers here.

Find more podcast episodes from The Heart of Hospice here: https://theheartofhospice.libsyn.com/

Connect with podcast host Jerry Fenter at jerry@theheartofhospice.com.

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

Know Your Patient Rights Series #2, Heartbeat Episode 291

Fri, 10 Jun 2022 07:00:19 +0000

Know Your Patient Rights Series #1 - Heartbeat Episode 290

Fri, 03 Jun 2022 07:00:51 +0000

A common myth about hospice is that patients and families don’t have any choices once hospice care starts, so we’re talking about all the rights patients really do have. Don't miss this 5 part series! It’s vital that both consumers and providers of hospice care know what rights the patient (or the responsible decision-maker) has. Those rights are real and every agency serving seriously ill patients should provide a list to their patients and caregivers. We’re highlighting some of the most important rights - the right to make a complaint, the right to choose a physician, the right to start and stop hospice care, and the right to choose what’s included in your own plan of care. Hospice patients and their caregivers should feel empowered to manage the care they receive. Listen to all the Patient Rights Series episodes to learn about these all-important rights!

Patient Rights Document from the National Association of Home Care and Hospice

Find more information about hospice philosophy, end-of-life care, and self-care for both personal and professional caregivers here.

Find more podcast episodes from The Heart of Hospice here: https://theheartofhospice.libsyn.com/

Connect with podcast host Jerry Fenter at jerry@theheartofhospice.com.

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

What You Need to Know About Bereavement Services, Heartbeat Episode 289

Fri, 27 May 2022 07:00:37 +0000

Bereavement care is part of hospice, but what exactly is it, who does it, and what should it look like? Hospice agencies in the U.S. are required to offer bereavement services to families and loved ones of patients who die on hospice service. For up to 13 months after the death, families receive support for their grief. It can come in many different forms, depending on the individual needs of the family. The Bereavement Plan of Care is written according to how the family is coping with the death. Hospice team members do a Bereavement Risk Assessment, factoring in situations and stressors that might elevate the level of grief. Sometimes grief is complicated by poor coping skills, dysfunctional relationships, mental illness, or limited education. Grief is also influenced by the age of the person because children and teens have different ways of dealing with grief. There’s a wide variety of items that can be included in bereavement services, including phone calls, letters, resources or handouts, agency memorial services, grief support groups, and individual in-person bereavement visits. Agencies have to provide bereavement care, but families or caregivers do not have to participate in it - it’s their choice. Check out the bereavement services your agency offers!

Don’t forget to register for the California Hospice and Palliative Care Association conference coming up June 6-10 by visiting calhospice.org! Be sure to tell them you heard about it on The Heart of Hospice podcast.

Find more podcast episodes from The Heart of Hospice here: https://theheartofhospice.libsyn.com/

Connect with podcast host Jerry Fenter at jerry@theheartofhospice.com.

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

Find more information about hospice philosophy, end-of-life care, and self care for both personal and professional caregivers here.

Getting Back to the Basics of Quality Self Care, Heartbeat Episode 288

Fri, 20 May 2022 07:00:31 +0000

How's your self-care these days? We're getting back to the basics of care of body, mind, and spirit. Maybe your self care got off track during the pandemic, but it’s always a good time to do a care inventory. It’s important to ask yourself 5 things about your self care: 1) Is it affordable? 2) Is it sustainable? 3) Is it enjoyable? 4) Is it flexible? 5) Is it actionable?

Here’s what we know about self care. You have to like what you choose to do (enjoyable). You might need to change it at a moment’s notice (flexible). It needs to be something you can do for the long term (sustainable). Your activities must be within your budget (affordable). Self-care activities have to be realistic for you, something you can actually do (actionable).

Start your self-care - get an accountability partner and get started taking care of your whole self. Mind, body, and spirit, all of your Self matters!

Find more podcast episodes from The Heart of Hospice here: https://theheartofhospice.libsyn.com/

The hosts of The Heart of Hospice podcast would be honored to speak at your event or conference. Send an email to helen@theheartofhospice.com or to jerry@theheartofhospice.com. We’d love to partner with you!

Connect with podcast host Jerry Fenter at jerry@theheartofhospice.com.

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

Find more information about hospice philosophy, end-of-life care, and self-care for both personal and professional caregivers here.

How to get the Best Hospice Care with Therapies, Heartbeat Episode 287

Fri, 13 May 2022 07:00:35 +0000

We’re clearing up the confusion about using therapies (physical, speech, and occupational) for hospice patients. It’s one of the confusing issues in hospice - whether therapy modalities can be used in end of life care. The truth is that PT, ST, and OT can be utilized in hospice. The goal of these therapies is not rehabilitation or long-term strengthening. The real goal for each of these therapies is enhancing quality of life, focusing on education of the patient and caregivers, and teaching safe practices for patient care. Physical therapists can teach safe transfer techniques, good body mechanics, turning and repositioning, and use of mobility assist devices. Occupational therapists can help with fine motor issues, including education on techniques for managing Activities of Daily Living. Speech therapists assist with education about communication systems, minimizing choking hazards, and preventing aspiration of foods and liquids. All of these interventions are about keeping the patient safe and enhancing quality of life. In hospice, ST, OT, and PT are used very sparingly and only when the patient will benefit from visits from these disciplines. If you’re a hospice professional, it’s important to know that your agency might need to provide a few therapy visits. If you’re a caregiver for a hospice patient or a hospice patient, be sure to ask your interdisciplinary team if you think some therapy visits might be beneficial.

Register for your place at the California Hospice and Palliative Care Association conference coming up June 6-10 by visiting calhospice.org! Be sure to tell them you heard about it on The Heart of Hospice podcast.

The Heart of Hospice cares about your hospice caregiving journey. If you have a question about hospice philosophy and care, send an email to helen@theheartofhospice.com or jerry@theheartofhospice.com. We’re here to help!

Find more podcast episodes from The Heart of Hospice here: https://theheartofhospice.libsyn.com/

Connect with podcast host Jerry Fenter at jerry@theheartofhospice.com.

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

Send your questions and comments to host@theheartofhospice.com. We’d love to hear from you!

How to Make Solo Caregiving Easier, Heartbeat Episode 286

Fri, 06 May 2022 07:00:03 +0000

Solo caregiving is a complicated job. Creating a caregiving village can make it easier. Over 54 million people across the U.S. are unpaid caregivers. They might provide care for a spouse or partner, child, friend, or parent. They might also be providing that care by themselves - a solo caregiver. One person caring for another is often a full time job, especially if there’s a serious illness or terminal diagnosis. So many factors come into play: health issues of the caregiver, physical demands of the seriously ill person, financial demands, additional responsibilities or a full time paying job, around the clock duties, isolation, or safety concerns. Sometimes caregivers need to manage the care of more than one person. Solo caregiving has both pros and cons. As a solo caregiver, you become an expert in the patient, knowing routines, needs, history, and the details of care. Information is easier to manage, too, because it only flows to one person. Being a solo caregiver can also provide great meaning and purpose. While there are some positive qualities to solo caregiving, there are also drawbacks. Caregiver burnout, information overload, and isolation can stress the caregiving situation. There are ways to make it easier. Creating a caregiving village can be a huge help. Enlisting the assistance of friends, faith community members, and relatives and friends who are out of town and in-person can dilate the caregiving responsibilities. Providing support if someone lives out of town - remote caregiving - can be helpful with tasks like ordering groceries or keeping the family group informed about current events or changes in the patient’s condition. Dividing the duties reduces the burden on the primary caregiver. You can check out devices or app that available for help with managing a caregiving village - Caregiven, the GrandPad, Caring Bridge, physician patient portals, and CareStory.

Looking for a speaker for your event or conference? Send an email to helen@theheartofhospice.com or to jerry@theheartofhospice.com. We’d love to partner with you!

Find more podcast episodes from The Heart of Hospice here: https://theheartofhospice.libsyn.com/

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

Send your questions and comments to host@theheartofhospice.com. We’d love to hear from you!

Don’t miss the amazing Thresholds Conference sponsored by Hospice of Southern Maine on Tues., May 10 1:00pm - 3:30pm EST featuring Elizabeth Gilbert, author of Eat, Pray, Love. All virtual over Zoom, and only $35! Get your tickets by clicking here.

Connect with Hospice of Southern Maine at https://www.hospiceofsouthernmaine.org/.

How to Respect & Honor Other People's Hospice Choices, Heartbeat Episode 285

Fri, 29 Apr 2022 07:00:15 +0000

Choosing hospice care can be a very difficult decision, whether it’s for yourself or someone you are about. It’s important to respect those choices. Most people who decide to utilize hospice care have experienced a serious illness. Sometimes there’s been a catastrophic health event that limits someone’s life expectancy. It’s easy to judge someone else’s choices from an outsider perspective. Even hospice and end of life professionals criticize the choice not to accept hospice care when the referral is made by the healthcare community. It’s important to remember that we might not have all the information about a person’s illness or disease trajectory. People usually do a lot of living before they arrive in a situation where hospice is appropriate. Oftentimes there’s a desire to continue treatment to sustain hope, an unwillingness to let go of even the smallest chance of improvement. The need to respect a person’s end of life wishes has to be stronger than guilt or grief. So be supportive of someone’s decision to embrace hospice, or to delay it. The decision is what the patient says it is.

Connect with Hospice of Southern Maine at https://www.hospiceofsouthernmaine.org/.

Looking for a speaker for your event or conference? Send an email to helen@theheartofhospice.com or to jerry@theheartofhospice.com. We’d love to partner with you!

Find more podcast episodes from The Heart of Hospice here: https://theheartofhospice.libsyn.com/

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

Send your questions and comments to host@theheartofhospice.com. We’d love to hear from you!

Learning How to Interpret the Language of Hospice, Heartbeat Episode 284

Fri, 22 Apr 2022 07:00:37 +0000

Words, terms, and acronyms - it’s important to know how to speak the language to get the best quality hospice you can. When you’re in an unfamiliar situation, understanding the terms that are being used will help you to manage things better. There’s a lot of stress when someone is experiencing a serious illness, starting hospice, or communicating with a hospice interdisciplinary team. Professionals should use words that patients and caregivers understand, not leave them with more questions and increased anxiety. Listen to the whole episode for examples of the common terms you might hear in end of life care!

Patients and their caregivers should ask questions, and repeat those questions as needed. It’s ok to ask for clarification. Hospice providers should provide answers in a way that’s understandable, verbal and/or written. Interdisciplinary team members should never become impatient or irritated when asked for additional information. It’s important for those persons receiving care to know exactly what’s being discussed. Knowing the meaning of hospice terms will help enhance the care experience.

Connect with Hospice of Southern Maine at https://www.hospiceofsouthernmaine.org/.

Looking for a speaker for your event or conference? Send an email to helen@theheartofhospice.com or to jerry@theheartofhospice.com. We’d love to partner with you!

Find more podcast episodes from The Heart of Hospice here: https://theheartofhospice.libsyn.com/

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

Send your questions and comments to host@theheartofhospice.com. We’d love to hear from you!

How to Avoid Labels and the Damage They Cause, Heartbeat Episode 283

Fri, 08 Apr 2022 07:00:31 +0000

Using labels for people can be evidence of our implicit bias. Hospice providers can enhance the quality of care by avoiding labels. If you have a brain, you have a bias. It’s who we are as humans. The key to treating our patients and their families with respect and compassion is to avoid labels that make them less than human. Healthcare providers might not even realize the labels we give our patients are disrespectful or derogatory. It’s possible to describe a patient’s condition or status without using a term that is demeaning. It’s also possible to report behaviors using descriptive language. Seriously ill patients and families deserve our respect. Using labels removes that respect, and desensitizes our ability to have compassion. Labels give us permission to treat people as less than who they are. We don’t take care of patients - we take care of people. So look at your own biases and see their influence on the care you provide. Give your patients - your people - the best you have to give! Don’t miss the amazing Thresholds Conference sponsored by Hospice of Southern Maine on Tues., May 10 1:00pm - 3:30pm EST featuring Elizabeth Gilbert, author of Eat, Pray, Love. All virtual over Zoom, and only $35! Get your tickets by clicking here.

Connect with Hospice of Southern Maine at https://www.hospiceofsouthernmaine.org/.

Find more podcast episodes from The Heart of Hospice here: https://theheartofhospice.libsyn.com/

Connect with podcast host Jerry Fenter at jerry@theheartofhospice.com.

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

Looking for a speaker for your event or conference? Send an email to helen@theheartofhospice.com or to jerry@theheartofhospice.com. We’d love to partner with you!

How to Manage the Financial Aspects of Caregiving, Heartbeat Episode 282

Fri, 25 Mar 2022 07:00:04 +0000

Financial burden is a real problem for over 55 million caregivers across the U.S. What money issues do people need to consider before they take on the caregiving role? Often a caregiver has many roles, including being a full time wage earner and other family caregiving responsibilities like kids. Caregivers spent an average of $7000 of their own money in 2017 for things like medical expenses, legal fees, and paid caregiving help. It’s important to stay informed, and to think about the financial needs in advance if you can. Keep in mind the financial health of both the one needing care and the caregiver. Think about sustainability - how long can you afford to maintain a caregiving system? Is a caregiving system home feasible? Caregivers have health care needs, too. Not all partners or family members are physically able to care for a loved one. What if you live separately from the one needing care, possibly at a long distance? The costs of travel can mount. With the expectation that care needs will expand as a patient’s condition declines toward end of life, a village of caregivers becomes essential. Be proactive with these discussions, if you have the luxury of time. There are resources available - take time to check them out. One great option is AARP (American Association of Retired Persons). Find more caregiver support at theheartofhospice.com.

**Don’t forget to register for the California Hospice and Palliative Care Organization conference coming up in June 2022! The hosts of The Heart of Hospice podcast are beyond thrilled to be partnering with end of life educator Barbara Karnes of BK Books, author of Gone from My Sight (also known as the Little Blue Book), to feature a talk on getting back to the basics at the bedside. When you register, be sure to tell them you heard about it on The Heart of Hospice podcast! Grab your spot at the conference by clicking here.

Find more podcast episodes from The Heart of Hospice here: https://theheartofhospice.libsyn.com/

Connect with podcast host Jerry Fenter at jerry@theheartofhospice.com.

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

Send your questions and comments to host@theheartofhospice.com. We’d love to hear from you!

Help for Your Grieving Heart Series Wrap Up with Gabby Jimenez, Heartbeat Episode 281

Fri, 18 Mar 2022 07:00:56 +0000

We’re wrapping up our Grief Series in collaboration with Gabby Jimenez of The Hospice Heart, featuring social workers Isabel Stenzel and Lisa Pahl of The Death Deck. After discussing prolonged grief, helping children manage grief, and dealing with grief for someone while still providing care for someone else, we’ve grown in our understanding of how grief affects our lives. Gabby says that being stuck in grief really hit home with her. The situation of being unable to move through grief is very real. For Helen, Isabel’s guidance about how children grief was so helpful. As Isabel said, “If you’re old enough to love, you’re old enough to grieve”. Sometimes it’s hard to look beyond our own personal grief to consider the emotions and needs of someone else. Jerry talked about how grief can last for years, and those emotions can wash over us when we least expect it. The Heart of Hospice was honored to collaborate with The Hospice Heart, and to share the wisdom that Isabel and Lisa have to share.

You can connect with Lisa Pahl of The Death Deck at thedeathdeck.com.

Find out more about Isabel Stenzel’s story by buying her book The Power of Two: A Twin Triumph Over Cystic Fibrosis by clicking here.

Click here to watch Isabel’s TED Talk on the art of saying goodbye.

Read The Hospice Heart blog by Gabby Jimenez here.

Connect with Gabby’s Facebook group for The Hospice Heart here.

Find information about The Death Deck and Lisa Pahl at thedeathdeck.com.

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

Send your questions and comments to host@theheartofhospice.com. We’d love to hear from you!

Find more podcast episodes from The Heart of Hospice here: https://theheartofhospice.libsyn.com/

Connect with podcast host Jerry Fenter at jerry@theheartofhospice.com.

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

Help for Your Grieving Heart with Lisa Pahl and Gabby Jimenez, Part 5, Heartbeat Episode 280

Fri, 11 Mar 2022 08:00:26 +0000

In episode 5 in our Grief Series in partnership with Gabby Jimenez of The Hospice Heart, hospice social worker Lisa Pahl of the Death Deck is back to talk with us about managing grief for a loved one while still providing care for someone else. Multiple losses can be overwhelming, and Lisa reminds there’s no magic answer. It’s important to assess whether you can step back from current caregiving responsibilities and let someone else take on some of the work, even if it’s only temporary. Hospice professionals have to ask themselves the same question as they move from patient to patient. Being specific about what’s needed when we’re grieving is helpful as well. It can be overwhelming for a griever to have to make another decision about asking for help from other people. When you offer to help a griever, it can help to offer a specific service, task, or support. Sitting at a bedside, running errands, cooking a meal, babysitting for children are all good ways to ease the caregiving burden. This can take some responsibility off the griever, and make their burden a little lighter. Connect with Gabby Jinenez and The Hospice Heart at thehospiceheart.net. Find information about The Death Deck and Lisa Pahl at thedeathdeck.com. Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

Send your questions and comments to host@theheartofhospice.com. We’d love to hear from you!

Find more podcast episodes from The Heart of Hospice here: https://theheartofhospice.libsyn.com/

Connect with podcast host Jerry Fenter at jerry@theheartofhospice.com.

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

Send your questions and comments to host@theheartofhospice.com. We’d love to hear from you!

Help for Your Grieving Heart with Isabel Stenzel and Gabby Jimenez of The Hospice Heart, Part 4, Heartbeat Episode 279

Fri, 04 Mar 2022 08:00:09 +0000

Part 4 of our Grief Series with Gabby Jimenez of The Hospice Heart features bereavement social worker Isabel Stenzel, with a focus on grief in children and young adults. Younger people navigate grief differently. As hospice and bereavement professionals, it’s important to remember to respect the instinct and wishes of the parents. There are numerous ways children can be connected to someone who’s dying - writing letters and cards or drawing pictures. If we’re old enough to love, we’re old enough to grieve. A time of loss is an opportunity to teach a child how to navigate a grief journey. It’s important to prepare the child for what the child might see, like changes in body appearance or abilities to communicate. Explanations about death should be provided according to the developmental level of the child. Adults instinctively try to shield kids from experiences with death and dying, but kids can develop healthy coping mechanisms if appropriately involved in the death of a loved one. How adults cope with grief greatly influence how a child grieves, so it’s vital for adults to care for themselves and get the grief support they need. Using creative activities to create meaning and providing support that’s age appropriate can enable a child to navigate a loss in a healthy way.

Resources for grieving children include:

National Alliance for Children’s Grief - childrengrieve.org

The Dougy Center - dougy.org

Sesame Street YouTube videos

Connect with Gabby Jimenez and The Hospice Heart at thehospiceheart.net.

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

Send your questions and comments to host@theheartofhospice.com. We’d love to hear from you!

Find more podcast episodes from The Heart of Hospice here: https://theheartofhospice.libsyn.com/

Connect with podcast host Jerry Fenter at jerry@theheartofhospice.com.

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

Send your questions and comments to host@theheartofhospice.com. We’d love to hear from you!

Help for Your Grieving Heart with Lisa Pahl of The Death Deck, Part 3, Heartbeat Episode 278

Fri, 25 Feb 2022 08:00:21 +0000

Social worker and Death Deck co-creator Lisa Pahl is with us for part 3 of our Grief Series in collaboration with Gabby Jimenez of The Hospice Heart. Lisa is sharing tips for grief that lasts for years. We can’t take away the grief of someone else, but we can provide support and comfort through presence and touch. Something as simple as holding a hand and being quiet with someone can be helpful. Lisa also encourages participation in grief support groups. It’s important to engage in groups, resources, or even apps that work for the griever’s needs and ability to use technology. Hospice bereavement teams follow with families for up to a year following the patient’s death but sometimes that’s not long enough. How do we care for people who seem to be stuck in their grief for years following the death? Lisa recommends talking with a grief specialist or counselor. There are so many feelings to process in grief, and having a safe, trusted person to talk to is a huge help. Remember you’re not alone and there’s help out there for your grief.

Read more about Lisa Pahl at https://thedeathdeck.com/pages/about-us.

Get a set of Death Deck card for yourself at thedeathdeck.com.

Connect with hospice nurse Gabby Jimenez at thehospiceheart.net.

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

Send your questions and comments to host@theheartofhospice.com. We’d love to hear from you!

Find more podcast episodes from The Heart of Hospice here: https://theheartofhospice.libsyn.com/

Help for Your Grieving Heart with Isabel Stenzel and Gabby Jimenez, Part 2, Heartbeat Episode 277

Fri, 18 Feb 2022 08:00:39 +0000

In collaboration with Gabby Jimenez of The Hospice Heart, we’re featuring social worker Isabel Stenzel in Part 2 of our Grief Series. Isabel specializes in grief and bereavement, and she shares guidance about how to cope with grief in healthy ways. Identifying when extra support is needed during a grief journey is really important. Talking with a close friend who listens well, or a professional grief counselor is a good way to get help. Isabel offers that it can be helpful to focus on the grief during a talking session, and then set it aside for a while to relieve the tension of grief burden temporarily. Anticipatory grief is real and needs attention as well to deal with the uncertainty ahead. Healthcare providers, especially those who provide care for seriously ill and dying patients, need to seek help for the secondary grief they experience, too. After someone experiences the death of a loved one, Isabel advises each of us to trust our own instincts about when we need help. Oftentimes the busy time just after a death when there are so many tasks to complete might not be the best time to seek counseling. Getting help for grief might be more productive about two to three months after a death. Prolonged grief needs attention as well. Sometimes we’re so busy focusing on survival that we don’t deal with grief until later. If you feel stuck in your grief, find a trusted friend or grief counseling professional to work with. Your grief journey matters. Reach out to your local hospice agency for further grief and bereavement support.

Find grief support at psychologytoday.com

Connect with Gabby Jiminez and The Hospice Heart at thehospiceheart.net.

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

Send your questions and comments to host@theheartofhospice.com. We’d love to hear from you!

Find more podcast episodes from The Heart of Hospice here: https://theheartofhospice.libsyn.com/

Connect with podcast host Jerry Fenter at jerry@theheartofhospice.com.

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

Send your questions and comments to host@theheartofhospice.com. We’d love to hear from you!

Help for Your Grieving Heart Series, Part 1, Heartbeat Episode 276

Fri, 11 Feb 2022 08:00:33 +0000

Welcome to our series on grief in collaboration with Gabby Jimenez of The Hospice Heart, featuring grief experts Isabel Stenzel and Lisa Pahl of The Death Deck. Gabby, a hospice nurse, began noticing an increase in questions about grief on her Facebook group for The Hospice Heart. She’s partnered with us at The Heart of Hospice to bring you this six part series on grief. We’re going to be talking about numerous topics related to grief, including grief that seems to last for longer than it should, when to seek professional help for your grief, grieving for one person while caregiving for another person, and how to support grieving children. Subject experts Isabel and Lisa will join in the discussions to provide guidance on resources and solutions to honor your grief, as well as the grief of your friends and family. Subscribe to the podcast to hear this great series on navigating grief and loss. You can subscribe wherever you listen to podcasts, or listen on The Heart of Hospice website. Don’t miss this great series on grief!

Connect with Gabby Jiminez and The Hospice Heart at thehospiceheart.net.

Find more podcast episodes from The Heart of Hospice here: https://theheartofhospice.libsyn.com/

Connect with podcast host Jerry Fenter at jerry@theheartofhospice.com.

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

Send your questions and comments to host@theheartofhospice.com. We’d love to hear from you!

Self Care Series for Caregivers, Wrap Up, Heartbeat Episode 275

Fri, 04 Feb 2022 08:00:02 +0000

With over 50 million caregivers caring for loved ones across the U.S., self care has become an urgent need. We’re wrapping up our Self Care Series, helping you take care of body, mind, and spirit. Caregivers use their whole “selves” - body, mind, and spirit - to provide care for loved ones, family, and friends. If you’re a hospice professional caring for those who provide unpaid care for those with serious illness, it’s important to provide education on self care. Personal caregivers have reduced quality of life due to the demands of caregiving responsibilities. Isolation, sleep deprivation, deterioration of physical health, forgetfulness, hopelessness, and depression are some of the effects of the caregiving burden. A patient’s quality of life is dependent on the caregiver’s quality of life. So be intentional about Self Care. Make your Self Care attainable, sustainable, creative, comfortable, affordable - and fun! The Heart of Hospice cares about your hospice caregiving journey. If you have a question about hospice philosophy and care, send an email to helen@theheartofhospice.com or jerry@theheartofhospice.com. We’re here to help! Find more podcast episodes from The Heart of Hospice here: https://theheartofhospice.libsyn.com/

Connect with podcast host Jerry Fenter at jerry@theheartofhospice.com.

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

Send your questions and comments to host@theheartofhospice.com. We’d love to hear from you!

A Self Care Series for Caregivers, Part 4, Heartbeat Episode 274

Fri, 28 Jan 2022 08:00:15 +0000

In episode 4 of our Self Care Series, we’re talking about nurturing your spirit, supporting hope, and sustaining your spirit while providing care for someone with a serious illness. Just as you care for body and mind, it’s important to provide care for our spirits as well. While caregiving might create isolation for the caregiver, it’s possible to maintain practices that will support spiritual health. Music, nature, connecting to a faith community, and continuing personal faith rituals at home can provide positive influence on the human spirit. Be sure to connect with your faith leader or hospice chaplain for more spiritual care support, and stay connected to those who share your faith system. Whether your beliefs are centered around Buddhist, Muslim, Jewish, Christian, wikken, or you subscribe to an agnostic or antheist belief system, your spiritual still needs care. Check out more podcast episodes from The Heart of Hospice for information about self care of body, mind, and spirit. We’re here to support your caregiving and hospice journeys - you are The Heart of Hospice!

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

Send your questions and comments to host@theheartofhospice.com. We’d love to hear from you!

Find more podcast episodes from The Heart of Hospice here: https://theheartofhospice.libsyn.com/

Connect with podcast host Jerry Fenter at jerry@theheartofhospice.com.

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

Send your questions and comments to host@theheartofhospice.com. We’d love to hear from you!

A Self Care Series for Caregivers, Part 3, Heartbeat Episode 273

Fri, 21 Jan 2022 08:00:00 +0000

Providing care for a loved one can have long-term effects on mental health. In part 3 of our Self Care Series for Caregivers, we’ve got tips for self care of the mind. When it comes to self care, we have to care for body, mind, and spirit. Caring for one of the parts of our Self means we’re also caring for the other two. If you’re an unpaid caregiver, you put in a lot of work to meet the needs for your loved one. It’s important to remember to care for yourself. When the overwhelm starts to affect mental health, it might cause an inability to focus or concentrate. Sometimes impatience, guilt, and frustration becomes part of the caregiver’s mental health. How can you offset the mental fatigue that can set in? First, find someone to talk to. A friend or family member on the phone or by video chat can be a source of support. A professional can be helpful as well - a licensed counselor, or the hospice social worker or chaplain can support your mental health. You’re important and essential to the care of your loved one. The Heart of Hospice cares about your hospice journey. Connect with us at theheartofhospice.com and find more podcast episodes at theheartofhospice.com/listen. We’re here to help you - you are The Heart of Hospice!

Connect with podcast host Jerry Fenter at jerry@theheartofhospice.com.

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

Send your questions and comments to host@theheartofhospice.com. We’d love to hear from you!

Find more podcast episodes from The Heart of Hospice on hospice philosophy, hospice basics, self care, and advance care planning here: https://theheartofhospice.libsyn.com/

A Self Care Series for Caregivers - Part 2, Heartbeat Episode 272

Fri, 14 Jan 2022 08:00:00 +0000

Caregiving can take a toll on the physical health of a caregiver. We’ve got some tips in episode 2 of our Self Care Series for Caregivers! Of course, it’s important to get clearance from your doctor before you start any physical regimen. Then start out low and low. Listen to what your body is telling you. Make your exercise regimen affordable, reasonable, sustainable, and mostly importantly - fun! Do an activity that’s enjoyable for you. Make it a social activity and invite a friend. Having someone to exercise with, having company in the form of an accountability partner is a great way to keep the exercise going. One of the most important things a caregiver can do for the person he cares for is take care of himself. The quality of life of a person with chronic, serious, or terminal illness is affected by the quality of life of the caregiver. Stay in touch with The Heart of Hospice for more episodes in our Self Care Series for Caregivers! You are The Heart of Hospice.

Find more podcast episodes from The Heart of Hospice on hospice philosophy, hospice basics, self care, and advance care planning here: https://theheartofhospice.libsyn.com/

Connect with podcast host Jerry Fenter at jerry@theheartofhospice.com.

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

Send your questions and comments to host@theheartofhospice.com. We’d love to hear from you!

A Self Care Series for Caregivers, Part 1 - Intro, Heartbeat Episode 271

Fri, 07 Jan 2022 08:00:00 +0000

Welcome to part 1 of our series on Self Care for Caregivers! 53 million people across the U.S. are unpaid caregivers for a loved one, and they need intentional self care every single day. Caregiving responsibilities affect the caregiver in almost every aspect of life, taking a big toll on body, mind, and spirit. It’s a hard job, sometimes very solitary, and affects quality of life for the caregiver. Because the caregiving system of a terminally ill or seriously ill person is so fragile, it’s important that the caregiver practice self care on a daily basis. Self care that cares for the physical body, the mental state, and the spirit is paramount. Whole person self care is what’s needed. This series will offer self care tips and suggestions to choose from to make your self care easier. Subscribe to the podcast to receive notice of all the episodes in the series!

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

Send your questions and comments to host@theheartofhospice.com. We’d love to hear from you!

Find more podcast episodes from The Heart of Hospice here: https://theheartofhospice.libsyn.com/

Connect with podcast host Jerry Fenter at jerry@theheartofhospice.com.

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

A New Year Brings New Possibilities, Heartbeat Episode 270

Fri, 31 Dec 2021 08:00:00 +0000

We’re on the brink of the near year and the possibilities are endless. What do we hope 2022 will bring for the hospice industry? Looking at the year ahead, we hope for good things to come. Above all, we hope for a resolution to the pandemic that has brought so much suffering around the world. Jerry and Helen will be connecting with some awesome guests in the new year- experts in the hospice industry who’ll share their professional experiences along with their personal journeys in end of life care. We’ll be introducing you to new industry trends and reconnecting you with the roots of hospice. There are so many good things in end of life care - kindness, generosity, compassion, gratitude, consideration, tolerance, empathy, and inclusion. We encourage you to practice self compassion. Whether you’re a patient, caregiver, or hospice professional, you matter to us. We wish you joy and love for 2022. Thank you for being part of our hospice journey!

Connect with podcast host Jerry Fenter at jerry@theheartofhospice.com.

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

Send your questions and comments to host@theheartofhospice.com. We’d love to hear from you!

Find more podcast episodes from The Heart of Hospice here: https://theheartofhospice.libsyn.com/

2021 - The Year in Review, Heartbeat Episode 269

Fri, 24 Dec 2021 08:00:00 +0000

We’re looking back on 2021 and all the changes it brought for the hospice industry. Some of the changes were good, and some of the changes were challenging. Staffing shortages, waiting lists for patients to be admitted to hospice, regulatory changes, and shortages of PPE were a few of the obstacles hospice teams all over the country face. 2021 also brought some changes that improved the care we provide. Learning to use technology to keep our team members updated and keep patients connected with their loved ones became a strength for end of life professionals. The Heart of Hospice podcast featured some fantastic guests this year - be sure to check out all our archived podcasts on The Heart of Hospice website on the Listen page. Stay connected with us! We’ve got great plans for 2022 and we’d love for you to share our hospice journey. You are The Heart of Hospice.

Find more podcast episodes from The Heart of Hospice here: https://theheartofhospice.libsyn.com/

Send your questions and comments to host@theheartofhospice.com. We’d love to hear from you!

Connect with podcast host Jerry Fenter at jerry@theheartofhospice.com.

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

How Professional Boundaries Keep Everybody Safe, Heartbeat Episode 268

Fri, 17 Dec 2021 08:00:00 +0000

The professional boundaries that hospice teams should maintain help to keep everyone safe - patients and caregivers, as well as the end of life professionals providing the care. It’s important that the boundaries between care providers and care consumers are established from the start of care and continue until the last day care is provided. Unhealthy or blurred boundaries can cause patients or their caregivers to have unrealistic expectations about the kind of care an interdisciplinary team will provide. Connection through social media, engaging deeply within the family life of the patient, or disclosing personal issues to patients and caregivers causes dual-role relationships that put additional stress and grief on patients and their caregivers. Boundaries help to create healthy emotional and mental relationships between end of life professionals and those for whom they provide care. Those boundaries help us to avoid becoming fully engaged grievers. It helps the hospice team to give the best care they can!

Find more podcast episodes from The Heart of Hospice here: https://theheartofhospice.libsyn.com/

Send your questions and comments to host@theheartofhospice.com. We’d love to hear from you!

Connect with podcast host Jerry Fenter at jerry@theheartofhospice.com.

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

Self Care Lessons We Learned From the Pandemic, Heartbeat Episode 267

Fri, 10 Dec 2021 08:00:00 +0000

The pandemic has taught us some lessons in self care. In this episode, we’re talking about what worked, the mistakes we made, and what we should have done differently. Having to change our self care for body, mind, and spirit made us realize how important it is to maintain healthy habits. The stress and restrictions caused by the public health emergency forced changes in our workouts. It was difficult to be consistent in healthy activities. We created a small workout group to increase our accountability and keep each other safe in the summer heat. Self care of mind and spirit has had to change this year as well. Finding ways to worship that fed our spirits made us get creative, utilizing music and time outdoors. We made lots of mistakes and the healthy habits got set aside, making way for poor food choices, isolation, and sedentary activities. We’re working hard to re-establish healthy habits, getting back to self care that’s positive, sustainable, and individualized.

Find more self care resources for personal caregivers on The Heart of Hospice website: https://www.theheartofhospice.com/care/self-care-resources/self-care-for-personal-caregivers/

And check out self care resources for professional caregivers here: https://www.theheartofhospice.com/care/self-care-resources/self-care-for-the-professional-caregiver/

Connect with Helen Bauer:

helen@theheartofhospice.com

Connect with Jerry Fenter:

jerry@theheartofhospice.com

Receive The Heart of Hospice podcast in your email here:

https://www.theheartofhospice.com/connection/

For podcast sponsorship opportunities contact us:

host@theheartofhospice.com

Find more episodes from The Heart of Hospice here:

https://theheartofhospice.libsyn.com/

Jerry and Helen Recommend the Fading Memories Podcast, Heartbeat Episode 266

Fri, 03 Dec 2021 08:00:00 +0000

The Fading Memories podcast is a great resource for Alzheimer’s and dementia caregivers. Host Jennifer Fink provides information, inspiration, and even some giggles. According to the Fading Memories podcast website, Jennifer interviews people who have some of the answers and families currently on this journey. The website features links to the podcast, a blog, even recipes for people caring for loved ones with memory loss. You can listen to the podcast at https://fadingmemoriespodcast.com/category/episodes/ or find it on Apple Podcasts or Spotify. If you’re caring for someone with Alzheimer’s disease or dementia, remember you’re not alone. The Fading Memories podcast is here to help.

Connect with the Fading Memories resources by clicking here. https://fadingmemoriespodcast.com/

Find Fading Memories on Facebook by clicking here.

https://www.facebook.com/AlzheimersPodcast

Connect with host Jennifer Fink here.

https://www.linkedin.com/in/jennifer-fink-338957/

Receive The Heart of Hospice podcast in your email here:

https://www.theheartofhospice.com/connection/

For podcast sponsorship opportunities contact us:

host@theheartofhospice.com

Find more episodes from The Heart of Hospice here:

https://theheartofhospice.libsyn.com/

Connect with Helen Bauer:

helen@theheartofhospice.com

Connect with Jerry Fenter:

jerry@theheartofhospice.com

Creating Meaning With a Memorial Tattoo, Heartbeat Episode 265

Wed, 01 Dec 2021 02:49:15 +0000

Remembering a loved one with a memorial tattoo is a unique way of creating meaning out of loss. Memorial tattoos, also known remembrance tattoos, can be a meaningful part of a grief journey. Many people who’ve experienced the loss of a loved one get tattoos in memory of someone special, a friend or loved one, or even a pet. Sometimes it’s a name, sometimes it's a symbol or custom design. These types of tattoos benefit our grief journey, and honor the experience of loss. It’s a unique and last way of making meaning during a grief journey. Grief expert David Kessler’s book Finding Meaning: The Sixth Stage of Grief describes the benefit of creating meaning after experiencing a grief event. You can find David’s work at grief.com and buy the book on here. The Heart of Hospice is here to support you as you navigate serious illness and end of life care. Your journey matters - you are The Heart of Hospice.

Get grief support with David Kessler here:

https://grief.com/

Find more grief services and resources at Radical Grief with grief coach Melissa Lunardini, MA, MBA, FT

https://radicalgrief.org/

Read about more about memorial tattoos here:

https://www.huffpost.com/entry/grief-loss-tattoo-mental-health_l_5ff391e5c5b65a922910bf1c

Receive The Heart of Hospice podcast in your email here:

https://www.theheartofhospice.com/connection/

For podcast sponsorship opportunities contact us:

host@theheartofhospice.com

Find more episodes from The Heart of Hospice here:

https://theheartofhospice.libsyn.com/

All About Hospice for Hospice and Palliative Care Month Part 3, Heartbeat Episode 264

Fri, 19 Nov 2021 08:00:00 +0000

In episode 3 of our series in honor of National Hospice and Palliative Care Month, we’re sharing what we think hospice will look like in the future, along with our wishes for end of life care. The large Baby Boomer population is going to require skilled clinicians, and a lot of them! The use of telehealth has become a valuable tool for hospice teams and will probably be used even more in the future. Hospice professionals, regardless of what discipline, will need to be skilled communicators to provide education to seriously ill patients and their caregivers. When we think about changes we’d like to see happen in the hospice industry, changes to the 6 month terminal prognosis requirement are at the top of the list, to better fit what hospice care looks like now. Mandatory formal education related to end of life care for physicians and nurses would be an important and valuable addition to the hospice profession, too. Standardized education for spiritual counselors would be a great add-on, too, to ensure that spiritual care for terminally ill patients is provided by trained spiritual clinicians. And at the top of our list - equitable care for all of races and populations across the United States. Send us your wish list for hospice via email to host@theheartofhospice.com.

Receive The Heart of Hospice podcast in your email here:

https://www.theheartofhospice.com/connection/

For podcast sponsorship opportunities contact us:

host@theheartofhospice.com

Find more episodes from The Heart of Hospice here:

https://theheartofhospice.libsyn.com/

All About Hospice for Hospice and Palliative Care Month, Part 2, Heartbeat Episode 263

Fri, 12 Nov 2021 08:00:00 +0000

In part 2 of our series in celebration of National Hospice and Palliative Care Month, we’re discussing current trends in hospice in the U.S. Hospice has changed through the years. While we still take care of cancer patients, we also see patients at end of life with other diagnoses - cardiac, dementia, respiratory, stroke, and kidney (renal) conditions. According to NHPCO Facts and Figures report from 2020, Over half of hospice patients in the US are on service for 30 days or less , and a quarter of hospice patients receive care for 7 days or less. Staffing is a challenge for hospice agencies, and for the first time, agencies might be asking new patients to go on waiting lists. The pandemic created challenges (access to PPE, restrictions on visits) and changes (waivers, telemedicine). Hospice teams are still dedicated, making changes, finding new ways to provide quality care. We’re grateful for the diligence of hospice agencies all across the U.S. and for the trust our patients place in us. Hang in there, everybody! No matter where you are in your hospice journey, you are The Heart of Hospice.

Find the most current NHPCO FActs and Figures Report here:

https://www.nhpco.org/hospice-facts-figures/

Receive The Heart of Hospice podcast in your email here:

https://www.theheartofhospice.com/connection/

For podcast sponsorship opportunities contact us:

host@theheartofhospice.com

Find more episodes from The Heart of Hospice here:

https://theheartofhospice.libsyn.com/

All About Hospice for Hospice and Palliative Care Month, Pt. 1, Heartbeat Episode 262

Fri, 05 Nov 2021 07:00:00 +0000

November is National Hospice and Palliative Care Month! We’re talking about the history of hospice, including medieval hospice houses, Dame Cicely Saunders, Florence Wald, and the modern hospice movement. The rich history of hospice began in medieval times as monks and nuns of the religious orders of the time created hospice houses where travelers along the road who were ill or injured were cared for until they died. Through the founding of St. Christopher’s Hospice in London, Dame Cicely Saunders launched the modern hospice movement. Florence Wald helped to get hospice started in the U.S along with clergy, healthcare leaders, and other community leaders. Dr. Elisabeth Kubler-Ross was instrumental in changing end of life care with her ground-breaking work in the stages of death and dying. The Medicare hospice benefit was created in the mid-1960’s in the U.S., allowing hospice care coverage for those who were terminally ill. Hospice has a rich history around the world!

Hear more about St. Christopher’s Hospice in our interview with Joint Chief Executive Sean O’Leary: https://theheartofhospice.libsyn.com/rediscovering-the-roots-of-modern-day-hospice-with-shaun-oleary-episode-085

Find information about the Elizabeth Kubler-Ross Foundation: https://www.ekrfoundation.org/

Receive The Heart of Hospice podcast in your email here:

https://www.theheartofhospice.com/connection/

For podcast sponsorship opportunities contact us:

host@theheartofhospice.com

Find more episodes from The Heart of Hospice here:

https://theheartofhospice.libsyn.com/

Our Top 10 Tips for Personal Caregivers, Heartbeat Episode 261

Fri, 29 Oct 2021 07:00:00 +0000

We’re sharing our top 10 tips for the over 53 million unpaid caregivers in the U.S.! Caregiving is a hard job. It takes patience, energy, self-awareness, and endurance. We’ve been personal caregivers for family members and friends on hospice, in addition to our work as end of life professionals. To help our caregiving colleagues, we’ve put together a list of tips we think are the most crucial things a caregiver should do. It’s important to remember to take breaks, both short (like a cup of coffee or some deep breathing) and long (like the 5 day respite from your hospice team). Keep a list of tasks you need help with and let your “village” choose what they can help with. Keep up with your own health needs; you’re in this for the long haul. Learn ways to make caregiving easier (using technology and caregiving apps like Caregiven). Don’t neglect your mental health, and connect with others outside of your caregiving circle - don’t let yourself become isolated. Remember to laugh, stay organized, and keep healthy habits for mind, body, and spirit. And our #1 tip - be an advocate for your loved one’s needs and for your own needs. We hope our top 10 list is helpful to you. There’s more information to help with your caregiving journey at theheartofhospice.com. Self care, advance directives, and hospice philosophy, it’s all there for you on our podcasts. Check out the Caregiven blog and download the free Caregiven app! You’re not alone in your journey. The Heart of Hospice is here for you 24/7. You are The Heart of Hospice!

Get the Insider Information on Managing Narcotics in Hospice, Heartbeat Episode 260

Fri, 22 Oct 2021 07:00:00 +0000

Patients with serious illness frequently need pain management. How do hospice teams manage opioids and the challenges that come with them? There’s often a lack of understanding about how pain medications are used in end of life care. When a patient’s pain is managed, his quality of life is better. Hospice physicians and nurses are responsible for ensuring the pain is adequately and safely controlled. Pain affects many aspects of the patient’s life - sleep, mindset, activity tolerance, social interactions, participation in personal care, and appetite. That’s why everyone on the hospice interdisciplinary team is responsible for assessing whether the patient has pain. If a patient reports pain, that report goes back to the nurse. The nurse collaborates with the physician who will order a pain medication appropriate for the patient. Often those pain meds are opioids. Those medications can be challenging. It’s important to know that addiction for a person at the end of life is not a concern, and hospice teams NEVER use medications to accelerate death. Of course it’s always the patient’s (or caregiver’s) choice to use opioids or even have them in the house. Hospice professionals should respect those choices and look for other ways to manage the patient’s pain. When medications are stolen to be sold or for use by someone else besides the patient, that’s called “diversion”. It’s always important to tell your hospice team if there’s a risk of diversion in a home, including family members with a history of substance use disorder. You can find more information about managing pain and other symptoms at end of life at theheartofhospice.com. Check out The Heart of Hospice podcast page for all our episodes with great interviews and personal stories about end of life care with hospice. Connect with Helen and Jerry by sending an email to host@theheartofhospice.com. We’d love to hear from you to answer your questions and hear your comments. You are The Heart of Hospice!

Simplifying Medications by Deprescribing, Heartbeat Episode 259

Fri, 08 Oct 2021 07:00:00 +0000

It’s a hospice patient’s right to choose how medications are managed. Deprescribing (simplifying or reducing) meds can be a huge benefit to both patient and caregiver. There’s a myth that all the medications will be stopped when a seriously ill patient is admitted to hospice services. Not true!! Medications for hospice patients are reviewed by the doctor and the team when hospice services start. The patient and/or caregiver is part of that discussion. Often the patient reports the number of medications is a burden. In hospice we call it “pill burden”. Too many medications, along with their side effects, can eventually contribute to caregiving burden and to the suffering of a terminally ill patient. The hospice IDT and doctor will also look at stopping medications that no longer benefit the patient, or are contraindicated. As a patient’s symptoms and needs change, meds will be adjusted. Those adjustments can be frequent and fast paced to get a patient comfortable. Depending on the symptoms, meds can be given in different forms - pills, drops, liquids, gels, suppositories, inhaled solutions. In certain circumstances injectable medications are used, but the goal is always the comfort of a patient. It’s important to remember that deprescribing is never done without the consent of the patient, and is always done with the best interest of both patient and caregiver. If you need more information about hospice philosophy and practices, check out theheartofhospice.com. We’ve got podcasts to support your end of life experience with episodes on the hospice team, levels of care, caregiving, grief, and bereavement. Send any questions host@theheartofhospice.com. You are The Heart of Hospice.

Home is Where the Hospice Patient Says It Is, Heartbeat Episode 258

Fri, 24 Sep 2021 07:00:00 +0000

Hospice interdisciplinary teams provide the best care possible for seriously ill people, no matter where they call home. Whether it’s a long term care facility (nursing home), assisted living facility, private residence or apartment, halfway house, a homeless shelter, or on the streets, end of life care professionals try to meet the needs of the patient in the patient’s own space. Coordinating with other care providers is key. Talking with facility staff or care coordinators should happen with every visit, and every time there’s a change in the patient’s condition. The other key action is communication with the family, whoever the patient has identified as those who are important to him or involved in the care. Part of caring for the patient is caring for the caregivers or family. Hospice team members should contact family members every time a visit is made, or if the needs of a patient change. Facility staff needs the support of the team when it comes to bereavement after the death of the patient as well. The Heart of Hospice is here to support you with more information about hospice care, so check out theheartofhospice.com to find resources on hospice philosophy and basics, advance care planning, and all of our archived podcasts from The Heart of Hospice. Send any questions or inquiries about speaking engagements for Jerry Fenter or Helen Bauer to host@theheartofhospice.com. We’re here to support your end of life journey - you are The Heart of Hospice.

Including the Entire Hospice Team in the Care of the Patient, Heartbeat Episode 257

Fri, 17 Sep 2021 07:00:00 +0000

Utilizing every discipline on the hospice interdisciplinary team helps to ensure the best outcomes and quality of care. Here 's why. Each member of a hospice team brings unique skills along with specialized training to the care of a seriously ill patient, and their caregivers, too. Nurses (RNs, LVNs/LPNs), doctors, and nurse practitioners manage the clinical parts of patient care. Spiritual counselors (or chaplains) care for the spiritual health of the patient, for all possible faith systems or beliefs. Psychosocial needs (mental and emotional health needs) are managed by the social worker. An aide provides personal care such as assistance with showering, bed baths, catheter care (cleaning only), linen changes, and other light household tasks specifically for the patient. Volunteers provide not only companionship, but a myriad of other services. The special connection between hospice volunteers and their patients and caregivers is one of the best things about hospice care! By allowing all the different members of the hospice team to provide care, patients have enriched care. Caregivers receive additional support, resources, and education.

If your business supports hospice agencies, The Heart of Hospice would like to partner with you as a sponsor on The Heart of Hospice podcast. Just send an email to host@theheartofhospice.com to plan a customized sponsorship plan for you. The Heart of Hospice is here 24/7 to support your hospice journey. Hospice professionals, patients, caregivers, volunteers - we’re here for you. You are The Heart of Hospice.

What to Expect From Hospice When a Patient Dies, Heartbeat 256

Fri, 10 Sep 2021 07:00:00 +0000

There’s a lot to process when a hospice patient dies. Grief emotions along with business decisions can make it complicated. Today we’re talking about what a hospice death events looks. Death is common in hospice care, and interdisciplinary teams are highly skilled in caring for patients and families when it occurs. Nurses, social workers, chaplains, and aides can all be involved. Each team member present will provide care according to his skill set. Nurses and aides often provide post mortem care, washing and cleaning the body before it’s taken from the home. Social workers and spiritual counselors (chaplains) provide bereavement care and support for the family. All of the care should be provided according to the patient’s wishes, including faith rituals like dressing the patient in religious garments, anointing, or cleansing of the body by certain family members. Chaplains will coordinate with community clergy to provide specific faith rituals as requested by the family or patient. Volunteers who have been working with the family as 11th hour volunteers or end of life doulas might also be at death events to support a family. Find more information about hospice care and philosophy at theheartofhospice.com. The Heart of Hospice is here to support you. Send questions and comments to host@theheartofhospice.com. We’ll send you a personal reply. Whether you’re a hospice professional or an unpaid caregiver for someone who’s seriously ill, your end of life journey matters. You are The Heart of Hospice.

How to Cope When Your Loved One Stops Eating, Heartbeat Episode 255

Fri, 03 Sep 2021 07:00:00 +0000

One of the major milestones in serious illness occurs when a patient stops eating and drinking. We're talking about why it happens, how to cope with it, and what it means. When someone with a serious illness moves toward death, he might begin to have difficulty taking in food or fluids. It's a hard thing for those who love them to watch. Patient might refuse food, or have difficulty chewing or remembering to swallow. It's a sign of hope and thriving to be able consume food, so when that ability stops it's a major milestone in the disease process. Family members and caregivers might offer snacks or favorite foods to encourage a patient's appetite. That doesn't change what's happening, or how the disease will progress. Because the human body naturally knows how to die, forcing food either by mouth or using a feeding tube can cause problems like choking, aspiration, or pneumonia. Intravenous fluids given to hydrate the patient can overload the patient's circulatory system and cause respiratory distress. Dehydration is a natural part of the dying process and can even give the patient a feeling of wellbeing. Hospice teams should recognize and respect how difficult this milestone is for caregivers. Gentle education and honest discussion will help them to navigate this step in the trajectory of a serious illness. To find more podcasts from The Heart of Hospice, visit theheartofhospice.com. We’re here to support your hospice journey, with support and encouragement. There’s information on advance care planning, self care, caregiving, and the basics of hospice philosophy. No matter where you are in your hospice journey, The Heart of Hospice is here to help.

