The Whole Care Network

Learn Some Surprising Insider Secrets at a Hospice Nurse Roundtable

Mon, 29 Dec 2025 11:00:24 +0000

We’re excited to feature a roundtable discussion with a group of amazing hospice nurses discussing what makes a “good death” and the rituals they’ve created for themselves and caregivers. Jean Ann Menna, Carrie Oram, and Shelley Henry have many years of end of life nursing experience. Along with Helen, they share the many facets of helping patients create good deaths for themselves. This conversation is a great inside look into how hospice nurses care for families when death occurs.

Find Jean Anne Menna and her book “Go with Grace: A Simple Guide to Caring for Someone on Hospice” here.

Connect with guest Carrie Oram at Angel Heart Holistics here.

Find Shelley Henry and Amity Staffing at amitystaffing.com

Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. And we believe you deserve to get good hospice care. If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you’re already receiving, we’re here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. Book a session with an expert Hospice Navigator at theheartofhospice.com.

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Social media: Facebook Twitter Instagram LinkedIn

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Hearing Health: The Key to Staying Connected while AgingGayfully®

Mon, 29 Dec 2025 10:30:20 +0000

n this episode of the Aging Gayfully podcast, host Christopher MacLellan speaks with Dr. Andrew Wagner, an audiologist with Hear USA, about the importance of hearing and communication, the impact of hearing loss on social interactions and cognitive health, and the advancements in hearing aid technology.

Dr. Wagner shares his personal journey into audiology, discusses how to recognize hearing loss, and explains the process of hearing tests and the significance of custom hearing solutions. The conversation emphasizes the need for awareness and proactive measures in maintaining hearing health as we age.

As we age, maintaining our hearing health becomes increasingly vital, yet many of us overlook its significance.

Understanding the Journey into Audiology:

Dr. Andrew Wagner shares his personal journey into audiology, rooted in his family background as communication specialists. His passion ignited when he witnessed the profound impact of cochlear implants on his best friend's brother, who was born deaf.

The Education Behind Hearing Health:

Dr. Wagner's academic journey began with a bachelor's degree in communication sciences and disorders at Ohio University, followed by a doctorate in audiology. His externship brought him to sunny South Florida, where he now practices. This blend of education and personal experience equips him to advocate for hearing health and the importance of early detection.

Recognizing Hearing Loss:

One of the most challenging aspects of hearing loss is recognizing it. Dr. Wagner emphasizes that many patients first become aware of their hearing issues through the concerns of loved ones. Common signs include frequently asking for repetition, difficulty hearing in noisy environments, and feeling fatigued after conversations. He emphasizes the importance of getting a baseline hearing test around age 55 to track changes over time.

The Social Impact of Hearing Loss:

The conversation shifts to the isolation that often accompanies hearing loss. Dr. Wagner recounts how his grandmother's reluctance to engage socially diminished her quality of life. He explains how individuals might withdraw from group settings due to the frustration of not being able to follow conversations. His wife’s experiences as a speech pathologist reveal that many people in care settings may not be nonverbal; they could simply be unable to hear, highlighting the need for proper hearing assessments.

Empowering Social Connections:

Dr. Wagner encourages listeners to view hearing health as a vital aspect of overall well-being. He shares how his grandmother embraced new social environments in assisted living, treating it like a college experience and finding joy in connecting with others. He believes that communication is fundamental to our existence and that addressing hearing loss can significantly enhance one’s social interactions and quality of life.

Conclusion:

Maintaining our hearing health is crucial for staying connected as we age. As Dr. Wagner highlighted, the gradual nature of hearing loss often leads to isolation, but awareness and proactive measures can foster social engagement and improve our overall well-being. By recognizing the signs of hearing loss early and seeking help, we can ensure that we continue to participate fully in our communities and maintain meaningful relationships.

Learn more at https://www.hearusa.com/

Contact Dr. Wagner at: Andrew.Wagner@hearusa.com

Key Takeaways:

1. Hearing health is essential for maintaining social connections and overall well-being.

2. Early detection and regular hearing assessments can help track changes over time.

3. Addressing hearing loss can alleviate feelings of isolation and enhance the quality of life.

Tags: #HearingHealth #Audiology #AgingGayfully #Communication #HearingLoss #SocialIsolation #WellnessInAging #CochlearImplants

Are You Part of the Sandwich Generation? Five Essential Tips / Alzheimer’s and Other Dementias

Mon, 29 Dec 2025 10:15:19 +0000

Are you feeling overwhelmed trying to care for aging parents while raising children? Do you find yourself stretched thin between different generations, each with their own unique needs?

My name is Sue Ryan. As a caregiver for loved ones with Alzheimer’s and other types of dementia, I understand the unique challenges faced by those in the sandwich generations. I recently spoke with Christy Byrne Yates, a licensed educational psychologist and author of “Building a Legacy of Love: Thriving in the Sandwich Generation.” Christy has personally navigated the challenges of caring for aging parents while raising her own children, and she brings both professional expertise and lived experience to help families thrive during this demanding season of life.

Connect with us and share your tips:

Website: https://thecaregiversjourney.org/
Donate: https://give.cornerstone.cc/thecaregiversjourney
Instagram: https://www.instagram.com/thecaregiversjourney/
Facebook: https://www.facebook.com/thecaregiversjourneys/
Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/
Email: sue@thecaregiversjourney.org, nancy@thecaregiversjourney.org

Full Show Notes

Additional Resources Mentioned

Chirstyyates.com - https://www.christyyates.com/
Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney

Takeaways

Tip 1: C — Choose Your Role as a Caregiver

The first step in successfully navigating the sandwich generation is making a conscious choice to embrace your caregiving role. Many people say “I didn’t choose this.” or “I had no choice.” We always have a choice. Even not making a choice is still a choice.

Tip 2: A — Address the ‘Elephants’ in the Room

Successful sandwich generation caregiving requires having difficult conversations early and often. These are the ‘elephants’ dancing in every family room that everyone sees — but no one wants to discuss.

Tip 3: R — Recharge Through Ruthless Self-Care

Recharging takes on critical importance when you’re caring for multiple generations. Self-care isn’t selfish — it’s essential for everyone you’re caring for.

Tip 4: E — Enlist Your Support Team

You’re not meant to journey alone, and this is especially true for sandwich generation caregivers who face multiple competing demands. Building a comprehensive support team is essential for sustainable caregiving.

Tip 5: S — Surrender Control and Embrace Grace

Perhaps the most challenging aspect of sandwich generation caregiving is accepting that you cannot control everything, even though you desperately want to. If everyone could just do things your way, life would be so much easier — but that’s not reality.

Read More in This Blog here

Finding Beauty in Life’s Final Chapter with Martha Jo Atkins

Mon, 29 Dec 2025 10:00:21 +0000

Why do we fear death—and how can we see its beauty? In this heartfelt episode, host Isabel Melgarejo speaks with death doula Martha Jo Atkins about end-of-life care, breaking taboos, and finding peace in life’s hardest goodbyes.

How to Cope With Grief That No One Understands

Sun, 28 Dec 2025 13:44:20 +0000

There isn’t a greeting card for every type of grief. Dr. Ken Doka joins the podcast in this episode to talk about anticipatory and disenfranchised grief. Before death even occurs, people are grieving - anticipating the loss of identity, functional ability, roles, and relationships as well as the actual loss that comes with death itself. This kind of grief is felt by both the person who’s dying and the caregivers and family. Disenfranchised grief occurs when the relationship with the deceased person wasn’t one that’s recognized by society, and can't be publically mourned. Ex-spouses, abusive and estranged relationships can all be situations of disenfranchised grief. It can be difficult to find support for grief like this, making the griever feel isolated. Disenfranchised grief can be more complicated than grief related to healthy and close relationships.

If you need information about grief, check out the Hospice and Grief Info section of the Hospice Foundation of America’s website. Website: hospicefoundation.org Research on grieving: hospicefoundation.org/research-on-grief-and-grieving Grief and other types of loss: hospicefoundation.org/grief-and-other-types-of-loss Facebook: www.facebook.com/hospicefoundation Instagram: www.instagram.com/hfahospice X: x.com/hfahospice

Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Social media: Facebook Twitter Instagram LinkedIn Email: helen@theheartofhospice.com More podcast episodes: The Heart of Hospice Podcast

Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

Bedside Wisdom: Powerful Lessons From a Hospice Doctor

Sun, 28 Dec 2025 12:00:22 +0000

Hospice doctor Dr. Alen Voskanian is sharing the lessons he’s learned at the bedside of the dying, including why managing compassion fatigue is so vital. Working with AIDs patients led him to hospice work and to obtaining his board certification in hospice and palliative care medicine. Through his practice, Alen tries to humanize his patients and tries to connect with them. He works to find the best balance of doing his job and seeing the patients as human beings. Debriefing with the hospice team and finding an outlet for his secondary grief has helped Alen create personal wellbeing and sustainability as a hospice physician.

Connect with Alen Voskanian: LinkedIn Purchase a copy of “Reclaiming the Joy of Medicine: Finding Purpose, Fulfillment, and Happiness in Today's Medical Industry” by Dr. Alen Voskanian here.

Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Social media: Facebook Twitter Instagram LinkedIn

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

AgingGayfully® Should I Stay or Should I Go?

Sun, 28 Dec 2025 11:45:19 +0000

In this episode of AgingGayfully®, hosts Chris MacLellan and Josh Wilson discuss the desire for change and new beginnings, particularly in light of recent events affecting the LGBTQ community. They reflect on the importance of community and belonging, navigating the current political climate, and the challenges of personal safety. The conversation also touches on the implications of relocation and the significance of personal connections in times of uncertainty.

Takeaways

Greg Louganis is moving to Panama for a fresh start.
The desire to relocate is influenced by the current political climate.
Community plays a crucial role in supporting individuals during tough times.
Many LGBTQ individuals are considering moving to more accepting environments. The importance of personal connections and family when considering relocation.
Navigating the noise of social media and AI-generated content is challenging.
Historical patterns can inform current societal issues.
The fear of leaving behind those who cannot move is significant. E
ngaging with the community is essential for support and understanding. T
The hosts encourage listeners to share their thoughts on relocation.

Let’s AgeGayfully® together, with intention, humor, and each other.

A gay senior, Christopher MacLellan, and an ally, Josh Wilson, podcasting about life, love, liberty and travel.

Don’t Say Gay?… Say AgingGayfully®!

AgingGayfully® is about living life with dignity in an age-friendly society regardless of orientation or economic status because longevity is a justice issue.

AgingGayfully® is about finding your voice as we age. We are all part of the aging process and have real connections in diversity.

AgingGayfully® is a modern type of activism that supports the concept of belonging.

AgingGayfully® is about Adventure, Leisure, Travel, being a citizen of the world, traveling to destinations, and being part of the global community as we age and prosper in body, mind, and spirit.

Caring for 5 Humans and Herself with Kameron Browning

Sun, 28 Dec 2025 11:30:20 +0000

Kameron Browning is a resilient sandwich generation caregiver and single mom from Oklahoma who’s caring for five people besides herself. She’s navigating life between supporting her father, Jim, who lives with Alzheimer’s disease, and raising four children from toddler to teenager. Over the years, Kameron has worn many caregiving hats—remote caregiver, in-home caregiver, and support caregiver—while balancing work and family life. After experiencing caregiver burnout, she’s redefined “self-care” as simply giving her brain a chance to rest, letting go of people-pleasing, tuning out unsolicited advice, and leaning into advocacy, trust, and intuition for herself and those she loves.

Show notes with product and resource links:

http://bit.ly/HHCPod215

Receive the podcast in your email here:

http://bit.ly/2G4qvBv

Order a copy of Elizabeth's book Just for You: a Daily Self Care Journal:

http://bit.ly/HHCjournal

For podcast sponsorship opportunities contact Elizabeth:

https://happyhealthycaregiver.com/contact-us/

The Happy Healthy Caregiver podcast is part of the Whole Care Network. Rate and Review the podcast:

https://bit.ly/HHCPODREVIEW

Senior Living Made S.I.M.P.L.E. Expert Tips for Navigating Dementia, Memory Care & Caregiver Guilt with Shari Ross

Sun, 28 Dec 2025 11:15:19 +0000

In this episode, host Marianne Sciucco and acquisitions editor Sheila Luna sit down with Shari Ross, a senior healthcare professional and author of “Senior Living Made S.I.M.P.L.E.: A Real World Guide for Navigating Senior Care for Your Loved One.” Shari’s expertise spans her professional experience in senior living communities and her personal connection to dementia through family. This conversation explores the emotional, practical, and logistical challenges families face when transitioning loved ones to senior living, with a focus on memory care, language barriers, and advocacy.

In this episode:

Shari discusses her background as a senior healthcare specialist, working in senior living communities, and her personal caregiving experience with her grandmother.
She provides an overview of her new guide, “Senior Living Made S.I.M.P.L.E.,” and how it can help make senior living transitions easier for all.
The book’s conversational, relatable, and honest approach to guiding families through the overwhelming senior care landscape is discussed
Shari’s “S.I.M.P.L.E.” framework is explained: Support, Information, Matching, Preparation, Letting Go, Engagement.
In addition, Shari reframes the “new” memory Care Communities
The importance of language—using terms like “community” and “neighborhood” to foster warmth and reduce stigma.
Shari provides pointers on transitioning to Community Living
Why adult children and spouses often find themselves overwhelmed and unsure where to start, and how to approach those milestones.
The need to tour and “feel the vibe,” prioritize care and community over aesthetics.
The power of social engagement, good nutrition, and routine in enhancing quality of life.

Aging in Place vs. Senior Living

The hidden burdens and risks of managing aging at home—care coordination, safety concerns, and social isolation.
Shari’s research: Most homes aren’t designed for aging adults; successful “aging in place” requires massive support.
Community living can provide more safety, social interaction, and peace of mind for both loved ones and families.

Buy Shari’s book here

Learn more about Shari Ross and her resources and services at seniorlivingmadesimple.com.

Key Quotes:

“Memory care is not a punishment; it’s a lifeline.”
“Independence without a support net is just a slow-motion disaster.”
“Be observant, be vocal, and trust your gut.”

Connect with AlzAuthors:

About the Moderator

Marianne Sciucco

About the Podcast

We are a 501(c)(3) charitable organization. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias.

Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here.

Thanks for listening.

We are a Whole Care Network Featured Podcast

Proud to be on The Health Podcast Network

Find us on The World Podcast Network and babyboomer.org

Want to be on the podcast? Here’s what you need to know

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What if the secret to abundance is simply choosing joy today?

Sun, 28 Dec 2025 11:00:21 +0000

In this episode, Isabel shares how a simple shift in mindset—choosing love, care, joy, and abundance—can transform everyday life. From self-talk to daily habits, she shows how to replace guilt with gentleness and discover the abundance already around us. A gentle reminder that you deserve more kindness, more joy, and more peace—starting with yourself.

Navigating Death Related Responsibilities: Four Essential Tips / Alzheimer’s and Other Dementias

Sat, 27 Dec 2025 11:00:21 +0000

Do you know what you need to do immediately after your loved one passes? Many caregivers don't. Are you worried about missing important tasks or feeling overwhelmed by the sheer volume of administrative, financial, and legal responsibilities?

We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we've navigated the challenging process of handling death-related responsibilities firsthand. Between us, we've experienced the loss of multiple loved ones and learned valuable lessons about what needs to be done and when.

Connect with us and share your tips:

Website: https://thecaregiversjourney.org/

Donate: https://give.cornerstone.cc/thecaregiversjourney

Instagram: https://www.instagram.com/thecaregiversjourney/

Facebook: https://www.facebook.com/thecaregiversjourneys/

Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/

Email: sue@thecaregiversjourney.org, nancy@thecaregiversjourney.org

Full Show Notes

If you are following along with our 20 step Navigating Dementia Caregiving Roadmap guide this is part of Step 20. This is the first guide listed on our guides page.

There are many things that can be done ahead of time. We covered these in podcast episode 30 - End of life preplanning and blog as well as in the matching worksheet you can find on our website in the guides section called ‘End of Life Service Worksheet’. Click here to get to the Guides page, scroll down to find the sheet.

Tip 1: Prioritize these things immediately after death1.

Tip 2: Move to this list within the first few days and weeks

Tip 3: Over the next few weeks and months - manage their estate

Tip 4: Focus on the things to prioritize once the estate has been closed

Finding Balance In Caregiving with Jerri McElroy

Sat, 27 Dec 2025 10:45:20 +0000

Balance in caregiving is often talked about, but what does it really look like in everyday life? In this episode, Jerri McElroy, primary caregiver, entrepreneur, and author, shares her caregiving journey and how caregiving touches every part of our lives.

From managing overwhelming medical responsibilities and advocating for a loved one, to caring for a parent with whom you may have had a complicated relationship, Jerri speaks candidly about the emotional and practical realities caregivers face. She also reflects on empathy, boundaries, and the importance of caring for yourself while caring for others.

If you are a family caregiver or supporting an aging parent, you may see yourself in Jerri’s story and gain insight into finding your own sense of balance along the caregiving journey.

TRANSCRIPT

Jerri's Linktree https://linktr.ee/jerrynjerri

Daughterhood

AgingGayfully® Protecting Your Peace

Sat, 27 Dec 2025 10:30:11 +0000

Chris and Josh explore those things that help us reclaim our calm in the midst of chaos and disruption.

A gay senior, Christopher MacLellan, and an ally, Josh Wilson, podcasting about life, love, liberty and travel.

Don’t Say Gay?… Say AgingGayfully®!

AgingGayfully® is about living life with dignity in an age-friendly society regardless of orientation or economic status because longevity is a justice issue.

AgingGayfully® is about finding your voice as we age. We are all part of the aging process and have real connections in diversity.

AgingGayfully® is a modern type of activism that supports the concept of belonging.

AgingGayfully® is about Adventure, Leisure, Travel, being a citizen of the world, traveling to destinations, and being part of the global community as we age and prosper in body, mind, and spirit.

Empowering the Dying for a Better Ending

Sat, 27 Dec 2025 10:15:20 +0000

Elizabeth Uslander is empowering the dying every day to create a better ending. As co-founder and CEO of Empowered Endings, Elizabeth is passionate about helping people with serious illness to find the death that aligns with their values and wishes. Her social worker background equips her with problem solving skills she can use to be an advocate for patients and their caregivers. Elizabeth’s theological training lets her support the religious, faith, and spiritual beliefs of her patients.

Elizabeth is not only an advocate for people who are at the end of life; she’s also a proponent of the interdisciplinary team. She thrives in the collaborative environment that’s the best structure for caring for the complex needs of serious illness. Elizabeth is a passionate change agent committed to humanity, dignity, and choice throughout life, and especially in its final chapters.

Find out more about Elizabeth Uslander and Empowered Endings: Website: empoweredendings.com and empoweredendings.org LinkedIn: @elizabeth-uslander or https://www.linkedin.com/in/elizabeth-uslander/ Instagram: @elizabethuslander or https://www.instagram.com/elizabethuslander/ Facebook: @elizabethuslander or https://www.facebook.com/elizabethuslander/

Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

What if the biggest challenge in caregiving isn’t age, but ageism? An Interview to Dr Mara Karpel

Sat, 27 Dec 2025 10:00:15 +0000

In this episode of Time to Care Like Caregivers, Isabel Melgarejo sits down with psychologist, author, and podcast host Dr. Mara Karpel to explore the hidden impact of ageism in healthcare and caregiving. From her personal journey advocating for her mother to her upcoming book on navigating an ageist system, Dr. Karpel shares insights, tools, and hope for caregivers who often feel unheard. A powerful conversation about dignity, advocacy, and finding passion at any age

Learn About the Important Work of The Peaceful Presence Project

Fri, 26 Dec 2025 21:25:05 +0000

Hospice nurse and End of Life Doula Erin Collins puts her heart and mind into helping people make peace with the end of life through compassionate, reflective conversations. As co-founder of The Peaceful Presence Project, Erin has seen the comfort and calm that advance care planning brings to not only those who are dying, but also to their family caregivers and the end of life workers who are serving them.

Facilitating end of life conversations is one of Erin’s gifts. The Peaceful Presence Project offers a printed workbook called End Notes that helps people express their end of life wishes, and to capture memories and messages they don’t want lost. You can find End Notes on The Peaceful Presence Project website. Through the advance care plan conversation, people feel better about the end of life. Medical decision makers also find their grief burden is less, as they simply follow directions that have been given by their Person.

Connect with guest Erin Collins: LinkedIn: www.linkedin.com/in/erin-collins-rn Instagram:@peacefulpresencedoulas Facebook: facebook.com/peacefulpresencedoulas Find more information about The Peaceful Presence Project at thepeacefulpresenceproject.org Check out their End of Life Doula training program here. Get your copy of End Notes here.

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Social media: Facebook Twitter Instagram LinkedIn

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

A Roadmap for Caregivers with Nancy Treaster

Fri, 26 Dec 2025 21:24:53 +0000

Nancy Treaster, a retired software industry executive turned Certified Caregiving Consultant, co-founded The Caregiver’s Journey with longtime friend Sue Ryan after both personally faced the challenges of dementia caregiving for multiple family members. Nancy has supported her father through Parkinson’s, her father-in-law through Alzheimer’s, and her husband through Frontotemporal Dementia. Drawing on her professional background and personal experience, Nancy offers a compassionate yet practical approach that empowers family caregivers to face their caregiving journey with confidence, fewer surprises, and more effective solutions.

In this episode, we talk about the difference between palliative care and hospice care—and why both are often underutilized. Nancy also shares insights on the stages of grief (including a unique concept called “drip grief”), her love of travel, the power of podcasting, and how caregivers can access an interactive roadmap filled with practical tools and resources to guide them on their caregiving journey.

Show notes with product and resource links:

http://bit.ly/HHCPod218

Receive the podcast in your email here:

http://bit.ly/2G4qvBv

Order a copy of Elizabeth's book Just for You: a Daily Self Care Journal:

http://bit.ly/HHCjournal

For podcast sponsorship opportunities contact Elizabeth:

https://happyhealthycaregiver.com/contact-us/

The Happy Healthy Caregiver podcast is part of the Whole Care Network. Rate and Review the podcast:

https://bit.ly/HHCPODREVIEW

Hobbies: Your Secret Care Tool

Fri, 26 Dec 2025 21:24:35 +0000

In this episode of A Time to Care: The Caregivers Podcast, Isabel Melgarejo reminds us that life is more than work and responsibilities. She explores the power of hobbies and joyful activities, why we often postpone them, and how even small steps—like researching or trying something new—can bring energy and fulfillment into our daily lives.

AgingGayfully® "The Music That Shaped Our Lives"

Tue, 23 Dec 2025 21:45:18 +0000

Let’s AgeGayfully® together, with intention, humor, and each other.

Aging Gayfully hits the jukebox! Josh and Chris time-travel through the soundtrack of their lives—from 60s Motown and The Big Chill memories, to 70s Elton John and eight-tracks, to MTV-fueled 80s anthems like “Take On Me,” and finally a 90s detour to the Three Tenors that sparked a love of classical music. Along the way: why everyone needs “their pub,” the $20 bartender tip rule, TV shows that made us music fans, and how orchestral soundtracks and symphonies still soothe the brain as we age. It’s nostalgia, community, and the science-backed wellness of music—served with bartender-level hospitality.

Keywords: LGBTQ+ aging, music and memory, Motown, Elton John, MTV, 80s pop, classical music, wellbeing, community, travel & leisure.

A gay senior, Christopher MacLellan, and an ally, Josh Wilson, podcasting about life, love, liberty and travel.

Don’t Say Gay?… Say AgingGayfully®!

AgingGayfully® is about living life with dignity in an age-friendly society regardless of orientation or economic status because longevity is a justice issue.

AgingGayfully® is about finding your voice as we age. We are all part of the aging process and have real connections in diversity.

AgingGayfully® is a modern type of activism that supports the concept of belonging.

AgingGayfully® is about Adventure, Leisure, Travel, being a citizen of the world, traveling to destinations, and being part of the global community as we age and prosper in body, mind, and spirit.

International End of Life Doula Association is Making Dying Better

Tue, 23 Dec 2025 21:30:17 +0000

The International End of Life Doula Association believes everyone deserves compassionate, respectful care at the end of life. Executive Director Doug Simpson is working with the INELDA team to make that happen. Doug’s journey to EOL doula work began with the death of his own father, followed by the birth of his son. Drawn to end of life work, Doug trained as a doula in 2018 and became an INELDA volunteer in 2019. He moved into the Executive Director position in 2022, and has never lost sight of the personal experiences that have guided his work. Reflecting back, Doug realizes the similarities between birth and death, and the deeply spiritual experiences of both these life events. He works with INELDA now to ensure that everyone has access to end of life care, resources to make that death an enriched experience, and education to promote growth and acceptance of the work of end of life doulas.

You can find the work of the International End of Life Doula Association at inelda.org Read more about INELDA Executive Director Douglas Simpson here. Looking to find an INELDA doula in your area? Click here. Find out how EOL doulas serve the seriously ill and dying here. Facebook Instagram

Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

Family Dynamics in Caregiving: Four Essential Tips / Alzheimer’s and Other Dementias

Tue, 23 Dec 2025 21:15:19 +0000

Are you struggling to pull your family together to create a working support system for someone living with dementia? Do you find family members disagreeing on what needs to be done or how to help? You're not alone, and there's a path forward.

We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we've learned that transforming family dynamics into effective teamwork is one of the most challenging—yet most rewarding—aspects of the caregiving journey.

In this episode, we spoke with Dr. Barry Jacobs, a clinical psychologist and family therapist who brings both professional expertise and personal caregiving experience to this conversation. Barry cared for his mother with vascular dementia and his stepfather with Alzheimer's disease for seven years, and he co-authored the AARP Caregiver Answer Book with his wife, psychologist Julia Mayer.

This content aligns with Step 8 of our Navigating Dementia Caregiving Roadmap: Start Planning for the Next Stage of Care, particularly when building your personal support network of family and friends.

Connect with us and share your tips:

Website: https://thecaregiversjourney.org/
Donate: https://give.cornerstone.cc/thecaregiversjourney
Instagram: https://www.instagram.com/thecaregiversjourney/
Facebook: https://www.facebook.com/thecaregiversjourneys/
Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/
Email: sue@thecaregiversjourney.org, nancy@thecaregiversjourney.org

Full Show Notes

https://thecaregiversjourney.org/50-family-dynamics-in-caregiving-four-essential-tips-alzheimers-and-other-dementias/

Additional Resources Mentioned

Barry’s website www.caregiveranswerbook.com
Buy the Caregiver Answer Book on Amazon https://amzn.to/4i9V9ZL
Navigating Dementia Caregiving Roadmap guide https://thecaregiversjourney.org/guides/#guides
Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney

Takeaways

Transforming your family into an effective caregiving team isn’t easy. It’s worth the effort — not just for your loved one with dementia — but for every member of your family.

These four tips provide a framework:

Create consensus (everyone on the same page).
Define an ongoing format for decision making (regular meetings with clear rhythm).
Build a family caregiving plan (who does what and when).
Plan to deal with conflict (don’t let disagreements become disrespectful).

Transforming Caregiving into a Season of Growth

Tue, 23 Dec 2025 21:00:13 +0000

In this episode, Isabel invites listeners to pause, reflect, and imagine their future as caregivers—or as care receivers. Drawing from her experience leading her first Planning Lab for Caregivers and Retirees, she shares how planning for care can be just as meaningful and intentional as planning a trip, a new home, or retirement dreams.

Through a guided journaling and reflection exercise, Isabel encourages listeners to:

Explore their expectations and emotions around caregiving.
Identify the mix of feelings that come with this life stage—honor, sadness, guilt, joy, or overwhelm.
Recognize which emotions they may want to shift, and understand why those emotions are present.
Practice self-kindness and curiosity instead of judgment.

She emphasizes that caregiving is not just about challenges—it can be a season of connection, self-discovery, and love. By reframing emotions and making small changes today, we can create a more compassionate, intentional future for ourselves and those we care for.

Isabel closes by reminding listeners that they deserve love, care, joy, and abundance—and that even small mindset shifts can transform the caregiving journey.

Know Your Person, Know Yourself: Better Dementia Care with Teepa Snow

Tue, 23 Dec 2025 15:00:20 +0000

My guest today is world-renowned dementia expert Teepa Snow, occupational therapist and founder of the Positive Approach to Care, which offers training, services, and resources to families and professionals worldwide.

Teepa has spent decades helping people understand the brain changes behind dementia and, just as importantly, how to support both the person living with dementia and the caregiver.

In our conversation, we discuss strategies for interacting with your care partner from mild cognitive impairment on, what changes and what stays the same, accepting help from others, why knowing your person and knowing yourself are equally essential while providing care and so much more.

TeepaSnow.com

Daughterhood.org

TRANSCRIPT

Looking Ahead: Exciting Upcoming Projects at Tum Coeur

Tue, 23 Dec 2025 14:45:18 +0000

In today’s episode, we take you behind the scenes at Tum Coeur to share an exciting glimpse of what’s coming next. From new podcast series and live workshops to community events and creative collaborations, we’re building meaningful spaces to grow, connect, and care—together.

Whether you’ve been with us from the beginning or you’ve just joined our community, this is the perfect time to tune in and learn about the vision that inspires everything we do. We talk about our goals for the months ahead, the new resources we’re working on for caregivers and families, and how you can be part of the journey.

Don’t miss this episode—it’s full of hope, gratitude, and momentum. The future of Tum Coeur is growing with intention, and we can’t wait to walk this path with you.

Youtube channel

https://www.youtube.com/channel/UCuNZZr8K6hu11-9aSRbhsuQ

To join to our newsletter write an email to:

fer@tumcoeur.com

How a Pediatric Palliative Care Physician Found Spiritual Healing

Tue, 23 Dec 2025 14:30:19 +0000

Trigger Warning: The content of this episode includes narratives about seriously ill children. If you need to sit this one out, catch up with us on another episode and please take time to care for yourself.

In his memoir titled “Because I Knew You: How Some Remarkable Sick Kids Healed a Doctor’s Soul”, Dr. Robert Macauley tells the story of the patients who have impacted his life, and how he’s changed for good. As a pediatric palliative care physician, Bob walks alongside kids and their parents through serious illnesses. Those experiences have shaped who he is, what he believes and how he practices medicine.

Buy your copy of “Because I Knew You: How Some Remarkable Sick Kids Healed a Doctor’s Soul” on Amazon Barnes & Noble Watch Dr. Macaulay’s TEDx talk here.

You can find the Approaching Death Support Kit at bkbooks.com. Find all of Barbara Karnes’ products and resources at bkbooks.com. Read Barbara’s blog at bkbooks.com. Connect with Barbara Karnes on Facebook IG LinkedIn Twitter (X) YouTube

Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

Navigating Grief Throughout Caregiving: Six Essential Tips / Alzheimer's and Other Dementias

Tue, 23 Dec 2025 14:15:19 +0000

Have you noticed yourself feeling sad when your loved one can't remember their phone number? Do you find yourself withdrawing from friends or losing patience more easily? These feelings might be grief—and you may not even realize it's happening.

We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we've learned that grief doesn't only come after our loved one passes away. It's present throughout our entire caregiving journey, from the moment of diagnosis through each individual change along the way.

The good news is that understanding grief—recognizing it, honoring it, and learning to move through it without getting stuck—can transform how we experience our caregiving journey. Today we're sharing six essential tips to help you navigate grief with grace and compassion.

Connect with us and share your tips:

Website: https://thecaregiversjourney.org/
Donate: https://give.cornerstone.cc/thecaregiversjourney
Instagram: https://www.instagram.com/thecaregiversjourney/
Facebook: https://www.facebook.com/thecaregiversjourneys/
Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/
Email: sue@thecaregiversjourney.org, nancy@thecaregiversjourney.org

Full Show Notes

https://thecaregiversjourney.org/47-navigating-grief-throughout-caregiving-six-essential-tips-alzheimers-and-other-dementias/

Additional Resources Mentioned

Guide: Navigating Dementia Caregiving Roadmap: https://thecaregiversjourney.org/guides/
Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney

Takeaways

Read More in This Blog here

Fulfilling Dreams and Empathic Transitions with P.K. Beville

Tue, 23 Dec 2025 13:48:29 +0000

Even though P.K. Beville is considered an expert in psychology and gerontology, she still felt lost and overwhelmed as a dementia caregiver for her dad. P.K. is the founder of Second Wind Dreams, a pioneering nonprofit that fulfills dreams for older adults and champions dignity, hope, and joy in aging. She is the creator of the internationally acclaimed Virtual Dementia Tour®, a training tool that has helped millions better understand and care for those living with dementia. In 2023, she launched Empathic Transitions to support families during end-stage dementia and is currently certifying the first Dementia Doulas.

In this episode of the Happy Healthy Caregiver podcast, we talk about why caring for a loved one in any setting is still tricky, how the phrase ‘I wish’ sparked an uplifting non-profit in the older adult space, where we can find sources for humor and joy, and why the end-of-life experience for those living with dementia is different.

Show notes with product and resource links:

https://bit.ly/HHCPod214

Receive the podcast in your email here:

http://bit.ly/2G4qvBv

Order a copy of Elizabeth's book Just for You: a Daily Self Care Journal:

http://bit.ly/HHCjournal

For podcast sponsorship opportunities contact Elizabeth:

https://happyhealthycaregiver.com/contact-us/

The Happy Healthy Caregiver podcast is part of the Whole Care Network. Rate and Review the podcast:

https://bit.ly/HHCPODREVIEW

Letting Go: Making Space for What Matters

Mon, 22 Dec 2025 07:00:21 +0000

In today’s episode, we take a thoughtful look at the things we hold on to—especially the clothes and belongings that no longer serve a real purpose in our lives. It’s easy to keep items simply because they once worked for us or because they hold sentimental value. But just because something was useful or meaningful in the past doesn't mean it's still helping us thrive today.

We invite you to consider: Do the objects around you bring joy, comfort, or inspiration? Or are they simply taking up space—physically and emotionally?

Letting go isn’t always easy, but releasing what no longer serves us creates room for the new. New energy, new experiences, and new ways of expressing who we are now—not just who we used to be.

This conversation is not just about decluttering a closet. It’s about reflecting on the chapters of life that are ready to be closed, and opening space for what truly supports your well-being and growth.

Join us as we explore how letting go can be an act of healing, self-respect, and even freedom.

Before the Casket Provides Helpful Guidance at End of Life

Sun, 21 Dec 2025 12:30:17 +0000

With honest information and gentle humor, the founders of Before the Casket are teaching us how to plan for more than just funeral arrangements. Hospice nurses Erin Putney and Amy Hensley have designed workshops that educate attendees about hard end of life decisions, empowering them and their decision-makers and making the whole experience easier. Before the Casket also provides education for healthcare professionals, offering content on end of life interventions and compassionate conversations. Nurses can even get CEUs for license renewal.

Amy and Erin provide education that includes demos of medical devices and relaxed interaction. It’s a great way to create realistic expectations for what care at the end of life looks like. You can connect with Before the Casket at beforethecasket.com Check out the courses offered for nurses and other healthcare workers here.

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Social media: Facebook Twitter Instagram LinkedIn

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

From Burnout to Advocacy with Lisa Musselman

Sun, 21 Dec 2025 10:00:22 +0000

Meet Lisa Musselman, a 2025 Elizabeth Dole Foundation Fellow, military caregiver, and passionate advocate for equitable care for veterans and their families. Lisa talks about her caregiving journey supporting her husband Andy, a pre-9/11 Air Force veteran living with ALS, while raising a family and trying to stay afloat herself.

Lisa shares the emotional and physical toll of those early years—missing milestones with her children, struggling to find respite, and putting her own health last. On the brink of burnout, everything changed when skilled nursing entered the home. This support allowed her to rebuild strength through physical therapy, prioritize mental wellness with therapy, and make space for joy through family vacations and visits with friends.

What makes Lisa’s story especially powerful is how she turned adversity into a platform for advocacy. Motivated by a friend’s early encouragement that she would “become a voice” for others impacted by ALS, Lisa now champions policy and support changes for military caregivers across the country. She firmly believes that veteran care should not be determined by zip code—and she’s fighting to make that a reality.

In this inspiring episode, we cover:

The real cost of caregiving on health, time, and family
Lisa’s self-care strategies for physical and mental recovery
Why caregiving support can be life-changing—not just for the veteran, but for the whole family
How Lisa stepped into her role as a caregiver advocate
The urgent need for fair, accessible veteran care across the U.S.

Lisa’s story will resonate with anyone who has felt isolated or overwhelmed in their caregiving role—and it’s a powerful example of how self-care and advocacy can go hand in hand.

Wine, Women, & Dementia: Building Caregiver Community with a side of Humor – With Kitty Norton

Sat, 20 Dec 2025 11:00:19 +0000

Welcome to the fourth film discussion in AlzAuthors' 10th Anniversary Film Festival. This powerful episode features a deep-dive into the documentary "Wine, Women & Dementia,” and offers community, validation, practical wisdom, and a celebration of caregivers.

Meet Kitty Norton, creator and director of "Wine, Women & Dementia." After leaving her television career in Los Angeles, Kitty returned to Portland, Oregon to care for her mother with dementia. From her experience she later crafted this touching film to honor family caregivers and raise authentic awareness of dementia’s impact.

Kitty’s film has won awards and is used by medical organizations for staff training. It’s a must-watch for caregivers, healthcare professionals, and anyone interested in the realities of dementia care. Learn about her journey, the healing power of humor, and the importance of support networks for caregivers everywhere.

Why This Episode Matters

Dementia Caregiving Resources: Gain firsthand advice and inspiration from those who’ve traveled the road of dementia caregiving.
Film Festival Celebration: Discover why film is a powerful medium for sharing caregiving wisdom and breaking the stigma around dementia.
Empowering Community: Learn how blogging, filmmaking, and online support groups are changing the landscape for caregivers.
Real Talk: The podcast doesn’t shy away from tough topics—money dilemmas, family dynamics, humor in adversity, and finding community.

Key Takeaways

Validation & Connection: As shared by Kitty Norton, "Wine, Women & Dementia" helps caregivers feel seen, heard, and supported. Audience feedback shows viewers finally feel understood and less alone.
Community Building: The episode highlights how caregivers form lasting friendships and essential support systems—online, through art, and in local groups.
The Power of Humor: Humor is a key theme. Listeners will find real stories of finding laughter and lightness, even amidst difficult caregiving situations.
Practical Advice: From navigating support groups to honoring the dignity of people with dementia, the conversation offers lots of tips for caregivers.

Connect & Learn More

Find and follow Kitty Norton on social media: LinkedIn, Instagram, Facebook, TikTok
Visit WWD to learn more about the film and how to schedule a screening event

Connect with AlzAuthors:

Learn about the Moderators

Marianne Sciucco

Christy Byrne Yates

About the Podcast

AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our mission is to lift the silence and stigma surrounding Alzheimer’s and other dementias. The Untangling Alzheimer’s and Dementia Podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys.

Thanks for listening.

We are a Whole Care Network Featured Podcast

Proud to be on The Health Podcast Network

Find us on The World Podcast Network and babyboomer.org

Want to be on the podcast? Here’s what you need to know

We've got merch! Shop our Store

Lousy: Love in the Time of Dementia—A Son's Caregiving Story Seen Through Film

Sat, 20 Dec 2025 10:45:18 +0000

In this special film festival episode celebrating the 10th anniversary of AlzAuthors, hosts Marianne Sciucco and Christy Byrne Yates welcome filmmaker Frank Silverstein for an intimate discussion about his documentary, “Lousy: Love in the Time of Dementia.” Frank shares his journey capturing the realities of caring for both parents with dementia, offering raw insight, practical wisdom, and hope for caregivers and families living with this disease.

Featured Guest:

Frank Silverstein – Veteran TV producer, author, and filmmaker. Creator of “Lousy: Love in the Time of Dementia”, a deeply personal iPhone-shot documentary chronicling his parents’ decline and the challenges of caregiving.

Key Discussion Topics:

Behind the Film: Frank reveals how his career in news documentaries shaped his approach to filming, and why he began documenting the “real” moments with his parents as their dementia progressed.

Caregiving Realities: The episode explores the confusion, unpredictability, and emotional complexity of caring for loved ones with dementia—including dealing with repeated questions, behavioral changes, and sibling dynamics.

Honoring the Person: Frank shares poignant memories of his parents’ lives before dementia, and discusses how core personality traits can persist even as the disease changes so much else.

Sibling Care Teams: An honest look at family caregiving logistics, relationships, and the value of supporting one another—not just the person with dementia, but also fellow caregivers.

Film Festival Details: For those registered for the AlzAuthors Film Festival, they can watch “Lousy: Love in the Time of Dementia” and other festival films through the end of the year.

Memorable Quote:

“It’s very isolating when you’re taking care of your parents. There’s nobody really that’s going to help you... you have to figure out your path out of there.” —Frank Silverstein

Resources:

Contact Frank Silverstein: www.franksilverstein.com

AlzAuthors Podcast, “Caring for Two Parents with Dementia at the Same Time”

Next Up:

Join the next film festival discussion on Wine, Women, & Dementia by Kitty Norton — details and links on the AlzAuthors website

Learn about the Moderators

Marianne Sciucco

Christy Byrne Yates

About the Podcast

We are a 501(c)(3) charitable organization. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias.

Thanks for listening.

We are a Whole Care Network Featured Podcast

Proud to be on The Health Podcast Network

Find us on The World Podcast Network and babyboomer.org

Want to be on the podcast? Here’s what you need to know

We've got merch! Shop our Store

No Country for Old People: Filmmaking for Change in Nursing Homes with Susie Singer Carter

Sat, 20 Dec 2025 10:30:19 +0000

Celebrate a decade of AlzAuthors with this replay of a film discussion from our first film festival! Marianne Sciucco and the AlzAuthors community gathered to discuss Susie Singer Carter's documentary series No Country for Old People, inspired by her painful but illuminating journey alongside her mother in a five-star Los Angeles nursing facility.

Key Topics

Behind the Film: Susie shares what drove her to make No Country for Old People, highlighting the persistent systemic crises in long-term care and her struggle to advocate for her mom within a broken system.
She discusses both personal and policy challenges—from underfunding and understaffing to navigating Medicaid and family caregiver roles.
Caregiving Realities: Multiple audience members and guests brought their own lived experiences—from those who have placed loved ones in care homes to those doing the daily grind at their side.
Honest input covers the isolation and exhaustion of caregiving, the guilt and judgments faced, and the varied trajectories and needs of those with dementia.
Systemic and Cultural Barriers: The episode reveals the complexities behind facility care: understaffing, high turnover, the business model of elder care, and how profit-driven motives can lead to neglect, overmedication, and a lack of dignity for residents.
Advocacy and Taking Action: Susie announced the ROAR initiative—Respect, Oversight, Advocacy, and Reform for Long Term Care. She stresses the urgent need for grassroots collective action and oversight to drive meaningful change for people living with dementia and their caregivers.

Standout Quotes from Susie Singer Carter

“Love is super powerful. I think it’s our greatest tool.”
“Documentaries are not money makers. They are changemakers at best.”
“We have a broken system... But it’s so important to know what’s out there and what’s really happening.”

Takeaways

Caregiver stories are unique—what works (or doesn’t) varies case by case.
The importance of advocacy and family involvement doesn’t end with placement in a facility; sometimes, it increases.
Systemic reforms are desperately needed, and community effort can move the needle.
Connection, creativity, and compassion remain vital tools in the caregiving journey.

Next Up

Tune in to the upcoming episode with Frank Silverstein as he discusses his short film, Lousy: Love in the Time of Dementia, and continue engaging with films that capture the real, raw, and sometimes uplifting world of dementia caregiving.

Join the film festival

Resources Mentioned

Listen & Watch: Find film festival films, replays, and podcast episodes on alzauthors.com
Listen to Susie's Love Conquers Alz Podcast
Watch My Mom and the Girl (short film)
Watch No Country for Old People (docu-series)
Get Involved with ROAR
Subscribe to the AlzAuthors newsletter and follow us on social media (@alzauthors on Facebook, Twitter/X, Instagram, LinkedIn, Pinterest, Bluesky).

Learn about the Moderators

Marianne Sciucco

Christy Byrne Yates

About the Podcast

Thanks for listening.

We are a Whole Care Network Featured Podcast

Proud to be on The Health Podcast Network

Find us on The World Podcast Network and babyboomer.org

Want to be on the podcast? Here’s what you need to know

We’ve got merch! Shop our Store

Planet Alzheimer’s: Film, Poetry, and the Human Spirit with Mary Crescenzo

Sat, 20 Dec 2025 10:15:19 +0000

Welcome to a special episode of the AlzAuthors podcast, part of our first-ever Film Festival! Celebrating our 10th anniversary, host Marianne Sciucco sits down with acclaimed arts educator, author, and filmmaker Mary Crescenzo to explore the transformative role of the arts in dementia care.

In this heartfelt conversation, Mary shares her journey from early experiences in nursing homes to the creation of her poetic play-turned-film, "Planet A." We discuss her innovative, age-blind casting, the real-life stories inspiring her work, and practical strategies caregivers can use to bring arts engagement into dementia care—at home or in care facilities.

Whether you’re navigating Alzheimer’s in your family, working in dementia care, or seeking creative approaches to foster dignity and connection, this episode is filled with inspiring insights and actionable tips.

Key Topics Covered:

Dementia Care & the Arts: Mary describes how music, visual art, dance, storytelling, and poetry can spark joy, communication, and connection for people living with dementia.
How the Arts Can Reduce Isolation: Real examples showing that engaging in the arts can counteract boredom, boost mood, and foster community in care settings.
Art Activities for Caregivers: Practical advice and encouragement for caregivers to use arts engagement at home—even if you don’t see yourself as an artist!
Readings from the Film: Moving excerpts from Mary’s poetry, capturing the emotional landscape of people living with dementia and their caregivers.

Quotes:

“Everyone should be engaged in the arts to whatever level, because it’s so beneficial to heart and mind and life.” – Mary Crescenzo
“Boredom is huge. People decline when they’re bored. But you give them something creative, they light up.” – Marianne Sciucco
“You don’t have to be an artist to make a difference – just pick up a pencil, sing together, or sway to music.” - Mary Crescenzo

Takeaways:

Try simple creative activities—drawing, music, singing, storytelling—regularly, not just once.
Don’t let fear or “not being an artist” stop you. The benefits are in doing, not perfection.
Engaging in the arts brings meaning, dignity, and even joy to those living with dementia.
The arts can transform not only the person with dementia but also relieve and uplift caregivers.
Seek out support, community, and inspiration—you are not alone!

Resources and Links:

Watch "Planet A" – available until year-end on YouTube. Register at AlzAuthors.com to receive link
Buy Mary Crescenzo’s Book: "The Planet Alzheimer’s Guide – 8 Ways the Arts Can Transform the Life of Your Loved One and Your Own" on Amazon
Visit AlzAuthors Website for a wealth of caregiver resources
Learn about Creative Writing Workshops for Caregivers: Contact Mary Crescenzo
Subscribe to our Podcast: Available on Apple, Spotify, Amazon Music, Pandora, iHeartRadio and more.
Follow AlzAuthors on Social: Facebook, Instagram, LinkedIn, Pinterest, Twitter/X and Blue Sky for daily support, book recommendations, and community stories.

Don’t miss our continuing film festival—visit our website for upcoming screenings, panel discussions, and more creative resources for the dementia journey.

If you found this episode helpful, subscribe, share, and leave us a review! For more stories and support, visit alzauthors.com.

Meet the Moderators

Marianne Sciucco

Christy Byrne Yates

About the Podcast

AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others.

Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys.

Proud to be a Whole Care Network Featured Podcast

Want to be on the podcast? Here’s what you need to know

Shop our Store

Shining a Light on Alzheimer's and Dementia: The AlzAuthors Film Festival

Sat, 20 Dec 2025 10:00:19 +0000

Join AlzAuthors Film Fest 2025 – Celebrating 10 Years of Dementia & Alzheimer’s Awareness

Experience powerful films on dementia, Alzheimer’s, and caregiving—stories of hope, love, and resilience.

Register now at AlzAuthors.com to receive streaming links and watch from the comfort of your home, anytime. Each month, meet a featured filmmaker in a live Q&A event at 2 PM ET, and explore their journey as storytellers and dementia care advocates.

Don’t miss this unique opportunity to connect, learn, and be inspired in the fight against Alzheimer’s.

Sept 8: Mary Crescenzo, “Planet A”

Find out more about Mary Crescenzo

https://alzauthors.com/alzheimers/mary-crescenzo-planet-alzheimers-guide/

Sept 22: Susie Singer Carter, “No Country For Old People”

Find out more about Susie Singer Carter

https://alzauthors.com/alzheimers/behind-the-scenes-of-nursing-homes-one-filmmakers-crusade-for-change-with-susie-singer-carter/

Oct. 6: Frank Silverstein, “Lousy: Love in the Time of Dementia”

Find out more about Frank Silverstein

https://alzauthors.com/dementia/frank-silverstein-lousy-love-in-the-time-of-dementia/

Nov 10: Kitty Norton., “Wine, Women and Dementia”

Find out more about Kitty Norton

https://alzauthors.com/alzheimers/please-join-us-next-month-at-the-2024-dementia-arts-festival-in-new-york-city/

Dec 8: C. Nathaniel Brown and his film, “The Present”

Find out more about C. Nathan Brown

www.ExposeDementia.org

Join the Newsletter:

https://sendfox.com/alzauthors

Learn about the Moderators

Marianne Sciucco

https://alzauthors.com/alzheimers/meet-marianne-sciucco-alzauthors-admin-and-author-of-blue-hydrangeas-an-alzheimers-love-story/

Christy Byrne Yates

https://alzauthors.com/books-chit-chat/christy-byrne-yates-on-raising-kids-while-caring-for-parents-with-dementia/

About the Podcast

AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys.We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias.To sustain our efforts please donate here: https://alzauthors.com/donate

We are a Whole Care Network Featured Podcast

Proud to be on The Health Podcast Network

Find us on The World Podcast Network

Want to be on the podcast?

Here’s what you need to know:

We’ve got merch! Shop our Store

Navigating Dementia Caregiving Roadmap: Messy Middle Steps 11-17 / Alzheimer’s and Other Dementias

Fri, 19 Dec 2025 20:05:08 +0000

Have you moved beyond the initial steps of your caregiving journey and now find yourself needing to take more control while your loved one still believes they can do most things independently? Are you noticing that simple tasks are becoming increasingly challenging for them, yet they resist your help? You’re not alone! You’ve entered what we call the “messy middle” stage of your caregiving journey.

We created for you the comprehensive, 20-step caregiving journey roadmap guide, Navigating Dementia Caregiving Roadmap

Connect with us and share your tips:

Website: https://thecaregiversjourney.org/
Donate: https://give.cornerstone.cc/thecaregiversjourney
Instagram: https://www.instagram.com/thecaregiversjourney/
Facebook: https://www.facebook.com/thecaregiversjourneys/
Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/
Email: sue@thecaregiversjourney.org, nancy@thecaregiversjourney.org

Full Show Notes

Additional Resources Mentioned

Messy Middle

First Steps - You recognize it’s time to assert more control

11. Focus on safety.

Listen to these podcasts or read these blogs.
Home Alone - Hear about the deal breakers for living home alone:
21 minute TCJ podcast: 6. Home Alone
TCJ blog: 6. Home Alone.
Medication - Understand strategies to safely manage medication:
20 minute TCJ podcast: 20. Medication Management
TCJ blog: 20. Medication Management.
Home Safety - Find approaches to the basics of home safety:
25 minute TCJ podcast: 7. Home Safety
TCJ blog: 7. Home Safety
Wandering - Learn ways to manage three types of wandering: outside, inside and during the night.
20 minute TCJ podcast: 4. Wandering
TCJ blog: 4. Wandering.

12. Continue to prioritize your self-care.

Understand how to approach the realities of self-care:
23 minute TCJ podcast: 27. The Realities of Caregiver Self-Care
TCJ blog: 27. The Reality of Caregiver Self-Care.

13. Educate yourself on activities of daily living (ADLs).

Prepare for changes in your loved ones ability to manage their ADLs.
Listen to these podcasts or read these blogs on activities of daily living:
26 minute TCJ podcast: 9. Preparing for Incontinence
TCJ blog: 9. Preparing for Incontinence
21 minute TCJ podcast: 14. Bathing and Dressing
TCJ blog: 14. Bathing and Dressing
21 minute TCJ podcast: 15. Personal Care e.g. brushing teeth, trimming hair
TCJ blog: 15. Personal Care
21 minute TCJ podcast: 16. Eating and Drinking
TCJ blog: 16. Eating and Drinking.

14.Create a Care Plan - at minimum a Family Emergency Plan.

25 minute TCJ podcast: 33. How to Create a Care Plan
TCJ blog: 33. Creating a Care Plan.

Messy Middle - Continued

Second Steps - It’s time for more support

15. Start or increase leveraging dementia/adult day programs.

Community resource finder:
Select Community Services and choose Adult Day Centers for your search.

16. Start thinking about professional help.

Educate yourself:
Evaluate continuing care communities (even if you never plan to use one) just in case.
33 minute TCJ podcast: 28. Home and Community Living Options
TCJ blog: 28. Home and Community Living Options.
Understand the types of paid caregivers:
26 minute TCJ podcast: 32. Hiring a Paid Caregiver
TCJ blog: 32. Hiring a Paid Caregiver.
Find an organization to help. Search online: ‘Senior Care Advisor’ + ‘your area’.
Look for options yourself. Go to the Community Resource Finder sponsored by the Alzheimer’s Association and AARP.

17. Continue your education.

Take the Savvy Caregiver Advanced training (this can be taken in-person or virtually).
Delusions:
38 minute TCJ podcast: 23. Delusions
TCJ blog: 23. Delusions.
Incontinence:
26 minute TCJ podcast: 10. Incontinence Begins
TCJ blog: 10. Incontinence Begins.

Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney

How a Quality of Life Navigator Improves Patient Outcomes

Fri, 19 Dec 2025 20:03:24 +0000

DNP Elena Prendergast is empowering people with serious illness to find their voices, and advocate for their best quality of life. Working with patients who are dealing with end of life issues showed her how much extra support is needed, even when there’s a healthcare team providing care. Elena helps clients navigate the confusing maze of the US healthcare system. She listens to what they think is important, and equips them with the tools to make their needs and wishes known. Her education as a doctorally prepared nurse practitioner with extensive experience in palliative care, additional training in trauma/resilience, and the sacred work of an end-of-life doula provides a unique perspective of the needs of clients with serious-illness.

If you’re a patient, a caregiver or loved one, or a long-distance caregiver, you can work with Elena at Tree of Life Health Consultant by visiting treeoflifehealthconsultant.com. Connect with Elena Prendergast, DNP on social media: Facebook Instagram LinkedIn

Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

Claiming the Care Role with Dan Contreras

Fri, 19 Dec 2025 20:03:00 +0000

Dan Contreras is a U.S. Army veteran, proud husband, and devoted caregiver to his wife, Teresa. After years of service and leadership with DAV (Disabled American Veterans)—including his role as National Commander—Dan has become a strong advocate for both caregivers and care receivers.

Like many military spouses and family members, Dan didn’t initially see himself as a “caregiver.” That changed when, as a DAV leader, he sought to better understand the DAV’s Caregiver Support Program by completing the onboarding process. Now, he’s on a mission to raise awareness and provide resources for the 70% of veterans who are caring for loved ones.

In this episode of the Happy Healthy Caregiver podcast, Dan shares:

The resources DAV offers to support veterans who are also caregivers
How his perspective on self-care has shifted as Teresa’s cancer journey has progressed
The creative outlets he and Teresa enjoy together, including Legos, crafts, and hobbies that bring them joy
How something as simple as a karaoke app helps him relieve stress and recharge

Show notes with product and resource links:

http://bit.ly/HHCPOD216

Receive the podcast in your email here:

http://bit.ly/2G4qvBv

Order a copy of Elizabeth's book Just for You: a Daily Self Care Journal:

http://bit.ly/HHCjournal

For podcast sponsorship opportunities contact Elizabeth:

https://happyhealthycaregiver.com/contact-us/

The Happy Healthy Caregiver podcast is part of the Whole Care Network. Rate and Review the podcast:

https://bit.ly/HHCPODREVIEW

AgingGayfully® Finding Yourself at Any Age

Fri, 19 Dec 2025 11:30:21 +0000

In this episode of AgingGayfully®, hosts Chris and Josh discuss health updates, personal growth, and the importance of stepping into one's comfort zone. Chris shares his recent experiences with artistic expression and how it has helped him rediscover himself. The conversation reflects on life lessons, regrets, and the significance of using one's talents and skills.

Takeaways

Life does not stop when we get sick.
Stepping into your comfort zone can lead to personal growth.
Artistic expression can help rediscover oneself.
It's important to use your talents and skills.
Reflecting on life can help identify what truly makes you happy.
There are no regrets, only lessons learned.
Finding the right environment can foster growth.
Everyone has a story worth sharing.
Engaging with the community can lead to meaningful connections.
Happiness often comes from using your innate talents.

Share your story or drop a line: yesiam@aginggayfully.com

Like, subscribe, and ring our bell (figuratively or otherwise).

Let’s AgeGayfully® together, with intention, humor, and each other.

A gay senior, Christopher MacLellan, and an ally, Josh Wilson, podcasting about life, love, liberty and travel.

Don’t Say Gay?… Say AgingGayfully®!

AgingGayfully® is about living life with dignity in an age-friendly society regardless of orientation or economic status because longevity is a justice issue.

AgingGayfully® is about finding your voice as we age. We are all part of the aging process and have real connections in diversity.

AgingGayfully® is a modern type of activism that supports the concept of belonging.

AgingGayfully® is about Adventure, Leisure, Travel, being a citizen of the world, traveling to destinations, and being part of the global community as we age and prosper in body, mind, and spirit.

Navigating Dementia Caregiving Roadmap: In the Beginning Steps 7-10 / Alzheimer’s and Other Dementias

Fri, 19 Dec 2025 11:30:19 +0000

Have you completed the first six essential steps of the comprehensive 20-step caregiving journey roadmap guide Navigating Dementia Caregiving: Your Resource Roadmap for Every Stage? Are ready to take on more? Do you find yourself wanting to learn faster and more easily than trying to figure everything out on your own? If you answered ‘Yes’, you’re in the right place for the next phase of the dementia “In the Beginning” journey.

We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned that building knowledge, and preparing for progression, are crucial for sustainable caregiving. We recently talked with Jenny Gay, licensed clinical social worker with Emory Integrated Memory Care, about our comprehensive 20-step caregiving journey roadmap guide: Navigating Dementia Caregiving Roadmap. In this podcast, we’re sharing steps 7–10.

Connect with us and share your tips:

Website: https://thecaregiversjourney.org/
Donate: https://give.cornerstone.cc/thecaregiversjourney
Instagram: https://www.instagram.com/thecaregiversjourney/
Facebook: https://www.facebook.com/thecaregiversjourneys/
Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/
Email: sue@thecaregiversjourney.org, nancy@thecaregiversjourney.org

Full Show Notes

https://thecaregiversjourney.org/44-navigating-dementia-caregiving-roadmap-in-the-beginning-steps-7-10-alzheimers-and-other-dementias/

Additional Resources Mentioned

Navigating Dementia Caregiving Roadmap Guide

In the Beginning - continued

Next Steps - You are ready for more

7. Continue your education:

Take the Savvy Caregiver course in person or online.
Read this magazine:
Mayo Clinic Living with dementia: A guide to caregiving and support.
Find and take a virtual dementia tour near you. In the United States, in your search engine, type ‘virtual dementia tour’ + ’your state’. For example: ‘virtual dementia tour Florida’ or, outside the US, replace your state with your country.

8. Start planning for the next stage of care.

Build your personal support network:
21 minute TCJ podcast: 40. Create Your Personal Support Network
TCJ blog: 40. Create Your Personal Support Network.
Find and try a memory cafe (Caregivers and care receivers go together).
Investigate dementia day centers (also known as adult day centers that include dementia care programs) for your care receiver. Community resource finder:
Select Community Services and choose Adult Day Centers for your search.
Ask your loved one’s medical team for a home safety assessment.
The goal is to have someone evaluate your home for safety and dementia care needs.
This is usually available through palliative care, GUIDE program, or an order from a physician.
You can get a free assessment from social services with this order, or you can pay for an independent assessment from a private organization.

9. Investigate your local government community support:

In the US, contact your local Area Agency on Aging. Search for yours at Eldercare.acl.gov or call 1-800-677-1116.
Call and set up a screening for eligibility:
They will point you to any free government services where you are eligible.
Be sure to find out if you are eligible to get paid to be a caregiver.

10. Evaluate driving risks.

Some US states have specific requirements for individuals with dementia to report their diagnosis and potentially undergo driving evaluations.
Listen to this podcast or read this blog:
21 minute TCJ podcast: 5. Taking Away the Keys
TCJ blog: 5. Taking Away the Keys.

Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney

Takeaways

The Three Stages of the Dementia Caregiving Journey

1. In the Beginning - Your loved one receives a diagnosis.

2. The Messy Middle - You begin asserting control; this is when it gets messy!

3. Later On - You are managing all aspects of their care.

How to Find Hope When the Burnout is Real

Fri, 19 Dec 2025 11:15:20 +0000

Palliative physician Emma Jones knows the real effects of burnout, and now she’s coaching others to rise from the ashes. While working in a high-pressure pediatric palliative care job, she found herself suffering the fallout of severe burnout. Emma was told to go home and figure out what was going on, but she realized there was no guide for how to do that. She began dealing with depression, trying to rebuild her self care. The care started with yoga, and grew to include healthy habits including daily movement, therapy, rest, and boundary setting. She calls them “small, radical changes”. Emma wanted to give other people a way out of their own burnout and validate their experiences. Her book The Phoenix Blueprint: Emerging Stronger From The Blaze of Healthcare, shares the skills and practices that have allowed her to emerge stronger from burnout and rediscover her calling to serve patients and colleagues. The Phoenix Blueprint provides a step-by-step guide to help those in healthcare rise like a phoenix from the ashes.

Connect with Dr. Emma Jones: LinkedIn Facebook Instagram Website: emmajonesmd.com Work with Dr. Jones to reclaim your career from burnout. Purchase your copy of The Phoenix Blueprint: Emerging Stronger From The Blaze of Healthcare here.

Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Social media: Facebook Twitter Instagram LinkedIn Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

What It's Really Like Two Years After a Cancer Diagnosis

Fri, 19 Dec 2025 11:00:21 +0000

In this intimate and heartfelt episode of I Saved You. Now Do the Dishes podcast, Carrie sits down with her husband, Gavin—the very person who inspired this podcast after his head and neck cancer diagnosis two years ago. With honesty, humor, and the kind of raw vulnerability that only comes from living through it, they revisit the milestone that changed everything.

Carrie and Gavin unpack the days leading up to his diagnosis: a strange lump, escalating worry, and the surreal contrast of preparing to host their very first Thanksgiving while bracing for news that would upend their lives. Carrie shares what it was like to sit in the waiting period of uncertainty. Gavin opens up about hoping—really hoping—that the whole thing was nothing more than a big, stubborn boil.

Together, they reflect on how fear, denial, intuition, partnership, and even humor carried them through that chapter. This episode is a testament to resilience, love, and the unseen emotional labor of caregiving and being cared for —spouse style.

If you’ve ever navigated a medical unknown, stood in the tension between hope and fear, or loved someone through a life-altering moment, this conversation is for you.

Caregiving, End-of-Life and Pop Culture with Shoshana Ungerleider, M.D.

Fri, 19 Dec 2025 10:20:20 +0000

Dr Shoshana Ungerleider, is a board-certified internal medicine physician, science journalist, and passionate advocate for compassionate end-of-life care.

She hosts and produces TED Health and the NY Radio Award–winning podcast Before We Go, and founded the End Well Foundation to make end of life a part of life. Shoshana regularly appears as a medical expert on CNN, MSNBC, and CBS News, with bylines in TIME, USA Today, Scientific American, and more. She executive produced the Oscar-nominated Netflix film End Game, funded the Emmy-winning Extremis, and produced Robin’s Wish, about the final years of Robin Williams.

In this episode, we explore how popular culture and healthcare meet—how film, media, and storytelling shape the way we see end-of-life, grief, loss, and caregiving—and we’ll hear Shoshana’s story of caring for her father through cancer. From documentaries to news headlines, including EndWell’s part in consulting on HBO’s Emmy winning drama The Pitt, these cultural moments guide how we talk about death, support those we love, and face our own final chapters.

TRANSCRIPT with resources

Daughterhood

The Unexpected Caregivers: Three Sons Reflect on Caring for Mothers With Dementia

Fri, 19 Dec 2025 10:10:19 +0000

In a conversation that challenges stereotypes and brings to light the unexpected realities of caregiving, this episode reveals the experiences of three men who stepped up to care for their mothers with dementia. It's a heartfelt exploration of grief, growth, and the bonds that are both tested and strengthened through caregiving.

Shattering Stereotypes: Men as Caregivers

We often associate caregiving with daughters, wives, and sisters, yet over 40% of caregivers are men. Many of them, like guests David Bredbenner, Alfredo Botello, and Vincent Zappacosta, find themselves in this role simply because "there really was no other option." Their stories reveal that caregiving isn’t just a woman’s job—it’s a human one.

Vincent shares, “My mother and I were always close and I just didn’t trust anyone else to take care of her, because nobody knew her as well as I did.” David talks about “reacting, firefighting, and suddenly you’re just drawn in, and before you know it, it becomes part of your routine.” Alfredo, navigating life as an only child, speaks honestly about how necessity and love for his mother collided the moment his stepfather passed away.

Lifestyle Overhauls and Personal Sacrifice

For each son, caring for their mothers led to seismic shifts in their daily lives. Plans are always tentative, boundaries are tested, and a new form of “parenting” emerges. As Alfredo vividly describes: “Nobody told me growing up that I'd have another kid in my 50s—only she’d be in her 80s and have opinions!” From rearranging work schedules to leaving reassuring Post-its for an anxious parent, the logistics become second nature, though the emotional toll lingers.

The men openly discuss balancing frustration, guilt, and even resentment with deep love. They offer comfort in recognizing that no one is “superhuman”: “It’s almost like we do expect ourselves to be perfect...and that never happened,” Christy reflects.

While the stories in “Sons Caring for Mothers” circle around men, the lessons ring true for anyone on a caregiving journey. There are no perfect solutions, only the imperfect, beautiful bonds of love, memory, and forgiveness.

After the Podcast

Learn more about David, Vincent, and Alfredo and purchase their books here.

Learn about the Moderators

Marianne Sciucco

Christy Byrne Yates

About the Podcast

We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias.

To sustain our efforts please donate here

Thanks for listening.

We are a Whole Care Network Featured Podcast

Proud to be on The Health Podcast Network

Find us on The World Podcast Network and babyboomer.org

Want to be on the podcast? Here’s what you need to know.

We’ve got merch! Shop our Store

Understanding Grief: Giving Space to What Was Lost

Fri, 19 Dec 2025 10:00:22 +0000

In today’s episode of A Time to Care: The Caregivers Podcast, we welcome grief expert Danielle Southwick for a heartfelt and enlightening conversation on one of the most universal yet often misunderstood experiences: grief.

Danielle reminds us that grief is a normal and natural part of life—it’s not something to hide, fix, or rush through. She expands our understanding of grief by explaining that it doesn’t only come from the death of a loved one. Grief shows up in many forms:

Tangible losses, such as the death of someone close, graduating from school, or relocating to a new city.
Intangible losses, like losing a sense of identity, confidence, faith, or emotional connection.
Disenfranchised grief, a type of loss that isn’t always recognized or validated by society—for example, mourning the death of a public figure or a pet, or feeling grief over a relationship that others might not have seen as significant.

Danielle explains that the grieving process is deeply personal and complex. It’s not just about what we’ve lost—it’s also about the unspoken words, the dreams that were never fulfilled, the roles we no longer play, and the parts of ourselves that don’t feel heard.

The healing process begins with a small but essential step—what she calls the 1%. It’s the decision to acknowledge the grief and allow ourselves to feel it. That small act of courage can open the door to greater healing. As Danielle says, "The rest will come, but the first step must be yours."

This episode is a powerful reminder that grief is not a weakness—it's part of being human. Whether you're grieving a person, a season of life, or an old version of yourself, there’s space for your feelings, and healing is possible.

Join us for this deeply compassionate conversation about how to give yourself—and others—permission to grieve and the grace to heal.

Overcoming Caregiving and Relationship Problems with Barry Jacobs

Fri, 19 Dec 2025 10:00:22 +0000

Our guest is Barry J. Jacobs — he’s a clinical psychologist and author based just outside of Philly who has a real heart for supporting family caregivers. And that passion is personal. Barry’s caregiving journey started young — when he was just 14, his dad was diagnosed with brain cancer and sadly passed away the following year. That experience shaped the direction of his life and career. Later, from 2010 to 2017, Barry stepped into the caregiving role again — this time for his stepfather, who had Alzheimer’s, and his mom, who was living with vascular dementia. He truly understands the emotional rollercoaster that comes with caregiving and has spent his career helping others navigate it with more support and less guilt.

In this episode, we discuss two of his books, co-written with his wife, one on love and relationships after 50, and one focused on addressing common family caregiving questions. We delve deeper into the topics of guilt, family dynamics, and self-care. Barry has much personal and professional wisdom to share, especially when it comes to self-kindness, using more honey and less vinegar, balancing ‘me time’ and ‘we time,’ and spreading ‘You Got This’ confidence throughout the caregiving community.

Show notes with product and resource links:

https://bit.ly/HHCPod213

Receive the podcast in your email here:

http://bit.ly/2G4qvBv

Order a copy of Elizabeth's book Just for You: a Daily Self Care Journal:

http://bit.ly/HHCjournal

For podcast sponsorship opportunities contact Elizabeth:

https://happyhealthycaregiver.com/contact-us/

The Happy Healthy Caregiver podcast is part of the Whole Care Network. Rate and Review the podcast:

https://bit.ly/HHCPODREVIEW

Unbreakable Bonds: Jennifer Sullivan on Healing, Hope, and Hard Choices Through Dementia Care

Thu, 18 Dec 2025 22:00:20 +0000

Caregiving isn’t always a storybook journey, especially when family ties are already frayed. In this candid, emotionally charged episode, Jennifer Sullivan joins Christy Byrne Yates and Jean Lee, an acquisitions editor at AlzAuthors, to share her raw and inspiring account of caring for her mother with Alzheimer’s—through complicated family dynamics, financial crises, and the unique heartbreak of the COVID-19 pandemic.

Discover how Jennifer turned deep childhood wounds and a rocky mother-daughter relationship into unexpected healing and clarity. Hear about her struggles with sibling responsibility, navigating Medicaid and memory care, and finally, the bittersweet reconnection with her mom just as the world—and their contact—shut down. Jennifer and the hosts dive deep into how dementia can shift family roles and reveal unspoken truths, the unexpected gifts that can emerge from even the most difficult relationships, and the importance of self-compassion on the caregiving journey.

Top Takeaways:

Navigating Dementia With a Difficult Parent
Jennifer’s memoir explores caring for a parent when love is complicated by past betrayals and painful memories.
Unfiltered Look at Sibling Dynamics
Learn how sibling estrangement and differing responsibilities can complicate caregiving, and how to cope when support isn't reciprocal
COVID’s Impact on Alzheimer’s Families
A gripping account of forced separation, window visits, and the heartache—and hope—of loving at a distance.
Finding Redemption and Healing Through Care
Jennifer’s story proves that deep wounds can sometimes make way for unexpected healing, hope, and even joy.
Actionable Advice for Caregivers
Insights on navigating social services, setting boundaries, and the importance of storytelling and journaling for resilience.

Memorable Quotes:

“All the pressure I put on myself was taken away...not being afraid to just love has been one of the biggest gifts.”

Where to Find Jennifer:

Connect with AlzAuthors:

Learn about the Moderators

Marianne Sciucco

Christy Byrne Yates

About the Podcast

To sustain our efforts please donate here: https://alzauthors.com/donate

Thanks for listening.

We are a Whole Care Network Featured Podcast

Proud to be on The Health Podcast Network

Find us on The World Podcast Network and babyboomer.org

Want to be on the podcast? Here’s what you need to know:

We've got merch! Shop our Store

Healing What We Inherit: Understanding Generational Trauma with Eve Buck

Thu, 18 Dec 2025 19:31:19 +0000

In today’s episode, we speak with Eve Buck, an expert in generational trauma—the emotional and psychological wounds that are passed down from one generation to the next.

Eve helps us understand that trauma isn’t always caused by a single event. Sometimes, it’s inherited. We may carry the weight of experiences we didn’t personally live through, but that were passed to us through learned behaviors, emotional responses, and even family silence. These patterns often show up in our lives as chronic stress, anxiety, over-vigilance, or feelings of fear or mistrust, even when there's no clear explanation for them in our own personal history.

Much of this is rooted in what Eve calls “direct parenting.” The way we were raised, the emotional environments we grew up in, and the unspoken rules or expectations within families all play a role. When trauma is unprocessed in one generation, it can shape the next through coping mechanisms, belief systems, and relational dynamics.

But there’s good news—awareness is the first step to healing. Eve shares insights on how to recognize generational trauma in your own life and offers tools to begin breaking harmful cycles. Whether it’s through therapy, reflection, or conscious parenting, healing generational trauma means not only reclaiming your story, but also creating a better one for future generations.

This conversation is powerful, eye-opening, and deeply human. If you’ve ever asked yourself, “Why do I feel this way?” or “Where did this pattern come from?”—this episode may offer the answers, and the hope, you’ve been seeking.

Before the Casket Provides Helpful Education for End of Life

Thu, 18 Dec 2025 15:00:20 +0000

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Social media: Facebook Twitter Instagram LinkedIn

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

Finding Connection Amid Alzheimer's: Eliezer Sobel's Silver Linings and Caregiving Journey

Thu, 18 Dec 2025 14:28:49 +0000

Welcome to another powerful episode of the AlzAuthors Podcast. In this episode, hosts Christy Byrne Yates and Marianne Sciucco are joined by acclaimed writer Eliezer Sobel, author of “The Silver Lining of Alzheimer’s: One Son’s Journey into the Mystery.” Jean Lee, founder, manager, and memoir acquisitions editor, shares her insights about what she found compelling about this book and author.

Episode Highlights:

Discover how Eliezer Sobel and his wife, Shari, left their life behind to care for his mother with Alzheimer’s and his aging father following an unexpected traumatic brain injury.
Hear about the emotional and practical challenges, and how caregiving became a profoundly transformative experience for the family members.
Connection Over Correction: Learn about the importance of fostering connection rather than correcting memory loss or confusion.

Discovering Silver Linings:

Eliezer Sobel shares how, despite the heartbreak, his family found moments of humor, love, and even healing.
Listen as he recounts rediscovering the deep, wordless bond with his mother, and how dementia changed their relationship for the better.

The episode covers key caregiving tips, such as redirecting challenging behaviors, managing daily routines, and balancing personal loss with acceptance.

Also, Navigating Family Dynamics and Finances.

Dementia Resources and Books:

Learn about helpful resources for dementia caregivers, including Eliezer Sobel's own book for memory-challenged adults, "Blue Sky, White Clouds," as well as other author recommendations from the AlzAuthors community.

About the Author: Eliezer Sobel is a writer, former editor, and the devoted son of parents affected by Alzheimer’s and aging. His book, “The Silver Lining of Alzheimer’s: One Son’s Journey into the Mystery,” offers a rare and hopeful perspective into the mysteries—and unexpected joys—of dementia caregiving. His book “Blue Sky, White Clouds: A Book for Memory-Challenged Adults” helps those with cognitive decline and memory loss remain engaged with text and others.

Mentioned in This Episode:

Buy Eliezer’s book
Learn more about Eliezer and his other works here.
Laurette Klier
Susan Ostrowski

Key Quotes:

"There was a sense of connection on a soul to soul, heart to heart, essence to essence level that had nothing to do with whether she knew my name, if she knew I was her son... There was a connection there that we both recognized." – Eliezer Sobel

"You gave it all for your parents because they had given it all for you, all of your life. Your book is a true love story between you and your parents." Jean Lee

Connect with AlzAuthors:

Learn about the Moderators

Marianne Sciucco

Christy Byrne Yates

About the Podcast

Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias.

Thanks for listening.

We are a Whole Care Network Featured Podcast

Proud to be on The Health Podcast Network

Find us on The World Podcast Network and babyboomer.org

Want to be on the podcast? Here’s what you need to know

We've got merch! Shop our Store

Navigating Dementia Caregiving Roadmap: Later On Steps 18-20 / Alzheimer’s and Other Dementias

Thu, 18 Dec 2025 14:28:20 +0000

Have you reached the point where you're now fully responsible for your loved one's care and safety? Do you find yourself guiding others or managing all aspects of their daily needs? You've entered what we call "later on"—the final stage of the caregiving journey, and while some aspects may feel more manageable, new challenges and emotions emerge that require specific attention and planning.

This final phase completes our comprehensive 20-step roadmap for dementia caregiving, covering the essential steps when you've moved beyond the messy middle into full caregiving responsibility.

Connect with us and share your tips:

Website: https://thecaregiversjourney.org/

Instagram: https://www.instagram.com/thecaregiversjourney/

Facebook: https://www.facebook.com/thecaregiversjourneys/

Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/

Email: sue@thecaregiversjourney.org, nancy@thecaregiversjourney.org

Guide: Navigating Dementia Caregiving Roadmap https://thecaregiversjourney.org/guides/

Donate: https://give.cornerstone.cc/thecaregiversjourney

Full show notes

Additional Resources Mentioned

Later On - You are now managing all aspects of their care

18. Plan for their End of Life Service:

You may have done this with your loved one just after their diagnosis. If not, do this without them now:
26 minute TCJ podcast: 30. End of Life Service Preplanning
TCJ blog: 30. End of Life Service Preplanning
Leverage this End of Life Planning Worksheet.

19. Call in hospice.

If you are not working with palliative care or a US Medicare GUIDE program organization (both of these are able to tell you when it’s time to call in hospice)
Find a hospice organization.
Get a doctor's referral.
Schedule an initial evaluation. It’s almost never too early to get the initial evaluation, so don’t wait.
Search ‘hospice’ + ‘your country’ - or in the US - ‘your state’. Scroll down until you get below the sponsored links where it says ‘Places’:
Click on ‘More places’ to get a list with a map.
Notice rating stars and those located around your area.
Schedule an initial consultation with two so you can compare.
Educate yourself on when to call in hospice:
26 minute TCJ podcast: 29. When To Call In Hospice
TCJ blog: 29. When To Call In Hospice.

20. Continue your self-care. Learn about Anticipatory Grief.

Read this AARP article:
How To Manage Mourning a Loss Before It Happens.
Honor your grief, be compassionate with yourself, reach out for support:
Each of us navigates the loss of our loved one in our own time and way.
It’s reasonable when your caregiving journey ends you may feel any or all of:
A sense of relief because your journey has ended and your loved one is no longer suffering,
Guilty at the same time because you feel relieved.
A loss of your own identity, from prioritizing your loved one for so long.
Not sure what to do next.
If you feel lost, reach out to your family, support group, faith community, friends, professionals. Most importantly - reach out!

Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney

Takeaways

The Three Stages of the Dementia Caregiving Journey

1. In the Beginning - Your loved one receives a diagnosis.
2. The Messy Middle - You begin asserting control; this is when it gets messy!
3. Later On - You are managing all aspects of their care.

Back to Basics: What You Need to Know About Live Discharges

Thu, 18 Dec 2025 14:28:03 +0000

Hospice nurse Beth Cavenaugh helps to clear up confusion around live discharges from hospice services. Sometimes people on hospice care improve or stabilize, and no longer meet the criteria to receive care from the hospice agency. The discharge process can be confusing, and it’s important to know the things that need to happen. Here are a few highlights from this episode:

Live discharges are initiated by the hospice agency when the patient no longer qualifies.
Sometimes hospice patients improve because the care has become consistent, or their condition simply gets better. Their disease process may stabilize.
Hospice staff are required to give the patient and caregiver notice of the discharge according to state and federal requirements.
Discharge planning should ALWAYS happen - the nurse handles the clinical items (medications, equipment, a new healthcare provider/team), and the social worker handles the psychosocial concerns (caregiving assistance, community resources and support).
The patient or decision maker has the right to file an appeal if they don’t agree with the discharge from hospice services.
The hospice agency is required to continue providing services until the decision about the appeal is received.
Here’s a link with information about hospice appeals: What to Know About Hospice Appeals

Connect with guest host hospice nurse Beth Cavenaugh at bethcavenaugh.com Buy Beth’s book Some Light at the End: Your Bedside Guide for Peaceful Palliative and Hospice Care Buy The Power and Pain of Nursing: Self-Care Practices to Protect and Replenish Compassion.

You can find the Approaching Death Support Kit at bkbooks.com.

Find all of Barbara Karnes’ products and resources at bkbooks.com.

Read Barbara’s blog at bkbooks.com.

Connect with Barbara Karnes on Facebook IG LinkedIn Twitter (X) YouTube

Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you’re already receiving, we’re here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. We believe you deserve to have good hospice care. Book a session with an expert Hospice Navigator at theheartofhospice.com.

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Social media: Facebook Twitter Instagram LinkedIn

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

AgingGayfully® Faith, Spirituality, and Finding a Welcoming Community

Thu, 18 Dec 2025 11:15:18 +0000

In this episode, Chris and Josh share insights into their journeys from religious vocations to a more personal, liberated spirituality. They discuss the difference between religion and spirituality, the importance of community, and what it means to feel truly welcome, especially as LGBTQ+ individuals navigating faith spaces. Equal parts laughter, life lessons, and candid reflection, this episode invites you to think about where you find connection, meaning, and joy as you age.

Share your story or drop a line: yesiam@aginggayfully.com

Like, subscribe, and ring our bell (figuratively or otherwise).

Let’s AgeGayfully® together, with intention, humor, and each other.

A gay senior, Christopher MacLellan, and an ally, Josh Wilson, podcasting about life, love, liberty and travel.

Don’t Say Gay?… Say AgingGayfully®!

AgingGayfully® is about living life with dignity in an age-friendly society, regardless of orientation or economic status, because longevity is a justice issue.

AgingGayfully® is about finding your voice as we age. We are all part of the aging process and have real connections in diversity.

AgingGayfully® is a modern type of activism that supports the concept of belonging.

An Authentic Conversation With End Well Founder Dr. Shoshana Ungerleider

Thu, 18 Dec 2025 11:00:22 +0000

In this open and vulnerable interview, Dr. Shoshana Ungerleider talks about her caregiving experiences during her dad’s illness and death. Shoshana discovered early on that she wasn’t prepared for the complicated decision making that comes with serious illness caregiving, despite her medical training. Reflecting back at the experience, she talks openly about what she would have done differently. Difficult conversations about treatment, challenges with appetite and weight loss, and the genetic implications for Shoshana and her sister were all issues surrounding her father’s illness.

You can connect with End Well at endwellproject.org Listen to the Before We Go podcast here Find more information about End Well 2025 here Find Shoshana on Instagram

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com Social media: Facebook Twitter Instagram LinkedIn Email: helen@theheartofhospice.com More podcast episodes: The Heart of Hospice Podcast Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

When to Call in Palliative Care: Four Essential Tips / Alzheimer’s and Other Dementias

Thu, 18 Dec 2025 10:45:19 +0000

Are you feeling overwhelmed by the complexity of dementia care? Do you find yourself wishing you had more support navigating medical decisions and planning for the future? You’re not alone - and there’s specialized help available that many caregivers don’t fully understand.

We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we both wish we had understood what palliative care is and how to leverage it earlier in our journeys. Unfortunately, when palliative care was first explained to us, it was explained incorrectly, and neither of us took advantage of all the great things palliative care has to offer.

We recently spoke with Dawn Kolderman, a registered nurse and Senior Clinical Director of Palliative Care Services at Avow, who has more than 30 years of nursing experience with the last 20 focused on palliative and hospice care. Dawn shared invaluable insights about palliative care that we wish we had known sooner.

Connect with us and share your tips:

Website: https://thecaregiversjourney.org/
Donate: https://give.cornerstone.cc/thecaregiversjourney
Instagram: https://www.instagram.com/thecaregiversjourney/
Facebook: https://www.facebook.com/thecaregiversjourneys/
Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/
Email: sue@thecaregiversjourney.org, nancy@thecaregiversjourney.org

Full Show Notes

Additional Resources Mentioned

Avow Palliative Care Link
Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney

Takeaways

Tip 1: Understand What Palliative Care Actually Is

The first step is clearing up common misconceptions about palliative care.

Palliative care is a holistic approach to a life-limiting disease. This includes dementia — which is indeed a life-limiting disease.

The key difference between palliative care and hospice care:

Palliative care patients are at the beginning of their journey and are still seeking aggressive, curative treatment while seeing all their providers and specialists
Hospice care patients are generally at the end of their journey, no longer seeking aggressive treatment, and focusing on comfort care.

Palliative care is an additional supportive layer of care that works collaboratively with all your existing medical providers. Most importantly, palliative care focuses heavily on the caregiver.

Tip 2: Call Palliative Care In — Here’s How

Many caregivers don’t realize how accessible palliative care is or when to call it in. The answer is simple: the earlier, the better.

Tip 3: Understand the Goals of Palliative Care

Palliative care has specific, comprehensive goals that address both immediate and long-term needs.

Primary goals include:

Relieving physical symptoms first

Supporting the caregiver and family

Education and collaboration

Advanced care planning (ACP). This crucial component involves sitting down with the patient, caregiver, and family to discuss important decisions while your loved one can still participate in these conversations.

Tip 4: What Else You Need to Know About Palliative Care

There are several important aspects of palliative care that many people don’t realize.

Your loved one won’t look sick. The goal is to help them live their life fully.

Early intervention builds stronger relationships.

The nurse navigator’s role is specifically to connect you with community resources you might not know about.

Read More in This Blog here

Marijuana Gummies and Cancer Pain Management

Thu, 18 Dec 2025 10:40:18 +0000

In this candid and heartfelt episode of I Saved You. Now do the dishes, Carrie Severson and her husband, Gavin, open up about navigating cancer and pain management with marijuana gummies. While the gummies helped Gavin finally get some much-needed sleep, they didn’t do much to ease the pain. Together, they unpack the frustration, trial and error, and emotional toll that come with trying to find relief in the midst of cancer treatment. It’s an honest look at resilience, humor, and the reality of learning to live — and love — through the discomfort.

If you're a caregiver, and married to your patient, this is for you.

Reach out to Carrie at www.carrieseverson.com or follow her at https://www.instagram.com/authorcarrieseverson/.

#love #cancertreatment #caregiveradvice #burnout #caregiverburnout #mentalhealth #cancerpatients

Using Humor to Survive Caregiving with J Smiles

Thu, 18 Dec 2025 10:25:27 +0000

J Smiles has been a caregiver to her mom living with Alzheimer’s and NPH for over 13 years—an unexpected journey that began after her father’s sudden passing. Once a globe-trotting consultant who could barely keep a plant alive, J found herself overwhelmed and facing serious health issues just 18 months into caregiving. A wake-up call from her doctor led her to explore self-care through stand-up comedy.

In this episode, J shares how comedy became her lifeline, helping her cope, advocate for caregivers, and bring joy to others walking a similar path.

Show notes with product and resource links:

https://bit.ly/HHCPod210

Receive the podcast in your email here:

http://bit.ly/2G4qvBv

Order a copy of Elizabeth's book Just for You: a Daily Self Care Journal:

http://bit.ly/HHCjournal

For podcast sponsorship opportunities contact Elizabeth:

https://happyhealthycaregiver.com/contact-us/

The Happy Healthy Caregiver podcast is part of the Whole Care Network. Rate and Review the podcast:

https://bit.ly/HHCPODREVIEW

Guilt and Shame in Caregiving with Susanne White

Thu, 18 Dec 2025 10:15:20 +0000

My guest today is Susanne White, The Caregiver Warrior, an author advocate, Daughterhood circle leader and veteran, family caregiver who turned her personal journey into a mission to support others.

After caring for her parents through illness and dementia, she emerged with powerful lessons in compassion, resilience and self care. Her new book, self care for caregivers is a guide for anyone navigating the emotional roller coaster of caregiving.

In this conversation, we explore the difference between guilt and shame. We talk about the weight caregivers carry, the second guessing the family dynamics, the difference between accountability and responsibility, even the quiet grief that shows up along the way. Most of all, we share ways to ease that burden and how to remind ourselves that being human is more than enough.

TRANSCRIPT

Caregiver Warrior

For support and community visit: Daughterhood

Caregiving Connections: Advocacy, Action & the Power of Support with Lance Slatton

Thu, 18 Dec 2025 10:10:19 +0000

In this powerful episode, Marianne Sciucco welcomes back friend of the podcast Lance A. Slatton, owner/operator of Enriched Life Home Care Services in Livonia, Michigan and host of the award-winning podcast All Home Care Matters. Together, they dive into Lance’s recent experience attending the Elizabeth Dole Foundation’s National Convening in Washington, DC, a major advocacy event supporting family caregivers, especially those caring for veterans and individuals with dementia. Tune in to hear insights into the unique challenges facing dementia caregivers, the extraordinary resources offered for military families, and the critical intersection of policy and real-world caregiving support.

Key Discussion Topics:

Caregiver Resources & Advocacy: Learn about the work of the Elizabeth Dole Foundation, which addresses the needs of military and veteran caregivers, and their innovative programs like Hidden Heroes and Hidden Helpers—designed for caregiving children & youth.

Dementia & Veteran Care: Hear firsthand stories and the reality of caregiving for those with Alzheimer’s, dementia, and traumatic brain injuries—many of whom are combat veterans.

National Policies Affecting Caregivers: Discover how public policy, including the recent Dole Act, directly impacts the resources and benefits available to caregivers and veterans. Hear how bipartisan efforts can drive real, meaningful change.

Personal Journeys & Real Stories: Hear inspiring and emotional examples of caregiving from Lance, Marianne, and other leaders in the field—including Medal of Honor recipients and Dole Fellows who advocate tirelessly for America’s caregivers.

Work-Life Balance for Family Caregivers:

Insightful discussion around the career challenges caregivers face, the importance of caregiver-friendly employers, and the impact caregiving can have on personal and professional lives.

Resources Mentioned

Elizabeth Dole Foundation – Programs for military, veteran, and dementia caregivers (Hidden Heroes, Hidden Helpers, Dole Fellows)
VA Caregiver Support Program – Resources for those caring for veterans
All Home Care Matters Podcast – Winner of the Silver Creator Award and other accolades
All Home Care Matters Official Family Caregiver Guide – A practical map for caregivers; available on the AlzAuthors.com website: Lance A. Slatton Book
Also available at Amazon, Target, Walmart, and allhomecarematters.com,

Learn about the Moderator

Marianne Sciucco

About the Podcast

To sustain our efforts please donate here.

Thanks for listening.

We are a Whole Care Network Featured Podcast

Proud to be on The Health Podcast Network

Find us on The World Podcast Network and babyboomer.org

Want to be on the podcast? Here’s what you need to know:

We’ve got merch! Shop our Store

When Life Feels Uncomfortable: Choosing Curiosity and Clarity Over Confusion

Thu, 18 Dec 2025 10:00:20 +0000

In this episode of the podcast, we explore those seasons in life when something just doesn’t feel right—when discomfort lingers, but we’re not quite sure what to do about it. These moments can feel heavy or confusing, especially when we silence the voice of curiosity.

Often, when we stop being curious, we also stop exploring new perspectives. We fall into autopilot, tolerate discomfort, or assume there’s no solution—just "A or B," black or white, this or that. But what if there’s a third way?

We share three key lessons that can help you begin to move through uncertainty:

1) Listen Closely to What People Tell You

Sometimes, others notice things about our lives before we do. Their words can be mirrors. Instead of brushing them off, consider whether there’s truth in their observations. You might uncover a blind spot or a possibility you hadn’t seen.

2) Don’t Limit Yourself to Either/Or Thinking

When facing a difficult decision, we often trap ourselves into thinking there are only two options. What if, instead, you asked: What’s option C? Or what if I could take the best of both A and B and create a hybrid solution? Expanding the field of possibility can open unexpected and more aligned paths.

3) Recreate and Gain Clarity

We often don’t allow ourselves to follow a journey fully. We may start planning or designing a change but hesitate to commit to a clear direction. Yet clarity is powerful—it acts like a roadmap. When you gain clarity about your needs, goals, or values, things tend to flow more easily and move forward with surprising speed. It’s not about forcing the path but allowing yourself to walk it step by step, with purpose.

Discomfort is often the starting point of transformation—not something to fear, but something to examine. Join us as we talk through how embracing curiosity and clarity can turn uncertainty into opportunity.

AgingGayfully® Stepping Into Your Comfort Zone

Wed, 17 Dec 2025 22:29:46 +0000

What does it mean to step into your comfort zone? Chris and Josh discuss how we match our talents and interests with what we do in the world. When we can do this, we find purpose, meaning, and fulfillment.

Share your story or drop a line: yesiam@aginggayfully.com

Like, subscribe, and ring our bell (figuratively or otherwise).

Let’s AgeGayfully® together, with intention, humor, and each other.

A gay senior, Christopher MacLellan, and an ally, Josh Wilson, are podcasting about life, love, liberty and travel.

Don’t Say Gay?… Say AgingGayfully®!

AgingGayfully® is about living life with dignity in an age-friendly society, regardless of orientation or economic status, because longevity is a justice issue.

AgingGayfully® is about finding your voice as we age. We are all part of the aging process and have real connections in diversity.

AgingGayfully® is a modern type of activism that supports the concept of belonging.

End of Life Options: The Powerful Story of Brittany Maynard

Wed, 17 Dec 2025 22:29:35 +0000

End of life option advocate Dan Diaz is sharing the story of his wife Brittany Maynard and her pursuit of a gentle death. Diagnosed at age 29 with a terminal brain tumor, Brittany chose to move 600 miles to a state that allowed for death with dignity, utilizing Medical Aid in Dying. In this powerful interview, Dan describes the impact of her life and death on compassionate death choices and legislation.

Since Brittany’s death in 2014, Medical Aid in Dying laws have expanded to eleven states in the U.S. Dan continues to tell their story, advocating for expansion of death with dignity laws to every state. We continue to learn from her experience and fierce determination to ensure the kind of death she wanted.

Connect with Dan Diaz on Facebook

Read more about Brittany Maynard at thebrittanyfund.org

Find more information about Medical Aid in Dying (MAID) at compassionandchoices.org

You can find the Approaching Death Support Kit at bkbooks.com.

Find all of Barbara Karnes’ products and resources at bkbooks.com.

Read Barbara’s blog at bkbooks.com.

Connect with Barbara Karnes on Facebook IG LinkedIn Twitter (X) YouTube

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Social media: Facebook Twitter Instagram LinkedIn

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Create Your Personal Caregiving Support Network: Five Essential Tips / Alzheimer’s and Other Dementias

Wed, 17 Dec 2025 22:29:14 +0000

“In the marathon that is caregiving, the difference between exhaustion and endurance isn’t willpower, it’s the strength of the support network we build around us.” Sue Ryan

Are you feeling overwhelmed by the responsibilities of caregiving? Do you find yourself thinking, “I don’t have time to get everything done.” or “I should be able to do this myself.”? You’re not alone, and there’s a better way forward.

We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned building a strong personal support network is crucial for sustainable caregiving. Studies show that dementia family caregivers face overwhelming emotional challenges.

Connect with us and share your tips:

Website: https://www.thecaregiversjourney.com
Donate: https://give.cornerstone.cc/thecaregiversjourney
Instagram: https://www.instagram.com/thecaregiversjourney/
Facebook: https://www.facebook.com/TheCaregiversJourneys/
Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/
Email: sue@thecaregiversjourney.com, nancy@thecaregiversjourney.com

Full Show Notes: https://thecaregiversjourney.org/40-create-your-personal-support-network-five-essential-tips-alzheimers-and-other-dementias/

Additional Resources Mentioned

27. The Realities of Caregiver Self-Care https://thecaregiversjourney.com/the-realities-of-caregiver-self-care-four-essential-tips-alzheimers-and-other-dementias/
32. Navigating the Caregiver Hiring Process https://thecaregiversjourney.com/32-navigating-the-caregiver-hiring-process-five-essential-tips-alzheimers-and-other-dementias/
Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney

Takeaways

Tip 1: Assess Your Needs and Make a List

Ask yourself:

Do I have time to get everything done that needs to be done?
Am I physically strong enough to handle all caregiving tasks?
Do I find myself losing patience or empathy?
Is my loved one struggling with activities of daily living that I can't manage alone?

If you answered yes to any of these questions, it's time to ask for help.

Tip 2: Create a List of Who Can Help and What They Can Do

Think about all the people who have offered to help or who might be willing to help.
Map your list of potential helpers to your list of needs. If multiple people can help with a particular task, list them all—it's better not to rely on just one person.

Tip 3: How to Effectively Ask for Help

Recognize that some people want to help your care receiver, while others want to help you.
Be specific and direct about what you need and why you need it.
Remember that the people on your list have likely already offered to help or have shown willingness to support you.
Adapt your approach based on the person you're asking.

Tip 4: When People Offer to Help, Say "Yes"

Avoid these common traps:

"It would be easier just to do it myself."
"No one can care for my loved one like I can."
"I should be able to do this myself."
"I feel guilty—they have their own busy lives."

Tip 5: Maintain Your Support Network and Adjust as Things Change

Encouraging open communication with your support team members
Being proactive about finding new support team members when needed
Checking in regularly with your helpers to keep them informed and engaged
Watching for signs of burnout in your helpers—they may experience caregiver fatigue too
Addressing inflection points in your loved one's care needs

Read More in This Blog https://sueryansolutions.medium.com/36-building-your-personal-caregiving-support-network-9f9639e9ae87

Conquering Food Fears as a Cancer Patient

Wed, 17 Dec 2025 22:28:58 +0000

In this heartfelt (and hilariously off-track) episode, Carrie is joined once again by her husband, Gavin, for an honest conversation about marriage, recovery, and the wild ride of caregiving—especially when your spouse has ADD. Despite Gavin’s best attempts to derail the story with his signature tangents, Carrie keeps steering them back to one powerful moment: the day he faced his fear of eating. To start that journey, a speech therapist started him with a little container of applesauce.

After surviving head and neck cancer and life with a feeding tube, food became a source of real fear and pain for Gavin. Together, they unpack what it took for him to face that fear—and what it was like for Carrie to witness that breakthrough as his partner and caregiver.

It’s funny, raw, and deeply human—just like healing itself.

#add #marriagecouple #cancertreatment #cancerrecovery #headandneckcancer #caregiving #caregivertips #lovestory #mentalhealth #burnout #burnoutrecovery

Conversation and Validation with Patty Webster

Wed, 17 Dec 2025 22:28:42 +0000

Patty Webster is no stranger to caregiving—she helped care for her mom at the end of her life and now supports her sister, who’s the primary caregiver for their dad.

In this episode of the Happy Healthy Caregiver podcast, Patty shares how her personal experience fuels her passion for The Conversation Project, a movement helping families talk openly about end-of-life wishes. We chat about why these conversations matter, how to start them, and how they can bring families closer. It's real, relatable, and something every caregiver should hear. We also talk about how to not be a ‘swooper’ as a remote support caregiver, why it’s important to infuse fun in caregiving visits, and why grace is essential for all members of the care team.

Show notes with product and resource links:

https://bit.ly/HHCPod209

Receive the podcast in your email here:

http://bit.ly/2G4qvBv

Order a copy of Elizabeth's book Just for You: a Daily Self Care Journal:

http://bit.ly/HHCjournal

For podcast sponsorship opportunities contact Elizabeth:

https://happyhealthycaregiver.com/contact-us/

The Happy Healthy Caregiver podcast is part of the Whole Care Network. Rate and Review the podcast:

https://bit.ly/HHCPODREVIEW

Common Challenges & Coping Strategies in Caregiving with Dr. Barry Jacobs and Dr. Julia Mayer

Wed, 17 Dec 2025 22:28:20 +0000

I'm delighted to welcome back to the podcast Dr. Barry Jacobs, and equally excited to welcome his co author and wife, Dr. Julia Mayer. Dr. Barry Jacobs is a clinical psychologist, family therapist, author and principal at Health Management Associates, a national healthcare consulting firm. He's the author of the emotional Survival Guide for Caregivers, and has been a trusted voice for caregivers through his long running aarp.org advice column. Dr. Julia Mayer is a clinical psychologist with over three decades of experience supporting women in caregiver roles as well as those with troubled marriages and histories of sexual trauma. She's the author of the novel A Fleeting State of Mind, and co-host of the psychology and social justice podcast Shrinks on Third. Together, Barry and Julia have co authored several AARP titles, and now they're back with their latest collaboration, The AARP Caregiver Answer Book. This compassionate and practical guide is a must have for anyone navigating the caregiving journey. Today, we're discussing some of the topics in their book, covering common challenges in caregiving: breaking promises, dealing with guilt and burnout, the emotional realities of caregiving and so much more.

TRANSCRIPT

For more support and community, find us at Daughterhood

Alzheimer's Daughter: Love Letters, Diagnosis, and a Caregiver's Journey with Jean Lee

Wed, 17 Dec 2025 22:27:53 +0000

In this heartwarming episode, Jean Lee, AlzAuthors founder and author of Alzheimer’s Daughter, joins us to discuss her personal journey of caring for both of her parents after their simultaneous Alzheimer’s diagnosis.

Jean shares how she journaled her family’s dementia journey, the emotional process of turning those notes into a memoir, and the discovery of her parents’ World War II love letters during the difficult process of moving them into memory care. The conversation covers crucial topics facing caregivers—navigating diagnoses, managing moves to different care facilities, supporting siblings at a distance, and confronting the emotions tied to sharing private family stories.

Listeners will also hear about the importance of community, storytelling, and connecting with others who understand life on the dementia journey. Plus, don’t miss Jean’s poignant reading of her parents’ correspondence and practical tips for families facing similar challenges.

What You’ll Hear In This Episode:

Hear Jean’s personal story of caring for both parents, who were diagnosed with Alzheimer’s on the same day. Learn how her experience as a “hometown daughter” shaped her perspective on dementia and caregiving.
Jean shares how a simple journal became an essential tool for tracking her parents’ symptoms, achieving an earlier diagnosis, and eventually forming the backbone of her memoir.
Discover the emotional and logistical challenges of transitioning parents with dementia into assisted living and secure memory care, and hear practical advice on how to handle repeated moves.
An honest discussion about the moment of diagnosis—how doctors communicate difficult news, and what families can do when left with more questions than answers.
Jean recounts the touching discovery of her parents’ WWII love letters and how these preserved memories added richness and hope to her storytelling.
Explore what keeps couples bonded through the trials of Alzheimer’s, and how caregivers can find strength in family history and shared memories.
From note-taking systems to balancing a full-time career with caregiving, Jean offers actionable strategies for dementia caregivers.

After the Podcast

Purchase “Alzheimer’s Daughter”

Read one of Jean’s many blog posts

Listen to another podcast featuring Jean Lee

Learn about the Moderators

Marianne Sciucco

Christy Byrne Yates

About the Podcast

To sustain our efforts please donate here

Thanks for listening.

We are a Whole Care Network Featured Podcast

Proud to be on The Health Podcast Network

Find us on The World Podcast Network and babyboomer.org

Want to be on the podcast? Here’s what you need to know.

We’ve got merch! Shop our Store

Faith, Healing, and the Sacred Work of Caregiving

Wed, 17 Dec 2025 22:27:10 +0000

In today’s episode of A Time to Care: The Caregivers Podcast, we speak with Amy Chastain, author of How to Find God in the Caregiver’s Journey. Amy opens her heart and shares how her personal relationship with God was both tested and strengthened through her caregiving experience. She candidly describes a time when she felt unworthy and had to return to the foundations of her faith to rebuild from within.

Amy emphasizes the vital importance of community, even when it feels incredibly vulnerable to admit we need help. She reminds us that healing is not a one-time event but a journey—a process filled with highs and lows, including moments of anger, doubt, and even blame toward God. But, as Amy beautifully puts it, “God already knows it all—and still loves us exactly as we are.”

She encourages caregivers to begin simply: by praying without filters. Don’t try to tidy up your emotions. God won’t run from your pain, frustration, or sorrow. In fact, it’s in those raw and honest moments that He draws closest, offering strength and reassurance.

Amy leaves us with a powerful message: caregiving is not just a role—it’s sacred. It’s holy work. And when we invite God into our caregiving journey, we not only care better for others, we also find the space to be cared for ourselves.

Tune in to this deeply moving conversation and discover how spirituality and community can help anchor us in the storm.

To contact Amy:

Enduring Together: Strength for the Weary Caregiver https://a.co/d/gqtqNDq

Caregivers | Encouragement from Amy Chastain

Navigating Dementia Caregiving Roadmap: In the Beginning Steps 1-6 / Alzheimer’s and Other Dementias

Wed, 17 Dec 2025 07:00:23 +0000

Have you ever felt overwhelmed because you don’t know what information you need, can’t find reliable sources, or feel frustrated by too much conflicting advice?

We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned having a step-by-step roadmap is crucial for navigating the beginning of your caregiving journey. We recently talked with Jenny Gay, licensed clinical social worker with Emory Integrated Memory Care, about the comprehensive 20-step caregiving journey roadmap guide Navigating Dementia Caregiving: Your Resource Roadmap for Every Stage. This podcast is bringing the first six essential steps to take immediately after diagnosis.

Connect with us and share your tips:

Donate: https://give.cornerstone.cc/thecaregiversjourney

Instagram: https://www.instagram.com/thecaregiversjourney/

Facebook: https://www.facebook.com/thecaregiversjourneys/

Full Show Notes Here

In the Beginning - First Steps - Right after the diagnosis

1. Choose a palliative care organization.

This will likely also serve as your hospice organization later in your journey.

In your search engine, type ‘Palliative Care’ + ‘the name of your country’ or, in the US ‘the name of your state’.

Schedule an initial consultation with more than one so you can compare.

Educate yourself on what palliative care is:

27 minute The Caregiver’s Journey (TCJ) podcast: 42. When To Call In Palliative Care

2. Create an Advance Care Plan.

Get your legal documents in order and do some initial end of life preplanning with your loved ones input:

Contact your attorney or an elder law attorney NAELA.org.

Listen to this podcast or read this blog on elder law attorneys:

32 minute TCJ podcast: 31. Elder Law Attorneys

Alzheimer’s Association legal documents overview:

Leverage this End of Life Planning Worksheet.

3. Understand the financial situation.

Work with a financial advisor - especially those who focus on seniors. Elder law attorneys can also advise in this area.

Alzheimer’s Association resources overview of financial planning

4. Find support groups.

First and foremost for you. If possible, find a support group you can attend in person:

The Alzheimer's Association support group finder has support groups for a variety of types of dementia.

If your loved one is interested a support group:

Dementia minds has online groups for people living with dementia.

Many local senior centers have support groups for your loved one to increase socialization:

In the US, go to your ‘countyname’.gov website and search for a senior center.

The Alzheimer’s Association 24/7 helpline in the US: 1.800.272.3900.

5. Educate yourself on early caregiving journey topics.

Listen to these two podcasts or read these two blogs.

Memory Loss:

29 minute TCJ podcast: 2. Memory Loss

Communication:

20 minute TCJ podcast: 3. Communication – in the Beginning

6. Investigate the US Medicare GUIDE program.

Listen to this podcast or read this blog:

23 minute TCJ podcast: 39. Is the Medicare GUIDE program for you

Understand if your loved one may be eligible:

https://www.cms.gov/priorities/innovation/guide/faqs#ben-cgs.

If you think you might be eligible, find a US Medicare GUIDE program provider near you.

There may be several who cover your zip code so explore options.

Go here to find a GUIDE program:

Enter your state.

Under models select ‘Guiding an Improved Dementia Experience (GUIDE) Model’.

Click ‘Display selected’.

You can use the plus and minus signs in the upper right corner to zoom in closer to your area.

When you find the location you want, click on the blue dot and detailed contact information will show.

The Three Stages of the Dementia Caregiving Journey

1. In the Beginning - Your loved one receives a diagnosis.

2. The Messy Middle - You begin asserting control; this is when it gets messy!

3. Later On - You are managing all aspects of their care.

Full blog here

AgingGayfully® Healing the Hidden Wounds of Loneliness

Wed, 17 Dec 2025 06:50:23 +0000

In this heartfelt and humorous episode of AgingGayfully®, Chris and Josh dive into one of the most pressing issues facing older adults today: loneliness. From near cardiac scares to surprise mixologist recommendations, they explore how aging bodies and changing social landscapes can quietly isolate us...and what we can do about it.

With personal stories, laughter, and a few unexpected confessions (yes, colorblindness and condo paint are involved), they unpack research showing how social isolation increases risks of dementia, heart disease, and even early death—comparable to smoking 15 cigarettes a day. But don't worry, it's not all doom and gloom.

If you're feeling a little adrift, or just wondering how to reconnect with purpose, this episode will offer comfort, insights, and probably a hug (eventually). Tune in to explore vulnerability, affection, introversion, and the healing power of being understood.

Featuring:

CDC-backed stats on isolation and aging

Real talk on medical scares and emotional health

The difference between solitude and loneliness

Why asking for help is an act of strength

And how touch, talk, and connection save lives

Share your story or drop a line: yesiam@aginggayfully.com

Like, subscribe, and ring our bell (figuratively or otherwise).

Let’s AgeGayfully® together, with intention, humor, and each other.

A gay senior, Christopher MacLellan, and an ally, Josh Wilson, podcasting about life, love, liberty and travel.

Don’t Say Gay?… Say AgingGayfully®!

AgingGayfully® is about living life with dignity in an age-friendly society regardless of orientation or economic status because longevity is a justice issue.

AgingGayfully® is about finding your voice as we age. We are all part of the aging process and have real connections in diversity.

AgingGayfully® is a modern type of activism that supports the concept of belonging.

Alz Authors Bring Powerful, Personal Stories to the Printed Page

Wed, 17 Dec 2025 06:30:19 +0000

Author and Alzheimer’s caregiver Marianne Scuicco shares her powerful story of caring for her mother and stepdad through dementia diagnosis and end of life. She describes the roller coaster of her caregiving journey, all the ups and downs that her family experienced. After her stepfather was diagnosed with mixed dementia and her mother declined, Marianne and her siblings had to find a balance to ensure they were well cared for. She’s able to say she has very few regrets about her time as a caregiver, feeling she gave her best to the caregiving job. As cohost of the Alz Authors podcast, Marianne continues to support other caregivers dealing with the same challenges.