How to Say You Care with a Care Package from ‘Beyond Words Co.’, Heartbeat Episode 254

Fri, 27 Aug 2021 07:00:00 +0000

When you want to support someone who’s going through grief, loss, or a difficult life transition, a carefully curated care package from Beyond Words Co. is the perfect way to say you care. Founder Catherine Hinz realized through her own grief experience how much we need thoughtful care. Through the specially chosen products of a care package from Beyond Words Co.,the sender can show support and encourage a griever through many of life’s challenges. Each product is responsibly sourced and thoughtfully chosen. Simple labels, healthy ingredients, and soothing colors to influence mood help to make each item meaningful and useful. Catherine shares tips on Beyond Words Co.com about how to put a box together and even write a personal message for a recipient when you’re not sure what to say. Beyond Words Co. can even help you support coworkers and team members at your business with care packages. To get an extra 10% discount on your next Beyond Words Co. purchase, use the code “theheartofhospice” when ordering. It’s a great way to support and encourage someone you care about. If you need more information about hospice care, its philosophy, and how hospice teams work to care for seriously ill patients and their families, check out theheartofhospice.com. We’re here for you 24/7. On the podcast page, you’ll find topics about end of life care ranging from advance care planning and how to shop for a hospice agency, to hospice philosophy and health self care for caregivers both personal and professional. Connect with Helen and Jerry by sending an email to host@theheartofhospice.com. You are The Heart of Hospice!

How Long Do I Have? - Answering the Time Question - Heartbeat Episode 253

Fri, 20 Aug 2021 07:00:00 +0000

How long does the patient have? It’s probably the hardest question for the hospice team to answer. Patients and families have different motives for asking. Sometimes it’s as simple as needing to know how much time to ask off from work, or when to schedule FMLA. The motive for asking the “time question” might be more complicated, related to caregiver fatigue, expenses, or family dynamics. Hospice professionals should provide the best answer they can, but every death is a little different. Regardless of what reason someone has for asking how long a patient has, end of life professionals should respond without judgment. While the hospice nurse, nurse practitioner, or physician will provide a clinical answer, the hospice social worker and spiritual counselor (also known as a chaplain) can help support the patient and family. The social worker and chaplain can help to facilitate family conferences and discussions about managing the time the patient has left. One of the most valuable things a caregiver can do is to listen to what their loved one’s body is saying. Changes in sleep patterns, food and fluid intake, and social interaction are big indicators for disease trajectory. When a person begins to actively die, there are milestone changes that can often be seen - changes in breathing, skin color and temperature, and level of responsiveness. We know your hospice journey is 24/7. You can always connect with us at theheartofhospice.com. Send an email to Helen and Jerry at host@theheartofhospice.com. We’re glad to connect with you to support your end of life journey. You are The Heart of Hospice.

Why You Should Attend the NHPCO IDC 2021, Heartbeat Episode 252

Fri, 13 Aug 2021 07:00:00 +0000

There’s a great virtual learning opportunity from the National Hospice and Palliative Care Organization at the IDC 2021! The Interdisciplinary Conference 2021 brought together by NHPCO will offer some highly valuable education to hospice and palliative care professionals on September 20-22, 2021. It’s all virtual this year, eliminating the cost of lodging and travel. The IDC is a great way to get your required CE/CMEs for license and certification renewal. Because it’s being offered virtually, attendees will be able to access the content through December 31, 2021.

According to the NHPCO website, the Conference “is designed for professionals in the hospice and palliative care field and related stakeholders in the following disciplines and roles: nurses and advanced nurse practitioners, bereavement, palliative care, pediatrics, physician, quality, regulatory and compliance, social work, spiritual care.” Take advantage of this great opportunity to hear keynote speaker Dr. Jessica Zitter and to screen her new documentary “Caregiver: A Love Story”. Register by clicking here! You’ll find more support for your end of life journey by visiting theheartofhospice.com. We’re here to support you 24/7, offering podcasts on all things hospice-related. If you’d like to book Jerry or Helen as a speaker for your next conference, agency memorial service, or company event, send an email to host@theheartofhospice. No matter where you are in your hospice journey, you are The Heart of Hospice!

Documentation: Why We Do It, and How to Keep It from Disrupting Care, Heartbeat Episode 251

Fri, 06 Aug 2021 07:00:00 +0000

Document, document, document! Documentation is vital to how hospice works, but how can we keep it from disrupting patient care? Even though it seems to be a nuisance and takes a lot of time, it’s crucial to the care of seriously ill patients to document everything we do for our patients. Medical records are created from our documentation. It’s how we get paid, how we stay compliant with regulations. One of the most important aspects of documentation of the care of hospice patients is how it keeps everyone on the interdisciplinary team informed about the patient and caregiving system. Keeping a current record of a patient’s care is the responsibility of every single discipline on the hospice team. The documentation is never more important than the patient’s care, but it’s still important. It’s also smart to do the documentation at the point of care, which means to record everything at the visit, or immediately afterwards. If you’re a patient or family caregiver for a hospice patient, please answer questions fully and honestly. It will help your team to provide better care. Don’t forget to provide your team with important documents like DNRs, living wills, guardianship documents, and other advance directives. If you need more information about how hospice teams work, check out theheartofhospice.com. On The Heart of Hospice podcast page, you’ll find podcasts you can listen to any time that works for you, on every topic related to end of life and hospice care. Looking for a speaker for your hospice conference or agency event? Email us at host@theheartofhospice.com to discuss featuring one of the hosts of The Heart of Hospice podcast at your next meeting. You are The Heart of Hospice!

What to Know About Zen Buddhist Practices at End of Life With Jon Prescott, Episode 125

Fri, 14 Oct 2022 07:00:00 +0000

Board Certified Clinical Chaplain Jonathan Prescott is back with us to discuss end of life practices in the Zen Buddhist tradition. Jon is a student of Zen Master Thich Nhat Hanh. Jonathan’s practice as a Clinical Chaplain and Pastoral Counselor is to “support people experiencing illness and end of life, foster effective caregiving and reconnect people with their innate wisdom and compassion”. As co-founder of the non-profit organization Radiant Light Zen, Jon works with a team to “offer contemplative training for people interested in beginning or deepening their meditation practice. [We] host several geographically dispersed online communities, mentor students, and train caregivers in the arts of compassionate care.” In this discussion, Jon describes the beliefs of the Zen Buddhist about death and dying, and ways in which hospice professionals can support Zen Buddhist patients and families during bereavement care.

Connect with Radiant Light Zen by clicking here.

You can support the work of Jon and Radiant Light Zen by donating here.

Interested in purchasing a GrandPad for a loved one? Click here.

Get information about GrandPad purchases for your facility or agency here.

Find more podcast episodes from The Heart of Hospice here: https://theheartofhospice.libsyn.com/

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

What You Need to Know About the End Well Project with Tracy Wheeler, Episode 124

Fri, 07 Oct 2022 07:00:00 +0000

End Well’s Executive Director Tracy Wheeler is talking with us about end of life discussions, transforming how we think about death, and the launch of End Well’s new podcast! End Well’s goal as a non-profit organization is to “bring together a community that unites design, technology, health, policy, and activist initiatives to transform how the world thinks about caregiving, grief, illness and the end of life experience with the ultimate goal of creating a future where ending well becomes a measure of living well”. Whether you’re a patient, a caregiver, an entrepreneur, or working in healthcare, End Well has information for you. The End Well website has videos and blogs that provide support and comfort, discuss new trends, and answer questions about end of life issues.

Listen to the new End Well podcast trailer here.

Connect with End Well’s mission and work here.

Check out the End Well Project’s video resources here.

Find End Well’s blog article resources here.

Interested in purchasing a GrandPad for a loved one? Click here.

Get information about GrandPad purchases for your facility or agency here.

Find more podcast episodes from The Heart of Hospice here: https://theheartofhospice.libsyn.com/

How to Manage Disenfranchised Grief with Carol Schoneberg, Episode 123

Fri, 30 Sep 2022 07:00:00 +0000

End of life educator Carol Schoneberg is sharing wisdom about disenfranchised grief, the grief that society says isn’t real, but we all experience. There are a lot of reasons someone’s grief might be disenfranchised. Dysfunctional relationships where there was abuse, or former relationships like ex-spouses can be sources of grief that’s not recognized by the people around us. That disenfranchisement makes us feel isolated, even invisible. Carol teaches us how important it is to have supportive friends or family. Creating rituals to acknowledge a loss can be a great coping mechanism. Validating the loss and recognizing its impact are beneficial in dealing with disenfranchised grief. Grief is grief. There’s no right or wrong way to grieve. Each person has their own style of grieving.

Connect with Carol Schoneberg and her grief counseling services at carolschoneberg.com.

Listen to our first conversation with Carol Schoneberg here.

Interested in purchasing a GrandPad for a loved one? Click here.

Get information about GrandPad purchases for your facility or agency here.

Find more podcast episodes from The Heart of Hospice here: https://theheartofhospice.libsyn.com/

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

Sharing CJ's Legacy: A Story About Pediatric Hospice With Kasey Carmona, Episode 122

Fri, 23 Sep 2022 07:00:18 +0000

Warning: This episode contains a description of the loss of a terminally ill infant. It may not be for all listeners.

Boy mom and advocate Kasey Carmona shares the story of her family’s hospice journey with her son CJ. Using her voice to advocate for her baby’s healthcare, Kasey and her family created quality of life for CJ. What they found were moments of joy and pockets of goodness in a difficult journey. Our gratitude goes out to Kasey for her generosity of heart in sharing their story. We’ll forever remember CJ with her.

Connect with Kasey on Instagram (@kaseycarmona)

Find more information about hospice philosophy, end-of-life care, and self-care for both personal and professional caregivers here.

Find more podcast episodes from The Heart of Hospice here: https://theheartofhospice.libsyn.com/

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

Interested in purchasing a GrandPad for a loved one? Click here.

Get information about GrandPad purchases for your facility or agency here.

How to Make Funeral Planning Easier with The Love Always Project, Episode 121

Fri, 16 Sep 2022 07:00:11 +0000

Our guest Dean Lambert of The Love Always Project knows firsthand how difficult it is to make funeral arrangements, even after 30 years working with funeral professionals. According to The Love Always Project website, “Dean Lambert has worked with funeral professionals for nearly 30 years to help them connect and serve the families facing one of the most challenging moments of their lives: the loss of a loved one. As a father who has himself experienced the loss of a child, he knows first hand the grief that clouds the vision needed to honor a life well-lived. Dean is leading the Love Always Project with a team of experienced subject matter experts and people committed to its purpose: encouraging people to think more positively and proactively about end-of-life issues and funeral prearrangement.” We can all learn from Dean’s experience and wisdom. Check out The Love Always Project and start talking about funeral pre-arrangement for yourself and someone you love.

Connect with The Love Always Project at lovealwaysproject.org.

Get your free downloadable Guide to Funeral Planning from The Love Always Project here.

Interested in purchasing a GrandPad for a loved one? Click here!

Get information about GrandPad purchases for your facility or agency here.

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

Find more podcast episodes from The Heart of Hospice here: https://theheartofhospice.libsyn.com/

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

What You Need to Know About the Messiness of Grief with John Polo, Episode 120

Fri, 09 Sep 2022 07:23:32 +0000

Widowhood, caregiving, and the messiness of grief are just some of the topics we’re talking about with guest John Polo. According to his website, johnpolocoaching.com, “John is a coach, author, and speaker. In January of 2016, John became a widower after his amazing wife, Michelle, died of cancer. From the rubble of everything that he once knew, consumed by desperation and despair, John held on long enough until he found his hope. And he slowly rebuilt. Today John helps others through his social media, books, coaching, workshops, speeches, and podcasts. From grief to dating, self-growth, and everything in between, John offers a style of coaching that is not only effective but also very personal and unique. John is the author of three books, host of two podcasts, and has worked with clients on over 4,000 coaching sessions.” John’s experience has given him wisdom, insight, and empathy into the grief experience.

Learn more about John Polo's coaching services by clicking here.

Listen to John’s podcast “gonna love me 2” here.

Check out John’s other podcast “my person died too” here.

Find information about John’s groups and courses here.

Interested in purchasing a GrandPad for a loved one? Click here!

Get information about GrandPad purchases for your facility or agency here.

Find more podcast episodes from The Heart of Hospice here: https://theheartofhospice.libsyn.com/

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

Find more information about hospice philosophy, end-of-life care, and self-care for both personal and professional caregivers here.

Talking about The Narrative Initiative with Dr. Lorraine Dickey, Episode 119

Fri, 02 Sep 2022 07:00:00 +0000

We’re honored to talk with Dr. Lorraine Dickey about The Narrative Initiative and the benefits of its Write-Read-Reflect method for both patients and staff. Dr. Dickey is an innovator and activist for a better experience of care within the healthcare system. She is a healthcare entrepreneur and a motivational speaker as well as a board-certified Neonatologist, board-certified Pediatric Hospice and Palliative medicine physician, and certified in Pediatric Bioethics. Lorraine is also the CEO and co-founder of The Narrative Initiative, which focuses on helping healthcare professionals decompress and remain resilient, and makes communication between patients and providers efficient and effective. TNI research shows that the Write-Read-Reflect narrative method positively transforms the experience of healthcare for those who give care and those who must receive it.

Learn more about The Narrative Initiative at thenarrativeinitiative.com.

Read Dr. Lorraine Dickey’s bio here.

Find out how your organization can work with The Narrative Initiative here.

The hosts of The Heart of Hospice podcast would be honored to speak at your event or conference. Send an email to helen@theheartofhospice.com. We’d love to partner with you!

Find more podcast episodes from The Heart of Hospice here: https://theheartofhospice.libsyn.com/

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

Find more information about hospice philosophy, end-of-life care, and self-care for both personal and professional caregivers here.

A Conversation with Judy Cornish, Creator of the DAWN Method for Dementia Caregivers, Episode 118

Fri, 26 Aug 2022 07:00:24 +0000

Our guest Judy Cornish is the founder of the Dementia & Alzheimer’s Wellbeing Network and the creator of the DAWN Method, a method for working with people who have dementia that helps them develop and retain a sense of security and wellbeing. As an elder law attorney, Judy had no experience with people with dementia until she met a new neighbor and began to help her lead a full life. Judy identified that the medical model doesn’t work well when it comes to managing life with dementia. She created the DAWN Method, a system that’s simple enough to be used by caregivers in the home and works in care facilities as well. Founded on the belief that dementia doesn’t take away all our skills, the DAWN Method fosters the skills and strengths of the individual. Ms. Cornish’s organization provides online training programs for families and professional caregivers, as well as staff training for agencies and facilities. Her goal is to see dignified dementia care become available for all.

You can get more information about the DAWN Method here.

Find Judy Cornish’s blog here.

Access Judy's free resources for Dementia Training here.

If your facility would like to train your staff to work with dementia patients using the DAWN Method, click here.

Find more information about hospice philosophy, end-of-life care, and self-care for both personal and professional caregivers here.

Find more podcast episodes from The Heart of Hospice here: https://theheartofhospice.libsyn.com/

The Heart of a Hospice Administrator with Zaundra Ellis, Episode 117

Fri, 19 Aug 2022 07:00:51 +0000

Our guest Zaundra Ellis believes in servant leadership and has practiced it for over 20 years serving in hospice care. Zaundra has held many positions in hospice agencies, from executive director to her current role as Vice President of Hospice Solutions for Axxess Solutions. Through the years, she’s learned lessons about leadership and the importance of caring for the hospice team while they care for patients and families. She is a nationally recognized hospice thought leader and member of the NHPCO Regulatory Committee. In her interview with The Heart of Hospice, she shares wisdom acquired through years of dedicated service to the end-of-life industry.

Connect with Zaundra Ellis on LinkedIn.

Find out more about Axxess here and check out the Axxess Facebook page. Connect with Axxess on YouTube.

Find more podcast episodes from The Heart of Hospice here: https://theheartofhospice.libsyn.com/

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

Find more information about hospice philosophy, end-of-life care, and self-care for both personal and professional caregivers here.

A Death Perspective with Rabbi Steve Leder, Episode 116

Fri, 12 Aug 2022 07:00:49 +0000

In this episode, our guest Rabbi Steve Leder shares his perspective on dying and how the death of his father forever changed him. Steve Leder is the senior rabbi of Wilshire Boulevard Temple in Los Angeles. After receiving his degree in writing and graduating cum laude from Northwestern University, and spending time studying at Trinity College, Oxford University, Leder received a master’s degree in Hebrew letters in 1986 and rabbinical ordination in 1987 from Hebrew Union College.

He is the author of five books: The Extraordinary Nature of Ordinary Things, More Money Than God: Living a Rich Life Without Losing Your Soul, the bestsellers More Beautiful Than Before: How Suffering Transforms Us, and The Beauty of What Remains, and the upcoming For You When I Am Gone: Twelve Essential Questions to Tell a Life Story.

After spending many years at the bedside of those who were dying, Steve experienced the death of his father following a ten-year struggle with Alzheimer’s. That journey and the grief that followed forever changed what he thought about dying and death. His book, The Beauty of What Remains, describes the humanity and insight he gained.

You can connect with Rabbi Steve Leder by clicking here.

Experience Steve’s story through his book The Beauty of What Remains by clicking here.

Find out the 12 questions to tell your life story and live a life full of meaning and purpose in Steve’s book For You When I Am Gone: Twelve Essential Questions to Tell a Life Story by clicking here.

Connect with Rabbi Leder on Facebook, Instagram, and Twitter.

Find more podcast episodes from The Heart of Hospice here: https://theheartofhospice.libsyn.com/

Connect with podcast host Jerry Fenter at jerry@theheartofhospice.com.

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

Find more information about hospice philosophy, end-of-life care, and self-care for both personal and professional caregivers here.

What You Need to Know about Advance Care Planning with Dr. Jim deMaine, Episode 115

Fri, 05 Aug 2022 18:51:53 +0000

Dr. Jim deMaine is with us to talk with us about advocacy in serious illness and his book Facing Death: Finding Dignity Hope and Healing at the End. Dr. deMaine is a retired Pulmonary and Critical Care physician, an accomplished public speaker, and an outspoken advocate for end-of-life decisions. In his book Facing Death: Finding Dignity, Hope and Healing at the End, Jim shares numerous stories that serve as cautionary tales about completing advance care planning discussions prior to a serious illness or health crisis. The book illuminates the weakness of the healthcare system, managing to also highlight the lessons Jim learned about end-of-life planning during his career. With honesty, compassion, and respect for the legacies of his patients, Dr. deMaine shares why advocacy for our health needs is so crucial to ensuring meaning in our own deaths and the deaths of our loved ones.

Purchase your copy of Dr. deMaine’s book by clicking here or here.

Connect with Jim deMaine’s blog at endoflifeblog.com.

To purchase your copy of The Day I Die: The Untold Story of Assisted Dying in America on Amazon, click here.

To read more about Ms. Hannig’s book, visit anitahannig.com.

To purchase the book through IndiaBound Books, click here.

Connect with The Love Always Project by clicking here and access their Resource page for more support.

Find more information about hospice philosophy, end-of-life care, and self-care for both personal and professional caregivers here.

Find more podcast episodes from The Heart of Hospice here: https://theheartofhospice.libsyn.com/

Connect with podcast host Jerry Fenter at jerry@theheartofhospice.com.

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

What You Need To Know About Medical Aid In Dying: A Discussion with Author Anita Hannig, Episode 114

Mon, 01 Aug 2022 07:00:42 +0000

Anthropologist Anita Hannig is talking with us about Medical Aid in Dying, misconceptions about assisted dying laws, and her new book The Day I Die: The Untold Story of Assisted Dying in America. Every end of life professional should be informed about what medical aid in dying really is. MAID laws, otherwise known as Death with Dignity laws, have been passed in ten states across the U.S. as well as Washington, D.C. Regardless of whether their state has a law permitting MAID, it’s important that healthcare providers are able to answer questions that might arise from seriously ill patients and their caregivers. Medical aid in dying is a controversial topic. Information given to patients should never be based on the personal opinions, judgments, or beliefs of the end of life providers. Ms. Hannig’s book The Day I Die: The Untold Story of Assisted Dying in America, is based on 5 years of immersive research. The book provides unbiased reporting on the challenges of utilizing MAID, how assisted dying is viewed by the medical community, and the multitude of ways an assisted death is experienced by a patient and loved ones.

To learn more about Medical Aid in Dying, visit the Compassion and Choices website (compassionandchoices.org).

To read more about Ms. Hannig’s book, visit anitahannig.com.

To purchase your copy of The Day I Die: The Untold Story of Assisted Dying in America on Amazon, click here.

To purchase the book through IndieBound Books, click here.

Connect with The Love Always Project by clicking here and accessing their Resource page for more support.

Find more information about hospice philosophy, end-of-life care, and self-care for both personal and professional caregivers here.

Find more podcast episodes from The Heart of Hospice here: https://theheartofhospice.libsyn.com/

Connect with podcast host Jerry Fenter at jerry@theheartofhospice.com.

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

How to Do Death Better with Dr. BJ Miller, Episode 113

Fri, 15 Jul 2022 07:00:39 +0000

We’re honored to feature hospice physician and innovator BJ Miller in an amazing discussion about strengths, trends, and the future of end-of-life care. Dr. Miller is an advocate, thought-leader, and leader on the front lines of end-of-life care. He has been a physician for 19 years and has counseled over 1,000 patients and family members. This vast experience has led him to understand what people really need when dealing with difficult health situations. His TED Talk, What Really Matters at the End of Life has had over 11 million views. He’s the co-author of A Beginner’s Guide to the End: Practical Advice for Living Life and Facing Death, which was published in 2019. BJ also served as medical director for Zen Hospice in San Francisco. As a co-founder of Mettle Health, he and his team are on a mission to help people reframe the way we think about the road ahead, for ourselves, or someone we’re caring for by dealing with issues “ranging from the practical to the emotional, to the existential.” What an incredible discussion on the future of hospice care, attitudes towards death, and how end-of-life care is changing for the better!

Connect with The Love Always Project by clicking here.

Watch Dr. Miller’s TEDtalk here.

Find out more about Mettle Health at mettleheatlh.com.

Find more podcast episodes from The Heart of Hospice here: https://theheartofhospice.libsyn.com/

Connect with podcast host Jerry Fenter at jerry@theheartofhospice.com.

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

How to Care for Your Team Beyond the Ordinary with Dr. Michelle Owens & RN Keisha Jones, Episode 112

Fri, 01 Jul 2022 07:00:14 +0000

Meet RN Keisha Jones and Dr. Michelle Owens of Hospice Austin and hear how they take extraordinary care of their hospice team with a debriefing program. . After seeing signs of accelerated compassion and moral fatigue in their hospice clinical team in 2021, Keisha and Michelle realized there was more needed beyond pizza parties. They put their heads together to create a debriefing program. As director of the clinical team, Keisha saw that nurses and other clinicians were deeply involved with patients, and the grief of not having families with dying patients was severely affecting the team. A safe space to discuss what was happening was first priority. Using a debriefing facilitator trainer manual from CAPC (Center to Advance Palliative Care) website, they started the program. Using Zoom video conferencing and including all disciplines, the women make the debriefings accessible to all disciplines and all shifts. The team felt heard and safe. The responses were positive and encouraging.

If you’re interested in creating a debriefing program in your agency, you can access the debriefing facilitator trainer manual from CAPC here.

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

Find more podcast episodes from The Heart of Hospice here: https://theheartofhospice.libsyn.com/

Connect with podcast host Jerry Fenter at jerry@theheartofhospice.com.

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

How to Be the Best Caregiver for Your Loved One with Alzheimer's or Dementia, Episode 111

Wed, 15 Jun 2022 07:00:04 +0000

Caregiving for someone with Alzheimer’s or dementia holds its special challenges. Jennifer Fink of the Fading Memories Podcast is with us to share her caregiving experience. Jennifer became the caregiver for her mom after the death of her dad. Experiencing all the frustration and challenges, Jennifer looked for podcasts that could help. After not finding what she needed, Jennifer launched the Fading Memories podcast. The podcast content is designed to help anyone who is providing care for someone with Alzheimer’s or dementia. According to the Fading Memories Podcast website, “Jennifer is the daughter, granddaughter & great-granddaughter of women who suffered from Alzheimer’s or other cognitive impairment. Looking for answers on how not to become the fourth generation with this problem while also seeking ways to connect better with her Mom has led her on this interesting journey with her new passion, podcasting”. The website provides support through the podcast, articles, recipes, and resources. You can connect with Jennifer at fadingmemoriespodcast.com and on her Facebook page. Find the podcast on Spotify and Apple Podcasts. Don’t miss this great resource for Alzheimer’s and dementia caregivers!

Find more podcast episodes from The Heart of Hospice here: https://theheartofhospice.libsyn.com/

Connect with podcast host Jerry Fenter at jerry@theheartofhospice.com.

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

Find more information about hospice philosophy, end-of-life care, and self-care for both personal and professional caregivers here.

Hospice Nurse Julie is the New TikTok Phenomenon

Wed, 01 Jun 2022 07:00:29 +0000

Who knew that TikTok videos about death and dying would gain 800,000 followers? Hospice Nurse Julie is our guest, talking about why her hospice videos have gone viral, and what she finds meaningful about working in end-of-life care. RN Julie McFadden started making the videos, never dreaming that four days later so many people would connect with her content. As a hospice nurse, Julie has heard all the questions from patients and families dealing with serious illness. Topics of her videos include the dying process, end of life medications, visioning, and what a natural death looks like. The average age of a TikTok user is 16-24 years old, not the group you’d think would be interested in conversations about death. Julie believes that taking the mystery out of death and dying takes a lot of the fear out of the experience.

Connect with Hospice Nurse Julie at Hospice Nurse Julie's TikTok.

Read the Newsweek article about Hospice Nurse Julie here.

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

Find more podcast episodes from The Heart of Hospice here: https://theheartofhospice.libsyn.com/

Connect with podcast host Jerry Fenter at jerry@theheartofhospice.com.

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

How to Create Meaningful Care with CareStory, Episode 109

Sun, 15 May 2022 07:00:43 +0000

Certified Dementia Practitioner Nicole Shute is talking with us about CareStory and its mission to make caring a collaborative effort between caregivers and families. According to the CareStory website, CareStory is “a non-medical digital solution approach to bridge the gap between aging populations, their families, and caregivers. It provides individualized holistic person-centered care for senior residents and just-in-time support to caregivers by engaging families through the use of smart devices. Each resident’s profile has a quick fact page, personalized music, life stories, and video messages that can greatly facilitate caregivers’ daily jobs.” Nicole and the CareStory team provide a multi-faceted platform featuring messaging, photo and video sharing, and more in a way that makes coordination between caregivers, family members, and friends easier. If you’re a family member interested in creating a CareStory profile for your loved one, click here. If you’re a staff member or administrator of a facility and you’d like to request a CareStory demo, click here.

Find more podcast episodes from The Heart of Hospice here: https://theheartofhospice.libsyn.com/

Connect with podcast host Jerry Fenter at jerry@theheartofhospice.com.

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

Find more information about hospice philosophy, end-of-life care, and self-care for both personal and professional caregivers here.

Benjamin Kintisch Talks About Life Review: The Hospice Musical, Episode 108

Sun, 01 May 2022 07:00:13 +0000

Humor and compassion overflow in our guest Benjamin Kintisch, hospice chaplain and director of Life Review: The Hospice Musical! Working with hospice patients as a spiritual counselor inspired Benjamin to tell his patients’ stories in songs that captivate the audience. Benjamin holds a Masters in Sacred Music and Cantorial degree, and has completed his fourth year of chaplaincy training, having served in both hospice and eldercare facilities. He serves in his community as a middle school chorus teacher. According to the Life Review: The Musical website, the show celebrates “life, love and loss through three seasons at a residential hospice”. The stories evoke emotions and tears, relatable to any audience. Find out about how you can see the musical virtually at lifereviewmusical.com/. If you’re interested in partnering with Benjamin and the Life Review team to provide a virtually showing of the musical, contact them here.

Learn about Life Review: The Hospice Musical at lifereviewmusical.com/.

Contact creator Benjamin Kintisch by sending an email to benjaminkintisch@yahoo.com.

Connect with Hospice of Southern Maine at https://www.hospiceofsouthernmaine.org/.

Looking for a speaker for your event or conference? Send an email to helen@theheartofhospice.com or to jerry@theheartofhospice.com. We’d love to partner with you!

Find more podcast episodes from The Heart of Hospice here: https://theheartofhospice.libsyn.com/

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

Send your questions and comments to host@theheartofhospice.com. We’d love to hear from you!

Sharing Meaningful Rituals with Hospice Nurse Pepper Cappuccio, Episode 107

Fri, 15 Apr 2022 07:00:35 +0000

Hospice nurse and author Pepper Cappuccio is talking with us about his book “Warm Water: The Last Act of Compassion”, and how he creates meaning for patients and their families in their last moments. Carl “Pepper” Cappuccio has been a nurse for over 15 years, and a hospice nurse for 10 years. According to his website peppercappuccio.com, “he became a registered nurse more than 15 years ago, however, it was not until he experienced the death of his own mother that he realized his true calling. Hospice nursing is what brings him joy and satisfaction.” Due to his personal experience with his mom, Pepper is acutely aware of the challenges faced by the caregivers as they face the loss of a loved one. The author is instantly able to connect the similarities of each patient and family as it relates to his own life‘s experiences. Creating a meaningful ritual of bathing patient’s bodies with warm water during post mortem care has enabled Pepper to honor the humanity of the people for whom he provides nursing care. Just the simple act of a warm bath demonstrates compassion and a respect for the physical body. Pepper’s book is a collection of his stories and experiences with the patients in his case, and the rituals he created at the time of their deaths. “Warm Water” is a selection of stories to which all caregivers and hospice professionals can relate.

Read more about Pepper’s story at peppercappuccio.com.

Buy “Warm Water: The Last Act of Compassion” by clicking here or here.

Looking for a speaker for your event or conference? Send an email to helen@theheartofhospice.com or to jerry@theheartofhospice.com. We’d love to partner with you!

Find more podcast episodes from The Heart of Hospice here: https://theheartofhospice.libsyn.com/

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

Send your questions and comments to host@theheartofhospice.com. We’d love to hear from you!

From Grief to Growth with Paula Stephens, Epi. 106

Fri, 01 Apr 2022 07:00:48 +0000

Today’s guest is a chaplain in the Buddhist tradition and author of “From Grief to Growth: 5 Essential Elements of Action to Give Grief A Purpose and Grow From Your Experience”. You’re going to love our conversation with Paula Stephens!! Paula has a Master's Degree in Exercise Physiology and studied Buddhist Chaplaincy at Upaya Institute and Zen Center. She’s a Certified Wellness Coach, Mindfulness Teacher, Clinical Hypnotherapist, a Yoga Instructor and a hospital chaplain in the Buddhist traditions. She brings professionalism and compassion to her work by recognizing the importance of healing the whole person, mind/body/spirit. After the loss of her son, Paula began searching for healthy ways to manage her grief. She learned over time to utilize the wellness tools she had used for years, including running and yoga. The lessons she learned were translated into her book “From Grief to Growth: 5 Essential Elements of Actions”. She believes that grief never fully leaves us, so it’s important to build habits that will support a lifetime of grieving. Paula has worked with 100’s of caregivers (just like you) and helped them go from struggling to find joy and purpose in their work and life to feeling a renewed sense of purpose for their work and looking forward to each day in as little as one month. Her story is amazing and you’ll be blessed when you hear it.

Get your copy of Paula’s book “From Grief to Growth: 5 Essential Elements of Action to Give Grief A Purpose and Grow From Your Experience” by clicking here.

Connect with Paula Stephens and her work at paulastephens.net

Looking to hire Paula to speak at your event? Click here.

Find more podcast episodes from The Heart of Hospice here: https://theheartofhospice.libsyn.com/

Connect with podcast host Jerry Fenter at jerry@theheartofhospice.com.

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

Send your questions and comments to host@theheartofhospice.com. We’d love to hear from you!

Discussing Memorial Tattoos with Deborah Davidson of The Tattoo Project, Episode 105

Tue, 15 Mar 2022 07:00:49 +0000

Memorial tattoos have become a popular way of remembering loved ones. Our guest today is Deborah Davidson, creator of The Tattoo Project. Deborah has done some amazing research and work into how we express our grief through tattoo body art. Tattoos have become more mainstream than ever. As a sociologist, Deborah has researched deeply into death and dying, bereavement and grief. She had her own personal grief experiences as well. Working as a volunteer for a bereavement families organization, she began seeing more and more tattoos in memory of loved ones who had died. Historically, tattoos have been used for sacred ceremonies and marking rites of passage; they have great meaning for those who bear them. These days, people get memorial tattoos for pets as well as people. Many times having a meaningful symbol enshrined on their skin is an outward sign of remembering for the person with the tattoo. When someone asks about the tattoo design, it provides an opportunity to talk about the loved one memorialized in the design. Some people use their memorial tattoos to recall the memory of a beloved pet.

Interested in the California Hospice and Palliative Care Conference coming up June 6-10, 2022? Click here to register for this great educational opportunity!

Read more about Deborah Davidson and her work on the Tattoo Project at thetattooproject.info.

Connect with Professor Davidson by sending an email to: debd@yorku.ca.

To purchase your copy of The Tattoo Project book, click here.

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

Send your questions and comments to host@theheartofhospice.com. We’d love to hear from you!

Find more podcast episodes from The Heart of Hospice here: https://theheartofhospice.libsyn.com/

Connect with podcast host Jerry Fenter at jerry@theheartofhospice.com.

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

Finding Refuge in Grief with Reid Peterson, Episode 104

Tue, 01 Mar 2022 08:00:00 +0000

Reid Peterson of Grief Refuge brings a serene energy to our conversation about grief support, self care, and finding your normal inside a grief journey. Thanks for connecting with The Heart of Hospice! Reid is the founder and creator of the Grief Refuge app. He holds a masters degree in transpersonal psychology, and is certified in death and grief studies by the Center for Loss and Life Transition. Reid lost his biological father to suicide, and his stepfather to cancer. His personal experience helped him identify the need for grief support after a loss. He created the Grief Refuge app with the goal of providing support to grievers, including one-on-one services, retreats, and support groups. The Grief Refuge app is comforting in its content and graphics. The blog offers support for grief goals, widowhood, and dealing with guilt. Reid says he wanted to provide support in a way that people could find solace and comfort every single day, accessible whenever they need it. If you're grieving a loss in your life, check out the Grief Refuge website, the blog, along with Helen and Jerry's interview with Reid on the Grief Refuge podcast.

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

Send your questions and comments to host@theheartofhospice.com. We’d love to hear from you!

Find more podcast episodes from The Heart of Hospice here: https://theheartofhospice.libsyn.com/

Connect with podcast host Jerry Fenter at jerry@theheartofhospice.com.

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

Life After Child Loss with Peggy Green, Episode 103

Tue, 15 Feb 2022 08:00:24 +0000

Grief coach Peggy Green is with us talking about her journey through child loss, the lessons she’s learned, and her book “Life After Child Loss: A Mother’s Guide to Survival”. Peggy became a grief coach after experiencing the loss of two children, a nine month old daughter and her 24 year old son. Her wisdom is invaluable for anyone who has experienced the death of a child. Her mission according to her website theegriefspecialist.com is to “bring hope to mothers who are grieving the loss of a child and support to those who feel they can't find hope for the future”. Peggy’s book “Life After Child Loss: A Mother’s Guide to Survival” is a great resource to those who are grieving, especially grieving the loss of a child. She also offers personal coach and speaking services. Connect with Peggy at theegriefspecialist.com. Order your book here.

Find more grief resources and connect with Peggy Green at theegriefspecialist.com.

Find more podcast episodes from The Heart of Hospice on hospice philosophy, hospice basics, self care, and advance care planning here: https://theheartofhospice.libsyn.com/

Connect with podcast host Jerry Fenter at jerry@theheartofhospice.com.

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

Send your questions and comments to host@theheartofhospice.com. We’d love to hear from you!

A Discussion with William Peters, Author and Psychotherapist, Episode 102

Tue, 01 Feb 2022 08:00:16 +0000

Author William Peters is a licensed psychotherapist and author of At Heaven’s Door. In our discussion he describes his own personal experience with a Shared Death Experience (SDE) as a volunteer at the Zen Hospice Project in San Francisco. That experience, along with previous life events, motivated William to spend the next 20 years researching and gathering stories of other people’s “shared crossing” experiences. He’s the co-founder of The Shared Crossing Project (sharedcrossing.com), an organization “dedicated to raising awareness and educating people about shared crossings, which are transformative and healing experiences reported by dying persons as well as their loved ones and caregivers.” According to the Shared Crossing Project website “As the Director of the Shared Crossing Research Initiative (SCRI), William and his research team collect and study extraordinary end-of-life experiences (shared crossings). He is recognized by many as the world’s leading authority on the shared death experience (SDE) having developed research-based typologies that classify the full range of SDEs. He also created the Spectrum of End-of-Life Experiences, a user-friendly guide to assist the dying, caregivers and health care professionals in navigating and understanding phenomena that can manifest at end of life.” If you’re interested in learning more about SDEs, or you have an SDE story to share with the Shared Crossing Project, connect with William and his team at sharedcrossing.com/contact. You can purchase William’s book at Amazon, Indie Bound, Barnes & Noble, and Bookshop.

Connect with the Shared Crossing Project at sharedcrossing.com.

Share your SDE as a

Get answers to your questions about Shared Crossings/Shared Death Experiences here.

Connect with William Peters via email at william@sharedcrossing.com.

If you’re an individual who wants to share your story of a Shared Death Experience, click here.

If you’re a healthcare provider and want to share your SDE story, click here.

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

Send your questions and comments to host@theheartofhospice.com. We’d love to hear from you!

Find more podcast episodes from The Heart of Hospice here: https://theheartofhospice.libsyn.com/

Writing Your Final Chapter with Author Kimberly Best, Episode 101

Sat, 15 Jan 2022 08:00:00 +0000

RN and author Kimberly Best is the author of “How to Live Forever: A Guide to Writing the Final Chapter of Your Life Story”. Kim talked with us about her career spent in nursing and conflict management, and the value of mediation for end of life decisions. Kim has a master’s degree in Conflict Management, and is trained in Transformative Mediation and Healthcare Mediation. Her passion for resolving conflicts without litigation is evident in her work and her wisdom. According to her website BestConflictSolutions.com, Kim’s book “provides you with tools that can help you have the difficult conversations regarding legal decisions, health care plans, relationships, and death. Recognizing the finite nature of our days, we can live purposefully, plan ahead for the end of our life story, and die without regret, living fully to the end and finishing well. Connect with Best Conflict Solutions and the mediation services they provide, including elder mediation, family and relationship mediation, conflict coaching, and speaking services.

Buy Kim Best’s book “How to Live Forever: A Guide to Writing the Final Chapter of your Life Story” here or here.

Download the study guide to go with the book by clicking here.

Connect with mediation services from Best Conflict Solutions by clicking here.

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

Send your questions and comments to host@theheartofhospice.com. We’d love to hear from you!

Find more podcast episodes from The Heart of Hospice here: https://theheartofhospice.libsyn.com/

End of Life Insights from Hospice RN Beth Cavenaugh, Episode 100

Sat, 01 Jan 2022 08:00:00 +0000

Hospice nurse Beth Cavenaugh is talking with us today about her passion for end of life care and her book, Some Light at the End. As a Hospice and Palliative Care Certified RN, Beth has 15 years experience in hospice nursing. In her book Some Light at the End, Beth shares the wisdom she’s acquired through the years working with seriously ill and dying patients. Her personal story includes end of life care as well through the care of her mother as she journeyed through a lung cancer diagnosis. Beth was inspired by that personal journey to go into hospice nursing. Beth recognized the intensity of the experience, calling it a special and holy time for her. She describes herself as lucky to be involved in hospice care. Some Light at the End: Your Peaceful Guide for Peaceful Palliative and Hospice care offers readers a gentle and transparent guidebook to caring for dying loved ones. Watch for her new book The Power and Pain of Nursing coming out in late January 2022!

Connect with Beth here:

https://www.bethcavenaugh.com/

Buy her book Some Light at the End by clicking here:

https://www.amazon.com/Some-Light-End-Peaceful-Palliative/dp/1733690972

Connect with podcast host Jerry Fenter at jerry@theheartofhospice.com.

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

Send your questions and comments to host@theheartofhospice.com. We’d love to hear from you!

Find more podcast episodes from The Heart of Hospice here: https://theheartofhospice.libsyn.com/

Chasing Life Author Robert Pardi Shares His Story of Life, Love, and Caregiving Lessons, Episode 099

Wed, 15 Dec 2021 08:00:00 +0000

Life coach and author Robert Pardi joins us in this episode to share his extraordinary caregiving story. Robert cared for his wife Desiree for 11 years after she was diagnosed with late-stage breast cancer. He became her caregiver, coach, advocate, and eventually her hospice. His book Chasing Life is about the resiliency and meaning they built throughout her illness, and how Robert created meaning in his life after Desiree’s death. As a caregiver, Robert felt honored to be trusted with Desiree’s care. He became a unique advocate for her, receiving all the medical information and test results on his wife’s behalf, all at her choice. Chasing Life describes a couple who lived life fully despite grief and embraced joy despite loss. Robert’s caregiving wisdom is woven all throughout his story which he so generously shares.

Find more about Robert Pardi’s life coaching services by clicking here: https://www.robertpardi.com/

Buy Robert’s memoir Chasing Life here: https://www.amazon.com/gp/product/1988925789/ref=dbs_a_def_rwt_hsch_vapi_tpbk_p1_i0?fbclid=IwAR3AW2ULp6bXsRDagDtC0trvYRnSW02Fay5j9M7KtqzSKA_FGIb7cDCXLCE

Connect with Robert on LinkedIn here.

Receive The Heart of Hospice podcast in your email here:

https://www.theheartofhospice.com/connection/

For podcast sponsorship opportunities contact us:

host@theheartofhospice.com

Find more episodes from The Heart of Hospice here:

https://theheartofhospice.libsyn.com/

Connect with Helen Bauer:

helen@theheartofhospice.com

Connect with Jerry Fenter:

jerry@theheartofhospice.com

A Conversation With Remembering.Live Founder Dave Kerpen, Episode 098

Wed, 01 Dec 2021 08:00:00 +0000

Our guest today is Dave Kerpen - serial entrepreneur, NY Times best-selling author, and founder of Remembering.Live. When Dave lost his mom during the pandemic lockdown of 2020, Dave and his team created a virtual memorial service and memorial website to honor her memory. Through the Remembering.Live website, families can honor their loved ones with virtual memorial services, create a tribute website, so families can focus on being with friends and family. An edited recording of the service can be uploaded as a last memorial. Remembering.Live serves people all over the world, providing a virtual platform and outlet for grief. The concierge team at Remembering.Live can help families with planning and design and even offer a rehearsal of the service to ensure good quality.

If you’re interested in creating a virtual service with Remembering.Live, click here. https://www.remembering.live/

To connect with Dave Kerpen, founder of Remembering.Live and best-selling author, click here.

https://www.linkedin.com/in/davekerpen/

Receive The Heart of Hospice podcast in your email here:

https://www.theheartofhospice.com/connection/

For podcast sponsorship opportunities contact us:

host@theheartofhospice.com

Find more episodes from The Heart of Hospice here:

https://theheartofhospice.libsyn.com/

The A to Z Healing Toolbox for Those Who Grieve with Susan Hannifin-MacNab, Epi. 097

Mon, 15 Nov 2021 08:00:00 +0000

Episode 097 - The A2Z HealingToolbox for Those Who Grieve (Mon. 11-15-2021)

Susan Hannifin-MacNab is the creator of the A to Z Healing Toolbox, a great resource for navigating grief and trauma with practical tools and resources. Susan became a widow when her husband was killed in a car accident, leaving her with a young son. Using the wisdom she gained through her experience, Susan wrote the A to Z Healing Toolbox to help others who have similar experiences begin to restore, renew, and rebuild their lives. As an educator and social worker, Susan recognized the need for a grief resource that was organized and offered a wide variety of tools. The A to Z Toolbox provides actionable suggestions for daily use. For those who aren’t ready for the book, there’s a simplified A2Z Online Toolbox that’s even easier to access and use. You can find the A To Z Toolbox book at Itasca books and Amazon.

Order the A to Z Toolbox book by Susan Hannifin-McNabb here:https://itascabooks.com/a-to-z-healing-toolbox/ or here: https://www.a2zhealingtoolbox.com/the-book-new/

Subscribe to Susan’s online newsletter here: https://www.a2zhealingtoolbox.com/

Find more podcast episodes from The Heart of Hospice here: podcast page

Connect with Helen and Jerry by sending an email to host@theheartofhospice.com. We’d love to hear from you to answer your questions and hear your comments.

Dr. Jessica Zitter Talks About Caregiver: A Love Story - Episode 096

Mon, 01 Nov 2021 07:00:00 +0000

We are thrilled to welcome Dr. Jessica Zitter back to the podcast to talk about her new documentary “Caregiver: A Love Story”. As a critical care and palliative care physician, Dr. Zitter has seen the true struggles of caregivers of loved ones with serious illness. Dr. Zitter is also the author of Extreme Measures: Finding A Better Path to the End of Life, a book that offers an insider’s view of intensive care in America and its impact on how we die. Her work is featured in the 2017 Oscar- and Emmy-nominated short-documentary “Extremis”. Her new documentary, “Caregiver: A Love Story” examines the rising public health crisis of family caregiver burden. Dr. Zitter uses her voice for change and advocacy in healthcare to not only increase awareness, but to create positive changes for caregivers across the U.S.

Receive The Heart of Hospice podcast in your email here:

https://www.theheartofhospice.com/connection/

Order a copy of Dr. Zitter’s book Extreme Measures: Finding A Better Path to the End of Life:

https://www.amazon.com/Extreme-Measures-Finding-Better-Path/dp/1101982551/ref=sr_1_6?s=books&ie=UTF8&qid=1472579530&sr=1-6&keywords=extreme+measures

Watch the trailer for “Extremis”:

https://jessicazitter.com/extremis/

Watch the trailer for “Caregiver: A Love Story”:

https://jessicazitter.com/caregiver/

For podcast sponsorship opportunities contact us:

host@theheartofhospice.com

Find more episodes from The Heart of Hospice here:

https://theheartofhospice.libsyn.com/

Funeral Planning Made Easy With Funeralocity, Episode 095

Fri, 15 Oct 2021 07:00:00 +0000

Funeralocity is a great resource for both consumers and hospice professionals when it comes to funeral planning. Funeralocity provides information to help users compare up-to-date pricing and services from funeral homes and cremation providers in their area, get pricing and services for funeral homes enrolled in the Excellence Provider Program, and select a funeral home that feels like a good fit. According to the Funeralocity website, their Excellence Provider Program is “part of our mission to help families make the best choices for their funeral services.

Cremation providers and funeral homes across the country apply for this certification. Our team vets all applicants according to strict criteria. When accepted as Excellence Providers, they pledge to uphold our highest standards of transparency and best business practices. They exemplify the highest commitment to service and quality in the profession and appear at the top of the search results”. Through the Funeralocity Hospice Portal, hospice teams can find support for having compassionate conversations about funerals and cremation services. Enrollment to use the Portal is free for hospice professionals, and there are multiple resources available on the site. The Funeralocity team is happy to train hospice teams on how to use the Funeralocity services to assist their patients and families. When you’re planning your next event, keep in mind that the hosts of The Heart of Hospice podcast are available to speak at conferences and meetings. Whether you’re meeting in-person or virtually, we can provide education to your team on topics such as how to have compassionate conversations, how to recognize personal bias, building listening skills, and managing personal grief as a hospice professional. We’d love to encourage your team and remind them why the work they do is so important. To find out more, contact us at host@theheartofhospice.com. The Heart of Hospice is honored to be a part of your hospice journey.

Give A Mile: Giving the Gift of a Good-bye, Episode 94

Fri, 01 Oct 2021 07:00:00 +0000

Founder Kevin Long and the team at Give A Mile help to connect loved ones when they need it most. After experiencing the loss of his close friend Ryan, Kevin launched Give A Mile. According to the Give A Mile website, “Give A Mile is a group of dedicated volunteers who believe strongly in the power of visits from loved ones for people in palliative or critical condition.” The organization uses donated flight miles to purchase flights that allow family members to travel to be with critically ill loved ones. 100% of donations go to “flights of compassion” and associated travel fees (taxes, transfers). The operating costs for Give A Mile are fundraised for separately. Give A Mile believes in total transparency - their financial records are posted on the website. You can hear Kevin’s story on the Give A Mile website, and read Ryan’s blog. If you feel inspired to help the Give A Mile team connect families at such a crucial moment in life, click here. Remember you can donate your unused flight miles or make a monetary donation. Hospice and palliative care teams can help connect their patients with Give A Mile by clicking here. To contact the Give A Mile team, send an email to info@giveamile.org. If you need more information about getting the best hospice care you can, go to theheartofhospice.com. Have a question? Send it to host@theheartofhospice.com. If your company provides services or products to hospice agencies, consider sponsorship with The Heart of Hospice to get the word out about what you do. No matter who you are, or where you are in your hospice journey, you are The Heart of Hospice.

Discussing the Effects of the Pandemic with Hospice Icon Barbara Karnes, Episode 093

Wed, 15 Sep 2021 07:00:00 +0000

Barbara Karnes, author of the iconic hospice guide “the little blue book” Gone from My Sight, talks with Jerry and Helen about ritual, self care wisdom, and thriving as end of life workers. We’re honored to feature our third discussion with Barbara about what she’s seen during the last year. As a hospice RN, Barbara understands how important it is to stay connected to our patients and their families, and to care for our whole selves as we care for seriously ill patients. The COVID-19 pandemic has changed the way hospice professionals provide care for their patients. To continue to provide quality care and keep us devoted to end of life work, we need to be intentional about self care. Barbara reminds us to make the technology our best friend, utilizing the phone to connect with and support families who have become isolated in the home. She also tells us to create rituals to add meaning to the work. Washing off the stress of the day with a cleaning shower and journaling work memories are great ways to care for ourselves after the day’s work. Barbara also urges us to utilize hospice volunteers in unique ways, expanding their roles to stay connected with patients and families. To purchase Barbara’s pamphlets, videos, and teaching materials, go to bkbooks.com. You can also read Barbara’s blog to benefit from her wisdom and hospice experience. Find her on Facebook, too. When you’re planning your next event, keep in mind that the hosts of The Heart of Hospice podcast are available to speak at conferences and meetings. Whether you’re meeting in-person or virtually, we can provide education to your team on topics such as how to have compassionate conversations, how to recognize personal bias, building listening skills, and managing personal grief as a hospice professional. We’d love to encourage your team and remind them why the work they do is so important. Because we both have a personal hospice journey in addition to our years working in end of life care, we can also share a message of resilience and hope at your agency’s next memorial service. To find out more, contact us at host@theheartofhospice.com. The Heart of Hospice is honored to be a part of your hospice journey.

The Courage to Care with End of Life Doula Linda Bryce, Episode 092

Wed, 01 Sep 2021 07:00:00 +0000

Linda Bryce has worn many hats in her career: attorney, advocate for the elderly, ordained minister, bedside singer, author, and end of life doula. The culmination of all her experiences has been collected into her book, The Courage to Care: Being Fully Present With the Dying. She has been a hospice vigil volunteer and has sat at the bedside of hundreds, who might have otherwise died alone. Linda's book is a call to compassion and courage, the courage to be present with those who are dying. To learn more about Linda and the work of an end of life doula, visit her website at www.thecouragetocare.com.

Thanks for listening to The Heart of Hospice podcast. You can support our efforts by leaving a review or a rating on Apple Podcasts. We welcome you to join our Facebook page here.

GriefTalking with Rebellious Widow Author Jill Johnson-Young, Episode 091

Sun, 15 Aug 2021 07:00:00 +0000

Author Jill Johnson-Young knows a thing or two about grief. She shares her deep, funny, irreverent wisdom in an interview with The Heart of Hospice. Jill is a social worker based in California, owner of Central Counseling Services and is the author of The Rebellious Widow, an insightful look into managing grief on your own terms. After losing two spouses, Jill experienced the full spectrum of other people’s expectations and rules. She shares the lessons she learned about not following the grief rules that society wants to impose on grievers in her book. Included in The Rebellious Widow is guidance for a new grief paradigm. Jill teaches that our grief shouldn’t be confined by the boundaries that others define for us. We can define our own grief, taking parts of those we lose with us into the future we create for ourselves. Find Jill’s blog, books, and connect with her at JillJohnsonYoung.com. She’s got a lot of resources about grieving, pet loss, hospice, dementia. Connect with Jill to teach your team or speak at your event by clicking here. Her website has things to help as well as her books for both adults and kids. Find her classes and blog. Connect with Jerry Fenter and Helen Bauer from The Heart of Hospice, book them to speak at your event (remote or in-person), or ask a question by sending an email to host@theheartofhospice.com. We honor your end of life journey. We’re walking it with you. You are The Heart of Hospice.

Jon and Michelle Braddock of My Life and Wishes Share Advance Care Plan Wisdom, Episode 090

Sun, 01 Aug 2021 07:00:00 +0000

It always seems too early until it’s too late. We’re talking advance care planning, grief, and life lessons with Jon and Michelle Braddock of My LIfe and Wishes. With us for his second interview, Jon shares how My Life and Wishes got started after their experience with the death of Michelle’s dad. My Life and Wishes provides an online platform for advance care plan storage, guiding users in the use of secure storage of healthcare and legal documents, financial information and estate planning. When they later experienced the death of Michelle’s mom, Jon and Michelle were much better prepared to manage her estate. Jon is also the author of Click Here When I Die, a great guide to digital estate planning. You can create your own secure account and designate users at mylifeandwishes.com. Get your copy of Click Here When I Die to create your own estate plan to make things easier for your loved ones. Check out theheartofhospice.com to find more information about advance care planning and resources to help you make decisions, document, and share your end of life wishes. The Heart of Hospice is here to walk your hospice journey with you. Send any questions or comments to host@theheartofhospice.com. We love connecting with you - you are The Heart of Hospice.

Learn About the Important Work of the Conscious Dying Movement

Fri, 26 Dec 2025 08:00:20 +0000

RamDev Dale Borglum is a pioneering figure in the conscious dying movement, known for his contributions to end-of-life care and spiritual support. In his 40 years of work with the dying, he thinks the U.S. has made progress in our attitude towards death, but there’s still room for improvement. Dale defines conscious dying as the practice of living consciously as we die. Meditation and gratitude practices support conscious dying. Working with the dying has allowed RamDev to be present with families and those with serious illness, helping them to create wholeness and reduce their fear of death.

Connect with RamDev Dale Borglum at LivingDying.org Listen to RamDev’s podcast Healing at the Edge here. You can buy RamDev Dale Borglum’s book How to Live so You Can Die without Fear here. RamDev’s socials: Instagram | YouTube | TikTok | Facebook

Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

Are You Ready for National Healthcare Decisions Day?, Heartbeat Special Episode April 16, 2022

Sat, 16 Apr 2022 07:00:56 +0000

In recognition of National Healthcare Decisions Day 2022, we’re talking about advance care planning. What’s your plan for your healthcare and who have you told it to? National Healthcare Decisions Day was started in 2008 by attorney Nathan Kottkamp to encourage people to complete their advance care planning. Every year on April 16 (the day after Tax Day), National Healthcare Decisions Day is observed. It’s the perfect day to make your end of life plans. Develop your plan - think about your beliefs, wishes, and wants for healthcare during a serious illness. Document your plan - put your plan into the legal forms that are accepted in your state or province. Discuss your plan - tell your healthcare provider team and your family or those who would help with your care. Eliminate the chance that you’ll receive care you don’t want, care that won’t work, or care you can’t afford by making your wishes known. Happy National Healthcare Decisions Day 2022!

Find more information about NHDD 2022 at The Conversation Project website.

Use some of our favorite advance planning tools and games:

The Conversation Project

The Death Deck

Go Wish cards from Code Alliance

Hello game from Common Practice

Heart2Hearts: The Workbook from Discuss Directives with Lisa Newburger

Find more podcast episodes from The Heart of Hospice here: https://theheartofhospice.libsyn.com/

Connect with podcast host Jerry Fenter at jerry@theheartofhospice.com.

Connect with podcast host Helen Bauer at helen@theheartofhospice.com.

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

Looking for a speaker for your event or conference? Send an email to helen@theheartofhospice.com or to jerry@theheartofhospice.com. We’d love to partner with you!

Daryl Cady, CEO of Hospice of Southern Maine on the 2022 Thresholds Conference, Heartbeat Special Episode

Tue, 05 Apr 2022 07:00:03 +0000

Daryl Cady, CEO of Hospice of Southern Maine is sharing details about the 2022 Thresholds Conference. What an amazing opportunity to unite for conversations about end of life! The conference features keynote speaker Elizabeth Gilbert, #1 New York Times best selling author of Eat, Pray, Love. Additionally, the conference includes singer/songwriter Michelle Zauner, author of Crying in H Mart. The theme for the 2022 Thresholds conference is “Grief is Individual and Universal”. Both speakers have experienced their own losses, and will share the stories of their unique grief journeys. Anyone who has experienced a loss can relate to the message of Thresholds. The conference is virtual over Zoom, and tickets are only $35. The conference is on Tuesday, May 10, 2022 at 1:00pm - 3:30pm EST. Buy your tickets thresholdshsm.org. Don’t miss this chance to hear these great speakers!

Get your tickets for the virtual May 10 Thresholds conference featuring Elizabeth Gilbert and Michelle Zauner by clicking here.

Connect with Hospice of Southern Maine at https://www.hospiceofsouthernmaine.org/.

Interested in having one of the hosts of The Heart of Hospice podcast speak at your event? Send an email to helen@theheartofhospice or jerry@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice here: https://theheartofhospice.libsyn.com/

Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.

Send your questions and comments to host@theheartofhospice.com. We’d love to hear from you!

Understanding the Role of the Hospice Chaplain: Death Events, Heartbeat Episode 249

Fri, 23 Jul 2021 07:00:00 +0000

A hospice interdisciplinary team provides enhanced support at the time of a patient’s death - and that includes care from the hospice chaplain. The chaplain, or spiritual counselor, is there to encourage those who are grieving, to provide comfort and guidance during what hospice professionals call a “death event”. Along with other team members (nurse, social worker, aide), the chaplain comes alongside the caregivers to provide support as coordination for the final disposition of the body is made. The spiritual counselor educates the family about what to expect, and assess the bereavement needs of those who are present. Using the information obtained during this bereavement assessment, the chaplain will collaborate with the bereavement coordinate to create the bereavement plan of care for the thirteen months following the patient’s death. The presence of the chaplain at a patient’s death is crucial to the support of the family as well as support of the other disciplines. The best way to have an optimal death event is to include the chaplain. There’s more information to help you with your end of life journey at theheartofhospice.com. Whether you’re a hospice professional or someone caring for a hospice patient, you’ll find support and encouragement. Check out more podcast episodes by clicking here. We know your journey matters - you are The Heart of Hospice.

Understanding the Role of the Hospice Chaplain: Routine Visits, Heartbeat Episode 248

Fri, 16 Jul 2021 07:00:00 +0000

Once the Initial Spiritual Assessment is completed, a hospice chaplain will make routine visits that are used for life review, legacy projects, encouragement, faith discussions, or whatever the patient says is important. Typically the chaplain (also known as the spiritual counselor) will see a stable patient once or twice a month, and when there’s a special need like a change in condition. The different interventions that the chaplain might offer are unlimited. Whatever has meaning for the patient or caregivers will shape the activities of the routine visits. And it’s ok if the patient and the caregivers have different needs or want different interventions. The chaplain can provide interfaith care for both. It’s all about affirming the patient’s or caregiver’s faith system and providing support that is meaningful for them. Interventions are customized and individualized. Find more information about hospice care and philosophy at theheartofhospice.com. The Heart of Hospice is here to support you. Send questions and comments to host@theheartofhospice.com. We’ll send you a personal reply. Whether you’re a hospice professional or an unpaid caregiver for someone who’s seriously ill, your end of life journey matters. You are The Heart of Hospice.

Understanding the Role of the Hospice Chaplain: The Initial Spiritual Assessment, Heartbeat Episode 247

Fri, 09 Jul 2021 07:00:00 +0000

In the second episode of our hospice chaplain series, we’re talking about the Initial Spiritual Assessment, why it’s necessary, and what it includes. Mandated by Medicare, the Initial Spiritual Assessment is completed within 5 days of a patient’s admission to hospice. There’s a lot of information to collect, including details about belief systems, faith, and whether the patient wants to include any clergy person from the community. If the patient doesn’t subscribe to an organized religion, there’s still a lot for the chaplain, or spiritual counselor, to talk about. Because the chaplain is also there to support the caregiver, there should be discussion of any spiritual needs the caregiver might have, especially if those needs are different from the needs of the patient. It takes to complete the Initial Spiritual Assessment but it’s only done on admission. The follow up visits from the chaplain require much less time. Every piece of information the patient and caregiver shares enables the spiritual counselor to offer better individualized care. If you need more information about end of life care, you can find support at theheartofhospice.com. You’ll find more podcasts where we discuss advance care planning, hospice philosophy, and how an end of life care team works on The Heart of Hospice “Listen” page. We never forget - your journey matters. No matter who you are, or where you are in your hospice journey, you are The Heart of Hospice.

Understanding the Role of the Hospice Chaplain - Series Introduction, Heartbeat Episode 246

Fri, 02 Jul 2021 07:00:00 +0000

Chaplains, or spiritual counselors, are one of the core members of a hospice interdisciplinary team. What's their role in the care of seriously ill patients and their families? In this series, we'll talk about how a spiritual counselor comes alongside patients and caregivers to provide supportive spiritual care. Due to outdated beliefs and myths, many people misunderstand what a spiritual counselor does. No matter what belief system the patient may hold, a chaplain can provide support and care within those beliefs. No need to refuse the chaplain visits, even if your personal clergy person is also providing care. There's a big difference between pastoral ministry and chaplaincy. Keep listening to the Heartbeat series to hear more detailed information about the role of the spiritual counselor and what they have to offer. Need more information about hospice philosophy and end of life care? Visit The Heart of Hospice website to find the resources you need. Reach out to Helen or Jerry with questions or comments with an email to host@theheartofhospice.com. Check out our pages on self care and advance care planning. We're here to support both personal and professional caregivers - you are The Heart of Hospice!

What You Need to Know to Care for a Seriously Ill Person at Home, Heartbeat Episode 245

Fri, 25 Jun 2021 07:00:00 +0000

It can be a challenge to care for someone you love at home during a serious illness. We’ve got some tips to help you to do it successfully. There are a lot of things to consider - finances, wellness of the caregiver, acuity of the patient, and safety of the home are just some of the items that need to be discussed before someone takes on the caregiving responsibility. A lone caregiver will need help, so it’s crucial to gather a group of people to manage caregiving tasks. Caregiving should never be a one person job. (Hint - this is where your hospice team can help!) There’s also an emotional burden attached to caring for a loved one at home and experiencing a death in that space. The benefits to having care at home include control of the physical environment, who comes to visit, management of noise, and the familiarity of a home environment. Not every patient can be cared for safely at home. Talk with your hospice care team about whether home will be the best place for you or your loved one. Connect with Helen or Jerry from The Heart of Hospice podcast with questions by sending an email to host@theheartofhospice.com. We’re here to support your end of life journey. No matter where you are in your hospice journey, you are The Heart of Hospice.

How to Have Successful Care Transitions, Heartbeat Episode 244

Fri, 18 Jun 2021 07:00:00 +0000

Most medical mistakes happen during care transitions. Helen and Jerry have some tips on improving those crucial moves between care providers and settings. Care transitions are changes in a patient’s care setting or care provider. Patients may move from living at home to residing in a facility, or make a transition from home health to hospice care. Maybe the care transition is from one hospice team to another, or from the outpatient hospice staff to the inpatient hospice unit for crisis management. Communication is key! If you’re a patient or a caregiver, make sure to ask your questions and repeat them if you need to. Write down the answers and keep those written instructions close by for easy access. Don’t be afraid to make a follow up phone call after a care transition has happened. If you’re a healthcare provider, it’s your responsibility to make those transitions successful by providing full support and education to patients and their caregivers. Repeat instructions patiently, and provide written medication lists and instructions that are easy to read and understand. You can find more support and education about end of life care at theheartofhospice.com. We’re here 24/7 to help you with information about hospice philosophy, self care, and advance care planning. Your organization can have Jerry or Helen to speak at your next event or conference by sending an email to host@theheartofhospice.com. Stay connected with us - you are The Heart of Hospice!

Fact or Fiction: The Real Work of Hospice Volunteers, Heartbeat Episode 243

Fri, 11 Jun 2021 07:00:00 +0000

Hospice patients and families love their volunteers! This week’s Heartbeat shares the truth about the role of the hospice volunteer. Hospice agencies are required by regulation to recruit volunteers to supplement the patient care hours provided by the agency staff. There are many different jobs volunteers can do, everything from administrative tasks in the office to visits to patients’ homes. Volunteers do things like reading to a patient, providing companionship, walking dogs, and fixing a light meal. There are some restrictions on what volunteers can do. They're not allowed to give medications or change a bandage on a wound. The volunteer is responsible for reporting back to the interdisciplinary team, letting them know if the patient is having symptom issues or has had a change in status. There’s no payment for working as a volunteer but the reward is priceless! If you’re interested in being a hospice volunteer, check out the Serve page on theheartofhospice.com for more information. We’ve got podcasts to help you with all your hospice questions. Check out our Podcast page to learn more. Got a hospice question? Send it to host@theheartofhospice.com. We’re happy to help - you are The Heart of Hospice.

Fact or Fiction: The Real Work of the Hospice Aide, Heartbeat Episode 242

Fri, 04 Jun 2021 07:00:00 +0000

Hospice aides are truly an essential part of the interdisciplinary team, providing some of the most intimate care to seriously ill patients. Today’s Heartbeat shares the truth about the role of the aide in end of life care. Providing personal care such as bed baths, showers, catheter or incontinent care, and skin care is just part of what an aide can do. The aide also monitors a patient for skin breakdown and ensures safe ambulation during the aide’s visit. Cleaning nails and providing oral care is also included in the aide care plan. One of the most important aspects of the aide’s job is communication with the nurse. An aide can be the first to see skin breakdown or a change in the patient’s status. Aide often provides bathing of the body after a patient dies, known as post mortem care. Aides are not allowed to give medications or provide medical advice. The Heart of Hospice wants to support you during your end of life journey. Find information about hospice philosophy at theheartofhospice.com. The hosts of The Heart of Hospice podcast have 20+ years of hospice experience. Contact Helen or Jerry with questions by sending an email to host@theheartofhospice.com. No matter where you are in your hospice journey, you are The Heart of Hospice.

Fact or Fiction: The Real Work of Hospice Chaplains, Heartbeat Episode 241

Fri, 28 May 2021 07:00:00 +0000

No one on the hospice team is more misunderstood than the chaplain. Today we’re clearing up myths about hospice spiritual counselors. Lots of people think spiritual counselors (commonly called chaplains) are there to convert or change faith beliefs. That could not be further from the truth. The role of the hospice spiritual counselor is to support seriously ill patients and their families in whatever spiritual beliefs they have. Regardless of what the personal faith system of the chaplain is, the chaplain can provide spiritual care for a wide variety of faiths - Jewish, Buddhist, Muslim, Hindu, Christian, wicken, atheist, agnostic, or non-theistic. If you’re receiving hospice services and there is talk of converting or saving you, that is NOT the kind of spiritual care service you’re supposed to be receiving. Your faith beliefs are what matters. Spiritual counselors are not there to judge you or change what you believe. Chaplains facilitate life review and help with legacy projects or funeral planning. Spiritual care should always be respectful, nonjudgmental, and accepting. It’s important to know your rights as a seriously ill patient and family. Listen to more of our Fact and Fiction series to find out more about the roles of every person on the hospice interdisciplinary team. The Heart of Hospice is here to make your end of life journey easier. Check out our info on advance care planning, self care, and hospice philosophy. Your journey matters. The Heart of Hospice is here to help. You are The Heart of Hospice.

Fact or Fiction: The Real Work of a Hospice Social Worker, Heartbeat Episode 240

Fri, 21 May 2021 07:00:00 +0000

In this 3rd episode of the Fact or Fiction series, we’re talking about the problem-solvers of the interdisciplinary team - social workers. Social workers are a vital part of hospice care. There’s a lot of misinformation about the role of a social worker so we’re sharing the facts about what they really do. Social workers act as advocates for patients and families, and help families access resources to make caregiving easier. Offering grief counseling is also a big part of what social workers do. Social workers often facilitate family conferences to help with big decisions or help resolve disagreements among family members about how a patient’s care should be handled. They provide a crucial component of the care of a hospice patient. At theheartofhospice.com you’ll find more information about interdisciplinary teams and their work to care for seriously ill patients. Whether it’s information about hospice philosophy or understand the roles of every person on the team, The Heart of Hospice has content that can help. You’ll find podcasts discussing everything from hospice 101 and philosophy to self care for both personal and professional caregivers. Send any questions you might have to host@theheartofhospice.com. No matter where you are in your hospice journey, you are The Heart of Hospice.

Fact or Fiction: The Real Work of a Hospice Physician and Nurse Practitioner, Heartbeat Episode 239

Fri, 14 May 2021 07:00:00 +0000

The hospice physician and nurse practitioner play key roles in the care of hospice patients. In today's episode we’re sharing facts about what the hospice doc and NP really do. It’s important to remember the patient (or a designated decision maker) is in charge of the care the patient receives. The hospice physician or the attending doctor the patient chooses guides the hospice plan of care. The nurse practitioner sometimes works alongside the hospice doctor to provide an additional layer of care, often performing Face to Face visits that Medicare requires to recertify a patient for continuing hospice services. The hospice physician and NP collaborate closely with the other members of the hospice interdisciplinary team to provide the best possible care for seriously ill patients. Find more information about the members of the hospice team and the care they provide to patients and their caregivers at theheartofhospice.com. We’d love to hear from you - send questions to Helen and Jerry at host@theheartofhospice.com. Your end of life journey matters. We never forget. You are The Heart of Hospice.

Fact or Fiction: The Real Work of a Hospice Nurse, Heartbeat Episode 238

Fri, 07 May 2021 07:00:00 +0000

Do you know what a hospice nurse really does? In the first episode of our Fact or Fiction series, we’re sharing the facts about hospice nursing - the perfect topic for Nurses Week! The hospice nurse isn’t there to make decisions for patients and caregivers, but to offer support, education, along with clinical care. While the nurse will teach about medications and hospice philosophy, the patient makes all the decisions. Hospice nurses also know there’s more to end of life care than just medications. The nurse should offer different modalities to take care of patients, and to work with the whole hospice interdisciplinary team to provide the best care. Hospice nurses never accelerate a death. They also don’t seek to prolong life. The goal is always to provide care that enhances quality of life for patients. Stay tuned for the next few weeks to hear the facts about the other members of the hospice team in our Fact or Fiction series! Our sponsor for today’s episode is Hospice of Southern Maine. Hospice of Southern Maine is the only Medicare-certified hospice agency serving Cumberland and York counties. Hospice of Southern Maine is proud to bring you the 10th Annual Anne L. Hunter Memorial Thresholds Conference. For only $35, registrants can participate virtually in this year’s conference, “The Art and Science of Dying: Death as a Part of Life” featuring Barbara Karnes, author of “the little blue book” Gone from my Site, and Dr. B.J. Miller, well-known hospice physician. Reserve your place for the 2021 Thresholds conference May 20, 1:00pm - 4:30pm ET by clicking here. You can find more information about hospice care and philosophy at theheartofhospice.com. The Heart of Hospice is here to support you. Send questions and comments to host@theheartofhospice.com. We’ll send you a personal reply. Whether you’re a hospice professional or an unpaid caregiver for someone who’s seriously ill, your end of life journey matters. You are The Heart of Hospice.

Personal or Professional: We Provide the Information You Can Use, Heartbeat Episode 237

Fri, 30 Apr 2021 07:00:00 +0000

End of life care can be confusing. The Heart of Hospice is here to support anyone experiencing hospice care, including personal and professional caregivers. If you’re a hospice professional, it’s important to understand the perspective of patients and families so you know how best to meet their needs. Between them, Jerry and Helen have over 20 years experience as hospice professionals so they know what it’s like to care for terminally ill patients. And because they’ve both had personal experiences with hospice care, they know what it’s like to be a consumer of end of life care. Managing caregiving responsibilities and tons of new information is often complicated by the grief and mental exhaustion that come with serious illness. The Heart of Hospice is here to inform, encourage and help you make it through your caregiving days. Connect with more episodes of The Heart of Hospice podcast by clicking here. The sponsor for today’s episode is Hospice of Southern Maine, the sponsor for the 10th annual Thresholds Conference coming up on Thursday, May 20, 2021 from 1:00 - 4:30pm EST. Registration is only $35, and the conference features hospice industry icons Barbara Karnes and Dr. B.J. Miller. You won’t want to miss this virtual affordable opportunity! Visit the Hospice of Southern Maine website to learn more and reserve your spot at the Thresholds Conference. Find more support for your hospice journey at theheartofhospice.com. Whether you’re a personal caregiver, a patient, or a hospice professional, or a healthcare profession student, The Heart of Hospice provides information to educate, support, and encourage you. If you’re interested in having Jerry or Helen speak at your conference or event, send an email to host@theheartofhospice.com. We’re honored to support your hospice journey!

Now is the Best Time to Select Your MPOA, Heartbeat Episode 236

Fri, 23 Apr 2021 07:00:00 +0000

We all need to designate someone to speak for us when we can’t voice our healthcare wishes. Now is the best time to choose your healthcare proxy. A healthcare proxy, or medical power of attorney, acts as an advocate for the needs of a patient in alignment with the patient’s desires. It’s important to have the correct legal documents in place for where you live so be sure to find out what forms are required in your area or state. Your proxy or MPOA should be willing and able to act on your behalf. Having conversations before the proxy has to act is crucial - no one will know what you want if you don’t tell them. Discuss it, document it, and share it with your healthcare team and family. The sponsor for today’s episode is Hospice of Southern Maine, the sponsor for the 10th annual Thresholds Conference coming up on Thursday, May 20, 2021 from 1:00 - 4:30pm EST. Registration is only $35, and the conference features hospice industry icons Barbara Karnes and Dr. B.J. Miller. You won’t want to miss this virtual affordable opportunity! Visit the Hospice of Southern Maine website to learn more and reserve your spot at the Thresholds Conference. Find more support for your hospice journey at theheartofhospice.com. Whether you’re a personal caregiver, a patient, or a hospice professional, or a healthcare profession student, The Heart of Hospice provides information to educate, support, and encourage you. If you’re interested in having Jerry or Helen speak at your conference or event, send an email to host@theheartofhospice.com. We’re honored to support your hospice journey!

How to be a Patient Advocate: Supporting Advance Directives, Heartbeat Episode 235

Fri, 16 Apr 2021 07:00:00 +0000

In the final episode of our patient advocacy series, we’re talking about supporting advance directives to honor end of life wishes. Caregivers often advocate for loved ones to prevent unwanted care. As advocates for family members or friends, caregivers are called to respect the wishes expressed in directives to physicians, diagnosis-specific directives, and Do Not Resuscitate documents. Having end of life wishes documented during advance care planning takes some of the decision-making burden off of the caregiver. Relieving some of that caregiver burden can reduce anxiety and guilt, allowing the caregiver to experience their grief journey a little easier. Hospice interdisciplinary team members also have to recognize the importance of acting as advocates to support patient’s end of life wishes. The Heart of Hospice has more information and support for your hospice journey. Find us 24/7 at theheartofhospice.com. You’ll find podcasts discussing everything from hospice 101 and philosophy to self care for both personal and professional caregivers. No matter where you are in your hospice journey, you are The Heart of Hospice.

How to be a Patient Advocate: Handling Complaints and Concerns, Heartbeat Episode 234

Fri, 09 Apr 2021 07:00:00 +0000

Sometimes being an advocate for a loved one includes voicing concerns and complaints. Knowing who to talk to and how to do it is important. It’s a good idea to start with the case manager from your hospice team. If that doesn’t work, voice your concern to the director or administrator. Escalate your complaint if there’s not an appropriate response - to the state agency that oversees hospice agencies, or to the accrediting organization for the hospice agency providing your loved one’s care. If you’re a hospice professional, it’s important for you to know how to handle a complaint if it comes to you. Receive any complaint from a patient or caregiver with respect and truly listen to their concerns. Take it to your manager for investigation as needed. You also need to know the reporting requirements for your state when it comes to any allegation of abuse, neglect, or exploitation. Patients should receive the best care possible, and end of life professionals should provide it. Knowing how to handle a concern or complaint will help. If you need more information about getting the best hospice care you can, go to theheartofhospice.com. Have a question? Send it to host@theheartofhospice.com. If your company provides services or products to hospice agencies, consider sponsorship with The Heart of Hospice to get the word out about what you do. No matter who you are, or where you are in your hospice journey, you are The Heart of Hospice.

How to be a Patient Advocate: Keeping Records That Matter, Heartbeat Episode 233

Fri, 02 Apr 2021 07:00:00 +0000

If you’re a caregiver, you’re an advocate for your loved one. Knowing what records to keep is important. Some things need to be saved, some can be shredded. If you stay organized, you’ll be able to find the documents you need in a crisis. A few of the items you want to make sure you keep are a current medication list, a healthcare history, and all documents related to advance directives or living wills. You’ll want to make sure that copies are easy to put your hands on and they’re kept secure. Another vital document is the Do Not Resuscitate document (or the equivalent in your state). Make sure that document is present, and goes wherever the patient goes. If healthcare documents are kept together and organized, it will make your caregiving journey easier. If you need more information about hospice, check out theheartofhospice.com. We’re here with support and encouragement for your end of life journey. No matter who you are, you are The Heart of Hospice.

How to be a Patient Advocate: Interacting With Medical Providers, Heartbeat Episode 232

Fri, 26 Mar 2021 07:00:00 +0000

In the 2nd episode of our Patient Advocacy Series, we’re talking about how to get the best results from interactions with healthcare professionals. Before appointments, it’s important to write down any questions you have. Even if the patient can make his own decisions, it’s useful to have another set of ears. The patient should be allowed to respond on his own as he is able. It’s also respectful to allow your loved one to have a private conversation with healthcare providers if that’s what the patient wants. If you’re the person providing the healthcare, put instructions in writing that’s easily understood - and legible! And the most important thing - create an opportunity for the patient to speak with you privately. Sometimes patients need a safe space and person to discuss problems with the caregiving system, abuse, or neglectful situations. Caregivers, whether professional or personal can be advocates for patients! When you’re planning your next event, keep in mind that the hosts of The Heart of Hospice podcast are available to speak at conferences and meetings. Whether you’re meeting in-person or virtually, we can provide education to your team on topics such as how to have compassionate conversations, how to recognize personal bias, building listening skills, and managing personal grief as a hospice professional. We’d love to encourage your team and remind them why the work they do is so important. Because we both have a personal hospice journey in addition to our years working in end of life care, we can also share a message of resilience and hope at your agency’s next memorial service. To find out more, contact us at host@theheartofhospice.com. The Heart of Hospice is honored to be a part of your hospice journey.

How to be a Patient Advocate: Communication is Key, Heartbeat Episode 231

Fri, 19 Mar 2021 07:00:00 +0000

Being a healthcare advocate for someone you love can be challenging. In the first episode of our Patient Advocacy Series, we’re talking about...talking. Communication is key. Everyone needs an advocate, someone who can keep track of information and coordinate with the healthcare team. The exchange of information during serious illness can be overwhelming! Being able to communicate clearly and directly with anyone providing your care is crucial. Be sure to identify yourself and who the patient is every time you have to talk with a care provider. Explain what the need is. Your hospice team can provide better care based on the information you provide. Write down the instructions you get; when you’re tired or grieving you might forget what you’ve been told. And ask questions fearlessly! If you’re a hospice professional, remember the rules of communication apply to you too. Patients and caregivers need to hear terms they understand at a pace that allows for their comprehension. Leave written instructions and be sure to coordinate with the rest of the team about any changes in the patient’s status. If you need more information about being an advocacy for someone's end of life journey, check out theheartofhospice.com. The website is here to help you 24/7. We’re here to help make your hospice journey the best possible. You are The Heart of Hospice!

How to Make Your Hospice Team Meetings Successful, Heartbeat Episode 229

Fri, 05 Mar 2021 08:00:00 +0000

Are you making the most of your hospice team meetings? We’ve got some great tips for keeping your discussions professional and respectful. Using derogatory terms or labels to describe patients and families will eventually find its way into your care so keep your reporting respectful. It’s also important to remember to allow time for every team member in attendance to speak. How you speak about your patients and to each other in team discussions is an important reflection of your team culture. Making time for the right kind of patient care discussion is an important part of hospice care, not just compliance with regulation! To get more information about hospice philosophy and history, advance care planning, and self care, visit theheartofhospice.com. No matter who you are, or where you are in your hospice journey, you are The Heart of Hospice.

How to Get the Most Out of Your Advance Care Planning, Heartbeat Episode 227

Fri, 19 Feb 2021 08:00:00 +0000

Do you think your advance care plan is complete? It’s way more than a one and done conversation! Along with the big decisions like your health care proxy and resuscitation status, there are lots of details to communicate to your healthcare providers, your proxy, and your family. It’s important to know what’s legally acceptable in the state or province where you live. And what about the smaller decisions? Issues like feeding tubes, dialysis, blood transfusions, artificial ventilation, and nursing placement need to be discussed. It might be hard to talk about those issues. They’re full of emotion. Be brave - have those conversations! It’s worth it. Making those advance care plans is a gift to the people you love. Those plans can also prevent you from receiving care you don’t want that won’t help you. Make a good decision to do your advance care planning before you think you’ll need it! There’s more support about advance care planning at theheartofhospice.com. Send any questions about end of life care to host@theheartofhospice.com. We’re here to help make your hospice journey the best possible. You are The Heart of Hospice!

Hospice Volunteer Steve Litwer Shares His Story in “The Music Between Us” Heartbeat Episode 225

Fri, 05 Feb 2021 08:00:00 +0000

Author Steve Litwer shares stories of his hospice volunteering as a bedside musician in his new book “The Music Between Us: Memoir of a Bedside Musician”. Serving others by playing his guitar helped him find healing and perspective for his own life. His connections with his hospice patients motivated him to share their stories along with his own. Steve’s love for music is woven through each chapter of the book, as he talks about his encounters with patients who never knew how much they inspired Steve. He never expected the immeasurable reward he found as a hospice volunteer. You can connect with Steve at stevelitwer.com and watch the trailer for the book. Check out his blog page to see what Steve’s doing currently. You’ll find the book on Amazon, Indie Bound Barnes and Noble, and Amazon Kindle. The Heart of Hospice website can help you with information about hospice and end of life care, give you tips on how to choose a hospice agency, and encourage you when self care seems challenging. Find all our podcast episodes on the Podcast page. Send your questions about hospice to host@theheartofhospice. We’re always glad to hear from you. You are The Heart of Hospice!

Information for Caregivers from Family Caregiver Alliance, Heartbeat Episode 223

Fri, 22 Jan 2021 08:00:00 +0000

The Family Caregiver Alliance is a great resource if you’re one of the 42 million personal caregivers across the U.S. Whether you need information on caring for someone with dementia, resources for advance care planning, or patient advocacy, the FCA website can help you. According to the FCA website, “The mission of Family Caregiver Alliance (FCA) is to improve the quality of life for family caregivers and the people who receive their care. For over 40 years, FCA has provided services to family caregivers of adults with physical and cognitive impairments, such as Parkinson’s, stroke, Alzheimer’s and other types of dementia. Our services include assessment, care planning, direct care skills, wellness programs, respite services, and legal/financial consultation vouchers.” You can find free webinars and videos in the FCA Learning Center. If you’re a hospice professional, the FCA website is a great tool for you to share with your patients and families. Check out https://www.caregiver.org/ to see the full listing of the services FCA provides. You’ll find more caregiving resources at theheartofhospice.com. If you’d like to book Jerry or Helen as a speaker for your hospice agency memorial service or conference, send an email to host@theheartofhospice.com. Your hospice journey matters and The Heart of Hospice is here to help. No matter who you are, or where you are in your hospice journey, you are The Heart of Hospice!

A New Year's Message from The Heart of Hospice, Heartbeat Episode 220

Fri, 08 Jan 2021 08:00:00 +0000

We’re flexing our gratitude today to get 2021 started. There’s no easier way to boost your self care wellness than practicing thankfulness. We all know 2020 was challenging and at times, even heartbreaking. In this New Year’s message, Helen and Jerry remember all the ways the past year helped us to grow. Our Connection Moments campaign allowed us to encourage and support healthcare workers all over the country. There have been opportunities to attend conferences virtually and find new virtual education resources. Hospice and palliative care teams have learned to be creative in their use of telehealth during a time where social distancing kept us apart from our patients and their families. Our resilience as a professional community grew from the challenges we face. We think 2020 has equipped us to take on 2021 with courage, strength, and compassion. If the new year finds you needing information about end of life care, you can find more support at theheartofhospice.com. You’ll find more podcasts where we discuss advance care planning, hospice philosophy, and how an end of life care team works on The Heart of Hospice “Listen” page. We never forget - your journey matters. No matter who you are, or where you are in your hospice journey, you are The Heart of Hospice.

How to Access Your Hospice Provider 24/7, Heartbeat Episode 221

Fri, 25 Dec 2020 08:00:00 +0000

Hospice agencies care for their patients all day, every day. What should patients and caregivers expect from on call services during the night, weekends, or on holidays? We’re talking about “on-call” services in today’s episode. Being a seriously ill person or a caregiver for someone who’s seriously ill is very isolating. It can feel like there’s no one else in the world awake, no one who cares what you’re going through. Your hospice team is available to support you every hour of every day. Whether you need help with symptoms or you have a question, you should always be able to reach a nurse. Support from a social worker or chaplain is available as well. You’re not alone. Your end of life journey matters. The Heart of Hospice is here to help you make that journey. Find more information at theheartofhospice.com. Have a question? Check out our podcast page to learn more about hospice care, or send your question to host@theheartofhospice.com. We’ll send a personal reply. No matter who you are, you are The Heart of Hospice.

PallMusic.org Provides Comforting Music for Body, Mind, and Spirit, Heartbeat Episode 220

Fri, 18 Dec 2020 08:00:00 +0000

Music can improve quality of life for people experiencing a serious illness. The American Palliative Music Council provides “complementary and alternative uses of music in palliative care treatment for persons and families coping with serious illness from the time of diagnosis.” Under the leadership of Certified Palliative Music Planner™ (CPMP) Glenn Dewitt, the organization has free downloadable music playlists to promote quality of life for patients and caregivers. PallMusic.org also offers services from Certified Palliative Music Planners, qualified personal music aides that specialize in facilitating palliative uses of music. According to the APMC website, “Palliative uses of music is utilizing music to make a problem such as chronic pain or symptoms of chronic pain seem less serious but does not solve the problem or make it disappear.” PallMusic.org is another great tool for the care of hospice and palliative care patients. Find more information about hospice care including advance care planning, self care, and hospice philosophy at theheartofhospice.com. Need a speaker for your event or organization? Send an email to host@theheartofhospice.com. We’d love to connect with you. You are The Heart of Hospice!

It's Time for a Holiday Self Care Check In, Heartbeat Episode 219

Fri, 11 Dec 2020 08:00:00 +0000

We’re overdue for a self care check in, so in today’s episode Jerry and Helen are sharing the good and bad of their self care for the holiday season. The last few months of the year can be a time of unhealthy eating, extra commitments, and short sleep. All the “extras” can take a toll on our self care. It’s important to remember that it’s so much harder to get your self care habits back on track than it is to maintain those habits. Keeping up your self care activities during the holidays will find you healthier when the season is over. All of you matters - mind, body, and spirit. So let yourself have an occasional treat but offer yourself some grace and keep up the good self care. You matter! The Heart of Hospice is here to support your self care. Find more information at theheartofhospice.com. No matter who you are, or where you are in your hospice journey, you are The Heart of Hospice.

How to Make the Holidays Less Stressful, Heartbeat Episode 218

Fri, 04 Dec 2020 08:00:00 +0000

Feeling a little stressed by the holiday season? Jerry and Helen talk about having a plan to keep yourself healthy - body, mind, and spirit. While all the holiday fun is tempting, it’s a good idea to keep some balance with your habits. Self care is so important! Stick with routines for sleep and nutrition. Find ways to feed your spirit even if your faith family isn’t gathering during the pandemic. Your journey still matters. The Heart of Hospice remembers that. We have more support for you at theheartofhospice.com. Self care resources, information on advance care planning and basic hospice philosophy 101 are on the website to enhance your hospice journey. If you’re an end of life professional needing mentoring and coaching, email us at host@theheartofhospice to sign up for a free 30 minute mentoring session with Jerry or Helen. Remember, you are The Heart of Hospice!

How are We Doing Today? - The Ugly Reality of Ageism in Healthcare, Heartbeat Episode 217

Fri, 27 Nov 2020 08:00:00 +0000

Ageism is an ugly reality in the U.S. healthcare system. Today we’re talking about how you can identify ageism in how you talk to and care for your patients. Healthcare providers often speak to older patients as if they were children, or incapable of understanding details about treatments or diagnoses. Speaking in a way that is patronizing or condescending to your patients is offensive. Find ways to speak to patients that are respectful, and don’t ignore them if there’s a third person in the room. Patients and their families deserve the very best healthcare professionals have to give. Treatment without bias is important and is the right of every patient. Jerry and Helen offer some tips to identify your own bias, and how to eliminate ageism from your practice. Today’s sponsor is Vital Decisions, the company working to ensure that the care of individuals with advanced illness aligns with their values and preferences. Find their online, free program My Living Voice at https://vitaldecisions.net/solutions/my-living-voice/. You’ll find resources about the rights of seriously ill patients who enter hospice care at theheartofhospice.com. We care about your hospice journey. Write to us at host@theheartofhospice.com with your questions, and we’ll send you a personal response. No matter who you are, or where you are in your hospice journey, you are The Heart of Hospice.

Creating New Holiday Traditions When You're Grieving, Heartbeat Episode 216

Fri, 20 Nov 2020 08:00:00 +0000

The 2020 holidays are going to feel different, especially for people who are grieving the death of a loved one. The loss of someone you love along with changes due to the pandemic can make it necessary to create some new traditions. You don’t have to let go of the rituals that you love, just find new ways to add meaning. If you’re not able to travel, using tech tools like Facetime, Zoom, Google Meet, and Skype can make the distance seem smaller. Even a three way call using your smartphone can bring people together. Cook that favorite dish, play some games, and listen to music that brings joy to your holiday. And don’t forget to treat yourself with compassion and kindness. Your grief journey isn’t forgotten. The Heart of Hospice is always here to support you. Visit theheartofhospice.com to find support and encouragement in your end of life journey, including self care, advance care planning, and hospice philosophy. Send us an email at host@theheartofhospice.com. We’re happy to help - you are The Heart of Hospice.

Get to Know the Dougy Center for Grieving Children, Heartbeat Episode 215

Fri, 13 Nov 2020 08:00:00 +0000

The Dougy Center for Grieving Children helps to meet the unique grief needs of children and teenagers. Today we’re talking about all the resources the Center has to support parents, educators and communities as they care for grieving kids. According to the Dougy Center website, the organization “provides support in a safe place where children, teens, young adults, and their families grieving a death can share their experiences. We provide support and training locally, nationally, and internationally to individuals and organizations seeking to assist children in grief. Through our Pathways program, we provide a safe place for families living with an advanced serious illness.” During the COVID-19 pandemic, the Center’s bereavement and Pathways programs are continuing through virtual platforms. There are tipsheets, podcasts, and videos available on the website at no charge - all great resources for counselors, bereavement, and psychosocial professionals. You’ll find more support for end of life care and bereavement at theheartofhospice.com. To book Helen or Jerry to speak at your agency or organization’s next event, email us at host@theheartofhospice.com. We’re happy to support your hospice journey - you are The Heart of Hospice.

November is National Hospice and Palliative Care Month, Heartbeat Episode 213

Fri, 30 Oct 2020 07:00:00 +0000

During the month of November, the healthcare industry celebrates National Hospice and Palliative Care month. The theme this year is “The Faces of Caring”. While hospice and palliative care professionals are wearing masks to keep us all safe during the COvID-19 pandemic, they’re still providing compassionate care to seriously ill patients. If you’re part of a hospice agency and want to celebrate the month, you can participate in Social Media Action on November 6th by posting what your agency is doing for National Hospice and Palliative Care Month. Remember to tag your post with #hapcfacesofcaring. You’ll find more great materials for your campaign on the NHPCO website in the Outreach Tools section. You don’t have to be a member to access the materials, but membership in NHPCO has some great benefits! Whether you’re a hospice consumer or a hospice provider, your journey matters. Find more support for your end of life care experience at theheartofhospice.com. You are The Heart of Hospice!

Every Member of the Hospice Team is Essential, Heartbeat Episode 212

Fri, 23 Oct 2020 07:00:00 +0000

Thanks to the corona virus, we're using a lot of new terms - social distancing, COVID-19, pandemic, non-essential. While some members of the hospice team have been excluded from the care of patients, every discipline is essential to providing excellent patient care. The IDT members most likely to be blocked from seeing patients and families are chaplains, social workers, aides, and volunteers. Jerry and Helen want to remind hospice team members that all roles are necessary when it comes to the care of seriously ill patients. Our patients need all the skills we can bring to have the best quality of life possible. If you’re part of a hospice team, remind your coworkers they’re essential to the work you do. The Heart of Hospice is here to support the important work being done at hospice agencies all over the country. Find more information (and podcasts!) at theheartofhospice.com. Connect with Helen at helen@theheartofhospice.com, and with Jerry at jerry@theheartofhospice.com. Your journey still matters - you are The Heart of Hospice!

Energize Your Passion for EOL Care at a Virtual Conference, Heartbeat Episode 209

Fri, 02 Oct 2020 07:00:00 +0000

Virtual conferences are the current trend while we cope with the pandemic. Today Helen and Jerry are talking about the benefits of attending a hospice conference virtually. If you’re a hospice professional, ongoing education is essential to maintain current working knowledge of clinical care, regulations, and industry trends. Virtual attendance saves you money and time on travel, plus you can attend on your own schedule from the comfort of your own computer! No matter what your discipline may be, there’s a conference for you. Chaplains can look into “Caring for the Human Spirit” sponsored by the Healthcare Chaplaincy Network. NHPCO has their Interdisciplinary Conference coming up in October 2020, and the Leadership and Advocacy Conference in March 2021. The American Academy of Hospice and Palliative Medicine Annual Assembly is being held in February 2021. Locate the state hospice organization for your area on the Hospice Foundation of America website to find a conference for your state. You’ll find more resources and support at theheartofhospice.com. Your hospice journey matters whether you’re a hospice professional, a patient, or a family caregiver. You are The Heart of Hospice.

A Tale of Two End of Life Experiences with Tina Ketchie Stearns, Episode 089

Thu, 15 Jul 2021 07:00:00 +0000

You’ll find more information about hospice and how to get the best out of your end of life experience at theheartofhospice.com. Need a speaker for your next company event or conference? Send an email to host@theheartofhospice.com to book Jerry Fenter or Helen Bauer to encourage and inspire your audience. You’re not alone in your hospice journey - we never forget. You are The Heart of Hospice.

Sharing a Hospice Love Story: Interview with Author Larry Indiviglia, Episode 088

Thu, 01 Jul 2021 07:00:00 +0000

Author Larry Indiviglia shares the incredible story of "126 Days 11 Minutes: Our Love Story" in his interview with The Heart of Hospice. Revealing his heart and vulnerability, Larry tells the story of his brief but deep connection to his partner Gayle as she deals with stage IV breast cancer. Gayle's passion for life and the Argentine tango along with her dedication to living life to the fullest is an inspiring story. Helen and Jerry talk with Larry about the wisdom he gained and how being Gayle's caregiver enriched his life. You can find "126 Days 11 Minutes: Our Love Story" on "126 Days 11 Minutes: Our Love Story" in both paperback and Kindle audiobook forms. Connect with Larry by sending an email to lindiviglia@gmail.com. You’ll find more information about hospice philosophy and how to make the most of your end of life journey at theheartofhospice.com. To connect with podcast hosts Jerry Fenter or Helen Bauer, send an email to host@theheartofhospice.com. Either one would make a great speaker for your next event, conference, or agency memorial service. You are The Heart of Hospice!

How You Can Have a Home Funeral with National Home Funeral Alliance, Episode 087

Tue, 15 Jun 2021 07:00:00 +0000

A home funeral can be a rich and meaningful experience. The National Home Funeral Alliance offers guidance to help make it happen. Our special guest today is Dani Lavoire, former president of the National Home Funeral Alliance. Dani is a birth midwife who made a connection between the experiences of birth and death. The team at the National Home Funeral Alliance provides support for families across the U.S. who would like to have a more personal after-death event. According to the NHFA website, “it is your right [in all 50 states] to care for your own loved one after death. The NHFA is working to make sure communities and families know their rights.” Personal rituals can be conducted without feeling rushed, or on someone else’s timeline. If you’re interested in a home funeral, visit homefuneralalliance.org to get more information. Check out their podcast - A Path Home, hosted by Sarah Crews, former president of NHFA. You’ll find more support for your end of life experience at theheartofhospice.com, including information about self care, hospice philosophy, and advance care planning. You’ll also find info about Helen Bauer and Jerry Fenter, hosts of The Heart of Hospice podcast. We’re happy to connect with you - you are The Heart of Hospice.

Seniors Stay Connected with GrandPad, Episode 086

Tue, 01 Jun 2021 07:00:00 +0000

GrandPad founders Scott and Isaac Lien believe no senior adult should ever be isolated. GrandPad keeps older adults and their loved ones connected with easy-to-use technology. The GrandPad device is customized to the communication needs of the aging adult. Using a private family network that allows for safe photo and video sharing, GrandPad keeps the older user safe while offering a wide variety of applications. Games, video chat, music, and email are all features of the GrandPad. There’s no wifi needed - GrandPad comes with its own built-in LTE connection so there are no passwords or logins to remember. The team at GrandPad considers the special needs of older adults when considering the features of the GrandPad device, including speaker placement and tactile features. The GrandPad team includes a group of senior adults to test, provide feedback, and guide the development of GrandPad functions. You can order a GrandPad for your loved one - or multiple devices for your facility - by clicking here. The Heart of Hospice is here for you to provide support and education for your end of life journey. If you need to consider hospice care for yourself or a loved one, click here to learn about hospice basics and philosophy. If you’d like to book Helen or Jerry as a speaker for your in-person or virtual conference, hospice memorial service, or company meeting, contact us at host@theheartofhospice.com. We’re here for your end of life journey - you are The Heart of Hospice.

Rediscovering the Roots of Modern Day Hospice with Shaun O'Leary, Episode 085

Sat, 15 May 2021 07:00:00 +0000

We're thrilled to talk with our guest Shaun O’Leary, Joint CEO of St. Christopher’s Hospice in London as he shares how St. Christopher’s is building on its rich history to move hospice care forward into the future. Founded by Dame Cicely Saunders, St. Christopher’s was the first modern hospice center and acted as a model for hospice care in the U.S. Shaun uses the wisdom he’s acquired over 15 years of working in end of life care to steer St. Christopher’s Hospice. He acknowledges there are challenges that hospice agencies in the U.K. face, such as fund raising, misinformation, and the need for community education about hospice philosophy. St. Christopher’s is providing that education through a brand new center - the Centre for Awareness and Response to End of Life (CARE). The CARE Centre opened on January 15 of 2021. According to the St. Christopher’s website, visitors can “enjoy viewing art exhibitions, participate in a book club or simply take some time out in one of the many quiet and intimate spaces included in the building. The high-tech Skills Lab provides a facility for doctors, nurses and carers to demonstrate practical skills such as using a syringe driver or moving someone safely in a bed. With cameras fitted all around this space, learners of all kinds will be able to access a fully immersive experience.” You can find more information about St. Christopher’s history and CARE by visiting their website: stchristophers.org.uk. To find more podcasts from The Heart of Hospice, visit theheartofhospice.com. We’re here to support your hospice journey, with support and encouragement. There’s information on advance care planning, self care, caregiving, and the basics of hospice philosophy. No matter where you are in your hospice journey, The Heart of Hospice is here to help.