Marianne Sciucco is a founder of AlzAuthors.com, the global community of authors writing about Alzheimer’s and dementia from personal experience. It is the most comprehensive, single source in the world for dementia literature curated by former caregivers and authors. Marianne serves as board president, manager, and producer and co-host of their podcast, Untangling Alzheimer’s and Dementia. A registered nurse who cared for hundreds of individuals and families impacted by dementia, she is a former caregiver to her stepfather who had mixed dementia, and her mother who did not have dementia. She is the author of Blue Hydrangeas, an Alzheimer’s love story.

Connect with Marianne Scuicco, author of Blue Hydrangeas and cohost of the Alz Authors Podcast:

Website: mariannesciucco.com

Website: alzauthors.com

Podcast: alzauthors.co: /podcast

Social Media for Marianne Scuicco: Facebook Instagram LinkedIn Bluesky Threads

Purchase your copy of Blue Hydrangeas: A Alzheimer’s Love Story

You can find the Approaching Death Support Kit at bkbooks.com.

Find all of Barbara Karnes’ products and resources at bkbooks.com.

Read Barbara’s blog at bkbooks.com.

Connect with Barbara Karnes on Facebook IG LinkedIn Twitter (X) YouTube

Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you’re already receiving, we’re here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. We believe you deserve to have good hospice care. Book your session with an expert Hospice Navigator at theheartofhospice.com.

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Social media: Facebook Twitter Instagram LinkedIn

Finding Purpose and Moxie from Caregiving with Katie Prentiss

Wed, 17 Dec 2025 06:15:20 +0000

Katie Prentiss is a mother of four, a former professional photographer, and a current filmmaker. When her mother was diagnosed with frontotemporal dementia (FTD), Katie stepped into the role of primary caregiver, balancing her family, business, and her mom’s care. This life-changing experience opened her eyes to the preciousness of life, motivating her to make a bold midlife career pivot into acting and producing.

In this episode, Katie shares details about her latest full-length feature film, which she describes as a heartfelt love letter to family caregivers. She shares about how caregiving shaped her personal and professional journey, and how she found acceptance, growth, and healing through what she calls the law of contraction and expansion. Tune in to discover how this powerful concept can help caregivers navigate every stage of the caregiving journey with resilience, purpose, and moxie.

Show notes with product and resource links:

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Receive the podcast in your email here:

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Order a copy of Elizabeth's book Just for You: a Daily Self Care Journal:

http://bit.ly/HHCjournal

For podcast sponsorship opportunities contact Elizabeth:

https://happyhealthycaregiver.com/contact-us/

The Happy Healthy Caregiver podcast is part of the Whole Care Network. Rate and Review the podcast:

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Aligning Work and Caregiving Responsibilities: Four Essential Tips / Alzheimer’s and Other Dementias

Wed, 17 Dec 2025 06:00:23 +0000

Have you ever thought, "I wish I knew how to have a constructive conversation with my manager about how to align my work responsibilities and my caregiving responsibilities?" Today we're sharing strategies to help working family caregivers thrive at both work and at home. We're sharing four tips.

We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we understand how caregivers often feel torn between their responsibilities at home and their professional responsibilities, which they're trying desperately to fulfill, often without support.

Connect with us and share your tips:

Website: https://thecaregiversjourney.org/
Donate: https://give.cornerstone.cc/thecaregiversjourney
Instagram: https://www.instagram.com/thecaregiversjourney/
Facebook: https://www.facebook.com/TheCaregiversJourneys/
Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/
Email: sue@thecaregiversjourney.org, nancy@thecaregiversjourney.org

Full Show Notes

https://thecaregiversjourney.org/41-aligning-work-and-caregiving-responsibilities-four-essential-tips-alzheimers-and-other-dementias/

Additional Resources Mentioned

Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney

Takeaways

Tip 1: Self-Identify and Strategically Disclose

Assess your company culture first
Examples of supportive company policies
Disclose early in the journey
Plan your conversation
Frame it collaboratively
Document everything

Tip 2: Build Flexibility

Explore flexibility options in your organization
Propose pilot arrangements
Consider team involvement
Create backup plans
Leverage technology
Consider career flexibility

Tip 3: Leverage Your Resources

Connect with colleagues who are also caregivers
Explore Employee Assistance Programs (EAPs)
Look for community resources
Take things off your plate

Tip 4: Plan for the Unplanned

Understand your benefits and protections
Create a caregiving budget
Explore financial resources
Build an emergency fund
Prepare for career transitions

Read More in This Blog

https://sueryansolutions.medium.com/40-building-your-personal-caregiving-support-network-9f9639e9ae87

The Road to Healing

Wed, 17 Dec 2025 05:45:19 +0000

Season 2 of I Saved You, Now Do the Dishes kicks off with a deeply personal and heartfelt conversation between host Carrie Severson and her husband, Gavin, the inspiration behind the podcast.

This episode is full of love, laughter, and the kind of real-life banter only a husband and wife can bring. Carrie and Gavin reflect on what “healing” really looks like for both the caregiver and the patient, sharing raw insights, tender moments, and plenty of humor along the way.

If you’ve ever wondered what it feels like to move from survival mode toward the messy, beautiful road of recovery, this one’s for you.

Caregiving Under 40 with Rebecca Dittrich

Wed, 17 Dec 2025 05:30:20 +0000

Rebecca Dittrich is a healthcare attorney, a former corporate executive, a death doula, a Daughterhood circle leader and Founder and CEO of The Reprise Project. After working professionally for years on issues related to Medicare, longterm care and senior living, her dad’s catastrophic stroke in 2021 turned all of those issues deeply personal. She’s since committed her career to supporting caregivers and fostering the honest intentional conversations that help families approach aging and dying with clarity, purpose, and connection. She is a millennial caregiver who lives in San Francisco with her husband and dad, and who will enter the sandwich generation in the fall of 2025 when she welcomes a baby girl.

In this episode, Becca shares what it’s really like to be a younger caregiver, navigating big responsibilities while your peers are living totally different lives. We talk about balancing caregiving with your own goals, building a support system, setting boundaries, having that conversation with your parents, and more. Whether you’re just starting out or have been caregiving for years, we share tools and insights that apply to every stage of the journey.

TRANSCRIPT

The Reprise Project

Instagram: drdwillseeyounow

Daughterhood

Exposing the Truth About Nursing Homes: Susie Singer Carter on Chemical Restraints, Alzheimer’s Care, and the Docuseries ‘No Country for Old People’

Wed, 17 Dec 2025 05:15:19 +0000

In this eye-opening episode, Christy and Marianne welcome back the formidable advocate, filmmaker, and podcast host Susie Singer Carter. Known for her poignant short film My Mom and the Girl —inspired by her experiences with her mother’s Alzheimer’s and starring the late beloved television actress Valerie Harper - and her award-winning podcast, “Love Conquers ALZ,” Susie shared details of her latest project, No Country for Old People, a stirring docuseries set to premiere on Amazon Prime August 1st.

The conversation delves into the often-unseen challenges families face when loved ones require long-term or memory care. Despite finding what she believed was a 5-star facility for her mother, Susie encountered heartbreaking realities: inadequate care, chemical restraints, and a systemic unwillingness to change.

As Susie recounted, “Most documentaries are labors of love. They’re not money makes. If you choose to do a documentary, it’s because you really care.” Her commitment shows not only in her work but in her partnership with retired federal prosecutor Rick Mountcastle (Dopesick), who spent decades investigating and prosecuting elder care fraud and neglect. Their collaboration—and the nearly 100 interviews with families, doctors, and whistleblowers—revealed this crisis is widespread, persistent, and demands urgent reform.

Processing her own trauma, Susie found motivation in community and collective action. Inspired by the lack of real change through traditional advocacy, she and her partners founded ROAR—Respect, Oversight, Advocacy, and Reform for long-term care. “Any hard issue in our society has been overcome by the collective. That’s our power,” Susie urges. She invites everyone to join the movement, harnessing the “power of love” to demand oversight and expose the veiled corporate interests prioritizing profits over people. Join the movement nocountryforoldpeople.com and learn about ROAR.

No Country for Old People will be featured in the AlzAuthors Fall Film Festival 2025 — sign up for our newsletter for details as they come out.

Mentioned Resources

No Country for Old People docuseries: NoCountryForOldPeople.com
Learn about ROAR and get involved: Via the website above
AlzAuthors Film Festival Info & Newsletter Signup: AlzAuthors.com
Susie’s other works:
My Mom and the Girl
Love Conquers ALZ and wherever you listen to podcasts

About the Podcast

Please help: donate here

Learn about the Moderators

Marianne Sciucco

Christy Byrne Yates

Thanks for listening.

We are a Whole Care Network Featured Podcast

Proud to be on The Health Podcast Network

Find us on The World Podcast Network and babyboomer.org

Want to be on the podcast? Here’s what you need to know.

We’ve got merch! Shop our Store

Taking the Fear Out of Finances: A Caregiver’s Guide to Financial Confidence

Wed, 17 Dec 2025 05:00:22 +0000

In today’s episode of A Time to Care: The Caregivers Podcast, we sit down with financial advisor Joel Arsenault for an eye-opening conversation about personal finance—especially for caregivers and families navigating later stages of life.

Joel encourages us to go deeper into the topic of finances, reminding us that financial planning is not just for experts or investors—it’s for everyone, especially those in caregiving roles. He reflects on how, in the past, financial decisions were often left solely to men, which created an imbalance in knowledge and confidence that still lingers today. Many people—particularly women—have been conditioned to feel ashamed or intimidated when it comes to talking about money. Joel challenges this mindset and emphasizes that not knowing something isn’t a weakness; it’s an opportunity to learn and grow.

He also highlights a surprising fact: only a small percentage of people actually work with a financial advisor, despite how valuable that support can be. For caregivers who are managing not only their loved ones’ needs but also their own futures, financial clarity can make all the difference.

How to Be the Best Caregiver You Can Be Without Being Perfect

Tue, 08 Jul 2025 05:15:21 +0000

Drs. Barry Jacobs and Julia Mayer join the podcast for a great conversation about bringing your best to caregiving, reminding us that caregivers don’t have to be perfect. As authors and clinical psychologists, Barry and Julia support family caregivers, guiding them through the messiness of caring for a loved one. As a married couple, they’ve had lived experience with caring for their parents and in-laws with Alzheimer’s and dementia. Dealing with caregiving issues in their personal lives taught them invaluable lessons, which they now share with clients and readers of their books.

Barry and Julia’s newest book is the “AARP Caregiver Answer Book” - Purchase your copy at caregiveranswerbook.com

Find the AARP Caregiver Answer Book on the AARP website.

Connect with Dr. Barry Jacobs and Dr. Julia Mayer on their website: loveandmeaning.com

Read Barry’s latest blog post “My Care Receiver’s Doctors Don’t Respect My Boundaries” here.

Find Dr. Barry Jacobs on social media: Facebook Twitter (X) LinkedIn

Find Dr. Julia Mayer on social media: Instagram Facebook Twitter (X) LinkedIn Bluesky

You can find the Approaching Death Support Kit by End of Life Educator Barbara Karnes at bkbooks.com.

Find all of Barbara Karnes’ products and resources at bkbooks.com.

Read Barbara’s blog at bkbooks.com.

Connect with Barbara Karnes on Facebook IG LinkedIn Twitter (X) YouTube

Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you’re already receiving, we’re here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. We believe you deserve to have good hospice care. Book your session with an expert Hospice Navigator at theheartofhospice.com.

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Social media: Facebook Twitter Instagram LinkedIn

Combat Senior Loneliness with Scott Lien

Tue, 08 Jul 2025 05:10:25 +0000

Meet Scott Lien, a working family caregiver and member of the sandwich generation, who navigated the loss of four parents and in-laws over twelve years. His caregiving journey, combined with his extensive tech background, inspired him to co-found GrandPad, a user-friendly platform designed to keep seniors connected and engaged.

In this episode of the Happy Healthy Caregiver podcast, Scott and I dive into practical ways families and society can combat senior isolation and loneliness. We also explore the unexpected benefits—such as reducing elder fraud and financial scams—and how fostering meaningful connections can help us all live without regrets.

Plus, Scott shares wisdom from the “super seniors” he works with and reveals his secrets to ensuring joy in every day.

And…stay tuned for how you can take advantage of an exclusive GrandPad offer for the HHC Community!

Moments That Matter: Poetry and Presence in Alzheimer’s Care with Marjorie Maddox

Tue, 08 Jul 2025 05:00:24 +0000

Poet Marjorie Maddox and acquisitions editor Sheila Luna join host Marianne Sciucco to discuss the healing power of poetry, the realities of long-distance caregiving, and finding hope through the complexities of Alzheimer’s and dementia.

Maddox’s, recent collection, Seeing Things, explores the tangled emotional landscape of dementia caregiving. The discussion examines the ways poetry can illuminate and comfort those touched by memory loss. Marjorie reads several of the poems, a gift to all .

The conversation moves beyond the personal to the universal. Marjorie shares that many poems in Seeing Things draw on her caregiving experiences for her mother, who lived with dementia, as well as her supportive role with her father-in-law—both journeys complicated by long distance and pandemic separation. As Marjorie admits, “You do feel so isolated when you’re going through it,” but the overlap in experience and shared vulnerabilities make poetry a communal space for catharsis. Poems in the collection touch not just on family memories but also larger societal losses—mass shootings and cave rescues—drawing lines between personal and collective grieving.

Marianne and Marjorie bring up a topic rarely discussed: the fractured roles in family caregiving, particularly for long-distance caregivers. Marjorie, based in Pennsylvania, supported her mother by daily phone calls and periodic visits, while her sister managed in-person care in Phoenix. Meanwhile, her brother handled the finances. These divisions, while pragmatic, often go unrecognized, and both the emotional and practical burdens can be immense.

The episode closes on the essential role of poetry—and storytelling—in chronicling caregiving journeys and connecting with others who walk a similar path. Whether it’s through a poem, a book, advocacy, or acts of compassionate service, these stories, hard-won and deeply personal, help others feel less alone. As Marjorie shares: “Being there for those little moments…even when you don’t feel like you’re doing anything, just holding someone’s hand… still does a lot.” And, perhaps, reading or writing poetry about those moments offers a light, a “slice of joy,” for a world too often shaped by loss.

After the Podcast

Purchase Seeing Things

Learn about the Moderators

Marianne Sciucco

Sheila Luna

About the Podcast

To sustain our efforts please donate here.

Thanks for listening.

We are a Whole Care Network Featured Podcast

Proud to be on The Health Podcast Network

Find us on The World Podcast Network and babyboomer.org

Want to be on the podcast? Here’s what you need to know.

We've got merch! Shop our Store

Back to Basics: What You Need to Know About Complaints

Tue, 08 Jul 2025 04:50:24 +0000

We’re getting back to the basics of hospice care, sharing information about complaints, when to make them, and what should happen when you do. Hospice Social Worker Lisa Pahl (creator of The Death Deck and End of Life Deck) helps drive this discussion. Here are a few highlights from our discussion: •Patients and/or caregivers have a right to make a complaint. •There are numerous reasons a complaint might be needed: visits aren’t being made, symptoms aren’t being managed, response time is slow, or the care is out of alignment with the beliefs or needs of the patient. •Care of a hospice patient should never be rough or insensitive - this is always a reason to make a complaint. •If delivery of medications or medical equipment (DME) is very late or doesn’t happen, a complaint should be made. •A complaint can be given directly to the case manager or director/administrator of the agency. •The hospice agency should immediately investigate, talk to everyone involved, and work to resolve the issue to the satisfaction of the patient or caregiver. •If the hospice agency doesn’t resolve the complaint in a timely manner or to the point the patient/caregiver is satisfied, the complaint can be elevated to the state organization that provides licensure to hospice agencies. It might be the Health and Human Services Department for the state. •The hospice agency is required to furnish the patient/caregiver with contact information about making complaints, including the information for their accrediting organization. (This could be Joint Commission, CHAP, or ACHC).

Connect with Lisa Pahl, owner/creator (thedeathdeck.com) The Death Deck and End of Life Deck Find The Death Deck on social media: Facebook IG LinkedIn

You can find the Approaching Death Support Kit at bkbooks.com.

Find all of Barbara Karnes’ products and resources at bkbooks.com.

Read Barbara’s blog at bkbooks.com.

Connect with Barbara Karnes on Facebook IG LinkedIn Twitter (X) YouTube

Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you’re already receiving, we’re here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. We believe you deserve to have good hospice care. Book your session with an expert Hospice Navigator at theheartofhospice.com.

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Socialmedia: Facebook Twitter Instagram LinkedIn

Is the Medicare GUIDE Program for you?: Three Essential Tips / Alzheimer’s and Other Dementias

Tue, 08 Jul 2025 04:40:26 +0000

Is the Medicare GUIDE Program for you? Today Nancy and I are sharing insights from Amy Imes of Emory's Integrated Memory Care about the new Medicare Program GUIDE. We're going to help you understand what it is and how to know if you can leverage it. We're sharing three tips.

We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we are so excited to share this information with you. This is an awesome opportunity to learn about the US Medicare GUIDE Program. With big announcements happening on July 1, 2025, we're excited to give you an overview so you can understand how you might participate in the GUIDE program.

Let us introduce you to Amy. Amy Imes is a gerontological nurse practitioner who is a trusted expert in geriatrics, demonstrating a deep understanding of the unique healthcare needs of the aging population. Throughout her career, Amy has played a pivotal role in building care models—that's important to the GUIDE program—and developing teams that yield superior outcomes. In addition to her clinical work, she is a member of the team at Emory's Integrated Memory Care, which is a nurse practitioner-led primary care practice for patients living with dementia. She's also the program lead for the Medicare GUIDE Program at Emory Healthcare.

GUIDE stands for Guiding an Improved Dementia Experience. It is a US Medicare pilot program that aims to provide better support and resources for persons living with dementia and their caregivers. Which is awesome.

You should know that it's a pilot program. Please let's all support it because we need to prove that this pilot program which focuses on helping dementia caregivers actually works so that this can become a standard part of Medicare and can also be expanded globally. It would be ideal for the US to prove it's worth so that we can help other countries take advantage of these kinds of support because they're watching and they're aware of it.

This is a groundbreaking program that is being offered around the country. So definitely we want to show up and show out as people tend to say sometimes. As of today, July 1st, there are approximately 390 programs across the country that have been vetted by Medicare to provide this program, and so it is really going to have an impact for persons living with dementia.

Full Show Notes

https://thecaregiversjourney.org/39-is-the-medicare-guide-program-for-you-three-essential-tips-alzheimers-and-other-dementias/

Additional Resources Mentioned

To find a guide program near you: Go to this CMS website page and put in your state and under models select ‘Guiding an Improved Dementia Experience (GUIDE) Model’

Then click ‘Display selected’

You can use the plus and minus signs in the upper right corner to zoom in closer to your area and find the program closest to you.

There may be several who cover your zip code so explore options

Emory Integrated Memory Care: https://www.emoryhealthcare.org/centers-programs/integrated-memory-care-clinic

Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney

Takeaways

What the Medicare GUIDE Program Offers

One-on-one support and coaching by dementia prevention providers

Care navigation through an often difficult and chaotic healthcare system

Education and training resources for caregivers

Respite care

Tip 1: Understand Your Eligibility

Tip 2: How to Find a GUIDE Program Near Me

Tip 3: How to Integrate GUIDE with Your Existing Medical Team

About Emory's Integrated Memory Care GUIDE Program

For those in the Atlanta area, Emory's Integrated Memory Care is led by nurse practitioners who are all dementia specialists and geriatric specialists. They bring everything under one umbrella with geriatric psych, licensed social workers, and RNs on their team. This eliminates doctor hopping and multiple visits.

Read More in This Blog here

Surrendering to the Healthcare System and Trying to Survive Cancer

Tue, 08 Jul 2025 04:20:26 +0000

On what was supposed to be Gavin's last day of his cancer treatment, everything changed in an instant. In this episode of I Saved You. Now, Do the Dishes, I share the story of an unexpected and frightening detour — a rush to the ER that none of us saw coming.

This episode dives into the emotional whiplash of caregiving: the mental load, the constant uncertainty, and how quickly a “normal” day can unravel. It’s raw, it’s real, and it’s another reminder that caregivers are constantly navigating the line between hope and emergency. If you’ve ever felt like the ground shifted beneath you in an instant, this one’s for you.

If you're a family caregiver, reach out to Carrie at www.carrieseverson.com or follow at https://www.instagram.com/authorcarrieseverson/.

In I Saved You. Now, Do the Dishes, Carrie discusses the importance of caregiver support as she reflects on being a family caregiver during her husband's cancer journey. She shares stories and tips from her experience, highlighting the need for essential caregiver resources. As season one comes to a close, she teases the return of the podcast in the fall.

Tony Bennett's Legacy - Fighting Alzheimer's, Facing Fame

Tue, 08 Jul 2025 04:15:21 +0000

What is the legacy of a legend facing Alzheimer's? Join us for a personal talk with Tony Bennett's daughters, Antonia and Johanna. They share insights into their father's life and his Alzheimer's journey. Go beyond fame and sold-out shows with their family's story. Discover how Tony navigated Alzheimer's while sharing his music. Learn about their family dynamics and resilience. Explore how his discipline and muscle memory aided his performances. This episode looks at Alzheimer's impact on a celebrated artist. It also covers family, resilience, and the human spirit's strength. Understand Tony's unique brain and the intersection of fame and this disease. Gain a new view of Tony Bennett's lasting legacy

RICHARD ROUTMAN: We Need to Talk About What's Happening to Our Elders

Tue, 08 Jul 2025 04:10:27 +0000

Alzheimer's and elder care demand our attention not just because millions endure them, but because the systems that are supposed to protect our most vulnerable are fundamentally broken. In light of the upcoming release of our documentary, No Country For Old People; a Nursing Home Exposé, August 1st on Amazon, my producing partner and today's guest host, Rick Mountcastle (whose work prosecuting Purdue Pharma was dramatized in Hulu's "Dopesick") and I are turning our focus on elder abuse.

In this powerful episode, we're joined by Richard Routman, whose 14-year career at the Department of Health and Human Services gave him a front-row seat to nursing home neglect cases, pulls back the curtain on why elder abuse persists despite seemingly robust regulations. The reality is sobering: residents fear retaliation if they report mistreatment, staff worry about losing jobs if they speak up, and facility administrators actively obstruct investigations by altering records or instructing employees to "forget" incidents when questioned by surveyors. Meanwhile, the regulatory landscape remains fragmented between federal agencies, state surveyors, Adult Protective Services, and law enforcement—creating dangerous gaps where abuse reports disappear.

Most troubling is how money influences the entire system. The nursing home industry spends hundreds of millions annually on political contributions and lobbying, effectively buying themselves protection from meaningful reform. As Richard notes, ordinary citizens advocating for better care are "fighting with sticks" while the industry fights "with guns."

Yet this conversation offers hope through specific action steps. Every county has a Commission on Aging that citizens can join to question officials and advocate for improved oversight. Families should learn their rights regarding documenting care—in many cases, they can legally record conditions despite what staff might claim. Most importantly, Richard reminds us that cultural change starts with rejecting the ageism that treats elder abuse as somehow less urgent than child abuse.

Don't miss our documentary "No Country for Old People" launching on Amazon August 1st. Until then, remember that knowledge, community action, and love remain our most powerful tools against a system that too often fails those who built our world.

Support the show

Be a ROAR-ior!! JOIN THE R.O.A.R. MOVEMENT for quality long term care! Visit the No Country For Old People Website for more information.

YOU CAN ALSO SUPPORT THE ABSOLUTELY CRUCIAL PROMOTION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE

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Not What We Signed Up For: Embracing an Unexpected Path

Tue, 08 Jul 2025 04:00:23 +0000

When Rachel Shapiro’s daughter suffered a severe stroke just before her second birthday, Rachel and her husband were told their child might not survive. Despite the devastating prognosis, they refused to give up, navigating a complex medical journey that transformed their family's life. Their daughter now lives with significant medical needs, requiring a tracheostomy and ventilator support, which initially seemed overwhelming to Rachel.

What makes Rachel's story remarkable is her determination to maintain a full, vibrant life despite the intense caregiving responsibilities. Working full-time in marketing while managing her daughter's complex medical care, she and her husband have intentionally preserved their family's sense of normalcy. They continue to be active in their community, host events, and ensure their other children feel supported and engaged. Rachel's approach is characterized by a deep faith and a belief that their current circumstances serve a greater purpose.

Her perspective on caregiving is both practical and inspirational. Rachel approaches challenges with low expectations and a remarkable ability to adapt, viewing unexpected changes as opportunities rather than obstacles. She emphasizes the importance of open communication with her spouse, maintaining their relationship through shared goals, and making time for self-care, such as occasional shopping trips or simply enjoying a quiet meal. Her story illustrates that while caregiving can be incredibly demanding, it doesn't have to consume or define one's entire existence.

Thank you to our sponsor: CareScout

Learn more about Confessions of a Reluctant Caregiver: https://www.confessionsofareluctantcaregiver.com/

** Caregiver Action Network Caregiver Help Desk offers free support to family caregivers via phone, chat, or email Monday through Friday, 8:00 am - 7:00 pm Eastern. Get answers, resources, support group info, or a listening ear. Visit www.caregiveraction.org/helpdesk/ or call 855-277-3640.**

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Back to Basics: What You Need to Know About Transfers

Mon, 07 Jul 2025 15:29:43 +0000

We’re getting back to the basics of hospice with Hospice Social Worker Lisa Pahl, sharing information about transfers from one hospice agency to another. It’s really important for patients and their decision makers to know they can transfer to another hospice agency if the care isn’t a good fit. Hospice team members should be knowledgeable about how transfers work and what needs to be done.

Here are some things you need to know about transfers: • The patient or decision maker has the right to request a transfer to another hospice agency. • There are several reasons a transfer might happen, including being dissatisfied with the care, personality clashes with the hospice interdisciplinary team, or wanting to be cared for by a friend working for another company. • When the patient or decision maker requests a transfer, the current agency is required to coordinate the transfer with the new agency. • The current agency should provide a report of the care being provided, including the plan of care, list of medications, and a discharge summary. • Transfers are allowed only once during a benefit (certification) period. The current agency should make that information available to the patient and caregiver.

Connect with Lisa Pahl, owner/creator (thedeathdeck.com) The Death Deck and End of Life Deck

You can find the Approaching Death Support Kit at bkbooks.com.

Find all of Barbara Karnes’ products and resources at bkbooks.com.

Read Barbara’s blog at bkbooks.com.

Connect with Barbara Karnes on Facebook IG LinkedIn Twitter (X) YouTube

Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you’re already receiving, we’re here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. We believe you deserve to have good hospice care. Book your session with an expert Hospice Navigator at theheartofhospice.com.

Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Social media: Facebook Twitter Instagram LinkedIn

Studying Sleep Early in the Dementia Journey: Five Essential Tips / Alzheimer’s and Other Dementias

Mon, 07 Jul 2025 15:22:46 +0000

Do you wish you could get a good night’s sleep? We do too!

We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we appreciate the insights Dr. Glenna Brewster, PhD, RN, FNP-BC, Assistant Professor at Nell Hodgson Woodruff School of Nursing at Emory University, shared for all of us about her sleep study titled SLEEPMATE, and how we can all create good sleep habits.

Dr. Glenna Brewster’s background is impressive, and her passion for good sleep is inspiring! In addition to her responsibilities as a professor, she is a nurse scientist, family nurse practitioner, and she leads the Emory University Mind at Rest research team, which develops and tests practical, evidence-based programs to reduce sleep problems and improve health outcomes for people living with memory loss or dementia and their caregivers.

Good sleep isn’t just for your care receiver, this is for you too!

According to Dr. Brewster:

Sleep problems, especially if you’re a caregiver or person living with cognitive impairment, are significant. You might have a hard time falling asleep, wake up multiple times during the night, or notice that as the disease progresses there is daytime sleepiness. Sleep disturbances are prevalent both in care partners or caregivers and people living with cognitive impairment.

Dr. Brewster has developed the SLEEPMATE study for caregivers and people living with cognitive impairment and types of dementia. It’s a six-week virtual intervention where you participate together. The study examines whether the intervention is feasible, acceptable, and if it improves sleep outcomes. At the end of this blog post is the link you can use if you’re interested in participating in this virtual study.

This topic is incredibly valuable for us as caregivers. We’ve learned the need for quality sleep — and what not having it is like. We’ve also learned that we’re often so focused on quality sleep for our care receiver, we don’t prioritize our own sleep as caregivers!

One important take-away from Dr. Brewster for caregivers it’s so easy not to consider — or to lose sight of:

Your quality of sleep is every bit as important — and sometimes even more — important than your care receiver’s.

Full Show Notes here

Additional Resources Mentioned

Dr. Glenna Brewster, assistant professor, shares her innovative study designed to improve the sleep outcomes of persons living with preclinical and early-stage dementia and their caregivers. Brewster is also founder of the Mind at Rest research lab.
For more information about joining this study, visit mindatrest.org/contact/.
Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney

Takeaways

Tip 1: Practice Good Sleep Hygiene

Tip 2: Limit Daytime Naps

Tip 3: Make Your Bedroom Like a Cave

Tip 4: Schedule Worry Time Earlier in the Day

Tip 5: Keep Your Bedroom for the Three S's

About the SLEEP-MATE Study

Dr. Brewster's study is recruiting pairs. The person who is receiving the care doesn't have to be diagnosed with dementia, just have a complaint or an experience of cognitive changes. Caregivers or care partners—different people want to be called different things based on where in the dementia journey they are—both people participating, both having some type of sleep disturbance or sleep problems.

That could be difficulty falling asleep, difficulty staying asleep (meaning that you fall asleep and then you wake up, and when you wake up, you have a hard time falling back asleep), or significant daytime sleepiness or some other type of impairment during the day. It's for people who are living within the contiguous US. Each of you gets an honorarium for participating as a thank you for your time and investment in participating in the study.

If you have any questions or want to find out more about the study, please reach out at 404-712-9164 or you can check out their lab's website at www.mindatrest.org.

Falling Through The Cracks of the Healthcare System

Mon, 07 Jul 2025 15:13:23 +0000

In this episode of I Saved You. Now, Do the Dishes Podcast, Carrie Severson shares the moment she realized they'd fallen through the cracks. Despite all the check-ins, appointments, and protocols, Carrie learned—after Gavin was nearly finished with his cancer treatment plan, including several rounds of chemotherapy—that he was never even scheduled to see an oncology nurse. That same day, his essential medication was sent to the wrong pharmacy during one of the most critical and fragile points in his care. This episode is a raw look at the administrative breakdowns that can define the caregiver experience, and what it's really like to become the coordinator, advocate, and emotional anchor all at once. This episode reflects on the purpose of I Saved You. Now, Do the Dishes podcast and Carrie share more tips for caregiving from her experience and invite listeners to share their thoughts. As this season of the show is coming to a close, she hopes to continue providing caregiver support for family caregivers when season two picks up in the fall! If you're a family caregiver, reach out to Carrie at www.carrieseverson.com or follow at https://www.instagram.com/authorcarrieseverson/.

Emotional Self-Care Tools with Hope Cross

Mon, 07 Jul 2025 15:05:35 +0000

magine stepping into a marriage knowing you're immediately going to become a full-time caregiver. That was Hope Cross's reality when her husband, Steve, was diagnosed with ALS while they were dating. For nine years, she cared for him up until his passing, and it was a journey filled with love, challenges, and deep emotions. Hope has openly shared the raw and unfiltered sides of caregiving, offering a rare glimpse into the realities many face, but sometimes don't discuss.

In this episode, Hope shares how she navigated life after loss, rediscovering herself and ultimately launching a therapy practice focusing on family caregiving, trauma, PTSD, grief and anxiety. We also explore the powerful role of art, nature, friendships, writing, and even our own noses in the healing process.

Show notes with product and resource links:

https://bit.ly/HHCPod207

Receive the podcast in your email here:

http://bit.ly/2G4qvBv

Order a copy of Elizabeth's book Just for You: a Daily Self Care Journal:

http://bit.ly/HHCjournal

For podcast sponsorship opportunities contact Elizabeth:

https://happyhealthycaregiver.com/contact-us/

The Happy Healthy Caregiver podcast is part of the Whole Care Network. Rate and Review the podcast:

https://bit.ly/HHCPODREVIEW

Living Well with Early-Onset Alzheimer's: Peter's 10-Year Journey

Mon, 07 Jul 2025 14:57:39 +0000

This podcast brought together two remarkable friends—Peter Berry and Deb Bunt—for a conversation that was as inspiring as it was deeply honest. Hosted by Marianne Sciucco and Christy Byrne Yates, the discussion explored not only the personal journeys and books of Peter and Deb, but also the profound insights they’ve gained into living well with dementia.

Peter's journey began with a diagnosis of early-onset Alzheimer’s at the age of 50. As a successful business owner, he was shocked—and initially devastated—by the news. He shares openly about the dark period following his diagnosis, describing it as “a year of hell,” marked by depression and even suicide attempts. What’s remarkable, though, is how Peter transformed that despair into a renewed sense of purpose. Inspired by both his own experience and his father’s long journey with Alzheimer’s, Peter resolved to become a source of hope and understanding for others facing similar challenges.

Enter Deb Bunt, Peter’s cycling buddy-turned-co-author and close friend. Their relationship is a beautiful demonstration of how support doesn’t just flow one way. As Deb and Peter describe it, they each bring unique strengths to the friendship: Deb provides companionship and boundless camaraderie, while Peter offers technical know-how and navigational skills. Together, they reinforce the idea that living well with dementia is as much about mutual support and meaning as it is about medical care.

This mutuality spills into their advocacy efforts—travelling throughout the UK, speaking at events, and writing books together.

Their creative journey produced two books so far: Slow Puncture, a memoir of Peter’s life post-diagnosis, and Walk With Me: Musings Through the Dementia Fog, a collection of Peter’s raw and poetic reflections. Deb explained how Peter’s poetic descriptions became the muse for her own long-harbored ambitions to write, and how collecting Peter’s texts and turning them into a book gave both of them a sense of validation and purpose.

These works don’t just recount Peter’s experiences; they offer a window into his emotional landscape—with metaphors that make the inexplicable aspects of dementia relatable. For Peter, cycling is like “a balloon that takes me high into the sky”—a momentary escape from the limitations of his diagnosis.

Read their books:

Watch “The Restaurant That Makes Mistakes”

About the Podcast

AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others.

Thanks for listening.

We are a Whole Care Network Featured Podcast

Proud to be on The Health Podcast Network

Find us on The World Podcast Network and babyboomer.org

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Healing the Body, Shifting the Mind: A Conversation on Recovery, Joy, and Acceptance with Brian Lerch

Mon, 07 Jul 2025 14:49:59 +0000

In today’s episode of A Time to Care: The Caregivers Podcast, we sit down with Brian Lerch, a seasoned executive in healthcare who works at a rehabilitation hospital that supports individuals recovering from traumatic events—such as car accidents or major strokes.

Brian shares valuable insights into the journey of rehabilitation, where the goal is not just physical recovery but also emotional and mental transformation. Patients at his facility participate in three hours of therapy a day, focusing on regaining the ability to perform daily tasks. But the journey doesn’t stop there. A crucial part of healing, he explains, is working on one’s mindset—regardless of whether the outcome is returning to independent living or transitioning into hospice care.

He emphasizes the importance of accepting change, embracing the good that remains, and learning to appreciate the present. According to Brian, healing includes discovering new sources of joy—like trying a hobby or exercising in ways that weren't part of your routine before. These activities not only help people cope with their new reality but also allow them to explore aspects of themselves they may have never known.

Brian reminds us that it's okay to feel uncomfortable when trying something new. In fact, feeling “bad at something” is the first step toward eventually becoming good at it. Whether it’s painting, yoga, or simply walking again—small efforts can lead to big emotional wins.

He also discusses how some people naturally possess a positive mindset, while others may struggle. For caregivers and family members, he advises practicing empathy by putting yourself in your loved one’s shoes and highlights how a strong support system can make a world of difference—for the person in recovery and for those supporting them.

This episode is a heartfelt reminder that recovery is not just about returning to the past—it’s about rewriting your story with hope, patience, and new possibilities.

Tune in, reflect, and share this with someone who needs encouragement in their caregiving or healing journey.

To get in touch with Brian Lerch:

linkedin.com/in/brianlerch

about.me/brianlerch

brianl1@live.com

Expert Elder Law Guidance for Alzheimer's and Dementia Caregivers

Sun, 15 Jun 2025 16:53:38 +0000

Elder law attorney Patrick Cawley is equipping dementia caregivers with the essential tools they need for estate planning, including advance care planning for end of life. Patrick guides family members as they navigate the health care system and complicated ways to pay for long-term care for their loved one. He is a certified dementia care consultant, and host of the Dementia Empowered podcast. Patrick has lived experience with a family member who has Frontotemporal Dementia (FTD), so he knows firsthand what dementia caregivers face. Here are some highlights from this episode:

Patrick endorses trying care solutions before going straight to legal solutions which might escalate problems and family dynamics.
The biggest challenges for dementia caregivers that Patrick sees are financial issues, forming a care team, and complicated or discordant family dynamics.
Patrick advocates for caregivers to be paid in certain situations, depending on estate taxes and the financial burden on the caregivers.
Recording keeping is vitally important; Patrick recommends keeping a paper trail of transactions and healthcare decisions.

Listen to the Dementia Empowered Podcast here. Connect with Keystone Elder Law here. Connect with Patrick Cawley on LI Find an Elder Law Attorney in your area at naela.org

You can find the Approaching Death Support Kit at bkbooks.com.

Find all of Barbara Karnes’ products and resources at bkbooks.com.

Read Barbara’s blog at bkbooks.com.

Connect with Barbara Karnes on Facebook IG LinkedIn Twitter (X) YouTube

Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you’re already receiving, we’re here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. We believe you deserve to have good hospice care. Book your session with an expert Hospice Navigator at theheartofhospice.com.

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Social media: Facebook Twitter Instagram LinkedIn

Studying Experienced Caregivers: Four Essential Tips / Alzheimer’s and Other Dementias

Sun, 15 Jun 2025 16:53:23 +0000

"When it comes to caregiving, the assumption about being able to take what we've learned and just naturally grow is not always going to be true."

How do you think you would feel if you were caregiving for a second or third person living with dementia? Would you feel more prepared because of your previous experience? If you answered "yes," you might be surprised by what research is revealing about experienced caregivers.

We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, both of us have been caregivers more than once, and we recently learned about enlightening research from Dr. Emily Mroz, a researcher at Emory University's School of Nursing who coined the phrase "experienced caregiver." Her research is shedding light on a common phenomenon that affects millions of families: providing dementia care for multiple loved ones throughout adulthood.

Dr. Mroz is a tenure-track assistant professor and social behavioral scientist who studies how people think, feel, and act within their social and personal situations. With training in developmental psychology, gerontology, geriatrics, and public health, she uses her multidisciplinary perspective to develop resources and interventions that support people living with serious illness, family caregivers, and those who are bereaved.

Through her research and interviews with caregivers, Dr. Mroz has identified crucial insights about experienced caregivers that challenge common assumptions and offer practical guidance for those stepping into the caregiving role again.

Full Show Notes

https://thecaregiversjourney.org/37-studying-experienced-caregivers-four-essential-tips-alzheimers-and-other-dementias/

Additional Resources Mentioned

Dr. Emily Mroz, assistant professor and social-behavioral scientist, discusses her research on improving how patients and caregivers navigate serious illnesses such as dementia, end-of-life care and bereavement.
Link to study flyer here
To join this study, visit survey.qualtrics.emory.edu/jfe/form/SV_cYfshxWcThSSV5s.
Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney

Takeaways

Tip 1: Avoid Assumptions About Who Is Prepared to Be a Dementia Caregiver

Tip 2: Assess How Prepared You Really Feel

Tip 3: Don't Hesitate to Get Involved in Skills Training and Support Groups

Tip 4: Share Your Stories with Grace, Not Judgment

The Importance of Research for Experienced Caregivers

Dr. Mroz's study is part of a growing recognition that experienced caregivers represent a significant population with unique needs and strengths. Her virtual research study involves participants completing surveys about their caregiving experiences and sharing their stories to help researchers understand the differences between new and experienced caregivers.

Study details:

Focuses on people currently in active caregiving roles, including those early in their journey with a second or third care recipient
Participants receive a $50 gift card honorarium
Sessions are conducted virtually and take about one to two hours
Can participate alongside other dementia caregiver research studies
Research is crucial for developing resources specifically tailored to experienced caregivers

Read More in This Blog here

What It's Really Like Bringing a Cancer Patient Home From the Hospital

Sun, 15 Jun 2025 16:53:13 +0000

In this deeply personal podcast episode of, I Saved You. Now, Do the Dishes, I share the raw, nerve-wracking experience of bringing my husband home from the long-term cancer wing before I was ready. He wanted out of the hospital, but I wasn't prepared for everything I had to do for him.

I shared my anxiety with the internal medicine department in hopes that they would keep him longer, but the team saw no reason to keep him, despite my pleas and the visible reality of our situation. My concerns were brushed off as caregiver overwhelm and I was advised to bring in an at-home nurse to help me with feedings, cleanings, and the drugs.

I got a quick tutorial of how to feed my husband through his feeding tube by hand every three to four hours, a box of formula, a box of syringes and a vial of anti-anxiety prescription I had to give him before radiation every day.

This is the reality of caregiving in crisis and what it takes to keep going when you are given more than you know what to do with and even more questions.

If you're a family caregiver, reach out to me at www.carrieseverson.com or follow me at https://www.instagram.com/authorcarrieseverson/.

#caregiver #caregiverburnout #marriage #cancer #mentalhealth #cancertreatment

Back to Hospice Basics: What You Need to Know About On Call

Sun, 15 Jun 2025 16:53:00 +0000

On-call, after hours, 24/7 services - no matter what you call it, hospice care is available to patients and caregivers every hour of every day. Regardless of the day of the week, whether it’s a holiday, or the office is closed, a member of the hospice team is accessible all the time. Some hospice agencies have answering services or triage teams, but the final result of a call is connection with a nurse. If another discipline is needed, that’s going to be coordinated by the agency. No question or concern is dumb. Hospice agencies offer this service to make sure patients and caregivers feel comfortable in their homes while experiencing the end of a life. Here are some of the reasons a caregiver or patient might want to contact the hospice team when the office is closed.

The patient has had a change in condition, and is showing different symptoms.
Your person (the patient) has died.
There’s a question about medications.
A piece of critical equipment isn’t working (oxygen, BiPap, electric hospital bed, air mattress or overlay).
There are spiritual or faith needs, and the chaplain’s (or social worker’s) support is needed.
The patient has had a fall and there’s an injury.

You can find the Approaching Death Support Kit at bkbooks.com.

Find all of Barbara Karnes’ products and resources at bkbooks.com.

Read Barbara’s blog at bkbooks.com.

Connect with Barbara Karnes on Facebook IG LinkedIn Twitter (X) YouTube

Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you’re already receiving, we’re here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. We believe you deserve to have good hospice care. Book your session with an expert Hospice Navigator at theheartofhospice.com.

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Social media: Facebook Twitter Instagram LinkedIn

Email: helen@theheartofhospice.com

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Redefining Life After Retirement: A Conversation with Alara Rosenberg

Sun, 15 Jun 2025 16:52:38 +0000

In this inspiring episode of A Time to Care: The Caregivers Podcast, we sit down with Alara Rosenberg, a retirement coach who helps individuals navigate the emotional and practical transition into post-career life. Alara shares that one of the most essential steps in this phase is taking the time to reflect on key questions: Who are you now? What do you want to do? Who do you want to become?

She emphasizes the importance of social connection, encouraging retirees to build meaningful relationships and embrace the freedom to explore new interests. Retirement, she reminds us, is not a fixed destination—it’s a journey of self-discovery where everyone’s path is different.

Alara invites retiree listeners to experiment with new hobbies, seek out fresh friendships, and pursue long-forgotten passions. This stage of life is a unique opportunity to realign with your values and find joy in new experiences.

She leaves us with three powerful pieces of advice:

Take intentional time to plan your retirement journey.
Identify your new values, goals, and priorities.
Take care of your brain and body to maintain vitality and good health.

Tune in to be inspired and to rethink retirement not as an end, but as a new beginning filled with possibility.

BREANA PATEL: Can AI Transform Long Term Care?

Sun, 15 Jun 2025 16:52:04 +0000

Could artificial intelligence be the solution to our eldercare crisis? In this riveting episode, we dive deep into the intersection of technology and compassionate care with Breana Patel, founder and CEO of Owie AI.

The statistics are sobering – we're facing a projected shortage of half a million nurses within the next decade while our aging population grows exponentially. But Breana's innovative approach offers a ray of hope in what can seem like an overwhelming challenge. Her company is developing contactless AI monitoring systems that can predict patient needs, prevent adverse events, and reduce the administrative burden on already overwhelmed caregivers.

Imagine a world where technology can alert staff before a fall occurs, detect early signs of dehydration, or recognize when a non-verbal patient is in distress. These aren't futuristic dreams but tangible solutions Breana's team is currently piloting in healthcare facilities. What makes this approach revolutionary is its focus on enhancing rather than replacing human care – giving caregivers more time for meaningful interactions by automating documentation and routine monitoring.

We explore the profound implications for transparency in long-term care, how AI might serve as a digital companion for isolated residents, and the careful privacy considerations built into these systems. Breana shares her personal motivation behind founding Owie AI after witnessing a loved one's complications from undetected health events, highlighting how technology can help prevent similar situations for countless families.

As our society grapples with policy decisions that will fundamentally shape eldercare for decades to come, innovations like these represent our best hope for creating dignified, quality care for all. Join us for this thought-provoking conversation about how artificial intelligence might become our most powerful tool in ensuring no one is forgotten or neglected in their vulnerable years.

Want to learn more about the challenges facing our long-term care system? Watch our documentary "No Country for Old People," releasing August 1st on Amazon.

CONTACT BREANA PATEL

OWIE AI

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Be a ROAR-ior!! JOIN THE R.O.A.R. MOVEMENT for quality long term care! Visit the No Country For Old People Website for more information.

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Essential Employee Benefits for Working Caregivers

Sun, 15 Jun 2025 16:49:06 +0000

Essential employee benefits for working caregivers. In this insightful episode, we explore into the critical intersection of caregiving responsibilities and career management. With a staggering 73% of employees juggling work and caregiving, it's essential to explore how workplaces can better support this significant portion of their workforce. We discuss leveraging Employee Resource Groups (ERGs) as valuable tools for both employers and employees. For organizations, ERGs provide crucial insights into the needs of working caregivers, informing the development of relevant employee benefits and fostering a supportive company culture. We explore which employee benefits are most valued by caregivers.

Furthermore, we address the challenges faced by individuals who have stepped away from their careers to provide care. We offer practical advice on effectively positioning oneself for re-entry into the workforce, emphasizing how to highlight the valuable skills acquired through caregiving. This episode provides essential guidance for both employers seeking to support their caregiving employees and individuals navigating the complexities of balancing career and care.

Our Guest:

Zack Demploplous, author Working Caregivers - The Invisible Employees

Zack Demopoulos has over 36 years of diverse experience working in the corporate and small business environments. His expertise spans across sales management; executive leadership; human resources; diversity, equity, and inclusion; small business; board leadership; and caregiving.

Zack was drafted into a long distance caregiver for his father when he had a stroke and needed help with activities of daily living for six years until he passed away in 2011. During this time

Zack traveled back and forth to North Carolina while holding down a full-time high-level leadership role for his organization.

Today, Zack does the same for his mother who also lives in North Carolina.

Love Creatively: A Caregiver's Colorful Journey

Sun, 15 Jun 2025 16:45:20 +0000

This week, Ari Medrano delivers a powerful testament to the depth and complexity of caregiving. As a Mexican immigrant who came to the United States at age one, Ari's approach to caregiving is deeply rooted in her family's values of service, love, and compassion. Throughout the episode, she shares multiple experiences of caregiving, including caring for her cousin with bone cancer, a homeless woman named Teresa, her brother who was a victim of a violent crime, and her mother during critical health challenges.

Her caregiving journey is marked by a remarkable ability to love creatively and find joy even in the most challenging circumstances. Ari's approach goes beyond traditional caregiving, incorporating humor, sensory experiences (such as using specific scents to uplift spirits), and an unwavering commitment to supporting not only the patient but also the healthcare workers around them. Her personal experiences, including her health challenges like heart disease and a brain tumor, have shaped her perspective, allowing her to approach caregiving with empathy, resilience, and a profound understanding of both giving and receiving care.

What stands out most about Ari is her philosophy of "givers gain" and her conviction that we can experience both pain and joy simultaneously. Her stories illustrate how caregiving is not just a duty, but a calling that requires creativity, emotional intelligence, and a deep capacity for love. Whether it was bringing Santa Claus to her mother's hospital room, providing comfort to a homeless woman, or supporting her brother through his challenging health journey, Ari embodies the true spirit of compassionate caregiving.

About Ari:

Ari Medrano is a Mexican immigrant who arrived in the USA as a one-year-old, the middle child in a family of five. Her parents have been married for 58 years. Ari's caregiving journey deepened when she moved from Texas to California to care for her mother and youngest brother, who both became ill simultaneously. She provided home hospice care for her brother in his final weeks, following his brutal injuries from a bank robbery. Concurrently, she cared for her mother in the hospital for six months; her mother is now at home, receiving care from all siblings.

As a mother of two sons, Ari also acknowledges their caregiving role during her own extensive health battles, which included multiple tumors, heart disease, a brain tumor, and numerous surgeries. She refers to herself as an "Olympian patient" and serves as a go-to health advocate for her family, friends, and community. She is notably a "1% Medical Miracle" who regained full mobility after being paralyzed by a craniotomy for a brain tumor extraction. Ari's legacy is defined by her philosophy: "Love God, Love People...creatively."

Support the show

Confessions of a Reluctant Caregiver

Sisterhood of Care, LLC

Website: www.confessionsofareluctantcaregiver.com

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Engaging the Remarkable Energy of Sound Baths and Aromatherapy

Sun, 15 Jun 2025 16:35:34 +0000

Blending aromatherapy and sound bathing into the care of dying patients comes naturally to end of life doula and hospice nurse Carrie Oram. Carrie has witnessed deep, relaxing responses from clients as they experience the vibrations of Tibetan sound bowls. Regardless of diagnosis or disease progression, people who are at the end of their lives become more relaxed during treatments with aromatherapy. The benefits are many - calm, an elevated sense of happiness and wellbeing, comfort, connection with pleasant memories and sensations, even appetite stimulation.

Carrie integrates her doula work into her work as a hospice nurse, being sure to separate responsibilities that are under her nursing license from her doula tasks. You can find Carrie at angelheartholistics.com. Carrie is the compassionate owner and operator of Angel Heart Holistics, where she combines her extensive background in healthcare with her deep passion for holistic healing. As a hospice nurse with years of experience, Carrie has witnessed firsthand the profound impact that emotional and physical well-being have on a person’s overall quality of life.

Connect with Carrie on Instagram (@angelheartholistics)

Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you’re already receiving, we’re here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. We believe you deserve to have good hospice care. Book your session with an expert Hospice Navigator at theheartofhospice.com.

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Social media: Facebook Twitter Instagram LinkedIn

Email: helen@theheartofhospice.com

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Learn to Navigate Support Systems: Four Essential Tips / Alzheimer’s and Other Dementias

Sun, 15 Jun 2025 16:27:05 +0000

“An educated and confident family caregiver who knows what to do in their role is really the absolute best medicine for the care receiver.” Dr. Carolyn Clevenger

Do you know extensive research specifically focused on dementia caregivers is being conducted? Are you aware of innovative studies designed to equip family caregivers with navigation skills? Now you will, and you’ll be learning about valuable opportunities to strengthen your caregiving journey.

We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we are continuously learning new ways to support our health and well-being, and that of our care receivers. We recently discovered the groundbreaking dementia caregiver research, the CANDO Study, Dr. Carolyn Clevenger, DNP, RN, GNP-BC, AGPCNP-BC, FAANP, FGSA, FAAN, Professor at the Emory University Nell Hodgson Woodruff School of Nursing is conducting. When most people think about dementia research, they focus on studies involving people living with dementia or pharmaceutical treatments. This crucial area of research focuses on supporting the family caregivers themselves.

Dr. Clevenger is a professor and gerontological nurse practitioner who is nationally recognized as an education leader in advanced practice nursing and geriatrics. Carolyn founded, and directs, the comprehensive dementia care model called Integrated Memory Care (IMC), which provides memory and primary care in a single integrated approach for people living with dementia and their care partners.

Full Show Notes

https://thecaregiversjourney.org/36-learn-to-navigate-support-systems-four-essential-tips-alzheimers-and-other-dementias/

Additional Resources Mentioned

Dr. Carolyn Clevenger, a nationally recognized educational leader in advanced practice nursing, geriatrics and gerontology, shares her groundbreaking work on dementia family caregiver education programs that teach new caregivers how to transition into the role and navigate various support systems.
For more information about joining this study, visit scholarblogs.emory.edu/CAN-DO/.
Savvy Caregiver course: Available face-to-face or online (in-person version includes support group benefits)
“Best Programs for Caregivers” website: A collaboration between the Benjamin Rose Institute on Aging and Family Care Alliance featuring only research-proven programs.
Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney

Additional Resources Mentioned

Takeaways

Tip 1: Understand Different Levels of Care Early

Home-Based Care
Community-Based Programs
Residential Care Options

Key considerations:

Each level has different eligibility requirements and payment structures
Availability varies by state—some follow federal guidelines, others have state regulations
People often wait until they desperately need memory care but try to access assisted living instead, creating unnecessary stress

Tip 2: Stay Ahead of Financial Challenges

Protect your assets while maintaining oversight
Understand the early warning signs
Watch for judgment impairment issues

Tip 3: Leverage Legal Support from Elder Law Experts

What sets elder law attorneys apart
Specialized dementia expertise
Long-term benefits

Tip 4: Take Evidence-Based Classes

What makes evidence-based courses effective
Measurable outcomes

The CAN-DO Study: Training Caregivers as Navigators

Dr. Clevenger's current research project, CAN-DO (Caregiver As Navigator Developing Skills Online), trains family caregivers to navigate four critical systems: healthcare, financial, legal, and family systems.

Course structure:

Six-week online course following three families through different types of dementia
Each day presents real-life scenarios with appropriate responses and preventive measures
Videos from subject matter experts including elder law attorneys, investigators, estate planners, and healthcare providers

What Really Happens When You File a Complaint at the Hospital?

Sun, 15 Jun 2025 16:17:35 +0000

After filing formal complaints against the doctors who violated my husband’s patient rights, everything changed.

In this episode, I share what happened next—how advocating for Gavin led to a new physician assistant, a new nurse, and finally, the right medications. It wasn’t easy, but standing my ground shifted the entire course of his care.

Gavin was still in the hospital, newly reliant on a feeding tube and being checked for pneumonia—but for the first time in a while, it felt like we could both exhale. Despite the fact that I was still in caregiving burnout and wildly overwhelmed, I loved being able to lean on hospital staff.

This is a story about the power of speaking up, even when your voice shakes, and the turning point that gave us hope again.

Join me as I share more insights from my husband's cancer journey, focusing on the importance of being a strong patient advocate. I'll discuss navigating the healthcare system and the necessity of caregiver support. This episode also underscores the significance of patient safety within local hospitals.