How to Provide Effective Bereavement Care in a Virtual World, Episode 084

Sat, 01 May 2021 07:00:00 +0000

The pandemic has created challenges in the ways hospice agencies provide bereavement care. Hospice of Southern Maine is making the technology work. Today’s guest is Carol Schoneberg is an End of Educator and Bereavement Services Manager for Hospice of Southern Maine. Carol acknowledged that various challenges related to social distancing made the bereavement team think out of the box about how they could provide care when in-person groups had to be cancelled. Using secure video conferencing, the bereavement support groups were revived. Hospice of Southern Maine has been able to use technology to provide healing and connection for grievers in their community. Your agency, regardless of size, can find innovative ways to use technology to provide bereavement care for your families. Click here to see more about bereavement services from Hospice of Southern Maine. You’ll want to check out the opportunity at their 10th annual Thresholds Conference featuring Barbara Karnes and Dr. B.J. Miller on Thursday, May 20, 2021 at 1:00 - 4:30pm EST. Affordable (only $35) and virtual, the Thresholds Conference is a great chance to learn from end of life industry icons. Click here to register. Our other sponsor for today’s episode is GrandPad. GrandPad is a great gift for any senior living alone or at a distance from loved ones. With secure email, photo and video sharing, and video calling, GrandPad enables older adults to access technology in a user-friendly format. Family members can help with set up and create a private GrandPad group using the Companion App. Unlimited 4G LTE is included with the subscription and available nationwide so you can connect to loved ones from wherever you are. The GrandPad team is dedicated to creating a world where no seniors are lonely or isolated! Purchase a GrandPad for someone you love by clicking here. The Heart of Hospice team is here to support your end of life journey, whether you’re a patient, a personal caregiver, or a hospice professional. Find us at theheartofhospice.com or send an email to host@theheartofhospice.com. We’re walking this journey with you - you are The Heart of Hospice.

Virtual Reality Brings a New View to Hospice, Episode 083

Thu, 15 Apr 2021 07:00:00 +0000

Hospice of Southern Maine has harnessed the power of virtual reality to educate about end of life care. CEO Daryl Cady shares how their innovative VR program “Clay” teaches what the hospice experience is like for patients and families. Through VR technology, the hospice journey of virtual patient “Clay” and his family demonstrates to both laypersons and healthcare professionals how a typical end of life situation evolves. The program includes many of the facets of hospice, including the initial terminal diagnosis, responses of Clay’s family members, and discussion of end of life wishes. Daryl reports that many of the people who view the Clay modules are deeply moved, especially by Clay’s dying process and death. Audience members are supported by a social worker or chaplain to help process the emotions that surface during the viewing. You can read more about the innovations Hospice of Southern Maine is using to care for its patients and the community at hospiceofsouthernmaine.org. Be sure to check out information for the 10th Anniversary Thresholds Conference for a series of presentations about end of life, dying, and death. Featured speakers at this year’s conference are internationally renowned end-of-life educator Barbara Karnes, author of the little blue book Gone from my Sight, and Dr. B.J. Miller, acclaimed speaker and hospice and palliative care specialist. Don’t miss this great opportunity on Thursday, May 20 on 1:00 - 4:30pm ET - register now for only $35! Stay connected with The Heart of Hospice at theheartofhospice.com for more information and support of your hospice journey. Your journey matters - you are The Heart of Hospice.

Being Authentic With Hospice Chaplain Rabbi David Gold, Episode 082

Thu, 01 Apr 2021 07:00:00 +0000

There’s more than meets the eye when it comes to the role of the hospice chaplain. In this episode we’re talking with hospice chaplain and Jewish Rabbi David Gold. David gives insight into the work of hospice chaplaincy and shares the traditions that affect how Jewish patients and families experience death and dying. There seems to be a lot of confusion about what a hospice chaplain, or spiritual counselor, does. David reminds us that chaplains are there to serve patients, to meet them where they are in their faith beliefs. It’s not part of hospice philosophy to convert or change a patient’s belief system. End of life teams are called to make the patient comfortable so that means providing interventions for total pain of body, mind, and spirit. David’s warmth and sense of humor reminds us all that care should start with a smile! You’ll find more information about hospice philosophy and how to make the most of your end of life journey at theheartofhospice.com. To connect with podcast hosts Jerry Fenter or Helen Bauer, send an email to host@theheartofhospice.com. They’d make a great speaker for your next event, conference, or agency memorial service. You are The Heart of Hospice!

How to Support Grieving Employees, Episode 081

Mon, 15 Mar 2021 07:00:00 +0000

The Grief Recovery Institute estimates grief costs U.S. business close to $100 billion annually. Anthony and Guy Casablanca at Grief Leaders have written the book that every leader needs. The Dying Art of Leadership: How Leaders Can Help Grieving Employees Excel At Work is the resource that any manager or leader needs to support struggling team members. Whether it’s related to death, divorce, illness, or substance use, grief impacts not only personal lives but productivity at work. A leader who can demonstrate empathy and compassion for what employees are going through can mitigate the damage that grief causes. The Grief Leaders organization believes “Leaders can and should make a difference in their employees' lives. Grieving employees can excel at work when leaders engage in the process.” Through Purpose Driven, Principled Centered Leadership, the Grief Leaders program becomes an actionable process to support leaders as they support their teams. Contact Grief Leaders for a free consultation at griefleaders.com and get the book here. Find more podcasts from The Heart of Hospice at theheartofhospice.com. Need a speaker for your conference, hospice memorial service or event? Send an email to host@theheartofhospice to hire one of the hosts of The Heart of Hospice podcast to speak to your group. No matter who you are, or where you are in your hospice journey, you are The Heart of Hospice.

Steve Litwer Shares The Music Between Us, Episode 080

Mon, 01 Mar 2021 08:00:00 +0000

Volunteers hold a special place in hospice care. Musician Steve Litwer is sharing the stories of his patients, and how he found healing for himself from those who couldn’t be healed. In his book “The Music Between Us: Memoir of a Bedside Musician” Steve tells how we connect with music on a deep level through the years of our lives. After retiring from a busy career, Steve donated his time and talent as a bedside guitarist volunteering at local hospice agencies. He found that as he served those were who seriously ill and their families, he did his own life review. He realized the meaning and connection that music offers. “The Music Between Us” tells the stories of Steve’s client simply and beautifully. The book is a great gift and teaching tool for hospice volunteers as well as team members and agencies. Connect with Steve’s music and his blog at stevelitwer.com. You’ll find more information about hospice and how to get the best out of your end of life experience at theheartofhospice.com. Need a speaker for your next company event or conference? Send an email to host@theheartofhospice.com to book Jerry Fenter or Helen Bauer to encourage and inspire your audience. You’re not alone in your hospice journey - we never forget. You are The Heart of Hospice.

Inspirationista Sherrie Dunlevy Helps You Live Your Best Life-Episode 079

Mon, 15 Feb 2021 08:00:00 +0000

When Sherrie Dunlevy experienced the death of her infant son, she learned the hardest lessons that grief can teach. As a best selling author, speaker, and coach, she now guides grieving women to live their best lives. Her book “How Can I Help? Your Go-To Guide for Helping Loved Ones Through Life’s Difficulties” offers actionable solutions for being there with someone who’s had a loss, whether it’s a death, divorce, or a tough diagnosis. Sherrie teaches us that what we say doesn’t have to be perfect. Sometimes just saying “I’m sorry that you’re hurting” is the best thing to say. Don’t let the fear of being awkward keep you from sharing concern and compassion for someone you care about! Connect with Sherry on her website (sherrydunlevy.com) and check out her podcast Graduating Grief to discover the wisdom she has to share. Click here to get info on Sherrie’s speaking services and buy the book here to read the lessons that Sherrie shares from her heart. Connect with Jerry Fenter and Helen Bauer, the hosts of The Heart of Hospice podcast by sending an email to jerry@theheartofhospice.com or helen@theheartofhospice.com. We’re always glad to connect with you - you are The Heart of Hospice!

Ending Well with Patient Advocate Althea Halchuck, Episode 78

Mon, 01 Feb 2021 08:00:00 +0000

End of life issues are complicated. Mediator and patient advocate Althea Halchuck of Ending Well Patient Advocacy talks with us about the challenges she sees people face. According to her website, Althea has been advocating for the vulnerable and the dying for over 20 years. She has mediated in LA County “helping seniors challenge bill collectors and negotiate fair settlements. As a Long-term Care Ombudsman, [she[ has advocated for and educated seniors. [She] has mediated disputes between the residents and administrators or fellow residents.” In her interview with Jerry and Helen, Althea shares what she’s learned during her time as a hospice volunteer, and the immeasurable value of advance care planning. Ending Well Patient Advocacy provides numerous services, including mediation, advance care plan assistance, legacy creation, and end of life celebrations. Check out the Ending Well Patient Advocacy website for services and costs - the first 45 minute consultation call is free! The Heart of Hospice is also here to support your end of life experience. At theheartofhospice.com, you’ll find information about advance care planning, hospice philosophy and care and more! Subscribe here to keep up with our latest blogs and podcasts! No matter where you are in your hospice journey, you are The Heart of Hospice!

Finding Your Self Care Energy with Dawn Renee of Traveling Caregivers, Episode 075

Tue, 15 Dec 2020 08:00:00 +0000

You’ll love the energy of this episode’s guest - Traveling Caregivers founder Dawn Renee. For the last 5.5 years Dawn has been a live-in caregiver caring for a friend with stage 4 ALS, Amyotrophic Lateral Sclerosis (aka Lou Gherig’s disease). Navigating caregiving at whatever level you are needing can easily be one of the most challenging tasks you may experience. According to her website (travelingcaregivers.com), Dawn is a” holistic caregiver, Reiki energy and Ayurvedic practitioner who struggled for most of her life to understand the triggers that were causing her to experience multiple health issues. Over the past decade with a holistic nature based lifestyle approach she has devoted her life to uncovering ways to self care and healing her own disorders while holding space for others and helping them find their own recipe to self care, balance, healing, and hope.” “Traveling Caregivers was created as a way to bring light to caregivers, to be a source of hope, encouragement and resources for those seeking holistic solutions to balance self care while they are caring for others.” Dawn brings great energy to her interview. If you’re a caregiver, you love her message! Find more information about end of life care at theheartofhospice.com. Have a question about hospice care? Send an email to host@theheartofhospice.com. We’re happy to help - you are The Heart of Hospice!

Plan Your Best Care with the Help of Vital Decisions, Episode 073

Sun, 15 Nov 2020 08:00:00 +0000

Vital Decisions knows how important it is to decide and document advance care plans before a crisis arises. CEO Leah Puccio shares the mission of the company, and how their skilled clinicians assist individuals to make their wishes known. Vital Decisions has helped over 300,000 people to consider their end of life wishes and get them written down in a legal format. Through the My Living Voice program, you can utilize a secure online platform to choose a healthcare proxy, tell what matters most when making critical healthcare decisions, indicate preferences for life-extending treatment, and finally create, download and share a digital Advance Directive. It’s easy to use and doesn’t take much time. Vital Decisions also offers the Guided Living Voice program where you can work with an Alignment Coordinator to discuss your end of life wishes. The Coordinators are highly-trained clinicians with backgrounds in healthcare-related counseling. You’ll find all the services that Vital Decisions offers at vitaldecisions.net. Connect with podcast hosts Jerry and Helen by sending an email to host@theheartofhospice.com. Check out theheartofhospice.com website to find more resources on end of life care, advance care planning, self care, and hospice philosophy. Your hospice journey matters - you are The Heart of Hospice.

Valuable Lessons From the Heart of a Caregiver with Matthew Curlewis, Episode 072

Sun, 01 Nov 2020 13:00:00 +0000

Matthew Curlewis’s heart shines in today’s episode. You won’t want to miss the wisdom he shares about his caregiving experience with his terminally ill father. The restrictions of the corona virus complicated the anticipatory grief Matthew and his family experienced. He shares what he’s learned about collaborating with a healthcare team and being an advocate, reminding us all to not to “miss the moments” of being together when everything seems overwhelming. If you click here, you can listen to Matthew's video letter by clicking here https://www.instagram.com/tv/CBkPYZgjnPZ/. You can find more support for your end of life journey at theheartofhospice.com. Whether you’re part of a hospice interdisciplinary team or a family member of a seriously ill loved one, The Heart of Hospice has resources to enhance your hospice experience. Stay in touch with us through an email to host@theheartofhospice.com. We never forget your journey matters - you are The Heart of Hospice.

Lisa Newburger Brings Humor to Difficult Topics at Discuss Directives , Episode 071

Thu, 15 Oct 2020 07:00:00 +0000

You’re going to laugh and learn in our interview with Licensed Independent Social Worker Supervisor Lisa Newburger, and her alter ego Diana Directive! Lisa shares the wisdom she’s acquired while working with seriously ill patients and their families. She’s the owner of Discuss Directives, LLC, a company launched in 2010 to “provide continuing education programs and humorous wellness programs on topics such as life/work balance, end-of-life decision making, workplace bullying, and suicide prevention.” This led to the development of the Heart2Hearts® cards and workbook, great tools for having difficult conversations about end of life wishes. You can purchase cards and workbooks for yourself or your organization at discussdirectives.com. Jerry and Helen accept Lisa’s challenge to get their own ACP completed - stay tuned to hear how it goes! You can find out more about The Heart of Hospice at theheartofhospice.com. Connect with Helen or Jerry via email to jerry@theheartofhospice.com or helen@theheartofhospice.com. You’ll always get a personal response. You are The Heart of Hospice!

Finding Hope Beyond Grief with Calista Anderson, Episode 070

Thu, 01 Oct 2020 07:00:00 +0000

Grief Recovery Specialist Calista Anderson is our special guest in today's episode. She’s the owner of Living Beyond Grief and knows firsthand the consequences of loss and grief. According to the Living Beyond Grief website, Calista’s mother died of a heart attack when she was 18. She lost her true love to drug addiction and suffered additional, profound losses. She lost herself to overwhelming, paralytic, joy-crushing grief. Her story is one of struggle, resilience, and grit. Calista is now certified in the Grief Recovery Method. If you’re experiencing a grief journey and could benefit from working with Calista, you can reach out to her by sending an email to LivingBeyondGrief@gmail.com, or calling (323) 475-1080. Your grief is real. The Heart of Hospice is here for you as well, providing encouragement and support. Find us at theheartofhospice.com. You are not forgotten. You are The Heart of Hospice.

How to Create Successful Atomic Self Care Through Gratitude, Heartbeat Epi. 207

Fri, 18 Sep 2020 07:00:00 +0000

We’re continuing to focus on the small habits that can make your Self Care successful in this third episode in our Atomic Self Care series. Gratitude as part of Self Care benefits us physically, emotionally, and spiritually. There are so many ways to practice being thankful. It’s easy, inexpensive, and a great investment in your healthy Self! Journal it. Say it out loud like a mantra. Write it on a sticky note and put it where you’ll see it every day. Find a partner and share your gratitude lists on a daily basis. Sharing your thankful attitude can encourage someone else while you encourage yourself. Expressing gratitude can create a culture of thankfulness in an office or a team - try it during an interdisciplinary team meeting. The Heart of Hospice is here to support your healthy Self Care. Find more ways to stay healthy at theheartofhospice.com. Check out our archived podcasts for more content on Self Care. We care about your hospice journey - you are The Heart of Hospice!

How to Create Successful Atomic Self Care with Movement, Heartbeat Episode 206

Fri, 11 Sep 2020 07:00:00 +0000

Keeping physically active is one of the cornerstone habits of healthy Self Care. In the second episode of our series on Atomic Self Care, we’re talking about exercise. Whether it’s a walk in the park, gym time, or gentle stretching you can do at home, get moving! Start low and slow if you need. If you haven’t exercised in a while, make sure to talk with your doctor to get ideas about what could benefit you the most. Find an accountability partner and be creative. It’s possible to social distance and still exercise. We’re wishing you the best Self Care possible! Find more resources for Self Care at theheartofhospice.com on our Resources page. Needing a speaker for your conference or organization? The hosts of The Heart of Hospice podcast are here to help. Send an email to host@theheartofhospice.com. Whether you’re providing hospice care or receiving it, your journey matters - you are The Heart of Hospice.

How to Create Successful Atomic Self Care for Better Sleep, Heartbeat Episode 205

Fri, 04 Sep 2020 07:00:00 +0000

If you’re having difficulty sleeping these days, we’ve got some tips for you. Jerry and Helen are sharing details about how you can get the most out of your sleeping hours. Using guidance from The Sleep Institute, we’ve learned it’s the little habits that help with getting to sleep, staying asleep, and staying energized during the day. Exercise, food and substance intake, screen time with blue light all affect how well we sleep. If you’re a caregiver, unpaid or professional, you need all the good sleep you can get! Caregiving uses up energy and might be experiencing more fatigue than usual due to the stress of COVID-19. Be intentional with your sleep hygiene. This episode of The Heart of Hospice is sponsored by Niagara Hospice of western NY state. Niagara Hospice’s team put together a meaningful remote remembrance service to honor the patients and families they’ve served. You can find their “Forget Me Not” service on the Niagara website https://www.niagarahospice.org/blog/100051/Niagara_Hospice_Virtual_Remembrance_Ceremony. Whether you’re grieving a personal loss or dealing with secondary grief as a healthcare professional, you’ll find meaning in Niagara Hospice’s beautiful service. You can find more information and support for your hospice journey at theheartofhospice.com. Connect with Jerry and Helen by sending an email to host@theheartofhospice.com. Because a hospice journey is 24/7, you can access theheartofhospice.com to find resources for advance care planning, self care, and hospice 101. No matter where you are in your hospice journey, you are The Heart of Hospice!

Strengthen Your Self Care with Remote Accountability Partners, Heartbeat Episode 204

Fri, 28 Aug 2020 07:00:00 +0000

In these days of social distancing, it might be a challenge to connect with the partners who hold us accountable for our healthy self care habits. Jerry and Helen have some tips to help you be successful. Use the technology that’s out there - a lot of it is free. Try phone calls, video chats, or Facetime. If you have the space to maintain the right healthy distance, you and your partner can do yoga or workout routines. It’s all about being healthy! There are remote options for your faith life through live streamed or televised worship services. Be creative and think of special ways to stay connected with your faith family. And we haven’t forgotten about self care for your mind! Try out an online course, a remote book club, or participate in a creative class to stimulate your mind. Stay consistent and be there for your accountability partners, no matter how far apart you are! The Heart of Hospice cares about your hospice journey. Healthy self care will help you to have the best end of life experience, whether you’re a hospice professional, a patient or a caregiver. You are The Heart of Hospice!

Practical Self Care Tips for Car Travel, Heartbeat Episode 203

Fri, 21 Aug 2020 07:00:00 +0000

Hospice professionals don’t always have time to take good care of themselves when seeing patients. Today we’re talking about healthy Self Care for mind, body, and spirit that you can do in between visits. From healthy snacks and foot pumps to audiobooks and podcasts, there are lots of healthy ways you can optimize your travel time. Planning meals and snacks in advance will help provide healthy nutrition, and don’t forget the water! You can even take a few minutes to rest and meditate while you’re putting your car through a car wash! Make your Self Care work for you when you travel! We’re here 24/7 to work with you to enhance your hospice journey. You can find us at theheartofhospice.com. If you’re needing education about hospice for your staff, contact Jerry or Helen at host@theheartofhospice. We love to hear from you - you are The Heart of Hospice!

Hospice Myths That Need to be Busted, Heartbeat Episode 202

Fri, 14 Aug 2020 07:00:00 +0000

Misinformation about hospice is everywhere! Today we’re busting some old hospice myths with good information about end of life care. We want you to have accurate information that you can use for your end of life experience. As end of life expert Barbara Karnes says - knowledge reduces fear! Make sure you have current reliable information to guide your end of life decisions. Even if you’re a hospice professional, it’s good to know the misconceptions that your patients and families, and your community might have. The Heart of Hospice is here to support and encourage you. Find information about hospice philosophy and history, advance care planning, and self care (an essential for caregivers!) at theheartofhospice.com. Needing a speaker for your virtual conference or company event? Send an email to Jerry and Helen at host@theheartofhospice.com. We’d love to hear from you - you are The Heart of Hospice!

Support for Grieving Parents from Bereaved Parents of the USA , Heartbeat Episode 201

Fri, 07 Aug 2020 07:00:00 +0000

Parents whose child dies have special grief needs. Bereaved Parents of the USA is dedicated to meeting those needs. According to their website (bereaved parents usa.org), the organization exists to “provide a safe space where grieving families can connect, share our stories, and learn to rebuild our lives. We attend meetings whenever we can and for as long as we find helpful. We share our fears, confusion, anger, guilt, frustrations, emptiness, and feelings of hopelessness, knowing these emotions will be met with compassion and understanding. As we support, comfort and encourage one another, we offer hope and healing.” They have chapters all across the United States, and have numerous resources for newly bereaved parents and siblings. Find a chapter in your area by clicking here. You can access their Resources page for more support. If you’re a grief support or bereavement professional, Bereaved Parents USA is a great tool to help the clients you serve. If you need information about end of life and bereavement care, The Heart of Hospice is here to help you 24/7. At theheartofhospice.com, you’ll find support for hospice shopping, self care, and advance care planning. Stay connected with us through the podcast or write to us at host@theheartofhospice.com. We care about your journey - you are The Heart of Hospice!

Celebrating Two Milestones for The Heart of Hospice, Heartbeat Episode 200

Fri, 31 Jul 2020 07:00:00 +0000

Today we're celebrating our 200th Heartbeat and the 4 year anniversary of The Heart of Hospice! We’re super excited to have been given information to share with you, and industry experts to connect you to. Our dedication to our mission hasn’t changed - we’re moving forward to provide you with podcasts that inform you. We’re going to be encouraging you as well - caregivers (both professional and unpaid) need all the encouragement they can get! Let us know how we can support you. Send your idea to us at host@theheartofhospice.com. You’re going to get a personal response from Helen or Jerry. We LOVE collaborating with you! Thank you for listening. Keep sharing the podcast on your social media. Every listener can benefit from hearing the good information we share about end of life care. Book Helen or Jerry to speak at your event, both in-person and virtual. Hospice isn’t an easy journey, but it’s yours. The Heart of Hospice is here to walk that journey with you. Stay in touch - you are The Heart of Hospice.

No Matter Who You Are: The Angola Prison Hospice Story, Heartbeat Episode 199

Fri, 24 Jul 2020 07:00:00 +0000

Our topic today is going to inspire you. We’re talking about the Angola Prison Hospice, an amazing project that involves inmates in the care of other terminally ill inmates. The work that is done within this tough Louisiana prison is transformational not only for the dying, but also for the inmates who become part of the interdisciplinary care team. You can find the documentary on the Angola Prison Hospice “Angola Prison Hospice: Opening the Door” on YouTube. The story will move you with its honest discussion of the suffering of dying inmates, and the innovative ways the prison has found to care for them. For more information on end of life care, visit theheartofhospice.com. Check out the Resources page for Hospice 101 facts and philosophy. If you’re looking for a speaker for your agency event or conference, write to either Helen (helen@theheartofhospice) or Jerry (jerry@theheartofhospice.) We’d love to connect with you - you are The Heart of Hospice.

Expert Guidance for Funeral Planning from Funeralocity, Heartbeat Episode 198

Fri, 17 Jul 2020 07:00:00 +0000

We’re playing The Death Deck again! What would your epitaph say? What words would you use to describe yourself on your tombstone? Helen and Jerry have some unexpected answers. We’re also connecting you with a new resource - Funeralocity. The Funeralocity website has information on numerous aspects of funerals, including cremation, grief, how to celebrate a legacy, and funeral planning and costs. Hospice professionals can also find help in the Hospice Portal with guidance on advance care conversations and funeral planning. Funeralocity also connects you with high quality funeral homes and cemeteries to help you choose the funeral professionals you want. Information about veteran benefits for funerals is also included. Check out the valuable guidance that Funeralocity can provide! You’ll get more support and encouragement from theheartofhospice.com. We’ve got resources for patients and their families, caregivers, and end of life professionals. Send any questions or comments to host@theheartofhospice.com. Your hospice journey is not forgotten. You are The Heart of Hospice.

Heart2Hearts Can Help Guide Advance Care Planning Conversations, Heartbeat Episode 196

Fri, 03 Jul 2020 07:00:00 +0000

Another great game to start those difficult (horrible, awkward) conversations about advance care planning! A set of Heart2Hearts cards comes with 52 conversation starters to ease discussions about wishes at end-of-life. Developed by licensed social worker Lisa Newburger, the cards are easy to use and versatile. There are three different ways to utilize the cards. Cost is only $14.99 per deck so it’s super affordable. Your agency or company can order quantities of 500 or more with your logo on the back. Find more information about the Heart2Hearts cards on the Discuss Directives website. Looking for more information and resources for advance care planning conversations with your family or your patients? Check out the resources page on The Heart of Hospice website. Have questions for Helen or Jerry about hospice care? Send an email to host@theheartofhospice.com. We’re always happy to hear from you - you are The Heart of Hospice!

Helen and Jerry Recommend The Upside to Aging Website, Heartbeat Episode 192

Fri, 05 Jun 2020 07:00:00 +0000

We’re at it again - playing The Death Deck to get our recording session started! What do Jerry and Helen believe about dying people seeing loved ones? Then we move on to sharing a great resource with you. The Upside to Aging is a site designed to support caregivers. Founder Molly Wisniewski has spent her career in aging and geriatric services. She’s an advocate for dignity in caregiving, especially for those with dementia and Alzheimer’s disease. Check out their resources at theupsidetoaging.com. You can find articles, resources, and read about Molly’s story. Find more support at theheartofhospice.com. We’re here for you because we know a hospice journey is 24/7. Email us with questions or inquiries at host@theheartofhospice.com. You are The Heart of Hospice!

Get Your Hospice News at HospiceNews.com, Heartbeat Episode 191

Fri, 29 May 2020 07:00:00 +0000

There’s a lot of information coming at us about healthcare these days. It’s important to be able to connect fast and easily with a reliable source of news about hospice care. Check out hospicenews.com for the latest updates in finance, technology, regulation, and operations. All of these areas are vital to the functioning of a hospice agency, especially during this time of waivers from CMS. Hospice News is part of the Aging Media Network. Subscribe to their email newsletter either daily or weekly to stay informed about changes and trends in the hospice industry. Stay in touch with Helen and Jerry at The Heart of Hospice by subscribing to the podcast on theheartofhospice.com, or send us an email to host@theheartofhospice.com. Stay connected with us - your hospice journey matters.

How to Start a Conversation Using Go Wish Cards, Heartbeat Episode 189

Fri, 08 May 2020 07:00:00 +0000

Go Wish cards from Coda Alliance are a great way to start those awkward conversations about end of life wishes. If the thought of talking about death makes you cringe, Go Wish cards can get you started in a thoughtful way.

Players using the cards can divide the 36 cards into three categories to rank the importance of various aspects of end of life. You can even play “Go Wish Solitaire” on the website to determine what you’d like your loved ones to know. Laugh a little, talk a lot - let the cards get your discussion started with your family or health care decision maker. Coda Alliance is dedicated to helping people make their end of life choices known in a respectful way.

Find more information about Coda Alliance at codaalliance.org and purchase a set of Go Wish cards for yourself at gowish.org.

Find more advance care planning resources for both professional and personal caregivers at theheartofhospice.com. No matter who you are, or where you are in your hospice journey, you are The Heart of Hospice!

How to Make Remote Caregiving Less Remote, Heartbeat Episode 188

Fri, 24 Apr 2020 07:00:00 +0000

Taking care of a loved one from a distance can be challenging. In this season of social distancing and self quarantine, contact with someone needing care is even more difficult. We’re talking about ways to deal with the obstacles associated with remote caregiving. Use the technology you might already have - a cell phone is a great tool. Three way calls during a doctor’s appointment and video calls can be helpful. Lots of medical practices and hospitals have patient portals where patients and caregivers can access all sorts of information (medication lists, test results, appointment schedules). There are also apps where groups of caregivers can do web-based collaboration, keeping up with a patient’s status. Check out Caring Bridge, private Facebook groups, Caring Village, CareZone, ecare21, or Medisafe. Stay connected as a caregiver with the system that works best for you. Questions about caregiving? Email us at host@theheartofhospice.com. You’ll always get a personal response. You are The Heart of Hospice!

Free Video Learning Resources for End of Life Professionals, Heartbeat Episode 187

Fri, 17 Apr 2020 07:00:00 +0000

There’s some serious information overload happening right now in our COVID-19 world. It can seem like too much, but if you’ve got extra time at home, these TED talks are some great ways to fill your time, especially if you’re a hospice or palliative care professional.

The online resources we’re sharing with you today center around what it’s like to be seriously ill, death, and dying. We recommend that you watch Justin Baldoni’s talk called “Why I Started My Last Days”, on the End Well YouTube channel (endwellproject.org). You should also check out some TED talks by Dr. B.J. Miller (What Really Matters) and Michelle Knox (“Talk about your death while you’re still healthy”). These talks are a great way to remind you of your “why” and renew your energy for taking care of terminally ill patients.

We hope you’re taking good care of your Self - mind, body, and spirit, because you are The Heart of Hospice.

The Heart of Hospice Welcomes a New Partner, Heartbeat Episode 186

Fri, 10 Apr 2020 07:00:00 +0000

Meet the newest member of The Heart of Hospice team - a black goldendoodle puppy named Sunny! He was born at the end of December of 2019, and carefully selected by Amanda Davis at Golden Rule Retrievers to train as a therapy dog.

Sunny will be training with Helen to provide comfort and encouragement to seriously ill patients, their families, and end of life care teams. He’s a sweet puppy that likes belly rubs and cuddling. This is a new journey for Sunny and Helen and her family - stay tuned for updates on how Sunny is growing and learning!

Stay connected with us at theheartofhospice.com. You can listen to the podcast 24/7 and hear information about hospice basics, advance care planning, and how to provide your whole Self with healthy Self Care. Remember to stay healthy - you are The Heart of Hospice!

Coping With a Terminal Illness, Heartbeat Episode 185

Fri, 03 Apr 2020 07:00:00 +0000

In these days of social distancing and self isolation, Helen and Jerry start out this episode playing The Death Deck, because we know that humor can reduce fear and boost our moods. Then we get down to business introducing you to Susan Ducharme Hoben.

Through her website, articles, and book, Susan offers some great advice for coping with a loved one’s terminal illness based on her personal experience with her husband Bruce. Susan encourages us to confront our fears about death, educate ourselves about the dying process, and to talk openly about your loved one’s wishes with him or her.

Check out Susan’s website at https://susanducharmehoben.com/ and find her book “Dying Well: Our Journey of Love and Loss” at https://susanducharmehoben.com/product/dying-well---our-journey-of-love-and-loss.

You’ll find more resources about serious illness and hospice care at theheartofhospice.com. Stay safe and stay healthy. Your journey isn’t forgotten - you are The Heart of Hospice!

Is Dying at Home Always the Best Choice?, Heartbeat Episode 184

Fri, 27 Mar 2020 07:00:00 +0000

We’re talking about dying today - no surprise there. But what’s the best place to die? Hospice professionals will tell you that a “good death” doesn’t occur in the hospital.

If the hospice interdisciplinary team doesn’t consider where the patient would like to die, it’s not really respecting the rights of the patient. Those rights, in the form of end of life wishes, form the foundation for every hospice plan of care.

Seriously ill people can feel strongly about whether dying at home, in their own beds with family present is a good fit for them. Hospice teams should listen closely to what patients are saying, and do everything they can to make those wishes happen. Read about palliative care physician Dr. Richard Leiter’s personal experience with a family death in the hospital here.

Connect with us on theheartofhospice.com, and send us an email at host@theheartofhospice.com. We’re honored to be part of your hospice journey - you are The Heart of Hospice!

How to Improve the Quality of Your Care Through Coaching, Heartbeat Episode 183

Fri, 20 Mar 2020 07:00:00 +0000

Even the most skilled and experienced practitioners can find areas where improvements can be made. Finding someone who can provide objective observation and constructive feedback can be a great way to increase the quality of the care you provide.

There are frequent changes to regulations and evidence-based best practices, which means there’s always something to learn. Coaching and mentoring those who are starting in the end of life industry helps to create a dedicated, skilled workforce who in turn can support the new staff who will come after them. If you’re part of a hospice interdisciplinary team, help each other out and seek out the mentors in our industry.

Barbara Karnes is one of our mentors, and Dr. Atul Gawande has a great TED talk about how he benefited from coaching. You can watch it here. You’ll find more resources to support and enhance your hospice practice at theheartofhospice.com, along with ideas for your Self Care. Remember, you are The Heart of Hospice!

Helen and Jerry Recommend Helen Haddick's Blog, Heartbeat Episode 182

Fri, 13 Mar 2020 07:00:00 +0000

Our hospice colleague Helen Haddick has a unique blog. Helen shares incredibly transparent and sometimes heart-wrenching stories about her experiences as a hospice nurse.

Coming from a background of critical care, Helen has connected with end of life care in a deep way. Her honesty is moving, and her dedication to both patients and families is palpable in her writing. It’s easy to conjure up vivid images of the work of a hospice nurse as you share hospice work through Helen’s eyes.

You can find her blog at fromsavingtosending.com. Connect with her on Facebook, Twitter, and Instagram. She’s simply amazing!

The Heart of Hospice can connect you with vital information about end of life care, advance care planning, and self care for both professionals and unpaid caregivers. And be sure to listen to the end of this Heartbeat episode to hear Helen’s favorite Dolly Parton quote!

Extra Advance Care Planning Resources from Honoring Choices PNW, Episode 181

Fri, 06 Mar 2020 08:00:00 +0000

We’re excited to connect you with Honoring Choices Pacific Northwest as another resource for advance care planning materials and information.

According to the Honoring Choices Pacific Northwest website,“Honoring Choices Pacific Northwest is a joint initiative between the Washington State Hospital Association and Washington State Medical Association.

We inspire conversations about the care people want at the end of life. This comprehensive initiative uses a variety of approaches, such as an advance care planning program, community engagement, physician education, advocacy, and a central repository. We help the public make informed choices about end-of-life care.”

There’s a section especially for healthcare professionals that has videos about listening, empathy, and advance care planning for older homeless-experienced adults. There’s also a great FAQ page that answers the questions that come up most frequently. Check out this great resource at https://www.honoringchoicespnw.org/.

You’ll find more information about advance care planning and how to have those tough conversations at theheartofhospice.com. And remember - You are The Heart of Hospice!

Helen and Jerry Recommend Funeralwise as a Funeral Resource, Heartbeat Episode 180

Fri, 28 Feb 2020 08:00:00 +0000

We’re excited to connect you with Funeralwise. It’s a great place to find information about cremation, how different faiths view cremation. You can find their colorful and informative infographics at funeralwise.com.

Their mission is expressed beautifully on the funeralwise home page - “Prepare. Celebrate. Remember...We are here to help you prepare wisely and celebrate uniquely. Because every life deserves to be remembered.”

The “Wise Guys”, as they call themselves, discuss everything from grief and funeral customs, to funeral 101 and religious and military customs for funerals. There are several free downloadable funeral planning guides and information that would be useful to hospice professionals as they guide patients and families through funeral planning.

For more information on end of life care, self care techniques, and advance care planning, check out theheartofhospice.com. And remember, you are The Heart of Hospice!

25th Anniversary of Death With Dignity Laws in the US, Heartbeat Episode 179

Fri, 21 Feb 2020 08:00:00 +0000

The choice to die with dignity on your own terms is an intensely personal decision. There are now 9 states in the U.S. that have Death with Dignity laws in place. Death with Dignity laws enable terminally ill persons to make choices about how and when they die.

If you’re a hospice and palliative care professional, you should know about these laws. You don’t have to endorse these laws, or condemn them, but you should be knowledgeable about the laws that would affect the patients in your state. According to death with dignity.org, “for more than 20 years, Death with Dignity National Center, Death with Dignity Political Fund, and their predecessor organizations have defended and advanced policy reform based on the model legislation, the Oregon Death with Dignity Act”. Find out more by going to their FAQ page.

You can find more information about end of life care, caregiving, and grief on theheartofhospice.com. Send us an email to share your experience with Death with Dignity laws - we’re always grateful for the connection. And remember, no matter who you are, or where you are in your hospice journey, you are The Heart of Hospice.

Helen and Jerry Recommend the Meditative Story Podcast, Heartbeat Episode 178

Fri, 14 Feb 2020 08:00:00 +0000

It’s easy to find a calming moment inside the day when you listen to the Meditative Story podcast. It’s a weekly podcast that “blends intimate first-person stories with mindfulness prompts, enveloped in beautiful music composition”.

As the narrators of the stories share their moments of insight, the incredible music flows around you like a silky warm wind. You can create an interval in your day that refreshes and refocuses your mind. Meditative Story is much more than just an audio experience; it’s a feeling, a renewal of spirit, a deep cleansing breath that connects the listener not only with narrators, but also with himself.

The podcast is a “WaitWait original series - created by the team who built and led TED’s media organization - in close partnership with Arianna Huffington’s thrive Global.”

Check out the Meditative Story podcast wherever you listen to podcasts, (Spotify, Apple podcasts).

If you want more information on self care, caregiving, or end of life care, connect with us on The Heart of Hospice website (theheartofhospice.com). Have you found a self care moment that works to keep you healthy and thriving? Share it with us in an email at host@theheartofhospice.com. No matter who you are, or where you are in your hospice journey, you are The Heart of Hospice.

Resource Recommendation: "I Didn't Know That" Video, Heartbeat Episode 177

Fri, 07 Feb 2020 08:00:00 +0000

What hospice teams don’t know can hurt their patients. End of life professionals who are ignorant of different cultures or faiths can damage the care of seriously ill patients and their families.

Dying Matters, an organization in the U.K., has a great video that can help you to learn about the death customs and beliefs of the Muslim faith. Dying Matters describes itself as “a coalition of individual and organisational members across England and Wales, which aims to help people talk more openly about dying, death and bereavement, and to make plans for the end of life.”

You can find their video “I Didn’t Know That” on their website. It depicts the death of a young Muslim man and how healthcare workers struggle to care for his parents after the event. At just over 18 minutes long, the film is a great way to train your hospice interdisciplinary team about Muslim customs observed during a death. Think you already know? Check out the film to see just how accurate your knowledge is.

If you’re interested in more ways to connect with hospice resources, visit theheartofhospice.com. You’ll find information on basic hospice philosophy and how the modern hospice movement was started. Stay connected with us by subscribing on the website. No matter who you are or where you are in your hospice journey, you are The Heart of Hospice!

An Honest Talk About Life Without Social Media, Heartbeat Episode 176

Fri, 31 Jan 2020 08:00:00 +0000

How did your Social Media Fast go? On this week’s Heartbeat we spend some time talking honestly about the challenges we experienced. Before we were even halfway through our 2 week Social Media Fast, we realized this was not going to be easy!

Bouncing between Facebook, Twitter, Instagram, Pinterest, and LinkedIn has taken up a lot of our time. Being intentional about how we spend our screen time has definitely revealed just how much time we’ve been wasting on social media.

How did you fill the hours you typically spent on social media? Is this going to be a permanent change for you? For us, there are some opportunities for some healthy habit changes.

For more inspiration for your healthy Self Care regimen, visit us at theheartofhospice.com. You’re always welcome and we’re glad to be connected with you! No matter who you are, or where you are in your hospice journey, you are The Heart of Hospice.

Who's in Charge Here? Determining a Patient's Goals of Care, Heartbeat Episode 175

Fri, 24 Jan 2020 08:00:00 +0000

Every patient in hospice care has a plan of care that’s designed by the hospice interdisciplinary team. The patient voices what he or she wants and needs, and then the hospice team determines how we can safely, legally, and ethically meet those needs. Often team members disagree with what the patient wants. We bring our own biases and personal preferences to the care we provide - and they get in the way. The patient gets to decide the kind of care he receives. Quality of life means something different to everybody. What biases do you bring to the care of your patient? If you’re an unpaid caregiver, are you able to respect and honor the wishes of your loved one? It’s important to know where patient wishes and caregiver preferences stop and start. Make the patient’s goals your goals, and keep them at the center of the Plan of Care. Visit the Listen page on theheartofhospice.com to find more episodes on hospice care and philosophy and how the interdisciplinary team works. No matter who you are, or where you are in your hospice journey, you are The Heart of Hospice!

Are You Ready for a Self Care Challenge? - Heartbeat, Episode 174

Fri, 17 Jan 2020 08:00:00 +0000

How connected are you to social media? If you find yourself overly connected to Facebook, Twitter, Instagram, or whatever social media platform you use, maybe a time of disconnection would be healthy.

We’re challenging you to do a 2-week Social Media Fast. We’ll be doing it at the same time. Try using social media just for work needs. Set your cell phone and devices aside when you sit down to a meal. Give your undivided attention to family and friends, faith practices, workouts, and quiet times for yourself.

Let us know how your Social Media Fast went by posting on our Facebook page - any tips about what worked for you would be welcomed! We’ll keep you updated on how Jerry and Helen are managing this “electronic fasting”. Maybe it will become part of our healthy self care practices.

For more information on self care for both professional and unpaid caregivers, check out our resources at theheartofhospice.com. Good luck with your self care challenge!

A Review of A Love That Never Dies Film, Heartbeat Episode 173

Fri, 10 Jan 2020 08:00:00 +0000

Grieving a loss looks a little different for each person and grief from losing a child has its own unique qualities. Parents Jane Harris and Jimmy Edmonds know first hand what that loss feels like. Their film “A Love That Never Dies” focuses on their struggle to figure out how to grieve the death of their son. According to their website https://alovethatneverdiesfilm.com/, Jane and Jimmy’s son Josh died six years ago while travelling in SE Asia. “As a way of honouring his memory, they set off on their own road trip across the USA to find out why, in a world where death will always make front page news, real life conversations about death, dying and bereavement are so problematic. Along the way they find other bereaved families with stories of grief that refuse social expectations about moving on or letting go. In a culture that is still uneasy talking about death, dying and bereavement it gives a voice to grief in ways that will move and inspire.” Watch the film on their website to hear the story of their grief journey. For more resources on grief and bereavement, check out theheartofhospice.com. We’re glad to connect with you - you are The Heart of Hospice.

Helpful Goals for Personal and Professional Growth in 2020, Heartbeat Episode 172

Fri, 03 Jan 2020 08:00:00 +0000

There’s a brand new year in front of us - 12 months full of possibilities! It can be healthy to review your 2019 events. We are amazed at our new connections - Frank Ostaseski, Jon Prescott, Ellen Goodman, Phil Alvarez. Helen met Barbara Karnes in person!

Looking at the year ahead provides opportunities to make changes and improvements.

Self care should be a top priority - make it healthy, find an accountability partner, and create those habits that work best for you.
If you’re a professional working in end of life care, be a mentor for someone who’s new to the profession.
Strengthen your team and the hospice industry by providing leadership and support for your coworkers.
Nurture connections that help you to thrive, both personally and professionally.
Seek out opportunities for education - webinars, TED talks, podcasts, conferences - so many options!

What are your goals for the year ahead? Make 2020 your best hospice year yet! You are The Heart of Hospice.

Reflections on The Heart of Hospice, Heartbeat Episode 171

Fri, 27 Dec 2019 08:00:00 +0000

Ever wonder how we came up with the tagline that you hear at the end of every one of The Heart of Hospice podcasts? When we got ready to launch our first episode, Jerry and Helen put a lot of thought into who our audience would be, and how they would connect with our end of life discussions.

Whether you’re a patient or a provider, a grieving parent or a grieving child, your journey is at the heart of our mission. Hospice and palliative care professionals put their hearts into the work they do every day. We feel it’s our job to support and encourage you.

If The Heart of Hospice brings you some comfort or information that you are searching for, then we know we’ve gotten something right. Remember - no matter who you are, or where you are in your hospice journey, you are The Heart of Hospice.

Get to Know Life. Death. Whatever, Heartbeat, Episode 170

Fri, 20 Dec 2019 08:00:00 +0000

Anna Lyons and Louise Winter want to change how we converse about death. Through their organization LifeDeathWhatever.com, the two women are making that happen.

Anna is an end of life doula, and Louise is a progressive funeral director. The Life.Death.Whatever website describes their mission to “redesign the dialogue around death and dying, to open it up and to find new approaches to this important subject. We believe that death is a normal part of life and dying is part of living. Acknowledging and accepting that one day we will die is fundamental to living a full life. It's as simple and as complicated as that.”

Louise and Anna believe in the power of healing through sharing stories, and the website offers a way to do that through the “Sharing 5 Things” as well as a blog. Read more about the work of Life.Death.Whatever and share your own “5 Things” that you’ve learned about death.

You can share Jerry and Helen’s hospice journeys by subscribing to The Heart of Hospice podcast wherever you’re listening. Check out theheartofhospice.com for more stories and resources on end of life care.

Simple Tips that Will Make Your Caregiving Experience Easier, Heartbeat, Episode 169

Fri, 13 Dec 2019 08:00:00 +0000

There are over 42 million unpaid caregivers in the United States. Friends and family members of all ages and stages are providing care for a loved one.

Caregiving is a tough job. Think of it like this: around the clock, seven days a week, hard work without pay. Being a caregiver can deplete relationships, finances, energy, and courage. Today’s episode is for all the caregivers out there who need some TLC. You put your heart into the care you provide, so Jerry and Helen are sharing some tips to help you care for yourself.

The Heart of Hospice website has more resources for you, along with encouragement and education. No matter who you are, or where you are in your hospice journey, you are The Heart of Hospice.

A Review of the Being Mortal Documentary, Heartbeat, Episode 168

Fri, 06 Dec 2019 08:00:00 +0000

Healthcare professionals often have to have some of the hardest conversations with their patients. We deliver news that nobody wants to hear, and we don’t want to say. Doctors are no exception. Often physicians have to deliver test results that are devastating.

In the Frontline documentary “Being Mortal”, Dr. Atul Gawande shines a bright light on doctors and their ability to manage discussions on end of life. Lacking training and needing to maintain a professional demeanor often leave physicians feeling ill-prepared to say the hard things that sometimes need to be said. Everyone working in healthcare should watch “Being Mortal”. You can find it on the PBS website (https://www.pbs.org/wgbh/frontline/film/being-mortal/. It’s a great tool to share with your hospice or palliative care team.

You can find links to more resources for end of life professionals, along with self care support and information on advance care planning at theheartofhospice.com. Connect with Jerry Fenter and Helen Bauer, the hosts of The Heart of Hospice podcast by sending an email to host@theheartofhospice.com. Remember, you are The Heart of Hospice!

Removing Barriers to Care: Communication and Connection, Heartbeat, Episode 167

Fri, 29 Nov 2019 08:00:00 +0000

End of life professionals should always maintain healthy boundaries with the seriously ill patients. When those boundaries become barriers to good care, we’ve damaged our connections with our patients and their families. Everything from the gloves we wear to the mental biases we communicate without realizing puts barriers between patient and providers. It’s easy to project our personal opinions and judgments into our work. Jerry and Helen talk about being self-aware when it comes to the road blocks we put up when caring for terminally ill people. If you’re a hospice professional, check out more resources on theheartofhospice.com to learn about hospice history and philosophy, professional organizations and hear interviews with end of life experts. Remember, you are The Heart of Hospice!

Get the Help You Need From the NHPCO HelpLine, Heartbeat, Episode 166

Fri, 22 Nov 2019 08:00:00 +0000

It’s hard to know which hospice agency will provide the best care for you or someone you love. When you’re having to hospice shop, using the Helpline from the National Hospice and Palliative Care Organization is a great way to find an agency in your area. The NHPCO website can help you ask the right questions to partner with an agency that will be a good fit.

Read more about finding a hospice agency that’s right for you at https://www.nhpco.org/patients-and-caregivers/about-hospice-care/choosing-a-hospice/ or calling 1-800-568-8898.

The Heart of Hospice website has more resources for you, including information on advance care planning, self care, and hospice care 101. Email your questions to us at host@theheartofhospice.com - we’ll be sure to send a personal reply. No matter who you are, or where you are in your hospice journey, you are The Heart of Hospice.

The Information You Need About Hospice at CaringInfo, Heartbeat, Episode 165

Sat, 16 Nov 2019 08:00:00 +0000

Another great resource from NHPCO! Whether you need information on choosing a hospice, advance planning, or end of life care, caringinfo.org is a great place to find what you need.

The resources are free for hospice consumers and providers. Some of the articles on caringinfo.org come in English, Spanish, and Mandarin Chinese. If you’ve got questions about pediatric hospice or you need to talk with a child about death, you’ll find resources to help with those topics, too.

You can find additional resources, support, and encouragement at theheartofhospice.com. Jerry and Helen are always glad to connect with listeners! Send us an email with your questions to host@theheartofhospice.com. And remember, no matter who you are, or where you are in your hospice journey, you are The Heart of Hospice.

We Should Change the Conversation About Hospice, Heartbeat, Episode 164

Fri, 08 Nov 2019 08:00:00 +0000

“If you can’t say anything nice, don’t say anything at all.” That old saying can be applied to hospice care. The Heart of Hospice is out to change the way healthcare professionals talk about end of life care. The outdated urban myths about hospice are only perpetuated by the thoughtless things we say.

This week’s Heartbeat episode has us talking about the best ways to talk to families and patients about the type of care that interdisciplinary teams provide. Jerry and Helen talk about all the ways healthcare professionals - even those who work in hospice - confuse and even scare laypeople, and how we can turn that trend around.

The Heart of Hospice wants to support, inform, and educate those who take care of seriously ill and dying patients. Check out all our resources at theheartofhospice.com. You can find tips on how to take care of yourself and your team, information on hospice philosophy, and ways to connect with professional organizations. And remember, you are The Heart of Hospice!

How to Celebrate and Promote National Hospice and Palliative Care Month, Heartbeat, Episode 162

Fri, 25 Oct 2019 07:00:00 +0000

November is National Hospice and Palliative Care Month and we’re celebrating the care that hospice and palliative care programs all over the country provide. This year’s theme is “My Hospice: A Program that Works. A Benefit that Matters.”

Helen and Jerry take some time on this week’s Heartbeat to share some gratitude for the work that hospice teams do. Taking a team approach to the care of our patients is one of the things that makes end of life and palliative care programs work so well. Your life and your care matters to us. Happy Hospice and Palliative Care Month!

Listen to more podcasts from The Heart of Hospice to learn about advance care planning, self care, hospice philosophy, and how you can volunteer with a hospice agency in your area. When you visit theheartofhospice.com, take a minute to subscribe to the podcast so you can listen on your favorite podcast spot - Google Play, iHeartRadio, Spotify, Radio.com, or Apple podcasts.

How to Have Fun and Meaningful Conversations with The Death Deck Game, Heartbeat, Episode 161

Fri, 18 Oct 2019 07:00:00 +0000

Don’t let the name fool you. The Death Deck game is really fun! Irreverent, thought provoking, and funny - the discussion prompts and questions of the Death Deck card game help make those awkward conversations about death and dying so much easier.

The hosts of The Heart of Hospice talk about using the game with a partner or with a group, employing humor and imagination to discuss a topic that makes a lot of people uncomfortable. Listen as Helen and Jerry talk about their own personal views about death.

Buy your own Death Deck at thedeathdeck.com and get to talking at your next party or family event!

Find more resources for advance care planning conversations, self care, and hospice 101 at theheartofhospice.com. Send an email to Jerry and Helen at host@theheartofhospice.com. We love to connect with you - you’ll always get a personal response. No matter who you are, or where you are in your hospice journey, you are The Heart of Hospice.

How to Make Your Day Better with Morning and Evening Self Care Routines, Heartbeat, Episode 159

Fri, 04 Oct 2019 07:00:00 +0000

How you start and end your day makes a difference in how you feel. Healthy Self Care routines can give you a boost when you get going and help you to disconnect to have a good night.

Jerry shares some of his healthiest habits that form his morning routines - listening to podcasts and drinking a big glass of water. Helen has her own routines that help her to disconnect at night and get to bed on time. What routines and rituals do you have as part of your Self Care to keep you healthy?

Find more ideas and inspiration for Self Care of body, spirit, and mind at theheartofhospice.com. Look for more information on hospice 101 and philosophy, our weekly blog, and bios on the hosts of The Heart of Hospice! Remember, no matter who you are, you are The Heart of Hospice.

Conquer Travel Fatigue with These Self Care Ideas, Heartbeat, Episode 158

Fri, 27 Sep 2019 07:00:00 +0000

Working from the road carries its own kind of fatigue that requires some well-designed Self Care. When you’re moving from patient to patient, or from office to office, you need activities for mind, body, and spirit.

Look for Self Care ideas that can help you debrief and decompress - listen to a podcast, take some deep breaths, or put on a playlist of your favorite songs. If you need a good cry, find those sad songs and let your emotions flow! You can even record your own guided meditation to help you relax.

Watch out for fast food and unhealthy snacks - airport food is a major danger zone! Look for more inspiration for your healthy Self Care at theheartofhospice.com and be sure to share this episode with someone you care about.

Look for The Heart of Hospice podcast on iTunes, Radio.com, Spotify, iHeart Radio, and Google Play - and subscribe to keep up with the latest episodes! Remember, you are The Heart of Hospice.

Improve Your Self Care with Accountability Partner Challenges, Heartbeat, Episode 157

Fri, 20 Sep 2019 07:00:00 +0000

Having an accountability partner can really boost your Self Care. Whether it’s for mind, body, or spirit Self Care, your accountability partner is a source of encouragement and inspiration.

But when your Self Care gets stale and you feel like you need a change, maybe it’s time for a challenge. How about challenging each other to try a new activity, to up the pace of your workouts, or to try a new form of Self Care? If your enthusiasm is low and you feel like skipping out on an activity that you know is healthy, challenge your accountability partner (and yourself!) to change things up! You’ll be glad you did! So put some new energy and ideas into your Self Care with a challenge for you and your accountability partner.

To get more information about healthy Self Care, visit The Heart of Hospice website. You’ll find resources on caregiving, end of life care, and self care for personal and professional caregivers, along with encouragement for your hospice journey.

Remember to subscribe to the podcast wherever you listen - Apple podcasts, Spotify, iHeart Radio, Google Play, or Radio.com.

Review of HBO Documentary "Alternate Endings", Heartbeat, Episode 156

Fri, 13 Sep 2019 07:00:00 +0000

A new documentary from HBO is a way to gain insight into how Americans handle deaths. According to the HBO website, the film was “Directed and produced by Perri Peltz and Matthew O’Neill (HBO’s Axios), "Alternate Endings: Six New Ways to Die in America" offers a fascinating look at the varied ways Americans are choosing to both find meaning and celebrate life as it comes to an end.

As the baby boomer generation approaches death, more and more people are rethinking the ways end of life is recognized and are deciding to take control of what will happen when they die. Touching and heartfelt, the documentary spotlights a subject some might rather avoid, and presents it in a positive and thought-provoking manner – featuring stories of empowerment instead of avoidance.

Alternate Endings tells six stories of people nearing death and of family members of the recently deceased, who have chosen non-traditional end-of-life options and remembrances, from celebrations of life and living wakes, to green burials, extraterrestrial burials and more. Profoundly intimate and illuminating, the film explores what it means to be near death, either from age or terminal illness, and captures the healing power of honoring, giving thanks, and staying true to loved ones who have passed away.”

Whether you’re an end of life professional or a lay person, “Alternate Endings” could provide you with knowledge that could be useful in your personal life or when working with seriously ill patients.

To get more information about end of life care, visit The Heart of Hospice website. You’ll find resources on caregiving,advance care planning, and self care for personal and professional caregivers, along with encouragement for your hospice journey. Remember to subscribe to the podcast wherever you listen - Apple podcasts, Spotify, iHeart Radio, Google Play, or Radio.com.

An Overview of Death With Dignity Laws, Heartbeat, Episode 155

Fri, 06 Sep 2019 07:00:00 +0000

There are currently 9 states in the U.S. that have Death with Dignity laws in place. Designed to allow self determination in death and prevent suffering, these laws can be controversial.

In this week’s Heartbeat from The Heart of Hospice, Helen and Jerry discuss the purpose of these laws and where to find out about the laws in your state. It’s important that end of life professionals are aware of whether the state in which they practice has a Death with Dignity law, and should be prepared to discuss the topic with patients and families who ask about it.

To find out where Death with Dignity laws have been enacted, you can visit https://www.deathwithdignity.org/learn/death-with-dignity-acts/.

Find out more about us on theheartofhospice.com. There’s information on self care, advance care planning, and resources for both personal and professional caregivers. Take a minute to subscribe to the podcast wherever you get your podcasts - Spotify, Radio.com, Apple podcasts, Google Play, or iHeart Radio.

What You Need to Know About the FY2020 Final Rule, Heartbeat, Episode 154

Fri, 30 Aug 2019 07:00:00 +0000

Hospice billing can be a complicated process to tackle, and just when you figure it out, things change. CMS recently released the Final Rules for Fiscal Year 2020.

It features some rebasing of payment for the various hospice levels of care. The reimbursement for Routine Home Care is going down, while the payments for General Inpatient Care and Continuous Care will have a slight increase.

If you’re a hospice professional, you should have the most up-to-date information about the hospice payment structure through Medicare. You can find the details you need to know at https://www.cms.gov/newsroom/fact-sheets/fiscal-year-2020-hospice-payment-rate-update-final-rule. The NHPCO podcast also provided some insight into the Final Rule - check out those episodes at https://www.nhpco.org/?s=final+rule+2020.

You’ll find more information about hospice and end of life care at http://www.theheartofhospice.com/. The Heart of Hospice wants to encourage you in your healthy self care and share information about hospice philosophy. While you’re on the website, you can find more of our podcasts or listen to them on your favorite spot - look for us on Spotify, Apple podcasts, Google Play, iHeartRadio, or Radio.com. Remember, no matter where you are in your hospice journey, you are The Heart of Hospice!

How to Provide Self Care for Your Team, Heartbeat, Episode 153

Fri, 23 Aug 2019 07:00:00 +0000

Hospice administrators and managers are faced with the unique job of providing self care for hospice teams. Multiple or difficult deaths, personal losses, and the daily wear and tear of a hospice workday creates a need for self care of the team.

Jerry and Helen discuss ways that team leaders can support and sustain healthy interdisciplinary teams that continue to provide excellent care in the long term. Providing for the self care needs of the team can influence the quality of care in a good way, reducing staff turnover and creating strong work family groups. Healthy happy teams are better equipped to serve their patients.

Experiencing a loss among the team can create trust and strength if the right support is provided. Sometimes an outside professional counselor is the best way to provide that support. Finding rituals to acknowledge the deaths of patients can be part of meaningful self care for your team.

Connect with us at theheartofhospice.com to find self care resources for personal and professional caregivers, information on advance care planning, and how you can volunteer with a hospice agency in your area. When you visit the website, subscribe to the podcast so you can listen on your favorite podcast spot - Google Play, iHeartRadio, Spotify, Radio.com, or Apple podcasts.

Are You Self-Aware About Your Self Care?, Heartbeat, Episode 151

Fri, 09 Aug 2019 07:00:00 +0000

Part of practicing healthy self care is being self aware. Jerry and Helen do a self care check-in, sharing the good, the bad, and the ugly of their self care habits.

Even the strongest self care habits can get off track. Keeping your mind, body, and spirit in balance can be challenging. Maybe it’s time to take a good look at the current status of your self care regimen. Do a Self Care Check-In along with the hosts of The Heart of Hospice. How self aware are you when it comes to your self care?

You can get more tips on healthy self care at theheartofhospice.com. Check out the resource pages for suggestions for self care, advance care planning, and other resources for end of life professionals, as well as unpaid caregivers.

Be sure to share this episode with someone you care about. Look for The Heart of Hospice podcast on iTunes, Radio.com, Spotify, iHeart Radio, and Google Play - and subscribe to keep up with the latest episodes!

The Heart of Hospice Celebrates Another Milestone, Heartbeat, Episode 150

Fri, 02 Aug 2019 07:00:00 +0000

We’re celebrating the start of Year 4 of The Heart of Hospice podcast! All our wonderful guests, countless bloopers, a few tears with tons of laughter, and amazing connections with end of life professionals - we’re so grateful for all of it.

You can celebrate this milestone with us by sharing the podcast and website with someone who can benefit from information about end of life care. Thank you for sharing our hospice journeys over the last 3 years and get ready for more great moments in Year 4!

You can read more about how The Heart of Hospice got started at theheartofhospice.com. There’s more information on self care, advance care planning, and support for personal and professional caregivers. Remember, you are The Heart of Hospice!

Practical Tips for People Aging Alone, Heartbeat Episode 193

Fri, 12 Jun 2020 07:00:00 +0000

Lots of people across the United States (22% of adults age 65 and up) are aging alone. That means that planning for caregiving needs for this demographic group is very important. When an older adult doesn’t have a family member who is able to provide caregiving, who will care for them as they move forward the end of life? This situation calls for some creativity - being involved in groups that offer support, making wishes known to healthcare providers, and documenting end of life wishes legally. There are solutions to this challenge. This article from U.S. News and World Report offers some tips. If you or someone you know is aging alone and needing to consider hospice care, The Heart of Hospice is here to help. Access our website 24/7, and listen to the podcast to connect with resources on hospice care and advance care planning. We’re here to help you on your hospice journey - you are The Heart of Hospice!

Kate Schutt Shares Her Musical Tribute to Her Mother, Episode 069

Tue, 15 Sep 2020 07:00:00 +0000

Kate Schutt says it felt natural for her to become a caregiver after her mother was diagnosed with ovarian cancer. The result of that caregiving journey is wisdom that pours out through her music. In our interview with Kate, she shares the experiences that inspired Bright Nowhere, a collection of songs that share the strength and the joy of her relationship with her mom. Be sure to listen just after Kate’s interview to hear her sing live for us. You can listen to her music and connect with Kate at kateschutt.com. Subscribe to her newsletter to keep in touch and watch her TEDx talk here. Her grief journey will inspire and teach you.

Stay connected with us by visiting theheartofhospice.com. We want to hear from you - send an email to host@theheartofhospice.com. Your journey is still happening whether you’re a hospice professional or an unpaid personal caregiver so remember to take care of your Self! You are The Heart of Hospice.

Music - It Won’t Be Long, music and lyrics by Kate Schutt, shared with permission of the artist.

Innovative Bereavement Care Ideas With Rev. Nancy Faery, Ep. 068

Tue, 01 Sep 2020 07:00:00 +0000

Hospice agencies are having to get creative with their care during the pandemic. Rev. Nancy Faery of Niagara Hospice describes the process she and her team used to create a virtual remembrance service to honor the patients the agency has served. Nancy also shares the challenges and pitfalls of providing psychosocial and spiritual care remotely. That means using technology for telemedicine, including using phone chats and Facetime. Nancy encourages teams to ask for what they need and to be open-minded to change that equips us to provide quality care. You can watch Niagara Hospice’s “Forget Me Not” remembrance service on their website at https://www.niagarahospice.org/blog/100051/Niagara_Hospice_Virtual_Remembrance_Ceremony. The Niagara Hospice team has been providing care to the communities of western New York since 1988. The Heart of Hospice is honored to partnered with Niagara Hospice to bring you this episode. You’ll find more information about hospice care, grief and bereavement care, and advance care planning at theheartofhospice.com. Needing a speaker for your conference or organization? The hosts of The Heart of Hospice podcast are here to help. Send an email to host@theheartofhospice.com. We never forget that your journey matters - you are The Heart of Hospice.

The Forgiveness Solution with Misty Tyme, Episode 067

Sat, 15 Aug 2020 07:00:00 +0000

Certified death doula Misty Tyme uses her many gifts to guide people in the practice of forgiveness. Her interview with The Heart of Hospice is open and warm and wise. According to her website https://www.mistytyme.com/, Misty’s mission is “to bring a forgiveness tool to a cynical world that is craving a way to let go of pain and anger…...she believes when we practice forgiveness, we make room in our hearts for more love and kindness.” Misty is also a speaker, trainer, interfaith reverend, and the creator of The Forgiveness Algorithm. In her book The Forgiveness Solution: A Step by Step Process to Let It Go, Misty shares her expertise on how to move past un-forgiveness. You can find her book at https://www.mistytyme.com/books-workbooks/. Connect with Misty at 1-877-77-FORGIVE or at https://www.mistytyme.com/contact/. You can connect with the hosts of The Heart of Hospice by sending an email to host@theheartofhospice.com. We’re there for you 24/7 during your hospice journey at theheartofhospice.com. You’ll always be welcome - you are The Heart of Hospice.

A Conversation with Death by Design Host Kimberly Paul, Episode 066

Sat, 01 Aug 2020 07:00:00 +0000

Our conversation with Kimberly Paul is going to make you think. She challenges us to think about death and advance care plan conversations in a radically different way. According to her website https://www.deathbydesign.com/about-the-author/, Kimberly "chose to leave her dream job in television and film to discover the authentic stories at the bedside of the dying. Working for hospice was supposed to only be a temporary job until she could build relationships in the film industry in Wilmington, NC. But this temporary job spread over 17 years as Vice President of Communications and Outreach for a local hospice. It never crossed Kimberly’s mind that her true calling would find her and lead to unexpected and bold intentions to become one of the leaders in the death positive movement happening in the United States today." From her Death by Design podcast to her cross country “Live Well Die Well Tour”, Kimberly is promoting the death positive movement in some amazing ways. Connect with Kimberly and find her book “Bridging the Gap” at https://www.deathbydesign.com/. Needing hospice consulting services or a speaker at your conference or event? Connect with Helen and Jerry by emailing us at host@theheartofhospice.com. We’ve love to collaborate with you to be part of your hospice journey. Find more information about us at theheartofhospice.com. You are The Heart of Hospice.

It's Time to Have the Conversation on National Healthcare Decisions Day 2.0, Episode 065

Wed, 15 Jul 2020 07:00:00 +0000

July 16, 2020 is National Healthcare Decisions Day 2.0! NHDD may have been delayed this year because of the pandemic but it’s never too late (or too early) to have advance care plan discussions. Sponsored by The Conversation Project (the conversation project.org),National Healthcare Decisions Day “exists to inspire, educate, and empower the public and providers about the importance of advance care planning”. Nobody likes having to think about his own death, but if it would make things easier for you and the ones you love, wouldn’t it be the discomfort of having those hard conversations? There are tools and games to help you start the “death talk”. You’ll find links to all those ACP resources on theheartofhospice.com on our Advance Care Planning page. Need some guidance or have questions? Send an email to host@theheartofhospice.com. You’ll get a personal response.

Remember - you are The Heart of Hospice!

What Really Matters: A Conversation With Dr. Karen Wyatt, Episode 064

Wed, 01 Jul 2020 07:00:00 +0000

Dr. Karen Wyatt puts her heart into the work she does as a hospice physician. According to her website, Dr. Wyatt is a “family physician who has spent her 25 year medical career working with patients in challenging settings, such as hospices, nursing homes and indigent clinics. She has founded a free medical clinic in a homeless shelter, accompanied three medical mission teams to Honduras, and led a non-profit clinic for the uninsured in its growth from a 4-hour per week all-volunteer operation to a full-time, full-service medical center.

Motivated by her compassionate heart she has put her spiritual beliefs into action by being of service to others in need and by developing Creative Healing LLC an initiative to integrate spirituality into traditional medical practice. She has twice testified at Senate briefings on the cutting edge model of integrated medical care, combining physical and behavioral health, which she helped create and implement in her clinic for the uninsured.” Through multiple projects that include her End of Life University podcast and her book 7 Lessons for the Living from the Dying: How to Nurture What Really Matters, Karen shares the wisdom she’s acquired through her work. You can find all of Dr. Waytt’s projects on eoluniversity.com. You can connect to more resources and information about hospice care at theheartofhospice.com. Connect with Jerry or Helen by sending an email to host@theheartofhospice.com. We’d love to hear from you. You are The Heart of Hospice!

How to Plan a Memorial Service for Your Hospice, Episode 063

Mon, 15 Jun 2020 07:00:00 +0000

Hospice agencies frequently offer memorial, or remembrance, services to the families of their patients. It can be a meaningful part of a hospice bereavement program. A memorial service is conducted by the agency, providing a ceremony that honors persons who have died while in the agency’s care. Music, special readings and rituals, and connection with the hospice staff create a special atmosphere that helps families move through their grief. These services can also provide care for the secondary grief of the hospice team. You’ll find guidance for putting together a memorial service in NHPCO’s Hospice Sabbath guide. There are so many themes and activities that can be included in a memorial service. If your hospice agency needs help planning a customized memorial service for your families, send us an email at host@theheartofhospice.com. We’ll consult with you to plan a beautiful celebration of the lives of your patients. And remember - No matter who you are, or where you are in your hospice journey, you are The Heart of Hospice.

Helen Shares Her Heart at a Hospice Memorial Service, Episode 062

Mon, 01 Jun 2020 07:00:00 +0000

Hospice agencies often hold memorial services to honor the lives of patients they’ve served, inviting the families and team members who cared for those patients. Today’s episode features a talk Helen shared at a hospice memorial service. It can be a very meaningful event, designed to comfort those who are grieving a loss. Helen shares her personal hospice journey, including her own experience with grief. Grief is a complicated human experience. Everybody does it differently. You have to live through your grief journey on your own terms. You’ll find resources for your hospice journey, whether you’re a consumer or a provider of end of life care, at theheartofhospice.com. If you’re looking for a speaker for your agency’s memorial service or event, send an email to host@theheartofhospice.com. We’d love to partner with you. No matter who you are, or where you are in your hospice journey, you are The Heart of Hospice.

Loren Gelberg-Goff Shares How Caregivers Can Find Their Joy, Episode 061

Fri, 15 May 2020 07:00:00 +0000

LCSW Loren Gelberg-Goff wants to help caregivers. Her mission is to help “caregivers just like you enjoy a more fulfilled life while they do the demanding but important work of caring for their loved ones.”

In her book “Take Back Your Life: A Caregiver’s Guide to Finding Freedom in the Midst of Overwhelm”, Loren gives guidance on how caregivers can live a full and healthy life while still providing the best care to their loved ones. Loren is also the facilitator of the virtual group program “Take Back Your Life: The Art of Self Care”, a popular program that helps caregivers not only to work through guilt and resentment, but to live a joyful life.

Helen and Jerry sat down with Loren to hear her insight on caregiving and how to empower caregivers to live fully. Find Loren’s work, including her blog, at https://www.lorengelberggoff.com/blog/.

If you need resources to help with caregiving responsibilities, especially for someone who is seriously ill, check out theheartofhospice.com. You’ll find information on advance care planning and what to expect from hospice care. Your journey matters - you are The Heart of Hospice!

The Hospice Doctor's Widow with Jennifer O'Brien, Episode 059

Wed, 15 Apr 2020 07:00:00 +0000

Jennifer O’Brien didn’t anticipate that the journal she kept during her husband’s illness and subsequent death would become a guidepost to people caring for loved ones during serious illness. Her new book, “The Hospice Doctor’s Widow”, has become just that. It’s a moving journaling that offers advice and insight into some of the most vulnerable aspects of being a caregiver. Jennifer shares what she learned while caring for her husband Bob Lehmberg and reveals the heartbreaking wisdom she acquired during their journey. Creative graphics, intimate moments, and honest thoughts form The Hospice Doctor’s Widow, making it required reading for anyone caring for someone who’s terminally ill, or has had a loss. You’re going to love our interview with Jennifer. You can find Jennifer’s book on thehospicedrswidow.com. Connect with Jerry and Helen on theheartofhospice.com. You can email questions or comments to us at host@theheartofhospice.com. We’d love to hear from you - you are The Heart of Hospice.

Grief Yoga Creator Paul Denniston Shares How to Get Unstuck, Episode 058

Wed, 01 Apr 2020 07:00:00 +0000

It was our great privilege to partner with Paul Denniston, the creator of Grief Yoga. Paul has taught the practice of Grief Yoga to “therapists, counselors and health care professionals around the world and teaches workshops around the US.”

Using combined techniques from Hatha, Vinyasa Flow, Kundalini Yoga, Restorative Yoga, Laughter Yoga, and Let Your Yoga Dance, Paul guides his students into a place of transformation and healing.

According to his website griefyoga.com, Paul combines “many different branches of yoga in order to channel and release anger, and allow unresolved grief a compassionate space to breathe and be released to help us connect to the resilient loving warrior within.”

His DVDs and online courses focus on using grief as fuel for healing through movement and yoga. Paul shares his wisdom and heart with us in this great interview. You can find Paul’s blog, his bio, and information about his classes and products at griefyoga.com. (Give the online chair yoga course a try!)

Connect with Helen and Jerry on theheartofhospice.com to hear more about their hospice journeys and caregiving experiences. And remember - you are The Heart of Hospice!

What You Need to Know About Do Not Resuscitate Orders, Episode 057

Sun, 15 Mar 2020 07:00:00 +0000

A Do Not Resuscitate order is one of the most confusing and misunderstood parts of end of life care. What do you need to know about DNR orders if you’re a hospice patient, or a family member who makes decisions for a loved one?

Jerry and Helen do some “myth busting” about what CPR is really like, and how successful it is likely to be when used on a terminally ill patient. What we see on TV and movies doesn’t accurately depict what resuscitative procedures look like. The best practice is to talk about DNR decisions with your physician or your hospice team. Remember that it’s not a one and done conversation - you need time to think it over and get answers to your questions. Patients and their families have rights, and their decisions should be respected. Give a DNR decision the consideration it deserves.

You can find out how to make a discussion of DNR orders part of your advance care planning conversations on theheartofhospice.com. Take advantage of the multiple resources offered on the Learn page. Your decisions matter - you are The Heart of Hospice!

An Encore Presentation with Ellen Goodman of The Conversation Project, Episode 055

Sat, 15 Feb 2020 08:00:00 +0000

Some experiences are worth repeating. Our interview with Pulitzer prize-winning author Ellen Goodman was one of our brightest moments, and we’re excited to share it with you in an encore presentation.

Ellen is a co-founder and director of The Conversation Project, an organization whose mission centers around helping people to voice their wishes for care at the end of life. They know that having discussions about death and dying can help to ensure respectful, appropriate care when serious illness becomes a reality. It’s about having those conversations in the living room, not in the hospital waiting room.

In advance of National Healthcare Decisions Day 2020 coming up on April 16, we want to highlight how important it is to have conversations about your end of life wishes with the important people in your life.

Check out theheartofhospice.com to get more information about advance care planning, and to subscribe to the podcast to connect you with Helen and Jerry of The Heart of Hospice every time we release a new episode. Take care of your Self - you are The Heart of Hospice.

The Heart of an Artist: An Interview with Matt Kennedy, Episode 054

Sat, 01 Feb 2020 08:00:00 +0000

We sat down with Matt Kennedy to talk about his beautiful work creating unique urns using a tattoo machine.

According to his website ceramicarttattoo.com, Matt is “a self-taught ceramic artist with an international reputation whose professional career has spanned more than 20 years as a ceramic artist. He’s the first artist to use a tattoo machine as a carving tool on ceramics. Matthew’s art work is featured in many offline & online galleries. Matthew’s art mediums are ceramic and enameling making unique use of vibrant pigments & colors for each piece.... Matthew hand carves each design element for every piece.”

You’re going to love hearing Matt’s story and the connections he creates between himself, tattoo designs, and his clients. Customized to capture the essence of someone’s life, Matt’s creations will inspire you with their strength and gentle beauty. Check out his support for the homeless community as well.

Making Doctors Comfortable with End of Life Conversations, Episode 053

Wed, 15 Jan 2020 10:59:27 +0000

Rachel Giger is a certified end of life coach with a mission to support hospice physicians. While working as a volunteer, she identified that physicians need education about having end of life discussions, and the support to be comfortable with those talks.

Now she provides one-on-one consulting to doctors who find themselves at a loss for words and feeling the burden of compassion fatigue. Through Rachel’s consulting service Mortal MD, doctors can find discreet tutoring to create skills to have those difficult conversations and learn healthy ways to cope with the emotional burnout that’s unique to physicians.

In her interview with us, Rachel shares her energy for supporting our doctors as they take care of our patients. Check out her work at https://rgccoaching.com/ to get information about the specialized services she provides!

You can find more information about self care for healthcare professionals as well as unpaid caregivers at The Heart of Hospice website. We’re grateful to be connected with you!

How to Support Grieving Children with Melissa Lunardini, Episode 052

Wed, 01 Jan 2020 08:00:00 +0000

The Heart of Hospice is excited to connect you with Melissa Lunardini! Melissa is a children’s bereavement manager overseeing a large children’s bereavement program for a hospice agency in California. Melissa holds an MA in Psychology and an MBA, and is the owner of Tribal Grief, a consulting service that offers expert assistance with grief camps for kids, grief and traumatic loss, school-based programming, and crisis response.

Jerry and Helen talked with Melissa about her work with kids who are grieving or have experienced a violent death, and she shared her experiences working in a challenging but incredibly rewarding field. You can connect with Melissa at tribalgrief.com.

Other children’s grief resources mentioned in this episode:

Find more resources about hospice, including information about hospice philosophy and interdisciplinary teams by visiting theheartofhospice.com. No matter where you are in your hospice journey, we’re glad you found The Heart of Hospice!

The Authentic Heart of a Hospice Nurse with Helen Haddick, RN, Episode 051

Sun, 15 Dec 2019 08:00:00 +0000

Have you ever met someone and felt an instant connection? That’s the way we felt when we interviewed today’s guest. Helen Haddick is a hospice certified RN practicing in the northeastern part of the U.S. Helen H. is the author of the fromsavingtosending website and blog. With every blog post, she shares her inner thoughts and feelings as a hospice nurse. Because Helen is willing to be transparent and vulnerable, she reveals so many of the emotions that end of life professionals deal with on a daily basis. If you’re part of a hospice team, you should connect with Helen Haddick. She truly has a heart for hospice. You’ll also find support for your work in hospice on theheartofhospice.com. Resources for your self care, professional organizations, tips to share with the patients and families you serve - it’s all there. When you visit theheartofhospice.com, you can subscribe to the blog so you’ll be notified each week when a new article gets posted. We’re looking out for you - you are The Heart of Hospice!

An Insider's Perspective of Palliative Care with Dr. Jessica Zitter, Episode 050

Sun, 01 Dec 2019 08:00:00 +0000

Our special guest on today’s podcast is Dr. Jessica Zitter, MD, MPH. According to Dr. Zitter’s website www.jessicazitter.com, she is a “national advocate for transforming the way people die in America.” Harvard and UCSF-trained, Dr. Zitter is a hybrid type of doctor, practicing in both critical care and palliative care medicine. She works as an Attending Physician in Oakland, California. Dr. Zitter and the work she does was featured in “Extremis”, a documentary available on Netflix and nominated for Academy and Emmy awards. Dr. Zitter is the author of Extreme Measures: Finding a Better Path to the End of Life, a contributor to The New York Times, The Atlantic, Time Magazine, Journal of the American Medical Association, The Washington Post and many other publications. Jerry and Helen talked with Jessica about her work in the end of life care industry. Her dedication and passion about the quality of care for seriously ill patients is tangible. You can find more about Dr. Zitter’s work on www.jessicazitter.com and watch the trailer for Extremis. Get to know more about The Heart of Hospice and our mission by visiting theheartofhospice.com. You’ll find support, encouragement, and information for both paid and unpaid caregivers. No matter who you are, or where you are in your hospice journey, you are The Heart of Hospice.

A Hospice Journey with Jennifer Kennedy of NHPCO, Episode 049

Fri, 15 Nov 2019 08:00:00 +0000

Meet Dr. Jennifer Kennedy, Senior Director of Regulatory and Quality for the National Hospice and Palliative Care Organization! Jennifer sat down with Helen and Jerry to share her hospice journey, and talk about what we’re doing right in end of life care.

According to her bio on the NHPCO website, Jennifer has “more than 30 years of diverse healthcare experience with consistently increasing responsibilities in management, education program development, program operation, staff development, continuous quality improvement, regulatory compliance, utilization management, outcomes analysis, public speaking, and program development and implementation. Jennifer has earned a BSN, a duel Master in Case Management and Health Counseling, and a doctoral degree in healthcare education and policy.”

We were honored to hear how Jennifer got her start in hospice, and what she thinks the future looks like for end of life care. Her passion and dedication to hospice is amazing! Find more about the work of NHPCO at nhpco.org.

You can learn more about The Heart of Hospice and how Jerry and Helen got started in hospice at theheartofhospice.com. If you’d like to share your hospice journey with us, write us at host@theheartofhospice.com. We’d love to hear from you - you are The Heart of Hospice!

Talking All Things Hospice with Judi Lund Person of NHPCO, Episode 048

Fri, 01 Nov 2019 07:00:00 +0000

To kick off National Hospice and Palliative Care Month, we’re talking with Judi Lund Person, BA, MBH, CHC, NHPCO’s Vice President, Regulatory and Compliance. Judi is the voice of NHPCO and hospice providers across the U.S. in discussions with the Center for Medicare and Medicaid Services.

According to the NHPCO website, Judi “develops updated tools for hospice providers, including guides to hospice payment rates and wage index values. She works daily with hospice providers and state hospice organizations on the ever-increasing array of regulatory and compliance issues and translates complex regulatory language into actionable ‘plain English’ for hospice providers.”

She’s a wonderful part of the NHPCO podcast. The Heart of Hospice was so glad to sit down with Judi and talk about all things hospice. You can find more information on the work of NHPCO at nhpco.org. Check out theheartofhospice.com for more information on end of life care, hospice philosophy, self care, and advance care planning. Remember, you are The Heart of Hospice!

The Sixth Stage of Grief: A Conversation with Grief Expert David Kessler, Episode 47

Tue, 15 Oct 2019 07:00:00 +0000

The Heart of Hospice was honored to sit down and chat with David Kessler about his work in grief and healing, his personal grief experiences, and his new book Finding Meaning: The Sixth Stage of Grief.

According to his website grief.com, David “is one of the world’s foremost experts on healing and loss. His experience with people on the edge of life and death has taught him the secrets to living a happy and fulfilled life - even after life’s tragedies. He is the author of five bestselling books on grief. His first book, The Needs of the Dying is a #1 best-selling hospice book, praised by Mother Teresa, and he co-authored the two bestsellers: On Grief and Grieving and Life Lessons with the legendary Elisabeth Kubler-Ross.”

David was generous enough to share his wisdom and experience with Helen and Jerry, and The Heart of Hospice listeners. With every copy of his new book, David is offering a free companion course. You can find details at www.sixthstage.com. Find more information and resources about hospice philosophy and self care tips by visiting theheartofhospice.com.

Let's Talk About Death Over Dinner with Michael Hebb, Episode 046

Tue, 01 Oct 2019 07:00:00 +0000

Jerry and Helen are excited to share their interview with Michael Hebb, the author of "Let’s Have Dinner and Talk About Death”, and the founder of Death Over Dinner.

According to the Death Over Dinner website, Michael “ has been staging convivial gatherings and redefining hospitality/tablemaking since 1997; co-founding the City Repair project with Mark Lakeman; and co-founding family supper, ripe, clarklewis, and the Gotham Bldg Tavern in Portland OR with Naomi Pomeroy.

His expansive multidisciplinary dinners have taken place on five continents, have been exhibited in several museums and featured in the NY Times, W, Art Forum, The New Yorker, GQ, The Guardian and dozens of international publications. Michael strongly believes that the table is one of the most effective (and overlooked) vehicles for changing the world.

You can learn more about Michael and the many resources he offers at his website, Round Glass, and also read about his book Let’s Talk About Death Over Dinner.

Improving Your Care Through Contemplative Practices, Episode 043

Thu, 15 Aug 2019 07:00:00 +0000

Jonathan Prescott has made it his life’s work to teach patients, caregivers, clinicians, and anyone who seeks to learn about contemplative practices. A Board Certified Chaplain, Clinical Chaplain, Pastoral Counselor, and an ordained student of Zen Master Thich Nhat Hanh, Jon’s work supports those who are seriously ill and nearing end of life.

In his interview with Jerry and Helen, Jon shares some personal rituals he uses in his contemplative life to find deep joy and connection with others. Learn more about Jon and his fellow contemplative practitioners at https://wisecaregiving.org/. You’ll find learning opportunities at introductory workshops as well as 2-3 day retreats, or reach out to Jon to discuss a https://wisecaregiving.org/consultations/.

Connect with more information about end of life care, advance care planning, and support for unpaid and professional caregivers on theheartofhospice.com. Share your questions with us by sending an email to host@theheartofhospice.com. No matter where you are in your hospice journey, you are The Heart of Hospice.

Freddie Fuller Sings for People with Terminal Illnesses, Episode 042

Thu, 01 Aug 2019 07:00:00 +0000

Fred Fuller will tell you that he gets more than he gives in his work with terminally ill patients. Fred is one of a talented group of musicians who work with the non-profit organization Swan Songs to provide concerts for the dying in the Texas hill country.

Fred shares his story with Jerry and Helen, as well as some of his beautiful music. Known as the “Singing Cowboy”, Fred has been present for some intensely moving moments with those he serves. Learn more about Fred’s story and his music at http://www.thesingingcowboy.net/home.html. You can find out more about Swan Songs and support their work by visiting swansongs.org.

You’ll also find more information about end of life care at theheartofhospice.com, including topics like advance care planning, professional hospice organizations, and tips for both unpaid and professional caregivers. Remember to subscribe to the podcast wherever you listen - Apple podcasts, Spotify, iHeart Radio, Google Play, or Radio.com.

Connection Moment with Missy Ring of NHPCO, Episode 17

Wed, 10 Jun 2020 07:00:00 +0000

Working as the Director of Quality and Compliance at NHPCO gives Missy Ring a unique perspective on hospice care. Recalling her own field experience with patients, she reminds us to simply breathe during this stressful time. Missy also tells us not to forget about the care of ourselves while we’re caring for seriously ill patients and their families. Every discipline included in end of life teams is focused on providing quality care. We need to give ourselves and our team members the same care. This is what we do in hospice care - guiding people through hard times and grief. Missy reminds leaders to take care of themselves, remembering that team members will take cues from leadership behavior. You can connect with the resources that the National Hospice and Palliative Care Organization has to offer, including membership for hospice agencies, at nhpco.org. NHPCO also offers resources for personal caregivers and patients. Find encouragement for your caregiving, whether it’s your job or simply a labor of love, at theheartofhospice.com. We’re here to support you during your hospice journey. You are The Heart of Hospice.

Connection Moment with Isabel Stenzel, Episode 16

Mon, 08 Jun 2020 07:00:00 +0000

Hospice bereavement counselor and social worker Isabel Stenzel shares her gratitude for her coworkers and colleagues in today’s Connection Moment. She reminds us to remember our gifts and the value we bring to the care of our patients. Isabel has a personal story of critical illness and hospice care, so she has first hand experience of the special support end of life professionals provide. Advising us to learn and adapt to the processes we need to feel safe in this difficult time, Isabel also urges us not to lose sight of the beauty around us. Hospice professionals are in the tough job of caring for terminally patients because they know how full life can be. That’s what they want to provide for patients and their families. Isabel also reminds us to honor our losses, knowing that we are grieving with the whole medical community and the world. Remember what makes you get up in the morning - your commitment to end of life care. Find information about Isabel Stenzel at the Mission Hospice website, and watch her TEDx talk here. Find more encouragement for your hospice journey at theheartofhospice.com. Helen and Jerry are here to support you 24/7 with the website, blog, and podcast. Write to us with questions about end of life care at host@theheartofhospice.com. You are The Heart of Hospice.

Connection Moment with Melissa Lunardini of Tribal Grief, Episode 15

Sat, 06 Jun 2020 07:00:00 +0000

In a time where grief is a shared emotion around the world, grief specialist Melissa Lunardini shares a message of hope in today’s Connection Moment. The first step is remembering to give yourself and others grace to grieve as individuals. She offers a great tip to increase mindfulness using the Stop Technique, simply pausing to observe what’s going on around and inside you, while taking some deep breaths. This provides a moment to figure out where you are in the present moment, and what you need to do next. Melissa encourages us to use some “old school” techniques to connect with our patients. Try handwriting a note or letter!

There will be opportunities for post-traumatic growth after the pandemic that will make hospice professionals and caregivers stronger, creating resiliency. Go to tribalgrief.com to utilize Melissa’s grief and bereavement consulting services for your agency or team. The Heart of Hospice website has additional resources for you, whether you’re a professional caregiver or a caregiver for a loved one. Let us know how we can help you by sending an email to host@theheartofhospice.com. No matter who you are - you are The Heart of Hospice!

Connection Moment with Katie Orlip and Jahnna Beecham, Episode 12

Sat, 30 May 2020 07:00:00 +0000

Our dear friends Jahnna Beecham and Katie Ortlip join us for today’s Connection Moment. They’re the co-authors of Living with Dying: A Complete Guide for Caregivers. It’s our all-time favorite caregiving guidebook! Katie, a hospice social worker, validates the emotions hospice professionals might be feeling. It’s ok to be fearful and to grieve - we’re all going through this together. It’s important to remember that we’re useful and important; we just have to find different ways to take care of our patients. Katie suggests checking out the resources the Upaya Zen Center has to offer, and the work of Roshi Joan Hallifax. Jahnna’s hospice journey includes caring for both of her parents, so she knows the stressors that come from isolation and grieving a loss. She shares how the grief of the pandemic seems to be a shared emotion. It’s a good time to take stock and look inward to determine what’s important to us. You can find Katie and Jahnna’s book about caregiving at livingwithdying.com. It’s a fantastic resource for anyone who is a personal caregiver for a loved one. There are more resources for you at theheartofhospice.com. We love hearing from you, so send an email to host@theheartofhospice for a personal response from Helen and Jerry. You’re not alone in your hospice journey. You are The Heart of Hospice.

Encore Episode with David Kessler: The Sixth Stage of Grief

Mon, 13 Jan 2020 08:00:00 +0000

We’re delighted to offer you this encore episode of our interview with grief expert David Kessler. David is currently touring the U.S. offering a daylong seminar related to his newest book Finding Meaning: The Sixth Stage of Grief.

David is bringing his seminar to Texas in February to the following cities.

Dallas, February 11
Houston, February 13
Austin, February 19
San Antonio, February 20

Please visit Grief.com to find out when David will be in your area. For hospice professionals, David is offering a discount of $100 off the regular seminar when you register by using special discount code “DK100” at checkout. This seminar is for hospice professionals of all disciplines, counselors, therapists, psychologists, and funeral directors.

Please enjoy this encore episode and be sure to visit The Heart of Hospice website for more information about grief and bereavement.

A Personal Story of the 9/11 Victims Compensation Fund, Special Episode

Sun, 22 Dec 2019 12:46:47 +0000

In a story that inspired the nation, New York City police detective Lou Alvarez advocated in support of the first responders who served at Ground Zero following the 911 attack. Helen and Jerry were honored to sit down with his brother Phil Alvarez, and talk about the Alvarez’s family’s journey. As a veteran detective with the Suffolk County Police Department, Phil knows the meaning of duty and sacrifice. His brother made the ultimate sacrifice, walking through treatment for stage 4 cancer, and finally, time in hospice care.

Phil shows his dedication to carrying on Lou’s legacy by reaching out to any first responders that might be experiencing health effects after working with rescue and recovery efforts in New York. If you served at Ground Zero and need information about benefits available to you, contact Phil at (855) 585-1399. You can find additional information on the September 11th Victims Compensation Fund website or The Feal Good Foundation.

The Heart of Hospice salutes the first responders that serve our country and we honor the legacy of Lou and Phil Alvarez. You are The Heart of Hospice.

Recognizing the Value of a Chaplaincy Taxonomy, Heartbeat, Episode 148

Fri, 19 Jul 2019 07:00:00 +0000

Hospice professionals are always looking for better ways to standardize documentation. It’s vital that each discipline have reliable resources to support and improve their documentation.

The Spiritual Care Association, an affiliate of the Healthcare Chaplaincy Network, has created a chaplaincy taxonomy that’s available as a free download from their website. It’s a great tool for spiritual care documentation that will enable agencies to measure how chaplain interventions contribute to improved patient outcomes and high quality care.

You can find the chaplaincy taxonomy on the website for the Spiritual Care Association by visiting spiritualcareassociation.org.

Connect with us at theheartofhospice.com to find resources for personal and professional caregivers including self care, advance directives, and how you can volunteer with a hospice agency in your area. When you visit the website, subscribe to the podcast so you can listen on your favorite podcast app - Google Play, iHeartRadio, Spotify, Radio.com, or Apple podcasts.

Private Concerts Fulfill Musical Last Wishes, Heartbeat, Episode 147

Fri, 12 Jul 2019 07:00:00 +0000

Music has special meaning in times when we’re struggling or grieving. In the Austin, Texas area an organization called Swan Songs provides music for people who are living with a life-limiting illness.

The professional musicians who work with Swan Songs gather with the patient and family to play a concert of the patient’s favorite type of music. One of the artists will even write a song especially for the terminally ill person.

Co-founder Christine Albert started Swan Songs after she was invited to sing for a couple of people who were nearing the end of their lives. Members of Austin’s vibrant music community donate their time through this non-profit organization. Find out more about Swan Songs or make a donation to support their work on swansongs.org.

You can find out more about us on theheartofhospice.com. There’s information on self care, advance care planning, and resources for both personal and professional caregivers. Take a minute to subscribe to the podcast wherever you get your podcasts - Spotify, Radio.com, Apple podcasts, Google Play, or iHeart Radio.

What You Need to Know About Body Donation, Heartbeat, Episode 146

Fri, 05 Jul 2019 07:00:00 +0000

When someone you love dies, it can be hard to make decisions. Funeral, organ donation, cremation with a memorial service? It’s a very personal choice and can be confusing. In today’s Heartbeat we’re discussing the option of whole body donation.

Willing a body to a medical school or body donation service can be a way to assist with research into certain diseases or conditions. Donation can also be a way to enhance the training of medical students and surgeons. Those plans have to be made in advance of the death so it’s good to have body donation discussions.

Organizations like Science Care and Med Cure, or your local medical schools can provide you with options. Be sure to have a backup plan if the body doesn’t meet the criteria for donation at the time of death.

To get more information about advance care planning, visit The Heart of Hospice website. You’ll find resources on caregiving, end of life care, and self care for personal and professionals caregivers, along with encouragement for your hospice journey. Remember to subscribe to the podcast wherever you listen - Apple podcasts, Spotify, iHeart Radio, Google Play, or Radio.com.

Unexpected Grief Series with Counselor Chuck Olliff: Unexpected Responsibilities & Milestone Events, Heartbeat, Episode 144

Fri, 21 Jun 2019 07:00:00 +0000

We continue our series on grief with our friend LPC Chuck Olliff, discussing how the unexpected responsibilities after a death can surprise us and amplify our grief. Jerry and Helen ask how to manage the emotions that occur with grief milestones like receiving a death certificate or ashes of a loved one.

How do we react to that wave of grief that knocks us down? Chuck offers some options to help us explore how we process those grief events that we couldn’t anticipate, including that “year of firsts” that comes after a death.

You can find information about hospice, caregiving, bereavement, self care, and advance care planning on The Heart of Hospice website. Read a new journal entry in the blog every Sunday. Find resources and encouragement on theheartofhospice.com and sign up to receive regular emails when a new podcast or blog journal gets published. You can find and follow us on Facebook, Twitter, and Instagram.

Unexpected Grief Series with Counselor Chuck Olliff: Disenfranchised & Recurring Grief, Heartbeat, Episode 143

Fri, 14 Jun 2019 07:00:00 +0000

This week continues our grief series with our friend and special guest LPC Chuck Olliff. In our discussion today we explore grief that’s disenfranchised, extended, or recurs long after the loss. It’s the kind of grief society tells us isn’t ours to own but it occurs more often than we think.

Chuck offers insight on dealing with this type of grief and how to make it through those emotional moments with self forgiveness and self awareness.

For more insights and information about hospice, caregiving, bereavement, self care, and advance care planning, please visit The Heart of Hospice website. Find a new journal entry of The Heart of Hospice blog every week on Sunday. When you visit theheartofhospice.com you can sign up to receive regular emails from The Heart of Hospice when a new podcast or blog has been published. You can also find and follow us on Facebook, Twitter, and Instagram.

Unexpected Grief Series with Counselor Chuck Olliff: Guilt & Regret, Heartbeat, Episode 142

Fri, 07 Jun 2019 07:00:00 +0000

Grief will often surprise us with something we didn't expect. The "I didn't know it would feel like this" moments. In this series of Heartbeat episodes LPC Chuck Olliff shares his insights on ways to cope with the unexpected components of grief.

In today's episode we discuss how to cope with guilt, regret and shame after a death. These emotions often surprise us with their intensity. Chuck shares coping strategies that can help mitigate the impact of these sometimes negative emotions.

For more insights and tips about hospice, caregiving, bereavement, self care, and advance care planning please visit The Heart of Hospice website. There's a new journal entry on The Heart of Hospice blog that publishes every Sunday.

You can sign up to receive regular emails from The Heart of Hospice to let our listeners know when a new podcast or blog has been published. You can also follow us on Facebook, Twitter, or Instagram.

How to (Legally) Show Appreciation to Hospice Staff, Heartbeat, Episode 141

Fri, 31 May 2019 07:00:00 +0000

Many people want to show appreciation to their hospice team for providing exceptional care. In this episode Helen & Jerry discuss how you can express your gratitude in ways that are thoughtful...and legal.

Hospice agencies and their staff are not allowed to accept gifts from patients and their families. Small, inexpensive items may be allowable (check with your hospice administrator), but large, more costly items are usually not allowed, including handmade items.

How can you express your gratitude for the wonderful care you’ve received from hospice?

Warm hugs
A thank you card
A letter of thanks to the entire staff, or to a single individual

In other words, simple things that convey your appreciation and gratitude mean more than you know. A gift doesn’t have to be expensive to make a difference.

If you have other suggestions of ways to express appreciation to hospice staff, write to us at host@theheartofhospice.com. We’d love to hear your ideas.

To learn more about hospice, being a caregiver for a hospice patient, self care tips, and advance care planning resources, visit The Heart of Hospice website.

What You Need to Know About Accrediting Organizations, Heartbeat, Episode 140

Fri, 24 May 2019 07:00:00 +0000

Accrediting organizations such as Joint Commission, CHAP, and ACHC give confidence to consumers that a healthcare agency or facility is providing quality care that can be trusted. This is good information to know if you're hospice shopping.

Joint Commission, Community Health Accreditation Partner, (CHAP) Accreditation Commission for Health Care, (ACHC), are responsible for surveying hospice agencies, through initial accrediting survey, and then providing oversight and recertification every 3 years.

You can learn more about these accrediting organizations at their websites: Joint Commission, ACHC, CHAP.

Visit The Heart of Hospice website for more information and resources about hospice, caregiving, self care tips, and advance care planning resources. Please leave a rating or review to help others learn about The Heart of Hospice.

How to Promote Better Hospice Care Through Surveys, Episode 139

Fri, 17 May 2019 07:00:00 +0000

Hospice Consumer Assessment of Healthcare Providers & Systems (CAHPS) is a survey that measures the quality of the care provided by hospice as determined by the patient and family. These surveys can reveal a hospice agency's strengths and weaknesses.

Many people will read reviews about a product or service before making a purchase. Reviews help reveal a company's reputation for providing quality goods and services. Companies pay attention to reviews to learn where they can improve. The CAHPS survey helps hospice companies discover the areas where they can improve, and in the process the better the quality of care .

In today's episode Helen & Jerry discuss some of the details of the CAHPS survey and what it means for hospice agencies. To see the results of the CAHPS survey for a specific hospice you can visit the Medicare Hospice Compare website.

To learn more about hospice, the needs of caregivers, tips for self care for personal and professional caregivers, and resources for advance care planning, visit The Heart of Hospice website.

Nurses Are the Heart of Hospice, Episode 138

Fri, 10 May 2019 07:00:00 +0000

National Nurses Week is May 6-12 in the U.S. and in honor of hospice nurses everywhere we turn down the serious for a few moments to recognize the profession that is the heart of hospice.

National nurses week begins on May 6 and ends on May 12, the birthday of Florence Nightingale. This week puts the spotlight on the 4 million nursing professionals that have received the honor of being the most trusted profession for the past 17 years.

If you're a nurse you can score some free goodies during National Nurses Week. Go to nurse.org for more information.

Visit The Heart of Hospice website to learn more about hospice, caregiving tips, advance care planning resources, and self care tips and resources. Our resource pages have recently been updated with new information and new resources, so be sure to come and browse the new offerings.

Why Documentation in Hospice is Absolutely Necessary, Heartbeat, Episode 137

Fri, 03 May 2019 07:00:00 +0000

Documentation is critically important in any healthcare setting, and it's no less important in hospice. Every hospice discipline is required to document their care and interventions with patients and family. In this episode we discuss the purpose and power of documentation.

Every discipline must document every interaction they have with a patient or a member of the patient's care team. This is required by regulation. The documentation is then placed in the patient's chart and creates the patient's medical record.

To learn more visit our website at The Heart of Hospice for information about hospice, caregiving tips, self care resources, and advance care planning guides.

Please leave a rating or a review of the podcast on iTunes, or your favorite podcast app. We would love to hear from you, and you can contact us at host@theheartofhospice.com to tell us about your hospice journey, to ask questions, or to offer suggestions for future content.

Get to Know the NAHC, Heartbeat, Episode 136

Fri, 26 Apr 2019 07:00:00 +0000

The National Association of Home Care and Hospice (NAHC) is a professional organization that represents the professional caregivers who care for chronically ill, disabled, and terminally ill patients in a home care setting.

NAHC is committed to providing educational offerings through many different mediums, including webinars, newsletters, conferences, email updates, etc. Their staff also provides legislative policy updates, and regulatory and compliance guidance to their members.