Connect with me if you're on a similar path at www.carrieseverson.com or instagram.com/authorcarrieseverson/

Cyber Safety with Art Bowker

Sun, 15 Jun 2025 16:13:30 +0000

Art Bowker cares for his mother who is living with Alzheimer’s while juggling multiple careers, including one as a cybercrime expert. Art has over 30 years of experience in law enforcement and corrections and co-authored a book to help us protect vulnerable adults from cybercrimes and provides guidance on surviving a cyberattack.

In this episode we chat about cybercrime (like pig butchering), what we can do to help prevent a financial catastrophe, hoarding, legal guardianship, and Art’s passion for cigars and bourbon.

Show notes with product and resource links:

https://bit.ly/HHCPod206

Receive the podcast in your email here:

http://bit.ly/2G4qvBv

Order a copy of Elizabeth's book Just for You: a Daily Self Care Journal:

http://bit.ly/HHCjournal

For podcast sponsorship opportunities contact Elizabeth:

https://happyhealthycaregiver.com/contact-us/

The Happy Healthy Caregiver podcast is part of the Whole Care Network. Rate and Review the podcast:

https://bit.ly/HHCPODREVIEW

Help for Dementia Family Caregivers: Medicare's GUIDE Program with Jenna Morgenstern-Gaines

Sun, 15 Jun 2025 16:08:47 +0000

Dementia family caregivers face an overwhelming journey—without adequate support or resources.

Supporting someone with dementia is a complex, emotional, exhausting journey. Yet, dementia family caregivers face this challenge without the coordinated support, training, or resources needed to provide the best care possible.

But that’s beginning to change. On July 1st Medicare is launching a new, first-of-its-kind program called GUIDE—Guiding an Improved Dementia Experience—created to provide comprehensive, FREE support for dementia family caregivers.

Daughterhood has partnered with PocketRN, an approved Medicare provider for the GUIDE program and a nationwide organization offering families 24/7 access to nurses—right from their pocket.

My guest today is Jenna Morgenstern-Gaines, the CEO and co-founder of PocketRN. In our conversation, Jenna will share more details about the GUIDE program and its comprehensive benefits, including ongoing caregiver support, education and training, access to respite care, how to enroll, everything you need to know to access the program.

Episode TRANSCRIPT

Access Daughterhood's GUIDE page with information and locator HERE

CMS website information on GUIDE

Survivor Autism Representation

Sun, 15 Jun 2025 16:05:46 +0000

In this episode, Sarah and Jeremy discuss the 48th season of "Survivor" and learn more about Eva Erickson, the first openly autistic contestant in the show's history.

Check out all of our work at:

Caregiver Chronicles | Stelmach Brown Media llc

The Caregiver’s Spin Cycle: Lessons, Laughter, and Life with Alfredo Botello

Sun, 15 Jun 2025 16:03:02 +0000

In this engaging episode, hosts Marianne Sciucco and Christy Byrne Yates are joined by fiction writer and caregiver,Alfredo Botello, and AlzAuthors’ acquisitions editor Ruth Stevens.

Dive into a heartfelt and surprisingly humorous conversation as Alfredo discusses his novel, Spin Cycle, which explores the journey of a son caring for his mother with dementia. Alfredo, who transitioned from architect to screenwriter to novelist, and also runs a California dive bar, shares the inspiration behind his original story and opens up about balancing humor and heartbreak on the Alzheimer’s caregiving path.

Key Highlights:

Alfredo’s novel takes a rare spin, centering on a “pop-up school” for caregivers—the support group you wish you’d had—where ten diverse participants deal with overwhelming responsibilities, guilt, humor, and hope.
Alfredo talks openly about his personal dementia journey, caregiving for his mother, facing challenging emotions, and the importance of self-forgiveness and embracing compassion, even in tough moments.
From absentee siblings to laugh-or-cry moments, hear how Alfredo’s characters mirror real life and help break the silence around caregiving.
Discover how fiction can be as supportive and insightful as caregiver guides, helping readers feel less alone and more validated in their struggles.
Learn about upcoming AlzAuthors initiatives, including book giveaways and a first-of-its-kind Alzheimer’s and dementia film festival—unique ways to connect and educate through storytelling.

Whether you’re a caregiver, a family member, or simply want to better understand Alzheimer’s and dementia, this episode offers vital insights, practical encouragement, and genuine laughter. Alfredo’s honest storytelling and the hosts’ empathetic questions highlight the challenges and unexpected gifts found on the dementia journey.

Find Out More:

Get Spin Cycle by Alfredo Botello
Explore his other works at https://alfredobotello.com/
Join the AlzAuthors community and check out giveaways, event sign-ups, and caregiving resources at https://alzauthors.com/
Read Alfredo’s exclusive essay for AlzAuthors https://alzauthors.com/blog

Subscribe and Share:

If you enjoyed this episode subscribe to the AlzAuthors podcast and share this story with someone who cares.

About the Podcast

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Breaking the Silence How to Support Older Adults Facing Loneliness with Deborah Armstrong

Sun, 15 Jun 2025 15:55:50 +0000

In this heartfelt episode of A Time to Care: The Caregivers Podcast, we speak with Deborah Armstrong, a specialist in senior isolation and loneliness. Deborah sheds light on a reality many older adults face: feeling disconnected from their families and the world around them. Whether it’s an inability to relate to the fast-paced conversations of their children and grandchildren or the impact of cognitive or mental health issues, isolation often leads to deep sadness or depression.

Deborah also reminds us how the COVID-19 pandemic heightened this problem, as everyone became more familiar with the toll that prolonged isolation can take.

But there is hope. Deborah shares practical and compassionate strategies to help bring our aging loved ones back into connection with life and those around them. Some of her suggestions include:

Taking them out for short visits to familiar or new places
Bringing laughter into their lives through funny movies or joyful memories
Surrounding them with children when possible, whose energy can be contagious
Sharing family photos to spark stories and conversation
Bringing along favorite activities (like coloring, knitting, or puzzles) when going to appointments to make wait times more enjoyable
Encouraging movement—short walks, gentle dancing, or just listening to music
Singing together or reading a book they once loved
Reentering their world, rather than forcing them into ours

Deborah’s message is clear: reconnection doesn’t require grand gestures—it starts with small, loving actions that honor who they are and what brings them joy.

Tune in to learn how to help the elders in your life feel seen, heard, and valued once again.

Back to Hospice Basics - What You Need to Know About Continuous Care

Sat, 24 May 2025 04:24:03 +0000

We’re getting back to the basics of hospice, talking about Continuous Care with hospice nurse Gabby Jimenez of The Hospice Heart. Continuous care can be confusing. We’re talking about when it’s used, how it works, and where it happens.

Here are some highlights from this episode: • Continuous Care (CC) is a level of care within the Medicare hospice benefit. It’s also called Crisis Care. • CC is used for symptom management and is managed by the hospice team in the patient’s residence. • There’s no increased cost for the patient or family if CC is implemented. • Continuous Care DOES NOT have to be continuous - it can be divided into increments that benefit both patient and caregiver. • CC is used when symptoms become unmanageable, things like pain, shortness of breath, or agitation. • CC is temporary. Having Continuing Care DOES NOT mean the hospice team will put staff in the home 24/7 indefinitely; it’s only in place until the symptoms are resolved. • An RN or LVN has to do at least 50% of Continuous Care hours. If medication is being administered, a nurse must be the hospice team member to provide the Continuous Care. • When the symptoms resolve, Continuous Care will be stopped, and the routine hospice care will resume.

Connect with Gabby Jimenez of The Hospice Heart: Gabby Jimenez is a hospice nurse, end-of-life doula, death and dying educator, and author. Her website and Facebook page, which are both named The Hospice Heart, offer support for people who are either terminally ill, or caring for someone who is nearing the end of their life. Gabby has learned from being at the bedside of about 2,000 people who have taken their last breath. Her end-of-life doula training has helped her to truly understand the sacredness of death and dying, and what it means to be present for someone during that intimate and final moment. You can find her information and all of her offerings on her website: www.thehospiceheart.net Contact: thehospiceheart.net/contact Buy Gabby’s books: thehospiceheart.net/books Book Gabby to speak at your event: thehospiceheart.net/book-gabby Social Media for Gabby Jimenez Facebook (The Hospice Heart) Instagram (gabrielle.elise.jimenez)

Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you’re already receiving, we’re here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. We believe you deserve to have good hospice care. Book your session with an expert Hospice Navigator at theheartofhospice.com.

Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Social media: Facebook Twitter Instagram LinkedIn Email: helen@theheartofhospice.com

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Build a Partnership With Your Care Community: Six Essential Tips / Alzheimer’s and Other Dementias

Sat, 24 May 2025 04:19:49 +0000

Is your loved one in a memory care community, or are you considering moving them into one? Understanding how to build a collaborative relationship with the care team is crucial for ensuring the best outcomes for your loved one.

We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we've learned that creating a true partnership with care community staff can dramatically improve quality of care and reduce stress for everyone involved.

We recently spoke with James Lee, CEO and co-founder of Bella Groves, an award-winning memory care community. With over 17 years of experience in senior living and memory care, James has developed valuable insights on how to transform what is often an adversarial relationship between family caregivers and professional caregivers into a collaborative partnership.

Full Show Notes

https://thecaregiversjourney.org/35-build-a-partnership-with-your-care-community-six-essential-tips-alzheimers-and-other-dementias/

Additional Resources Mentioned

Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney

Takeaways

Tip 1: Assess the Overall Fit

When looking for a memory care community, many families focus on practical aspects like location, price, and amenities. While these factors are important, James suggests that philosophical alignment and rapport with the management team are even more crucial for long-term success.

When evaluating potential communities, James recommends shifting your mindset from "us versus them" to "us collectively versus dementia." This perspective can transform the relationship from the beginning.

Tip 2: Embrace the Community Aspect

Moving your loved one from home to a community setting represents a fundamental shift in their care environment—from one-on-one care to being part of a group.

Tip 3: Acknowledge Your Role Has Changed

When your loved one moves into a care community, your role shifts from being the primary caregiver to being a care partner working alongside professional caregivers.

Tip 4: Recognize That the Diagnosis Will Progress

A critical aspect of the care partnership is understanding that your loved one's condition will continue to change over time. In fact, by the time someone moves into a memory care community, they're often in the steeper part of their dementia journey where changes happen more rapidly.

Tip 5: Acknowledge Your Grief

The dementia journey involves ongoing loss, a phenomenon Sue calls "drip grief." As your loved one's condition progresses, you experience new losses almost daily—abilities that disappear, memories that fade, personality changes that emerge.

Tip 6: Engage with the Community Caregiving Team

The families whose loved ones have the best quality of life tend to be those who actively engage with the care team. This engagement goes beyond basic communication to building genuine relationships with the people caring for your loved one.

Building a True Partnership

Creating a collaborative relationship with your loved one's care community team isn't just about being nice—it's about achieving the best possible outcomes for your loved one with dementia.

By reframing the relationship from "us versus them" to "us collectively versus dementia," you can transform what is often an adversarial dynamic into a true partnership. As James explains, "You are your loved one's expert, we are dementia experts. And the two together give us the best chance to get this right."

Read More in This Blog here

Unseen Care with Jess Ronne

Sat, 24 May 2025 04:14:31 +0000

In this episode of the Happy Healthy Caregiver podcast, Jess Ronne shares her powerful caregiving journey, from supporting her late husband through brain cancer to raising her son, Lucas, who lives with profound disabilities—alongside seven other children. Jess is an entrepreneur, author, speaker, podcast host, documentary producer, and passionate caregiver advocate.

She opens up about the stark contrast in support she received during different caregiving seasons and how anger fueled her resilience as a young widow with four children. Jess also shares the incredible story of how a perfect stranger connected her with her now-husband, Ryan, despite living in different states.

Now in another season of major transition, Jess and her family have created a group home where Lucas is thriving. With newfound space in her life, Jess is focused on healing from years of trauma, being present, and intentionally choosing which responsibilities to embrace or surrender.

This episode is packed with valuable caregiver resources, inspiration, and hope.

Show notes with product and resource links:

https://bit.ly/HHCPod205

Receive the podcast in your email here:

http://bit.ly/2G4qvBv

Order a copy of Elizabeth's book Just for You: a Daily Self Care Journal:

http://bit.ly/HHCjournal

For podcast sponsorship opportunities contact Elizabeth:

https://happyhealthycaregiver.com/contact-us/

The Happy Healthy Caregiver podcast is part of the Whole Care Network. Rate and Review the podcast:

https://bit.ly/HHCPODREVIEW

Exploring Family, Love, and Alzheimer’s Through Fiction with Author Marita Golden

Sat, 24 May 2025 04:11:25 +0000

Welcome to a powerful episode of the AlzAuthors Podcast featuring acclaimed author Marita Golden and her novel, The Wide Circumference of Love, as part of the Aging & Amazing Book Club series. This engaging discussion dives into the storytelling craft, the nuances of family caregiving, and the realities of Alzheimer’s and dementia, especially in African American communities.

An award-winning author of 22 books, Marita Golden shares her journey as a writer, from being a story-loving child in Washington, D.C., to producing literary works that explore social issues and healing. She shares how she came to write a story centered on a caregiver after immersing herself in caregiving spaces, meticulous research, and witnessing a friend’s torturous battle caring for her husband.

Ms. Golden shares insights into the connection between writing and healing, and how journaling and other forms of writing can be vital mental health tools that promote resilience.

She also speaks to the higher rates of Alzheimer’s and other dementias in the African American community, citing the lack of representation in clinical trials as one contributing factor, and speaks to why awareness and advocacy are more important now than ever.

For readers and writers, Ms. Golden shares insight into the craft of writing, her writing routine, and her creative evolution.

Key Takeaways:

Storytelling unites families and communities, easing the isolation of caregiving and dementia.
Fictional works like The Wide Circumference of Love, along with memoirs and how-to guides, are crucial for raising awareness of Alzheimer’s and dementia.
Journaling and creative writing document the caregiving journey and provide healing and hope for both writers and readers.
The urgent need for advocacy and equity in dementia care for marginalized communities.

About Marita Golden:

Marita Golden is President Emeritus and co-founder of the Hurston/Wright Foundation. She is also an educator and author of fiction and nonfiction exploring Black life, identity, and resilience. Her recent memoir, How to Become a Black Writer, is available now. Find out more about Marita Golden on her website.

Read Marita’s AlzAuthors Blog

Follow Marita Golden:

Facebook

Instagram

Buy Marita’s books:

About the Podcast

Thanks for listening.

We are a Whole Care Network Featured Podcast

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Money, Mind, and Memory: Proactive Planning with Michael Lewis

Sat, 24 May 2025 04:08:49 +0000

In this episode of the podcast, we sit down with financial advisor Michael Lewis, who shares insightful perspectives on the intersection of brain health and financial planning.

Michael points out that certain cognitive decline conditions can begin developing 7 to 10 years before any noticeable symptoms appear. With this in mind, he strongly recommends that just as we schedule annual physical checkups, we should also routinely assess our cognitive function. Proactive brain health screenings can make a significant difference in long-term financial decision-making and personal well-being.

He also emphasizes that periods of high stress are some of the worst times to make major financial decisions. Stress can cloud judgment, heighten emotional responses, and lead to choices that may not be in our best interest. His advice? Plan ahead and prepare for the unexpected.

Michael encourages families to have the important conversations before a crisis arises—whether about wills, care plans, or long-term financial goals—and to take action early, rather than delaying essential steps.

This conversation is a powerful reminder of the importance of being proactive, not only in our finances but in our mental and emotional well-being as we age.

To reach Michael.

LinkedIn: linkedin.com/in/michael-lewis-cfa-mba
Website: www.familylegacync.com

Calendar: https://calendly.com/caregiversresource/preliminary

How to Thrive as a Sandwich Caregiver in 2025

Thu, 15 May 2025 16:05:58 +0000

Christy Byrne Yates of Alz Authors has experienced all the unique challenges of sandwich caregiving. Caring for both of her parents with neurodegenerative diseases (dementia and Alzheimer’s disease) while she raised young kids taught her lessons she now shares with other caregivers. In this open and honest conversation, Christy shares the good times and the struggles of her caregiving experience. Christy is a Licensed Educational Psychologist, author, speaker, and coach. In Building a Legacy of Love: Thriving in the Sandwich Generation, she shares her journey as a working mom caring for parents with dementia. A retired school psychologist, she now delivers keynotes, workshops, and coaching to support caregiving families. Christy co-hosts Untangling Alzheimer’s & Dementia, a podcast by AlzAuthors.com, and has been featured in Women’s World Magazine (Jan 2025) and has been interviewed on over 20 podcasts. She’s also a contributing writer on Sandwich Generation caregiving topics.

Connect with Christy Byrne Yates, author of Building a Legacy of Love: Thriving in the Sandwich Generation Website: ChristyYates.com Buy the book: Building a Legacy of Love Media for Christy Yates Links-in-bio: Christy Byrne Yates: Coaching Caregivers Social Media: Facebook Instagram LinkedIn Bluesky YouTube Social Media for GrandPad: Facebook Instagram LinkedIn YouTube

Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you’re already receiving, we’re here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. We believe you deserve to have good hospice care. Book your session with an expert Hospice Navigator at theheartofhospice.com.

Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Social media: Facebook Twitter Instagram LinkedIn Email: helen@theheartofhospice.com

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Introduce and Integrate a Caregiver: Six Essential Tips / Alzheimer’s and Other Dementias

Thu, 15 May 2025 16:03:17 +0000

Adding a new caregiver to your support team can be a challenging transition, whether they're coming into your home, assisting your loved one who lives alone, or joining the care team in a memory care community. This transition can be particularly difficult for those caring for loved ones with Alzheimer's or dementia, as changes in routine can cause confusion and resistance.

If your loved one doesn't think they need help (and let's be honest, many don't), don't give up too quickly. Be patient and allow the process time to unfold. As one experienced caregiver shared, "He told the new caregiver for at least the first couple of weeks, every time she came, 'You need to go home.' She would just smile at him and say, 'Well, I'm not going home just yet.'"

My Husband's PA Was Unprofessional & Nearly Killed Him.

Thu, 15 May 2025 15:56:23 +0000

In this raw and unfiltered episode of I Saved You. Now Do the Dishes, I walk you through the moment my husband finally faced what he’d been resisting: the need for a feeding tube. What should have been a moment of compassionate care turned into something else entirely—his physician assistant laughed, told him he made her job harder, and actually said we should pray to our lucky stars she could “work her magic” to get him a feeding tube.

Unprofessional doesn’t even begin to cover it. I got in her face. I yelled. And then I got Gavin admitted to the ER. His white blood cell count was so low, the attending ER physician said Gavin's body was close to shutting down. He was checked into the long-term cancer wing.

This is a story about thresholds—of health, of patience, of love—and what happens when you’re forced to cross them all at once.

If you're a caregiver, I'd love to hear from you. Reach out to me at https://carrieseverson.com/home/ or follow me at https://www.instagram.com/authorcarrieseverson/

Bridging Cultural Care Economy Gaps with Paurvi Bhatt

Thu, 15 May 2025 15:54:02 +0000

In May we pay tribute to the generations of Asian and Pacific Islanders who have enriched America's history and are instrumental in its future success. This caregiver spotlight episode echoes all of these sentiments.

Meet Paurvi Bhatt, a dedicated family caregiver, care advocate, and second-generation Indian American with deep personal and professional caregiving experience. Raised in a family of caregivers, Paurvi spent nearly 30 years balancing her career as a ‘working daughter’ while managing caregiving responsibilities.

In this episode of the Happy Healthy Caregiver podcast, we explore critical gaps in the U.S. care economy, particularly for first- and second-generation immigrants, including challenges with language, care plans, and services. We also discuss the concept of “shadow resumes” and how the skills we develop as family caregivers not only support our loved ones but also enhance our professional lives.

Paurvi shares how she built a strong care team as an only adult child, the resources that helped her navigate caregiving, and the impactful work being done by the Rosalynn Carter Institute for Caregivers. Plus, we get a glimpse into what she would do if she had unlimited time for herself!

Show notes with product and resource links:

https://bit.ly/HHCPod204

Receive the podcast in your email here:

http://bit.ly/2G4qvBv

Order a copy of Elizabeth's book Just for You: a Daily Self Care Journal:

http://bit.ly/HHCjournal

For podcast sponsorship opportunities contact Elizabeth:

https://happyhealthycaregiver.com/contact-us/

The Happy Healthy Caregiver podcast is part of the Whole Care Network. Rate and Review the podcast:

https://bit.ly/HHCPODREVIEW

Navigating A Scary Diagnosis with Dr Edward Rogoff

Thu, 15 May 2025 15:51:20 +0000

If you or someone you love has ever faced a health scare, this is a conversation you won’t want to miss. My guest today is Dr. Edward G. Rogoff, an accomplished educator and advocate whose personal journey is nothing short of extraordinary. Diagnosed with hemophilia as a child, Dr. Rogoff faced a lifetime of uncertainty—until a liver transplant in adulthood led to an unexpected cure. His experience sparked a lifelong commitment to patient advocacy, organ donation awareness, and reshaping how we approach chronic illness.

He’s served on the boards of the Hemophilia Association of New York since 1980 and LiveOnNY, the major organ donor organization for the New York City metropolitan area, and now he’s sharing his wisdom in his new book: "Scary Diagnosis: Navigating Fear, Finding Strength, and Securing the Health Care You Deserve."

In this conversation, we explore the power of building the right medical team, managing uncertainty, denial, having tough conversations, staying resilient and how to not let a scary diagnosis overtake your life and keep it all in perspective.

TRANSCRIPT

Scary Diagnosis Navigating Fear, Finding Strength, and Securing the Health Care You Deserve

Daughterhood

Supporting Children Through a Grandparent’s Alzheimer’s Journey with Carol Steinberg

Thu, 15 May 2025 15:47:29 +0000

In this episode we're sharing the highlights from our recent interview with Carol Steinberg, whose children’s book, Come Grandpa Meow, Let’s Fly, adds a much-needed resource for families navigating the challenges of Alzheimer’s and dementia.

A Personal Story Sparked by Loss

Carol’s journey began more than 25 years ago, during her own father’s struggle with Alzheimer’s. She originally wrote the book as part of her grieving process, but it wasn’t until she’d spent years working at both local and national Alzheimer’s organizations that the story truly found its shape. The finished book beautifully balances respect, understanding, and connection for readers young and old.

Empowering Children & Families

One thing that sets Carol’s children’s book apart is its focus on empathy, understanding, and practical intergenerational activities that help children stay connected with loved ones living with dementia. As Carol says, “We need to bust the stigmas. We need the world to know that people with dementia are still people. They're still your loved ones. They may act differently—and I hope I show that in the book.”

For Adults, Too

Although written for children (ages 5 to 9, but suitable for older readers too!), this book is just as impactful for adults. As Vicki Tapia, AlzAuthors acquisitions editor, noted, the story “helps explain and cope with the changes that are happening [to a loved one].” Plus, the activities at the end offer concrete, research-backed ways that families can nurture connection.

Recommended by the Experts

Don’t just take our word for it—Come Grandpa Meow, Let’s Fly comes with glowing endorsements from field leaders like Teepa Snow, Dr. Daniel Potts, and people living with dementia, who praise its realism, sensitivity, and stigma-busting power.

Whether you’re a caregiver, educator, parent, or grandparent, Carol’s book is a gentle guide to fostering compassion, understanding, and lasting memories—no matter where you or your loved one are on the dementia journey.

After the Podcast

Purchase “Come Grandpa Meow, Let's Fly"

Read Carol's AlzAuthors blog post

Learn about the Moderators

Marianne Sciucco

Christy Byrne Yates

About the Podcast

AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others.

Thanks for listening.

We are a Whole Care Network Featured Podcast

Proud to be on The Health Podcast Network

Find us on The World Podcast Network and babyboomer.org

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AgingGayfully® "The Power of Telling Your Story"

Thu, 15 May 2025 15:44:25 +0000

In this conversation, Josh and Chris discuss the importance of authenticity in storytelling, particularly Chris' relationship with deceased partner Richard and their journey through terminal illness.

Throughout the episode, Chris reflects on the emotional complexities of revisiting memories while working on a film adaptation of their story.

The discussion also touches on the broader implications of personal narratives in fostering empathy and societal change, emphasizing love and commitment as universal themes.

Quote Chris referenced in the new title of the film

"She had studied the universe all her life, but had overlooked its clearest message: For small creatures such as we, the vastness is bearable only through love." 􀅦 Carl Sagan, Contact

Takeaways

Authenticity is crucial in storytelling.

Cancer serves as the antagonist in their narrative.

Revisiting memories can be emotionally challenging.

Patience is essential in the creative process.

Personal stories can resonate with a wider audience.

Story sharing can provide comfort and connection.

Love and commitment transcend societal boundaries.

The project is a significant part of Chris's life.

The importance of kindness in society is emphasized.

Awareness of societal issues can foster change.

Chapters

00:00 The Essence of Authenticity in Storytelling

03:03 Navigating Mixed Emotions in Remembrance

06:10 The Symbolism of Personal Stories

12:00 The Call for Compassion and Change

To learn more about the My Green Folder Film project visit: https://mygreenfolderfilm.com/

Email Josh and Chris at: yesiam@aginggayfully.com

A gay senior, Christopher MacLellan, and an ally, Josh Wilson, are podcasting about life, love, liberty, and travel.

AGING GAYFULLY® is about living life with dignity in an age-friendly society, regardless of orientation or economic status, because longevity is a justice issue.

AGING GAYFULLY® is about finding your voice as we age. We are all part of the aging process and have real connections in diversity.

AGINGGAYFULLY® is a modern type of activism that supports the concept of belonging.

AGINGGAYFULLY® is about Adventure, Leisure, Travel, being a citizen of the world, traveling to destinations, and being part of the global community as we age and prosper in body, mind, and spirit.

More Than a Move: Navigating Emotional Transitions with Miriam Bahar

Thu, 15 May 2025 15:41:04 +0000

Today on the podcast, we are joined by Miriam Bahar, a specialist in movement and transitions, who provides compassionate support to individuals—especially older adults—during the significant life event of relocating to a new home.

Miriam shares how moving is not simply about changing addresses; it is a deeply emotional and meaningful process. For many seniors, parting with personal belongings can be difficult, as these items often hold sentimental value and are linked to cherished memories. She emphasizes the importance of having support during this time—someone who can walk alongside them with empathy and understanding, helping them make thoughtful decisions about what to keep, what to donate, and what truly serves them in the present.

One of Miriam’s core principles is focusing on what is currently useful and necessary. In her experience, simplifying one’s space by keeping only what is actively used allows for a more peaceful and manageable transition. She also reminds us that people often hold onto objects not for their utility but for the emotional significance they carry. Navigating this attachment with care and sensitivity is essential in her work.

Beyond emotional support, Miriam highlights the importance of planning for safety. She encourages individuals and families to take future mobility and accessibility into account when choosing a new home or arranging a living space. Proactively creating a safe and comfortable environment plays a key role in maintaining independence and quality of life as we age.

Miriam’s work serves as a beautiful reminder that moving can be a healing process—a chance to reflect, simplify, and look ahead with clarity and confidence.

Back to Hospice Basics: What You Need to Know About the Hospice Team

Tue, 29 Apr 2025 22:15:23 +0000

We’re getting back to the basics of hospice care with Hospice Social Worker Lisa Pahl to talk about who’s on the hospice team and what each person brings to the care of patients and caregivers. This episode focuses on the core members of the hospice interdisciplinary team (doctor, nurse, social worker, and chaplain) as well as hospice aides (Certified Nurse Assistants) and hospice volunteers. Each person on a hospice team brings very specific and essential skills to the care of patients, and the support of their families and caregivers. The best care of a hospice patient includes everyone on the hospice team. This enables the care of the patient to meet all the needs of body, mind, and spirit.

Connect with Lisa Pahl, owner/creator (thedeathdeck.com) The Death Deck and End of Life Deck

Interested in purchasing a GrandPad to stay connected with a senior loved one?

Get more information at grandpad.net/thoh

GrandPad website: grandpad.net

Social Media for GrandPad: Facebook Instagram LinkedIn YouTube

Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you’re already receiving, we’re here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. We believe you deserve to have good hospice care. Book your session with an expert Hospice Navigator at theheartofhospice.com.

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Social media: Facebook Twitter Instagram LinkedIn

Email: helen@theheartofhospice.com

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Stay Connected with Jim Cooper

Tue, 29 Apr 2025 22:15:02 +0000

Meet Jim Cooper who has been married for 40+ years and cared for his wife who had brain cancer. Jim is a man of many talents and experiences. He has been a radio DJ, real estate broker, IT consultant, author, podcaster, and currently is a voice over professional who narrates audiobooks.

In this episode, Jim and I discuss the value of staying connected to friends, family, health professionals, and other caregivers. We talk about his self-care strategies and passions that helped him during his intense caregiving years and now as a human who lives without regret. You’ll also want to stay tuned to learn about the special giveaway Jim is offering to some of our listeners.

Show notes with product and resource links:

https://bit.ly/HHCPod203

Receive the podcast in your email here:

http://bit.ly/2G4qvBv

Order a copy of Elizabeth's book Just for You: a Daily Self Care Journal:

http://bit.ly/HHCjournal

For podcast sponsorship opportunities contact Elizabeth:

https://happyhealthycaregiver.com/contact-us/

The Happy Healthy Caregiver podcast is part of the Whole Care Network. Rate and Review the podcast:

https://bit.ly/HHCPODREVIEW

The Dementia Darling Shares Practical Tips for Caregivers

Tue, 29 Apr 2025 22:14:53 +0000

Carrie Aalberts (AKA the Dementia Darling) supports dementia caregivers with her heart and soul, and a whole lot of strength. With a Master of Science specializing in Gerontology and over a decade of hands-on experience in various care settings, Carrie has established herself as a leading voice in dementia education and support. As the founder of Dementia Darling, she has cultivated an online community of more than 63,000 followers, creating a nurturing space for caregivers to find education, resources, and support. Carrie's mission is to empower caregivers by fighting isolation, challenge prevailing narratives about dementia and aging, and foster moments of joy. As a full-time educator and advocate, she continues to push boundaries in dementia care, creating a movement that celebrates life and builds a supportive community.

Connect with Carrie Aalberts on social media - @dementiadarling, or through her podcast "Gather Darlings" to join her mission of spreading knowledge and understanding the dementia and caregiving community. Website: dementiadarling.com Social media: Instagram LinkedIn Facebook TikTok YouTube Listen to the Gather Darlings Podcast here

Interested in purchasing a GrandPad to stay connected with a senior loved one? Get more information at grandpad.net/thoh GrandPad website: grandpad.net Social Media for GrandPad: Facebook Instagram LinkedIn YouTube

Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you’re already receiving, we’re here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. We believe you deserve to have good hospice care. Book a session with an expert Hospice Navigator at theheartofhospice.com.

Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Social media: Facebook Twitter Instagram LinkedIn Email: helen@theheartofhospice.com Find more podcast episodes: The Heart of Hospice Podcast

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com

When Dementia Tests the Bonds of Marriage with Debra Tann, Ed.D

Tue, 29 Apr 2025 22:14:36 +0000

Do you want to gain a deeper understanding of the impact of dementia on marriages? If you’re seeking practical guidance and emotional resilience in this area, discover solutions to help you navigate this challenging journey in this replay of an enlightening Books & Chit Chat discussion with Debra Tann, Ed.D.

In this episode, you will be able to:

Understand the ins and outs of dementia care to enhance your caregiving skills and provide better support. Gain insight into navigating the journey of dementia diagnosis to feel more empowered and informed. Explore the impact of dementia on marriages to build resilience and find ways to strengthen relationships. Implement effective care strategies for frontotemporal dementia, enhancing the quality of life for your loved one. Learn how to address racial disparities in dementia care to create a more inclusive and equitable support system. Our special guest is Debra Tann, Ed.D, the CEO of Reminiscent, who brings a vibrant blend of experience to the field of dementia education. Her journey into this space began with a career in education and a keen eye for behavioral changes in her husband, ultimately leading to a diagnosis of frontotemporal dementia (FTD). As a certified dementia educator and author of “The Race of Dementia,” Debra’s expertise offers caregivers practical guidance and emotional resilience, drawing from her own lived experiences. Her compassionate approach and dedication to enhancing caregiving skills make her a valuable resource for those navigating the complexities of dementia care.

Books & Chit Chat is a partnership with Aging and Amazing to bring authors and readers together to share stories and discuss the multiple facets of dementia care.

After the Podcast

Purchase “The Race of Dementia”

Read Debra’s AlzAuthors blog post

Visit Debra’s website: Debra On Dementia

Learn more about the Moderators

Marianne Sciucco

Christy Byrne Yates

Learn more about Aging & Amazing

About the Podcast

AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others.

Thanks for listening.

We are a Whole Care Network Featured Podcast

Proud to be on The Health Podcast Network

Find us on The World Podcast Network and babyboomer.org

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How To Create a Care Plan: Five Essential Tips / Alzheimer’s and Other Dementias

Tue, 29 Apr 2025 22:14:24 +0000

Are you prepared for others to take care of your loved one? Do you have a care plan in place? Having a comprehensive care plan is one of the most important tools a caregiver can create — not just for emergencies, but for everyday peace of mind.

We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned the importance of creating a care plan for our loved one. We spoke with Amanda Lukoff, co-founder and CEO of Eleplan, about what a care plan is and how to create one that works for your unique situation.

Amanda's journey to creating Eleplan was deeply personal. Her brother Liam, who has autism, is her "North Star" and the inspiration behind her career path, including going to law school for special education law. Through observing her parents' caregiving journey with Liam, Amanda recognized the need to capture all the knowledge that lived in her parents' heads so that others could provide care that truly honored who Liam is as a person.

Connect with us and share your tips:

Website: https://www.thecaregiversjourney.com
Donate: https://give.cornerstone.cc/thecaregiversjourney
Instagram: https://www.instagram.com/thecaregiversjourney/
Facebook: https://www.facebook.com/TheCaregiversJourneys/
Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/
Email: sue@thecaregiversjourney.com, nancy@thecaregiversjourney.com

Additional Resources Mentioned

Episode 32: Navigating The Caregiver Hiring Process https://thecaregiversjourney.com/32-navigating-the-caregiver-hiring-process-five-essential-tips-alzheimers-and-other-dementias/
Eleplan Website: https://www.eleplan.com/
Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney

Full Show Notes

https://thecaregiversjourney.com/33-how-to-create-a-care-plan-five-essential-tips-alzheimers-and-other-dementias

Takeaways

Tip 1: Start with the Basics

The first step in creating a care plan is to document the essential information that would allow someone to provide short-term care (even for just 30 minutes) while you step out.

This includes:

Emergency contacts
Medications and dosages
High-level meal preferences
Allergies
Relevant medical conditions

Tip 2: Outline Preferences and Daily Routines

Beyond the basics, a good care plan should capture what makes your loved one unique—their preferences, personality traits, and daily routines.

Your care plan should include:

Likes and dislikes
Daily schedule and routines
Bedtime and morning rituals
Behavioral patterns
Emotional triggers (both positive and negative)

Tip 3: Document What to Do in an Emergency

Crisis situations demand clear instructions. Your care plan should outline:

What constitutes an emergency for your loved one
When to call 911 vs. other resources
Who to contact and in what order
Special instructions for EMTs or ER staff
Location of important medical documents

Tip 4: Collect Key Contacts and Documents

Gathering important documents in one accessible location is critical for seamless care. This includes:

Insurance cards
Healthcare directives
Power of Attorney documents
Guardianship forms
Medical history and medication lists

Tip 5: Keep Everything Accessible and Current

A care plan is only effective if it's up-to-date and easily accessible. Amanda frames this with an important question:

"Do I have a system that is as dynamic as the needs of my loved one and the ever-changing piles of documents and information?"

Whether you're using a physical binder, shared digital documents, or a specialized platform like Eleplan, the key is having a system that makes updates easy and ensures the information is available whenever and wherever it's needed.

Read More in This Blog

You Can’t Make This Up! Sister Updates

Tue, 29 Apr 2025 22:14:10 +0000

“Caregiving never ends. No, it never stops.” - Natalie and JJ

Caregiving is a journey—full of love, lessons, and let’s be honest, a few laughs along the way. In this candid conversation, we dive into the realities of caregiving: navigating skilled nursing facilities, managing emotional and financial stress, and finding strength in community. We’re also sharing what’s in store for 2025 and beyond. Too good to miss!

💡 This episode is a reminder that you’re not alone—and that support, humor, and honest conversations make all the difference.

🔑 Key Takeaways:

Caregiving is tough—but also deeply rewarding.
Teamwork and community support are everything.
Humor helps lighten the load.
Advocacy matters—so do financial tools like qualified income trusts.
Self-care isn’t optional.
Your story matters—let’s share it.

THANK YOU to Sponsor: CareScout

#Caregiving #CaregiverSupport #AgingParents #SkilledNursing #ElderCare #FamilyCaregivers #HealthcareAdvocacy #SelfCare #QualifiedIncomeTrust #HumorHeals

Support the show

Confessions of a Reluctant Caregiver

Sisterhood of Care, LLC

Website: www.confessionsofareluctantcaregiver.com

Like us on Facebook!

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Tune in on Whole Care Network

Surprise! Your Employer Has Benefits to Help with Caregiving

Tue, 29 Apr 2025 22:13:44 +0000

Working caregivers, are you feeling overwhelmed trying to balance it all? Many don't know about the resources & benefits available to them through their employers. This week, Kathy Sikorski, an elder law attorney, and Jen Fink, your host, uncover the hidden gems in your employee benefits package that can ease your caregiving burden. Discover the benefits that can give you back precious time and energy. Are you leaving money and support on the table? Tune in to find out!

Additional resources mentioned in this episode:

Legal Benefits
Long Term Care Insurance
Financial Advisor
FMLA
Mental Health Benefit
Physical Health Benefits

Our Guest:

Cathy Sikorski, Esq. a Speaker, Elder Lawyer, Author and Media Guest unravels the complex financial and legal problems in the caregiving crisis.Cathy uses her own caregiver experience and expertise to educate, entertain and elevate the conversation around work, money, aging and caregiving. In October 2021, Corner Office Books released her latest book 12 Conversations: How to Talk to Almost Anyone about Long-Term Care Planning. Click below to connect with Cathy at Facebook. Or go to her website www.cathysikorski.com

Why you need an OT realtor

Tue, 29 Apr 2025 22:13:30 +0000

In our latest Care Lab podcast episode, we had the pleasure of sitting down with Ashley Mahoney—an occupational therapist who made a bold pivot into real estate—to explore a powerful question: What happens when the principles of OT shape the way we help people find homes?

From Kansas City resources to national insights, we dive into:

How accessibility and aging-in-place goals impact home buying

The emotional weight of transitions for older adults and families

Why community representation and advocacy matter in real estate

What to look for in a real estate agent who truly understands accessibility needs

#CareLabPodcast #OccupationalTherapy #RealEstate #AgingInPlace #Accessibility #SeniorCare #CaregiverSupport #HealthcareInnovation #InclusiveHousing

Find Care Equipment solutions at https://www.asksamie.com/

Learn about the future of care navigation at https://seniorai.app/

Embracing Joy and Self-Kindness: A Conversation with Judy Swanson.

Tue, 29 Apr 2025 22:13:20 +0000

In today’s podcast episode, we have the pleasure of speaking with Judy Swanson, who shares valuable insights on mental health and well-being. She provides practical tips on how to cultivate small sparks of joy in everyday life and emphasizes the importance of being kinder to yourself.

Judy encourages us to practice gratitude daily, engage in acts of kindness, smile more often, and find joy in the simple beauty of nature. She also explains how the way we phrase our thoughts and words can significantly impact our mood. For example, shifting from saying “I have to” to “I get to” can create a more positive mindset.

Additionally, she reminds us to focus on small but essential habits, such as staying hydrated, nourishing our bodies with healthy foods, and incorporating movement into our daily routine. By shifting our focus to the positive, we can enhance our well-being and cultivate a more joyful and fulfilling life. Tune in for an uplifting conversation filled with wisdom and practical steps to nurture both your mind and spirit!

To reach Judi

Website: https://kindnesschampions.com/

Facebook: https://www.facebook.com/KindnessChampions/

Instagram: @kindness_champs https://www.instagram.com/kindness_champs/?hl=en

X/Twitter: @KindnessChamps

Blue Sky: @kindnesschampions.bsky.social

LinkedIn: Judi Swanson and Kindness Champions

Email: kindnesschampions2020@gmail.com

Every Cancer Caregiver Needs To Hear This Story About Chemo

Tue, 29 Apr 2025 22:13:02 +0000

In this episode of I Saved You. Now, Do the Dishes., I’m sounding the alarm for caregivers walking the brutal line between cancer treatment and pain management. This one is personal. My husband had just been prescribed opioids for pain. And nobody gave him any additional or alternative instructions for days he had chemo. No one warned us about side effects chemo has with Oxy.

STEPHANIE DUNCAN‐PETERS & RICHARD JAMES:Life After an Alzheimer's Diagnosis & the Blue-Footed Booby Blues

Tue, 29 Apr 2025 22:12:35 +0000

What happens when a former federal judge faces an Alzheimer's diagnosis? For Stephanie Duncan-Peters and her husband Richard James, it becomes an opportunity to showcase remarkable resilience, joy, and a refreshing perspective on living with cognitive change.

In Episode 105, Don and I have a deeply moving and uplifting conversation with Stephanie, whose impressive career spans nearly 20 years as a District of Columbia Superior Court judge appointed by President George H.W. Bush.

Far from letting her diagnosis define her, Stephanie has recently published a children's book, "The Blue-Footed Booby Blues," about a dancing bird who loves to travel—mirroring her own passions.

The couple shares how they met through dance lessons 12 years ago and continue to dance together today, demonstrating how activities that build "cognitive reserve" can remain accessible and joyful despite Alzheimer's. Their calm, matter-of-fact approach to the diagnosis stems partly from Stephanie's previous experience supporting a Harvard Law professor friend through his Alzheimer's journey.

We explore fascinating concepts like cognitive reserve—how certain skills and passions often persist longer in people with dementia—and the way Alzheimer's can paradoxically create what host I call "the ultimate state of Zen," fostering heightened presence and appreciation for the now.

Richard offers valuable insights from the care partner perspective, discussing how unexpected connections in his community led to crucial support resources. Their story beautifully illustrates how love, resilience, and maintaining meaningful activities create a fulfilling life even when facing significant health challenges.

Whether you're navigating dementia in your own family or simply seeking inspiration on facing life's unexpected turns with grace, this conversation will leave you with renewed hope and practical wisdom for the journey ahead. Listen now and discover how, as the podcast name suggests, Love truly Conquers Alz. :)

Much Love,

Susie

Connect with Stephanie and Richard through Kayla Mancuso - kayla@ballastbooks.com

Support the show

Be a ROAR-ior!! JOIN THE R.O.A.R. MOVEMENT for quality long term care! Visit the No Country For Old People Website for more information.

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How Health and Human Services Impacts your Everyday Life

Tue, 29 Apr 2025 22:11:03 +0000

In this episode of Care Lab, hosts Brandy and Emilia engage in a lighthearted discussion about their morning routines before transitioning into a serious conversation about significant changes in government policies affecting health and human services. They explore the implications of workforce reductions within the Department of Health and Human Services, particularly focusing on the impact of cuts to essential programs like Meals on Wheels, the economic benefits of investing in health, the extensive responsibilities of the Health and Human Services department, and the importance of institutional knowledge in navigating healthcare systems. They emphasize the need for strategic thinking in government cuts, the role of democracy in healthcare advocacy, and the necessity of community engagement to ensure that healthcare remains a priority.

Find Care Equipment solutions at https://www.asksamie.com/

Learn about the future of care navigation at https://seniorai.app/

Finding the Perfect Home: A Conversation with Geriatric Consultant Jodi Benusa

Tue, 29 Apr 2025 22:10:34 +0000

In this episode of our podcast, we have the pleasure of interviewing Jodi Benusa, a dedicated geriatric consultant who helps families find the ideal living arrangement for their aging loved ones. Her work is truly remarkable, as she goes beyond the surface to ensure that every placement is a perfect match.

Jodi follows a unique and thorough approach to finding the right senior living community. She starts by asking the right questions to understand not only the medical and physical needs of the elderly person but also their personality, lifestyle, and personal preferences. She then reaches out to facility directors, sales teams, and receptionists to gain insight into the philosophy and culture of each institution, ensuring it aligns with the senior’s values and way of life.

Additionally, Jodi meticulously reviews records, investigates any reported violations, and identifies potential red flags to guarantee that the recommended facility is safe, reputable, and genuinely the best fit. Her diligence and expertise provide families with peace of mind, knowing that their loved ones will be well cared for in an environment that truly feels like home.

Tune in to learn more about Jodi’s insightful process and the importance of finding a place where seniors can thrive with dignity, comfort, and happiness.

To reach Jodi

http://www.usageriatricservices.com

LinkedIN: https://www.linkedin.com/company/usa-geriatric-services/?viewAsMember=true

Facebook: https://www.facebook.com/usageriatricservices

Linktree: https://linktr.ee/USAGS

The Breaking Point. Without a Feeding Tube, He Was Going to Die.

Wed, 16 Apr 2025 18:04:54 +0000

This week, I take you inside one of the hardest chapters of our journey—Week Five. My husband was deep in the trenches of treatment for head and neck cancer, and everything was unraveling. He could barely speak, eat, or drink, and his body was giving out.

As his caregiver and medical advocate, I was doing everything I could to keep him alive—but we didn’t agree on how to do that. He didn’t want a feeding tube. I knew he wouldn’t survive without one. The moment I had to tell the GI department he didn’t consent to a consult—and then found out the wait time was two months—was the moment I realized just how fragile everything had become.

This episode is about what happens when love, survival, and disagreement collide. It’s about the emotional toll of caregiving when you’re at odds with the person you’re fighting for. It’s raw, real, and a window into the quiet desperation that often gets left out of the story.

Connect with me if you're on a similar path at www.carrieseverson.com or https://www.instagram.com/authorcarrieseverson/

Back to Hospice Basics: What You Need to Know About Admissions

Sun, 13 Apr 2025 21:35:26 +0000

We’re getting back to the basics of hospice - talking about starting hospice care, and what you can expect from a hospice admission. Hospice nurse Beth Cavenaugh helps to navigate this topic. There are a lot of moving parts that compose the admission to hospice care.

Here are some of the main things you should know about hospice admissions:

The admission process includes assessment visits from the hospice nurse, social worker, and chaplain as well visits from other disciplines like a volunteer coordinator and an aide or CNA (Certified Nursing Assistant). Within the first 5 days of being admitted to hospice, a patient and their caregiver can expect visits from each of the core disciplines on the team (nurse, chaplain, social worker). This is due to hospice regulations and agency policies. Patients and caregivers have the right to refuse visits from certain disciplines on the team. A visit from the nurse at least every 2 weeks is required. It’s always better to allow the assessment visits from each discipline to happen. This is the best way to find out what support each person from the team has to offer. While the process is lengthy and involves a lot of documentation, the time spent on an admission to hospice helps the team take better care of the patient and learn what matters most to them. Connect with guest host hospice nurse Beth Cavenaugh at bethcavenaugh.com Buy Beth’s book Some Light at the End: Your Bedside Guide for Peaceful Palliative and Hospice Care Buy The Power and Pain of Nursing: Self-Care Practices to Protect and Replenish Compassion.

Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you’re already receiving, we’re here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. We believe you deserve to have good hospice care. Book a session with an expert Hospice Navigator at theheartofhospice.com.

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Social media: Facebook Twitter Instagram LinkedIn

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Denial In Caregiving with Amy Fuchs

Sun, 13 Apr 2025 21:30:22 +0000

Today, my guest is Amy Fuchs, a Licensed Clinical Social Worker and Aging Life Care Professional with over 15 years of experience supporting families through the complexities of caregiving for aging loved ones.

As the founder of The Elder Expert, Amy combines her compassion, empathy, and expertise to provide personalized care and guidance for older adults and their families.

In today’s episode, we’ll discuss a challenging and all too familiar struggle: denial in caregiving. Whether it’s denial from our care partners, our siblings, or even from ourselves, it’s an obstacle many caregivers face. Amy shares practical strategies and insights to empower, cope, and manage it all.

TRANSCRIPT

The Elder Expert

Daughterhood

Can Burnout Be a Blessing? with Carrie Severson

Sun, 13 Apr 2025 21:25:25 +0000

In this episode of the Happy Healthy Caregiver podcast, we’re joined by Carrie Severson—caregiver to her husband Gavin and a recognized expert in burnout. Carrie shares how her personal caregiving journey inspired her advocacy work, storytelling, and her podcast, I Saved You. Now, Do the Dishes. We dive into the difference between caregiver burnout and the entrepreneurial burnout Carrie previously experienced and spoke about. She also recounts a shocking experience with a disruptive healthcare professional and how she successfully had them removed from her care team. Plus, Carrie reveals some of her go-to self-care practices, including cold therapy, box breathing, and using music as a powerful healing tool.

Show notes with product and resource links:

https://bit.ly/HHCPod202

Receive the podcast in your email here:

http://bit.ly/2G4qvBv

Order a copy of Elizabeth's book Just for You: a Daily Self Care Journal:

http://bit.ly/HHCjournal

For podcast sponsorship opportunities contact Elizabeth:

https://happyhealthycaregiver.com/contact-us/

The Happy Healthy Caregiver podcast is part of the Whole Care Network. Rate and Review the podcast:

https://bit.ly/HHCPODREVIEW

Holding On & Letting Go: A Caregiver’s Emotional Journey

Sun, 13 Apr 2025 21:20:27 +0000

"He chose to keep living." - Amy Shaw

When life takes an unexpected turn, how do you find the strength to carry on? JJ and Nat sit down with Amy Shaw to share her deeply moving story raising a large family, including children with special needs, and navigating the heartbreaking journey of her husband Brian’s terminal illness.

From the first signs of illness to the devastating diagnosis of brain cancer, Amy opens up about the raw emotions, challenges, and unwavering love that defined their final moments together. She reveals the lessons learned through caregiving, the impact on family life, and the importance of legacy, hope, and resilience.

🔹 Highlights from our Confession:

💡 The first signs of illness & the shocking brain cancer diagnosis

❤️ Navigating the emotional highs and lows of caregiving

👨‍👩‍👧‍👦 The impact of caregiving on family dynamics & relationships

📖 Why Amy decided to share her story in a book

🌿 The importance of faith, resilience & cherishing every moment

About Amy Shaw:

Amy Shaw didn’t expect to become an end of life concierge. But after years of living abroad, having 10 children (4 biological and 6 adopted), Amy and her husband got the news. He had a terminal illness. Rather than bemoan a diagnosis, Amy and Brian chose to celebrate his life. This is what inspired her Walk the Red program which equips the diagnosed and their caregivers with a powerful protocol to help them end well. Amy says, “we’re all on the red carpet. We all get to decide how we live and how we die.” In addition to being a John Maxwell certified speaker, Amy is a modern impressionist artist who often combines her artistic abilities with her keynotes and workshops.

Social Media:

Website: walkthered.com
LinkedIn: https://www.linkedin.com/in/amy-shaw-295270347/
Facebook: https://www.facebook.com/groups/supportforchristianspousesandcaregivers
Instagram: https://www.instagram.com/amyshawart/

🌟 If you're a caregiver, a loved one, or someone seeking inspiration through adversity, this episode is a must-watch.

Kindly like, subscribe, and share to support more real, unfiltered conversations on the caregiving journey.

#Caregiving #EndOfLife #FamilyResilience #ConfessionsOfACaregiver

Support the show

Confessions of a Reluctant Caregiver

Sisterhood of Care, LLC

Website: www.confessionsofareluctantcaregiver.com

Like us on Facebook!

Tweet with us on Twitter!

Watch us on Youtube!

Pin us on Pinterest!

Link us on LinkedIn!

Tune in on Whole Care Network

AgingGayfully™ The Power of I Can

Sun, 13 Apr 2025 21:15:22 +0000

In this engaging conversation, Chris and Josh explore Chris's journey to better health and adventure in his new endeavor: acting!

A gay senior, Christopher MacLellan, and an ally, Josh Wilson, podcasting about life, love, liberty and travel.

Don't Say Gay?... Say AgingGayfully™!

AgingGayfully™ is about living life with dignity in an age-friendly society regardless of orientation or economic status because longevity is a justice issue.

AgingGayfully™ is about finding your voice as we age. We are all part of the aging process and have real connections in diversity.

AgingGayfully™ is a modern type of activism that supports the concept of belonging.

AgingGayfully™ is about Adventure, Leisure, Travel, being a citizen of the world, traveling to destinations, and being part of the global community as we age and prosper in body, mind, and spirit.

Essential Travel Hacks for Caregivers

Sun, 13 Apr 2025 21:10:25 +0000

Travel Hacks for Dementia Caregivers: Unlock the Secrets to Stress-Free Adventures

Ever dreamed of taking that family vacation, but worried about how to manage your loved one's dementia away from home? Traveling with dementia can feel daunting, but it doesn't have to mean the end of your adventures.

Join us as we chat with travel expert Adriane Berg and uncover practical travel hacks specifically for dementia caregivers. We'll discuss:

Planning strategies: Choosing dementia-friendly destinations and accommodations. Packing essentials: Must-have items for comfort and safety. On-the-go tips: Managing challenges during flights, car rides, and excursions. Communication techniques: Navigating potentially stressful situations with ease.

Get ready to rediscover the joy of travel with your loved one!

Understanding and healing from a Soul Injury

Sun, 13 Apr 2025 21:05:26 +0000

What if the deepest wounds aren’t physical, but spiritual? In this powerful episode, hospice nurse practitioner Deborah Grassman introduces the concept of Soul Injury—a disconnection from our sense of self, often rooted in trauma, grief, and unresolved emotional pain.

Drawing on her decades of work with veterans and dying patients, Deborah shares how recognizing and healing these unseen wounds can lead to profound self-acceptance and inner peace. This is more than a conversation—it’s an invitation to reconnect with your true self.

Celebrating a Milestone: Our 100th Podcast Episode!

Sun, 13 Apr 2025 20:57:39 +0000

Today, we are thrilled to celebrate a major milestone—our 100th podcast episode! This journey has been incredible, and we are so grateful to have you as part of our community. Every episode has been an opportunity to learn, grow, and connect, and we couldn't have done it without you.

No matter where you are, we invite you to celebrate with us! Whether it’s by sharing your favorite episode, reflecting on the insights gained, or simply taking a moment to appreciate this journey, let’s make this a special occasion together.

Thank you for being with us every step of the way. Here’s to 100 episodes—and many more to come!

Helping My Husband Manage the Pain of Head and Neck Cancer

Fri, 11 Apr 2025 01:49:50 +0000

In this episode of I Saved You. Now, Do the Dishes., I pull back the curtain on the chaotic world of cancer treatment scheduling and pain management. Spoiler: it’s less “organized care plan” and more “full-time logistical nightmare.” From juggling 12 appointments in a week to coordinating three different pharmacy pick-ups (yes, really) for five different drugs, I talk about what it’s like to be the caregiver, the calendar, and the human pharmacy technician—all while trying to make sure my husband isn’t suffering in silence.

If you’ve ever felt like managing care takes more energy than the illness itself, this one’s for you. You’re not alone. And yes, it's okay to have someone else do the damn dishes.

How To Manage Seagulls in End of Life Caregiving

Sun, 06 Apr 2025 18:05:26 +0000

Patty Webster of The Conversation Project is talking with me about the swoopers and seagulls that are sometimes part of the caregiving experience. As part of her caregiving journey with her dad and siblings, Patty realized that she had been a “swooper”, offering her opinions about her dad’s care during an intermittent visit. Here’s what Patty says she learned:

Supporting the primary caregiver is an important part of caregiving from a distance.
“Swoopers” and “seagulls” tend to offer input into the actions of the primary caregiver creating a mess in the care of their Person.
Patty and her siblings had to learn from her dad how he defined quality of life, and then support him in the right ways.
Knowing each other’s strengths is the key to success of a caregiving team.
Shifting the approach to communication when it’s not working, and listening to each other is vital to creating the best caregiving environment.
Supporting your Person’s decisions about care contributes to feelings of confidence and comfort.

Patty and the team at The Conversation Project offer multiple resources for end of life conversations, offering resources for making end of life wishes known. Website: theconversationproject.org Social media: Facebook Twitter Instagram YouTube Connect with The Conversation Project with questions (and to donate to support their work!) here Need to have a conversation about end of life? Get started with resources from The Conversation Project. Interested in purchasing a GrandPad to stay connected with a senior loved one? Get more information at https://www.grandpad.net/thoh. GrandPad website: https://www.grandpad.net/ Social Media for GrandPad

https://facebook.com/grandpad

https://instagram.com/grandpad_social/

https://www.linkedin.com/company/grandpad

https://www.youtube.com/channel/UCuFAJCb7_tTneM_ikABq08Q

Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com. Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com

Social media: Facebook Twitter Instagram LinkedIn

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

How to be a Better Advocate for Yourself and Your Loved One

Sun, 06 Apr 2025 18:00:26 +0000

In this fourth and final episode of our special series in partnership with Stanford Healthcare, our guest Susan Evans shares the ins and outs of caregiving, and talks about her work to support other caregivers dealing with the challenges of Alzheimer’s Disease. As a caregiver, Susan worked to ensure her dad was safe and well cared for. She and her brother incorporated humor into their caregiving journey, and now she works to ensure other caregivers have the resources they need.

Here are a few highlights from our conversation:

Susan knows the power of story sharing, and how caregivers can learn from each other. When her dad began experiencing symptoms of Alzheimer’s Disease, he took himself to his doctor at Stanford Healthcare. Susan recommends taking advantage of the present time caregivers have, to be in the moment instead of trying to remind your person of things they can’t recall. Challenges from Alzheimer’s Disease vary from person to person, and caregiver to caregiver. Despite the hard times, Susan has found fulfillment and meaning in her caregiving roles. You can find more resources and information about palliative care at caringinfo.org and getpalliativecare.org

Connect with our special series sponsor Kensington Senior Living:

Website: https://kensingtonseniorliving.com/

Social media: Instagram LinkedIn Facebook

Information for Jennifer O’Brien

Website: jenniferaobrien.com

Read more about Jennifer O’Brien here.

Purchase your copy of Care Boss by Jennifer O’Brien here.

Buy your copy of The Hospice Doctor’s Widow: An Art Journal of Caregiving and Grief here.

Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

The Enlightened Caregiver with Dr. Tina Sadarangani

Sun, 06 Apr 2025 17:55:27 +0000

Dr. Tina Sadarangani is a sandwich generation caregiver and a NYU Assistant Professor who is a board-certified adult and geriatric nurse practitioner. Even though she is a clinician and has a PhD focused on aging, she still finds navigating our healthcare system difficult as the quarterback of the family’s care team.

In this episode, we talk about what Dr. Tina would do to improve our healthcare system for family caregivers, her mobile app that helps families better manage a person’s day to day health needs, what grief relief feels like, why boundaries are game changers for her, and how she got lucky in life.

Show notes with product and resource links:

https://bit.ly/HHCPod201

Receive the podcast in your email here:

http://bit.ly/2G4qvBv

Order a copy of Elizabeth's book Just for You: a Daily Self Care Journal:

http://bit.ly/HHCjournal

For podcast sponsorship opportunities contact Elizabeth:

https://happyhealthycaregiver.com/contact-us/

The Happy Healthy Caregiver podcast is part of the Whole Care Network. Rate and Review the podcast:

https://bit.ly/HHCPODREVIEW

Mythbusters: We'll either die peacefully in our sleep or end up in a nursing home.

Sun, 06 Apr 2025 17:50:28 +0000

In this tips-loaded conversation, Brandy and Emilia challenge the common belief that aging means either living fully independently or moving into a nursing home. The reality? There’s a wide spectrum of possibilities in between—and understanding those options is essential for individuals, families, and professionals working in senior care.

Whether you're a caregiver, healthcare professional, or planning for your own future, this conversation offers thoughtful insights into aging with dignity, support, and community.

They Know What We Don’t, Elder Law Attorneys: Four Essential Tips / Alzheimer’s and Other Dementias

Sun, 06 Apr 2025 17:45:21 +0000

We don't know what we don't know. But elder law attorneys do, and their expertise can be transformational for families facing aging-related challenges. Whether you're dealing with a recent diagnosis, planning for potential long-term care needs, or simply trying to prepare for the future, understanding how and when to work with an elder law attorney can make all the difference in your journey.

In this episode, we'll explore four essential tips for working with elder law attorneys, based on insights from Beth Prather, a board-certified elder law attorney with 32 years of experience, and Courtney Lovejoy, an elder law attorney with a Master of Laws in elder law. Their expertise in Medicaid planning, VA benefits, estate planning, probate, trust administration, and guardianship offers valuable perspective for anyone navigating the complex legal landscape of aging and caregiving.

Connect with us and share your tips:

Website: https://www.thecaregiversjourney.com Donate: https://give.cornerstone.cc/thecaregiversjourney Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/TheCaregiversJourneys/ Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/ Email: sue@thecaregiversjourney.com, nancy@thecaregiversjourney.com

Full Show Notes

https://thecaregiversjourney.com/they-know-what-we-dont-elder-law-attorneys-four-essential-tips-alzheimers-and-other-dementias/

Additional Resources Mentioned

www.NAELA.org The National Academy of Elder Law Attorneys website has a searchable directory. "They have a really good search function where you can type in your zip code and find elder law attorneys within a certain radius," Courtney notes. State-specific organizations: For example, Florida has the Academy of Florida Elder Law Attorneys (www.AFELA.org). Beth Prather: https://www.gskattorneys.com/attorneys/beth-a-prather/ Courtney Lovejoy: https://www.gskattorneys.com/attorneys/courtney-van-emmerik-lovejoy/ Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney Takeaways

Tip 1: How to Find an Attorney Who Specializes in Elder Law

Finding the right elder law attorney requires more than just a quick Google search. Here's how to identify professionals with genuine expertise in this specialized field:

Look for Specialized Credentials

Professional credentials can be helpful indicators of specialized knowledge in elder law:

Board Certification: I Master of Laws (LLM) in Elder Law: Ask the Right Questions

How many Medicaid applications did they file last year? What percentage of their practice focuses on elder law? Do they handle guardianships, Medicaid planning, or VA benefits cases regularly?

Use Reliable Resources to Find Specialists

NAELA.org: State-specific organizations: For example, Florida has the Academy of Florida Elder Law Attorneys (AFELA.org). Personal referrals: Tip 2: Prioritize These Legal Documents and Planning Tools

Once you've found an elder law attorney, certain planning tools should take priority:

Comprehensive Durable Power of Attorney Consider Long-Term Care Insurance Limit or Avoid Gifting Avoid DIY Planning Common DIY mistakes include:

Adding children to bank accounts or property titles Giving away assets based on outdated or incorrect advice Trying to "hide" assets from Medicaid

Tip 3: Understand Medicaid and VA Benefits Options

A significant part of elder law involves helping clients navigate government benefits for long-term care:

Tip 4: Use This Time to Address Other Important Legal Matters

Review Beneficiary Designations Create an Asset Inventory Consider Account Consolidation Address Healthcare Decision Documents Be Cautious About Adding Others to Accounts or Deeds Discuss End-of-Life Preferences

A Son's Journey: Love, Humor, and Learning to Let Go of Logic with David Bredbenner

Sun, 06 Apr 2025 17:40:25 +0000

David Bredbenner, author of "Going Home: A Journey with Dementia," shares his profound experience caring for his mother through her journey with dementia.

Before dementia, Betty Jane was a dynamo - a retired nurse turned successful artist who ran marathons well into her late 70s. The decline began subtly after a fall, but it was the passing of David's sister Terry that marked the stark transition into full-blown dementia

One of David's most powerful lessons was learning to "throw logic right out the window." Traditional reasoning and reality-checking only led to frustration. Instead, he discovered the transformative power of meeting his mother where she was, using humor and creative redirection rather than confrontation.

Despite working in technology and traveling frequently, David and his sister made the conscious choice to keep their mother at home. While acknowledging it wasn't always possible for everyone, he describes it as both "pure hell" at times and "an absolute gift."

The journey taught him profound patience and the importance of focusing on emotional connection rather than factual accuracy. Even in the most challenging moments - like when his mother became combative or refused care - David found that humor and gentle persistence could break through where logic failed.

Perhaps most touching was David's reflection on love transcending understanding: "She knew she was loved...and she didn't have to know why." This simple but profound observation captures the essence of caring for someone with dementia - that connection and comfort matter more than comprehension.

In this episode, you will:

· Discover effective strategies for caring for a parent with dementia.

· Understand the emotional journey of being a dementia caregiver and how to navigate it.

· Explore the impact of Alzheimer's on family dynamics and relationships.

· Uncover the process of writing a book about personal dementia experiences.

· Learn practical and valuable strategies for managing dementia symptoms.

After the Podcast

Read David's AlzAuthors blog post

Purchase “Going Home: A Journey with Dementia”

Learn about the World Walks Against Dementia

Learn about Norrms McNamara and Global Purple Angel

Learn more about the Moderators

Marianne Sciucco

Christy Byrne Yates

Learn more about Aging & Amazing

About the Podcast

AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others.

Thanks for listening.

We are a Whole Care Network Featured Podcast

When Caregiving Finds You: Navigating Alzheimer’s & Family Care

Sun, 06 Apr 2025 17:35:27 +0000

When Caregiving Finds You: Navigating Alzheimer’s & Family Care

Confessions of a Reluctant Caregiver

00:00

58:15

More Info

Confessions of a Reluctant Caregiver

When Caregiving Finds You: Navigating Alzheimer’s & Family Care

Apr 01, 2025 Episode 124

Natalie Elliott Handy and JJ Elliott Hill

"You have to be ready to roll with it." - Alfredo Botello

Stepping into the role of caregiver isn’t always a choice, it’s a journey filled with love, loss, and unexpected lessons. J.J. and Natalie welcome novelist and screenwriter, Alfredo Botello to open up about caring for his mother after his stepfather’s passing and navigating the challenges of Alzheimer’s and assisted living.

🔹 Key Takeaways:

✅ The emotional toll of caregiving & shifting family dynamics

✅ Misconceptions about caregiving & lessons learned along the way

✅ The power of empathy, connection & vulnerability

✅ Why self-care isn’t selfish—it’s necessary

✅ Finding joy in shared moments, even in difficult times

Alfredo Botello is a novelist and screenwriter who has worked on projects ranging from the indie Sundance Global Short La Revolucion De Iguodala to the studio tent pole Fast and Furious 9. His debut novel, 180 Days, has garnered multiple literary awards. His second novel, Spin Cycle: Notes From A Reluctant Caregiver, was published by Koehler Books on 1.14.25. He is a Fulbright Fellow in architecture and a Nicholl Fellow in screenwriting. In addition to screenplays and the novels, he contributed a chapter to the Amazon bestseller Wellness Through Words, and has written for The San Francisco Examiner Magazine, Metropolis, Diablo, Surface, The Utne Reader, Style, The East Bay Express, and The Monthly. Botello co-owns a cocktail bar in downtown Oakland, Little Bird Bar, and at home dotes on his two Corgis, George and Dotty.

Social Media:

Website: alfredobotello.com

IG: https://www.instagram.com/alfredo_botello_author/

FB: https://www.facebook.com/profile.php?id=61551868357118

LinkedIn: https://www.linkedin.com/in/alfredo-botello-aa16aaa0/

X: https://x.com/alfredobotello

💡 Whether you’re a caregiver or know someone who is, this honest conversation offers insights, support & encouragement for the journey.

🔔 Subscribe & Turn on Notifications for more real caregiving stories!

💬 Join the Conversation – Share your experiences in the comments.

#Caregiving #Alzheimers #CaregiverSupport #FamilyCaregiving #SelfCare #ElderCare #Compassion

Support the show

Confessions of a Reluctant Caregiver

Sisterhood of Care, LLC

Website: www.confessionsofareluctantcaregiver.com

Like us on Facebook!

Tweet with us on Twitter!

Watch us on Youtube!

Pin us on Pinterest!

Link us on LinkedIn!

Tune in on Whole Care Network

Honoring Life’s Journey: A Meaningful Farewell with Amy Bridger at Farmstead Scattering Garden

Sun, 06 Apr 2025 17:30:14 +0000

In this podcast, we have the pleasure of interviewing Amy Bridger from Farmstead, an organization dedicated to honoring those who have passed away in a truly unique and heartfelt way.

Farmstead offers a special service that allows families to commemorate their loved ones in a serene and picturesque setting—a beautiful farm where ashes can be laid to rest in a manner that truly reflects the essence of the departed.

This peaceful haven provides a personalized farewell, ensuring that the final tribute aligns with what would have been most meaningful to the individual. Whether it’s during a breathtaking sunset, while taking a walk with their beloved pet, through a heartfelt religious reading, with laughter and cherished memories, or in quiet contemplation, every ceremony is carried out with deep respect and love.

Join us as we explore this extraordinary way of celebrating life and paying tribute to those who are no longer with us.

To reach Amy Bridger

www.farmsteadscattering.com

https://www.farmsteadscattering.com/blogs/news

Gut Health and Parkinson's w/ Dr. Lawrence Schiller

Sun, 06 Apr 2025 17:25:28 +0000

Is Parkinson’s Disease Linked to Gut Health? In this episode of CareLab, Dr. Lawrence Schiller dives into the fascinating connection between gut health and Parkinson’s disease.

Key takeaways from this episode:

✅ How the gut microbiome may play a role in Parkinson’s

✅ Common digestive issues faced by Parkinson’s patients

✅ The importance of diet and swallowing mindfulness

✅ The need for strong doctor-patient communication

Listen now to uncover the latest insights.

Find Caregiver Training at https://www.higherstandardscaregivertraining.com/

Find Care Equipment solutions at https://www.asksamie.com/

Follow Care Lab for more episodes!

#ParkinsonsDisease #GutHealth #Microbiome #BrainGutConnection #Podcast

To Screen or Not To Screen

Sun, 06 Apr 2025 17:17:28 +0000

To Screen or Not To Screen" delves into the complex and deeply personal dilemma of early Alzheimer's disease screening. Imagine a test that could reveal your brain's future, decades before symptoms appear. Would you take it? This episode confronts the anxieties and potential benefits of such knowledge, particularly for those with a family history of dementia.

Doctors Andy Lazarus and Alan Rot join host Jen Fink to dissect the realities of early screening. They discuss the limitations of current medical training on dementia, and the potential for false positives. False positives can lead to a psychological burden of a pre-symptomatic diagnosis. They challenge the notion that early detection automatically leads to effective interventio. By questioning the efficacy of current treatments and the influence of pharmaceutical companies, we might deliver better outcomes.

They stress lifestyle changes. These are critical. Purpose in life is important. Open talks are needed. Discuss end-of-life care. This episode urges listeners to think. Consider early screening's true value. Prioritize holistic brain health. Take proactive approaches.

Our Guests: Dr. Andy Lazris & Dr. Alan Roth

Dr. Andy Lazris and Dr. Alan Roth have over 75 years of experience in medicine between them. In their new book, A RETURN TO HEALING, they draw on their expertise in primary care to unravel the complexities of the modern health care system. Through a wealth of patient stories and meticulous research, they dig into the roots of American health care challenges and seek its cure.

Navigating Perimenopause: Self-Care, Confidence, and Caregiving with Alex Hall

Sun, 06 Apr 2025 17:17:14 +0000

In this episode, we interview Alex Hall, a healthcare professional who shares valuable insights on the challenges women face during perimenopause—a transitional phase in life that often coincides with the responsibility of caring for aging parents.

Alex highlights the importance of self-care, not just as a way to manage stress but as a powerful tool for self-discovery and renewed confidence. He offers practical advice on prioritizing personal well-being and maintaining balance while navigating this demanding stage of life. Tune in to hear his expert tips and strategies for embracing self-care during this transformative period.

Stanford Healthcare Professionals Reveal Valuable Insights About Palliative Care

Sun, 23 Mar 2025 20:05:27 +0000

Dr. Jocelyn Jiao and Social Worker Mike Polisso of the Stanford Healthcare Palliative Team know the value of getting to know patients and families from the start of the care relationship.

As part of an interdisciplinary team providing neuropalliative care for people and families living with serious neurological illnesses, they’re supporting patients and caregivers and training other healthcare workers in palliative care.

Here are some topics discussed in this interview:

Jocelyn discussed the importance of finding out communication preferences when it comes to early conversations about advance care planning and disease progression. Mike highlighted exploring preference questions with patients and caregivers, and staying curious to create opportunities for personalized care. Asking what kind of medical information is important to someone to know can create communication styles that are comfortable for the patient and caregivers. Mike finds many people don’t know that palliative care social workers have a variety of roles, including helping with complex medical decision making and dealing with family dynamics that are impacting care. Both Mike and Dr. Jiao recognize the need for ongoing self care to support the work they do. You can find more resources and information about palliative care at caringinfo.org and getpalliativecare.org

Connect with our special series sponsor Kensington Senior Living:

Website: https://kensingtonseniorliving.com/

Social media: Instagram LinkedIn Facebook

Information for Jennifer O’Brien

Website: jenniferaobrien.com

Read more about Jennifer O’Brien here.

Purchase your copy of Care Boss by Jennifer O’Brien here.

Buy your copy of The Hospice Doctor’s Widow: An Art Journal of Caregiving and Grief here.

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Sisterpower! Meet Elizabeth’s sisters Susie Morrell and Anne Woodbury

Sun, 23 Mar 2025 20:00:22 +0000

In this milestone 200th episode of the Happy Healthy Caregiver podcast, I’m thrilled to share something extra special with you—I’m introducing two amazing people who mean the world to me: my sisters! You may already be familiar with my older sister, Susie Morrell, who was our mom’s primary caregiver for many years and has been featured on two previous episodes. However, this is the first time you’ll meet my younger sister, Anne Woodbury, who has also been a part of our caregiving journey.

Together, we’ll reflect on our upbringing, caregiving experiences, and what it’s been like to share the care for over a decade. We’ll also dive into our current caregiving roles, including our care plan for our brother Tom, who lives with a developmental disability. Plus, we’ll talk about what self-care really looks like for us now.

Show notes with product and resource links:

https://bit.ly/HHCPod200

Receive the podcast in your email here:

http://bit.ly/2G4qvBv

Order a copy of Elizabeth's book Just for You: a Daily Self Care Journal:

http://bit.ly/HHCjournal

For podcast sponsorship opportunities contact Elizabeth:

https://happyhealthycaregiver.com/contact-us/

The Happy Healthy Caregiver podcast is part of the Whole Care Network. Rate and Review the podcast:

https://bit.ly/HHCPODREVIEW

Stanford Healthcare Presents a Caregiver's Honest and Powerful Story

Sun, 23 Mar 2025 19:55:24 +0000

With courage and vulnerability, Sheralin Samuels shares her experience as a caregiver for her mom, and their journey through Early Onset Alzheimer’s disease.

Here are a few highlights from this episode, created in partnership with Stanford Health Care:

Sheralin’s mom Carlys began showing symptoms in 2012, and a definitive diagnosis of Alzheimer’s disease wasn’t found until about 10 years later. Carlys spent a year in hospice care before she was discharged. As a sandwich caregiver, Sheralin cares for her two kids while working a full time job and ensuring her mom’s needs are being met. Being a caregiver has impacted Sheralin’s family in numerous ways, affecting family dynamics, relationships, and finances. Sheralin knows there's strength in self care. Her self care includes getting outside, enjoying nature, and hiking. By creating YouTube videos to help other caregivers, Sheralin is creating meaning from her experience. Watch Sheralin Taylor’s YouTube videos: @A_Daughters_Journey

You can find more resources and information about palliative care at caringinfo.org and getpalliativecare.org

Connect with our special series sponsor Kensington Senior Living:

Website: https://kensingtonseniorliving.com/

Social media: Instagram LinkedIn Facebook

Information for Jennifer O’Brien

Website: jenniferaobrien.com

Read more about Jennifer O’Brien here.

Purchase your copy of Care Boss by Jennifer O’Brien here.

Buy your copy of The Hospice Doctor’s Widow: An Art Journal of Caregiving and Grief here.

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

What is Awareness, Anyway?

Sun, 23 Mar 2025 19:50:26 +0000

Defining a foundational thought: awareness.

Hey, Try This! is an emotional and mental wellness podcast published every Monday, Wednesday, and Friday. These 2 -5 minute offerings are brought by kindred spirits, folks just like the rest of us who want peace, hope, and rest through self improvement and personal growth.

Familiar Wilsons Media produces content to bring people together. We are curious, hopeful, and try not to take ourselves too seriously - admittedly, with varying degrees of success.

The Grieving Body with Mary-Frances O'Connor, Ph.D.

Sun, 23 Mar 2025 19:45:20 +0000

My guest today is Dr Mary Frances O’Connor, Professor of Clinical Psychology and Psychiatry at the University of Arizona, Director of Clinical Training and a grief researcher. Dr O’Connor shared such great insights the first time she was on the podcast, I’m so glad she’s back to discuss her new book The Grieving Body: How the Stress of Loss Can Be an Opportunity for Healing.

Today we discuss the physical nature of grief, the physiological response of your body and how grief affects every system, We talk about our immune system, brain fog, ways to cope with grief, how to rebuild after loss and so much more.

TRANSCRIPT OF THIS EPISODE

MaryFrancesOconnor.org

Daughterhood

Lewy Body Dementia: A Complex Illness Unravels Deep Family Bonds with Susan Landeis

Sun, 23 Mar 2025 19:40:25 +0000

Do you want to experience the healing power of family relationships and find hope and peace amidst the challenges of caregiving? In this episode we discuss a solution.

Our special guest is Susan Landeis, author of "In Search of Rainbows: A Daughter’s Story of Loss, Hope and Redemption." Susan is an inspiring voice in the Alzheimer's and dementia caregiving community. Her memoir delves into her journey of caring for her mother with Lewy Body Dementia, while navigating a lifelong, complex, and estranged relationship. Susan's candid storytelling and experiences offer invaluable insights into the challenges of caregiving and the transformative power of forgiveness and healing within family dynamics.

As a member of the AlzAuthors management team, Susan brings a wealth of knowledge and compassion to her work, providing support and understanding to those facing similar struggles. Her personal journey and dedication to raising awareness of dementia caregiving make her a compelling and relatable guest for today's episode.

Estrangement within families can present additional challenges when taking on the role of caregiver. Navigating this complex dynamic requires open communication, patience, and a willingness to address underlying issues. Caregivers like Susan have found that caregiving can offer a pathway to reconciliation, understanding, and forgiveness, ultimately bridging the gap created by estrangement.

In this episode, you will:

· Discover effective coping strategies for Lewy Body Dementia, bringing peace of mind to both you and your loved one.

· Learn how caregiving can become a catalyst for healing family relationships, fostering understanding and connection.

· Find ways to navigate the challenges of estrangement while providing loving care for your family member.

· Explore the powerful process of writing a memoir on dementia caregiving, capturing and preserving precious memories.

· Gain valuable insights into managing senior health and well-being, empowering you to provide the best care possible.

After the Podcast

Buy “In Search of Rainbows”

Read Susan’s AlzAuthors Post

Note: we are an Amazon Associate and may receive a small commission on book sales at no additional cost to you or the authors.

Learn more about the Moderators

Marianne Sciucco

Christy Byrne Yates

About the Podcast

AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others.

Thanks for listening.

We are a Whole Care Network Featured Podcast

Death and Meaning

Sun, 23 Mar 2025 19:35:20 +0000

Familiar Wilsons Media produces content to bring people together. We are curious, hopeful, and try not to take ourselves too seriously - admittedly, with varying degr

KRISTINA HAYES: Step by Step - Using Dance to Navigate Dementia

Sun, 23 Mar 2025 19:30:21 +0000

In this episode of Love Conquers Alz, Don and I sit down with Kristina Hayes, the inspiring founder of Waltz Through Life. Kristina shares her journey of using dance, movement, and creativity to support individuals and families navigating the challenges of aging, dementia, and caregiving. Through her unique approach, she brings joy, connection, and healing to those who need it most. We explore the power of music, movement, and mindfulness in transforming the caregiving experience.

I know how powerful dance has been in my life. It truly is my form of meditation. The healing power of music and movement for people with Alzheimer's radiates through this heartwarming conversation. For 15 years, Kristina has witnessed firsthand how dance transforms seniors in memory care, creating magical connections when words fail.

"Dancing to music is a shortcut to a person's heart and miracle medicine for Alzheimer's," Kristina explains, describing how residents who appear disengaged suddenly come alive when music plays. Her journey from ballroom dance instructor to therapeutic dance facilitator happened almost by accident, but has evolved into deeply meaningful work that challenges conventional approaches to dementia care.

The conversation weaves through fascinating science about why music reaches people with cognitive decline—it lights up more regions of the brain than any other sensory input and remains accessible even in advanced stages of memory loss. Suzy shares poignant stories about singing with her mother, who responded to music when other forms of communication had slipped away.

Beyond the therapeutic benefits, this episode explores larger questions about how society views aging and elder care. The hosts advocate for a movement that values and integrates older adults rather than marginalizing them. "We're all headed to the same place if we're lucky enough to live a long life," Kristina observes, making a powerful case for reconsidering how we approach our later years.

This isn't just a conversation about dementia care—it's about reconnecting with what makes us human at every stage of life. Whether you're a caregiver seeking new approaches or simply someone interested in the healing power of movement, this episode will inspire you to turn up the music, move your body, and connect with others across all boundaries of age and ability.

Subscribe, share, and keep dancing—it's good for your brain, body, and soul!

Love,

Susie xo

Support the show

Be a ROAR-ior!! JOIN THE R.O.A.R. MOVEMENT for quality long term care! Visit the No Country For Old People Website for more information.

YOU CAN ALSO SUPPORT THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND ME

Gut Health and Parkinson's w/ Dr. Lawrence Schiller

Sun, 23 Mar 2025 19:25:25 +0000

Is Parkinson’s Disease Linked to Gut Health? In this episode of CareLab, Dr. Lawrence Schiller dives into the fascinating connection between gut health and Parkinson’s disease.

Key takeaways from this episode:

✅ How the gut microbiome may play a role in Parkinson’s

✅ Common digestive issues faced by Parkinson’s patients

✅ The importance of diet and swallowing mindfulness

✅ The need for strong doctor-patient communication

Listen now to uncover the latest insights.

Find Caregiver Training at https://www.higherstandardscaregivertraining.com/

Find Care Equipment solutions at https://www.asksamie.com/

Follow Care Lab for more episodes!

#ParkinsonsDisease #GutHealth #Microbiome #BrainGutConnection #Podcast

Military Service to Autism Advocacy: Maureen’s Confession

Sun, 23 Mar 2025 19:20:21 +0000

"I suffered from caregiver fatigue." - Maureen Elias

Maureen shares her journey from a structured military career to the unpredictable world of caregiving. As a mother of children on the autism spectrum, she opens up about the challenges and triumphs of parenting, the impact of military life on family dynamics, and the importance of advocacy and community support. Through personal stories of resilience, she highlights the need for understanding, resources, and the power of acceptance in the face of adversity.

Maureen Elias, a former U.S. Army counterintelligence agent, transitioned from military service to a life dedicated to advocacy and caregiving. After a medical separation in 2006, she spent 11 years as a stay-at-home mom while her husband, a 21-year Army veteran, served overseas.

Raising three children on the autism spectrum, Maureen pursued a master’s in mental health counseling, leading to roles in top veteran service organizations, the House Committee on Veterans Affairs, and the Department of Veterans Affairs. She also teaches storytelling to veterans and has recently embraced off-roading as a newfound passion.

Social Media

Linkedin www.linkedin.com/in/maureenelias

Twitter: @maureenelias2

Instagram: @maureenelias2

Highlights:

Compassion and Morality

Sun, 23 Mar 2025 19:15:10 +0000

What is the relation between self awareness and being aware of others?

Familiar Wilsons Media produces content to bring people together. We are curious, hopeful, and try not to take ourselves too seriously - admittedly, with varying degrees of success.

Finding Peace in Preparation: End of Life Service Preplanning: Eight Essential Tips / Alzheimer’s and Other Dementias

Sun, 23 Mar 2025 19:10:25 +0000

When you’re grieving, the last thing you need to be doing is planning a service. Pre-planning allows you to make only two decisions when death occurs: what day and what time the service will be held. Everything else can be arranged in advance, giving you the space to honor your loved one while processing your grief.

We are Sue Ryan and Nancy Treaster, and we recently spoke with Greg Cannon, who has more than 45 years of experience in the funeral profession, including as a funeral director. Greg shared his expertise on planning ahead for a loved one’s service, offering eight essential tips that can make all the difference during a difficult time.

Rate, Subscribe, Share the Podcast and Share Your Tips on Social Media!

Please click here to review, follow, subscribe to and share our podcast.

Connect with us and share your tips:

Website: https://www.thecaregiversjourney.com Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/TheCaregiversJourneys/ Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/ Email: sue@thecaregiversjourney.com, nancy@thecaregiversjourney.com

Full Show Notes

https://thecaregiversjourney.com/finding-peace-in-preparation-end-of-life-service-preplanning-eight-essential-tips-alzheimers-and-other-dementias/

Additional Resources Mentioned

End of Life Service Worksheet here

Takeaways

Tip 1: Choose a Funeral Home

Select a funeral home that will meet your needs. This choice may be based on location, previous experience with them, or their reputation.

Tip 2: Decide on Burial or Cremation

This fundamental decision shapes many subsequent choices.

If choosing burial, consider:

Cemetery location If the person is married, reserving an adjoining space for the spouse Whether traditional burial or green burial options are preferred.

For cremation, consider:

Whether the cremation will happen before or after the service. What will be done with the cremated remains afterward.

In both cases, you’ll need to decide what clothing the person will wear. Greg advises bringing a complete set of clothing, including undergarments and outerwear. Shoes are optional and often difficult to put on, but can be included if they’re meaningful.

Tip 3: Decide on the Type of Service

Funeral services have evolved beyond the traditional.

Traditional Service (for either burial or cremation)

Memorial Service

Green Burial

Direct Cremation or Direct Burial

Tip 4: Choose a Location

The location for the service could be:

A funeral home A place of worship A location meaningful to the deceased

Tip 5: Prepare the Obituary

Rather than writing the complete obituary under time pressure, prepare by:

Compiling all necessary information ahead of time Creating a comprehensive list of family members to include Selecting a photo or photos to accompany the obituary.

Tip 6: Create a Notification Tree

Decide ahead of time:

Who needs to be notified of the death Who will notify whom Create a “notification tree” so you’re not responsible for contacting everyone.

Tip 7: Plan the Service

Consider these elements and include your care receiver as much as possible:

Officiant: Choose the clergy or person who will lead the service Eulogies: Decide who will deliver them and provide guidance Music: Select meaningful songs or hymns Readings: Choose scripture, poetry, or other readings Personal touches: Include memorabilia, photos, or items that represent the person’s life.

Consider alternatives to traditional floral arrangements:

Family quilts Meaningful objects (like golf clubs for an avid golfer) Photos.

Tip 8: Plan the Gatherings

Consider various types of gatherings:

Private family dinner before the service Reception after the service for all attendees Informal gathering at home with close family and friends.

Embracing the Renewal of Spring: A Season of Growth and Change

Sun, 23 Mar 2025 19:05:23 +0000

In this episode of our podcast, we delve into the beauty and symbolism of the arrival of spring. As the season changes, we witness the rebirth of flowers, the lush green transformation of fields, and the return of migratory birds that had flown south during the winter months.

Winter often keeps people indoors, not only physically but also emotionally, as the cold and shorter days encourage a period of introspection and solitude. However, this retreat isn’t just within our homes—it happens in our minds as well. If we’re honest, the things we tell ourselves during these moments of isolation are not always kind or loving.

With the arrival of spring, there's a renewed sense of energy and optimism. The warmer temperatures and longer daylight hours invite us to step outside, embrace new experiences, and reconnect with nature. More importantly, this season reminds us of the importance of being gentle with ourselves—of celebrating the small changes we make along the way.

Join us as we explore how the transition into spring affects our emotions, routines, and overall well-being. We'll discuss ways to welcome the season with open arms, from spending more time outdoors to shifting our inner dialogue toward kindness and self-compassion. Tune in for an uplifting conversation on growth, change, and embracing the fresh possibilities that springtime brings!

Find Peace & Healing After A Loss

Sun, 23 Mar 2025 19:00:23 +0000

Grief can leave you feeling lost and broken, wondering if you'll ever feel whole again. The journey to healing after loss can feel overwhelming, but finding peace is possible. This episode explores practical strategies and insights to help you navigate the complex emotions of grief, rediscover hope, and ultimately find peace. We discuss the importance of self-care, the power of remembrance, and how to find healthy ways to process your loss. Join us to learn how to honor your grief while finding a path forward.

Key Takeaways:

Finding healing after loss is a journey. Find ways to remember the good times and focus on gratitude. Don't be afraid to talk about your loss with someone you trust. Find healthy ways to process your grief - journaling, talking to a counselor, etc. Find comfort in simple things like nature, pets, or soothing sounds. Forgive yourself and others. Find the positive in your memories and experiences. Find ways to take care of yourself - physically, emotionally, and mentally. Remember that your loved one lives on in your heart and memories. Find peace in knowing you did the best you could.

Let Your Mind Be Free

Sun, 23 Mar 2025 18:55:24 +0000

A reflection on how to free ourselves from a chaotic mind.

Familiar Wilsons Media produces content to bring people together. We are curious, hopeful, and try not to take ourselves too seriously - admittedly, with varying degrees of success.

Hearing and Health! with Dr. Hope Lanter

Sun, 23 Mar 2025 18:50:25 +0000

Did you know that untreated hearing loss can lead to cognitive decline, social isolation, and even impact your overall well-being? In this episode of CareLab, Dr. Hope Lanter, audiologist and founder of Dr. Hope for Hearing, dives into the critical importance of early intervention, hearing protection, and the power of hearing aids in improving quality of life.

The Power of Noticing Others: Building Community as a Caregiver

Sun, 23 Mar 2025 18:44:49 +0000

In this episode, we explore how we tend to write everything down—our to-do lists, things we've learned, important points, and even our thoughts. But one thing we often overlook is keeping track of what happens in the lives of others.

Being a caregiver can be a lonely journey, and having a list of what others are going through can serve as a powerful tool. It allows us to ask thoughtful questions, deepen our conversations, and foster genuine connections. This simple act of paying attention creates a sense of community—one that can offer support, understanding, and companionship along the caregiving path.

Join us as we discuss how small actions, like remembering and acknowledging others' experiences, can make a significant difference in our lives and the lives of those around us.

Essential Palliative Care Information from Stanford Healthcare Clinicans

Sun, 09 Mar 2025 12:00:25 +0000

This episode is the first in a 4-part special series in partnership with Stanford Healthcare, sponsorsored by Kensington Senior Living.

Grant Smith, M.D. and Emily Linderman, BCC from the Palliative Care team at Stanford Health Care are sharing all the basics of palliative care - when to start it, who can benefit from it, and what a PC team does for patients and caregivers.

Here are a few highlights from our conversation:

Palliative care teams are transdisciplinary (consisting of workers with different skills, like physicians, social workers, nurses, and chaplains) and support quality of life
Palliative care can be provided at any age and stage of an illness
Palliative care teams are great at helping patients to understand all the information being thrown at them, facilitating family conferences, and coordinating patient care

You can find more resources and information about palliative care at caringinfo.org and getpalliativecare.org

Connect with our special series sponsor Kensington Senior Living:

Website: kensingtonseniorliving.com

Social media: Instagram LinkedIn Facebook

Information for Jennifer O’Brien

Website: jenniferaobrien.com

Read more about Jennifer O’Brien here.

Purchase your copy of Care Boss by Jennifer O’Brien here.

Buy your copy of The Hospice Doctor’s Widow: An Art Journal of Caregiving and Grief here.

Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Living with Intention with Susan Bottega

Sun, 09 Mar 2025 11:45:24 +0000

Susan Bottega is a nurse by practice who became a caregiver when her husband was diagnosed with CLL (Chronic lymphocytic leukemia) over 12 years ago. Since then, Susan has adjusted her life to caring for Bob, researching CLL and treatment options, and helping other CLL family caregivers through her virtual support group.

In this episode of the Happy Healthy Caregiver podcast, Susan and I talk about adjusting retirement plans after a diagnosis, finding those who are ready and willing to support you in this new caregiving season, and living with intention to create a full and vibrant life while caring for someone with a chronic disease.

Show notes with product and resource links:

https://bit.ly/HHCPod199

Receive the podcast in your email here:

http://bit.ly/2G4qvBv

Order a copy of Elizabeth's book Just for You: a Daily Self Care Journal:

http://bit.ly/HHCjournal

For podcast sponsorship opportunities contact Elizabeth:

https://happyhealthycaregiver.com/contact-us/

The Happy Healthy Caregiver podcast is part of the Whole Care Network. Rate and Review the podcast:

https://bit.ly/HHCPODREVIEW

The Art of Alzheimer’s: Finding Hope, Laughter, and Love with Marilyn Raichle

Sun, 09 Mar 2025 11:30:22 +0000

Have you been told to walk away from loved ones with Alzheimer's, assuming there's nothing left to connect with? The pain of feeling disconnected and hopeless in caregiving is all too real. But what if there was a way to find joy and connection in the midst of it all? Let's uncover the power of creativity and joy in dementia care together.

In this episode, Marilyn Raichle, author of "Don't Walk Away: A Care Partner's Journey," provides valuable insights on the power of art therapy for Alzheimer's patients. Her personal experience caring for her mother showed her that her mother was still "in there," and they built the loving relationship theyb were unable to create in the past.

Quote: People living with dementia have lives to live and gifts to give.

Watch on YouTube

Key lessons

Art Reveals Hidden Abilities Discovering her mother's artistic talents showed that people with dementia still have gifts to share.

Focus on What's Present Instead of dwelling on what's lost, concentrate on discovering and appreciating what remains in the person.

Take Time to Just Be Spending quality time together, even just five minutes doing something enjoyable, can build meaningful connections.

Listen More Than Talk Ask questions and truly listen to their answers, even if repeated, as they may reveal what's important to them.

Find Joy in Small Moments Sharing laughter, songs, walks and simple pleasures can create happiness for both caregiver and care recipient.

Accept Their Reality Meet them where they are rather than trying to correct or change their perspective.

Love Can Still Grow Despite memory loss, the capacity for giving and receiving love remains intact.

Resources mentioned in this episode:

Participate in the Expose Dementia Conference, The Art of the Matter, happening March 28th to 30th at the Maritime Conference Center in Linthicum, Maryland. Learn more about the intersection of art and dementia care.

Tune in to Podcasthon starting on March 15th and listen to the AlzAuthors episode featuring a discussion on the long-term impact of caregiving.

After the Podcast

Purchase Don’t Walk Away

Learn more about the Moderators

Marianne Sciucco Christy Byrne Yates Learn more about Aging & Amazing

About the Podcast

AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others.

Thanks for listening.

We are a Whole Care Network Featured Podcast

Beyond the Uniform: A Military Wife’s Caregiving Journey

Sun, 09 Mar 2025 11:00:26 +0000

"I forgot how to care for myself." - Tara Ross

In this powerful episode of Confessions of a Reluctant Caregiver, hosts Natalie and JJ welcome guest, Tara Ross to dive deep into the raw realities of caregiving—especially within military families. Tara opens up about her journey from falling in love with John, a dedicated Navy submariner, to facing the life-altering challenges of his traumatic brain injury.

This emotional conversation unpacks the hidden struggles of caregivers, from burnout and emotional exhaustion to the fight for proper health advocacy. Tara shares how relocating to Ohio, navigating caregiving through COVID-19, and coping with personal loss shaped her resilience. She also reveals hard-earned lessons on self-care, setting boundaries, and maintaining personal identity while supporting a loved one.

Social Worker Rosie Gaston Reveals How You Can Have a Better Ending

Sat, 08 Mar 2025 21:33:21 +0000

Social Worker Rosie Gaston brings energy and compassion to the care of people and families dealing with life-limiting illness. As a passionate clinical social worker, she’s worked for over a decade supporting individuals, families, and professionals through the intricate journey of end-of-life care. Rosie founded A Better Ending in 2022 to focus on personalized support, community education, and fostering professional development in the end-of-life care domain all while continuing to serve part-time as a hospice social worker.

As Rosie says, “A life well lived deserves an ending that honors that life.”

Connect with Rosie Gaston and A Better Ending

Website: abetterending.org

Social media for Rosie Gaston: Instagram @a.better.ending Facebook LinkedIn

Information for Jennifer O’Brien

Website: jenniferaobrien.com

Read more about Jennifer O’Brien here.

Purchase your copy of Care Boss by Jennifer O’Brien here.

Buy your copy of The Hospice Doctor’s Widow: An Art Journal of Caregiving and Grief here.

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Financial Planning Wellness For Caregivers

Sat, 08 Mar 2025 21:33:05 +0000

Caregiving, especially for those with dementia, presents unique financial challenges. This episode explores the intersection of financial planning and wellbeing for caregivers, addressing the often-unforeseen costs associated with providing care. We discuss proactive financial measures to take before caregiving becomes necessary, including legal considerations and long-term care planning. The conversation also delves into strategies for caregivers already facing financial strain. We cover practical tips for budgeting, accessing available resources, and navigating the complexities of financial assistance programs. Join us for a crucial discussion on protecting both your loved one's future and your own financial wellbeing while caregiving.

Our Guest: Danielle Muira

I am the owner of Spark Financials. I grew up as an only-child in a middle-class family. My parents strived for financial stability, working hard and long hours. After our daughter was born, I had a strike of urgency to plan for my family’s future. After reviewing my parent's retirement documents, I found that their retirement funds had almost no growth during one of the best decades in the stock market.

I started to read finance books, took seven CFP® educational courses, and passed two of the most difficult tests in the financial industry. Now, I have become one of the most prominent financial advisors in the industry.

A Game with No Rules w/ Emily Rinkema & Deb Emerson

Sat, 08 Mar 2025 21:32:33 +0000

Caring for a loved one with dementia comes with unique challenges, but it can also open the door to meaningful moments of connection. In this episode, we dive into the journey of caregivers who turned their personal experiences into something truly special, and created a way for other caregivers to find connection with their loved ones. Join us as our guests share their caregiving stories, the obstacles they faced, and how they created an accessible, tactile, and joyful way to interact with their loved ones. From fostering connection to building supportive communities, this conversation is filled with insights, hope, and innovative ways to enhance the lives of those affected by dementia.

Find more about about Hodeeay at https://hodeeay.com/

Find Caregiver Training at https://www.higherstandardscaregivertraining.com/

Find Care Equipment solutions at https://www.asksamie.com/

Follow CareLab for more episodes! #DementiaCare #Caregiving #ConnectionThroughPlay #CareLab

Financial Planning with Christopher Hensley

Sat, 08 Mar 2025 21:32:17 +0000

In today’s episode, we sit down with Christopher Hensley, a financial advisor with years of expertise in guiding families through financial planning. Christopher shares invaluable advice tailored specifically for caregivers, focusing on how to manage the finances of their loved ones with care and foresight.

One of his key messages is the importance of taking proactive steps: “Do it before you need it.” Christopher emphasizes the significance of planning ahead to avoid stress and ensure that resources are available when they’re most needed.

From budgeting for medical expenses to setting up a sustainable financial plan, this episode is packed with actionable tips to help caregivers feel more confident and prepared in navigating financial responsibilities.

Tune in for practical insights and discover how thoughtful planning today can make a world of difference tomorrow!

The Truth About Spiritual Care From a Physician's Perspective

Fri, 21 Feb 2025 18:15:20 +0000

Dr. Robert Klitzman has learned the truth about the value of spiritual care through his professional practice and his own lived experience. As an author, he’s written over 180 articles and books on critical issues in bioethics regarding doctor-patient relationships and communication, research, and other areas. Robert realized the whole-person impacts of a traumatic grief event after the death of his sister in the Twin Tower attacks on 9-11.

Speaking with physician colleagues, Robert heard them voice erroneous beliefs about the support that chaplains provide. His book Doctor, Will You Pray for Me?: Medicine, Chaplains, and Healing the Whole Person describes an in-depth look into the work of hospital chaplains. The book demonstrates how chaplains, as part of an interdisciplinary team, help families “make sense of serious disease and threats of death and other medical crises, seeking hope, purpose and larger connections beyond themselves”.

Buy your copy of Dr. Klitzman’s book Doctor, Will You Pray for Me?: Medicine, Chaplains, and Healing the Whole Person here.

Find all of Dr. Klitzman’s works here.

Information for Jennifer O’Brien

Website: jenniferaobrien.com

Read more about Jennifer O’Brien here.

Purchase your copy of Care Boss by Jennifer O’Brien here.

Buy your copy of The Hospice Doctor’s Widow: An Art Journal of Caregiving and Grief here.

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

The Unspoken Challenges of Marginalized Caregivers: Black, Brown, and BIPOC with Jerri McElroy and Aisha Adkins

Fri, 21 Feb 2025 18:00:21 +0000

Jerri McElroy is a full time in home dementia family caregiver and a Caring Across Generations Fellow. She is passionate about care advocacy and created first care for me to encourage family caregivers to prioritize self preservation for their own health and well being. Jerry is a published author, artist, minister, and also a Daughterhood circle leader. Aisha Adkins is an Atlanta based family caregiver, founder, writer, thought leader, speaker and organizer, who is passionate about building an equitable, inclusive and comprehensive public health and care infrastructure using media, storytelling, culture and policy change. She is committed to making an impact across the country for unpaid caregivers of color through her new venture, Caregivers of Color Collective.

In this episode, we dive deep into the challenges faced by marginalized caregivers, sharing powerful insights into their experiences within the healthcare system and family dynamics. We also tackle critical issues like generational trauma, the vital role of allyship and much more.

TRANSCRIPT OF EPISODE

Jerri McElroy’s - Facebook Group - A Life for a Life: A Caregiver’s Journey https://www.facebook.com/groups/303568590482029/?ref=share&mibextid=NSMWBT

Aisha Adkins - https://aishaadkins.com/

Daughterhood

How to Separate the Myths From the Truth About Hospice Care

Fri, 21 Feb 2025 17:45:19 +0000

My guest Gabby Jimenez and I are busting the hospice myths to get to the truth about end of life care. Because there are so many misconceptions about hospice care, many people don’t choose to have care from a hospice team or they delay hospice care until very close to death. It’s important to know the truth about all the aspects of hospice care - how medicines are managed, how morphine is really used for someone who’s dying, when to start hospice, and Do Not Resuscitate orders work.

Gabby Jimenez is a hospice nurse, end-of-life doula, death and dying educator, and author. Her website and Facebook page, which are both named The Hospice Heart, offer support for people who are either terminally ill, or caring for someone who is nearing the end of their life. Gabby has learned from being at the bedside of about 2,000 people who have taken their last breath. Her end-of-life doula training has helped her to truly understand the sacredness of death and dying, and what it means to be present for someone during that intimate and final moment. You can find her information and all of her offerings on her website: www.thehospiceheart.net

Connect with Gabby Jimenez:

Website: thehospiceheart.net

Contact: thehospiceheart.net/contact

Buy Gabby’s books: thehospiceheart.net/books

Book Gabby to speak at your event: thehospiceheart.net/book-gabby

Social Media for Gabby Jimenez

https://www.facebook.com/thehospiceheart.net

Information for Jennifer O’Brien

Website: jenniferaobrien.com

Read more about Jennifer O’Brien here.

Purchase your copy of Care Boss by Jennifer O’Brien here.

Buy your copy of The Hospice Doctor’s Widow: An Art Journal of Caregiving and Grief here.

Interested in purchasing a GrandPad to stay connected with a senior loved one?

Get more information at https://www.grandpad.net/thoh.

GrandPad website: https://www.grandpad.net/

Social Media for GrandPad

https://facebook.com/grandpad

https://instagram.com/grandpad_social/

https://www.linkedin.com/company/grandpad

https://www.youtube.com/channel/UCuFAJCb7_tTneM_ikABq08Q

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Creating Care Community with Kitty Norton

Fri, 21 Feb 2025 17:30:19 +0000

Kitty Norton left her job as an NBC assistant editor in Los Angeles in 2016, for her hometown of Portland, Oregon, to walk, stumble, crawl with her dementia mother to death’s door. While doing so, she authored the dementia caregiver blog Stumped Town Dementia, writing tales of dementia life which resonated deeply with readers around the world. After her mother's death, Kitty turned her storytelling talents to creating and directing the dementia family caregiver documentary, WINE, WOMEN, & DEMENTIA. The film honors this journey with her mother, increases awareness of the caregivers side of the equation in dementia, and celebrates family caregivers, letting them know they are not alone, and are worthy of being, seen, heard, and respected, alongside their person living with dementia, on this difficult road to the end of life.

We explore how Kitty built the care community she needed, why caregivers often start care businesses, and how she prioritized social and emotional self-care during 24/7 caregiving. Plus, find out why duct tape might belong in your caregiver toolbox!

Show notes with product and resource links:

https://bit.ly/HHCPod198

Receive the podcast in your email here:

http://bit.ly/2G4qvBv

Order a copy of Elizabeth's book Just for You: a Daily Self Care Journal:

http://bit.ly/HHCjournal

For podcast sponsorship opportunities contact Elizabeth:

https://happyhealthycaregiver.com/contact-us/

The Happy Healthy Caregiver podcast is part of the Whole Care Network. Rate and Review the podcast:

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Mideo is a Breakthrough Method to Digitize Your Advance Care Plan

Fri, 21 Feb 2025 17:15:19 +0000

Dr. Fred Mirarchi is working to create personalized, specific advance care plans for patients, accommodating every stage of life and end of life wish. After seeing clinicians in the hospital struggle to determine exactly what patients’ wishes were, Fred realized documentation of advance directives didn’t truly communicate clearly. He and the team at Mideo Health have developed a best-practice model for documenting health care directives.

Using a video format allows patients to customize their plan. For older adults who might struggle with technology, the team provides concierge service to guide them through every step of the process. There’s space available on the Mideo platform for creating a personal message to family members, and to document disease-specific directives based on the person’s health history. When completed, Mideo is accessible by QR code so it can be accessed quickly by first responders and hospital staff. If you’re younger and in good health, there’s a “do-it-yourself” version of Mideo that’s easy to complete on your own.

Advance care planning is a great way of preventing unwanted care that’s out of alignment with personal beliefs and wishes. The best time to start the ACP conversation is now.

Website: mideohealth.com

Socials for Mideo: LinkedIn Facebook Twitter (X)

Socials for Dr. Mirarchi: Twitter (X)

Information for Jennifer O’Brien

Website: jenniferaobrien.com

Read more about Jennifer O’Brien here.

Purchase your copy of Care Boss by Jennifer O’Brien here.

Buy your copy of The Hospice Doctor’s Widow: An Art Journal of Caregiving and Grief here.

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

The true Value of Home Accessibility with Justin Oakley

Fri, 21 Feb 2025 17:00:19 +0000

🚨Home Safety Matters!🚨 In this powerful conversation about access and advocacy, Brandy Archie and Emilia Bourland sit down with Justin Oakley, founder of Oakley Home Access, to explore the intersection of occupational therapy and home modifications. 🏡✨

Justin shares his journey from therapist to entrepreneur, building a business that not only improves home accessibility but also shifts the way we think about assistive devices. 💡

#HomeSafety #AccessibilityMatters #FallPrevention #OccupationalTherapy #AgingInPlace #HomeModifications #HealthcareInnovation🔔

Don’t forget to like, comment, and subscribe for more empowering discussions on caregiving and support systems. 📌

Resources & Links: Get more from Justin at http://www.oakleyhomeaccess.com

Find Caregiver Training at https://www.higherstandardscaregivertraining.com/

Find Care Equipment solutions at https://www.asksamie.com/

@Ask-SAMIE @higherstandardscaregiver

DR. ALLEN POWER: Reimagining Dementia Care with Compassion and Community

Fri, 21 Feb 2025 16:30:21 +0000

Imagine your loved one living with Alzheimer's in a place where they could truly feel at home, free from the fear of wandering. This episode shares heartfelt stories of personal experiences, including my own mother's joyful time in a vibrant Los Angeles loft community. Join my co-host, Don Priess and I, as we welcome esteemed guest Dr. Allen Power, a renowned geriatrician, whose compassionate approach to dementia care challenges traditional methods and focuses on creating environments that foster contentment and security for those affected by Alzheimer's.

We venture into the transformative journey of Dr. Power, who moved from general practice to become a leading advocate for non-pharmacological dementia care. Influenced by the Eden Alternative movement, he reveals his insights on the misuse of antipsychotic drugs and highlights the importance of communication and community integration. Our discussion sheds light on the experiences of families affected by medication misuse and calls for innovative care models that prioritize the well-being of individuals with dementia, emphasizing the power of love, companionship, and understanding.

Explore how rethinking dementia care can enhance quality of life, balancing safety and freedom in care environments. Together with Dr. Power, we reflect on the power of intergenerational relationships and the vital need for societal shifts towards embracing diversity and supporting aging in place. With personal anecdotes and expert insights, we challenge misconceptions about dementia, highlighting the lessons of mindfulness and the importance of integrating people with dementia into communities, ultimately advocating for a more inclusive and compassionate approach to care.

Thanks for watching, listening, and sharing!

Much Love,

Susie

Dr. Allen Power is a board-certified internist, geriatrician, Schlegel chair in aging and dementia innovation at the Schlegel U Waterloo Research Institute for aging, a sought after speaker around the world, and a trained musician and songwriter with four recordings. Peter, Paul and Mary performed his song of elder autonomy, “If You Don’t Mind”, and Walter Cronkite used his song, “I’ll Love You Forever” in a 1995 Discovery Channel profile of American families. A recent project was composing music for Anne Hills’ latest album (www.annehills.com).

Contact: DrAlPower@gmail.com

Support the show

Be a ROAR-ior!! JOIN THE R.O.A.R. MOVEMENT for quality long term care! Visit the No Country For Old People Website for more information.

YOU CAN ALSO SUPPORT THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND ME

Purchase GERI-GADGETS® here. COUPON CODE: LCA20 for 20% Off No Minimum

Learn more about Peter Istvan Photography here.

Creating a Relationship Contract for the Dementia Journey with Debra Hallisey

Fri, 21 Feb 2025 16:00:20 +0000

Have you ever considered creating a “contract” with yourself as a caregiver—one that clearly defines what you can and cannot do? Debra Hallisey, caregiver advocate and author of A Relationship Contract for Dementia Caregivers, joins us to share her insights on navigating caregiving dynamics, especially for those caring for a loved one with dementia.