To learn more about NAHC you can visit their website here, and to learn more about The Heart of Hospice you can visit our website here.

The Heart of Hospice website has resources and information about hospice, caregiving tips, self care resources for personal and professional caregivers, and resources to assist you in creating your advance care plans. Take time to read our weekly journal notes that publishes every Sunday as well.

Get to Know the ADEC, Heartbeat, Episode 135

Fri, 19 Apr 2019 07:00:00 +0000

The Association for Death Education and Counseling (ADEC) is committed to excellence in the care of the dying, grief counseling, and research in thanatology. In this episode of Heartbeat we share information about the role and purpose of ADEC.

ADEC wants to help educate professionals who work in the field of death, dying, and bereavement, including mental health professionals, social workers, counselors, educators, clergy, funeral directors, hospital and hospice personnel, and psychologists. ADEC also offers certifications and fellowships in thanatology. Thanatology is the science and study of death and dying. To learn more about ADEC, you can visit their website at www.adec.org.

Also on this episode we tell you about the Order of the Good Death. The mission of The Order is to help make death a part of life. According to their website, “accepting that death itself is natural, but the death anxiety and terror of modern culture are not.” Read more about The Order of the Good Death at their website, www.orderofthegooddeath.com.

Don’t forget to read our weekly blog that publishes every Sunday on our website at www.theheartofhospice.com. There are also resources on our website about hospice, caregiving, advance care planning, and self care tips for personal and professional caregivers.

Having the Conversation on National Healthcare Decisions Day, Heartbeat, Episode 134

Fri, 12 Apr 2019 07:00:00 +0000

National Healthcare Decisions Day is April 16, and the purpose of National Healthcare Decisions Day is to encourage everyone to have the conversation about their advance care plans with family, friends and healthcare providers. Learn more about NHDD in this episode.

From the NHDD website: “NHDD, an initiative of The Conversation Project, exists as a 50-state annual initiative to provide clear, concise, and consistent information on healthcare decision-making to both the public and providers/facilities through the widespread availability and dissemination of simple, free, and uniform tools (not just forms) to guide the process.”

#NHDD
#TheConversationProject
#CommonPractice
#MyLifeandWishes
#DrJessicaZitter
#Extremis

To learn more about hospice, advance care planning, caregiving resources and self care tips, visit The Heart of Hospice website and blog. Please join our Facebook page, and follow us on Twitter and Instagram for more information and resources, and to discover the latest hospice news and trends.

Get to Know the INELDA, Heartbeat, Episode 133

Fri, 05 Apr 2019 07:00:00 +0000

This podcast episode will introduce our listeners to the crucial work of an end of life doula. What is an end of life doula? A doula is a person with special training to assist the dying person and their family through the dying process with greater comfort and deeper meaning.

Learn more about the International End of Life Doula Association (INELDA) by visiting their website. INELDA was founded in 2015 to “foster the use of end of life doulas in hospices, hospitals, communities, and directly to dying people through the service of private practitioners.”

We also introduce the Geripal podcast to our listeners in this episode, and recommend that you take some time to listen to this very interesting, fun, and informative podcast. You can listen to the podcast and read their blog on their website at this link.

Don’t forget to visit The Heart of Hospice website for more information about hospice, caregiving tips, self care resources, and advanced care planning guides.

Get to Know the NCHPP, Heartbeat, Episode 132

Fri, 29 Mar 2019 07:00:00 +0000

In this episode the spotlight shines on the National Council of Hospice & Palliative Care Professionals (NCHPP). Through the leadership of the National Hospice & Palliative Care Organization (NHPCO), the NCHPP provides resources and education to hospice professionals of every discipline.

Membership in the NCHPP is open to professionals or volunteers who work, volunteer or are simply interested in the hospice & palliative care industry. Each discipline-focused section will have monthly educational offerings, including webinars and chats.

Learn more about NCHPP at their website, by simply following this link.

If you visit The Heart of Hospice website you can find several pages of resources about hospice, caregiving, self care for personal and professional caregivers, and advance care planning. You can also follow us on Facebook, Twitter and Instagram. To write to us, simply send an email to host@theheartofhospice.com

Celebrating the Role of the Hospice Social Worker, Heartbeat, Episode 131

Fri, 22 Mar 2019 07:00:00 +0000

March is #SocialWorkMonth and we want to recognize and celebrate the outstanding work of the hospice social worker. In this episode we celebrate the champions of the hospice interdisciplinary team: the social worker.

A hospice social worker faces many challenging situations in caring for hospice patients and their families.

Assess the caregiving system
Provide referrals for community resources & assistance, etc.
Lead family conferences
Communicate with Red Cross, VA, prison system
Coordinate with Veterans organizations (VA benefits for burial, ceremonial)
Patient placement in facilities
Advance Care Planning (living wills, MPOA, DNR, POLST)
Bereavement support/counseling for complicated grief needs
Community referrals for special grief needs (in coordination with chaplain)
Provide respite assistance
Advocating for patient rights
And more.....

To learn more about the services of social workers you can visit the National Association of Social Workers at this link.

Visit The Heart of Hospice website to learn more about hospice, caregiving, self care, and advance care planning. You can also follow us on Facebook, Twitter, and Instagram. We would love to hear your feedback, and you can write to us at host@theheartofhospice.com.

How to Become a Certified Hospice Professional, Heartbeat, Episode 130

Fri, 15 Mar 2019 07:00:00 +0000

National Certified Nurses Day is March 19, and we want to recognize all of those nurses who have gone the extra mile to become Certified Hospice & Palliative Care nurses (CHPN). Thank you from The Heart of Hospice for your outstanding professionalism.

Nurses aren't the only ones who can receive the hospice & palliative care certifications. Doctors, aides, social workers, and chaplains can also be certified with a specialty in hospice and palliative care. Here are some links to learn more about the certification in your discipline:

Doctors
Nurses
Aides
Social workers
Chaplains

To learn more about hospice, caregiving, advance care planning, and self care, visit our website here. You can also follow us on Facebook, Twitter and Instagram.

How to Manage Safety in the Home, Heartbeat, Episode 129

Fri, 08 Mar 2019 08:00:00 +0000

Safety is important no matter who you are: patient, caregiver, nurse, staff member. And no matter where you are: home, hospital, hospice, nursing facility. Safety--your safety, and ours--is a matter of great importance when someone is on hospice.

The primary goal of hospice is comfort, so it makes sense that hospice personnel want to do everything possible to help patients and caregivers maintain an environment that is safe and comfortable. This episode will explain the different ways that hospice staff can assess and recommend ways to create a safe environment for the patient and everyone else who enters the home.

To learn more, please visit The Heart of Hospice website at this link, for information and resources about hospice, caregiving, self care, and advance care planning.

To learn more about the National Association of Home Care and Hospice, please visit their website at www.NAHC.org

The When, Why and How of Pleasure Feedings, Heartbeat, Episode 128

Fri, 22 Feb 2019 08:00:00 +0000

The purpose of "pleasure feedings" is just what the name implies, for pleasure, or comfort. The goal of hospice is to help make the patient as comfortable as possible, and that includes helping them enjoy every aspect of life, including food.

Pleasure feedings are often used when a person's appetite decreases, or they can no longer tolerate normal foods. In place of normal foods, they're offered foods that they want or like, as tolerated. At this stage in the patient's disease trajectory there's little concern with maintaining a nutritionally balanced diet.

Listen to this episode to learn more about the when, why and how of pleasure feedings, and visit our website here, to learn more about hospice, caregiving, self care, and advance care planning.

If you're interested in the Shine App that was discussed in this episode's highlight, this link will take you to their website so you can learn more.

The Full Dose on Managing Medicines in Hospice, Heartbeat, Episode 127

Fri, 15 Feb 2019 08:00:00 +0000

One of the enduring myths about hospice is that a patient’s medications are discontinued when they’re admitted to hospice. We’re talking about medication management on this episode, and exploring the reasons why this myth has endured.

One of the most important goals of care for a hospice patient is symptom management, and one of the ways that’s accomplished is through the proper use of medications. One of the goals is to maintain a patient’s health with as few meds as possible. Medications will be discontinued or simplified if,

Patient can’t swallow
Pill burden becomes too great
Patient's needs change
Med is contraindicated

To learn more, read the blog on our website at www.theheartofhospice.com.

Learn more about “an unconventional advance care planning company” called Good to Go, in this episodes highlight of the week. You can visit their website at www.goodtogopeace.org

Don’t forget to provide us with a rating or a review on our iTunes page, and be sure to follow us on Facebook, Twitter, and Instagram to learn more about hospice, caregiving, advance care planning, and self care.

Hospice Care for People Living in a Long Term Care Facility, Heartbeat, Episode 126

Fri, 08 Feb 2019 08:00:00 +0000

In the latest survey (2016), almost 42% of hospice patients were receiving hospice care in a long-term care facility. In today’s episode you can learn how the hospice agency and the long term care facility coordinate care for a hospice patient.

98% of hospice patients receive hospice care while living at home, but “home” can be defined in many ways: a private residence, an assisted living facility, a group home, a nursing home, a private care home, or foster home. Many people receiving hospice care live in a long term care facility such as a nursing home, or assisted living facility. The hospice agency staff and the long term care facility staff work together to provide care for the hospice patient.

To learn more please visit our website. If you have questions about this episode, please write to us at host@theheartofhospice.com. To stay up to date on what’s happening at The Heart of Hospice, please like our Facebook page, and follow us on Twitter (thehearthospice).

The Power of an Accountability Partnership, Heartbeat, Episode 125

Fri, 25 Jan 2019 08:00:00 +0000

It’s now the end of January. How are you doing on reaching your goals for 2019? One of the best ways to improve your chances of success is to enlist an accountability partner. In this episode Helen & Jerry share the value of accountability partnerships.

Trying to reach a goal alone is difficult. According to a study by the American Society for Training and Development, 25% of people who set a goal, have enough internal motivation to actually achieve it. Those who establish a deadline for completing their goal, increase their odds by 40%. However, if the person announced their goal to someone else and gave themselves some external accountability, they had a 65% chance of success. It gets better. If they committed themselves to an accountability partner and met with them regularly, they had a 95% chance of successfully reaching their goal.

Those who have an accountability partnership have a distinct advantage over those who don’t. Accountability partnerships are useful for exercise goals, self care goals, study goals, work goals, and life goals in general.

Be sure and visit our focus feature this week, Lisa B. Capp. She has a great website for Alzheimer’s caregivers. Learn more about self care on our website.

What You Need to Know About DME, Heartbeat, Episode 124

Fri, 18 Jan 2019 08:00:00 +0000

Many people on hospice will need medical equipment (DME) to help improve their quality of life. In most cases, medical equipment is supplied by the hospice agency through a third-party vendor at no cost to the patient. In this episode Helen and Jerry share what you need to know about DME.

DME, or durable medical equipment, is used to help improve the patient's quality of life. Wheelchairs and walkers can improve mobility. Hospital beds with special mattresses can increase comfort levels and improve sleep. Other special equipment are used for symptom management, such as oxygen concentrators, nebulizers, and suction machines.

To learn more, please visit our website at this link, or send us an email with your questions to host@theheartofhospice.com. We will send you a personal reply.

If you've benefited from this podcast, please take a moment to leave a rating or a review on iTunes, Spotify, or Stitcher Radio. We appreciate receiving feedback from our listeners.

Finding Help For Your Grief, Heartbeat, Episode 123

Fri, 11 Jan 2019 08:00:00 +0000

Bereavement care is one of the primary services provided by hospice. In this episode we discuss when bereavement care begins, and the methods that hospice caregivers often use to help those who are grieving.

Grief counseling often uses the 5 stages of grief taught by Elizabeth Kubler-Ross.

Denial
Anger
Bargaining
Depression
Acceptance

Helen and Jerry discuss the pros and cons of this theory, and offer several resources to consider.

Here are links to the resources mentioned in this episode:

www.ekrfoundation.org
www.grief.com

Learn more about grief care on our website at www.theheartofhospice.com and please follow us on Facebook, Twitter and Instagram to stay up to date on current news about hospice.

We would encourage you to write to us at host@theheartofhospice.com to ask questions, or to share your hospice journey. We promise to send you a personal reply.

Insider Tips on Advance Care Planning with Katie Ortlip, Heartbeat, Episode 122

Fri, 04 Jan 2019 08:00:00 +0000

Advance care planning is one of the many services that social workers provide for patients and families. On this encore episode Katie Ortlip offers some insider tips from her experience as a social worker, and shares about the purpose of advance care planning, and the different documents that make up an advance care plan. Listen to this episode to learn more about advance care planning, and the help that a hospice social worker can provide.

Katie Ortlip is from Ashland, OR and has been a hospice social worker for over 25 years. She is also the co-author of Living With Dying: A Complete Guide for Caregivers with her friend, Jahnna Beecham.

To learn more about advanced care planning you can visit our website at this link. There are several blogs on our website that also offer advance care planning tips and insights.

If you would like to contact the hosts of The Heart of Hospice, please write to us at host@theheartofhospice.com. We would be delighted to hear from you.

The Most Helpful Resource Available for Caregivers, Heartbeat, Episode 121

Fri, 28 Dec 2018 08:00:00 +0000

Being a caregiver is a difficult job. Being a caregiver without any experience is even more difficult. We recommend Living With Dying by Jahnna Beecham & Katie Ortlip, as the most helpful resource available for caregivers. We offer our review of the book in this episode of Heartbeat.

Living With Dying is a comprehensive resource that explains every aspect of caregiving form diagnosis to death to bereavement. Every caregiver should have a copy of this book in their possession. To learn more about this most helpful resource, visit their website at this link: www.livingwithdying.com.

To learn more about hospice, caregiving, self care and advance care planning, be sure and visit our website at www.theheartofhospice.com. Just follow the link. To correspond with the host of The Heart of Hospice, please email us at host@theheartofhospice.com. We would ask you to take a moment to write a review about the podcast on iTunes, or wherever you listen to podcasts.

What You Need to Know When a Hospice Patient is in Crisis, Heartbeat, Episode 120

Fri, 21 Dec 2018 08:00:00 +0000

When a hospice patient's symptoms are becoming difficult to manage, hospice can assist by providing higher levels of care during a crisis. Helen and Jerry discuss the two levels of care that can be provided on a short term basis to help when a patient needs more assistance.

General inpatient (GIP) is provided at a medical facility such as a hospital or hospice inpatient unit. Continuous care, or crisis care, can be provided at the patient's residence by hospice staff.

Listen to this episode to learn more about when a higher level of care can be offered, and what services to expect. For more information, visit our website at www.theheartofhospice.com, or write to us at host@theheartofhospice.com if you have a question or a comment.

You can also follow us on Facebook, Twitter, or Instagram. Just search for The Heart of Hospice.

What to Expect From Hospice at Home, Heartbeat, Episode 119

Fri, 14 Dec 2018 08:00:00 +0000

The majority (98%) of hospice care is provided at the patient's home, whether a private residence, assisted living, nursing home--wherever the patient calls home. In this episode we describe what services can be expected for the person who receives routine home care from hospice.

Routine home care services can include visits by an RN, a nurse aide, a social worker and a spiritual counselor, a volunteer, and a physician or a nurse practitioner. Medical equipment is provided when necessary to improve quality of life for the patient or caregiver, and medications are also provided.

Listen to this episode to learn more about routine home care, and to learn what to expect from the team that provides the services. For more information, you can visit our website at www.theheartofhospice.com. You can also write to us with your questions or comments at host@theheartofhospice.com.

To connect with us you can also follow us on Facebook, Twitter, or Instagram. Just look for The Heart of Hospice.

What You Should Know About the Hospice Admission Process, Heartbeat, Episode 118

Fri, 07 Dec 2018 08:00:00 +0000

There seems to be a lot of mystery and misunderstanding about how a person begins receiving hospice care. We demystify the hospice admission process in this episode so that patients and caregivers have a clear understanding of what's happening.

Who can initiate the hospice referral?
Does it require a doctor's order?
What qualifies a person to receive hospice?
Which hospice agency should I choose?

These questions and many others are explained in this replay episode. If you need more information about hospice, be sure and visit our website at www.theheartofhospice.com.

Please like and follow us on Facebook and Twitter. You can also find us on Instagram and LinkedIn. To contact us by email simply write to us at host@theheartofhospice.com. We will be happy to personally answer any questions you may have.

The Benefits of Humor for Your Spirit, Heartbeat, Episode 117

Fri, 30 Nov 2018 08:00:00 +0000

Laughter and humor can also have positive affects on your spirit. In this episode Helen & Jerry continue discussing the positive affects of humor for self care. In previous episodes (115 & 116) we discussed the affects of humor on the mind and the body.

This episode focuses on humor's affect on the spirit.

Lowers stress
Dissolves anger
Unites people during difficult times
Helps us gain perspective by laughing at ourselves
Helps us connect with others and avoid being lonely

We're replaying some of our listeners' favorite episodes, and it's our hope that you hear something fresh and positive that will be beneficial for you, no matter who you are. Check out our website for fresh content on our blog at www.theheartofhospice.com/read.

Thanks for listening, and please leave a rating or a review to let us know how we're doing, and how we can better serve you. You can also connect with us via email at host@theheartofhospice.com.

The Benefits of Humor for Your Body, Heartbeat, Episode 116

Fri, 23 Nov 2018 08:00:00 +0000

"Laughter is the best medicine," isn't just an old saying, it's truth. Studies have proven the benefits of laughter on the body. In this episode we focus on how laughter can be beneficial for your body.

Here are just a few of the benefits of laughter for the body,

Eases pain. In a 1979 study, Norman Cousins discovered that "humor therapy" decreased a person's level of pain.
Lowers blood pressure.
Helps prevent heart disease. People with heart disease were 40% less likely to laugh, according to studies.
Improves breathing,
Stimulates circulation,
Relaxes muscles. (https://www.mayoclinic.org/healthy-lifestyle/stress-management/in-depth/stress-relief/art-20044456)

To find more resources for self care The Heart of Hospice website has separate pages for Professional Caregivers and Personal Caregivers. Don't miss reading our blog page for archived content about self care.

How to Talk About Death With College Students, Heartbeat, Episode 114

Fri, 09 Nov 2018 08:00:00 +0000

One of our favorite resources for advance care planning is The Conversation Project and they recently released a new resource for college age students. Learn more about it in today's episode. Did we mention it's available in 14 languages?

Young adults have unique grief needs, and the The Conversation Project has created a resource to help meet this need. Their new resource is available for download from their website .

It includes,

Tips for how to host a TCP event on campus
A sample power point
Material for social media posts
Great for student leaders, instructors

Visit our website to read our weekly articles about hospice and palliative care, advance care planning, self care, and caregiving.

Our highlight of the week is the Tedx Talk by Joe Primo of Good-Grief. org. You can see the video by clicking here.

How to Prepare for an Emergency, Heartbeat, Episode 113

Fri, 02 Nov 2018 07:00:00 +0000

Disasters happen and sometimes without notice. Hospice agencies are required to have emergency plans should there be a disaster in their area. This episode describes the responsibilities of the agency and the unit of care when emergencies happen.

Hurricanes, floods, wildfires, tornadoes, chemical spills, blizzards, the list of potential emergencies can be frightening. No matter where you live you need to have an emergency plan, whether you're a hospice provider, or a patient or caregiver.

Here are things you need to know when it comes to emergency preparedness:

Hospice agencies will help patients and caregivers create an emergency plan of action.
Hospice agencies will advise patients and caregivers what the agency will do during an emergency.
Mandatory evacuations means hospice agencies will not likely be providing services if the patient chooses not to evacuate, or is unable to evacuate.
Hospice agency should provide a list of alternate agencies who can provide care in the area where the patient evacuates.

To learn more about emergency preparedness visit www.ready.gov, a government website with tips and resources on how to prepare for emergencies.

For more resources and tips about hospice, caregiving, self care, and advance care planning, visit our website at The Heart of Hospice. Please take a moment to leave us a rating or a review here on your favorite podcast app. Thanks for listening to The Heart of Hospice podcast.

Review: Pallimed for Palliative Care Professionals, Heartbeat, Episode 112

Fri, 26 Oct 2018 07:00:00 +0000

Pallimed is an educational organization founded in 2005 by Dr. Drew Rosielle to train healthcare professionals about palliative care. Content is contributed by physicians, nurse practitioners, social workers and other professionals.

We recommend Pallimed.org as a resource for all healthcare professionals, but especially for those working in the palliative care industry. To learn more about the resources offerd by Pallimed, and to sign up for to receive their regular emails when new content is published, visit their website at Pallimed.org.

Our highlight this week is Happify.com. For great self care tips that will help keep you moving forward visit their website here. You can also sign up to receive daily texts or emails from Happify.

Review: Good Grief, a Support for Grieving Children - Heartbeat, Episode 111, Good Grief Website Review

Fri, 19 Oct 2018 07:00:00 +0000

1 in 7 children will experience the death of a parent or sibling before the age of 20 and 90% will experience the death of a relative or close friend. Good Grief is an organization that provides support & resources for children who have experienced loss.

In this episode, Helen & Jerry offer a review of the Good-Grief.org website. Good Grief is an organization committed to providing free grief support for children and their families. Their physical location is in New Jersey, but their internet presence is global, and we're so impressed with the amazing resources that they offer--for free!

Resources for

parents
educators
end of life professionals
faith-based organizations
and more

Many of these resources are in downloadable format so you can take them with you. We give 2 thumbs up to the work of this great organization and their amazing website full of resources.

To learn more, simply go to their website at www.good-grief.org.

For information about Barbara Karnes' new book, A Place in My Heart, visit her website here.

For more resources about hospice, advance care planning, self care for personal and professional caregivers, please visit our website at www.theheartofhospice.com

Don't forget to leave a rating or a review of The Heart of Hospice on your favorite podcast app. It will help others to connect with us.

The Difficult Decision of Long Term Care, Heartbeat, Episode 110

Fri, 12 Oct 2018 07:00:00 +0000

Deciding to place someone you love in a long term care facility is a difficult decision. It's even more complicated if you live far away. This Heartbeat episode can give you resources & tips to make it easier.

To help make the decision easier and less complicated we recommend you use the services of a social worker, preferably one that already knows your loved one. Hospice social workers are excellent resources to call on when you need assistance with placement.

To learn more about nursing homes in a specific region you can search and compare at Nursing Home Compare, a website operated by Medicare. We also recommend you talk to friends for word of mouth recommendations.

Our highlight this week is agingwellness.org. Be sure and check out their website for more resources and information.

To learn more about hospice, caregiving, advance care planning, and self care, visit our website at The Heart of Hospice.

Heartbeat, Episode 108, Family Caregiver Alliance Review

Fri, 28 Sep 2018 07:00:00 +0000

If you're a personal caregiver to a family member you need to know about Family Caregiver Alliance. FCA has been around for over 40 years providing support for caregivers of adult loved ones.

Resources they provide include:

A “Family Care Navigator” section - assists in locating services in your area. Easy to access by clicking on your state.
Features FCA Care Journey - a service for info, support, and resource for caregivers of Alzheimer’s, stroke, Parkinson’s and other chronic physical or cognitive conditions.
Sections for legal help and advocacy, government programs, service for family caregivers, and resources on living arrangements for care recipients.

To visit FCA simply follow this link.

Help us connect with others. Please share this episode on Facebook or Twitter, and if you leave a rating or a review about the podcast on iTunes, Stitcher Radio, or Spotify it helps others connect with our resources and information.

Heartbeat, Episode 107, Bereavement Care Guidelines Resource

Fri, 21 Sep 2018 07:00:00 +0000

One of the most important aspects of hospice is the bereavement care that's provided following the patient's death. NHPCO has published a new resource to assist bereavement care professionals.

The Guidelines for Bereavement Care “include information on assessment, scope of service, community collaboration, education and competency, an annotated bibliography, a professional competency assessment, and more." The cost is only $36 for non-members, $18 for NHPCO members. Follow this link to learn more.

For more resources about hospice, self care, advanced care planning, and professional development resources, visit our website at www.theheartofhospice.com.

Don't forget that we also have a Facebook page, and you can follow us on Twitter and Instagram.

Heartbeart, Episode 106, National Caregiving Conference 2018

Fri, 14 Sep 2018 07:00:00 +0000

The National Caregiving Conference is created by caregivers for caregivers. NCC18 will be in Chicago on November 8-11, and hundreds of caregivers will attend in person, and hundreds more will attend virtually. Learn more about it in this episode.

If you're a personal or professional caregiver, we highly recommend that you consider attending NCC18. This conference will be filled with useful and valuable content that will encourage you, inspire you, and give you practical resources to improve your caregiving experience.

For more information visit the NCC18 website at www.caregiving.com/NCC18.

Helen and Jerry will be presenters at NCC18, and we invite you to be a part of this event, either in person or virtually. To learn more about us, visit our web pages at www.theheartofhospice.com/meet.

Heartbeat, Episode 105, Self Care Inventory

Fri, 07 Sep 2018 07:00:00 +0000

School is beginning and that signals the start of the race towards the end of the year, and that creates greater challenges for our self care. In this episode Jerry and Helen get honest about their good and bad self care habits.

We also encourage you to do 2 things, take an inventory of your self care habits, and make a plan to practice healthy self care for the rest of the year. Without a plan self care will only happen when we hit bottom. Our advice is to be proactive by creating healthy self care habits that will sustain you, day in and day out.

For more self care tips and resources, visit our website at www.theheartofhospice.com.

If you connect with us on Facebook, Twitter, and Instagram you'll receive encouragement, resources and reminders about self care from us on a regular basis. Just search for The Heart of Hospice, and like, follow, and share.

Heartbeat, Episode 104, Everyone's Grief is Unique

Fri, 31 Aug 2018 07:00:00 +0000

Everyone's grief is as unique and individual as our fingerprints. In this episode the discussion centers around the need for us to accept the way others grieve, even though it may be very different from our own.

Grief responses are often determined by the person's role in the family: spouse, child, sibling, parent, etc.

It can also be affected by the type of relationship (close, estranged, distant, etc.) between the person who died and the person who's grieving.

There are many other factors that can influence the way a person grieves, including

personality types
birth order
caregiving roles
coping skills
lifestyle choices
expectations
previous grief experiences

Here are links to resources mentioned in this episode:

www.dailycaring.com
www.aftertalk.com
www.centerforloss.com

To learn more, please visit our website at www.theheartofhospice.com for more resources about hospice, caregiving, self care, and advance care planning.

If you have questions or comments, please email us at host@theheartofhospice.com We look forward to hearing from you.

Heartbeat, Episode 103, Unique Grief Needs of Military Veterans

Fri, 24 Aug 2018 07:00:00 +0000

1 out of 4 hospice patients in the U.S. are military veterans, and these veterans have very unique grief responses. Hospice professionals can provide specialized bereavement care for the men and women who protect our country.

In this episode, we discuss the unique concerns of military veterans and their grief that's often complicated by PTSD or survivor's guilt. Those who serve military veterans also face a unique set of challenges, and may be affected by Secondary Traumatic Stress Disorder (STSD).

Resources mentioned in this episode:

www.wehonorveterans.org
www.cms.gov

To learn more, please visit our website at www.theheartofhospice.com for resources about hospice, caregiving, advance care planning, and self care for personal and professional caregivers.

If you have questions or comments, please email us at host@theheartofhospice.com, and you'll receive a personal response.

Heartbeat, Episode 102, Unique Grief Needs of Older Adults

Fri, 17 Aug 2018 07:00:00 +0000

Complicated grief occurs more often in people between the ages of 75-84, and there's a higher risk of depression, anxiety and suicide among this population as well. In this episode we discuss the unique grief needs of the elderly.

As a person ages their grief can become challenging for several reasons.

An accumulated grief due to the loss of siblings, friends, and significant others in their lives
Loss of a lifelong partner that they've lived with for 50-60 years or more.
Learning new roles after death of spouse.

Here are links to the resources mentioned in this episode:

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3822663/
www.caregiver.org

To learn more about bereavement care, hospice, caregiving, and self care, visit our website at www.theheartofhospice.com. Please follow us on Facebook, Twitter, and Instagram for current updates. You can also write to us at host@theheartofhospice.com to ask questions, or share your hospice journey. We promise to give you a personal reply.

Heartbeat, Episode 101, Bereavement Care in Hospice

Fri, 10 Aug 2018 07:00:00 +0000

Bereavement care is actually one of the primary services provided by hospice. In this episode we discuss when bereavement care begins, and the way that grief care is often provided by hospice caregivers.

Grief counseling will often use the 5 stages of grief taught by Elizabeth Kubler-Ross.

Denial
Anger
Bargaining
Depression
Acceptance

Here are links to the resources mentioned in this episode:

www.ekrfoundation.org
www.grief.com

Learn more about grief care on our website at www.theheartofhospice.com and please follow us on Facebook, Twitter and Instagram to stay up to date on current news about hospice.

We would encourage you to write to us at host@theheartofhospice.com to ask questions, or to share your hospice journey. We promise to send you a personal reply.

Heartbeat, Episode 100, 100th Episode Celebration

Fri, 03 Aug 2018 07:00:00 +0000

Today we celebrate the 100th episode of our weekly podcast. In this episode we take a look back, a look forward, and we ask for your help in creating new content.

The weekly podcast also has a new name. This is the premiere episode of Heartbeat, a weekly audio magazine from The Heart of Hospice. We designed Heartbeat to give you small doses of helpful resources, share current hospice trends, and provide tips to enrich your self care.

If you have ideas or suggestions for content, or want to share helpful resources that you’ve found, please write to us at host@theheartofhospice.com. We would love to hear from our “Hospice Hearts” colleagues.

To learn more about hospice, caregiving, self care, and advance care planning, visit our website at www.theheartofhospice.com. We also publish a weekly blog that provides you with information you can use, and encouragement for your journey.

Fulfilling Musical Last Wishes with Christine Albert, Episode 041

Mon, 15 Jul 2019 07:00:00 +0000

Music has a special place in the hearts of patients with a terminal illness. The musicians at Swan Songs create unforgettable memories for those patients and their families by offering private concerts featuring the patients’ favorite music genres.

Founder Christine Albert shares the journey that brought her to start Swan Songs in central Texas. This non-profit organization is powered by professional musicians who share their time and talents with people nearing the end of life. You can find out more about Swan Songs and support their work by visiting swansongs.org.

Jethro Heiko and Nick Jehlen on Communicating With Vulnerability, Episode 040

Mon, 01 Jul 2019 07:00:00 +0000

Jethro Heiko and Nick Jehlen are the co-founders of Common Practice and the creators of the “Hello” game, a game designed to facilitate meaningful conversations that “inspire, connect, and heal.”

In today’s episode, Jethro and Nick share how the “Hello” game was designed and created, and the many ways it’s transformed families, teams, workgroups, even entire organizations and communities. These transformations take place through the power of honest and open communication, facilitated by questions that allow people to be vulnerable in an accepting and encouraging environment.

Jethro and NIck share that the game has had some unexpected results, too. The purpose of the game is to help people share openly about their end of life wishes, but it’s also created unity among people and groups that have been divided.

Listen to this episode to learn more about the “Hello” game, and for more information you can visit the Common Practice website to see videos about how to play “Hello” and reviews from real people who have experienced their own personal transformations.

For more information about hospice, caregiving resources, self care tips, and advance care planning resources, please visit our website at The Heart of Hospice. You can also find encouragement and information in our weekly blog that’s updated every Sunday.

Don’t forget to subscribe to the podcast wherever you listen: Apple, Spotify, iHeart, Google Play, or Radio.com.

Mamma: In the Meantime, A Conversation with Tony Luciani, Episode 039

Sat, 15 Jun 2019 07:00:00 +0000

Our guest Tony Luciani was an artist and painter before he became a caregiver for his mother after her diagnosis with dementia. Using creative and unorthodox methods, Tony found ways to engage his mamma in life. They shared the new experience of learning photography together, and Mamma found ways of expressing herself in captivating images.

Tony shares the story of his journey in caregiving with us, and tells us about his epic walk to raise funds for Alzheimer’s research and awareness. His TED talk is a moving portrayal of a son’s devotion to his parent. Watch Tony’s talk at TED.com.

If you would like to sponsor Tony's Walk to Remember, you can donate online at this link for the Alzheimer's Society.

How to Save Yourself From Burnout with Dr. Clark Gaither, Episode 037

Wed, 15 May 2019 07:00:00 +0000

Burnout is a very serious condition that needs to be effectively managed before it creates severe problems for the person suffering from burnout. In this episode Dr. Clark Gaither tells how you can save yourself from burnout and live a life of passion and purpose.

Dr. Gaither is a board-certified family physician in North Carolina, who suffered a major burnout event after 23 years of practicing medicine. Since that time he's specialized in helping other healthcare practitioners learn what causes burnout, and the ways to alleviate the effects of burnout.

In this podcast Dr. Gaither shares his own personal experiences, and talks about how a person can go from burned out to having a feeling of passion and purpose.

You can learn more about Dr. Gaither at his website, ClarkGaither.com. Dr. Gaither includes the information from this episode in his book, Reignite: Transform From Burned Out to On Fire and Find New Meaning in Your Career and Life.

Visit The Heart of Hospice website to learn more about hospice, caregiving, self care tips, and advance care planning resources.

A Hospice Caregiver's Perspective with Jahnna Beecham, Episode 036

Wed, 01 May 2019 07:00:00 +0000

Being a personal caregiver for a terminally ill patient on hospice can be one of the most difficult roles and one of the most rewarding ones, too. Jahnna Beecham, co-author of Living with Dying, tells us about her experiences as a personal caregiver for her mom and dad.

Jahnna shares her raw and honest emotions of what she was experiencing before, during, and after her parents received hospice. She also talks about what she learned from the experience of having both of her parents on hospice, and what hospice professionals can do to improve their caregiving skills.

You can read more about Jahnna and her co-author, Katie Ortlip at their website LivingWithDying.com.

To learn more about hospice, and to find resources about caregiving, advance care planning, and self care, please visit The Heart of Hospice website. Don't forget that we share a weekly blog with you every Sunday. You can read it here.

Death Doula Sarah Kerr on the Healing Power of Rituals, Episode 035

Mon, 15 Apr 2019 07:00:00 +0000

Sarah Kerr is a death doula and ritual healing practitioner. She uses the healing power of rituals to bring comfort and peace to those who are left to grieve following a death. In this episode you will learn more about her work as a death doula, and the rituals and practices she uses during the death and dying process.

During our interview Sarah shares her journey of becoming a death doula, and her personal philosophy about the way we approach death in Western culture.

“Death is hard, but it doesn’t have to be as hard as we make it in Western culture.” --Sarah Kerr

To learn more about Sarah, you can visit her website at Soul Passages. She also has a Facebook page and an Instagram page where she shares training and educational videos about the work of a death doula and healing rituals.

Visit our website at The Heart of Hospice to learn more about hospice, caregiving resources, advance care planning, and self care tips for personal and professional caregivers.

Understanding the Role of the Hospice Nurse Practitioner with Tiffany Hughes, Episode 034

Mon, 01 Apr 2019 07:00:00 +0000

The role of the nurse practitioner in hospice has expanded over the past several years, and the outcome has been an improvement in the overall quality of patient care. In this episode we sit down with hospice nurse practitioner Tiffany Hughes to learn more about the real life work of a hospice NP.

In 2011, the U.S. Medicare system began requiring that all hospice patients in the third or later hospice benefit period receive a face to face encounter with a hospice physician or nurse practitioner. This expanded the role of the NP in the hospice system. Tiffany explains the many ways that the NP helps serve hospice patients and their families beyond the face to face encounter.

To learn more about hospice, professional and personal caregiving, self care, and advance care planning, visit The Heart of Hospice website. Be sure and read our weekly blog for more information regarding hospice and end of life care.

Pallimed Editor Lizzy Miles on Death Cafe and Social Work, Episode 033

Fri, 01 Mar 2019 08:00:00 +0000

Lizzy Miles shares how she began the first Death Cafe in America in Episode 33, and the natural progression of her work in hospice from volunteer to social worker to Pallimed editor.

The name of Lizzy Miles will be familiar to anyone who has ever attended a Death Cafe. In the introduction that's read by the facilitator at every Death Cafe, Lizzy is given credit as the person who started the first Death Cafe in America. Lizzy tells us more about her story in this interview, and also how she became involved with hospice and eventually became a writer and editor for the Pallimed website and blog.

To read Lizzy's blog, visit the Pallimed website at this link. Please visit The Heart of Hospice website here, to learn more about hospice, caregiving, self care, and advance care planning.

Barbara Karnes Talks About Reluctance to Refer and Pet Death, Episode 032

Fri, 01 Feb 2019 08:00:00 +0000

Barbara Karnes was one of our first guests on the podcast, and she returns as our very first guest to have a second interview. Barbara Karnes is a hospice pioneer who wrote “the little blue book” called, Gone From My Sight. In this episode she shares how a referral to hospice can be a win/win. We also talk about her newest book about coping with a pet’s death, A Place in My Heart.

To read Barbara’s thoughts about a reluctance to refer to hospice, visit her blog page here, and to learn more about her books and DVD’s, visit her website at BKBooks.com.

Our website has resources about hospice, caregiving, self care, advance care planning, and more. Visit our website to learn more.

The Value of Humor in Difficult Times with Tom Batiuk, Episode 031

Tue, 01 Jan 2019 08:00:00 +0000

We had the opportunity to talk with Tom Batiuk, creator of the Funky Winkerbean comic strip, about how humor can have a positive affect on the mind, body, and spirit, even during difficult and stressful times. Listen to our interview for more about Tom's personal story, and about how humor can play a positive role in our lives.

Tom began drawing Funky over 45 years ago when he was still a middle school teacher in Ohio. Funky Winkerbean is published in over 400 newspapers across the U.S. During those years he's had the opportunity to use his influence to address some difficult societal issues with humor and wit. He also created a character in Funky's story line who was diagnosed with breast cancer. Her name was Lisa. Lisa's story has made a positive impact for many people, as she modeled the use of humor to alleviate the effects of disease, and the side effects of aggressive, prolonged treatments.

In 2007, the Lisa's Legacy Fund was started to raise funds for cancer research and education. To learn more about Lisa's Legacy Fund, you can follow this link here.

A new book about Lisa's story has recently been released called Lisa's Legacy Trilogy. This box set includes the complete story of Lisa's life as it unfolded in the pages of Funky Winkerbean.

For more information please visit our website at www.theheartofhospice.com, or find us on Facebook, Twitter, and Instagram.

The Value of Music in Hospice with Music Therapist Kati Wettstein, Episode 030

Sat, 01 Dec 2018 08:00:00 +0000

“Music acts like a magic key, to which the most tightly closed heart opens," said Maria von Trapp. In this month's full-length episode we replay our interview with music therapist Kati Wettstein, as she talks about the power of music to open hearts.

This was a favorite episode of many of our listeners, and we decided to release it again for our new listeners who may not have heard it before, and for those who love to hear Kati's stories about her patients.

To learn more about hospice, caregiving, self care and advance care planning, please visit our website at www.theheartofhospice.com. To connect with Helen & Jerry, send us an email to host@theheartofhospice.com.

How to Overcome Compassion Fatigue in the Helping Professions, Episode 029

Thu, 01 Nov 2018 07:00:00 +0000

Compassion fatigue is a reality for anyone who works in the helping professions: healthcare professionals, first responders, counselors, pastors, teachers, funeral industry workers, etc. Helen & Jerry discuss the effects of compassion fatigue, and ways you can overcome it.

What is compassion fatigue? Definition-the physical and mental exhaustion and emotional withdrawal experienced by those who care for sick or traumatized people over an extended period of time. Compassion fatigue comes from taking on another person's emotional burden.

Know the signs & symptoms of compassion fatigue:

depression,
insomnia,
fatigue,
heightened emotions,
detachment,
health problems,
poor social/personal relationships,
addictive behaviors,
apathy/disconnection vs overengagement,
“Superman Syndrome”.

Ways to overcome compassion fatigue:

self awareness,
accountability partner,
journaling,
meditation,
healthy socializing,
bio reaction awareness,
good nutrition,
sleep hygiene,
exercise,
debriefing/counseling,
personal & team rituals (remembrance services, attending funerals, lighting candles).

To learn more about self care visit our website at The Heart of Hospice.

How to Create a Digital Legacy with Sue Kemple - Episode 028

Mon, 01 Oct 2018 07:00:00 +0000

Sue Kemple is the CEO of a digital legacy creation service called My Last Soundtrack. They provide a way to create your own, or someone else's, digital legacy with music, photos, and recordings.

Have you ever been to a funeral or memorial and wondered who chose the music that was played? Because you knew the deceased wouldn't have chosen those songs. What if you could create a playlist that perfectly described your legacy and defined your life? What if you could add photographs and create a slideshow? What if a recording in your own voice could be added to your page?

My Last Soundtrack can provide you with the power to do all of that and more. Listen to this episode to learn more about My Last Soundtrack, and visit their website at this link for more information.

To learn more about hospice, caregiving, self care, and advance care planning, visit The Heart of Hospice website.

Episode 026, Interview with LPC Chuck Olliff on Grief Care

Sat, 01 Sep 2018 07:00:00 +0000

Licensed Professional Counselor (LPC) Chuck Olliff joins us on this episode to share his insights about grief and bereavement. Chuck specializes in grief and bereavement counseling and has been a facilitator for bereavement support groups for over 15 years.

During our interview with Chuck he shared,

losses that can cause grief,
the "phases" of grief and bereavement,
causes of complicated grief,
children's grief needs,
rebuilding self-esteem,
benefits of support groups,
how "carers" can help grievers,
accepting the "community shift" after a loss
"your measure of love is equal to your measure of grief"

If you'd like to know more about Chuck you can visit his website at www.chuckolliff.com.

Visit our website at www.theheartofhospice.com to learn more about hospice, caregiving, self care, and advance care planning. We invite questions and comments by email at host@theheartofhospice.com.

Episode 026, 2 Year Anniversary Episode

Wed, 01 Aug 2018 07:00:00 +0000

Today is August 1. Two years ago today the first 3 podcast episodes of The Heart of Hospice were published on iTunes. Back then we were asking our friends and family to listen to us, and telling everyone we knew that there was a new hospice podcast available.

Two years and 100 episodes later, and we're still just as excited to tell people about The Heart of Hospice projects.

In this episode Helen & Jerry review how the podcast was started, what inspired those humble attempts at hospice education, and the vision we have moving forward into our third year.

We also want to express our gratitude to so many people who have helped us along the way. People who have inspired us, encouraged us, and shared their own knowledge with us over and over again. Thank you from the bottom of our hearts.

Visit our brand new website at www.theheartofhospice.com. You'll discover a new format, new resources, and ways to connect with us, and with others who share your hospice journey. Don't forget to follow us on Facebook and Twitter, too.

Gratitude Moment of the Day #5

Sat, 04 Aug 2018 11:00:00 +0000

This week we're celebrating our 2nd anniversary. As part of the celebration Helen and Jerry are sharing some of their gratitude moments each day this week.

Today, Jerry offers his gratitude to the current leaders in the hospice industry. People like Edo Banach of the National Hospice & Palliative Care Organization, and Tracey Bleakley of HospiceUK, and hospice educator and author, Barbara Karnes.

Please take a moment to follow us on Facebook and Twitter so that you will see all of the new features coming to The Heart of Hospice.

Gratitude Moment of the Day #4

Thu, 02 Aug 2018 11:00:00 +0000

This week we're celebrating our 2nd anniversary. As part of the celebration Helen and Jerry are sharing some of their gratitude moments each day this week.

Today, Helen gives thanks for all of the millions of caregivers who deliver care to their loved ones. We hope that if you're a caregiver for someone you love, that you receive some encouragement from The Heart of Hospice.

Gratitude Moment of the Day #3

Tue, 31 Jul 2018 07:00:00 +0000

This week we're celebrating the 2nd anniversary of The Heart of Hospice. As part of the celebration Helen and Jerry are sharing some of their gratitude moments each day this week.

Today, Helen & Jerry shares their gratitude for everyone who listens to the podcast and reads our blog.

Be sure and listen each day this week for our gratitude moments with you. Take a moment and follow us on Facebook and Twitter so that you don't miss any of the new features that are coming to The Heart of Hospice.

Edo Banach

Fri, 03 Aug 2018 11:00:00 +0000

Edo Banach, president & CEO of NHPCO, talks about The Heart of Hospice.

Gratitude Moment of the Day #2

Mon, 30 Jul 2018 07:00:00 +0000

This week we're celebrating the 2nd anniversary of The Heart of Hospice. As part of the celebration Helen and Jerry are sharing some of their gratitude moments each day this week.

Today, Jerry shares his thankfulness for the pioneers of hospice, the ones who created the legacy that we now hold in our hands.

Listen each day this week as we share our gratitude moments with you. Please take a moment and follow us on Facebook and Twitter so you don't miss any of the new features that are arriving this week.

How to Start THE Conversation with Ellen Goodman, Special Episode 001

Mon, 24 Jun 2019 07:00:00 +0000

Ellen Goodman is a Pulitzer Prize winning columnist, an award-winning journalist, an author of 7 books, and the co-founder of The Conversation Project. She recently shared with The Heart of Hospice hosts her most personal story of being her mother’s caregiver, and how it inspired her to create The Conversation Project.

Ellen shared her story of being her mother’s caregiver and decision maker, and being uncertain of her mother’s wishes because they had never had THE conversation. “We talked about everything except one thing: how she wanted to live at the end of her life.” The goal of The Conversation Project is to help people facilitate THE conversation about their end of life wishes.

Our sincerest gratitude to Ellen Goodman for taking the time to sit down with us and share her wisdom, insights, and humor. To learn more about Ellen you can visit her website, EllenGoodman.com. To learn more about The Conversation Project and how they help people start their end of life conversations, please visit their website here.

For more information and resources about hospice, caregiving, self care, and advance care planning, please visit The Heart of Hospice website. You can also read our blog on the website, and find a fresh journal page that publishes every Sunday.

Barbara Karnes

Wed, 01 Aug 2018 11:00:00 +0000

Barbara Karnes talks about The Heart of Hospice.

Gratitude Moment of the Day #1

Sun, 29 Jul 2018 12:00:00 +0000

This week we're celebrating the 2nd anniversary of The Heart of Hospice. As part of the celebration Helen and Jerry are sharing some of their gratitude moments each day this week.

Today, Helen shares her gratefulness for all of the hospice colleagues she's had the privilege to work with.

Listen each day this week for a new gratitude moment.

New Content Coming in 2019 on The Heart of Hospice

Tue, 15 Jan 2019 11:56:43 +0000

Helen & Jerry took a break during the holidays; time for self care, family connection, and general R & R. On the HOH blog there were many featured writers who shared their thoughts and ideas with you, and the podcast featured some of your favorite episodes from the past as encore presentations.

The sabbatical is over now, and there's some fresh new content waiting to be published. A new interview with Barbara Karnes will arrive on Friday, February 1, and there will also be interviews with death doula, Sarah Kerr, hospice nurse practitioner, Tiffany Hughes, and Dr. Clark Gaither, aka Dr. Burnout. So stay tuned for all the new content coming your way in 2019.

Heartbeat Announcement from The Heart of Hospice

Mon, 27 Aug 2018 01:03:58 +0000

Heartbeat is the new weekly podcast episode from The Heart of Hospice. Heartbeat has taken the place of the Five for Friday.

There's a new format, that will include short segments of current hospice news, as well as a focus presentation on a specific subject of interest. Some things aren't going to change, however. Our dedication and mission to enhancing your hospice journey will never change.

Five for Friday, Episode 099, Discharged from Hospice Care. Now What?

Fri, 27 Jul 2018 07:00:00 +0000

There are occasions when a person will be discharged by a hospice agency for “failure to decline.” In this episode we explain the reasons why this can occur, and what the patient and family should expect.

“Failure to decline” or “extended prognosis” are the terms that are typically used to describe the reasons for discharging someone from hospice. Learn more about the reasons why this happens, how the patient and family can appeal the hospice’s decision, and what the hospice agency should do to assist in planning for the patient’s care after hospice.

Please visit www.theheartofhospice.com for more resources about hospice, caregiving, self care, and advance care planning.

Discharged from Hospice Care. Now What?

Five for Friday, Episode 098, Moving to Another Hospice Agency

Fri, 20 Jul 2018 07:00:00 +0000

There are times when a patient or family may want to change hospice providers. In this episode we explain the process to follow for that to occur.

Here are some things to remember:

The patient or family has the right to transfer from one hospice agency to another agency of their choice.
A transfer can occur one time in a benefit period (hospice agency is responsible for tracking this, and letting the patient/family know).
There are several reasons for transfers - dissatisfied with care, personal connection with someone at another agency, moving to an agency that has a freestanding inpatient unit.

To learn more about hospice visit our website at www.theheartofhospice.com for information and resources about hospice, caregiving, self care, and advance care planning.

Five for Friday, Episode 097, Leaving Hospice by Revocation

Fri, 13 Jul 2018 07:00:00 +0000

When a person elects hospice care it doesn't mean they have to remain on hospice. They can choose to revoke the hospice benefit for traditional, or aggressive treatment. In this episode we explain the reasons a person might choose to revoke hospice, and the process to make it happen.

Here's some things to remember:

A revocation is a discharge from hospice that’s initiated by the patient or family.
It's the patient’s right to revoke hospice care
“Revoking” of hospice benefit means to come off of hospice care, go back to traditional Medicare benefits (if Medicare is the insurance provider).

To learn more, visit the Heart of Hospice website, and to help others find the podcast, please leave a rating or a review at this link.

Five for Friday, Episode 096, Overview of a Death Event

Fri, 06 Jul 2018 07:00:00 +0000

In this Five for Friday episode we explain the process that normally takes place when a death occurs at home. It's our strong belief that education regarding the death & dying process can alleviate most of the fear and anxiety for patients and their families.

Here's a few things to know:

Hospice care does not ever accelerate or facilitate a patient’s death.
The hospice team will teach about the death & dying process, what to expect, symptom management, assist with funeral home arrangements, and provide grief support.

Learn more by visiting the Heart of Hospice website here. Please leave us a rating or a review at this link, to help others learn about the services provided by The Heart of Hospice podcast, website, and blog.

Five for Friday, Episode 095, Alzheimer's and Hospice

Fri, 29 Jun 2018 07:00:00 +0000

June is Alzheimer's Awareness Month, so we've talked about Alzheimer's Disease on our weekly Five for Friday episodes the last few weeks.

The typical trajectory for Alzheimer's Disease is around 8-10 years, which is why it's often called the "long goodbye." There are typically 3 phases to the disease trajectory: early stage, middle stage, and end stage. It's at the end stage when most people with Alzheimer's disease will need hospice care. Hospice care for an end stage Alzheimer's patient focuses on dignity and quality of life.

Learn what signs & symptoms are usually present when an Alzheimer's patient is at the end stage and can benefit from hospice care.