In this heartfelt conversation, Debra offers practical tools and exercises to help caregivers embrace the reality of dementia while maintaining their emotional well-being. From her caregiving journey to her work supporting families, Debra provides a profoundly compassionate perspective on the challenges and rewards of creating a safe and loving environment for individuals with dementia.

Whether you’re a caregiver or supporting someone who is, this episode is a valuable resource filled with actionable strategies and powerful insights to help you navigate the complexities of dementia care. Don’t miss it!

In addition to learning more about relationship contracts, you’ll learn:

The importance of NOT keeping dementia diagnoses secret Managing grief throughout the caregiving journey Transitioning from home care to assisted living Cultural perspectives on caregiving Debra also offers the following advice for caregivers:

Remember your person is “still in there” despite changes Set clear boundaries using “I” statements Be specific when asking others for help Give yourself grace throughout the journey Quote: “Grief runs through caregiving like a river” - Debra Hallisey

After the Podcast:

Read Debra's AlzAuthors blog post

Buy the book, A Relationship Contract for Dementia Caregivers, by Debra Hallisey, Note: We are an Amazon Associate and may receive a small commission from book sales.

Follow Debra

Website

Facebook

Twitter

Resources mentioned in this episode are:

Documentary: Wine, Women and Dementia by Kitty Norton Goodwin Living (Virginia) - Model program for caregiver education and support About the Podcast

AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others.

Thanks for listening.

We are a Whole Care Network Featured Podcast

Proud to be on The Health Podcast Network

Find us on The World Podcast Network and babyboomer.org

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The Hidden Struggles of Caregiving and Dangers of Burnout

Fri, 21 Feb 2025 15:00:22 +0000

"I was feeling angry, I was feeling resentful." - Kate Washington

JJ and Natalie sit down with author Kate Washington to uncover the emotional, financial, and mental health challenges of caregiving. Kate shares her personal journey of caring for both her mother and husband, revealing the unseen struggles caregivers face, from healthcare system hurdles to burnout and grief. Kate and the sisters, JJ and Natalie reflect on their own caregiving experiences, highlighting family dynamics, systemic issues, and the path toward healing.

🔹 The emotional toll of caregiving

🔹 Navigating healthcare challenges

🔹 The reality of caregiver burnout

🔹 Finding joy amidst the struggle

About Kate Washington:

Kate Washington is the author of Already Toast: Caregiving and Burnout In America (Beacon Press, 2021) and a frequent speaker on the systemic challenges facing family caregivers. Her writing has appeared in The New York Times, TIME, Eater, Catapult, and many other publications. She holds a Ph.D. in Victorian literature from Stanford University and lives in Sacramento with her two daughters, one very friendly dog, and one very unfriendly cat.

Social Media

Website: www.kawashington.com

Twitter: @washingtonkate

Instagram: @washingtonkate

Facebook: facebook.com/katewashington

LinkedIn: linkedin.com/in/katewashington/

Books/E-Book/Resource: https://www.penguinrandomhouse.com/books/659447/already-toast-by-kate-washington/

https://www.amazon.com/gp/product/0807055522

Other Links to Include: Media coverage of Already Toast: https://www.beacon.org/Already-Toast-P1645.aspx

📢 Don’t forget to like, comment, and subscribe for more real caregiver stories!

#CaregiverSupport #ConfessionsOfAReluctantCaregiver #KateWashington #MentalHealth #CaregiverBurnout #FamilyCaregiving

Support the show

Confessions of a Reluctant Caregiver

Sisterhood of Care, LLC

Website: www.confessionsofareluctantcaregiver.com

Like us on Facebook!

Tweet with us on Twitter!

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Tune in on Whole Care Network

The Art of Connection: How Creativity Transforms Dementia Care with Mary Crescenzo

Fri, 21 Feb 2025 14:00:23 +0000

Connection is key in dementia care. Discover the transformative power of arts engagement for people living with dementia in this inspiring conversation with Mary Crescenzo, author of “The Planet Alzheimer’s Guide: 8 Ways the Arts Can Transform the Life of Your Loved One and Your Own.”

In this heartfelt episode, a replay of an Aging & Amazing Books & Chit Chat discussion, Mary shares her decades of experience using various art forms to connect with and enrich the lives of people living with cognitive decline. From her early days as an art teacher to becoming a pioneering voice in arts engagement for dementia care, Mary offers practical, accessible ways to bring creativity into caregiving.

You’ll learn:

Simple ways to incorporate music, visual arts, movement, and storytelling into daily care How creative expression can bridge communication gaps The importance of intergenerational engagement through art Self-care strategies for caregivers through creative writing Ways to implement arts activities in both home and facility settings Mary’s Key Messages for Caregivers:

Everyone has innate creative abilities Art activities don’t require expensive materials or special training Focus on the present moment rather than past relationships Celebrate and display creative works Don’t give up if first attempts aren’t successful Quote: “Art brings joy into the darkness of this disease.” - Mary Crescenzo

After the Podcast

Download Mary's Tip Sheet: 7 Tips for Connection and Communication through the Arts

Get the book: The Planet Alzheimer's Guide by Mary Crescenzo

Note: We are an Amazon Associate and may receive a small commission on book sales at no cost to you or the author.

Read her AlzAuthors Blog

Catch the Dementia & the Arts Podcast Episode

Follow Mary

Listen to her co-hosted show: Dementia and the Arts on Alzheimer's Speaks

Resources mentioned:

Mary's Caregiver Tip Sheet: “8 Ways to Use Arts for Engagement” Learn more about Mary’s play "Planet A" and the inner world of Alzheimer’s: Remember: You don’t need to be an artist to engage in creative activities with your loved one. As Mary says, creativity is an innate human ability that can bring connection and joy to the dementia journey.

About the Podcast

AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others.

Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word.

If our authors’ stories move you, please leave a review.

And don’t forget to share our podcast with family and friends on their own dementia journeys.

Meet the Moderators

Marianne Sciucco

Christy Byrne Yates

Support AlzAuthors

Thanks for listening.

We are a Whole Care Network Featured Podcast

Proud to be on The Health Podcast Network

Find us on The World Podcast Network and babyboomer.org

Want to be on the podcast? Here’s what you need to know

We’ve got merch! Shop our Store

Completion, Closure and Families at the Center of Care with Helen Bauer

Fri, 21 Feb 2025 13:00:21 +0000

In this episode of Care Lab, hosts Emilia Bourland and Brandy Archie welcome back hospice expert Helen Bauer to discuss the importance of rituals in grief, cultural perspectives on funerals, and how to find the right hospice care that aligns with personal values. They explore the emotional aspects of loss, the significance of shared experiences, and the need for compassionate care at the end of life. Helen also introduces her new Hospice Navigation Services, aimed at providing unbiased guidance to families navigating hospice options.

Learn more about Helen Bauer’s Hospice Navigation Services: https://www.theheartofhospice.com/

Find Care Equipment solutions at https://www.asksamie.com/

Find Caregiver Training at https://www.higherstandardscaregivertraining.com/

Don't forget to download, and follow CareLab for more episodes!

#HospiceCare #GriefSupport #CompassionateCare #Caregiving #EndOfLifeCare

Celebrating You: A Valentine’s Day of Self-Love and Achievements

Fri, 21 Feb 2025 12:30:18 +0000

This episode is a heartfelt invitation to practice self-appreciation and self-care. Isabel shares practical tips on how to be gentler with ourselves, acknowledge our efforts, and treat ourselves with the same care and affection we offer to others. Whether it's indulging in a small treat, taking a quiet moment to reflect on your progress, or simply speaking kind words to yourself, she encourages you to embrace the day as an opportunity to honor your own journey.

Don't miss this inspiring episode filled with warmth, encouragement, and self-love.

Time for a Change? Tips When Considering Home and Community Living Options: Five Essential Tips / Alzheimer's and Other Dementias

Fri, 21 Feb 2025 04:50:46 +0000

As caregivers for our loved ones with Alzheimer's and other types of dementia, we often face the challenging question: "Is it time to change my care receiver's living situation?" We are Nancy Treaster and Sue Ryan, and through our experiences, we've developed five essential tips to help you navigate this complex decision-making process.

Connect with us and share your tips:

Website: https://www.thecaregiversjourney.com
Instagram: https://www.instagram.com/thecaregiversjourney/
Facebook: https://www.facebook.com/TheCaregiversJourneys/
Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/
Email: sue@thecaregiversjourney.com, nancy@thecaregiversjourney.com

Full Show Notes

https://thecaregiversjourney.com/time-for-a-change-home-and-community-living-options-five-essential-tips-alzheimers-and-other-dementias/

Takeaways

1. Understand Your Financial Resources

This foundational step requires a thorough assessment of both current and future financial resources.

Professional Resources to Consult:

- Financial advisors (especially those specializing in senior care)

- Elder care attorneys

- Government program specialists

Income Sources to Consider:

- Care receiver's savings

- Pensions

- Long-term care insurance

- Public health insurance (Medicaid in the US)

- Social Security disability benefits

- Family contributions

Expenses to Evaluate:

- Home modifications

- Safety adjustments

- In-home caregiving costs

- Day program fees

- Potential lost income if reducing work hours

- Care community costs

2. Research Care Options

There are three main categories of care options to evaluate:

Non-Residential Options:

- Respite programs

- Memory cafes

- Day programs

In-Home Options:

- Professional caregiving services

- Government programs (VA benefits, Medicare services)

- Family caregiver arrangements

Care Communities:

- Memory care specific facilities

- Communities with memory care units

- Different care models and staffing levels

- Waiting list considerations

3. Assess Home Safety

This evaluation should include multiple perspectives:

Medical Assessment:

- Get an updated medical evaluation

- Discuss current and future safety risks

- Request occupational therapy assessment

Key Safety Considerations:

- Wandering risk

- Cabinet and door safety

- Mobility challenges

- Fall prevention

- Depth perception issues

- Stairs and accessibility

- Emergency services access

4. Evaluate Medical Needs

Current and Future Medical Considerations:

- Impact of multiple diagnoses

- Care complexity

- Required medical procedures

- Medication management

- Physical care requirements

5. Prioritize Wellbeing for Both Care Receiver and Caregiver

This final tip focuses on quality of life considerations for everyone involved.

Socialization Needs:

- Care receiver's social preferences

- Community engagement opportunities

- Caregiver isolation prevention

- Balance of stimulation and comfort

Safety and Emotional Considerations:

- Physical safety for both parties

- Emotional wellbeing

- Caregiver burnout prevention

- Managing aggressive behaviors

- Personal boundaries

Making the Final Decision:

- Consider all evaluation points

- Involve family members

- Maintain awareness of available options

- Stay connected with potential care communities

- Be prepared to act when needed

Chocolate and Yoga: Mindfulness and Self-Care with Paul and Rachell

Fri, 21 Feb 2025 04:50:07 +0000

In today’s podcast, we’re thrilled to welcome Paul and Rachel, who share their wisdom on mindfulness, chocolate, yoga and self-care. They dive into the incredible benefits of cacao, highlighting it as one of the most powerful antioxidants available. They also explain how combining cacao with other natural ingredients from the earth can help us feel more grounded and connected.

Beyond the science, Paul and Rachel offer practical tips on how to enhance your everyday experiences, turning ordinary moments at home into opportunities for emotional connection and joy. Whether you’re looking to bring more mindfulness into your routine or searching for ways to manage the challenges of being a caregiver, their advice is sure to resonate.

This episode is packed with actionable insights and heartfelt advice—don’t miss it! Tune in and discover how small changes can make a big impact on your well-being.

Links mentioned in the interview:

The Chocolate Genius – Industry-Leading Chocolate Experiences & Gifts

Caputo's Market & Deli – Purveyors of regional Italian and Southern European foods

The Yoga Lab | Yoga in Winter Springs | 1340 Tuskawilla Road #102, Winter Springs, FL, USA

From Chaos to Calm: Stress Reducing Strategies

Fri, 21 Feb 2025 04:49:44 +0000

Caregiving for a loved one with dementia can often feel like chaos. Days are unpredictable, emotions run high, and the demands can seem endless. This constant state of chaos not only impacts the person with dementia, but also takes a toll on the caregiver's well-being. It can lead to burnout, stress, and even health problems.

It's crucial to move away from this chaos and find moments of calm. By creating a more peaceful environment, both the caregiver and the person with dementia can experience improved quality of life. This means less stress, better communication, and more meaningful interactions.

Taking that first step can be daunting, but there's support available. Start by reaching out to your local Alzheimer's Association chapter for information, support groups, and educational resources. Consider respite care to give yourself a break. Don't hesitate to ask family and friends for help with errands or appointments. Even small steps can make a big difference in navigating the dementia journey with more peace and less chaos.

Our Guest:

Debbie Compton is a three-time caregiver for parents with different forms of Dementia. She is a Certified Caregiving Consultant and Advocate, Educator for the Alzheimer’s Assoc., speaker, and author of 10 books including her latest, The Caregiver's Advocate, which is an International Bestseller.

Find all of Debbies books here!

Debbie founded The Purple Vine, whose mission is to empower caregivers to reduce stress, block burnout, and laugh again.

Keeping it together, mentally and digitally with Mim Senft

Fri, 21 Feb 2025 04:48:39 +0000

In this episode of CareLab, hosts Brandy Archie and Emilia Bourland welcome Mim Senft, co-founder and CEO of Motivity Care, to discuss the complexities of caregiving and the importance of self-care strategies for caregivers. The conversation explores various techniques for managing stress, the impact of caregiving on women's financial stability, and the significance of human connection in caregiving roles. Mim shares her personal experiences and insights into the challenges faced by caregivers, emphasizing the need for support and understanding in both personal and professional contexts.

Learn more about Mim Senft and Motivity Care: www.motivitycare.com

Find Caregiver Training at https://www.higherstandardscaregivertraining.com/

Find Care Equipment solutions at https://www.asksamie.com/

Download this episode and follow CareLab for more!

#Caregiving #SelfCare #CareLabPodcast #MotivityCare #CaregiverSupport #CommunityCare

Breaking Free from the Past

Fri, 21 Feb 2025 04:46:25 +0000

In this episode, I share practical tips to help you break free from dwelling on the past and bring your focus back to the present. It's easy to get caught in the cycle of reliving moments that are long gone, but there are ways to regain control of your thoughts and emotions.

The first step is awareness. Recognize when your mind has wandered back to the past. Ask yourself:

How do I feel about this memory? What emotions are surfacing? How is my body reacting—do I feel tension, heaviness, or unease? Acknowledging your state without judgment is key. Once you’re aware, you can take deliberate steps to move forward.

Steps to Shift Back to the Present:

Breathe with Intention: Focus on your breath. Inhale deeply, hold for a moment, and exhale slowly. Conscious breathing helps neutralize overwhelming emotions and brings a sense of calm. Be Your Own Comfort: Imagine what you would tell a dear friend who was feeling the same way. Now, say those kind, reassuring words to yourself. Whether it’s a phrase like, “It’s okay to let go” or “I’m safe now”, affirmations can help soothe your mind. Anchor Yourself: Use your senses to ground yourself in the present moment. Notice what you see, hear, or feel around you. This practice helps disrupt the rumination cycle and reorients you to the here and now. Remember, the past doesn’t define you—it’s a chapter that’s already been written. The power lies in how you choose to respond to it today. By cultivating self-awareness and self-compassion, you can gently guide yourself back to the present, where life truly unfolds.

Let go, breathe, and be here now.

Documentary Film Maker Serene Dillman Shares About the Death of Her Parents

Sat, 01 Feb 2025 19:14:54 +0000

Serene-Meshel Dillman’s documentary series Take Me Out Feet First captures the courage and compassion of people choosing Medical Aid in Dying. In the six part series, Serene features the end of life journeys of people dealing with terminal illness, as well as both her own parents. The struggles, grief, joy, and determination of those dying patients and their families shine through in the films. Serene’s vision is to educate the public about the medical aid in dying process and advocate for state legislation that will allow the right to MAID equitably across the U.S.

You can buy/rent all six episodes of Take Me Out Feet First here.

Website: www.Outfeetfirst.com

Instagram: @Take.meoutfeetfirst

Facebook: www.facebook.com/serene.dillman

Information for Jennifer O’Brien

Website: jenniferaobrien.com

Read more about Jennifer O’Brien here.

Purchase your copy of Care Boss by Jennifer O’Brien here.

Buy your copy of The Hospice Doctor’s Widow: An Art Journal of Caregiving and Grief here.

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Email: helen@theheartofhospice.com

Boomerang Care with Heather Henderson

Sat, 01 Feb 2025 19:14:24 +0000

Heather Henderson is what I’m calling a boomerang family caregiver since she has moved in with her mom to be her primary caregiver at various times in her life. Heather initially became a primary caregiver overnight in 2003 when her parents were in a fatal car accident - her dad did not survive, and her mom was seriously injured. She moved home to care for mom until she was fully recovered. Fifteen years later, Heather became her mom’s primary caregiver again and moved back in with her while working two jobs.

In this episode of the Happy Healthy Caregiver podcast, we discuss the ‘joint joys’ she and her mom shared, how volunteering and cat videos have helped her heal since caring for her mom has ended, how her clean skincare business got started, and how fitness classes in all the phases of her life have kept her grounded and connected to others.

Show notes with product and resource links:

https://bit.ly/HHCPod197

Receive the podcast in your email here:

http://bit.ly/2G4qvBv

Order a copy of Elizabeth's book Just for You: a Daily Self Care Journal:

http://bit.ly/HHCjournal

For podcast sponsorship opportunities contact Elizabeth:

https://happyhealthycaregiver.com/contact-us/

The Happy Healthy Caregiver podcast is part of the Whole Care Network. Rate and Review the podcast:

https://bit.ly/HHCPODREVIEW

How to Empower the Caregiver as Care Boss

Sat, 01 Feb 2025 19:14:17 +0000

After being a caregiver for her parents and husband, Jennifer O’Brien is empowering caregivers so they come through it healthy physically, emotionally, financially, and mentally. In her new book Care Boss, Jennifer has designed strategies and resources to support caregivers. Her 35+ years in healthcare leadership, partnered with all her years as an unpaid family caregiver, equipped her to write the guidebook that caregivers can use to navigate the care of their Person.

If you’re one of the over 54 million unpaid caregivers across the U.S., the advice that Care Boss offers is a great tool to put in your toolbox. Caregivers take on roles as advocate, spokesperson, decision-maker, mediator, comforter, grievers, and financial manager. Caregivers need great resources. Care Boss by Jennifer O’Brien gives caregivers what they need.

Information for Jennifer O’Brien

Website: jenniferaobrien.com

Read more about Jennifer O’Brien here.

Purchase your copy of Care Boss by Jennifer O’Brien here.

Buy your copy of The Hospice Doctor’s Widow: An Art Journal of Caregiving and Grief here.

Interested in purchasing a GrandPad to stay connected with a senior loved one?

Get more information at https://www.grandpad.net/thoh.

GrandPad website: https://www.grandpad.net/

Social Media for GrandPad

https://facebook.com/grandpad

https://instagram.com/grandpad_social/

https://www.linkedin.com/company/grandpad

https://www.youtube.com/channel/UCuFAJCb7_tTneM_ikABq08Q

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Email: helen@theheartofhospice.com

DR. ALLEN POWER: Reimagining Dementia Care with Compassion and Community

Sat, 01 Feb 2025 19:14:03 +0000

Thanks for watching, listening, and sharing!

Much Love,

Susie

Contact: DrAlPower@gmail.com

Support the show

Be a ROAR-ior!! JOIN THE R.O.A.R. MOVEMENT for quality long term care! Visit the No Country For Old People Website for more information.

YOU CAN ALSO SUPPORT THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND ME

Purchase GERI-GADGETS® here. COUPON CODE: LCA20 for 20% Off No Minimum

Learn more about Peter Istvan Photography here.

Dementia Literature Featuring Marianne Sciucco

Sat, 01 Feb 2025 19:13:15 +0000

Have you ever wondered what it's truly like to live with dementia? Either as the person diagnosed or as a loved one? Dementia Literature offer a unique window into these experiences, fostering empathy and providing invaluable insights. From poignant memoirs to practical self-help guides and imaginative fiction, exploring diverse genres about dementia can illuminate the challenges, emotions, and even unexpected joys encountered along the way. Join us as we discuss power of dementia literature and discover how these stories can empower individuals, families, and communities.

Benefits of Reading Diverse Dementia Literature:

Gaining deeper empathy and understanding: By stepping into the shoes of those affected by dementia, readers can cultivate compassion and reduce stigma. Finding practical strategies and support: Self-help books and caregiving guides offer tangible advice and resources for managing daily challenges. ** sparking meaningful conversations:** Books can act as catalysts for dialogue among families, friends, and healthcare professionals. Inspiring hope and resilience: Many stories showcase the strength and resilience of the human spirit in the face of adversity. Raising awareness and promoting advocacy: Literature can play a crucial role in educating the public. Advocating for better dementia care and support services may follow.

Our Guest:

Marianne Sciucco co-founded AlzAuthors.com. It is a global community of authors writing about Alzheimer’s. They share their experiences to help others. Marianne serves on the board and management team. She produces and hosts their podcast, Untangling Alzheimer’s and Dementia. She also wrote the Alzheimer’s love story, Blue Hydrangeas.

Caregiving in 2025: Supporting You, Inspiring You, Encouraging You

Sat, 01 Feb 2025 19:12:14 +0000

Welcome to Finding a Foothold, which was ranked #31 out of the top 70 caregiving podcasts by FeedSpot! I can't even begin to tell you how much this means to me. As someone passionate about serving caregivers, being recognized in this way is both humbling and motivating.

Welcome to the first episode of 2025! In this episode, I reflect on the journey so far and share some exciting updates for the podcast and the mission of Finding a Foothold.

This year, I’m renewing my focus on supporting family caregivers like you. I’ll talk about the release of my book, Fall Prevention: Planning Not to Fall, and share plans for the newly-formed Finding a Foothold Foundation. I’m also diving deeper into ways to support stroke caregivers and provide practical advice to help you maintain balance while giving your loved one the best care possible.

If you’re ready to prioritize both your needs and your loved one’s, I’m here to help you navigate the challenges of caregiving in 2025.

What You’ll Learn in This Episode:

Why I created the Finding a Foothold podcast and the mission that drives me. Highlights from my 2024 journey, including writing my fall prevention book. How proceeds from the book are helping fund respite care for caregivers in underserved communities. My plans for supporting stroke caregivers and the focus on fall prevention this year. Why caregiving isn’t about choosing between “them or you” but finding harmony between both. Resources Mentioned:

Fall Prevention: Planning Not to Fall – Available on Amazon for $10. Proceeds fund respite care for caregivers. Follow Finding a Foothold for updates and caregiving tips. If you are a caregiver and have a question that you would like to have addressed on the Finding A Foothold Podcast, leave a comment on the website: or

You can also leave a question by filling out this Jotform:

https://form.jotform.com/231966483352160

Consuela Marshall, Occupational Therapist, Caregiver Coach Fall Prevention Specialist Certified Aging in Place Specialist Certified Dementia Care Practitioner Certified Geriatric Care Professional

Like us on Facebook. https://www.facebook.com/FindingAFoothold/

Follow on TikTok: https://www.tiktok.com/@findingafoothold?_t=8VzSFPvAsxi&_r=1

Disclaimer: The podcast and blog are intended to provide basic information so that you can become a more informed caregiver. The information presented is intended for educational and informational purposes only and is not meant to serve as medical advice or replace consultation with any health care providers you regularly engage with. Transmission or receipt of any of this information is not intended to, and does not, create a therapist-patient relationship. This information is not provided in the course of a therapist-patient relationship and is not intended to constitute medical advice or to substitute for obtaining medical advice from a physician or therapist licensed in the state where your family may reside. We encourage everyone to consult with your physician or therapist to see if they are appropriate and safe for you.

Cultural Expectations in Caregiving: Family, Sacrifice, and Self-Care

Sat, 01 Feb 2025 19:10:13 +0000

"It's OK not to know everything." - Tracee Loran

In this heartfelt episode of Confessions of a Reluctant Caregiver, hosts JJ, Natalie, and Tracee Loran dive into the unexpected twists and turns of caregiving. Tracy shares her deeply personal story of stepping into the caregiver role for her grandmother after a serious fall, shedding light on:

Songwriter Denny Sarokin, Part 2

Sat, 01 Feb 2025 19:09:21 +0000

DENNY SAROKIN has written for, recorded and toured with Every Mother’s Son, Rick Nelson & The Stone Canyon Band, Crosby, Stills, Nash, & Young, and other Hit Artists. He's written and recorded 100’s of songs for T.V. and Film, as well as being a touring solo artist, playing concerts, clubs, churches, and house parties. His songs feature Up-lifting Lyrics and Melodies that feel like Old Friends!

With the help of a harmony pedal, Denny also plays full sounding cover versions of Classic Acoustic Songs.

In this second of two episodes with Denny, we go through our lighting round of questions to understand the songs and genres that resonate with him. .

https://dennysarokin.com/

Connie Tomaino offers practical tips for you to use music in your everyday life for health and wellness.

https://imnf.org/

We thank listener James Skarnikat of Jimmy's Old Time Radio Show for sharing song that resonates with him.

https://www.facebook.com/jimmysoldtimeradioshow

Thanks to Jim Nantz for our introduction and to Ariel Sol for the original music. https://www.arielsol.com/

#activitiesforelderlyathome

#anxietyreducingmusic

#memorycareactivities

#caregiverrespite

#activitiesforseniorswithdementia

#caregiverresources

#dementiaactivities

#musicandmemory

#caregiversupport

#senioractivities

#activitiesforseniors

The Realities of Caregiver Self-Care

Sat, 01 Feb 2025 19:08:29 +0000

When you’re caring for a family member with Alzheimer’s or other type of dementia, you’ve probably heard countless times: “Don’t forget to take care of yourself.” While well-intentioned, this advice can feel overwhelming when you’re already juggling multiple responsibilities!

Through our conversation with Elizabeth Miller, we’ve learned that effective self-care is about more than just general advice — it’s about finding practical, sustainable ways to maintain your own wellbeing while caring for others.

Connect with us and share your tips:

https://thecaregiversjourney.com/the-realities-of-caregiver-self-care-four-essential-tips-alzheimers-and-other-dementias/

Additional Resources Mentioned

Happy Healthy Caregiver website here

20 for 2025 Funsheet here

Self-Care at Sea cruise here

Happy Healthy Caregiver podcast here

Just for You daily journal here

Takeaways

Tip 1: Give Yourself Permission

One of the biggest barriers to self-care is the guilt that comes with taking time for yourself. Many caregivers feel it's selfish to focus on their own needs when their care recipient is struggling.

Tip 2: Think Broadly About Self-Care

Self-care encompasses much more than just physical health. Elizabeth identifies eight key categories:

- Practical self-care (like organizing your desk)

- Emotional self-care (therapy, journaling)

- Social self-care (connecting with others)

- Spiritual self-care (following your spiritual path)

- Intellectual self-care (learning new things)

- Financial self-care (budgeting, planning)

- Professional self-care (career development)

- Physical self-care (exercise, nutrition)

Tip 3: Prioritize and Schedule Self-Care

The best self-care strategy is simply putting it on your calendar. Elizabeth recommends creating a "20 for 25" list—twenty things you want to do this year that bring you joy, energy, or peace of mind. These can range from small activities like learning a new game to bigger plans like taking a vacation.

Tip 4: Give Yourself Credit

Instead of focusing solely on to-do lists, create a "ta-da" list celebrating what you're already doing right. Remember that self-care includes basic activities you're already doing:

- Getting sleep

- Preparing meals

- Basic hygiene

- Managing finances

- Taking breaks

The Situation Room: Falls

Sat, 01 Feb 2025 19:05:14 +0000

Falls aren’t just a possibility—often, they’re an inevitability. In this episode of CareLab, hosts Emilia Bourland and Dr. Brandy Archie dive deep into practical prevention strategies, from addressing falls the moment they happen to involving occupational therapists and family caregivers. They also explore the role of assistive devices, the importance of strong communication, and advocating for safer healthcare environments. Tune in to learn how to stay proactive and keep loved ones safe!

Find Care Equipment solutions at https://www.asksamie.com/

Find Caregiver Training at https://www.higherstandardscaregivertraining.com/

@carelabpodcast @Ask-SAMIE @higherstandardscaregiver

Embracing the Present Moment

Sat, 01 Feb 2025 19:04:09 +0000

In this episode, we ask a simple yet profound question: Are you truly enjoying the present moment? So often, we find ourselves stuck in the past or consumed by the future, missing the beauty and joy of the now.

The past is gone—it no longer exists except in our memories. Holding onto it, whether through regret or nostalgia, can weigh us down. The key is to let it go and release its hold on our present.

The future, on the other hand, is where our minds often wander with worry. When we think ahead, we tend to plan for the worst-case scenario. This habit may feel like preparation, but it often causes unnecessary stress and robs us of peace.

So, how can we find balance?

If you're sure a challenging situation is ahead, take a few minutes to conduct a "risk control" exercise. Identify the potential risks, plan how to mitigate the impact, and then move on. A proactive approach can calm your mind and provide clarity without becoming overwhelming. If the dark future is purely a creation of your imagination, pause and recognize this pattern. It’s time to stop the cycle of unnecessary worry and shift your focus to the present moment. The present is where life happens. By grounding ourselves in the now, we can truly appreciate the people, experiences, and simple joys around us. When you catch your mind drifting, gently bring it back. Take a deep breath, notice your surroundings, and remind yourself that this moment—right now—is enough.

Life is too precious to live anywhere but here. Embrace the present, and give your mind the peace it deserves.

The Platinum Rule is the Key to Unlocking Better Care

Wed, 22 Jan 2025 15:21:50 +0000

In this second episode in a two part series featuring Dr. Harvey Chochinov, we’re talking about The Platinum Rule. Providing care through the lens of the end of life provider doesn’t fully recognize the personhood of the patient. Dr. Chochinov teaches us about The Platinum Rule - treating others the way they want to be treated, instead of how we would want to be treated if the situation was ours.

Connect with Dr. Harvey Chochinov

Website: dignityincare.ca Virtualhospice.ca

Social media: Twitter: @HMChochinov LinkedIn: Harvey Max Chochinov

Purchase your copy of Dignity in Care: The Human Side of Medicine here

Information for Jennifer O’Brien

Website: jenniferaobrien.com

Read more about Jennifer O’Brien here.

Purchase your copy of Care Boss by Jennifer O’Brien here.

Buy your copy of The Hospice Doctor’s Widow: An Art Journal of Caregiving and Grief here.

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Email: helen@theheartofhospice.com

DANIEL CLARK: For Transparency in Elder Care - First Stop ELDERado

Wed, 22 Jan 2025 15:21:39 +0000

Finding the right elder care for your loved ones shouldn't be a stressful challenge. But for most of us it is. Elder care is EXPENSIVE! Yet, families everywhere grapple with the lack of reliable information.

Imagine if booking elder care were as easy as booking a hotel. In this episode of Love Conquers Alz, we sit down with Daniel Clarke, the visionary founder of Elderado— which is not a Cadillac or a song by ELO, but rather the perfect name for a groundbreaking web platform designed to help families compare over 1,400 long-term care and retirement homes across Ontario. Daniel shares the story behind Elderado, his mission to bring transparency to the long-term care industry, and his ambitious plans to expand the platform to the United States and the world.

Don and I, along with guest Daniel, discuss the essential role of transparency and compassion in finding suitable elder care. We explore the importance of reliable resources and personal experiences when navigating these complex decisions, highlighting the positive aspects of elder care while addressing systemic issues families face.

Whether you’re searching for the right care home or advocating for change, this conversation is a must-listen!

Learn More about Elderado Connect With Daniel Clarke

Support the show

Be a ROAR-ior!! JOIN THE R.O.A.R. MOVEMENT for quality long term care! Visit the No Country For Old People Website for more information.

YOU CAN ALSO SUPPORT THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND ME

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Learn more about Peter Istvan Photography here.

Living a Double Life as a Caregiver

Wed, 22 Jan 2025 15:21:31 +0000

Confessions of a Reluctant Caregiver brings you another raw and relatable episode as hosts Natalie and JJ sit down with Adrienne Marioles, a millennial caregiver with a story that’s equal parts inspiring and real. Adrienne opens up about her leap from the hustle and bustle of New York City to the emotional rollercoaster of caring for her mom, who’s battling Parkinson’s disease.

Expect heartfelt confessions, a few laughs, and some seriously honest moments as Adrienne talks about the isolation, anxiety, and unexpected joys that come with caregiving. She gets real about how therapy and finding a supportive community helped her navigate the ups and downs of this journey.

Adrienne also shares her own experience of caregiving for her mom, touching on the emotional toll, anticipatory grief, and those tough decisions that no one prepares you for. Through it all, she shows how she turned her struggles into a mission to uplift and empower others in the caregiving world.

It’s a conversation full of warmth, wisdom, and a reminder that caregivers are never truly alone.

Adrienne Glusman Marioles is the host of the Young Life Interrupted Podcast, the premier show dedicated to young caregivers. As a professional speaker and advocate for Millennial caregiving, Adrienne shares her personal journey as an only-child caregiver for her mother, Hetty, who lived with Multiple System Atrophy (MSA) before passing away in 2020.

Adrienne’s story has been highlighted in the Wall Street Journal's article "The Call to Care for Aging Parents Comes Sooner Now," and featured on podcasts like Next Question with Katie Couric. Her experiences have also been covered in Health magazine, the Toronto Sun, Vox.com, and more.

Connect with Adrienne on Instagram and Facebook @younglifeinterrupted to follow her journey and find support as a young caregiver.

Social Media:

Instagram: https://www.instagram.com/younglifeinterruptedpodcast/

Facebook: https://www.facebook.com/younglifeinterrupted

Linked In: https://www.linkedin.com/in/adrienneglusman/

Podcast URL:

Apple Podcasts: https://podcasts.apple.com/us/podcast/young-life-interrupted-a-podcast-for-young-caregivers/id1578015965 Spotify: https://podcasts.apple.com/us/podcast/young-life-interrupted-a-podcast-for-young-caregivers/id1578015965 Support the show

Confessions of a Reluctant Caregiver

Sisterhood of Care, LLC

Website: www.confessionsofareluctantcaregiver.com

Like us on Facebook!

Tweet with us on Twitter!

Watch us on Youtube!

Pin us on Pinterest!

Link us on LinkedIn!

Tune in on Whole Care Network

Alzheimer's Burden - Support for Multiple Love Ones

Wed, 22 Jan 2025 15:21:12 +0000

Imagine navigating the complex burden of dementia, but it's not just one person you're caring for – it's multiple family members. Each with their own unique needs, challenges, and stages of this relentless disease. It's a situation that can feel overwhelming, isolating, and emotionally draining. But you're not alone. In this episode, we'll equip you with essential strategies to not just survive, but to thrive while caring for multiple loved ones with dementia.

Here's how to mange the burden of multiple cases of dementia:

Education: Understand each type of dementia they have. This helps tailor your approach to their specific needs and behaviors. Support Network: You cannot do this alone. Seek support groups, respite care, or family and friends to help. Individualized Care: Each person's dementia journey is unique. Focus on their remaining abilities and create personalized activities and routines. Safe Environment: Make the home safe and adapt it as their condition changes. Remove tripping hazards, install grab bars, and provide clear visual cues. Self-Care: Prioritize your own well-being. Ensure you have time for yourself to avoid burnout.

Our Guest:

Sandra R. Kiser is an experienced marketing professional, author and Alzheimer’s Advocate who volunteers with the North and Central Florida Chapter of the Alzheimer’s Association. Sandra has written two publications on Alzheimer’s that are helping to eliminate fear by educating, increasing awareness, and empowering our communities. She has written two books on Alzheimer’s Mysterious Wonderment: When Alzheimer’s Disease Becomes Your Word of the Day; and a children’s book, The Amazing Adventures of the Jolly Heart Squad which was written to educate youth about the disease.

Sandra has 15 years of volunteer experience, and 7 of those have focused on advocacy work with the Alzheimer’s Association. One of her many plans to continue advocacy work is establishing a non-profit to honor her mom and her brother’s legacy. She enjoys reading, writing, listening to music, spending time with family and friends, and watching the sunrise over the ocean.

The (Death) Deck with Transition Doula Carole Silvoy

Wed, 22 Jan 2025 15:20:56 +0000

In this episode of CareLab, hosts Dr. Brandy Archie and Emilia Bourland welcome Carole Silvoy, an end-of-life doula and former ASL interpreter. The conversation explores the importance of communication in healthcare, the role of doulas in supporting families during transitions, and the need for open discussions about death and dying. Carol shares her journey to becoming a doula, the significance of advanced care planning, and the economic impact of caregiving. The episode emphasizes the necessity of self-care for caregivers and the potential for integrating doulas into healthcare systems to improve quality of life and support for families.

Find Caregiver Training at https://www.higherstandardscaregivertraining.com/

Find Care Equipment solutions at https://www.asksamie.com/

Find more from Carole at http://www.carolesilvoy.com/good-heart-companion

Auditing Your Relationships for a Better You

Wed, 22 Jan 2025 15:20:44 +0000

In this episode, we dive into the vital yet often overlooked practice of auditing your relationships. Our connections have a profound impact on our emotions, energy, and personal growth.

It's often said that we are the average of the five people we spend the most time with. If we surround ourselves with individuals who are consistently negative or sad, we may find ourselves feeling emotionally drained or weighed down. On the other hand, being around uplifting, supportive people can inspire us to become the best versions of ourselves.

The purpose of this practice isn’t to judge or evaluate others but to reflect on how these relationships affect us. Ask yourself:

Do I feel energized and supported after spending time with this person? Does this relationship help me grow, or does it hold me back? Positive relationships should encourage growth, happiness, and mutual support. If you notice that certain connections leave you feeling drained or unhappy, consider what changes might be needed. Sometimes, this means setting boundaries, seeking clarity in communication, or reevaluating how much time you invest in certain relationships.

This isn’t about cutting people out of your life—it’s about fostering relationships that align with the person you want to be. Surrounding yourself with those who challenge and inspire you will naturally elevate your mindset and outlook on life.

Remember, relationships shape us. Choose wisely, nurture deeply, and prioritize those that help you grow.

Dual Diagnosis: When Both Parents Have Dementia at the Same Time

Wed, 15 Jan 2025 19:45:57 +0000

We’re excited to share a powerful new episode: "Dual Diagnosis: When Both Parents Have Dementia at the Same Time,” a replay of a live panel discussion held on November 19, 2024.

Host Marianne Sciucco guides us through a powerful conversation with guests Vicki Tapia, Frank Silverstein, and Jean Lee, along with podcast co-host Christy Byrne Yates.

Highlights:

Vicki Tapia recounts her deeply personal experience of navigating her parents' aging and dementia, which included her father’s Parkinson’s Disease and her mother’s Alzheimer’s. She delves into the challenging decisions regarding her mother’s resistance to accepting help, overseeing their care without the help of her only sibling, and her parent’s eventual move to assisted living. She’s the author of Somebody Stole My Iron: A Family Memoir of Dementia.

Filmmaker Frank Silverstein shares the profound narrative of documenting his parents' dementia journey, initially through cell phone recordings, which eventually transformed into a powerful film project, Lousy: Love in the Time of Dementia. He opens up about the emotional challenges, capturing moments of humor amidst the pain, and the ethical considerations involved in their care.

Jean Lee, author of the memoir Alzheimer’s Daughter, discusses the guilt and emotional turmoil of turning her private family journey into a published book. She shares how writing became a transformative healing process, which has also brought hope and understanding to many others facing similar challenges.

Christy Byrne Yates, author of Building a Legacy of Love: Thriving in the Sandwich Generation, provides insightful tips on managing family dynamics and maintaining communication as the primary caregiver. Drawing from her personal experience and professional knowledge, she emphasizes the importance of creating memories and the lasting impact caregiving has on younger generations.

In this episode, you will:

Discover effective strategies for caring for parents with dementia that enhance their quality of life.
Learn how to foster better communication and cooperation among siblings in the challenging role of caregiving for a parent with dementia.
Explore the importance of documenting the dementia journey and learn how to create a meaningful record of your caregiving experience.

Buy the books:

Somebody Stole My Iron

Alzheimer’s Daughter

Building a Legacy of Love: Thriving in the Sandwich Generation

Note: We are an Amazon Associate and may receive a small commission from book sales.

Watch Lousy: Love in the Time of Dementia

About the Podcast

We are the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others.

Thanks for listening.

We are a Whole Care Network Featured Podcast

Proud to be on The Health Podcast Network

Find us on The World Podcast Network and babyboomer.org

Want to be on the podcast? Here’s what you need to know

We’ve got merch! Shop our Store

Forever Caregiving with Kelley Coleman

Wed, 15 Jan 2025 19:38:09 +0000

Kelley Coleman is a California mom to two amazing boys and full-time caregiver for her son with multiple disabilities. She is a feature film development executive turned author and advocate for parent caregivers and individuals with disabilities. Her book draws upon over a decade of experience parenting a child with multiple disabilities

In this episode of the Happy Healthy Caregiver podcast we talk about why Kelley treats caregiving like a job, the advantages of not having a formal diagnosis for her son, how to secure the right insurance case manager, the unexpected gifts from their son’s service dog, and how Kelley mitigates sleep deprivation and strives to make caregiving sustainable.

Show notes with product and resource links:

https://bit.ly/HHCPod196

Receive the podcast in your email here:

http://bit.ly/2G4qvBv

Order a copy of Elizabeth's book Just for You: a Daily Self Care Journal:

http://bit.ly/HHCjournal

For podcast sponsorship opportunities contact Elizabeth:

https://happyhealthycaregiver.com/contact-us/

The Happy Healthy Caregiver podcast is part of the Whole Care Network. Rate and Review the podcast:

https://bit.ly/HHCPODREVIEW

How to Know the Difference Between Healthcare and Health-Caring

Sun, 12 Jan 2025 14:13:12 +0000

Dr. Harvey Chochinov is teaching us how to go beyond providing healthcare to provide health-caring for the people we serve. Patients are people before they need to engage with the healthcare system. That personhood should be supported and validated with compassion and dignity. Dr. Chochinov has also led a large program of research on dignity within the healthcare setting, which includes the development and study of Dignity Therapy. As a Distinguished Professor of Psychiatry at the University of Manitoba and a Senior Scientist at CancerCare Manitoba Research Institute, Dr. Chochinov reminds us all that “patients won’t care what you know until they know that you care.”

Connect with Dr. Chochinov

Website: dignityincare.ca Virtualhospice.ca

Social media: Twitter: @HMChochinov LinkedIn: Harvey Max Chochinov

Purchase your copy of Dignity in Care: The Human Side of Medicine here

Information for Jennifer O’Brien

Website: jenniferaobrien.com

Read more about Jennifer O’Brien here.

Purchase your copy of Care Boss by Jennifer O’Brien here.

Buy your copy of The Hospice Doctor’s Widow: An Art Journal of Caregiving and Grief here.

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Email: helen@theheartofhospice.com

Boundaries in Caregiving with Loren Gelberg-Goff

Sun, 12 Jan 2025 14:13:04 +0000

Boundaries. We know they are important in everyday life and even more crucial in caregiving. But how do we establish them?

My guest today is Loren Gelberg-Goff, psychotherapist, author and speaker, who has become best known for creating the powerful, life-changing program for caregivers: “Take Back Your Life”.

Loren and I explore the crucial topic of boundaries in caregiving. In this conversation we discuss how to create and maintain boundaries, how to feel good about yourself while practicing them, how to deal with others when you find your boundaries and much more.

TRANSCRIPT OF EPISODE

Daughterhood

LorenGelbergGoff.com

Supporting Caregivers Through Uncertainty: A Clinical Psychologist's Journey

Sun, 12 Jan 2025 14:12:57 +0000

Allison Applebaum, PhD, is a clinical psychologist with 15 years of experience in psycho-oncology and a pioneer in caregiver support services. She discovered the critical role family caregivers play in healthcare while during her work with terminally ill cancer patients, where she witnessed the immense impact of caregiving on families.

Struck by the lack of targeted support services for caregivers, Allison founded the Caregivers Clinic at Memorial Sloan Kettering Cancer Center in 2011, the first targeted psychosocial care program for family caregivers in a cancer center, to address this crucial need.

Soon after, her understanding of the challenges faced by caregivers became deeply personal when she took on the role of caregiver for her father, world-renowned musician Stanley Applebaum, who had Lewy Body Disease.

This dual experience, both professionally and personally, sparked her motivation to advocate for improved support and validation for caregivers, leading her to author "Stand by Me,” which aims to make caregiver support accessible to the millions of caregivers across the country. Her expertise and passion for this critical issue make her a valuable resource for anyone navigating the complexities of caregiving.

In this episode, you will:

Uncover the psychological effects of caregiving and understand how to address and manage them for overall well-being. Discover effective strategies for supporting caregivers in healthcare settings to enhance the quality of care and support provided. Learn the importance of effective communication in providing quality care for loved ones. The resources mentioned in this episode are:

The book, Stand by Me, by Allison Applebaum can be found on Amazon, the Simon and Schuster website, and AlzAuthors.com. Note: We are an Amazon Associate and may receive a small commission from book sales. To learn more about the book and keep up to date with any events, visit Allison Applebaum's website at allisonapplebaum.com. Listen to audio of all the songs referenced in the book on Allison’s website. Read Allison's blog post to learn more about her story. Access Allison's Tool Kit “Developing Caregiver Clinical Services: A Toolkit for Cancer Centers and Staff” for the American Cancer Society: https://www.cancer.org/content/dam/cancer-org/cancer-control/en/toolkits/caregiver-clinic-toolkit.pdf About the Podcast

AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others.

Thanks for listening.

We are a Whole Care Network Featured Podcast

Proud to be on The Health Podcast Network

Find us on The World Podcast Network and babyboomer.org

Want to be on the podcast? Here’s what you need to know

We’ve got merch! Shop our Store

Triumph Over Grief Through Community Love

Sun, 12 Jan 2025 14:12:47 +0000

"You can bring back the color and the light." - Kelci Jager

Kelci Jagger shares her powerful and emotional story of overcoming tragic loss and grief through the support of her community and finding power in living in the light. Her incredible journey chronicles a series of tragic events including a dangerous accident with her two sons and her husband’s heart-breaking leukemia diagnosis. Losing a loved one can be one of the most painful experiences we go through in life, and it's often hard to imagine how we can move forward without them.

If you're struggling with grief or loss, Kelci’s story is an inspiration in perseverance and love.

*******

About Kelci Jager:

Kelci Jager is a Certified Life Coach, Grief Coach, Registered Nurse, and Author of the book “A Million Miracles and the One That Never Came” and found herself navigating the challenging terrain of grief when she lost her 40-year-old husband to leukemia. Left to pick up the pieces of her shattered life as a solo parent to their four sons, Kelci faced the fear of her children losing her too. However, her determination to RISE and thrive became her driving force. With a blend of professional expertise and a deeply personal journey as a widow and solo parent, Kelci possesses a strong foundation and a unique perspective. She is passionately committed to providing support and guiding others on their grief journey.

Links:

Website: RISEwithgrief.com

Social Media:

Facebook: www.facebook.com/kelci.calljager

Instagram: www.instagram.com/kelci.jager/

LinkedIn: www.linkedin.com/in/kelci-jager-6a3788a0/

Buy The Book “Million Miracles That Never Came”

************

Support the show

Confessions

Support the show

Confessions of a Reluctant Caregiver

Sisterhood of Care, LLC

Website: www.confessionsofareluctantcaregiver.com

Like us on Facebook!

Tweet with us on Twitter!

Watch us on Youtube!

Pin us on Pinterest!

Link us on LinkedIn!

Tune in on Whole Care Network

Caregiver Conversations - Preparing for the Unknown

Sun, 12 Jan 2025 14:12:34 +0000

Caregiver Conversations -Preparing for the Unknown. As we age, open communication becomes crucial for maintaining a good quality of life. End-of-life conversations, while difficult, empower us to make informed decisions about our care, ensuring our wishes are honored. Discussing care preferences, whether giving or receiving, fosters understanding and helps avoid future conflicts or misunderstandings.

These conversations allow us to:

Express our desires: Regarding medical treatments, living arrangements, and end-of-life care. Plan for the future: Making legal and financial arrangements, ensuring a smoother transition for loved ones. Strengthen relationships: Deepening connections with family and friends by sharing our thoughts and concerns. Find peace of mind: Knowing our affairs are in order and our wishes are clear.

Aging brings inevitable changes. Proactive communication ensures we navigate these changes with dignity, autonomy, and the support of those we love.

Our Guest: Chaplain John Wenderlein .Currently works as a Hospice Chaplain in Central Fl. Married to Melinda. I wrote two books working on my third. Remember Me (End of life stories as seen though the eyes of a Hospice Chaplain, Delayed Honor. His third book has not yet been published. It will be his experiences with Covid during the height of the pandemic.

Supporting Your Parent Through Their Caregiving Journey: Six Essential Tips / Alzheimer’s and Other Dementias

Sun, 12 Jan 2025 14:12:23 +0000

When a parent is diagnosed with Alzheimer’s or another type of dementia and the other parent begins their caregiving journey, the dynamic between the caregiving parent and child shifts dramatically. Through our experiences and conversations with families navigating this transition, we've developed six essential tips to help you support your parent as they take on the role of primary caregiver.

Connect with us and share your tips:

Takeaways

Tip 1: Insert Yourself into the Journey

The first step is making your presence and support known while respecting your parent’s role as primary caregiver.

Key points:

Increase visit frequency or phone calls Position yourself to observe daily dynamics Avoid judgment of decisions Listen more than advise Show support without taking over Tip 2: Monitor Caregiver Health

Ensuring your caregiving parent maintains their own health is crucial for sustainable care.

Key points:

Ask specific questions that can’t be answered with “I’m fine” Monitor medical appointments Discuss challenges they’re facing Watch for signs of stress or exhaustion Encourage preventive health care Tip 3: Provide Emotional Support

Help your parent maintain connections and avoid isolation while caregiving.

Key points:

Listen actively to what’s said and unsaid Validate feelings before offering solutions Maintain normal conversations beyond caregiving Encourage outside activities and interests Help research support resources Tip 4: Share the Load

Even from a distance, there are many ways to help manage caregiving responsibilities.

Key points:

Handle digital tasks remotely Coordinate with local friends and family Create support networks Help with scheduling and planning Tip 5: Participate in Care Details

Get involved in both practical and legal aspects of care management.

Key points:

Obtain necessary legal documents early Secure medical power of attorney Address privacy laws and documentation Arrange financial access if needed Support decision-making processes Tip 6: Support Through Grief

Grief occurs throughout the journey, not just at its end.

Key points:

Acknowledge “drip grief” throughout the journey Help maintain connections during caregiving Support through the final transition Assist with post-care legal matters Be sure to process your own grief Special Considerations

When creating support systems:

Develop emergency plans early Create shared care plans Document important information Keep contact lists updated Maintain flexibility in arrangements About Our Guest Expert

This episode featured Andrew Phipps from Empathy Unbound, who shared his personal experience supporting his father as he cared for Andrew’s mother with dementia. Andrew created Empathy Unbound to promote the idea that empathy is one of our greatest superpowers — one that we often don’t recognize or use enough.

As Andrew explains, “The ability to take on the experience or position of another to help understand them is invaluable. Putting ourselves in someone else’s shoes helps us understand their situation in a way we couldn’t otherwise.” You can find the Empathy Unbound podcast wherever you get your podcasts.

Learning About Death, Dying, and How to Do It Better

Sun, 12 Jan 2025 14:12:04 +0000

Death Doula Darnell Lamont Walker is listening to the dying and speaking up to advocate for their needs. As a Death Doula who is also male and black, Darnell works to facilitate conversations about death in the black community. He’s a unique blend of skills and talents - an Emmy-nominated children’s writer, a documentary filmmaker, and a death doula.

Darnell is a listener, a companion to people with serious illness. He’s working to create change around our perceptions of grief, death discussions, and how we approach dying in the U.S.

Connect with Darnell Lamont Walker

Website: Darnell Walker

Social media: IG LinkedIn

Watch Darnell’s talk at EndWell 2023 here

Information for sponsor Jennifer O’Brien:

Website: jenniferaobrien.com

Read more about Jennifer O’Brien here.

Purchase your copy of Care Boss by Jennifer O’Brien here.

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Email: helen@theheartofhospice.com

Dementia Mama Drama w/ Vincent Zappacosta & Douglass Christensen

Sun, 12 Jan 2025 14:11:44 +0000

In this inspiring episode of CareLab, hosts Emilia Bourland and Dr. Brandy Archie sit down with caregivers Vincent Zappacosta and Douglas Christensen to explore the heartfelt journey of dementia caregiving.

Chronic Pain: The Silent Epidemic

Sun, 12 Jan 2025 14:11:30 +0000

This episode is focused on a topic that does NOT get enough attention: chronic pain. A 2022 study published in the journal Pain found that 50.2 million adults in the U.S. (that’s over 20% of us) reported pain on most days or every day… that makes it one of the most common chronic health conditions in America. Let’s rip the band-aid off! I’m joined by one of my favorite advocates for this important discussion… Barby Ingle from the International Pain Foundation.

Resolutions and realizing the importance of our teeth with Dr. Joy Poskozim

Sun, 12 Jan 2025 14:11:11 +0000

Can the health of your teeth affect the rest of your body? How does the inflammation in your gums impact other body systems? And why the heck is oral care separated from medical care??? Learn all of this and so much more with guest Dr. Joy Poskozim, DDS FSCD CDP, on this episode of CareLab! #CareLab #CareLabIt

Find Care Equipment solutions at https://www.asksamie.com/

Find Caregiver Training at https://www.higherstandardscaregivertraining.com/

Find more from Dr. Joy at https://joyposkozimdds.com/

@CareLabPodcast @wholecarenetwork @Ask-SAMIE @higherstandardscaregiver @higherstandardscaregivertraining

Kicking Off 2025 with Clarity and Purpose

Sun, 12 Jan 2025 14:10:56 +0000

Welcome to the very first podcast episode of 2025! In this episode, Isabel dives into the art of setting meaningful goals to kickstart your year with intention and focus. She breaks down a powerful, straightforward process to help you clarify and achieve your aspirations:

Define Your Long-Term Vision Start by asking yourself, "What do I truly want to accomplish in the long run?" Isabel emphasizes the importance of envisioning where you want to be and what success looks like for you, both personally and professionally. Understand Your “Why” Once you've identified your goal, the next step is to reflect on why this goal matters to you. Connecting with your deeper motivations provides the fuel and clarity needed to stay committed, even when challenges arise. Brainstorm the Path Forward With your goal and motivation in mind, create a list of potential steps or strategies that could help you get there. Don’t hold back—this is the time for creativity and exploration. Take Action From your brainstorming session, choose the most actionable, impactful steps and turn them into a plan. Start small if needed, but make sure to move forward with confidence and purpose. This episode is all about laying a strong foundation for the year ahead by aligning your aspirations with intentional actions. Join Isabel as she guides you through this empowering process to turn your dreams into achievable milestones.

Tune in now and start 2025 with a clear vision and renewed energy!