Visit our website at www.theheartofhospice.com for resources about hospice, caregiving, and self care. Please take a moment to write a review or give us a rating by clicking on this link. Thank you for helping others find The Heart of Hospice.

Five for Friday, Episode 094, Support for Alzheimer's Caregivers

Fri, 22 Jun 2018 07:00:00 +0000

There are currently 5.7 million Alzheimer's patients in the United States. All of these patients need caregivers, and half of all of the non-paid caregivers for all patients, are caring for an Alzheimer's patient. Of these caregivers 1/3 of them are over 65 years old, and 67% of them are women.

In this episode, we're talking about the high level of stress that's placed on a caregiver for an Alzheimer's patient. There's a special toll that this disease takes on caregivers. Learn more about things caregivers can do to lessen their stress, and delay burnout.

We encourage you to visit our website at www.theheartofhospice.com, and also visit the Alzheimer's Association website at www.alz.org.

Five for Friday, Episode 093, ALZ website review

Fri, 15 Jun 2018 07:00:00 +0000

June is Alzheimer's and Brain Awareness Month, and we want to share with you the best resource for anyone affected by Alzheimer's disease, whether you're a patient, a personal caregiver for someone with Alzheimer's, or a professional caregiver. The Alzheimer's Association website is filled with information and resources that can help you learn more about the disease. It also has ways for caregivers to connect with each other to build a strong support system.

In this episode we share all of the many ways that ALZ.org can provide you with up to date information, and resources for those who provide care for Alzheimer's patients.

To learn more, visit our website at www.theheartofhospice.com.

Five for Friday, Episode 091, Before I Die

Fri, 25 May 2018 07:00:00 +0000

We were recently introduced to a project that's sweeping city after city, all over the world. It's an art project, started by Candy Chang in New Orleans, called Before I Die.

After the death of very close friend, Chang was pushed by her grief to create this project on the wall of a dilapidated building in New Orleans. She painted the outside of the building with chalkboard paint and stenciled the words, "Before I Die I Want To _______," and let people share their wishes publicly.

There are now over 4,000 Before I Die walls in over 75 countries and 36 languages. To learn more about Before I Die, go to their website here.

Please leave us a rating or review by following this link. Every review that's written helps others to find the podcast, and allows us to serve more and more people.

Five for Friday, Episode 090, Death Over Dinner

Fri, 18 May 2018 07:00:00 +0000

"Let's have dinner, and talk about death." That's the invitation that Death Over Dinner is offering to people so that they can talk about a very important subject: death.

Helen & Jerry discuss the details of how Death Over Dinner helps to engage and empower people to talk about one of the most difficult conversations they need to have.

To learn more, visit www.deathoverdinner.org, and be sure and check out our website at www.theheartofhospice.com for more information about hospice, caregiving, self care, and advance care planning.

Please leave us a rating or a review by following this link. Just a few minutes will help others find the Heart of Hospice.

Five for Friday, Episode 088, National Nurses Week 2018

Fri, 04 May 2018 07:00:00 +0000

May 6-12 is National Nurses Week here in the U.S. and The Heart of Hospice wants to honor all of the hard-working, dedicated, and compassionate nurses who work in hospice. Hospice nurses have specialized training to provide quality care for those with life-limiting illnesses.

In this episode, our resident hospice nurse, Helen Bauer, explains the daily activities of a hospice nurse. Listen in, and learn more about what happens on a day to day basis for those who have chosen hospice care as a profession.

Will you do us a big favor? Go to this link, and leave us a rating and a review about the podcast. It will help us improve the services we provide, and help others to find the HOH. Thanks in advance.

For more information about hospice, caregiving, self care, and advance care planning, check out our website at www.theheartofhospice.com.

Five for Friday, Episode 087, Respite Care for the Caregiver

Fri, 27 Apr 2018 07:00:00 +0000

One of the unique services provided by hospice care is known as respite care. Helen & Jerry explain the purpose of respite care in this episode, and share the many ways that it benefits the caregiver and the patient.

Please leave us a rating or a review to help others discover the information provided by the Heart of Hospice. Follow this link to share your review.

To learn more about the respite benefit, as well as other resources about hospice, caregiving, and self care, please visit our website at www.theheartofhospice.com.

Five for Friday, Episode 086, Providing Crisis Care in Hospice

Fri, 20 Apr 2018 07:00:00 +0000

Hospice, like most healthcare, has different levels of care that are provided, depending upon the need of the patient. There are 4 levels of care provided in hospice.

Routine home care (RHC)
General in patient (GIP)
Continuous care, or crisis care
Respite care

In this episode, Helen & Jerry share the levels of care that are offered when a patient is having a crisis that requires more direct care by the interdisciplinary team: GIP & continuous care, or crisis care.

To learn more, please visit our website at www.theheartofhospice.com, or follow us on Facebook and Twitter. Please leave a rating or a review by going to this link. Your review will help others discover the resources we provide at the Heart of Hospice.

Five for Friday, Episode 085, The "What Matters Most" Letter Project

Fri, 13 Apr 2018 07:00:00 +0000

National Healthcare Decisions Day is Monday, April 16. At the Heart of Hospice we encourage everyone to share their healthcare decisions with the significant people in their lives. Over the past year we've shared several resources that can help make having the conversation easier, and even enjoyable.

In this episode, we share another resource that will help you communicate to your doctor, and your loved ones, about your healthcare wishes. It's called the "What Matters Most" Letter Project. To learn more about the Letter Project, go to the Stanford University Medical website here.

Please leave us a rating or a review about the Heart of Hospice podcast by following this link: http://getpodcast.reviews/id/1139992713.

Five for Friday, Episode 084, Introducing the "Hello" Game

Fri, 06 Apr 2018 07:00:00 +0000

National Healthcare Decisions Day is on Monday, April 16. The purpose of NHDD is to encourage people to have conversations with friends and loved ones about advance care planning. It's a day to remind us about the importance of advance care planning.

These conversations aren't always easy to have, but they're very important, and can be very meaningful, too. In this episode, we share with you one of the tools that can help make those conversations easier. It's a game called "Hello."

"Hello" was designed by Jethro Heiko, and Nick Jehlan to promote conversations about end of life wishes, and advance care planning. The game is fun, insightful, and can inspire many good conversations among friends, or even strangers.

To learn more about "Hello", visit the website of CommonPractice.com, and learn more about how the game was developed, and how you can purchase the game for yourself.

We would love for you to give our podcast a rating or review. Please follow this link to our review page.

Five for Friday, Episode 083, Self Care Check In

Fri, 30 Mar 2018 07:00:00 +0000

Did you make any New Year's Resolutions about self care? The first quarter of the year is almost over, so it's time for a self care check in. In this episode, Helen and Jerry share their own personal self care stories for 2018--the best and the worst.

The purpose for the self care check in is to remind all of us how important self care is to our health--body, mind and spirit. So how are you doing on your self care journey so far in 2018? It's never too late to make a new start.

Send us an email at host@theheartofhospice.com to receive some personal encouragement for your self care program. Learn more self care tips on our website at www.theheartofhospice.com.

Five for Friday, Episode 082, Ethical Issues with guest Katie Ortlip SW

Fri, 23 Mar 2018 07:00:00 +0000

Social workers are on the front lines when it comes to being advocates for their patients, and that includes being involved in ethical issues that concern their patients and the families who love them. In this episode Katie Ortlip SW, discusses various ethical issues that are affecting hospice patients, including physician aid in dying, and patients who are voluntarily stopping eating and drinking (VSED).

To learn more, listen to this episode, and also visit our website at www.theheartofhospice.com for information about hospice, caregiving, and self care.

Five for Friday, Episode 081, Bereavement Care with guest Katie Ortlip SW

Fri, 16 Mar 2018 07:00:00 +0000

In this episode, Social worker Katie Ortlip describes the many ways she provides bereavement care to families when a loved one is on hospice. Bereavement care begins when a patient is admitted to hospice, Katie says.

Learn more about the many bereavement care programs provided by hospice professionals in this episode. Visit our website at www.theheartofhospice.com to learn more about hospice, caregiving, and self care.

You can contact us at host@theheartofhospice.com and tell us about your hospice journey, or to ask us questions about hospice.

Five for Friday, Episode 080, Long Term Care Placement with Katie Ortlip, SW

Fri, 09 Mar 2018 08:00:00 +0000

Welcome back to National Social Worker Month. This week we continue our discussion with social worker Katie Ortlip as the discussion turns to long term care placement. At times a patient may need more care than what can be provided in a private home setting. When that occurs, the social worker may need to provide help in finding a different living environment.

In this episode, Katie explains some of the reasons why a patient may need long term placement, and the options that are available. To learn more, visit our website at www.theheartofhospice.com. Don't forget to visit our Facebook page, and follow us on Twitter, too. You can also send us an email at host@theheartofhospice.com.

Five for Friday, Episode 078, Hospice at Home

Fri, 23 Feb 2018 08:00:00 +0000

Hospice provides 4 different levels of care for patients.

1. Routine Home Care, or hospice at home
2. General Inpatient, or GIP.
3. Continuous Care, or Crisis Care.
4. Respite Care.

In this 5 for Friday, Helen & Jerry discuss the services that are provided for patients who receive Routine Home Care.

To learn more, visit our website at www.theheartofhospice.com, or follow us on Facebook and Twitter.

Five for Friday, Episode 077, Hospice Admission Process

Fri, 16 Feb 2018 08:00:00 +0000

Our mission at The Heart of Hospice is to educate about hospice, and enhance the end of life journey for hospice patients, and their families and caregivers. To help our listeners learn more about hospice, we're providing short, but detailed episodes regarding the various aspects of the hospice experience.

In this episode Helen & Jerry discuss the process that a patient will go through when they're admitted onto a hospice service. Knowing the basic process that occurs will hopefully relieve some of the anxiety about a hospice admission.

To learn more, please visit our website at www.theheartofhospice.com.

Hospice Admission Process

Five for Friday, Episode 076, Barbara Karnes Resources (BK Books)

Fri, 09 Feb 2018 08:00:00 +0000

At the Heart of Hospice we're always looking for great resources that help educate and encourage. One of the best websites for end of life education is bkbooks.com. BK Books is the website of Barbara Karnes, RN. Barbara has written many books, including the classic end of life guide, Gone From My Sight.

Not only does bkbooks.com have books for sale, there are blogs written by Barbara that covers a wide range of end of life topics. There are also several podcasts featuring Barbara, including our very own episode featuring Barbara. So visit BKbooks.com.

Five for Friday, Episode 075, When Breath Becomes Air book review

Fri, 02 Feb 2018 08:00:00 +0000

There are many excellent books that have been written about end of life, but there are few written by a doctor about his own death. When Breath Becomes Air by Paul Kalanithi, is an extraordinary description of the end of life journey of a gifted neurosurgeon.

We highly recommend this book to end of life caregivers to help understand the mental, emotional, and spiritual concerns that are faced by terminally ill patients. Kalanithi writes very openly and honestly about his feelings and his struggles.

You can find more information about this book on Amazon, or at your local bookstores.

Visit our website at www.theheartofhospice.com for resources and information about hospice, caregiving, and self care.

Five for Friday, Episode 074, Benefits of Humor on the Spirit

Fri, 26 Jan 2018 08:00:00 +0000

In this episode Helen & Jerry continue discussing the positive affects of humor for self care. Previous episodes discussed the affects of humor on the mind and the body.

This episode focuses on humor's affect on the spirit.

Lowers stress
Dissolves anger
Unites people during difficult times
Helps us gain perspective by laughing at ourselves
Helps us connect with others and avoid being lonely

Listen to our 2 previous episodes #072 & #073 on humor's affect on the mind and body. For more information, please visit our website at www.theheartofhospice.com, or visit our Facebook page, or follow us on Twitter. To receive regular updates, please subscribe to our podcast on your favorite podcast app. We're on iTunes, Stitcher, and Google Play.

Five for Friday, Episode 072, Benefits of Humor on the Mind

Fri, 12 Jan 2018 08:00:00 +0000

Your body cannot heal without play.
Your mind cannot heal without laughter.
Your soul cannot heal without joy.
-- Catherine Rippenger Fenwick

Through the month of January Helen & Jerry will be discussing the benefits of humor for the mind, body, and spirit. Humor should be a part of a everyone's healthy self care program, simply for the benefits it provides.

In this 5 for Friday Helen & Jerry discuss the benefits of humor and laughter for the mind. Did you know that on average children laugh approximately 300 times a day, while adults only laugh approximately 17 times a day. It's no wonder so many adults are feeling stressed and burned out.

There are some great things about laughter.

Laughter is contagious.
Laughing burns calories. It's often called internal jogging.
Laughter is cross-cultural. You don't even have to speak the same language to enjoy a laugh together.

The are many positive benefits of humor for the mind.

Regulates cortisol and epinephrine, which are stress hormones.
It boosts your immune system
Increases endorphins, which reduce pain and provide feelings of pleasure.
Effects dopamine levels that regulate mood, motivation, and learning.

So for your own benefit, laugh a little more!

Five for Friday, Episode 071, Best & Worst Self Care for 2017

Fri, 05 Jan 2018 08:00:00 +0000

What was your 2017 like?

In this episode Helen & Jerry share their self care successes and blunders for 2017. It's the 2017 version of our best/worst self care stories. Listen to our stories and be inspired.

We'd love to hear your self care stories. Send us an email at host@theheartofhospice.com, or post to our Facebook page at www.facebook.com/theheartofhospice, and share how you did in 2017.

Did you reach your goals?
Did you maintain your self care habits?
Who was your self care accountability partner?
What was your greatest challenge?

You're worth and value to the people you serve are too great for you not to take care of yourself. Make 2018 the year you practice consistent, healthy self care. Let us know how we can help you make that a reality.

Visit our website for more information and resources about self care at www.theheartofhospice.com.

Five for Friday, Episode 070, 2017 Year in Review

Fri, 29 Dec 2017 08:00:00 +0000

2017 Year in Review

In this 5 for Friday episode, Helen & Jerry take a look back at the year of 2017, and a look ahead into the new year of 2018.

Despite the challenges of 2017, there were many moments that deserve to be remembered and recognized. Listen as we share The Heart of Hospice highlights for 2017.

Be sure and visit our website at www.theheartofhospice.com for blog and podcast updates. The blog is updated every Sunday, a new 5 minute podcast episode is published every week on Friday, and a new full-length podcast episode comes out on the first of every month.

Five for Friday, Episode 068, Balanced Self Care

Fri, 15 Dec 2017 08:00:00 +0000

For self care to be effective it needs to be balanced. Self care should include body, mind, and spirit. Each one affects the others, and neglect of one can negatively affect the others.

In the Thanks & Giving campaign, the balance between thanks (gratitude) and giving (generosity), helps to maintain a healthy balance in our self care program.

In this episode, Helen & Jerry discuss the need for balance in our self care regimen.

For more information about self care, be sure and visit our website at www.theheartofhospice.com for resources and tips on healthy self care.

Five for Friday, Episode 067, Generosity as Holiday Self Care

Tue, 05 Dec 2017 12:03:06 +0000

The holiday season can be difficult for personal caregivers, as well as professional caregivers. Maintaining a self care program is difficult enough, but when you add in the expectations of the holidays, it becomes almost impossible.

The HOH Thanks & Giving Holiday Self Care Campaign is designed to encourage your self care, and to keep you motivated with short daily inspirational emails. We focus on gratitude (thanks) and generosity (giving) as 2 areas that can provide balanced self care.

Last week we talked about gratitude, and on this 5 for Friday we talk about generosity. Generosity doesn't have to cost money. Sometimes all it costs you is a smile.

Do something to make someone else's day a little better.
Give someone a sincere compliment.
Buy someone a cup of coffee.
Do the dishes for your partner.
Share a funny story to make someone laugh.

There's millions of ways to be generous, and not all of them cost money. Make generosity part of your self care by focusing on others.

For more information, visit our website at www.theheartofhospice.com.

Five for Friday, Episode 066, Gratitude as Holiday Self Care

Fri, 01 Dec 2017 11:00:00 +0000

As part of the Thanks & Giving Self Care Campaign, this Five for Friday focuses on the power of gratitude to provide self care.

Researchers have concluded that writing down 3 things you're thankful for every day for 21 days can actually re-wire your brain to be more positive. During the busy holiday season it's more difficult to practice self care. Gratitude is an easy, but powerful practice that can make the holiday season more pleasant.

We've started the Thanks & Giving Campaign because we want to encourage self care that's meaningful and purposeful. If you'd like to participate in this self care campaign, check out our website at www.theheartofhospice.com

On the website you can sign up to receive daily emails that will encourage you and inspire you to practice healthy self care during the holidays. Specifically, practices of gratitude and generosity.

Five for Friday, Episode 065, Holiday Self Care Campaign Launch

Fri, 24 Nov 2017 08:00:00 +0000

Holiday Self Care Campaign Launch

Today we're going to start our Holiday Self Care Campaign, "Thanks & Giving".

The holidays always add another layer of stress and busyness to our lives, so it becomes more important than ever to practice intentional self care.

Gratitude (thanks) and generosity (giving) are twin components of a balanced self care lifestyle that can help us move through the holidays with strength and purpose.

To help guide our holiday self care, we're creating a focus group that will take this self care journey together.

Here's how it works.

The purpose of the campaign is to provide self care that,

Doesn't require a huge time commitment.
Doesn't require any monetary investment.
Provides rewards and benefits to us, and those around us.

Here's all you need to get started:

A small notebook or journal. (You probably have one somewhere in a desk drawer.)
A pen or pencil. (Again, look in the desk drawer.)
A few minutes a day to journal your thanks & giving.

For more detailed information to join our focus group, click the link to visit our Thanks & Giving webpage.

Five for Friday, Episode 064, Delaying Hospice

Fri, 17 Nov 2017 08:00:00 +0000

Everyone who works in hospice has heard the comment, "I wish we hadn't waiting so long to call hospice." Or "I wish we had known about hospice sooner."

There are many variations of those comments, but they basically communicate how much better it might have been for the patient and family if hospice had been involved sooner in the disease process.

In this week's Five for Friday, Helen and Jerry share the reasons why hospice is delayed by doctors, patients, and family members, and also the reasons why not delaying hospice could improve the outcome for patients. Not delaying hospice could mean better quality of life, and in some cases, could mean an increase in the patient's life span. Studies have shown that patients who choose hospice and palliative care, rather than aggressive care, live up to 2.7 months longer.

Listen to this week's episode to learn more about why hospice shouldn't be delayed.

For more information about hospice, caregiving, and self care, visit our website at www.theheartofhospice.com. If you follow us on Facebook or Twitter you will receive updates when there's a new podcast or blog.

Five for Friday, Episode 063, Veterans Day 2017

Fri, 10 Nov 2017 08:00:00 +0000

Veterans Day 2017

In this Five for Friday episode, Helen & Jerry share the work that many hospices are doing across the United States, to honor the military veterans on hospice. NHPCO began a program several years ago called "We Honor Veterans." The purpose of this program is to care for and honor those who have served when they reach the end of life.

On this Veterans Day, 2017, The Heart of Hospice offers our thanks and appreciation to the military veterans who have served our country, whether in peace-time or in conflict.

For more information about "We Honor Veterans" please visit their website at www.wehonorveterans.org. The Heart of Hospice website has many resources regarding hospice, caregiving, and self care. You can find our website at www.theheartofhospice.com

Please leave a review or a rating on iTunes, and please share this episode on Facebook and Twitter. Just a few seconds of your time can aid others in finding helpful information about hospice care that can improve their quality of life.

Five for Friday, Episode 062, National Hospice & Palliative Care Month

Fri, 03 Nov 2017 07:00:00 +0000

November is National Hospice & Palliative Care Month, and the theme for this year is "It's about how you live."

At The Heart of Hospice we are always encouraging people to remember that hospice isn't about dying, but about living. This special recognition of hospice & palliative care is to remind everyone what hospice care is really all about it.

* It's not a place, but a philosophy of care.

* It's about comfort care when people need it the most.

* It's receiving care through services that are right for each person.

* It's about planning ahead and making healthcare decisions early.

For more information about National Hospice & Palliative Care Month, please visit www.caringinfo.org or visit our website at www.theheartofhospice.com.

Five for Friday, Episode 061, Lauren's List

Mon, 02 Oct 2017 10:51:27 +0000

By the time Lauren Sampson was 7 years old, she had been hospitalized more than 50 times. She endured the typical healthcare treatments and procedures. On top of all of that, she also faced the daily visits from healthcare professionals who didn't always use good manners. They would often enter her room without knocking, begin probing before telling her who they were, and what they were going to do.

With help from her mom, Sally, and the child life specialist from the hospital, they drafted a list of requests that was taped to her door, so that anyone who entered would read it. The list requested 4 things.

Please knock on my door.
Please introduce yourself.
Please explain why you are here.
Please tell me if something might hurt.

Simple, right?

Lauren's list has become the standard at many hospitals. It should be the standard that all healthcare professionals practice with every patient. Including those on hospice. Too often, professionals think only about the job they have to do, and forget that they're working with a flesh and blood human, with feelings and emotions. These are people, not patients.

For more information about Lauren's List, please visit this YouTube page: Lauren's List video

Visit our website and blog at www.theheartofhospice.com for more information and resources about hospice, caregiving and self care. Be sure and like our Facebook page, and follow us on Twitter to receive updates.

Five for Friday, Episode 060, American Pharmacist Month

Fri, 20 Oct 2017 07:00:00 +0000

October is American Pharmacist Month. Pharmacists serve a very important role for the hospice industry. They are critical in allowing hospices to provide the comfort care that's at the heart of the hospice mission.

In this episode, Helen & Jerry discuss the work that pharmacists do in managing medicines for the care of hospice patients. They also help hospice agencies provide optimum care while still managing costs.

For pharmacists who may be interested, there's a Society of Palliative Care Pharmacists that offers resources for pharmacists in the area of palliative care. Their website is at www.palliativepharmacist.org.

To all of the pharmacists who serve hospice and palliative care patients, the Heart of Hospice would like to say thank you for your professionalism and dedication.

Five for Friday, Episode 059, 365 Caregiving Tips Book

Fri, 13 Oct 2017 07:00:00 +0000

Wouldn't it be great if there was a book that could help caregivers thrive, and not just survive? There is one!

Our friends at 365 Caregiving Tips have just published a new book called, 365 Caregiving Tips: Hospitals, Care Facilities and Hospice. This book was written by the team of writers at 365caregivingtips.com. They're more than just a team, though, they're a group of friends who have personally experienced what it's like to be a caregiver. 365 Caregiving Tips is made up of 5 different authors who live in different parts of the United States. Pegi Foulkrod, Gincy Heins, Trish Hughes Kreis, Richard Kreis, and Kathy Lowrey make up this group of authors for this book.

If you're a caregiver for a person with chronic or terminal illness, this book is a great resource for you. It's not a book that you will just sit down and read from beginning to end, but something you will use as a resource for those moments when you need some advice about a specific problem or concern. They've covered just about everything you might face as a caregiver, with practical tips that will make your caregiving experience easier and more enjoyable.

Visit their website at www.365caregivingtips.com for more information, and to purchase their new book.

Visit our website at www.theheartofhospice.com for resources about hospice, caregiving, and self care. We publish a blog every week on Sunday, and a new podcast each Friday. Send us an email to host@theheartofhospice.com if you have a suggestion, comment or question.

Five for Friday, Episode 058, Hospice Care Week in UK

Fri, 06 Oct 2017 12:51:11 +0000

October 9-16 is Hospice Care Week in the United Kingdom, and we wanted to honor and recognize our hospice colleagues in Great Britain for the tremendous work that they do in end of life care.

The modern hospice movement was begun in Great Britain through the work of Dame Cicely Saunders in the 1950's. Through her passion and efforts, St. Christopher's Hospice was founded in 1967, and they celebrate their 50th anniversary this year.

For more information about the tremendous work that's being done through the leadership of HospiceUK, please visit their website at www.hospiceuk.org. You will also find more information about Hospice Care Week on their website.

Our sincere thanks and gratitude to Tracey Bleakley (CEO) and the member organizations of HospiceUK. Congratulations on another great year.

Five for Friday, Episode 057, Living With Dying book

Fri, 29 Sep 2017 07:00:00 +0000

One of the best, and most comprehensive books we have ever read on the subject of caregiving has just recently been released. Living With Dying is written by 2 friends who have extensive experience as hospice caregivers.

Jahnna Beecham & Katie Ortlip wrote this book after Jahnna served as her dad's personal caregiver while he was on hospice. Katie, a hospice social worker, was part of the care team who took care of Jahnna's dad. During this time they determined there was a great need for a book to help caregivers navigate the emotional and spiritual journey of caregiving.

What you will learn in this book:

Have the conversation
Navigate the emotional and spiritual journey
Give the best care possible
Control pain
Address symptoms
Work with hospice
Care for yourself!
Get your loved one's affairs in order
Understand the dying process
Go on living after the loss.

For more information, visit their website at www.livingwithdying.com, or visit our website at www.theheartofhospice.com

Don't forget to follow us on Facebook and Twitter.

Five for Friday, Episode 056, MyDirectives app

Fri, 22 Sep 2017 07:00:00 +0000

As hospice professionals, we believe very strongly in 2 things:

1) Empowering people to create advance directives regarding their health care.

2) Using smartphone apps.

Ok, so #2 is not really something we believe in that strongly. However, this 5 for Friday podcast shares an incredible smartphone app that can help empower people to create advance directives regarding their health care decisions.

MyDirectives is an app that allows anyone to create an advance directive on their iPhone (not available on Android devices) that will communicate their health care wishes for them if they're unable to communicate for themselves.

An advance directive can be created using the app, by selecting from a list of options provided, or you can simply write your own. It also allows you to record your own video! This gives healthcare professionals and first-responders the information they need to provide the care that you want when you're unable to communicate.

For more information, please visit their website at mydirectives.com. Or visit the Apple store on your iPhone or iPad.

(There is no affiliation between MyDirectives and The Heart of Hospice).

Visit the Heart of Hospice website to read the weekly blog, and find resources about hospice care, self care, and caregiving tips. Click here to visit our website at TheHeartOfHospice.com

Five for Friday, Episode 055, NHPCO podcast

Fri, 15 Sep 2017 07:00:00 +0000

The National Hospice and Palliative Care Organization (NHPCO) is a non-profit advocacy group based in Alexandria, Virginia. Their mission is to be advocates for terminally ill patients and their families, as well as providing education and training for those who serve terminally ill patients.

In this episode, Helen and Jerry discuss the NHPCO's newest educational venue, the NHPCO podcast. NHPCO began publishing a podcast in October, 2016 to provide information about pertinent issues that hospices are facing today. Jon Radulovic is the host, and along with Judi Lund Person, and Jennifer Kennedy, they share information about regulatory, compliance and quality topics.

The Heart of Hospice recommends the NHPCO podcast to hospice providers, no matter what your discipline or position. The information provided through the NHPCO podcast can be invaluable for improving the care given to patients, families and staff.

You can listen to the NHPCO podcast on iTunes, Stitcher, and Google Play Music, or follow this link to the NHPCO podcast website. https://www.nhpco.org/regulatory/nhpco-podcast

Visit The Heart of Hospice website,
www.theheartofhospice.com for more resources and information, and to read our blog. A new blog is published every Sunday. You can also connect with us on Facebook and Twitter.

Five for Friday, Episode 054, Hospice Compare

Fri, 08 Sep 2017 07:00:00 +0000

Hospice Compare is a new online resource provided by Medicare.gov that can assist you in making an informed decision when you're needing to choose a hospice provider.

The information listed on the website is based on surveys that are submitted electronically to Medicare from people whose loved ones have actually received services, as well as information that the hospice agency provides. For each agency listed, you can find information on Patient Preferences, and Managing and Treating Symptoms.

Always remember that you have the right to choose the agency that’s going to be a good fit for you, or your loved one.

You can visit the Hospice Compare website by following this link, https://www.medicare.gov/hospicecompare/#

Five for Friday, Episode 053, Self Care Success Stories

Fri, 25 Aug 2017 07:00:00 +0000

The first half of 2017 has come and gone, and now the calendar says it's almost time for school to start again. Where did the time go? It's time to do a "reset" on our self care, and Helen and Jerry discuss a way to do that in this episode of Five for Friday.

One of the best ways to stay motivated with a goal, any goal, is to remember your successes. So lets share our self care success stories with each other. Maybe your success story is what you consider a "small" success; maybe you quit drinking sodas for a month, or you set a goal to practice yoga 3 times a week. Great! Tell us about that. Or maybe your success is one you consider a "big" success; maybe you've lost 40 pounds since the beginning of the year. Terrific! Write to us and tell us about it.

Our goal is to encourage each other by letting you hear the success stories of our family of listeners. We hope that it will encourage you to keep doing what's working for you, or to set a new goal for yourself.

Send us an email and let us know about your self care success story at host@theheartofhospice.com

It would be our privilege to encourage all of our listeners to become better self care practitioners. We care about you, whether you're a personal caregiver for a loved one, or a professional hospice provider caring for many patients. Your success is our success.

Visit our website at www.theheartofhospice.com or find us on Facebook and Twitter, and be sure to subscribe to our podcast. Share this episode with your friends on Facebook or Twitter, if this has been helpful to you.

Five for Friday, Episode 052, Top Regrets of the Dying

Fri, 18 Aug 2017 07:00:00 +0000

In 2011, Bronnie Ware, a palliative care nurse, published a book based on the comments of the dying patients that she served, called The Top Five Regrets of the Dying. In her book she details the 5 reasons.

In this episode, Helen & Jerry share those 5 regrets and encourages the listener to live a life of no regrets. Most of us will come to the end of our lives, not with regrets about what we did, but regrets about what we didn't do.

Here are the top 5 regrets as listed by Bronnie Ware.

1. I wish I'd had the courage to live a life true to myself, not the life others expected of me.

2. I wish I hadn't worked so hard.

3. I wish I'd had the courage to express my feelings.

4. I wish I had stayed in touch with my friends.

5. I wish that I had let myself be happier.

Five for Friday, Episode 051, Self Care After Work

Fri, 11 Aug 2017 07:00:00 +0000

Whether it's been a difficult day or an amazing day, self care after work should still be an important part of your daily routine. Helen & Jerry share some strategies to make self care a daily priority.

How do you keep from taking your work home with you? It's easy for hospice professionals to do that when you're passionate about your work. Burnout, compassion fatigue, and harmed family relationships can take it's toll when you take your work home with you.

It's easy to put off taking care of yourself by rationalizing that it's been a hard day and you don't feel like following your self care plan. Or you can rationalize after a good day that you don't need to follow your self care plan. So when are you going to follow your self care plan? Make a commitment to follow it every day.

Here's some strategies to make self care a priority after work.

1. Take off your "work" clothes, and put on your "personal" clothing.

2. Wash off the day. Take a shower or a bath.

3. If you mentally review your day (who doesn't), give yourself a time limit. Don't review your day through the rest of the evening.

4. Turn off your work phone. If you're not on call, you shouldn't be answering your work phone.

Create some self-imposed boundaries to encourage your own self care. There are many rewards when you practice healthy self care.

Five for Friday, Episode 050, Self Care on the Road

Fri, 04 Aug 2017 07:00:00 +0000

Hospice professionals spend many hours on the road, traveling from patient to patient, often with little time to take care of their own personal needs. In this episode, Helen & Jerry discuss the importance of practicing self care when you're on the road, including some recommendations for healthy self care.

For more information about self care, visit our website at www.theheartofhospice.com/self-care-resources

If this podcast has been helpful to you, please share it with your friends on Facebook and Twitter.

Episode 024, Interview with Edo Banach of NHPCO

Fri, 01 Jun 2018 07:00:00 +0000

When Edo Banach became the president and CEO of the National Hospice & Palliative Care Organization (NHPCO) in 2017, he began touring the country and visiting with hospice providers so that he could learn from them what's good about hospice, and what needs to change.

We had the privilege of spending some time with Edo, and listening to him share his thoughts on what hospice is doing right here in America, and what are some of the things that needs to change so that hospice can provide even better care for those with life-limiting illnesses.

In this episode you will also hear about the unusual thing that Edo does for self care. Be sure and listen all the way to the end of the episode.

To learn more about NHPCO, simply visit their website. They also have a podcast, hosted by our friend Jon Radulovic, with Jennifer Kennedy and Judi Lund Person providing information about hospice regulatory and compliance matters.

Visit the Heart of Hospice website to read our weekly blog, and to discover resources about hospice, caregiving, self care, and advance care planning.

Episode 023, Interview with Music Therapist Kati Wettstein

Tue, 01 May 2018 07:00:00 +0000

Kati Wettstein is a board certified music therapist, and has worked in hospice for over 6 years. During that time she has experienced the joy of providing music for many patients, and she shares many of her stories of how music helped to transform the end of life journey for these patients.

We had the opportunity to sit down with Kati to learn more about the power of music therapy to provide comfort and meaning for the hospice patient, and their family, too.

To learn more, check our website at www.theheartofhospice.com. Please follow this link to leave us a rating or a review.

Episode 021, Interview with Katie Ortlip, Hospice Social Worker

Thu, 01 Mar 2018 08:00:00 +0000

March is National Social Worker Month. Social Workers are leaders, advocates, and champions who serve people when they're in need of help. Hospice social workers are some of the best.

To celebrate National Social Worker Month, Helen & Jerry talked with their friend, Katie Ortlip. Katie has been a hospice social worker in Oregon at the same hospice agency for over 25 years. She shares her wealth of experience with us in this episode, and also brings some insight into the work that she does in hospice.

Along with her friend, Jahnna Beecham, Katie co-authored the book Living With Dying, which is a comprehensive guide for caregivers of terminally ill patients.

Katie will also be our guest on our 5 for Friday episodes during the month of March, helping us learn more about the services that are provided by hospice social workers. Be sure and listen to our March episodes to learn more from Katie.

To learn more about hospice, caregiving, and self care, visit our website at www.theheartofhospice.com. Don't forget to follow us on Facebook and Twitter so you can receive up to date information about hospice, and announcements of new blogs, and new podcast episodes.

Episode 020, Interview with Tom Batiuk of Funky Winkerbean

Thu, 01 Feb 2018 08:00:00 +0000

Tom Batiuk is the creative mind behind the comic strip "Funky Winkerbean." Tom began drawing Funky over 45 years ago when he was still a middle school teacher in Ohio. Funky Winkerbean is published in over 400 newspapers across the U.S.

Helen & Jerry had the opportunity to talk with Tom recently about how humor can have a positive affect on the mind, body, and spirit, even during difficult and stressful times.

Tom created a character in Funky's story line who was diagnosed with breast cancer. Her name was Lisa. Tom used her story for many good purposes, including the use of humor for self care to alleviate the effects of disease, and the side effects of aggressive, prolonged treatments.

In 2007, the Lisa's Legacy Fund was started to raise funds for cancer research and education. To learn more about Lisa's Legacy Fund, go here.

A new book about Lisa's story has recently been released called Lisa's Legacy Trilogy. This box set includes the complete story of Lisa's life as it unfolded in the pages of Funky Winkerbean.

Listen to our interview for more about Tom's personal story, and about how humor can play a positive role in our lives.

For more information please visit our website at www.theheartofhospice.com, or find us on Facebook, Twitter, and Instagram.

Episode 019, Interview with Jon Braddock

Mon, 01 Jan 2018 08:00:00 +0000

Jon & Michelle Braddock were faced with an almost insurmountable challenge when Michelle's father passed away unexpectedly at home on Labor Day, 2013. For the next 10 months they tried to piece together all of his investment accounts, safe deposits boxes, insurance policies, online accounts, etc.

It was during this time that they envisioned a better way to prepare for that moment when death occurs. Jon & Michelle created a program called My Life and Wishes that helps survivors easily discover where every important document, file, password, and account is stored, and be able to retrieve the information from one location.

Jon shares their story in this podcast episode, and will make you laugh as he challenges you to consider if you've "thoughtfully prepared" so that your family doesn't feel unnecessary stress and grief. For more information, please visit their website at www.mylifeandwishes.com

Jon has also written a book called, Click Here When I Die, that describes in detail what steps need to be taken to put your personal affairs in order before it's too late. You can purchase it here on Amazon.

Jon offers a free guide "10 Things You Need to Know" on his website at www.jonathanbraddock.com.

Be sure and visit our website at www.theheartofhospice.com and follow us on Facebook, Twitter, and Instagram.

Interview with Jon Braddock of My Life and Wishes

Episode 017 - Interview with Jon Radulovic of NHPCO

Wed, 01 Nov 2017 07:00:00 +0000

November is National Hospice & Palliative Care Month in the United States. The theme for 2017 is "It's about how you live."

To recognize the significance of hospice & palliative care we had the opportunity to interview Jon Radulovic, VP of Communication from the National Hospice & Palliative Care Organization. Jon has worked with hospice organizations for over 20 years, and he shared his observations of the changes that have taken place during those years, and the opportunities that are still ahead.

Jon's personal story of how he came to work in the hospice industry is unique, and yet there are many who will relate to his belief that "if someone had told me I would end up working on behalf of hospice, I would have told you there's no possible way that can happen."

For more information about NHPCO, please visit their website at www.nhpco.org, and to read more about the National Hospice & Palliative Care Month, you can visit www.caringinfo.org.

Our website has information and resources about hospice, caregiving and self care at www.theheartofhospice.com. Be sure and follow us on Facebook and Twitter so that you can receive our regular updates.

Episode 016 - Helen's Personal Hospice Story

Sun, 01 Oct 2017 07:00:00 +0000

As hospice professionals, we often feel like we know what it's like for the family who has a loved one on hospice. Until we've actually had that experience we may not really understand what they're going through.

In today's episode, Helen shares a personal story of taking care of a family friend who had named her as her Medical Power of Attorney. Helen shares some of the lessons she learned from this experience, and how it has changed her perspective on caring for the families of hospice patients.

When this episode was recorded Helen's friend was still alive, but still on hospice. However, during Hurricane Harvey, her friend began to decline, and then died on September 2.

For more information about hospice, caregiving, and self care, visit our website at www.theheartofhospice.com. Be sure to follow us on Facebook and Twitter also, to be one of the first to receive updates when our blog and podcasts are published.

Special Episode 06, Interview with Martha Jo Atkins

Tue, 05 Dec 2017 12:01:17 +0000

ABODE Contemplative Care for the Dying is a unique home in San Antonio, Texas, that provides care for up to 3 guests who are in the last few months of life.

This special episode reveals the amazing work that's being done at ABODE, as we interview their executive director, Martha Jo Atkins.

Hearing Martha Jo describe the service that’s being provided by all the staff and volunteers at Abode was incredible. We were blown away by her stories of the compassionate care they provide, and the unique ways the staff cares for each of the guests. Abode Contemplative Care for the Dying is more than just a place that takes care of 3 people at a time - it reaches out into the community at large in so many ways.

If your Hospice Heart is led to give generously, we encourage you to check out Abode’s website, and their Facebook page. Read about the work that’s being done there. You can give to Abode in memory or in honor of someone special just by going to their Donate page.

Edo Banach preview 2

Sun, 27 May 2018 22:47:48 +0000

NHPCO CEO & president, Edo Banach, shares his thoughts on changes that are ahead for the hospice industry. This 1 minute preview is from the complete interview to be published on Friday, June 1.

Like and follow us on Facebook and Twitter to be notified when the full interview is available. The podcast is always available on Apple Podcast, Stitcher Radio, Spotify, iHeart Radio, and Google Play Music.

Special Episode 2 - Hurricane Harvey Edition

Fri, 01 Sep 2017 07:00:00 +0000

This is our Hurricane Harvey Special Edition Episode. Due to the impacts of Hurricane Harvey, Helen and Jerry were unable to record this episode in the usual place and manner. Instead, Helen was at her mother's home in Houston providing caregiver assistance to her mom, and Jerry was at his home near Beaumont. The episode was recorded using Skype and a microphone, since they weren't in the same location.

Harvey has wrought terrible destruction and devastation all along the Gulf Coast from Rockport, Texas to Louisiana. Thousands have been displaced from their homes, including those in nursing facilities and hospitals.

In the midst of Harvey's wrath, Helen and Jerry decided to discuss some of the personal impacts that have occurred due to the hurricane. First, how do you practice self care when nothing feels normal? The Hurricane Harvey edition of best and worst self care.
Second, how do you manage the isolation that naturally occurs when you're a caregiver for a terminally ill patient? There are several negative effects of isolation on the personal and professional caregiver. Helen & Jerry also share their ideas on how to avoid isolation while serving as a caregiver.

If you've benefitted from this episode, please take a moment to share it with your friends on Facebook and Twitter. You can also subscribe to our podcast on iTunes and Stitcher Radio. Follow us on Facebook and Twitter for regular updates about our podcast and blog. Our website has many resources you will find useful at www.theheartofhospice.com

Connection Moment Final Episode

Wed, 24 Jun 2020 07:00:00 +0000

Today Jerry and Helen thank all of the amazing hospice professionals who took time to partner with us for the Connection Moments campaign. If we had to summarize all the Connection Moments in just a few words, we’d use gratitude, hope, courage, and love. The pandemic won’t stop provision of quality care, given with compassion and respect. End of life teams will continue to serve patients and families all over the world. Your hospice journeys haven’t stopped. While the Connection Moments might be concluding, The Heart of Hospice podcast is still with you. Listen to our full length episodes on the 1st and 15th of every month, and check out a new Heartbeat episode every Friday. We’re walking this journey together with you, 24/7. Connect with us by sending an email to host@theheartofhospice.com. Needing a motivational speaker for your hospice company conference? We can help. Check out theheartofhospice.com to find out how we can support you, whether you’re a patient, family member, or a hospice professional. No matter where you are, your journey matters. You are The Heart of Hospice.

Connection Moment with End of LIfe Doula Denise Reed, Episode 22

Mon, 22 Jun 2020 07:00:00 +0000

Our friend Denise Reed shares her support and hope in today’s Connection Moment. As an end of life doula and hospice volunteer, Denise knows the special skills of hospice professionals were made for the stressful times. This season of unknowns is calling out every gift we have, requiring us to draw on our resiliency reserves. Denise reminds us that the courage and tenderness you share with your patients and their families is not forgotten. Your work with seriously ill patients is seen. We are grateful. You can find Denise’s services as an end of life doula at the Tranquil Transitions website (denisereeddoula.com). As she lovingly reminds us, look up and hope! The Heart of Hospice knows your hospice journey is 24/7, so you can always reach us with an email at host@theheartofhospice.com. Connect with Jerry and Helen at theheartofhospice.com to find resources or book one of them as a speaker for your hospice memorial service or conference. You are The Heart of Hospice!

Connection Moment with Judi Lund-Person of NHPCO, Episode 21

Sat, 20 Jun 2020 07:00:00 +0000

Judi Lund-Person hears the stories of hospice agencies from all over the country in her work with NHPCO. She wants those end of life professionals to feel supported by their leaders in the industry. As an advocate for the hospice industry working closely with CMS, Judi helps to ensure that agencies can bring compassion and quality to the work they do. In today’s Connection Moment, Judi voices her gratitude for the work that interdisciplinary teams are doing to care for seriously ill patients. You’ll find ways to connect with Judi and the resources that the National Hospice and Palliative Care Organization have to offer when you visit nhpco.org. There’s information on NHPCO member benefits, and resources for lay people as well. The Heart of Hospice is here to support you, too. You can connect with Jerry and Helen by sending an email to host@theheartofhospice.com. We’ll make sure you get a personal reply. Your hospice journey isn’t forgotten, even in the middle of a pandemic. We’re here to come alongside you, to encourage and support you. You’ll find us at theheartofhospice.com. No matter who you are, you are The Heart of Hospice.

Connection Moment with Helen Haddick RN, CHPN, Episode 20

Wed, 17 Jun 2020 07:00:00 +0000

Today’s Connection Moment features our wonderful friend, hospice nurse Helen Haddick. She shares a reminder for us to be compassionate not only with patients and families, but also with ourselves. It’s good to remember that everybody is facing his own challenges during this pandemic season. We all need to feel we’re safe. Treating each other with empathy will help us get through the added stress. We need to remember that everyone is just trying to do the best he can. Helen also writes from her heart on her website From Saving to Sending. You can read her blog at fromsavingtosending.com and follow her on Facebook. You can also find Helen’s podcast interview with the host of The Heart of Hospice on our podcast page. You’re not alone in your hospice journey. Whether you’re a hospice patient, caregiver, or professional, The Heart of Hospice is here to support you. You are The Heart of Hospice.

Connection Moment with Deanna Cochran, Episode 19

Mon, 15 Jun 2020 07:00:00 +0000

We’re feelin’ the feels with end of life doula Deanna Cochran. Her gratitude overflows in thankful tears in today’s Connection Moment. In her work as a trainer for end of life doulas and as the founder of the National End-of-Life Doula Alliance, Deanna is a leader in the hospice industry. As a hospice nurse, Deanna knows the responsibilities and pressures of being an end of life care provider. In her message today, Deanna urges us to grant grace to ourselves and others during this season of high stress. Everyone is learning how to manage the care of patients and families, along with care of themselves and their own loved ones. Just plan to be present, to show up for each other with encouragement and support. You can find more information on the training that Deanna provides for end of life doulas at Quality of Life Care. You’ll also find Deanna’s blog and podcast here on qualifyoflifecare.com. She has a true heart for hospice, not only for the patients but for the hospice professionals as well. You can find more resources about hospice, hospice philosophy, and how to navigate end of life care choices at theheartofhospice.com. Remember - your journey matters. You are The Heart of Hospice.

Five for Friday, episode 019

Fri, 30 Dec 2016 08:00:00 +0000

2017 is almost here. 2016 is about to become a memory.

As 2016 comes to an end we want to express how thankful we are for each of you. Thanks for listening to this podcast and thanks for sharing it with others.

In this episode Helen & Jerry reflect on the beginning of the Heart of Hospice, and share some of our plans for 2017.

Take a look at our website to discover more of our plans for 2017 at www.theheartofhospice.com

Connection Moment with Edo Banach of NHPCO, Ep.18

Sat, 13 Jun 2020 07:00:00 +0000

Edo Banach of NHPCO spends his days supporting hospice agencies in the U.S. Today he reminds us this season of uncertainty and isolation will pass, with better times ahead for the end of life industry. Edo believes hospice teams shine in times like this. We’re built for care of patients and families when grief and hurt seem overwhelming. He also acknowledges the post traumatic stress issues that healthcare workers are facing, and will continue to experience in the future. Hospice professionals know what that’s like - it’s what we do on a daily basis. Edo reminds end of life teams of their strengths, and encourages us to look past this time to a future when we’re all connected again. Your agency can become a member of the National Hospice and Palliative Care Organization to access their numerous resources. Just visit nhpco.org for membership information and current hospice news. You’ll also find resources there for patients and families to use. Need more information about hospice? The Heart of Hospice is here 24/7 to help. Visit our website at theheartofhospice.com. No matter who you are - hospice provider, patient, family member - we’re here to help. You are The Heart of Hospice.

Connection Moment with Lori LoCicero with The Death Deck, Episode 14

Wed, 03 Jun 2020 07:00:00 +0000

Lori Locicero, author and co-creator of The Death Deck has a personal hospice story. In today’s Connection Moment she says end of life professionals will never know how much their care and compassion means to families of seriously ill patients. Lori acknowledges that it’s a tough job, but please keep doing what you do! The guidance that hospice clinicians bring to a patient and family during a terminal illness is crucial. Having that connection, even if it’s remote, means the world to families and patients who are trying to figure out how to manage care at home. Lori reminds us all to have those all-important conversations about death and dying before there’s a crisis, keeping a sense of humor and an open mind. The Death Deck is the perfect tool to get those discussions started. You can get your own The Death Deck at thedeathdeck.com. You’ll find all our Connection Moment podcasts at theheartofhospice.com. If you need more resources for advance care planning or general information about hospice care, The Heart of Hospice is here to help 24/7. Send any questions to host@theheartofhospice.com. We’re happy to reply. No matter where you are in your hospice journey, you are The Heart of Hospice.

Episode 014 - First Anniversary Episode

Tue, 01 Aug 2017 07:00:00 +0000

Tuesday, August 1, marks the 1 year anniversary that The Heart of Hospice podcast has been in production. In honor of this milestone Helen and Jerry take time to reflect on the past year.

This mission we call The Heart of Hospice was created for the purpose of educating and enriching the lives of hospice patients, personal caregivers, and hospice professionals. In the past year we’ve discussed topics ranging from the history of hospice, to self care for the hospice professional.

When we began making our first podcast recordings in January, 2016, it was with some fear and trepidation that we embarked on this journey. Who are we to do something like this? Why would anyone want to listen to us? Do we have anything worth saying that people will want to listen to? Our first recordings were terrible. We laugh at ourselves now. Even then we were not satisfied with the sound quality, or the quality of the content. We kept moving forward, however, believing that with practice it would improve. Thankfully, it did. Our goal is to always be improving, growing, learning, and helping.

We published our first three episodes on August 1, 2016, and after the first year our listeners have downloaded over 11 thousand episodes. To all of you we simply, and gratefully say, thank you.

Connection Moment with Tiffany Hughes Hospice Nurse Practitioner, Episode 13

Mon, 01 Jun 2020 08:00:00 +0000

Hospice nurse practitioner Tiffany Hughes knows first hand what hospice teams are dealing with during the pandemic. In today’s Connection Moment, Tiffany acknowledges the difficulties that everyone is facing, both personally and professionally. Looking forward with gratitude and hope, Tiffany shares how beneficial it’s been to stay connected to her own hospice team members even if it’s done remotely. Her message contains a lot of warm laughter, and recognition of the need to vent our anxious feelings when things feel overwhelming. Subscribe to The Heart of Hospice podcast to hear all our Connection Moments, and find some encouragement when you need it the most. Visit the website at theheartofhospice.com to find resources that can link you with professional organizations for hospice professionals, information about hospice philosophy, and introductions to the hosts of The Heart of Hospice podcast. The Heart of Hospice is here for you, wherever you are in your hospice journey. You are The Heart of Hospice.

Connection Moment with Danny Mack, Episode 10

Mon, 25 May 2020 07:00:00 +0000

Danny Mack shares his humor and warmth in today’s Connection Moment. Danny’s work as a director of social workers and spiritual counselors, along with his personal journey, has taught him the value of remembering our “why”.

Every hospice professional has a “why”, the reason they continue to show up to care for seriously ill patients. Our “why” can help us to re-center and remember our purpose. It reminds us of the value and purpose of hospice work. In stressful times like the pandemic, it can be difficult to recall why we’re even doing this work. It’s ok to open about how we’re feeling.

Danny urges us to look past the superficial responses our coworkers tend to give. He even shares his musical talent with us, playing some Corona Virus Blues! You can find more about Danny, his philosophy, and book him to speak at your next event by visiting dannymackorg.