Death Doula Kacie Brings a New Perspective to Death Conversations

Tue, 31 Dec 2024 20:27:00 +0000

As a nurse and End of Life Doula, Kacie Gikonyo cares for the dying while working to make a lasting impact on end-of-life support. Kacie realized during the pandemic that she was called to work with the dying. She trained with INELDA (the International End of Life Doula Association) to become an End of Life Doula. Her special area of doula practice is with younger persons with a terminal illness, focusing on end of life conversations and legacy projects.

Kacie believes in fostering collaboration over competition, nurturing a community-driven model through the Death Doula Collective. The Collective is a community of Death Doulas from across the country who want to support, empower and guide each other. Kacie is also the founder of the Death Doula School, whose mission is to cultivate successful Death Doulas who are equipped with the knowledge, skills, and confidence to make a meaningful difference in the lives of those they serve.

Connect with Death Doula Kacie Gikonyo:

Website: www.deathdoulakacie.com

Social media: YouTube Facebook Instagram Tik Tok LinkedIn Pinterest

Email: Kacie@deathdoulakacie

Interested in purchasing a GrandPad to stay connected with a senior loved one?

Get more information at https://www.grandpad.net/thoh.

GrandPad website: https://www.grandpad.net/

Social Media for GrandPad

https://facebook.com/grandpad

https://instagram.com/grandpad_social/

https://www.linkedin.com/company/grandpad

https://www.youtube.com/channel/UCuFAJCb7_tTneM_ikABq08Q

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Email: helen@theheartofhospice.com

Finding Meaning: The Sixth Stage of Grief with David Kessler

Tue, 31 Dec 2024 20:26:53 +0000

David Kessler is one of the world’s foremost experts on grief and loss. and his insights are invaluable. He is the author of six books, including his latest bestseller, Finding Meaning: The Sixth Stage of Grief. David also coauthored On Grief and Grieving with Elisabeth Kubler-Ross which updated her five stages of grief to include the grieving process.

David’s journey into grief and trauma work began after witnessing a mass shooting as a child while his mother was dying. He has since taught professionals in various fields, including healthcare and law enforcement, about the end of life, trauma and grief.

In this compelling discussion, Rosanne and David delve into the unique struggles caregivers face in their grief journey. They address the importance of allowing ourselves to process these emotions, the impact our personal grief narratives have on our lives, and the vital steps towards rediscovering our true selves amid loss. Don’t miss this opportunity to learn how to navigate grief and emerge stronger.

TRANSCRIPT

David Kessler - Grief.com

DAUGHTERHOOD

How to Have Fewer Regrets at End of Life

Tue, 31 Dec 2024 20:26:44 +0000

As Editor-in-Chief of The Bucket, David Abend takes on the ultimate marketing challenge: rebranding death by showing how embracing mortality can lead to a more fulfilling life. The Bucket is an online magazine that helps people make choices to reduce deathbed regrets (DBRs). With a background in creative direction and copywriting, co-founder and Editor-in-Chief David Abend has spent decades helping people see things differently. The Bucket offers a mix of podcasts, interviews, and articles that go beyond inspiration, providing actionable “how-to’s” for making meaningful life changes. As an extension of The Bucket, David is also a Certified Life Coach where he helps guide clients to make intentional, purpose-driven decisions that won’t leave them wondering, “What If?”.

Connect with The Bucket and The Bucket Life Coaching with David Abend:

Bucket url is: www.Thebucket.com

Facebook: https://www.facebook.com/thebucketonline

Instagram: #Thebucketonline

The Bucket Life Coaching: www.thebucketlifecoaching.com

Interested in purchasing a GrandPad to stay connected with a senior loved one?

Get more information at https://www.grandpad.net/thoh.

GrandPad website: https://www.grandpad.net/

Social Media for GrandPad

https://facebook.com/grandpad

https://instagram.com/grandpad_social/

https://www.linkedin.com/company/grandpad

https://www.youtube.com/channel/UCuFAJCb7_tTneM_ikABq08Q

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Closing the Year with Gratitude

Tue, 31 Dec 2024 20:26:35 +0000

Our final podcast of the year is a guided reflection to celebrate and appreciate the moments that brought us joy and growth. It’s an opportunity to relive those memories and savor them once more.

This reflection also invites you to take a moment of gratitude for the people who crossed your path this year and made a positive impact in your life.

We warmly invite you to listen, reflect, and embrace this journey of gratitude.

End of Year Traditions and Discharge Planning with Dr. Marsha Neville, Ph.D.

Tue, 31 Dec 2024 20:26:20 +0000

Ever been in a situation where someone came home from the hospital or rehab.... shall we say, less than prepared? This may be just the episode for you. Dr. Marsha Neville, Ph.D., occupational therapist, and creator of the Discharge Planning Tool talks through the essentials of planning for a safe discharge. #carelab #carelabit

Watch this episode at https://youtu.be/23LB9vP8Oig

Find Caregiver Training at https://www.higherstandardscaregivertraining.com/

Find Care Equipment solutions at https://www.asksamie.com/

@CareLabPodcast @wholecarenetwork @Ask-SAMIE @higherstandardscaregivertraining @higherstandardscaregiver

Holiday Travel & Taking Your Meds w/ Leeanna Gantt

Tue, 31 Dec 2024 20:26:02 +0000

Does worrying about your loved one's meds stress you out? In this holiday edition of CareLab, our guest Leeanna Gantt, Founder of TookTake, shares the personal story behind her incredibly simple, effective solution for knowing whether or not someone took their medications. Happy holidays everyone! #carelab #CareLab #carelabit

Watch this episode at https://youtu.be/rHL_Sb_BrJk

Find Care Equipment solutions athttps://www.asksamie.com/

Find Caregiver Training at https://www.higherstandardscaregivertraining.com/

Find more from Leeanna at tooktake.com @CareLabPodcast @wholecarenetwork

@Ask-SAMIE @higherstandardscaregiver

Letting Go: Your Worth Goes Beyond Achievements

Tue, 31 Dec 2024 20:25:51 +0000

Sometimes, we set goals for ourselves and feel worried or frustrated when we don’t achieve them. In these moments, it’s important to “let it go” and remind ourselves that our worth as human beings isn’t tied to the goals we achieve.

Goals are valuable tools to guide and motivate us, but they don’t define who we are. Life is full of unpredictable twists and turns, and sometimes not meeting a goal can lead us to unexpected growth or opportunities. Be kind to yourself, celebrate the effort you put in, and remember that your inherent value is much greater than any checklist or milestone.

Sisterly Shove: Navigating Family Conflicts in Dementia Care with Malia Kline

Tue, 31 Dec 2024 20:25:28 +0000

Family caregiving is a profound and complex journey, particularly when faced with dementia or terminal illnesses. In this podcast episode, a replay of a Books & Chit Chat discussion, we delve into the experiences of Malia Kline, co-author of "Sisterly Shove." She shares her heartfelt story of caring for her aging parents and the intricate dynamics encountered with her physician sister and co-author Diane Stinson.

Malia’s caregiving journey begins with her family grappling with the twin burdens of her father’s dementia and her mother’s pancreatic cancer. Malia and Diane had differing views on their care, which involved moving each parent cross-country from one sister’s care to the other’s. Diane, a pathologist, believed different medical decisions could extend their lives. Malia wished them relief from suffering even if it resulted in death. However, these differing perspectives did not create a chasm between them; instead, they brought the sisters closer in their shared mission. Writing a book with alternating chapters from each perspective helped in this process.

For Malia, writing "Sisterly Shove" with Diane was not just a story-telling endeavor but a therapeutic journey. The collaborative process allowed them to alternate writing and editing chapters, facilitating understanding and maintaining their relationship. Their book provides an intimate perspective on caregiving challenges, sibling dynamics, and their fight against the medical establishment.

Through excerpts read during the podcast, we gain insights into how the sisters' different approaches reflected their childhood personalities and shaped their caregiving strategies. Malia emphasizes the importance of journaling and writing as tools for preserving memories and coping with the complex emotions of caregiving.

In this episode, you will:

Understand the impact of dementia on the entire family dynamic, not just the individual.
Learn how to navigate complex sibling dynamics in elder care to foster a more cohesive and collaborative caregiving approach.
Discover effective coping strategies when caring for a loved one with dementia, creating a more harmonious caregiving environment.
See how writing is a powerful tool for processing and managing the emotional complexities of caregiving.

After the Podcast

Purchase Sisterly Shove

Learn more about Malia at AlzAuthors.com

and “Dementia with Difficult People”

Learn more about the Moderators

Marianne Sciucco

Christy Byrne Yates

Learn more about Aging & Amazing

About the Podcast

AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others.

Thanks for listening.

We are a Whole Care Network Featured Podcast

Proud to be on The Health Podcast Network

Find us on The World Podcast Network and babyboomer.org

Want to be on the podcast? Here’s what you need to know

We’ve got merch! Shop our Store

Introducing: The Situation Room

Tue, 31 Dec 2024 20:24:48 +0000

Have a care situation you’re not sure how to handle? #CareLab proudly presents… The Situation Room. Emilia and Brandy take turns taking on surprise care scenarios…. then help figure out what to do and who to call for help.

Find Caregiver Training at https://www.higherstandardscaregivertraining.com/

Find Care Equipment solutions at https://www.asksamie.com/

@CareLabPodcast @wholecarenetwork @AskSAMIE @higherstandardscaregivertraining @higherstandardscaregiver

Understanding Grief: Insights from Executive Coach Alyssa

Tue, 31 Dec 2024 20:24:21 +0000

In this fascinating interview, Alyssa, an experienced executive coach, delves into how our bodies often signal what’s happening beneath the surface. She explains that grief, being an internal experience, is something we may deny or ignore. Grief doesn’t always stem from negative events—it can arise from positive changes too, or simply from losing something that once was.

Ignoring grief doesn’t mean it’s resolved. Alyssa emphasizes the importance of recognizing these feelings and processing them. She also highlights the value of having a supportive community where you can share your emotions openly, helping you navigate through life’s transitions with greater ease.

The Information You Need to Know About Funerals From an Expert

Fri, 06 Dec 2024 18:33:42 +0000

Licensed funeral director and End of Life Doula Christa Ovenell is busting myths about funerals, and sharing practical tips on how to plan a funeral service that reflects your values and needs. As a community-based Death Educator, Christa is the founder of Death’s Apprentice Education & Planning Inc., a company that specializes in holistic advance care planning for individuals and forward-thinking companies.

Christa leads with her heart when it comes to guiding clients through death and funeral planning. She’s also a great resource for funeral planning, making arrangements after a death to create a meaningful service, and having bold conversations about death and dying to help all of us get more comfortable with our mortality.

Connect with EOL Doula and Funeral Director Christa Ovenell

Website: deathsapprentice.ca

Email: hello@deathsapprentice.ca

Instagram: deathsapprentice.ca

Interested in purchasing a GrandPad to stay connected with a senior loved one?

Get more information at https://www.grandpad.net/thoh.

GrandPad website: https://www.grandpad.net/

Social Media for GrandPad

https://facebook.com/grandpad

https://instagram.com/grandpad_social/

https://www.linkedin.com/company/grandpad

https://www.youtube.com/channel/UCuFAJCb7_tTneM_ikABq08Q

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Caring for My American Dad in Peru: An Alzheimer's Caregiving Odyssey

Fri, 06 Dec 2024 18:33:33 +0000

Barbara Drake-Vera’s caregiving journey in Peru, caring for her American father with Alzheimer's, is a unique and eye-opening story that sheds light on cultural differences in elder care. While Barbara lived in Lima, Peru with her Peruvian husband, her widowed father was diagnosed with Alzheimer’s. He lived in a four-bedroom home he previously shared with his late wife in Florida, USA, and it was soon determined he could not live alone at home.

As the only child, Barbara felt compelled to come to his assistance. She knew that elder care was manageable and affordable in Lima, where multigenerational families living together was the norm. So, she and her husband made the unconventional decision to move her dad to Peru to be cared for in their home. This was a radical change for him, a proud and independent American man, World War II veteran, and former postal worker in his eighties. Together, they navigated the cultural nuances of caregiving within a Latin community that, in spite of their challenges, led to success.

Barbara, the author of Melted Away: A Memoir of Climate Change and Caregiving in Peru,had had a difficult relationship with her father for many years, but this caregiving journey helped heal old wounds.

Quotes

“Caring for someone with dementia can be a real gift, but you don't think of it at the time because you're just trying to get through each day.” - Barbara Drake-Vera

“I decided to be compassionate. It wasn't forgiveness, but I chose not to let the past be my present.” - Barbara Drake-Vera

“My father, who was a self-absorbed, narcissistic jerk, was never such a nice person as when he was finally treated for Alzheimer's and cared for in Peru.” - Barbara Drake-Vera

In this episode, you will:

Explore the impact of cultural differences in elder care and learn how diverse perspectives can enrich the caregiving experience for individuals with Alzheimer's. Discover the benefits of multigenerational living for Alzheimer's caregiving and how it can positively influence the well-being of both the individual with Alzheimer's and the caregivers. Learn effective strategies for transitioning elders with Alzheimer's to new environments and understand the importance of creating a supportive and familiar space for them. After the podcast

Purchase Melted Away: A Memoir of Climate Change and Caregiving in Peru

Note: We are an Amazon Associate and may receive a small commission from book sales.

Learn more about Barbara Drake-Vera

About the Podcast

AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others.

Thanks for listening.

We are a Whole Care Network Featured Podcast

Proud to be on The Health Podcast Network

Find us on The World Podcast Network and babyboomer.org

Want to be on the podcast? Here’s what you need to know

We’ve got merch! Shop our Store

BETSY WURZEL: Empowering Caregivers Through Passionate Advocacy

Fri, 06 Dec 2024 18:33:19 +0000

Betsy Wurzel started her career as a Talk Show Host at Passionate World Talk Radio and the name of her show was Chatting with Betsy. Betsy is also is an unwavering advocate for Alzheimer's caregivers who shares her own heartfelt experiences caring for her husband, Matt Sloan. Her stories are candid and passionate and truly exemplify the transformative power of love, humor, and community in the difficult landscape of dementia care.

Shifting gears, we confront the murky waters of hospice care—a field riddled with misconceptions and often misunderstood protocols. Misunderstandings about hospice care and the rights of patients can lead to inadequate pain management, affecting the dignity and well-being of those with dementia. Through our unvarnished discussion, we unearth Betsy's personal story of advocacy, emphasizing the critical role caregivers play in ensuring comfort and respect for their loved ones. This chapter serves as a poignant reminder that caregivers must be steadfast in their rights to demand the best care possible.

Finally, we tackle the systemic challenges plaguing senior healthcare, from understaffing and inadequate training to the pitfalls of profit-driven care models. Betsy guides us through a sobering exploration of these issues, pointing out how they result in inconsistent care for vulnerable populations, like those with Alzheimer's. With a call to action for more compassionate and consistent caregiving, she stresses the importance of prioritizing people over profits, advocating for a system that values quality care above all. Through this inspiring episode, we aim to empower caregivers to fight for the dignity and quality care their loved ones deserve.

When "I Do" Means Caring Through Illness: A Story of Devotion

Fri, 06 Dec 2024 18:33:08 +0000

Marty Schreiber has dedicated his life to advocating for Alzheimer's patients and their caregivers. As the former governor of Wisconsin and author of the acclaimed memoir "My Two Elaine's", Marty draws from his own deeply personal experience as a caregiver for his wife of 61 years, Elaine. For eight years, Marty cared for Elaine in their home as her Alzheimer's progressed, but he now admits he was unprepared for the physical and emotional toll it would take. Marty candidly shares his struggles, from trying to keep Elaine in his world to nearly working himself to exhaustion. He also opens up about difficult decisions like placing Elaine in assisted living and the guilt he still feels over not supporting his children through the process. However, Marty channels his regrets into wisdom, urging caregivers to accept help, join their loved one's reality, and focus on living fully themselves to best support their person.

Through humor, heartache, and hard-won insight, he offers invaluable insights aimed at aiding fellow caregivers to embrace support, understand the dual realities of their loved ones, and nurture their own well-being for more effective care.

About Marty:

Former Wisconsin Gov. Martin J. Schreiber is an award-winning crusader for Alzheimer’s caregivers and persons with dementia. Reaching audiences nationwide at live events and through various forms of media, Marty uses humor and compassion as he shares lessons from his ongoing, decade-plus journey as a caregiver.

His speaking tour takes him to conferences, civic organizations, senior communities, libraries, and more around the country. He has given more than 300 presentations since launching his awareness campaign in late 2016. Whether in Texas, Idaho, New York, Missouri, Florida, Ohio, or closer to home, caregivers tell Marty that his message encourages them and hope that they can manage their challenging situation.

Marty’s book, My Two Elaines: Learning, Coping, and Surviving as an Alzheimer’s Caregiver, is winning acclaim from caregivers across the country. It was rated as the No. 11 “Best Alzheimer’s Book of All Time” by bookauthority.org and was named to Caring.com’s list of “Best Caregiving Books” of both 2017 and 2018.

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Holiday Survival Tips for Caregivers!

Fri, 06 Dec 2024 18:32:53 +0000

Holiday survival tips for caregivers!. The holidays are a time for joy, but for families caring for someone with Alzheimer's or dementia, they can be a source of stress and anxiety. Don't let the pressures of the season overwhelm you. In this episode, we offer essential tips to help you navigate the holidays with grace and resilience.

Discover practical strategies for creating a calm environment, managing challenging behaviors, and involving your loved one in meaningful activities. We'll also share advice on setting realistic expectations, seeking support, and prioritizing self-care.

Remember, you're not alone. By implementing these holiday survival tips and tuning into the entire episode, you can create a more peaceful and enjoyable holiday season for everyone involved.

We'll cover topics like:

Creating a soothing holiday atmosphere Managing challenging behaviors Involving your loved one in meaningful activities Setting realistic expectations Seeking support from family and friends Self-care tips for caregivers

Creating Engaging Activities: Three Essential Tips / Alzheimer’s and Other Dementias

Fri, 06 Dec 2024 17:56:14 +0000

As caregivers for our loved ones with Alzheimer’s and other types of dementia, we often struggle with adapting activities to their changing abilities. Through our experiences, and what we’ve learned from others on their caregiving journeys, Nancy Treaster and I developed three important tips to help you create meaningful engagement that honors who our care receivers are today.

Connect with us and share your tips:

Additional Resources Mentioned

Other The Caregiver’s Journey podcast mentioned

Home Safety here

These resources contain affiliate links so we may receive a small commission for purchases made at no additional cost to you.

Large plastic rings child's toy that center screws into base here Adult coloring book here Dementia friendly puzzle here Lavender lotion here Bead maze here Fidget blanket here Photo gifts Shutterfly here Memory Cafe example here

Takeaways

From the moment of diagnosis, we need to shift our focus from what our care receivers used to do to what brings them joy now.

Tip 1: Adjust Our Expectations

Our care receivers’ engagement and abilities change throughout their journey — even throughout each day.

Key points:

Let go of ‘before’ comparisons Let go of outcomes Watch for signs of enjoyment or frustration Pay attention to new interests Adapt activities to current abilities Accept different ways of engaging

Tip 2: Prioritize Their Safety

As we introduce or adapt activities, safety must be a primary concern, considering both cognitive and physical abilities.

Key points:

Consider vision changes and depth perception challenges Adapt activities to safely maintain independence Provide appropriate supervision and get creative in places to find it Make creative adjustments to familiar activities Create support networks for safety

Tip 3: Create Engaging Activities

Create activities to reflect their personal history, career, hobbies and interests, while engaging their senses. Whenever possible, engage multiple senses for a deeper connection and engagement.

Key points:

Engage their senses: • Touch (e.g.: fidget blankets, textured items) • Sound (e.g.: familiar music, calming sounds) • Smell (e.g.: familiar scents, cooking aromas) • Sight (e.g.: colorful objects, family photos) • Movement (e.g.: seated dancing, simple exercises) Create social connections through: • Small group activities • Religious or spiritual practices • Memory cafes • Senior center programs • Family gatherings

When planning activities:

Observe body language for signs of engagement or distress Have backup calming activities ready if they get agitated Remember that watching can be a form of participation Consider “drip grief” (see bottom of post for definition) — both yours and theirs Be flexible and creative in your approach Accept help from others who want to support you

Read Full Blog here

Navigating Tough Conversations with Compassion

Fri, 06 Dec 2024 17:53:05 +0000

Gradual changes in children and the elderly often go unnoticed, but when a noticeable shift occurs in an elderly loved one, it can lead to the need for challenging conversations. These moments can be delicate, whether you're the one initiating the conversation or on the receiving end of it.

If you're the one starting the conversation, take time to understand the perspective of those you're speaking with. People generally mean well and want what’s best for their loved one, even if their words or actions seem hurtful. Avoid taking things personally, and focus on the shared goal of caring for your loved one.

If you're on the receiving end, pause before reacting. Listen carefully, even if the feedback feels difficult to hear, and let go of any unnecessary emotional baggage. If the message isn’t clear, ask thoughtful questions for clarification. If you find yourself becoming upset, step away to cool down and revisit the topic later with a calm and open mind.

By approaching these conversations with empathy, patience, and understanding, you can turn them into opportunities for deeper connection and better care for your loved ones.

The Remarkable Caregiving Story of Stanley & Allison Applebaum

Sat, 30 Nov 2024 19:50:28 +0000

Allison Applebaum stood by her dad Stanley as his caregiving partner, respecting his wishes and maintaining his quality of life through the very end of his life. Allison was previously the Founding Director of the Caregivers Clinic at Memorial Sloan Kettering Cancer Center, the first program of its kind in the United States to provide comprehensive psychosocial care to family members and friends of patients who are in the caregiving role.

Her father Stanley, a talented and prolific composer and musician, worked with many great artists for the 50’s and 60’s, including Neil Sedaka, Ben E. King, and Connie Francis.

Allison took a lead role as her dad’s caregiver after the death of her mother, helping him deal with Lewy Body Disease (Lewy Body Dementia). After her mother died, Allison and Stan went forward, dealing with intense and traumatic grief.

Allison’s caregiving story is a beautiful tribute to her dad, and there are many caregivers across the U.S. doing the same job for someone they care about. LBD carries an unusual set of caregiving challenges. Stan defined quality of life as the ability to be creative, grow, and continue to compose his music. As a caregiver, Allison respected his wishes and ensured he lived fully until his death at 96.

Some highlights from Allison’s unique caregiving story include:

Her dad retained his creativity and this contributed greatly to his quality of life Stan never had a DNR (Do Not Rescucitate) document, and Allison respected that wish through his death Intermittent hallucinations were part of his disease, a great source of pain for both Stan and his daughter. Allison considered them partners in caregiving, and worked to build a caregiving village customized to her dad’s needs. Connect with Dr. Allison Applebaum:

Website: allisonapplebaum.com

Book: Stand By Me: A Guide to Navigating Modern, Meaningful Caregiving

Socials: Twitter Instagram

Interested in purchasing a GrandPad to stay connected with a senior loved one?

Get more information at https://www.grandpad.net/thoh.

GrandPad website: https://www.grandpad.net/

Social Media for GrandPad

https://facebook.com/grandpad

https://instagram.com/grandpad_social/

https://www.linkedin.com/company/grandpad

https://www.youtube.com/channel/UCuFAJCb7_tTneM_ikABq08Q

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Helping Hands for Caregivers with Paige Wilson

Sat, 30 Nov 2024 19:45:24 +0000

After struggling with the demands of caring for her aging mother, Paige Wilson made a bold move, leaving her corporate career and becoming an entrepreneur with a big idea to help family caregivers.

In this episode of the Happy Healthy Caregiver podcast, we learn about her disruptive care solution that utilizes technology to harness the strength of community. We also discuss normalizing asking for help, the longevity economy, downsizing possessions, and the self-care comfort of a McDonald’s diet coke.

Show notes with product and resource links:

https://bit.ly/HHCPod195

Receive the podcast in your email here:

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Order a copy of Elizabeth's book Just for You: a Daily Self Care Journal:

http://bit.ly/HHCjournal

For podcast sponsorship opportunities contact Elizabeth:

https://happyhealthycaregiver.com/contact-us/

The Happy Healthy Caregiver podcast is part of the Whole Care Network. Rate and Review the podcast:

https://bit.ly/HHCPODREVIEW

Caregiver Creates Legacy of Love After Loss

Sat, 30 Nov 2024 19:40:32 +0000

Susan Combs will tell you she had a great dad. Her caregiving experience at the end of his life inspired her to give back to the veteran community. Susan’s dad Major General Roger E. Combs was a huge influence on her life. Roger battled with throat cancer related to Agent Orange for ten years, eventually dealing with a feeding tube toward the end of his life. A simple act - his request to eat pancakes - launched a non-profit organization that supports military veterans.

Susan is the president of Combs and Company, based in New York City. Her movement Pancakes for Roger occurs every February. For every pancake-loving picture posted on social media post using the hashtag #PancakesForRoger, Combs & Company will make a donation to the University of Missouri School of Law Veterans Clinic which helps veterans and their families navigate the VA claims process and secure disability benefits when they are faced with obstacles along the way.

Here’s some advice Susan gives to other end of life caregivers:

Do one thing every day for yourself Bring in your “crew”, those friends who can support you Have the advance care plan conversations, even though it’s difficult Connect with Susan Combs and Pancakes for Roger:

Website: pancakesforroger.org

Book: Pancakes for Roger

Social media: Instagram Facebook Twitter (X) YouTube

Honor your veteran on their Wall of Honor:

Interested in purchasing a GrandPad to stay connected with a senior loved one?

Get more information at https://www.grandpad.net/thoh.

GrandPad website: https://www.grandpad.net/

Social Media for GrandPad

https://facebook.com/grandpad

https://instagram.com/grandpad_social/

https://www.linkedin.com/company/grandpad

https://www.youtube.com/channel/UCuFAJCb7_tTneM_ikABq08Q

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Learning How to Say the Last Goodbye with Barbara Karnes

Sat, 30 Nov 2024 19:40:30 +0000

After a 40 year hospice career, Barbara Karnes knows a thing or two about end of life care. Today’s special episode is part 3 of our 4 part series in honor of National Family Caregivers Month and National Hospice and Palliative Care Month. Barbara calls her introduction to working with the dying “divine intervention” that occurred because of a random connection with a hospice worker. She spent five years working at the bedside, eventually moving into administrative positions and management. As a hospice educator, she supports family caregivers and end of life workers alike.

Highlights from Barbara’s interview include:

A snapshot of Barbara’s advance care plan and why she thinks goodbyes are important Her recognition of how hard it was to balance work life and family life as a young mother How Barbara sees hospice work as a privilege Connect with Barbara Karnes:

Website: bkbooks.com

Blog: bkbooks.com

Shop her products: bkbooks.com

Socials: Facebook Instagram LinkedIn Twitter Pinterest YouTube

Email: barbara@bkbooks.com

Thank you to our series sponsor The Death Deck!

Connect with the End of Life Deck and the Death Deck:

Website: thedeathdeck.comhttps://thedeathdeck.com/

Shop: End of Life Deck Death Deck

Socials for the Death Deck: Facebook IG Twitter (X)

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Renovating Lives: How Renovation Alliance is Transforming Lives through Home Renovation

Sat, 30 Nov 2024 19:35:28 +0000

Kendall Cloeter's passion for affordable housing and community revitalization shines through in her work with the Renovation Alliance. As a self-described "social worker by trade," Kendall brings a deep understanding of the challenges low-income homeowners face in the Roanoke Valley and a commitment to making a difference.

Under Kendall's leadership, the Renovation Alliance has grown from a small group of 50 volunteers rebuilding just five homes 25 years ago to an organization that now aims to serve 100 homes annually. Kendall's dedication to preserving affordable housing and empowering homeowners to age in place with dignity is genuinely inspiring. Through a combination of volunteer labor and skilled professional partnerships, the Renovation Alliance tackles a wide range of critical home repairs, from simple tasks like installing grab bars to more complex projects like HVAC replacements.

Kendall's insights into the impact of the Renovation Alliance's work are both heartwarming and eye-opening. By preserving homeownership and the equity that comes with it, the organization is helping to address issues of generational wealth and social justice. Moreover, the Renovation Alliance's focus on prioritizing the needs of older adults, individuals with disabilities, veterans, and single-parent households with young children underscores their holistic approach to community revitalization. Kendall's passion for this work shines through as she shares the stories of homeowners who have regained their independence and sense of pride in their homes while strengthening the fabric of the Roanoke community.

About Kendall:

Kendall Cloeter, a native of Roanoke, Virginia, is deeply connected to her community, where she now raises her family. Holding a Master of Social Work degree, Kendall discovered her passion for affordable housing while serving in AmeriCorps with Renovation Alliance, the organization she proudly rejoined in 2023. Her work in AmeriCorps ignited her commitment to preserving affordable housing and enhancing housing quality.

During her time in Richmond, Virginia, Kendall spent five years addressing housing and homelessness issues with the Virginia Department of Housing and Community Development. This experience broadened her understanding of housing challenges and strengthened her dedication to making a difference. Returning to Renovation Alliance, Kendall applies her expertise to support her community and advocate for improved housing solutions.

Kendall resides in Roanoke County with her husband, two children, and their dog, Franklin.

Support the show

Confessions of a Reluctant Caregiver

Sisterhood of Care, LLC

Website: www.confessionsofareluctantcaregiver.com

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Grief Speaks: Healing through Poetry

Sat, 30 Nov 2024 19:30:25 +0000

Poetry and spoken word offer a unique and powerful outlet for processing grief, especially for dementia caregivers who often experience anticipatory grief before their loved one's passing. The act of expressing emotions through words, rhythm, and rhyme can be cathartic, providing a tangible form to intangible feelings.

Writing or speaking about the complex journey of caregiving, the gradual loss of the person they knew, and the impending final loss, can help caregivers make sense of their experience. It allows them to acknowledge and validate their emotions, fostering a sense of acceptance and healing.

Furthermore, poetry and spoken word provide a safe space for caregivers to explore the difficult emotions that may be associated with anticipatory grief, such as sadness, anger, guilt, and confusion. By giving voice to these feelings, caregivers can begin to release their emotional burden and find a sense of peace.

The creative process itself can also be therapeutic. Choosing words, crafting metaphors, and finding rhythm can be a meditative experience, offering a much-needed respite from the demands of caregiving. Sharing their work with others, whether in a support group or through public performance, can foster connection and understanding, reminding caregivers that they are not alone.

In essence, poetry and spoken word can be a lifeline for dementia caregivers navigating the turbulent waters of anticipatory grief, offering a channel for expression, healing, and connection.

Learn more here: https://cleochilds.com

Meaningful Caregiver Gifts: Five Essential Tips / Alzheimer’s and Other Dementias

Sat, 30 Nov 2024 19:25:29 +0000

"If you give me a spa certificate but no gift of time to go with it, I'll probably never use it."

As friends and family of Alzheimer’s and other dementia family caregivers, we want to give meaningful gifts that will actually be used and appreciated. Through our experiences and what we've learned from others on their caregiving journeys, we've developed five important categories of gifts that truly make a difference in a caregiver's life.

What we love about Thanksgiving and Hate about broken hips w/ Dr. Brittany Lamb

Sat, 30 Nov 2024 19:20:25 +0000

Why are broken hips so devastating? And more importantly, what can be done to prevent debility and death after a hip fracture? Listen to this in-depth conversation with Dr. Brittany Lamb and hosts/occupational therapists Emilia and Brandy about broken hips, what they mean for the whole body, and the one simple foundation of all good recoveries. #CareLab #carelabit

Find Caregiver Training at https://www.higherstandardscaregivertraining.com/

Find Care Equipment solutions at https://www.asksamie.com/

Find more from Dr. Lamb at www.blambmd.com

@CareLabPodcast @wholecarenetwork @Asksamie @higherstandardscaregiver @higherstandardscaregivertraining @blamb.md

Unlocking Financial Wisdom: An Interview with Traci Steelman

Sat, 30 Nov 2024 19:11:41 +0000

I had the pleasure of listening to Traci Steelman, who joins us in this podcast to discuss the important topic of finance. Her insights are incredibly enlightening and provide valuable information that can help listeners navigate their financial journeys. Traci shares practical tips and strategies for managing personal finances, understanding investments, and planning for the future. Don’t miss out on this fascinating conversation!

This Innovative Product Revolutionizes Death Care

Sun, 17 Nov 2024 14:00:26 +0000

Cuddle Cots and Cuddle Blankets allow families to spend more time with a loved one after a death, providing an opportunity for end of life workers to do death care better. Danielle Franck of Flexmort shares her personal experience with a Cuddle Cot in this interview. *Warning - This episode contains a description of the loss of a stillborn infant. It may not be for all listeners. Please take care of yourself.

Danielle is the Business Development Executive of the US at Flexmort, a company that designs and manufactures flexible mortuary solutions for the storage and cooling of a body after death occurs. She is passionate about fostering open discussions around death and loss. Danielle’s personal story is a testimonial to the benefits of utilizing a Cuddle Cot.

Cuddle Cots and Cuddle Blankets keep a body cool after death, enabling families to spend additional time with a loved one. That extra time creates space for meaningful goodbyes, rituals, and post mortem care that supports a healthy grieving process. The Cuddle Blankets are portable and can be used when a home funeral is planned. It’s also a great tool to use when there’s a plan for human composting or aquamation, and eliminates the need for dry ice when a family doesn’t want embalming. A personal quilt or blanket can be placed on top of the Cuddle Blanket to create a personal touch.

Connect with Flexmort:

https://cuddlecot.com/

https://www.linkedin.com/company/flexmort/

https://www.instagram.com/cuddlecot_/

https://www.facebook.com/CuddleCotTM

Thank you to our series sponsor The Death Deck!

Connect with the End of Life Deck and the Death Deck:

Website: thedeathdeck.comhttps://thedeathdeck.com/

Shop: End of Life Deck Death Deck

Socials for the Death Deck: Facebook IG Twitter (X)

Interested in purchasing a GrandPad to stay connected with a senior loved one?

Get more information at https://www.grandpad.net/thoh.

GrandPad website: https://www.grandpad.net/

Social Media for GrandPad

https://facebook.com/grandpad

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https://www.linkedin.com/company/grandpad

https://www.youtube.com/channel/UCuFAJCb7_tTneM_ikABq08Q

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Email: helen@theheartofhospice.com

Dementia Tropes and Platitudes with Kitty Norton

Sun, 17 Nov 2024 13:58:06 +0000

In 2016, Kitty Norton left her job as an NBC assistant editor in Los Angeles, CA for her hometown of Portland, OR to care for her mother living with dementia.

While caring, she authored the dementia caregiver blog Stumped Town Dementia, writing tales of dementia life, not dementia death, which resonated deeply with readers around the world.

After her mother’s death in 2021, Kitty took to the road in an RV to produce and direct her cross-country documentary film Wine, Women, and Dementia

This film honors the journey with her mother, as well as spreads awareness of the caregiver side of the equation in dementia, and celebrates family caregivers - to let them know they are not alone and that they are worthy of being seen, heard, and celebrated alongside who they are caring for on this difficult road to the end of life.

In this episode we discuss common tropes and platitudes most often heard in dementia, the reality behind them, and how Kitty’s caregiving journey led her to create her film.

From Four Kinds to One Community: The Rosalynn Carter Institute's Holistic Approach to Supporting Caregivers

Sun, 17 Nov 2024 13:57:06 +0000

Established in 1987 by former First Lady Rosalynn Carter, the Rosalynn Carter Institute promotes the health, strength, and resilience of caregivers at every stage of their journey. As Mandy Barr, a caregiver coach and engagement specialist at the Institute, eloquently explained, the organization is dedicated to supporting caregivers from all backgrounds—whether they are military, veteran, or civilian families.

One of the standout aspects of the Rosalynn Carter Institute's approach is its focus on addressing the complexities and nuances of caregiving. Through research-backed programs and resources, the Institute aims to provide tailored support that meets each caregiver's unique needs.

The Institute offers valuable tools, such as the preparedness guide, which helps caregivers, especially those in military families, prepare for emergencies and disasters. By training first responders on these resources, the Rosalynn Carter Institute ensures that caregivers and their loved ones receive the support they need during challenging times.

About Mandy:

Mandy was born and raised in Plains, GA and earned her Bachelor of Arts in Dramatic Arts with a minor in English in 2004 from Georgia Southwestern State University. Throughout her career, she has served as a Secondary English teacher, Executive Director of Americus Literacy Action, Inc. an ESOL instructor and Academic Success Counselor, acquiring extensive mental and behavioral mental health training while working with at-risk individuals. She now serves as a Caregiver Coach and Engagement Specialist at the Rosalynn Carter Institute for Caregivers.

Living in Americus, she enjoys various outdoor adventures with her husband who is a veteran and three children, daughters Riley and Emily, and son, Cuyler, who has an ultra-rare brain disorder called Allan-Herndon Dudley Syndrome. Being a caregiver to a medically complex child, Mandy hopes to provide resources and support to other caregivers needing advocacy and support.

Support the show

Confessions of a Reluctant Caregiver

Sisterhood of Care, LLC

Website: www.confessionsofareluctantcaregiver.com

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Can You Manage Work and Caregiving?

Sun, 17 Nov 2024 13:56:04 +0000

Working and being a caregiver can be really hard! In this episode, Brandy and Emilia have an honest discussion about the challenges of working and providing care, tips for getting it done, and suggestions for employers to keep talented employees who may be struggling to manage care and work. #CareLab #carelabit

Find Care Equipment solutions at https://www.asksamie.com/

Find Caregiver Training at https://www.higherstandardscaregivertraining.com/

@CareLabPodcast @wholecarenetwork @Asksamie @higherstandardscaregiver @higherstandardardscaregivertraining

Share Your Story: Insights and Challenges in the Life of a Caregiver

Sun, 17 Nov 2024 13:55:17 +0000

I’ve researched the work circumstances of caregivers and have found that, generally, the unique needs and challenges of caregivers often go unrecognized in the workplace. I would love to hear about your experiences—your perspectives, challenges, what strategies have worked for you, what you’d like to change, what keeps you motivated, and what adjustments you would hope for in your work environment. If we aim for more support at work, it’s crucial to share both our strengths and struggles. I invite you to share yours with me.

How to Organize Your Life to Make Death Easier

Tue, 12 Nov 2024 21:25:13 +0000

When his dad died, Adam Zuckerman created a highly organized kit for managing his estate. As founder of Buried in Work, he helps people get their end-of-life preparation in place. Adam’s family learned the ins and outs of hospice as they supported his dad at the end of his battle with leukemia. Although their time using hospice care was short, Adam saw the benefits of end of life care first hand.

Adam's mission is to empower individuals of all ages to navigate the intricacies of estate planning with confidence and ease. Through Buried in Work, he seeks to revolutionize the way people approach end-of-life preparations, ensuring that everyone has access to the resources they need to secure their legacy and protect their loved ones. Check out the CLEAR Kit from Buried in Work here.

Connect with Adam Zuckerman and Buried in Work:

Website: buriedinwork.com

Email: press@BuriedinWork.com

Social Media: Facebook IG LinkedIn Twitter (X) YouTube TikTok

Podcast: Buried in Work Podcast

Find all the resources from Buried in Work: BIW Resources

Order your CLEAR Kit today (Comprehensive Legacy & Estate Administration Repository Kit): CLEAR Kit

Purchase the One More Story card deck: One More Story

Purchase the Nothing Left Unsaid card deck: Nothing Left Unsaid

Connect with the End of Life Deck and the Death Deck:

Website: thedeathdeck.comhttps://thedeathdeck.com/

Shop: End of Life Deck Death Deck

Socials for the Death Deck: Facebook IG Twitter (X)

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Improvised Care with Jennifer Cain Birkmose

Tue, 12 Nov 2024 21:20:16 +0000

Jennifer Cain Birkmose is a sandwich generation caregiver, juggling the responsibilities of caring for loved ones in two different countries and life stages, while employing two distinct caregiving styles. She is also an improv comedian and instructor, with over 25 years of experience in the healthcare industry.

In this episode of the Happy Healthy Caregiver podcast, we explore how Jennifer integrates her professional skills into her challenging daily caregiving routine. We also delve into her digital eldercare platform, which provides trusted services to ‘olders’ in Illinois, and discuss her all-star care team that, despite their expertise, still faces the intense demands of caregiving. And, we learn how Jennifer's mindset and actions help her navigate and stay afloat amidst these pressures.

Show notes with product and resource links:

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Order a copy of Elizabeth's book Just for You: a Daily Self Care Journal:

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The Happy Healthy Caregiver podcast is part of the Whole Care Network. Rate and Review the podcast:

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Your Brain on Music - Johnny J Blair - Toured with the Monkees

Tue, 12 Nov 2024 21:15:09 +0000

“Singer at Large” Johnny J. Blair has been playing music professionally since the 1980s, having toured internationally, released many recordings, and worked with major artists. However, over the years, one of his joys is to perform for the residents in assisted living homes. “I’ve played the Royal Albert Hall, Disney, Las Vegas, cruise ships, temples in India, and little places all over the world, but there’s something special about playing for our ‘seasoned citizens.’” Johnny’s set includes familiar songs from The Great American Songbook (Johnny Mercer, Cole Porter, Hank Williams, folk songs), Elvis Presley, “The Rat Pack” (Frank Sinatra, Dean Martin), movies (Sound of Music, Mary Poppins), “cowboy songs” (Gene Autry, Sons of the Pioneers), and much more.

https://johnnyjblairmusic.com

Connie Tomaino offers practical tips for you to use music in your everyday life for health and wellness.

https://imnf.org/

We thank listener Denny Sarokin for sharing his thoughts on a song that has impacted his life.

https://dennysarokin.com

Thanks to Jim Nantz for our introduction and to Ariel Sol for the original music. https://www.arielsol.com/

#activitiesforelderlyathome

#anxietyreducingmusic

#memorycareactivities

#caregiverrespite

#activitiesforseniorswithdementia

#caregiverresources

#dementiaactivities

#musicandmemory

#caregiversupport

#senioractivities

#activitiesforseniors

DR. MARC ROTHMAN: Transforming Caregiving and the Perception of Dementia Through the Arts

Tue, 12 Nov 2024 21:10:16 +0000

In Episode 98, Don and I have a fantastic conversation with Dr. Marc Rothman, MD,founder and president of the Dementia Spring Foundation, a non-profit 501(c)(3) venture studio that invests in visual and performing artists and innovators who are changing the prevailing narrative of dementia and bringing joy and creativity to the dementia community through their work. Founded in 2020, the Artist Network now includes over 200 artists and innovators from around the world who are grappling with memory loss, Alzheimer’s disease and other dementias in their work. New artist Spotlights are shared every week on the Dementia Spring website. (Including our Oscar qualified short film, My Mom and the Girl ,starring Valerie Harper in her final performance!!)Through the Foundation’s annual, competitive Dementia Arts Impact Award program, funding, technical & marketing support, and subject-matter expertise are provided to a select group of artists and innovators who are telling new stories of dementia and bringing theatre, dance, music, and other visual/performing arts programs to those living with dementia.And if that's not enough, Dr. Rothman is also the CEO of Lizzy Care, a company providing tools and resources for dementia care at home.

Join us as our guest,Dr. Rothman, reveals his insights on harnessing artistic talents to enhance caregiving experiences. Discover how integrating art into dementia care not only brings joy and connection but also offers a holistic approach to treatment that blends medical and artistic perspectives, creating a more enriched life for both caregivers and individuals with dementia.

Immerse yourself in discussions on the profound impact of music and visual arts on mental health and healing. We underscore the importance of preserving memories through photography and the ethical considerations that come with sharing such intimate moments. The episode also touches on the cultural shift required in our institutions to prioritize arts therapy, advocating for comprehensive care models that improve quality of life. With personal stories and innovative projects, including virtual reality and comedy, we demonstrate how creativity stands as a beacon of hope and connection for those affected by dementia. And that includes, Love Conquers Alz, of course! xoxo Susie

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Overcoming Adversity Together: A Navy Chaplain's Unwavering Support for His Wounded Warrior Wife

Tue, 12 Nov 2024 21:05:12 +0000

As a senior Navy Chaplain, Bob Evan's calling has always been to serve and care for others, whether it was his troops, fellow service members, or the wounded warriors he encountered. When his fiancée, Gretchen, was severely injured by a mortar round in Afghanistan, Bob's role shifted from chaplain to devoted caregiver.

Despite his extensive training and experience as a pastoral counselor, Bob candidly admits that he struggled at times to provide the proper support and care for Gretchen as she navigated life-changing injuries, including deafness. However, Bob's unwavering love and commitment to Gretchen never wavered. He made it clear that he would accompany her on this new journey, no matter the challenges. Bob's journey as a caregiver is one of resilience, compassion, and a deep understanding that true caregiving requires listening, learning, and loving the person you are caring for.

As Bob shares his insights and lessons learned, it's clear that his role as a caregiver has profoundly impacted his own spiritual and personal growth. He has become an advocate for greater support and resources for military caregivers, recognizing the vital importance of self-care and finding respite to be an effective, loving caregiver.

About Bob:

Bob Evans, a graduate of Bowdoin College (A.B. - 1976), Princeton Theological Seminary (M.Div. - 1979), Candler School of Theology (Th.M. - 1992), and the Naval War College (M.A. - 2003), served over 25 years in the United States Navy. He retired as a Captain in 2008 after entering the Navy by direct commission in December 1982.

During his tenure, he served as a Senior Leader for the U.S. Fleet Forces, U.S. Atlantic Fleet, Joint Forces Command, Combined Forces Command-Afghanistan, and Naval Forces Europe, Africa, and Southwest Asia. He received the Bronze Star for his service in Afghanistan.

Bob began his career with the Department of Veterans Affairs (VA) in May 2011 as Chief of Chaplain Services at Aleda E. Lutz VA Medical Center in Saginaw, MI. He joined the Atlanta VA in January 2013 as Chief of Chaplain Services and later also served as Acting Assistant Director. In February 2014, he was appointed Assistant Director of the Atlanta VA Health Care System. He then served as Interim Associate Director/Chief Operating Officer of the Dorn VA Health Care System in Columbia, SC, for six months before being selected as Associate Director/Chief Operating Officer for the Western North Carolina VA Health Care System in Asheville, NC. He held this role from January 2017 until his retirement from Federal Service in December 2019.

Now retired, he is a devoted caregiver to his wife, who lost her hearing in combat, and a strong advocate for veterans, their families, and all who serve the common good. He actively listens to others, helps them discover their passions, and supports them in turning their dreams into purposeful lives.

Support the show

Confessions of a Reluctant Caregiver

Sisterhood of Care, LLC

Website: www.confessionsofareluctantcaregiver.com

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The Rich History of Hospice: How We Got Here

Tue, 12 Nov 2024 21:00:13 +0000

In episode two of our special four part series, hospice icon Barbara Karnes shares what it was like working in hospice in the early days, before there was a model for working with the dying. Barbara has worked in end of life care for over 40 years, educating and supporting end of life workers and family caregivers alike. In this conversation, we talk about what hospice work was like early in her career.

Here are some highlights from this episode:

Barbara shares how they cared for patients, learning how people die and the best ways to care for them. Barbara talks about how other disciplines came to be integrated into the care of patients, and how they learned to collaborate as an interdisciplinary team. We talk about the myths surrounding hospice that have persisted through the years, and still remain in people’s minds today. Connect with Barbara Karnes:

Website: bkbooks.com

Blog: bkbooks.com

Shop her products: bkbooks.com

Socials: Facebook Instagram LinkedIn Twitter Pinterest YouTube

Email: barbara@bkbooks.com

Thank you to our series sponsor The Death Deck!

Connect with the End of Life Deck and the Death Deck:

Website: thedeathdeck.comhttps://thedeathdeck.com/

Shop: End of Life Deck Death Deck

Socials for the Death Deck: Facebook IG Twitter (X)

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Starting Out in the End: Talking With Barbara Karnes

Tue, 12 Nov 2024 20:55:12 +0000

In honor of National Hospice and Palliative Care Month - and National Family Caregivers Month - we’re featuring a special 4-part series with special guest Barbara Karnes, Hospice Nurse and End of Life Educator. In the first episode of the series, Barbara shares how she got started in end of life care back before the Medicare hospice benefit was established in the 1980’s.

Here are some highlights of this special episode:

Barbara thinks she should have been a social worker but her mother talked her into nursing. She and her fellow hospice nurses learned how to provide their own self care without really knowing what it was. Barbara’s aversion to causing patients any pain or suffering made patient care difficult for her. She believes it’s important for hospice leadership to truly understand end of life work, and to have a comprehensive knowledge of hospice care. Barbara believes sacred rituals and beautiful memories can be created at the time of death. Connect with Barbara Karnes:

Website: bkbooks.com

Blog: bkbooks.com

Shop her products: bkbooks.com

Socials: Facebook Instagram LinkedIn Twitter Pinterest YouTube

Email: barbara@bkbooks.com

Thank you to our series sponsor The Death Deck!

Connect with the End of Life Deck and the Death Deck:

Website: thedeathdeck.comhttps://thedeathdeck.com/

Shop: End of Life Deck Death Deck

Socials for the Death Deck: Facebook IG Twitter (X)

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Traveling: Four Essential Tips / Alzheimer’s and Other Dementias

Tue, 12 Nov 2024 20:50:15 +0000

“We’ve both had ‘that’ trip — the last trip that you take when you decide we’re not traveling ever again with our care receiver. Or, as we like to say, it’s the trip after the last trip you should have taken!”

We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned travel decisions require careful consideration. Through our experiences, and what we’ve learned from support groups and others on their journeys, we’ve developed four important tips to help you decide whether you and your care receiver should stay home or go on what could be ‘that’ trip.

See Full Show Notes here

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Fidget blanket here

Takeaways

Tip 1: Pre-test Travel Readiness

Key points:

Test longer car rides (at least an hour round trip) Try interstate driving if that will be part of your journey Experience crowds and noise if those will be present Test unfamiliar environments Pay attention to any existing signs of travel difficulty.

Tip 2: Evaluate All Trip Components

Key points:

Assess sleeping arrangements and bathroom accessibility Consider the need for quiet space Evaluate support options at the destination Think about familiarity with locations Listen to your inner voice about the decision — is this the wisest choice?

Tip 3: Plan Comprehensively

Key points:

Minimize advance information to avoid overwhelming your care receiver. Pack comfort items: Fidget blankets Familiar snacks Favorite music and headphones Photo books Familiar entertainment (DVDs, etc.) 3. Plan around normal routines:

Meal times Sleep schedule Best times of day for different amounts of activity 4. Prepare for emergencies:

Take IDs and insurance cards Bring extra medications Pack legal documents Consider anti-anxiety medication options Share detailed itinerary with family members Have your emergency contact information easy to find on your care receiver and in case something happens to you.

Tip 4: Prepare Others

Key points:

Explain current abilities and challenges Provide conversation guidance Demonstrate proper approach techniques Give permission for others to opt out if they’re not comfortable Show grace toward those processing their own emotions

Read More in This Blog here

Tech With Heart - Voice Memory Preservation

Tue, 12 Nov 2024 20:45:08 +0000

Tech With Heart - Voiced Memory Preservation. Imagine a world where photographs could speak. A simple scan of a cherished image could transport you back in time, your loved one's voice echoing through the years, sharing stories, laughter, and memories. This is the vision behind a groundbreaking app designed to enhance the lives of those living with dementia. By allowing users to add personal voice descriptions to their photos, the app becomes a powerful tool for reminiscence therapy.

For individuals struggling with memory loss, connecting with the past can be a lifeline. This innovative app offers a unique way to bridge the gap between the present and the past, fostering meaningful interactions between caregivers and loved ones. As users explore their photo albums, each image becomes a portal to a familiar world, filled with the comforting sounds of loved voices.

Our Guest: Karen Murdoch

Karen is the owner of Treasured Memories and the creator of the app Voiced Memories. She's also been a caregiver to a 90+ year old friend.

How to Talk About Hospice with Helen Bauer

Tue, 12 Nov 2024 20:40:14 +0000

Bucket list travel wishes turn to a frank conversation about hospice, end of life care, and how to talk about it with people you love. #CareLab #carelabit

Find Care Equipment solutions at https://www.asksamie.com/

Find Caregiver Training at https://www.higherstandardscaregivertraining.com/

Find more from Helen at theheartofhospice.com

@CareLabPodcast @wholecarenetwork @Asksamie @higherstandardscaregiver @higherstandardardscaregivertraining @thehearthospice

Navigating the Challenges of Mom’s Dementia: A Daughter's Story

Tue, 12 Nov 2024 20:35:12 +0000

Carolyn Birrell, author of Walking with Fay: My Mother’s Uncharted Path into Dementia, shares her story of coping with the challenges of caregiving, its emotional toll, and the need to find humor and love in the face of difficult and unlovable behavior from her mother. She also shares the emotional story of the last days of her mother’s life during the height of the COVID-19 lockdown.

Throughout, Carolyn emphasizes the need for caregivers to find encouragement in being more loving during this difficult process, even when faced with resentment and disappointment. One of the most notable insights shared is Carolyn's reflection on learning to see past the unlovable behavior of her mother and to remember the person she fell in love with.

Quotes

Balancing Care and Judgment: "One of the most frightening things for me during that time was the perception from others that I was being overreactive and controlling and was inserting myself into my mother's life unnecessarily."

Caring for a Loved One with Dementia: "I was able to manage her quality of care, but I wasn't able to manage her quality of life."

Finding Encouragement in Challenging Times: "When I wrote the book, I thought I was writing it for people who were feeling alone and I wanted them to know that no, you're not alone, that others have gone through this just like you. You're going to be okay and hang in there."

Finding Humor and Love in Caregiving: "And I think what I really learned from this whole thing is trying to find the humor and the spirit of actual loving this person who has become oftentimes unlovable."

In this episode, you will:

· Uncover insightful tips for navigating the unique challenges of dementia caregiving

· Understand the profound impact of COVID-19 on dementia care

· Discover effective coping strategies for dementia caregivers during challenging times.

· Learn about the valuable support and resources available through the Alzheimer's Association support groups

After the podcast

Read Carolyn’s AlzAuthors post

Purchase Walking With Fay now

Note: We are an Amazon Associate and may receive a small commission from book sales.

Connect with Carolyn

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Website

About the Podcast

AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others.

Thanks for listening.

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Boundaries, Burnout, and Self-Celebration: Insights from Kori Linn on Thriving in Challenging Times

Tue, 12 Nov 2024 20:27:30 +0000

Today, we have the pleasure of interviewing Kori Linn, who offers invaluable insights on setting boundaries and why our own mental conditioning can sometimes make establishing them feel surprisingly difficult. She explains how societal norms, upbringing, and personal beliefs often play into why we hesitate to protect our time and energy. Kori also tackles the topic of burnout, shedding light on some of its primary causes—such as overcommitment, lack of support, and unclear boundaries—and emphasizes the importance of addressing burnout symptoms as soon as they surface, which makes recovery and regaining balance more manageable. Finally, she shares practical, uplifting ideas for celebrating ourselves in small and meaningful ways, helping us recognize and reward our own accomplishments as part of a balanced, healthy life.

How to Improve Death Literacy in a Community

Mon, 04 Nov 2024 22:11:06 +0000

Death educator Lee Warren believes preparing for death in advance makes a good death possible.

Over a period of two years, she experienced several deaths in her small community of 125 people, teaching her the best lessons about death as she cared for them.