The Heart of Hospice is always here for you. Your journey matters and we want to walk alongside you. Find us at theheartofhospice.com. You are The Heart of Hospice.

Connection Moment with Jon Prescott of Wise Caregiving, Episode 09

Sat, 23 May 2020 07:00:00 +0000

Just hearing Zen Buddhist and board certified chaplain Jon Prescott’s voice is enough to reassure us in today’s Connection Moment. Jon partners with us as a return guest to encourage his hospice colleagues in their work during the pandemic.

He reminds us that we are enough to meet the challenges we’re currently experiencing. Recognizing the changes that are coming at us both in our personal lives and our professional roles, Jon invites hospice professionals to remember they have the skills to take care of all the needs of our seriously ill patients.

Trust yourselves. Remember the strength you bring to the care of your patients and families is what they need. Your strength is enough. It will be there when you need it. Connect with Jon on wisecaregiving.org to find his work and wisdom.

Remember you’re not alone. You can find us 24/7 at theheartofhospice.com. You are The Heart of Hospice.

Connection Moment with Dr. Carla Cheatham, Episode 08

Wed, 20 May 2020 07:00:00 +0000

Rev. Dr. Carla Cheatham is with us today to share her strength and encouragement. She reminds us to acknowledge the challenges of the current season, and how it’s affecting us.

It’s normal to be scared or anxious in this “abnormal” situation. What helps you to be resilient? Carla urges us to look for our strengths so we can be there for our patients and families. To keep those strengths available for quality care, self care is a must!

The self care that used to feel like a luxury is now mandatory to keep us at our best functioning. Showing up for your whole Self will help you to show up for patients in your care, and for your colleagues. Connect with Carla and her books at carlacheatham.com.

You can always find encouragement and support at theheartofhospice.com. Your journey matters. You are The Heart of Hospice.

Connection Moment with Jerry Fenter, Episode 07

Mon, 18 May 2020 07:00:00 +0000

Jerry encourages you with good words to lift your spirits with his message in today’s Connection Moment. Reminding you as always to stay connected in your relationships, Jerry urges you to remember that you have value. You’re important.

As a hospice professional, you provide crucial services to your patients and families. As an individual, you are a vital part of your family. Your journey matters. You are not forgotten.

Check out the The Heart of Hospice 24/7 to find support and resources, and listen to the podcast on Spotify, iHeart Radio, or Apple podcasts to get more information you can use. Reach out to us with questions by emailing host@theheartofhospice.com. We’d love to hear from you! Remember, you are The Heart of Hospice.

Connection Moment with Lisa Pahl of The Death Deck, Episode 05

Wed, 13 May 2020 07:00:00 +0000

Co-creator of The Death Deck Lisa Pahl is with us to share her thoughts on today’s Connection Moment. Lisa knows exactly what it’s like to be on the front lines of hospice as she works as a hospice and emergency room social worker.

As end of life professionals practice empathy in the care of their patients, they can accumulate pain through watching others’ suffering. In this season filled with change, interdisciplinary team members are balancing new responsibilities in an environment that feels uncertain.

Lisa reminds us that we can weather the change, and trust our instincts to provide smart, compassionate care. We are still advocates for our patients and families, despite the different rules and practices we have to follow. Be creative and put your heart - and hugs - into your words.

You can find The Death Deck at thedeathdeck.com. It’s a great tool for getting those tough end of life discussions started. Find more information and resources on end of life care at theheartofhospice.com. We’re here to share your hospice journey!

Connection Moment with Dr. Jessica Zitter, Episode 04

Mon, 11 May 2020 07:00:00 +0000

Dr. Jessica Zitter is an advocate and an activist for quality care of terminally ill patients. Trained at Harvard and UCSF, Dr. Zitter works in Critical Care and Palliative medicine. It’s an unusual pairing which has given her exceptional insight into how the dying are treated. She’s the author of Extreme Measures: Finding a Better Path to the End of Life, and her work is featured in the Academy and Emmy-nominated short documentary “Extremis,” available on Netflix. Dr. Zitter acknowledges that hospice “first responders” will respond with the dedication they always have, but the added stress from the pandemic will have lasting effects on us. She calls on end of life professionals to draw on their energy reserves to provide the best care to patients, and to practice self compassion. You can find Dr. Zitter’s work and her writing on jessicazitter.com. And remember The Heart of Hospice is here to support you 24/7. You’ll find us at theheartofhospice.com. You are not alone. Your journeys matters.

Connection Moments Inaugural Episode

Mon, 04 May 2020 07:00:00 +0000

To support end of life professionals in the U.S. and all over the world during the pandemic, we’re launching a new project - Connection Moments. They’re uplifting messages designed to combat the anxiety and stress you might be feeling. We’re going to be sharing messages to give you strength, to remind you of why you do this work. Every Monday, Wednesday and Saturday you’re going to hear from industry icons like Barbara Karnes, Dr. Jessica Zitter, NHPCO’s Jennifer Kennedy, and Gabby Jimenez from The Hospice Heart. To help get the message out to hospice professionals, please share Connection Moments at your IDT meetings or stand-up calls. Post them on your agency website or Facebook page, and be sure to tag your hospice colleagues. We want you to know you’re not alone. Just like you’re caring for your patients 24 hours a day, The Heart of Hospice is here to support you. Visit theheartofhospice.com to find our blogs and information about the self care that’s so vital to the work you’re doing. If you’ve got a story or a message for Jerry or Helen, send us an email at host@theheartofhospice.com. And remember...no matter who you are, or where you are in your hospice journey, You are The Heart of Hospice.

Episode 000 - Introduction to The Heart of Hospice

Sun, 31 Jul 2016 07:00:00 +0000

Welcome to the introductory episode of The Heart of Hospice. Helen & Jerry share the stories of their journey to becoming hospice professionals. They will also discuss the mission and vision of The Heart of Hospice, and what to expect on future episodes.

In this episode, The Heart of Hospice tip focuses on the website eHospice.com. To go directly to that page, click on this link.

We encourage you to contact us with any questions regarding hospice, or to tell us your hospice story. You can contact us on FaceBook at facebook.com/theheartofhospice on Twitter, @thehearthospice, or by traditional email at host@theheartofhospice.com

We look forward to hearing from you.

The Heart of Hospice Trailer

Sat, 25 Mar 2023 11:30:25 +0000

Welcome to The Heart of Hospice podcast!

Five for Friday, Episode 049 - Therapeutic Touch

Fri, 28 Jul 2017 07:00:00 +0000

In this 5 for Friday Helen & Jerry discuss the findings of a recent study regarding the power of "behavioral synchrony," and how touch between partners can actually diminish a patient's pain.

A recent study by research scientists at the University of Colorado Boulder discovered the role of touch in relation to pain relief. This study seemed to confirm what hospice providers have believed, that therapeutic touch has a way of relieving a patient's pain. The study revealed that when a patient's partner holds their hand, the "physiological synchronization" creates a connection that is an aid in reducing the patient's pain.

A summary of the study can be found at http://www.medicalnewstoday.com/articles/318093.php

For more information, please visit our website at www.theheartofhospice.com, or follow us on Facebook or Twitter for regular updates.

Five for Friday, Episode 048 - Sleep Hygiene

Fri, 21 Jul 2017 07:00:00 +0000

Statistics say that 35% of Americans report sleep quality of poor or only fair. So, more than a third of the country is sleep deprived. It's even worse for personal caregivers of terminally ill patients. Studies show that caregivers for a terminally ill patient have more difficulty sleeping. However, sleep improves after hospice is initiated.

The National Sleep Foundation (www.sleepfoundation.org) recommends 7-9 hours of sleep a night. How can we improve our sleep, or get more sleep? The NSF suggests that practicing good "sleep hygiene" can improve sleep. Here are some suggestions.

Maintain a sleep schedule.
Bedtime rituals. Lighting, sounds, etc.
Avoid naps, exercise daily
Avoid alcohol, and heavy meals, and caffeine
Avoid electronics. Laptops, iPads, tablets, phones.

For more information, visit our website at www.theheartofhospice.com, and follow us on Facebook and Twitter for regular updates.

Special Episode 001, Dealing With Personal Loss as a Hospice Professional

Sun, 16 Jul 2017 07:00:00 +0000

In January, 2014, Rhonda's daughter and son-in-law were murdered. As a hospice RN working as an admissions nurse, Rhonda was accustomed to seeing death and the grief that often followed. The death of her daughter was different, it was personal and tragic.

Rhonda worked with Helen & Jerry when this tragedy occurred. She recently sat down with them to share her story, and to talk about how she was able to continue working in hospice despite the overwhelming grief that followed this personal tragedy. Rhonda shares how her administrative team, her work family, and her personal faith, helped her survive her losses and continue to perform the work she loves.

Hospice professionals are regular people who also experience loss and grief. How they cope with their grief can determine how they use their own losses as a tool to help patients and families. It's our hope that this special episode will be helpful to many hospice professionals who have experienced their own personal losses.

Please contact us at host@theheartofhospice.com to share your stories with us, or to send us your comments and questions.

Five for Friday, Episode 047, Diversity in Hospice

Fri, 14 Jul 2017 07:00:00 +0000

In this week's Five for Friday episode, Helen tells a personal story related to a recent travel experience. It's all about the diversity that we find in our world. As hospice professionals we serve a diverse population. No 2 people are alike, and we're called upon to serve all of them. Are we prepared to do that?

For more resources on how to serve the diverse hospice population please visit these organizations:

NHPCO.org is the National Hospice & Palliative Care Organization in the U.S.

HospiceUK.org serve the hospice community in Great Britain.

Healthcarechaplaincy.org offers resources to help serve the diverse religious community.

Don't forget to visit our website at theheartofhospice.com, and also visit our Facebook page and Twitter feed. Just look for The Heart of Hospice.

Five for Friday, Episode 046, The Role of Nurse Practitioner

Fri, 07 Jul 2017 07:00:00 +0000

It takes an entire team to serve hospice patients and their families, besides the core team of doctors, nurses, social workers, spiritual counselors, and volunteer coordinators. There are also therapists who provide specialized care, but there's a very important person who fills a much needed role: the nurse practitioner.

The nurse practitioner provides skilled care that meets a need between what the nurse provides, and what the doctor provides. Listen to this episode to learn more about the role of the nurse practitioner, and how they work in hospice.

For more information about hospice, caregiving, and self care, please visit our website at www.theheartofhospice.com. Make sure to like us on Facebook, and follow us on Twitter to get updates about our blog and podcasts. If you haven't subscribed to the podcast on iTunes, be sure to do that so you can receive the newest episodes as they are published.

Episode 013 - Top 10 Things Not to Say

Sat, 01 Jul 2017 07:00:00 +0000

Professional hospice caregivers are people, too. Which means that even on our best days we make mistakes. With the best of intentions we sometimes say the wrong things.

Helen & Jerry share some of the embarrassing things they've said that led them to create a list of the Top 10 Things Hospice Professionals Should Never Say. This list is not comprehensive, and they're not in any particular order. With that in mind, here is the top 10 list of things not to say.

10. "There's nothing else we can do."

9. "Just do what we're telling you to do."

8. "This is normal."

7. "You don't need to worry about that."

6. Offering advice outside of your discipline.

5. "God will not give you more than you can bear."

4. Don't make promises you can't keep.

3. Learn to talk about death in ways that are clinically appropriate.

2. "It's all part of the process."

1. "I understand how you feel."

We've all said some of these things, but we should do our best to avoid them.

If you have some that you would like to add to the list, please email us at host@theheartofhospice.com. Visit our website at www.theheartofhospice.com, for more information about hospice. Follow us on Twitter, and like our Facebook page, also.

Five for Friday, Episode 045, Pet Therapy

Fri, 30 Jun 2017 07:00:00 +0000

There are many great advantages to pet therapy in the hospice setting.

1. Reduces a person's anxiety.

2. Lowers blood pressure.

3. Comforts agitation.

4. Eases depression.

5. Improves socialization.

6. Provides companionship.

7. Bereavement care.

There are many advantages to this complementary therapy that can improve the quality of life for hospice patients. For more information, visit our website at www.theheartofhospice.com.

Five for Friday, Episode 044 - Adjunct Therapies

Fri, 23 Jun 2017 07:00:00 +0000

Hospice care is holistic care. One of the core philosophies of hospice is to provide care for the whole person: physical, mental, emotional, and spiritual care. These are the core practices provided by hospice.

However, there are adjunct therapies that can be provided to enhance the hospice experience, and help improve quality of life for the patient and the family.

In this episode, Helen and Jerry share some complementary therapies that can be provided.

1. Music therapy

2. Pet therapy

3. Massage therapy

4. Yoga & Tai Chi

5. Aromatherapy

6. Guided imagery/meditation

The purpose of all of these therapies is to improve the quality of life of people on hospice. Always consider which one of these therapies might be beneficial for a specific patient.

Visit our website at www.theheartofhospice.com. Like us on Facebook, and follow us on Twitter for current updates. Our email address is host@theheartofhospice.com.

Five for Friday, Episode 043, Dame Cicely Saunders birthday

Fri, 16 Jun 2017 07:00:00 +0000

Dame Cicely Saunders was born on June 22, 1918 in the United Kingdom. She is best known for creating the modern hospice movement that now serves terminally ill patients all over the world.

She was trained as a nurse, but also became a medical social worker, and also a physician. Many of the hospice philosophies that are still followed today, were created by Cicely Saunders.

In this Five for Friday episode, we celebrate the birthday of this amazing woman, and the powerful legacy she created in hospice care. She created the principle of holistic care for terminally ill patients, believing that pain control encompasses physical, social, psychological, and spiritual needs.

For more about Cicely Saunders, visit our website at www.theheartofhospice.com, or listen to podcast #002 on The History of Hospice. Please like our Facebook page and Twitter account to receive regular updates about our blog and our podcast.

Five for Friday, Episode 042, Nursing Assistant Week

Fri, 09 Jun 2017 07:00:00 +0000

June 15-22 is National Nursing Assistants Week, and we at The Heart of Hospice want to honor and recognize those who are at the heart of caring for the hospice patient. Nursing Assistants, or Certified Nurse Assistants (CNA) are the ones that provide the most hands-on care for the patient.

A social worker once commented that if the social worker, or chaplain, or nurse didn't show up, no one would miss us. But if the CNA didn't show up, someone would be on the phone wanting to know where they were. CNA's are welcomed with open arms and often bond with the patient and family more than any other member of the team. They are in the patient's home more often than any other member of the hospice team.

In this episode, Helen & Jerry explain the many ways hospice CNA's provide such amazing care to the hospice patient. For more information about nursing assistants week, be sure and visit our website at www.theheartofhospice.com.

Five for Friday, Episode 041, Self Care Check In

Fri, 02 Jun 2017 12:47:13 +0000

5 months of the year are behind us, and June has just begun. It's time for a Self Care Check In. How are you doing with your self care? In February, The Heart of Hospice spent the entire month talking about practicing healthy self care. In this episode, Helen & Jerry do a self care check in, pulling back the curtains and letting you see how they're doing with self care--the best and worst.

Our hope is that you will take time to do a self care check in with us. How are you doing with self care? What do you need to improve? To look for some self care ideas, visit our website for more ideas at www.theheartofhospice.com/self-care-resources

Also be sure and like our Facebook page, and follow us on Twitter. Just search for The Heart of Hospice. You can share your story, or ask us questions at our email address, host@theheartofhospice.com.

Episode 012 - Hospice Connections

Thu, 01 Jun 2017 07:00:00 +0000

Hospice Connections

Five for Friday, Episode 040 We Honor Veterans

Fri, 26 May 2017 07:00:00 +0000

Monday, May 29 is Memorial Day in the United States. Memorial Day is to honor the brave soldiers who died to secure our freedom. It's a day to honor their sacrifices.

The Heart of Hospice would like to give recognition to those men and women who have served in our military. Statistics say that 1 out of 4 dying Americans is a veteran. We Honor Veterans is a program by the NHPCO that helps hospice organizations identify and recognize the many military veterans who use hospice services.

Helen & Jerry share the many services that the We Honor Veterans program offers. You can find more information at www.wehonorveterans.org, or check our website at www.theheartofhospice.com

Five for Friday, Episode 039, Hope in Hospice

Fri, 19 May 2017 07:00:00 +0000

Hope in Hospice

Five for Friday, Episode 038 National Nurses Week

Fri, 12 May 2017 07:00:00 +0000

Helen & Jerry give honor to all of the amazing nurses who work in hospice during National Nurses Week in the U.S.

Most hospice nurses will tell you that hospice is their calling. It’s where they find meaning and purpose. The field of nursing has many specialties, hospice being one of them. In this episode, Helen & Jerry share a few ways that hospice nurses fulfill a unique role.

They provide comfort care, not curative care.

They enter into the patient’s and family’s environment.

Although they work with a team of clinical and psychosocial professionals, they are often called upon to provide the emotional and spiritual support for the patient and family.

Our thanks to all the nurses who have chosen hospice as their calling. You are appreciated more than you know.

Follow us on our Facebook page and Twitter feed for more information and resources about hospice and ideas for the hospice professional. Follow our blog at our website, www.theheartofhospice.com/blog for insights and education.

Five for Friday, episode 037, The No Judgment Zone

Fri, 05 May 2017 07:00:00 +0000

In this Five for Friday episode, Helen & Jerry remind hospice professionals that we must always walk in the No Judgment Zone. That means we must respect the patient's right to choose where they live, how they live, who they live with, and the lifestyle they've chosen, among other things. It also means we must also respect their choice of where they want to die, and other advance care plans they may have made.

When a patient chooses hospice there are many people who suddenly have an opinion about whether it was the right thing to do, whether it's too early, too late, ad infinitum. Our role as hospice professionals is to empower the hospice patient to make their healthcare decisions based on their personal decisions.

For more information about how to empower your patient, read the blog on our website at www.theheartofhospice.com. We also have a Facebook page and a Twitter account to share information related to hospice. To share a comment, or ask us a question you can always write to us at host@theheartofhospice.com.

Episode 011 - Do Not Resuscitate Decision-making

Mon, 01 May 2017 07:00:00 +0000

This episode is the full length version of a shorter version that was broadcast on a recent Five for Friday, about the Do Not Resuscitate advance directive.

Helen & Jerry talk more extensively about the DNR for hospice patients in this episode. Do Not Resuscitate forms communicate a person’s wish that CPR not be initiated if the heart or breathing stops. It’s a major part of end of life care for many patients and their families, as well as the hospice professionals providing their care.

Other states have forms for use as DNR instructions. These documents are part of advance care planning that all terminally ill patients should consider.

Simple, right? One page. The title tells what it is.

But it’s so much more than just a form. It’s a life altering decision (literally). It’s a declaration that impacts not only the life of the hospice patient, but the lives of their families and caregivers as well. It’s up to hospice professionals to make sure that everyone involved understands what a DNR means. It’s also up to the hospice team to make sure that the wishes expressed in a DNR document are honored.

For more information about the DNR, please visit our website at www.theheartofhospice.com, and look under Advance Care Planning Resources. You can also send us an email for more information, or to ask a question in regard to advanced care planning. Our email address is host@theheartofhospice.com

Five for Friday, Episode 036

Fri, 28 Apr 2017 07:00:00 +0000

5 Wishes is a living will document published by a nonprofit agency called Aging with Dignity. It’s a simple document that asks five questions about what a person wants during a life-threatening illness. The questions cover medical care, but they also cover mental and spiritual issues as well.

Here’s what the 5 questions cover:

The person I want to make care decisions for me when I can’t
The kind of medical treatment I want or don’t want
How comfortable I want to be
How I want people to treat me
What I want my loved ones to know

Helen & Jerry cover the 5 Wishes tool, and how it can help guide people to make their end of life wishes known to the significant people in their life. Find out more about it at www.agingwithdignity.org

Be sure and look at our website for more advance planning resources. There's now a separate page for advance planning resources on The Heart of Hospice website.

Five for Friday, Episode 035

Fri, 21 Apr 2017 07:00:00 +0000

We have witnessed the pain and agony that families face when their loved one has not expressed, either verbally or in writing, what they wanted to happen should they no longer be able to communicate their wishes. Did they want to have a Do Not Resuscitate (DNR) order, or not? Who will be able to make their decisions for them when no one has a medical power of attorney? Would they want to die at home, or in a hospital? Without an advance directive, families often become divided. When you have not made your healthcare wishes known, preferably in writing, your family is often the ones that suffer the consequences.

The Conversation Project, the sponsoring organization for the National Healthcare Decisions Day, is an excellent resource to help make those decisions easier for everyone. In this episode Helen & Jerry share the resources that are available through The Conversation Project website. You can check it out at www.theconversationproject.org.

Another excellent organization that helps improve the quality of life for many children is the Make A Wish foundation. They and their staff of volunteers have a vision to help grant the wish of every child with a life-threatening medical condition. You can find out more about this excellent work at www.wish.org.

Five for Friday, Episode 034

Fri, 14 Apr 2017 07:00:00 +0000

This week Helen & Jerry consider the purpose of the Medical Power of Attorney (MPOA). The purpose of the MPOA is to designate someone to make your healthcare decisions for you in the event that you’re incapacitated, and unable to make those decisions yourself.

For more information about the MPOA, visit NHDD.org or CaringInfo.org. Both of these websites have information regarding how to select your healthcare agent.

Visit our website at www.theheartofhospice.com for more resources regarding end of life decisions.

Five for Friday, Episode 033

Fri, 07 Apr 2017 07:00:00 +0000

In this Five for Friday we discuss the purpose of a DNR. DNR means Do Not Resuscitate.

Do Not Resuscitate forms communicate a person’s wish that CPR not be initiated if the heart or breathing stops. It’s a major part of end of life care for many patients and their families, as well as the hospice professionals providing their care.

Other states and countries have forms for use as DNR instructions. These documents are part of advance care planning that all terminally ill patients should consider.

For more information about advance directives, please visit these websites:

NHDD.org - National Healthcare Decisions Day

TheConversationProject.org

GoWish.org - Go Wish cards are used to initiate end of life decision-making.

Episode 010 - Volunteer Work in Hospice

Sat, 01 Apr 2017 07:00:00 +0000

April is Volunteer Appreciation Month, and we're excited to feature one of our hospice colleagues, Lillie Boudreaux, who works as a volunteer coordinator. As a volunteer coordinator Lillie recruits, trains, and organizes the wonderful people who volunteer in hospice.

In this interview, Lillie tells us how she finds people to volunteer, the amount of hours that is required to train a volunteer, and the many jobs that volunteers perform inside hospice.

As you can imagine, the work that Lillie does as a volunteer coordinator can be long and arduous. So we asked Lillie what are her favorite healthy self care practices. She reveals her self care practices for mind, body and spirit.

From all of us at The Heart of Hospice, we say thank you to all of our wonderful volunteers, and to the volunteer coordinators who create the experiences that our patients and families cherish.

Visit our website to get more information about how to volunteer at www.theheartofhospice.com. Also visit out Facebook page and our Twitter account.

Five for Friday, Episode 031

Fri, 24 Mar 2017 07:00:00 +0000

Hospice professionals know the 5 things people say when they discover you work in hospice.

1. "I could never work in hospice."

2. "That must take a very special person."

3. "It must be really depressing work."

4. The "pity" look.

5. "Let me tell you my hospice story."

Hospice has a way of connecting people through a shared experience. Those who have had a family member on hospice feel free to tell their hospice story to those of us who work in hospice. And we love to hear their stories. It encourages us, and it reminds us why we do what we do.

This 5 for Friday is an excerpt from a full length episode that will be published later this year. Be sure and subscribe to the HOH podcast on iTunes or Stitcher so you won't miss an episode. You can also get more information by liking our Facebook page, and following us on Twitter.

Five for Friday, Episode 030

Fri, 17 Mar 2017 07:00:00 +0000

In this week's episode of Five for Friday, Helen & Jerry share some important information for families who are considering hospice for their loved one. When considering hospice it's important to remember that you (patient or caregiver or family) have a choice in which hospice agency will provide the care for you or your loved one.

But when is the best time to call hospice? And how do you go about choosing the best hospice? Helen & Jerry share several questions that you should ask before deciding which hospice provider is the best option for you.

Will you help us get The Heart of Hospice in front of the people who need to hear about hospice information? When you write a review on iTunes, or rate us on iTunes, it allows more people to find us, and gain access to the information we provide. Thanks for taking a few minutes to do this for us. Don't forget, you can also share our podcast on your Facebook page, or your Twitter account.

Five for Friday, episode 029

Fri, 10 Mar 2017 08:00:00 +0000

All hospices provide the same care, right? Not necessarily. When you or your loved one are in need of hospice services, it's good to know how to find a hospice agency that will provide the kind of care that meets your expectations.

In this episode of Five for Friday, Helen & Jerry share the important questions that need to be asked if you're shopping for a hospice. Not all hospice agencies provide the same kind of care. There are certain core services they are all required to provide, but there's a difference in the quality of care that they provide. So it's important to know what questions to ask beforehand.

Our website, www.theheartofhospice.com has many resources to assist you in finding information about hospice, whether you're a professional or personal caregiver. Look for our Facebook page, and also check our Twitter account for other resources.

If you're listening to us on iTunes, would you please take a moment to write a review. Your rating or review will make it easier for other people to find the information that's provided by The Heart of Hospice.

Five for Friday episode 028

Fri, 03 Mar 2017 08:00:00 +0000

In this Five for Friday, Helen and Jerry discuss the hospice terms that can be very confusing to patients and caregivers. Hospice professionals use these terms on a daily basis, and we often forget that patients/caregivers may not understand what they mean.

To help relieve some of the confusion, we put together this short episode to define and explain some of the terms most often used in hospice.

Our spotlight this week is the 50th anniversary of St. Christopher's Hospice in England. St. Christopher's Hospice was started by Dame Cicely Saunders in 1967 in London. This is where the modern hospice movement began. We also want to recognize the many hospice professionals in the UK who carry on the mission of hospice, including Tracey Bleakley, the CEO of HospiceUK; Julie Gorry, the CEO of Wirral Hospice; and Keelan Early, the volunteer coordinator at Claire House.

Don't forget to take a look at www.theheartofhospice.com for The Heart of Hospice blog, and resources that are provided there. Please do us a favor by writing a review, or rating this podcast on iTunes. Your review will help more people discover the information we share about hospice.

Episode 009 - Developing Healthy Self Care Habits

Wed, 01 Mar 2017 08:00:00 +0000

How are your self care habits? If you're like us, there's good days and there's bad days. In this episode we share our highs and lows, the best and the worst of our self care journey.

What we've learned on this self care journey is that one of the most important habits of self care is giving yourself grace. You're not going to be perfect every day. There will be days when it's hard to practice healthy self care. You may not meet your expectations every day. So give yourself grace, forgive yourself and commit to make tomorrow a better day.

As we share our best and worst self care moments, we hope that you're learning how to develop your own self care habits that will make you stronger and better.

Go to our website at www.theheartofhospice.com for more self care resources and tips. Find us on Facebook and Twitter also.

Five for Friday Episode 027

Fri, 24 Feb 2017 08:00:00 +0000

All during this month we’ve been focused on self care - for mind, body, and spirit. Self care is the way hospice caregivers - personal and professional - take care of themselves, so they can take care of others.

While we have learned a lot about self care during our time working in hospice (about 14 years combined), we still have lots to learn about taking good care of ourselves. It’s a lifelong process of learning what self care practices work best for each of us as individuals.

Sometimes we have AMAZING self care days - meditation, research, workouts!

And then we have really lousy self care days - short sleep, cookies, TV marathons, ice cream. (Enjoyable in short doses, but definitely not healthy habits to repeat.)

In this episode we share with you some of our best self care moments, and some of our worst self care moments. Our purpose in sharing our best and worst is to remind you that there will always be moments when we struggle, and there will also be moments when we are strong. The goal is to have more of the latter and less of the former.

Write to us about your self care practices, and what works for you. Our email is host@theheartofhospice.com. You can also engage with us on Facebook and Twitter. Search for The Heart of Hospice.

Five for Friday, episode 026

Fri, 17 Feb 2017 08:00:00 +0000

We are probably guilty of neglecting self care for our spirits more than anything else. And yet, neglect of this area can lead to greater problems in the other two areas. All three areas are intertwined and can’t be separated from one another. Therefore, to neglect the care of our spirits can negatively impact us as caregivers.

Here are our top 5 ideas for Self Care of the Spirit.

Meditate.
Do a random act of kindness.
Write 10 dream notecards for yourself.
Make a list of things you’ve accomplished or overcome.
Listen to your favorite inspirational music.

For more detailed information about these 5 ideas, and for the full list of ideas for self care of the spirit, be sure and check out our Self Care Resources page.

Our spotlight this week focuses on our hospice colleague Rev. Dr. Carla Cheatham. Her book Hospice Whispers: Stories of Life, is available here. You can also learn more about Carla at her website, CarlaCheatham.com.

Five for Friday, episode 025

Fri, 10 Feb 2017 08:00:00 +0000

This is Self Care February, and this week's episode will focus on self care for the body.

As caregivers we often push ourselves beyond healthy limits in the care of our patients. But like a cell phone battery, eventually there's no energy left, and we need to take some time to "recharge our battery."

In this episode Helen & Jerry share their top 5 ideas for practicing self care for the body. For a complete list of ideas, be sure and visit the Self Care Resources page on our website at www.theheartofhospice.com.

Our goal is to reach as many people as possible with information about hospice. We need your help in reaching this goal. Please take a few minutes and write a review on our podcast page on iTunes. Each review helps to increase the visibility of The Heart of Hospice podcast so more people can find this information. Thanks in advance for your help

Our Facebook page is also available to be shared. It just takes a couple of clicks to share our Facebook page with your friends and provide them with a link to the information and encouragement they will find at The Heart of Hospice. Thanks for helping us reach more people.

Five for Friday, Episode 024

Fri, 03 Feb 2017 08:00:00 +0000

We're calling it self care February! Each Five for Friday episode in February will focus on a specific area of self care, to promote a balanced self care routine for professionals and private caregivers.

This week's episode is focusing on self care for the mind. Helen & Jerry share their 5 favorite ideas to encourage you to find your own best self care methods. If these 5 ideas aren't enough, be sure and check out our BIG list of self care ideas for the mind on our website at www.theheartofhospice.com/self-care-resources.

As always, you can find us on Facebook and Twitter. Send us an email to tell us more about your favorite self care practices at host@theheartofhospice.com.

We want to reach more people with information and education about hospice and palliative care. Will you help us? All it takes is a few minutes to write a review on iTunes. Or...share our Facebook page on your Facebook page to let your friends know about the HOH. Thanks for helping others get informed about hospice, self care and hope.

Episode 008 - Practicing Professional Boundaries

Wed, 01 Feb 2017 08:00:00 +0000

One of the most important qualities of a hospice professional is the ability to establish and maintain healthy boundaries with patients and families.

It provides protection for the professional and the patient. .
It also builds trust between the professional and the patient.

In this episode, Helen & Jerry discuss the purpose for boundaries, and the many "unfenced" boundaries that can be difficult to determine.

These unfenced boundaries include,

sharing of personal information
social media
over engagement
under engagement
and more.

For more information be sure and visit our website at www.theheartofhospice.com, or find us on Facebook and Twitter.

Five for Friday, Episode 023

Fri, 27 Jan 2017 08:00:00 +0000

Communication requires someone sending a message and someone receiving the message. We need to do both well.

Listening, however, has become a lost art. It requires skill, and practice, and patience. In this Five for Friday episode Helen & Jerry share some basic tips on how to practice the art of listening.

Every person has a story, and it's up to us, as hospice professionals, to draw out that story to help each of them find meaning and purpose in their lives.

Our spotlight in this episode was the NPR TED Radio Hour playlist about The Act of Listening. To listen to this playlist you can follow this link http://www.npr.org/programs/ted-radio-hour/411697251/the-act-of-listening?showDate=2016-09-02

Be sure and visit our website and blog at www.theheartofhospice.com.

Find more information and resources on our Facebook page and on Twitter.

Five for Friday, episode 022

Fri, 20 Jan 2017 08:00:00 +0000

The conversations that occur in hospice can sometimes be difficult and hard.

It's our job to do this the best way we can, with as much compassion as possible.

He's not breathing.

You need to call the family.

She's passed away.

Speaking hard truths about death with gentleness can be difficult.

In hospice, we find the strength to tell those truths every day, with respect and compassion.

Join Helen & Jerry for this episode of Five for Friday as we look at the importance of having compassionate conversations.

For more information be sure and visit our website at www.theheartofhospice.com or our Facebook and Twitter pages.

Five for Friday, episode 021

Fri, 13 Jan 2017 08:00:00 +0000

When patients who are dying are asked to discuss their lives, the discussion doesn't usually include how much money they earned. People who are dying don't usually talk about the big promotions at work or the retirement fund they built over the years.

They talk about their experiences. They talk about what they’ve done.

Where they went.

Who they met.

Places to which they travelled.

Wonders that they saw.

People they loved.

In this episode of Five for Friday, Helen & Jerry discuss the difference between having and having done.

To read more about this be sure and check out our blog at www.theheartofhospice.com.

You can also find many hospice related resources on our Facebook and Twitter pages, just search for The Heart of Hospice. Join our group on Facebook to receive regular updates, and follow us on Twitter to read the latest hospice news.

Five for Friday, episode 020

Fri, 06 Jan 2017 08:00:00 +0000

People talk a lot about New Year’s Resolutions at this time of year. We make lists of things we want to change about ourselves. List of habits that we want to start.

It’s a lot harder to actually make those things happen, and then to make them stick.

For 2017, we here at The Heart of Hospice decided to try something different. We decided to create a “Not To Do” list. The idea of the “Not To Do” list is to make a list of those things we want to stop doing.

Listen to this episode to find out more about how to create a "Not To Do" list to help you kick some of those habits that keep you from doing your best.

You can also check out the Heart of Hospice website for more information about a "not to do" list at www.theheartofhospice.com.

Episode 007 - Understanding Our Comfort Zones

Sun, 01 Jan 2017 08:00:00 +0000

We all have our comfort zones that we like. We also have those areas where we feel out of our element. What's extremely difficult is when we feel out of our element in our own home.

This episode will discuss the struggles that hospice professionals, patients, and families encounter when hospice enters the home. There are levels of discomfort for all involved. Helen & Jerry discuss ways to help lessen the discomfort.

Be sure and visit our website at www.theheartofhospice.com to find more resources and information. The blog contains valuable information and encouragement, so be sure and visit that page while you're there.

We are on FaceBook and Twitter and Instagram as well. Just search for The Heart of Hospice. You can contact us at host@theheartofhospice.com. We look forward to hearing from you.

Five for Friday, episode 018

Fri, 23 Dec 2016 08:00:00 +0000

In this Five for Friday episode, Helen & Jerry discuss their self care calendar experiment. During the month of December and part of January, Helen put together a calendar with daily self care suggestions for body, mind and spirit. Every day we would each choose either a suggestion from the body, mind or spirit category. In a future episode we will report what the experiment taught us.

Since it's December 23, just 2 days before the major holidays begin, we wanted to wish all of you, our listeners, a very happy holiday season.

Five for Friday, episode 017

Fri, 16 Dec 2016 08:00:00 +0000

We know how hard it is to consistently maintain healthy self care, because we’ve had our share of bad habits. (We still do.)

In this episode Helen & Jerry share the Best and Worst of our holiday self care habits, so maybe you can learn from the mistakes we’ve made. Or maybe get some ideas on how to practice healthy self care during the holidays.

Do you have some ideas to share with our listeners about healthy self care habits for the holidays? Send us an email at host@theheartofhospice.com and we would be glad to pass them along.

Be sure to subscribe to the podcast so that you will be notified each time a new podcast is released. You can also find us on Facebook and Twitter, and we have a webpage and blog at www.theheartofhospice.com. Be sure and check it out too.

Five for Friday, episode 016

Fri, 09 Dec 2016 08:00:00 +0000

Self care is best achieved by caring for the whole person: body, mind and spirit. Caring for the whole person is best achieved by engaging all of our 5 senses.

Sight, Sound, Smell, Taste and Touch.

Helen & Jerry share some ideas on how to provide self care through our 5 senses. It's particularly appropriate during the holiday season when there are so many things seeking the attention of our 5 senses, through holiday music, the smells of the season, the taste of special holiday food, the holiday lights that vie for our attention, and the even the feel of the season around a holiday fire, or wrapped in a fuzzy blanket.

The purpose of this Five for Friday is to inspire you to look for ways that you can provide self care that's individualized for you, ways that can engage all of who you are, and how you engage with the world around you during the holiday season.

For more tips related to self care at the holidays, be sure and visit our website at www.theheartofhospice.com and check out our blog page.

You can also find us on Facebook at facebook.com/theheartofhospice,

or on Twitter at twitter.com/thehearthospice.

To offer your comments or questions you can also email Helen & Jerry at host@theheartofhospice.com. We would love to hear from you and promise to personally respond to your email.

Five for Friday, episode 015

Fri, 02 Dec 2016 08:00:00 +0000

Holiday coping tips

Episode 006 - Grief Care for Special Days

Thu, 01 Dec 2016 08:00:00 +0000

It’s an overwhelming time of year. As if our normal days aren’t busy enough, our lives can become so hectic during a holiday time that we no longer enjoy it. It’s easy to find ourselves exhausted - mind, body, and spirit.

For those who are caregivers of a hospice patient (personal or professional), there can be a unique weariness. Bodies worn down from short sleep.

Minds overwhelmed with responsibility and realities of life.

Spirits dragged down by anticipatory grief, or compassion fatigue.

So how to combat that holiday stress and fatigue? Self care! There are so many ways to care for your “self” during the holidays, ways that will help you not only survive the season, but maybe to thrive as well. In this episode, Helen & Jerry offer some suggestions on how to provide self care when grief seeks to steal your holiday joy. Be sure and check out our website for resources to help you survive grief at the holidays. www.theheartofhospice.com For more self care tips be sure and follow this link to our blog, where you will find more information that can help make the holiday season easier. Connect with us on Facebook and Twitter. Just look up The Heart of Hospice. For comments, suggestions, or questions please email us at host@theheartofhospice.com Hope to hear from you soon.

Five for Friday, episode 014

Fri, 25 Nov 2016 08:00:00 +0000

It's Black Friday! Ready or not the holiday season is here.

The holiday season can be one of our favorite seasons, but it's also one of the most stressful times of the year. Here's our list of recommended self care tips for the holidays:

1. Give yourself permission to say no.

2. Find ways to engage all of your senses to re-energize yourself.

3. Bake a cherished recipe and savor the memory that comes with it.

4. Remember, you're in charge of your schedule.

5. Avoid overindulgence.

6. Don't get out of your exercise routine.

7. Plan to stay organized.

If you have some of holiday self care tips that you would like to share with us, please email us at host@theheartofhospice.com. It would be a privilege to share them with our listeners.

Don't forget to check out the latest blogs on our website at www.theheartofhospice.com.

Five for Friday, episode 013

Fri, 18 Nov 2016 08:00:00 +0000

Have you ever had a bad day? Who hasn't, right? In this episode Helen & Jerry talk about how to turn a bad day into a good day with one quick and easy solution. What are we talking about?

A gratitude list!

A daily gratitude list has a way of turning around your attitude, your mental focus, and even improve your physical well-being. To make it even better, we would like to encourage you to do a gratitude list with someone else. Ask someone else--a friend, a family member, a co-worker--to join you in creating a gratitude list.

Listen to the episode for the details on how it's done, and hear Helen & Jerry share their gratitude lists with each other also.

Don't forget to check out our website at www.theheartofhospice.com for more information and resources. Be sure to read the latest blog. It also has information about gratitude and gratitude lists. Click on this link to read the blog.

Five for Friday, episode 012

Fri, 11 Nov 2016 08:00:00 +0000

Veterans Day in the United States is a day to honor the men and women who have served in our military. This group of people, from every era and every branch, have sacrificially given themselves to the call of duty and honor, to preserve our national freedoms. Today, The Heart of Hospice wishes to recognize them for their patriotism and loyalty.

Veterans on hospice has continued to increase through the years, and the NHPCO has created a program called We Honor Veterans to identify the men and women who are veterans and recognize them for their service. Hospice agencies who participate in the program will survey the patients admitted onto hospice to determine if the patient is a veteran. Veterans on hospice will then receive a certificate of appreciation and special recognition for their service to our country.

To all the veterans and families, please accept our humble and grateful recognition of your service with a heartfelt "thank you."

www.WeHonorVeterans.org

Five for Friday, episode 011

Fri, 04 Nov 2016 07:00:00 +0000

Hospice Month

Five for Friday, episode 010

Fri, 28 Oct 2016 07:00:00 +0000

October is Clergy Appreciation Month, so in this Five for Friday we recognize the men and women who provide spiritual care for hospice patients.

Spiritual care counselors (chaplains) are a part of the holistic care that's provided for a hospice patient and their family. They come alongside to offer emotional and spiritual support.

Please take time to say thank you to these spiritual encouragers who are there when they're needed the most.

Don't forget to check out the Heart of Hospice website at www.theheartofhospice.com.

Your questions or comments are always welcome through our email address at host@theheartofhospice.com

Five for Friday, episode 009

Fri, 21 Oct 2016 07:00:00 +0000

The Heart of Hospice website and blog is now live! We are excited to announce today that our website is no longer under construction, but is a fully functional website complete with blog posts, a resource page, and a contact page. You can also listen to the HOH podcast directly on the website.

Our special thanks to our friends that shared their talents and resources with us in creating the HOH website.

To Karen Bourdier for her photography work.

To Quintin Blackwell for his photographs of Helen.

To Jeremy Zimmerman of Z Design for The Heart of Hospice logo and artwork. You can learn more about Jeremy at www.myzdesign.com.

Finally, to Hard Bean Coffeehouse in Lumberton, TX for allowing us to have some extended time in their "space" to put the finishing touches on the website. There webpage is at www.hardbeanlumberton.com

Please take some time to browse through our website, and send us a comment or question. We will continue to update our Facebook and Twitter accounts as well. More than anything we want to connect with you, and help you in your hospice journey.

Five for Friday, episode 008

Fri, 14 Oct 2016 07:00:00 +0000

Are you confused about how someone qualifies to be a hospice patient?

This episode will help to remove some of the confusion about the diagnoses that may qualify a patient for hospice. Not every patient with a chronic illness can receive hospice coverage. They first have to be certified by a doctor as having a terminal illness, or life-limiting illness, with a prognosis of 6 months or less life expectancy.

The diseases covered by hospice are much more than just cancer diagnoses, however Helen & Jerry discuss the terminal diagnoses that may qualify someone for hospice in this episode of Five for Friday.

We mention the National Hospice & Palliative Care Organization in this episode, and encourage you to look on their website for more detailed information, at www.nhpco.org.

If you have further questions regarding hospice qualifications, please write us at host@theheartofhospice.com, or find us on Facebook or Twitter. We look forward to hearing from our listeners.

Five for Friday, episode 007

Fri, 07 Oct 2016 07:00:00 +0000

Volunteers are literally the heart of hospice, and on this episode of Five for Friday, Helen & Jerry discuss the need for hospice volunteers and what type of work volunteers can perform to serve the hospice agency and the patients.

Have you been a hospice volunteer? Let us know about your experiences as a volunteer. What kind of activities have you been involved in? What were some of the most meaningful experiences you've had as a volunteer? Please write to us at host@theheartofhospice.com and tell us about your volunteer experiences.

We are always searching for fresh ideas here at The Heart of Hospice. Do you have a topic that you would like Helen & Jerry to discuss in a future podcast? Write to us and tell us about it. You can interact with us by email at host@theheartofhospice.com or on Facebook or Twitter. We would love to hear from you.

Don't forget to rate the podcast! Each review and rating helps us reach more people with the message about hospice, so help us get the word out by taking a minute to rate or review on iTunes. Thanks!

Episode 004 - Self Care for the Personal Caregiver

Sat, 01 Oct 2016 07:00:00 +0000

How important is it that a caregiver practice healthy self care? Consider these statistics. 80% of care provided to hospice patients is provided by unpaid caregivers (typically, family members). 17.9 billion hours of unpaid care is provided annually for Alzheimers patients alone. 34% of those unpaid caregivers are over 65 years old, and 1 in 10 are over 75 years old. Unpaid caregivers provide care on an average of 43-97 hours per week, and not just during the daytime hours, but nighttime as well.

The probability for caregiver burnout is significant.

In this episode Helen & Jerry discuss the problem of caregiver burnout, and offer ways for caregivers to provide self care, so that they can keep providing the best care possible for the patient.

In this episode we feature the co-authors and website creators of 365CaregivingTips.com. Five authors, Pegi Foulkrod, Gincy Heins, Trish Hughes Kreis, Richard Kreis and Kathy Lowrey are all experienced caregivers. Pegi and Kathy both cared for their husbands before they died, Gincy cares for her husband who was diagnosed with Mild Cognitive Impairment and Richard and Trish care for Trish's disabled brother as well as Richard's mom.

365 Caregiving Tips: Practical Tips from Everyday Caregivers was the beginning of a series of books created with the intent of helping others through their caregiving journey. Their second book, 365 Caregiving Tips: Travel and Respite, Practical Tips from Everyday Caregivers, is designed to help those traveling with their loved one or taking a respite without their loved one.

The tips found in both books are practical. Caregivers have to make the most of their limited time, money and energy and these tips are designed with those limited resources in mind.

People can read one tip a day, read a chapter that applies to their situation at that moment, or enjoy them all at once. The hope of the co-authors is that by sharing these tips people will have an easier caregiving day, and their load will be a little lighter. They also want people to know there are others on this caregiving journey, some who are just beginning and some who are more experienced, but they are here with you and are here to help.

Check out these other great websites for caregiver resources.

Alzheimers Association - alz.org

AARP - aarp.org/home-family/caregiving/

National Alliance for Caregiving - caregiving.org

National Hospice & Palliative Care Organization - caringinfo.org

365 Caregiving Tips - 365caregivingtips.com

Five for Friday, episode 006

Fri, 30 Sep 2016 07:00:00 +0000

Need a lift here at the end of your week? Try this: make a list of your favorite things, and you may just see your mood begin to change.

In this episode Helen & Jerry share some of their favorite things from their own personal lists. What are your favorite things? Why not make a list, and share them with us. Email us your list at host@theheartofhospice.com. We would love to hear from you.

Have you rated our podcast yet? Would you take a minute out of your busy day to provide some feedback? The reviews and ratings are critical to getting The Heart of Hospice information into the hands of people who need it. If you've enjoyed what you've heard so far, please take a moment and send us your review, or just rate us on iTunes. Thanks in advance.

Five for Friday episode 004

Fri, 16 Sep 2016 07:00:00 +0000

Happy Friday everyone! Helen & Jerry discuss the power of numbers in this Five for Friday episode. Numbers tell a story. From a clinical perspective, numbers reveal the status of the body: blood pressure, respiratory rate, heart rate, blood sugars, etc. It's not all about the numbers, though. Numbers matter, but we have to see the patient beyond just their numbers.

A quote by Dame Cicely Saunders reminds us of the humanity of our patients. She said, "You matter because you are you, and you matter until the end of your life."

Here's a few other quotes from this episode.

"We take care of people, not patients." --Helen Bauer

"The most important number is "1". Because the 1 patient, the 1 family, the 1 life that matters, is the 1 that's in front of you right now. That's the person that matters." -- Jerry Fenter

We need your help. Would you take just a minute out of your busy day to rate our podcast? The more ratings that we receive, the more people we have the potential to reach with the message about hospice. Thank you for taking the time to help us.

Do you have questions, suggestions, comments for Helen & Jerry. You can reach us by email at host@theheartofhospice.com or on our FaceBook or Twitter accounts. We are always eager to hear from our listeners.

Five for Friday 003

Fri, 09 Sep 2016 07:00:00 +0000

No one likes the unknown. We prefer having at least a hint of what's going to happen next. When a patient begins receiving hospice care, there are many unknowns for the patient and the family. Today's Five for Friday will help explain what can be expected on the first day and week. Listen in and you'll hear the details that will help make the beginning a little easier to accept.

Would you do our future podcast listeners a favor? Please take a moment and rate this podcast on iTunes. Your rating helps broadcast The Heart of Hospice to more listeners. More listeners means more people who are receiving accurate and helpful information about hospice, and more hospice professionals who are receiving encouragement at a time when they may need it the most. Thanks for spreading the message.

Five For Friday episode 002

Fri, 02 Sep 2016 07:00:00 +0000

Practicing good, healthy self care habits is a daily challenge. In this week's Five for Friday, Helen & Jerry share their best & worst self-care habits of the past week. Our worst might give you a laugh or two, and the best will hopefully give you some encouragement to find your own "best" self-care habits. Be sure and listen all the way to the end of this episode for a special out-take.

Share with us your best self-care habits. What are those healthy self-care practices that help you de-stress and refocus at the end of a long day? Write to us at host@theheartofhospice.com and share them with us.

Episode 003 - Jerry's Personal Hospice Story

Thu, 01 Sep 2016 07:00:00 +0000

In this episode Jerry shares a very personal hospice story. in 2013, after a basic knee replacement surgery, Jerry's mother began experiencing respiratory failure, that eventually led to her being placed in hospice care at home.

The experience opened his eyes to hospice care from the family's perspective. That alone was revealing and changed the focus of his hospice work in the future. But it also revealed how valuable hospice is for the patient and the family.

As Jerry says in this episode, "I was a hospice chaplain before, and I was a hospice chaplain afterwards, but I was not the same hospice chaplain."

If you would like to share your hospice story, please write to us at host@theheartofhospice.com. Whether a personal hospice story like Jerry's, or a story from a hospice professional's perspective, we would like to hear from you.

Five for Friday 001

Fri, 26 Aug 2016 07:00:00 +0000

5 for Friday is a weekly 5 minute focused discussion to provide you with some encouragement at the end of your busy week. We keep it short (it is Friday, after all), but offer you something interesting, informative, and maybe even entertaining.

In this episode Helen & Jerry talk about the mission and purpose of The Heart of Hospice. It's just a quick look at why we do what we do.

Episode 002 - Debunking the Hospice Myths

Tue, 02 Aug 2016 02:26:41 +0000

Myths about hospice continue to abound. In this episode we will demystify the common myths of hospice, and share information that is accurate and up-to-date. Open and honest information is needed to eliminate the fear and mystery that surrounds hospice care.

In today's episode our Heart of Hospice tip recommends the website happify (12:00). To go directly to the website just follow this link.

We look forward to hearing from you.

Episode 001 - The History of Hospice & Hospice Philosophy

Sun, 31 Jul 2016 07:00:00 +0000

History doesn't have to be dry and boring. Helen & Jerry discuss the history of hospice, the people who made hospice what it is, and how it has evolved through the years to become what it is today.

In this episode, The Heart of Hospice tip focuses on the website eHospice.com. To go directly to that page, click on this link.

We look forward to hearing from you.