Those deaths, and the generous people who experienced them, offered an incredible opportunity for Lee to reweave a more holistic approach to end-of-life than the one generally offered to us in the U.S. The outcome of stewarding those deaths together as a community, including after-death care, home funerals, and home burials, was life changing and heart opening for Lee. She has channeled the wisdom she learned into work as a Death Educator and End-of-Life Preparation Guide.

Connect with Death Educator and End-of-Life Preparation Guide Lee Warren

Website: queenofdeath.org/course reclaimingwisdom.com/about

Email: lee@reclaimingwisdom.com

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Physician Turned Caregiver Shares Her Uplifting Alzheimer's Journey

Mon, 04 Nov 2024 22:10:57 +0000

Unexpectedly, a physician's journey of caring for her father with Alzheimer's disease leads to groundbreaking insights. From reversing cognitive decline to the impact of emotional trauma, Dr. Helena Popovic shares a wealth of evidence-based strategies for caregivers. Her unique blend of personal experience and scientific knowledge sheds light on effective coping strategies and self-care techniques for those caring for individuals with Alzheimer's. Get ready to dive into a treasure trove of information, humor, and wisdom, as Dr. Popovic reveals the power of joy, gratitude, and holistic well-being in the face of Alzheimer's disease.

Quotes

"The human brain is continually altering its function, cell number, circuitry, and chemistry as a direct result of everything we do, experience, think and believe. This is called neuroplasticity." - Helena Popovic

"The most important thing I could give him would be genuine joy, love, enthusiasm. So just looking after ourselves is just in itself already looking after the other person." - Helena Popovic

"The greatest gift that we can give to the people we care about are our life force, our energy, our enthusiasm, our passion." - Helena Popovic

In this episode, you will:

Discover effective coping strategies to ease the challenges of caring for someone with Alzheimer's. Learn about potential methods to slow down or reverse cognitive decline in Alzheimer's patients. Explore the impact of emotional trauma on the risk of developing Alzheimer's and how to mitigate its effects. Uncover self-care techniques to maintain your well-being while caring for a loved one with Alzheimer's. Understand the benefits of practicing gratitude for your mental health and overall resilience. Purchase "In Search of My Father"

Connect with Dr. Helena Popovic

Facebook

Instagram

YouTube

About the Podcast

AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others.

Thanks for listening.

We are a Whole Care Network Featured Podcast

Proud to be on The Health Podcast Network

Find us on The World Podcast Network and babyboomer.org

Want to be on the podcast? Here’s what you need to know

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Unlocking VA Benefits: A Insider's Guide to Caregiver, Family, and Survivor Support

Mon, 04 Nov 2024 22:10:47 +0000

This week’s special educational episode shines a spotlight on the incredible work being done by the U.S. Department of Veterans Affairs (VA) to support caregivers, families, and survivors of veterans. In this educational episode, Maureen Elias, a Senior Advisor to the Under Secretary for Benefits at the VA, provides a comprehensive overview of the vast array of benefits and programs available through the Veterans Benefits Administration.

Elias expertly navigates the three key buckets of VA support - caregiver benefits, family benefits, and survivor services. From healthcare and respite care to legal assistance and bereavement support, the VA ensures caregivers have the resources they need to avoid burnout and continue providing exceptional care. Equally impressive are the VA's efforts to adapt homes and vehicles and offer educational benefits for family members and robust survivor benefits, including burial assistance, life insurance, and dependency compensation. Listeners are left with a renewed appreciation for the VA's commitment to honoring the service and sacrifice of veterans and their loved ones.

About Maureen:

Maureen Elias serves as the Senior Advisor to the Under Secretary for Benefits on the development, adoption, and implementation of Department-wide programs and policies related to Benefits. In this role she analyzes and evaluates the effectiveness of these programs and policies and presents balanced recommendations for improvements. She represents the Under Secretary for Benefits in dealings with the senior staff of Cabinet officers regarding Departmental programs, initiatives, and policies.

Ms. Elias is a U.S. Army veteran and a U.S. Army retiree spouse. Prior to coming to the VA, Ms. Elias served on the House Veterans Affairs Committee and at two of the “Big Six” VSOs including Paralyzed Veterans of America and Vietnam Veterans of America. She has been recognized as one of the We Are the Mighty “Mighty 25”, 2021 VA Women Veteran Trailblazer, and as a HillVets100. She has appeared on various podcasts, testified before Congress, and written articles for various media outlets. Ms. Elias also volunteers as a storytelling instructor, helping Veterans, servicemembers, their families, survivors and caregivers learn to share their stories in ways that are meaningful.

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What Exactly Do You Do?

Mon, 04 Nov 2024 22:10:36 +0000

What exactly do CareLab co-hosts Emilia and Brandy do in their businesses…. and why? Get to know a little more about these hosts and founders and find out how they are positioning their companies to help YOU. #CareLab #carelabit

Find Caregiver Training at https://www.higherstandardscaregivertraining.com/

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@CareLabPodcast @wholecarenetwork @Asksamie @higherstandardscaregiver @higherstandardardscaregivertraining

Search and Rescue: Three Essential Tips / Alzheimer’s and Other Dementias

Mon, 04 Nov 2024 22:10:25 +0000

The moment you realize your loved one with dementia is missing, every second feels critical. While the natural instinct is to immediately begin searching, having a clear action plan can make the difference in finding them quickly and safely. Through insights from John Clark, a specialized dementia search and rescue expert in Georgia, we've compiled three essential tips for these frightening situations.

Additional Resources Mentioned

Georgia Emergency Search and Rescue

John Clark USA 404-309-7386

carmen@georgiaemergencysearchandrescue.org

Professionally Trained in Urban Searches

Alzheimers, Dementia, Children, Evidence Recovery, Major Disaster Search, NASAR, Disaster Assistance

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Takeaways

Tip 1: Make the Right First Move

Key points:

Call emergency services immediately, before starting your own search Don't wait to make the call while searching on your own Ask if there are dementia-specialized search teams in your area Remember that it's okay to search after making the call

Tip 2: Provide Critical Information to Searchers

Key preparation points:

Keep current photos readily available:

Essential information to share:

Recent conversations and topics they've discussed Their maiden name or previous names Nicknames family members use Common walking routes or regular destinations Nearby water sources (pools, ponds, lakes) Places from their past they might seek out Their current stage in their dementia journey Recent behaviors or patterns Current medications

Tip 3: Know What to Expect After They're Found

Standard procedures:

Medical evaluation is typical Transportation to hospital via ambulance or police car Assessment for any injuries or exposure For More Read Full Blog here

Building Better Local Resources

Not every community has specialized dementia search and rescue teams, but there are ways to improve local capabilities:

Steps to take:

Contact your local Alzheimer's Association chapter Ask about existing specialized search resources Inquire about training opportunities for local emergency services Advocate for specialized training in your community Network with other caregivers to share experiences and resources

Note: If you're in Georgia, specialized dementia search and rescue services are available. Contact your local emergency services or Alzheimer's Association chapter for more information.

We Are Brave Together (with special guest Jessica Patay)

Mon, 04 Nov 2024 22:10:03 +0000

In this episode, Sarah interviews Jessica Patay, founder of We Are Brave Together. They discuss Jessica's caregiving journey with her three children and how to encourage special needs parents.

You can find more of Jessica at:

We Are Brave Together

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Stelmach Brown Media llc

Remember, we are affiliated with AngelSense. If you are looking for a GPS tracker to help with a family member who may be an elopement risk, please check out AngelSense at https://www.angelsense.com/?ref=sarahstelmachbrown

We are also affiliated with Memory Lane TV. It a multi-sensory and engaging series of programs adapted for people living with memory loss and their care partners. Check them out at: http://www.watchmemorylane.com?code=ambassadormltv11

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Oral Health, Brain Health: The Link

Mon, 04 Nov 2024 22:09:39 +0000

Ever wondered how your oral health could be connected to your brain's well-being? In this episode, we dive deep into the surprising relationship between oral and brain health. Our expert dentist shares fascinating insights into how poor oral hygiene can contribute to a host of health issues, including cognitive decline and even serious conditions like Alzheimer's disease. Discover how simple steps like brushing and flossing regularly can significantly impact your overall health and well-being.

Our Guest: Katie Lee, DDS

Katie is a leader, coach, and mentor with a proven track record of developing effective and profitable teams, developing new dental graduates for success, and developing women as leaders in business and dentistry.

Mental Health Matters: Building Awareness and Support

Mon, 04 Nov 2024 22:01:02 +0000

This podcast highlights the essential role of having a strong support group, a safe space where you feel understood and where you can openly share your experiences. It’s a place to talk through life’s challenges without fear of judgment, to be heard, and to gain perspective. Support groups help people recognize and validate their struggles, offering comfort, resources, and advice to navigate difficult times. Having a network of people who empathize can make an enormous difference, helping you build resilience and find solutions that bring growth and relief.

Grandpad Has Made Innovative AI Available to Older Adults

Sun, 27 Oct 2024 14:55:11 +0000

Serious illness and caregiving can be isolating. GrandPad’s AI technology keeps seniors safely connected to loved ones. Isaac Lien and his dad Scott co-founded GrandPad to meet the needs they saw in Scott’s mom. Their new AI app Grandie offers audio interaction for the user without requiring a certain format, and even learns the user’s voice and way of speaking. Because GrandPad’s network is private and encrypted, users can share photos or videos and make video calls without worrying about robocalls or spam. No one can be part of a user’s network unless they’re been invited by the family administrator.

GrandPad makes a fantastic holiday gift for older adults, especially those living at a distance from family. Its features include:

• phone calls • video calls • video sharing • internet browning • 911 emergency use • 4G LTE data plan

Watch a webinar to hear more about GrandPad’s features here.

Interested in purchasing a GrandPad to stay connected with a senior loved one?

Get more information at https://www.grandpad.net/thoh.

GrandPad website: https://www.grandpad.net/

Social Media for GrandPad

https://facebook.com/grandpad

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Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Employee Resource Groups with Gene Lanzoni

Sun, 27 Oct 2024 14:50:15 +0000

Gene Lanzoni's life centers around caregiving, both at home and at work. As an only child, Gene and his wife of over 30 years, Elizabeth, took on the responsibility of caring for his aging parents. Professionally, Gene leads the development of thought leadership research and produces content on caregiver trends. He is also a co-lead and founding member of a caregiver-focused employee resource group (ERG).

In this episode of the Happy Healthy Caregiver podcast, we discuss the origins of the ERG and the numerous benefits it offers to both employers and employees. And, we explore how Gene's spiritual self-care practices and his love of coffee have helped him navigate the challenges of caregiving.

Show Notes

Show notes with product and resource links:

https://bit.ly/HHCPod193

Receive the podcast in your email here:

http://bit.ly/2G4qvBv

Order a copy of Elizabeth's book Just for You: a Daily Self Care Journal:

http://bit.ly/HHCjournal

For podcast sponsorship opportunities contact Elizabeth:

https://happyhealthycaregiver.com/contact-us/

The Happy Healthy Caregiver podcast is part of the Whole Care Network. Rate and Review the podcast:

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The Caregiver's Toolkit: Tried-and-True Strategies for Thriving, Not Just Surviving

Sun, 27 Oct 2024 14:45:09 +0000

Lori Rogers shares her powerful journey as the caregiver of her 33-year-old son, Craig, who was diagnosed with autism at 2.5 years old. When Craig was first diagnosed in 1993, Lori and her husband Neil dove headfirst into supporting him, trying various therapies, diets, and interventions to help him. Despite the challenges, they refused to live in victimhood and instead focused on hope and finding ways to help Craig and their family.

Lori also founded a nonprofit called Parents Assisting Special Educators (PACE) to support their community's special education programs and teachers. PACE lasted 18 years and allowed Lori and her family to give back and be part of the team supporting Craig and other children with special needs. Recently, Lori and her family discovered a life-changing communication method called "spelling to communicate" that has allowed Craig, who is nonverbal, to express his thoughts, knowledge, and desires for the first time at age 33. This has been a game-changer, as Craig now has a voice and is even starting his own Instagram account to share his experiences.

Throughout her caregiving journey, Lori has learned the importance of self-care, positive thinking, and maintaining a high vibration. She shared practical daily habits like giving herself a high five, journaling, meditation, and prayer that have helped her build resilience and see the beauty in her son's challenges. Lori's story is an inspiring testament to the power of hope, perseverance, and shifting one's perspective, even in the face of immense difficulty.

About Lori:

Lori is the caregiver of her adult son, diagnosed with autism. She is the co-founder of PASE—Parents Assisting Special Educators— a vehicle that provides vital equipment & supplies to support special needs classrooms & teachers. She founded Life-Op, which creates safe and productive learning spaces for special needs adults. In 2011, Lori began implementing the practices of Positive Activity and experienced a shift in her approach to caregiving. She helps audiences do the same, implementing simple

daily activities and mindset shifts that attract a life-changing experience. She is a Spelling 2 Communicate advocate.

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AgingGayfully™ Starting Your Second Act, Living Your Dreams

Sun, 27 Oct 2024 14:40:13 +0000

In this engaging conversation, Chris and Josh explore the themes of aging, self-acceptance, and the importance of human connection. They highlight the significance of pursuing your dreams in later life and maintaining connections with others to enhance happiness and fulfillment. They also share personal anecdotes about embracing change, the art of people watching, and the impact of attire on self-perception.

A gay senior, Christopher MacLellan, and an ally, Josh Wilson, podcasting about life, love, liberty and travel.

Don't Say Gay?... Say AgingGayfully™!

AgingGayfully™ is about living life with dignity in an age-friendly society regardless of orientation or economic status because longevity is a justice issue.

AgingGayfully™ is about finding your voice as we age. We are all part of the aging process and have real connections in diversity.

AgingGayfully™ is a modern type of activism that supports the concept of belonging.

AgingGayfully™ is about Adventure, Leisure, Travel, being a citizen of the world, traveling to destinations, and being part of the global community as we age and prosper in body, mind, and spirit.

Living with Alzheimer's With Pam Montana

Sun, 27 Oct 2024 14:35:12 +0000

Living with Alzheimer's is a journey filled with challenges and hope. Pam Montana, diagnosed in her early 60s,transformed her experience into a mission to combat the disease. From exercise and nutrition to advocacy, she's a beacon of inspiration for others facing this diagnosis.

In this episode, Pam shares her personal story, offering invaluable insights and practical advice. Discover warning signs,prevention tips, and the importance of support networks. Learn how to love your brain and maintain a fulfilling life, even while living with Alzheimer's. Join us for a conversation that empowers, inspires, and provides hope.

5 Self Care Things That Actually Work!

Sun, 27 Oct 2024 14:30:12 +0000

We all hear about self care constantly, but what are 5 self care principles… that science says actually work? Join Emilia and Brandy as they discuss these 5 foundational principles of self care, why they can be challenging to enact, and ways to take baby steps towards achieving them every day. #CareLab #carelabit

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Eating and Drinking: Seven Essential Tips / Alzheimer’s and Other Dementias

Sun, 27 Oct 2024 14:25:11 +0000

As caregivers for our loved ones with Alzheimer's and other types of dementia, we've learned eating and drinking become significant challenges. Through our experiences, and what we've learned from support groups and others on their journeys, we've developed seven important tips to help you and your care receiver navigate dining.

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You can log in with Twitter, Facebook or Google On the right you’ll see a box with “Follow”, “Rate and Review” and “Share” Connect with us and share your tips:

Additional Resources Mentioned

Episode 13 - Incontinence Overnight here

These resources contain affiliate links so we may receive a small commission for purchases made at no additional cost to you.

Bibs here Spork here Lowbowls here Grippy placemats here Other great caregiver dining aid products here Takeaways

Tip 1: Observe Their Natural Eating Habits

Observe and record how they naturally eat and drink (e.g., time of day, order, how they cut their food, which hand they use for each utensil). Continuously observe, adjust, and share with others who are helping your care receiver with their eating and drinking.

Tip 2: Utilize Pre-made Meals and Visual Cues

Leave pre-made meals in easily accessible places (e.g., eye-level in the refrigerator). Use visual cues like notes on the refrigerator or preset table settings with a note where the plate will go that tells your care receiver where the meal is. Check to make sure they have actually eaten their food and finished what they had to drink so you know if they’re able to understand what to do.

Tip 3: Pre-cut Food, Adjust Portions, Observe How They’re Able to Eat and Drink

Pre-cut food into manageable pieces. Consider converting sandwiches and other foods into finger foods. Be aware of changes in hand stability, grip strength, vision, and coordination. Some people with dementia diagnoses lose regulation with their appetite. It’s important for us to observe how they’re eating and the portions they’re eating to make sure they’re getting the proper amount of food. Introduce non-breakable drinkware, consider tops or adult sippy cups.

Tip 4: Prepare for Messier Eating

Consider using regular bibs or large disposable bibs Place a towel on the chair to catch spills. Keep a basket of cleaning supplies (e.g. paper towels, hand wipes, table wipes) handy for quick clean-ups.

Tip 5: Simplify Eating Utensils and Tableware

Low bowls with a slight rim make it easier to push food onto utensils Sporks combine the functions of spoons and forks, so one utensil can be used. Grippy placemats keep plates from sliding.

Tip 6: Monitor and Adjust Nutrition

Watch for unexplained weight loss or gain. Consult with doctors if you notice sudden changes. If you move your care receiver to a memory care community, develop nutrition plans and weight monitoring processes and stay actively engaged with them.

Tip 7: Gradually Take Over Feeding and Hydration

Position yourself closer to them at mealtimes to make assistance easier. What begins as prompting them to eat or drink and gradually increases to handing them their utensils and/or putting food on their utensils, showing them their drinking glass becomes modifying their drinking glass to make it easier for them to use, to eventually fully feeding them and controlling their beverages. Read More in This Blog here

See full show notes here

Frontotemporal Dementia (FTD): the Younger-Onset Dementia Often Mistaken for Alzheimer's

Sun, 27 Oct 2024 14:20:14 +0000

Frontotemporal Dementia (FTD) is a younger-onset form of dementia often mistaken for Alzheimer's disease. Join me and my guests Sharon Hall and Amy Johnson for a candid discussion about their life-changing journeys having spouses diagnosed with this common form of dementia. Their stories will inspire you!

Unlocking Success: The Power of Negotiation and Setting Unbreakable Boundaries

Sun, 27 Oct 2024 14:11:16 +0000

Negotiation is something we all learn from a young age. We negotiate with ourselves, with those around us, and with life itself. To be successful in negotiation, it's crucial to identify what we are unwilling to sacrifice and to be clear about setting boundaries. Understanding your non-negotiables allows you to approach situations with confidence and clarity. Whether in personal relationships, at work, or in everyday decisions, knowing where to draw the line is key to effective negotiation. Establishing boundaries isn’t just about protecting what matters to you, it also fosters respect and healthier interactions with others.

Honoring the Dead with Beautiful Burial Shrouds

Sun, 20 Oct 2024 16:25:13 +0000

Virginia Marcolin’s background in fashion and textiles led her to start designing burial shrouds, experimenting with luxurious natural fabrics and vegetable dyes. The result was Sanctum, a brand of high-end scented burial shrouds for the natural funeral industry. Virginia sources a variety of high-quality organic fabrics which are soft to the touch and biodegradable. Fabrics are colored with non-toxic plant dyes and infused with a proprietary plant-based antibacterial formula, which inhibits germ growth and neutralizes malodor.

The result for families is a comforting, beautiful, aromatic cocoon wrapped around their loved one which will carry them to their final resting place. Shrouds can be part of family-guided death care, green funerals, or human composting. A shroud can even be part of a cremation. According to the Sanctum website, their mission is to enhance the sensory experience of alternative funerals for loved ones while eliminating toxins and pollutants from traditional burial practices.

You can find the full selection of these Earth-friendly, elegant shrouds at sanctumshrouds.com.

Read more about how Sanctum Shrouds came to be here.

Find Sanctum’s line of shrouds for pets, Moonbeam Pet.

Socials for Sanctum Shrouds:

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Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Caregiver-Doctor Communication: What Matters Most with Cheryl Phillips, M.D.

Sun, 20 Oct 2024 16:20:17 +0000

Cheryl Phillips, M.D., AGSF, is the immediate past president and CEO of the Special Needs Plan Alliance, and currently a Senior Program Consultant with the John A Hartford Foundation. She has extensive experience in health policy, Medicare Advantage and the Program of All-inclusive Care for the Elderly (PACE). As a fellowship-trained geriatrician, her clinical practice focused on the continuum.

She served as a primary care health policy fellow under Secretary Tommy Thompson and currently chairs The SCAN Foundation Board of Directors and serves as a director on the SCAN Health Plan and Group Boards.

Today, we discuss the 4 M’s that will help you prepare for each appointment, the burden of being the connector and care coordinator with specialists, dealing with assumptions and expectations, the dangers of anesthesia and falls, and much more. I hope you enjoy our conversation.

Supporting Caregiving Mothers with Jessica Patay

Sun, 20 Oct 2024 16:15:12 +0000

Jessica Patay, a reformed perfectionist and dedicated caregiving mother, provides compassionate support and resources to other moms caring for children with disabilities or unique needs.

In this episode of the Happy Healthy Caregiver podcast, Jessica shares how she manages and supports her son Ryan, who has a rare genetic condition called Prader-Willi syndrome, while maintaining her own well-being. We discussed helpful and unhelpful language from friends and family and explore the various ways caregiving mothers can find support through Jessica's community, book, podcast, and retreats. Jessica also highlights the difference between self-care and self-comfort.

Show notes with product and resource links:

https://bit.ly/HHCPod192

Receive the podcast in your email here:

http://bit.ly/2G4qvBv

Order a copy of Elizabeth's book Just for You: a Daily Self Care Journal:

http://bit.ly/HHCjournal

For podcast sponsorship opportunities contact Elizabeth:

https://happyhealthycaregiver.com/contact-us/

The Happy Healthy Caregiver podcast is part of the Whole Care Network. Rate and Review the podcast:

https://bit.ly/HHCPODREVIEW

Navigating Dementia with Faith, Forgiveness, and Freedom with Dorothy Horne

Sun, 20 Oct 2024 16:10:17 +0000

Have you heard these myths about faith's role in caregiving?

Myth 1: Faith won't make a difference in the practical challenges. Myth 2: Caregivers must be perfect in their faith to make a difference. Myth 3: Faith won't alleviate the emotional toll of caregiving. Let's unravel them with our guest Dorothy Horne in this replay of Books & Chit Chat with Aging & Amazing. We touch on everything from clinical trials to the role of faith, and the power of community and positive narratives on the dementia journey.

Dorothy, a retired first-grade teacher and former columnist for a local newspaper, brings a unique perspective to the conversation as she shares her caregiving journey with her husband, Byron, who was diagnosed with early-onset Alzheimer's. Through her faith and resilience, Dorothy has found moments of grace and strength in the midst of the challenges of dementia caregiving. Her heartfelt reflections and personal experiences offer valuable insights into the role of faith in navigating the complexities of Alzheimer's and dementia, providing inspiration and support for others on similar paths. She has shared these insights in two books: Glimpses of Grace: Walking in Hope Through Alzheimer's and Ordinary Days and Glimpses of Grace: And Grace Will Lead Us Home.

In this episode, you will:

Explore the profound impact of faith in providing strength and comfort while navigating the challenges of dementia caregiving. Learn how to break free from the negative stereotypes and misconceptions surrounding an Alzheimer's or dementia diagnosis. Encounter the concept of “lightbearers” and how to become one. Discover the transformative power of community support in finding emotional resilience and practical assistance. Prepare for a positive and fulfilling life beyond caregiving by understanding the transition process and available resources After the podcast

Read Dorothy’s AlzAuthors post

Purchase Glimpses of Grace: Walking in Hope Through Alzheimer's and Ordinary Days and Glimpses of Grace: And Grace Will Lead Us Home now.

Note: We are an Amazon Associate and may receive a small commission from book sales.

Connect with Dorothy

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Mentions

Michael Verde's work - For those interested in Michael Verde's work and his insights on dementia care, you can explore his organization, Memory Bridge, and access his resources and speaking engagements.

About the Podcast

AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others.

Thanks for listening.

We are a Whole Care Network Featured Podcast

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Quality Care is the Goal at Residential Hospice Homes

Sun, 20 Oct 2024 16:05:16 +0000

My guest Susan Hearn is talking about how she is moved and motivated by her work as executive director of a residential hospice home, and why she stays in this industry. #hospice #endoflife #death #dying #caregiver #caregiving

https://pod.co/the-heart-of-hospice-podcast/quality-care-is-the-goal-at-residential-hospice-homes

Residential hospice homes provide compassionate caregiving support for the dying. My guest Susan Hearn is talking about how she is moved and motivated by her work as executive director of a hospice home, and why she stays in this industry.

Susan has a passion for serving hospice and palliative care patients and families and has been a pioneer in developing hospice programs throughout Oregon since 1993 when she helped to establish the Asante Hospice in Southern Oregon. Susan went on to pioneer a residential hospice model in Oregon, leading the way with both fundraising and the full building and policy development of Celia's House in Medford, Oregon and Hopewell House in Portland. She is motivated to give patients and their caregivers a greater voice in their end-of-life experience and in facilitating meaningful advanced care planning conversations between patients and families.

Social media for Susan Hearn

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Order your copies of The Hospice Care Plan: A Path to Comfort here, now available in English and Spanish!

Check out the free library of video tutorials from the creators of The Hospice Care Plan hospice nurses Nancy Heyerman and Brenda Kizzire here.

Read more about Nancy and Brenda and their mission to improve hospice care here.

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Tatas, Tears, and Triumph: Susie's Candid Tales of Caring for Mom

Sun, 20 Oct 2024 16:05:14 +0000

Susie Singer Carter shares the story of caring for her mother, Norma, who was diagnosed with Alzheimer's 16 years before her passing. Susie describes how she was the first to notice the signs of Alzheimer's, even as her family dismissed her concerns.

As Susie navigates her mother's declining health, she also faces personal challenges, including going through a divorce. Susie brought her mother to live with her, which impacted her teenage daughter. However, Susie was determined to provide the best care for her mother, even as she struggled to balance her career and caregiving responsibilities.

Susie's story highlights the complexities of caregiving, from managing family dynamics to advocating for her mother's wellbeing. Despite the difficulties, Susie finds purpose in sharing her experiences and becoming an elder care advocate. She uses her creative talents to produce films that shed light on the realities of Alzheimer's and the nursing home system, hoping to inspire change and support for other caregivers.

About Susie:

Susie Singer Carter is a dedicated mother, filmmaker, and Alzheimer's advocate. She approaches filmmaking with the same purpose and care as raising her daughters, instilling values of confidence, curiosity, compassion, empathy, patience, grace, hope, and love. Her mission as a filmmaker goes beyond storytelling; she strives to dismantle ageism and ableism by crafting narratives that challenge stereotypes and celebrate diversity.

Her work highlights the richness of human experience, portraying characters who defy expectations and are empowered by their unique stories. In the feature film BRATZ, she created the character Dylan, a teenager with a disability who becomes a successful DJ despite being deaf. Her Oscar-qualified film, My Mom and The Girl, features Valerie Harper in her final performance, portraying Susie's mother who lived with Alzheimer's for 16 years.

Susie collaborates with actors, writers, and crew members who share her commitment to inclusivity and authenticity, creating films that resonate deeply with audiences and inspire change. She envisions a world where age and ability are celebrated, and everyone's story is valued.

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Caring for a Wife with Alzheimer's or Dementia

Sun, 20 Oct 2024 16:00:14 +0000

Caring for a spouse with dementia is a deeply challenging and emotional journey. In this episode, hosts Marianne Sciucco and Christy Byrne Yates bring together three extraordinary guests: Richard Creighton (aka Frank Brown), Scott Rose, and Tio Stib (aka Stephen Miller), who share their personal experiences and hard-earned insights.

Richard Creighton shares his journey caring for his wife Kate, who is in the advanced stages of Alzheimer's. He discusses the daily routines that bring them joy and emphasizes the profound impact of kindness and community support. Richard blogs about their Alzheimer’s journey at Living with Alzheimer’s.com. Learn more about Richard at AlzAuthors.com.

Scott Rose opens up about the heartbreaking realization of his wife Maureen’s cognitive decline due to frontotemporal dementia. He chronicles their experience in his book We Danced: Our Story of Love and Dementia, and highlights the importance of maintaining dignity and understanding communication challenges. Learn more about Scott on AlzAuthors.com.

Tio Stib, who lost his sight around the same time his wife, Maria, was diagnosed with Alzheimer's, offers a unique perspective. He captures their poignant and humorous moments in his book My Dementia Diary: A blind caregiver’s journey with his wife and her dementia, and discusses the cultural differences in dementia care between Mexico and the U.S. Learn more about Tio at AlzAuthors.com.

After the podcast

Purchase We Danced: Our Story oove and Dementia

Purchase My Dementia Diary: A blind caregiver’s journey with his wife and her dementia

Note: We are an Amazon Associate and may receive a small commission from book sales.

Resources mentioned:

Judy Cornish, The Dawn Method

Lingraphica - A device that can help with communication for individuals with speech and language difficulties due to dementia.

Security Camera with Two-Way Speaker - A security camera with a two-way speaker can be used to communicate with a loved one who may have difficulty using traditional communication devices. It allows for verbal interaction and reassurance.

Children's Songs - Using familiar children's songs can help soothe and engage individuals with dementia, providing a sense of comfort and familiarity.

Love and Patience - The most important takeaway is the need for love, patience, and understanding when caring for a loved one with dementia. This includes being patient with family members and caregivers who may have different perspectives on the care process.

About the Podcast

AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others.

Thanks for listening.

We are a Whole Care Network Featured Podcast

Proud to be on The Health Podcast Network

Find us on The World Podcast Network and babyboomer.org

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Finding the way to a good death with Death Doula Chad Flores

Sun, 20 Oct 2024 15:55:14 +0000

Music to change your mood, why western culture fears death, and the art of achieving a “Good Death” with guest and Death Doula, Chad Flores. #CareLab #carelabit

Find Caregiver Training at https://www.higherstandardscaregivertraining.com/https:/

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Find more from Chad at linkedin.com/in/cflores-cdc-cdp-eols

@CareLabPodcast @wholecarenetwork @Asksamie @higherstandardscaregiver @higherstandardardscaregivertraining @endofifecare

Navigating the Caregiver Role: Setting Boundaries and Prioritizing Your Time

Sun, 20 Oct 2024 15:50:17 +0000

In most life projects, whether personal or professional, there is typically a planning phase. However, when it comes to caregiving, many people find themselves in the role without any prior thought or preparation, simply reacting as things unfold. It’s important to consciously decide how much time you want to dedicate to being a caregiver—whether part-time, full-time, remotely, or by providing only financial or emotional support. Once you’ve made that decision, it’s crucial to establish your non-negotiables: which tasks you can and want to handle, and which ones you cannot. Regularly reassessing these aspects is a healthy approach.

AARON ADAMS: Caregiver and Author - A Son's Harrowing Journey Through Our Broken Healthcare System

Sun, 20 Oct 2024 15:45:11 +0000

In honor of Residents’ Rights Month, Don and I, along with our special guest-host, Producer Rick Mountcastle, the former US attorney famed for his role in the Purdue Pharma case, are highlighting the importance of listening to residents who live in our country’s nursing homes, assisted living and board and care facilities.

In episode 96, our guest, AARON ADAMS, helps us explore the emotional labyrinth of healthcare navigation which in too many cases isn't always kind. Aaron is a son, author inventor and former caregiver for his father, Thomas Adams, was a robust 75-year old. After treatment for heart issues, Thomas was sent to an acute rehab hospital.

Through Aaron's poignant personal story caregiving for his father, we unveil the harsh realities of seeking adequate medical care and the systemic flaws that many families encounter. From Aaron's fiery exchange with healthcare providers who underestimated his father's needs, to the desperate struggle of a family fighting against hospital bureaucracy to grant their father a peaceful end at home, these narratives underscore the dire need for advocacy and transparency. Rick Mountcastle lends his legal expertise, dissecting these challenges and providing a sobering perspective on patient neglect and the systemic issues at hand. In a world where medical decisions can feel like a battlefield, the emotional rollercoaster of advocating for loved ones becomes evident. As families grapple with complex treatments and the ethical dilemmas surrounding end-of-life care, they find themselves questioning the motivations of medical professionals and the adequacy of patient care.

The stories shared here emphasize the importance of informed advocacy, the emotional toll of feeling sidelined, and the sacrifices made to ensure dignity and respect for loved ones. Join us as we unravel these deeply personal and universal struggles, offering insights and solidarity to those navigating similar journeys.

Connect with Aaron Adams on Facebook.

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Inside A Dementia Mind, Part 1

Sun, 20 Oct 2024 15:40:16 +0000

Living with FTD is a journey filled with unexpected twists and turns. Janice Swink bravely shares her experiences,shedding light on the challenges and triumphs of living with this complex condition.

From hallucinations to fluctuating abilities, Janice's story is a powerful reminder that FTD affects everyone differently. Her openness about her struggles is breaking down barriers and fostering understanding.

By sharing her journey, Janice is challenging misconceptions and inspiring hope. Join us as we delve deeper into the world of FTD and discover the strength and resilience of the human spirit.

Shave, Brush Teeth, Trim Nails and Hair: Four Essential Tips / Alzheimer’s and Other Dementias

Sun, 20 Oct 2024 15:35:14 +0000

As caregivers for our loved ones with Alzheimer's and other types of dementia, we've learned that shaving, trimming nails, brushing teeth and trimming hair - what we’re calling personal care - can become challenging. These challenges often arise around the same time as bathing and dressing difficulties. How we provide support for our loved one will vary based on whether they stay at home during their journey or move into a care community. Not surprisingly, personal care is an area where many tips can be provided!

Through our experiences, what we've learned from support groups, and others on their journeys, we've developed four initial areas of tips to help you and your care receiver with their personal care.

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Additional Resources Mentioned

These resources contain affiliate links so we may receive a small commission for purchases made at no additional cost to you.

Electric razor For men here For women here Oral swabs here Electric hair trimmers here Full Show Notes https://thecaregiversjourney.com/personal-care-four-essential-tips-alzheimers-and-other-dementias/

Takeaways

Understanding Personal Care Challenges in Dementia Care

Tip 1: Mastering the Art of Shaving

Transition to an electric razor as early as possible.

Begin your support by prompting and supervising, gradually inserting yourself into the process. Try shaving when your care receiver is calm, possibly after meals or during naps. Aim to shave men's facial hair at least every other day to prevent discomfort from longer hair. For women, transition to electric razors for safety. Women also tend to become comfortable with letting their body hair grow. As early in their diagnosis as possible, get a thorough dental examination. If there is any dental work that's important to be completed, do it while they still understand and can participate. Consider transitioning to a dentist specializing in disabilities. If possible increase dental visits to every three months. Start by reminding your care receiver and supervising their tooth brushing. Gradually take over the process - for example, begin by handing them their toothbrush, transition to handing them their toothbrush with toothpaste on it, then transition to beginning to brush their teeth. Use a soft-bristled toothbrush and less toothpaste to prevent swallowing. Consider using disposable oral swabs with mouthwash for additional cleaning.

Tip 4: Hair Care and Trimming

Take photos of the hair style your loved one has. If they color their hair, talk about keeping it colored or letting it become their natural color. There are hair stylists who will come to your home instead of you having to go into a salon. Consider transitioning to easier-to-manage hairstyles. Learn basic haircutting techniques or ask their stylist to teach you. For women, longer hair in a soft bun might be easier than short styles. Personal care trimmers are very helpful for both men and women for eyebrows, hair in the ears and nose.

Read More in This Blog here

Everything is a Little Broken (with special guest Rebecca Sugar)

Sun, 20 Oct 2024 15:30:16 +0000

In this episode, Sarah interviews author Rebecca Sugar about her journey caring for her father and her book about a fictional family's caregiving journey.

You can find more information about Rebecca on her website:

rebeccasugaronline.com

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Personal Side Effects & Understanding Supplements with Dr. Reshma Kapadia Patel

Sun, 20 Oct 2024 15:26:10 +0000

What's the real deal with supplements? Should we take them, are they safe, and how can we tell??? Get the low-down from pharmacist Dr. Reshma Kapadia in this episode of CareLab! #carelab #carelabit

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Rewiring Your Mind: The Journey from Self-Sacrifice to Self-Care

Sun, 20 Oct 2024 15:20:22 +0000

The brain has certain ways of thinking that make it difficult to follow advice, even when we receive it, until our brain actually believes it. As women, many of us were raised to prioritize the well-being and service of others over our own, and changing this mindset requires a conscious process and effort. The first step is becoming aware of the internal dialogue we have with ourselves. Once we recognize these thoughts, we can begin to introduce neutral thoughts, gradually teaching our brain to accept them. Ultimately, this will allow us to integrate thoughts of self-care and kindness, creating a more compassionate mindset toward ourselves.

This journey toward self-compassion isn't about disregarding others but rather creating balance. When we care for ourselves, we are in a better position to care for those around us. The process is gradual, but each step is an investment in our emotional and mental well-being, helping us become stronger and more resilient caregivers, partners, and individuals.

How Death Teaches the Best Life Lessons

Sun, 06 Oct 2024 16:44:38 +0000

The last conversation you want to have shouldn’t be the last one you do have. Filmmaker Johanna Lunn is using her lifelong curiosity about death to bring documentaries about "What happens when we die," to life. She’s the co-founder of the When You Die Project which hosts a resource-rich website, podcast, and documentary trilogy.

The When You Die Project is here to facilitate a cultural dialogue most often avoided — one that begins at the end. From existential afterlife questions such as “What happens when you die?” to palliative care, and the nuts and bolts of preparing for end of life. If it has to do with death, they’re talking about it.

Award-winning producer, director, and writer Johanna Lunn has contributed to many profoundly thought-provoking programs during her 35 years in filmmaking. In addition to film festival awards, her work has received eight Canadian Screen Award nominations and won three. Her work has been shown around the world.

Join When You Die on Nov. 23, 2024 for a showcase of the 3rd film in the When You Die Trilogy - Architecture of Death: The Inner World of Dying Screening, followed by a panel discussion and Q&A!

When: Nov. 23 from 4:30 - 7:30 pm PST

Where: Los Angeles Performing Arts Conservatory

Purchase your tickets here.

Follow When You Die to keep up to date on all future events, receive death-related resources, listen to podcasts, and more!

Website: www.WhenYouDie.org

Facebook: @whenyoudiecommunity

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LinkedIn: https://ca.linkedin.com/company/whenyoudie-org

LinkedIn Profile: www.linkedin.com/in/johannajlunn

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Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Butterflies and Breast Cancer Amid Dementia Caregiving with Allene Symons

Sun, 06 Oct 2024 16:44:30 +0000

Marianne and Christy engage in a heartfelt conversation with Allene Symons, devoted caregiver to her late husband Allen, who battled Lewy Body dementia. She’s the author of Love in a Time of Caterpillars: A Memoir of Monarchs and Caregiving. Her unique perspective on utilizing butterfly gardening as a source of therapy and joy, along with her insights on managing personal health crises during caregiving, make her a compelling and relatable guest. Allene shares how their hobby of tending to a butterfly garden became a source of therapy and hope, offering moments of respite and joy amidst the challenges of dementia. The simple act of observing caterpillars transforming into butterflies not only brought light to her husband's eyes but also became a cherished activity that bonded their caregivers with the natural world, providing a sense of purpose and connection. Allene's story beautifully illustrates the profound impact of outdoor activities and nature therapy in dementia care, showcasing the power of finding beauty and comfort in the midst of adversity. Her experiences highlight the importance of nature therapy, and the challenges faced by caregivers, especially amidst the disruptions caused by the COVID-19 pandemic. She also shares the difficulties she endured when she was diagnosed and treated for breast cancer during the pandemic.

Quote

"The extreme flexibility we need when we're caregivers who are a loved one with dementia is core to the journey."

In this episode you will:

Discover the unexpected connection between butterfly gardening and dementia care. Find out how one caregiver found joy and solace in nature therapy. Learn effective strategies for managing technology with dementia patients. Understand the unique impact of COVID-19 on dementia care and how to navigate it. Explore the compassionate use of loving lies in dementia caregiving. Embrace the importance of outdoor activities in improving the emotional well-being of dementia patients. After the podcast

Read Allene’s AlzAuthors post: we'll get this once it's published.Connect with Allene

Website

X-Twitter

Facebook

Instagram

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Mentions

Alzheimer’s Association Companion cards PDF (download and print)

About the Podcast

AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others.

Thanks for listening.

We are a Whole Care Network Featured Podcast

Proud to be on The Health Podcast Network

Find us on The World Podcast Network and babyboomer.org

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Finding the Humor in Caregiving with Gov. Martin Schreiber

Sun, 06 Oct 2024 16:44:21 +0000

Therapeutic fibbing, touching hearts, and "Excuse me, does this plane land in Detroit?" Former Wisconsin Governor Marty Schreiber regales us with a story of wisdom, humor, and love as he shares he and his wife Elaine's journey through Alzheimer's. If you care for someone with dementia, this episode is a must! #carelab #carelabit

Find the book and more from Former Gov. Schreiber at https://mytwoelaines.com/

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Bowel and Bedbound Incontinence: Two Essential Topics / Alzheimer’s and Other Dementias

Sun, 06 Oct 2024 16:44:10 +0000

As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned that full incontinence is an inevitable part of our journey. It’s a topic not often discussed, yet it’s a reality for us to navigate with compassion, dignity, and preparation — for both us and our care receiver. We are Nancy Treaster and Sue Ryan. Through our experiences, we’ve developed 2 valuable tips to help you navigate bowel and bedbound incontinence in your caregiving journey.

Watch Bowel and Bedbound Incontinence: Two Essential Topics / Alzheimer’s and Other Dementias

https://youtu.be/PD4zOctyfPw

Takeaways

Read More in This Blog here

Additional Resources Mentioned

Episode 10 - Incontinence Begins here
Episode 11 - Cleaning Your Care Receiver here
Changing a bedbound care receiver YouTube video here
Changing a Depend with a bowel movement here
Disposable incontinence underwear
For women here
For men here
Wheels for bed
Bed with rails
Wedge pillow
Adaptive clothing
Shorts snap up here
Pants snap up here
Very nice adaptive clothing here
Non-rinse bathing wipes here
Adult washcloths/wipes here
Disposable incontinence pads here
Round tipped scissors here
Scented small trash can liner here
Adult incontinence can here

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Thanks for listening! If you enjoyed this episode, please leave a review and subscribe on your favorite podcast platform.

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Email: sue@thecaregiversjourney.com, nancy@thecaregiversjourney.com

Embracing the Mess: Lessons on Caregiving and Self-Care for the Caregiver Warrior

Sun, 06 Oct 2024 16:43:58 +0000

Susanne White's caregiving journey began unexpectedly when she received a call from her sister about their aging parents. Susanne's mother was in the early stages of dementia, while her father was struggling to care for her. As the eldest sibling living closest, Susanne immediately stepped up to become the primary caregiver for her parents.

Over the next four years, Susanne navigated the challenges of caregiving, including her strained relationship with her controlling mother. However, through this intense experience, Susanne was able to heal that relationship and gain a deeper understanding of herself. She describes the caregiving journey as "recovery and understanding and self-awareness on steroids," which ultimately made her a better version of herself. Even after the passing of her parents, Susanne continues to reflect on the lessons she learned as a caregiver warrior and how it transformed her life.

Susanne's story highlights the profound personal growth that can emerge from the trials of caregiving. Her willingness to be vulnerable and acknowledge the messiness of the experience resonates with many who are also on their own caregiving journeys. Susanne's insights on the importance of self-care, accepting emotions, and finding silver linings provide valuable guidance for fellow caregiver warriors.

About Susanne:

Susanne White is the Founder of Caregiver Warrior. She was faced with the opportunity to care for her parents and ventured out on a caregiving journey that would change her life. She blogs about this journey on her website, caregiverwarrior.comand shares her experience, strength and hope with others so that they too may navigate caregiving with grace and empowerment. White’s latest book, Self-Care for Caregivers: A Practical Guide to Caring for You While You Care for Your Loved One, is now available at your favorite book stores. Visit caregiverwarrior.com for more information from Susanne White, or follow her on X (formerly Twitter), LinkedIn, Facebook and Instagram

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How Baby Doll Therapy Helps Dementia

Sun, 06 Oct 2024 16:43:33 +0000

Baby doll therapy, often associated with women and motherhood, offers unexpected benefits for individuals with dementia. This innovative approach has proven effective in engaging patients, improving their verbal communication, and providing comfort during challenging times.

Contrary to popular belief, baby doll therapy is not exclusive to women or those who have had children. Men, too, can find solace and connection through this unique form of therapy. By fostering a sense of nurturing and responsibility, baby dolls can help individuals with dementia feel more grounded and engaged.

If you're considering incorporating baby doll therapy into your care routine, it's essential to approach it with sensitivity and understanding. Observe your loved one's reactions and adjust the therapy as needed. Remember, the goal is to create a positive and meaningful experience that promotes well-being.

Finding Calm in the Chaos: Small Daily Rituals to Stay Grounded and Recharged

Sun, 06 Oct 2024 16:42:27 +0000

"How do you find time for yourself when so many things are happening around you? There are countless tasks to do, and it often feels like there’s hardly any time left for self-care. Most people think of self-care as taking two hours at the spa or going on a week-long vacation—focusing on the big picture. But sometimes, this way of thinking turns self-care into just another thing on your to-do list, something else you *have* to accomplish, which can feel overwhelming.

Instead, it’s helpful to find something you can do for yourself on a daily basis, something that will ground you and bring you back to your center. These small activities don’t have to be grand gestures; they can be simple things that help you stay connected to yourself and give you the strength to keep moving forward.

Ask yourself: What soothes your senses? What calms your mind? Is it something like doing Sudoku, meditating, or reading? How do you stay physically active? Is it stretching, working out, or just taking a walk? And how do you stay connected with others?

It’s important to identify the little things that ground you—those small, daily practices that give you a sense of stability and peace amidst the chaos. These simple habits can become your anchors, helping you recharge and face life’s challenges with renewed energy."

Surpising Advice From a Devoted Dementia Caregiver

Fri, 27 Sep 2024 15:10:09 +0000

Rosanne Corcoran, host of Daughter the Podcast is sharing her best advice about being a caregiver for a person dealing with dementia. As caregiver to her mother for 12 years, Rosanne learned how to navigate the healthcare system as an advocate, deal with sleep deprivation, and to care for herself along the way.

Rosanne Corcoran is the creator and host of Daughterhood the Podcast. She is also a Daughterhood Circle leader and their Director of Content. She cared for her mother through her journey with vascular dementia, starting as a supportive caregiver to an in-home sandwich caregiver for her mother’s final six years. In each monthly podcast, Rosanne interviews experts in the field, asking questions caregivers want to know the answers to – with topics ranging from dealing with dementia behaviors, to siblings and caregiving, through end of life care, grief and everything in between. Rosanne carries her authenticity and caregiving experience into each interview. Along with strategies and resources, this podcast also provides listeners with the comfort of knowing they are not facing these challenges alone.

Rosanne has been featured in NPR, CNN Health, Barron’s, and Next Avenue and was most recently named one of Next Avenue and American Society on Aging’s 2024 Advocates for Aging.

You can connect with Rosanne Corcoran:

https://www.facebook.com/DaughterhoodThePodcast/

https://www.instagram.com/daughterhood_the_podcast/

https://daughterhood.org/

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https://www.youtube.com/channel/UCuFAJCb7_tTneM_ikABq08Q

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

My Caregiving Mission with Mark Wilson

Fri, 27 Sep 2024 15:05:09 +0000

In this episode of the Happy Healthy Caregiver podcast, meet Mark Wilson, a former senior leader at Taco Bell with a focus on organization and people development. After retiring early to care for his mom, who lived with mixed dementia, Mark embraced the role of a 'Care Leader.' Combining his corporate HR skills with his caregiving journey, he developed a dedicated care mission, hired and retained top-notch professional caregivers, and became a passionate learner about dementia care.

In this episode, we also delve into Mark's new missions since his caregiving duties have ended and explore how 'holy moments' and the 'mood elevator' have shaped his daily life.

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Challenges Caregiving For Difficult People

Fri, 27 Sep 2024 15:00:12 +0000

Feeling Strained in Your Caregiving Role? Rebuild a Stronger Relationship!

Caring for a loved one with a challenging personality can be emotionally draining. This episode offers practical strategies to navigate these complexities and build a more positive caregiving dynamic. Learn how to:

Develop empathy and understanding: Discover techniques to see things from your loved one's perspective and address the root causes of difficult behaviors. Set healthy boundaries: Learn how to prioritize your own well-being while effectively caring for your loved one's needs. Communicate openly and compassionately: Develop stronger communication skills to foster a more respectful and supportive relationship. We'll share the inspiring story of a daughter who transformed her caregiving experience by shifting her perspective and prioritizing self-care. Discover how you too can create a healthier relationship dynamic and navigate the challenges of caregiving with greater confidence. Sherri Yarborough is caring for her 93 year old mother. She also started Praxis Senior Caregiving Solutions. She realized that to survive caring for her Mom, she was going to have to rectify their past relationship struggles. This episode, she shares how she made that happen.. She earned her Ph.D. in Educational Policy Studies from the University of Illinois at Urbana-Champaign. Her education as a policy analyst was an invaluable tool for managing the interpersonal changes to the relationship with her mother.

Dr. Yarbrough's decade long experience as a family care-giver has taught Dr. Yarbrough the importance of including herself and her needs in the care journey with her mother. Dr. Yarbrough’s ability to view a circumstance from multiple perspectives became the genesis for her Praxis for Care. The Praxis for Care is a strategy that helps family care-givers identify what they need in order to meet the needs of a loved one. The Praxis for Care is the foundation for her motto: care-giving is what you do for your loved one; giving-care is what you do for both of you. She created her business to give family care-givers a resource for navigating the demands of caring for a loved one.

Caregiving, Companionship, and the Unbreakable Bond: Bob Kay's Heartwarming Story

Fri, 27 Sep 2024 14:55:07 +0000

Bob Kay's caregiving journey with his wife Pat was one marked by deep love, resilience, and profound personal growth. After meeting as teenagers and building a life and business together over 45 years of marriage, Bob faced the devastating challenge of caring for Pat as she battled stage 4 breast cancer.

Through the ups and downs of Pat's treatment and declining health, Bob demonstrated unwavering commitment and compassion as her primary caregiver. He navigated the complexities of the medical system, learned hands-on caregiving skills, and leaned on the support of his daughter to ensure Pat's comfort. Despite the physical and emotional toll, Bob refused to give up, drawing strength from his love for Pat and their shared vision for their company and family.

Bob's caregiving experience also had a profound impact on him personally. He candidly shared how the trauma of losing his wife led to PTSD-like symptoms, which he has worked to manage through self-reflection and mentoring others. Remarkably, Bob has channeled his challenges into growth, becoming a more empathetic leader and finding joy in activities like video gaming with his family. His story is a testament to the transformative power of caregiving and the importance of resilience, connection, and self-care in the face of life's most difficult trials.

About Bob:

Bob Kay's journey is marked by resilience and partnership. He met Pat through mutual acquaintances and bonded over music at church, where she supported him during a challenging time of homelessness. They married on May 11, 1974, after a sweet proposal in a church parking lot. Together, they navigated college, with Bob pursuing engineering and Pat earning a business degree, eventually having two children.

In 1988, following an aerospace career and amid industry scandal, Bob and Pat founded Elite Engineering. Their collaborative efforts combined business acumen and engineering expertise, leading to a successful consultancy. Sadly, Pat's life was cut short by stage 4 breast cancer, diagnosed on their 45th anniversary. Despite the challenges, including a severe injury from a chiropractor, Pat remained a source of strength until her passing on January 2, 2020. Bob cherishes the valuable lessons and memories they shared throughout their journey together.

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Cleaning Your Care Receiver: Three Essential Tips / Alzheimer's

Fri, 27 Sep 2024 14:50:08 +0000

As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned managing incontinence is one of the most challenging aspects of our journey. It’s a topic where having detailed information is vital to our adjusting to this part of our journey mentally, physically, and emotionally.

We are Nancy Treaster and Sue Ryan. Through our experiences, and insights we’ve learned from others in support groups, we’ve developed three indispensable tips to help you navigate the important component of incontinence care with your care receiver — cleaning them

Takeaways here

Additional Resources Mentioned

Episode 10 - Incontinence Begins here Episode 12 - Bedbound and Bowel Incontinence here Episode 13 - Incontinence Overnight here Adaptive clothing Shorts snap up here Pants snap up here Very nice adaptive clothing here Disposable incontinence underwear For women here For men here Adult washcloths/wipes here Non-rinse bathing wipes here Disposable incontinence pads here Round tipped scissors here Rate, Subscribe and Share Your Tips on Social Media!

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Mythbusters: Are PT & OT Basically the Same?

Fri, 27 Sep 2024 14:45:08 +0000

OT and PT, PT and OT... what IS the difference??? In this episode of CareLab, Emilia and Brandy share how their overactive imaginations may not be the best fit with scary movies, then get serious busting PT vs. OT myths while giving a helpful primer on how rehab works at different levels of care. #carelab #carelabit

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Stay in Your Power (with special guest Dr. Dolores Fazzino)

Fri, 27 Sep 2024 14:40:09 +0000

In this episode, Sarah interviews Dr. Dolores Fazzino about how energy healing can assist Western medicine.

You can learn more about Dr. Fazzino at: Home (drdoloresfazzino.com)

You can find more of us at:

Stelmach Brown Media llc

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Small Wins, Big Impact: Celebrating Life's Milestones in the Caregiver Journey

Fri, 27 Sep 2024 14:31:53 +0000

As children, we celebrate the small milestones like standing up for the first time or taking a first step. But as we grow older, we often stop celebrating these small achievements. It would be beneficial to start acknowledging and celebrating the little things in life again, including the small accomplishments we make.

Celebrating is important because it boosts our self-esteem and confidence. It also helps break down long processes into manageable, smaller parts. For caregivers, the journey can feel long and exhausting, and though it may seem like there’s nothing to celebrate, there are small wins along the way that deserve recognition.

Allowing ourselves to appreciate these moments helps us improve in our caregiving role. In the business world, every department has milestones, and throughout the development of a project, teams often celebrate these milestones during meetings. It lifts spirits, refreshes the team, and brings motivation.

Caregiving is no different. Celebrating small wins along this challenging path can offer the same encouragement and a much-needed break. Today is a good day to celebrate, to acknowledge the little victories, and to give ourselves credit for doing our best despite the challenges.

Get the Help You Need to Navigate a Hospice Journey

Sun, 22 Sep 2024 05:30:05 +0000

Hospice nurse and End of Life Doula Gabby Jimenez of The Hospice Heart is our guest host for today’s episode, featuring a discussion of Hospice Navigation Services. When you’re looking at making decisions about end of life care for yourself or someone you love, things can seem frightening and confusing. Hospice Navigation Services can help you figure things out. We can help you feel just a little less lost.

Hospice Navigation Services was founded by Hospice and Palliative Certified RN Helen Bauer, a respected voice in the end of life industry. Helen acts as Lead Navigator for Hospice Navigation Sessions and can guide you through discussions about hospice care, how to choose an agency, and whether your current hospice care is the best fit for you and your person.

It’s your journey. We'll be your expert guide.

Book your Hospice Navigation Session today at theheartofhospice.com.

Connect with Gabby Jimenez:

Website: thehospiceheart.net

Contact: thehospiceheart.net/contact

Buy Gabby’s books: thehospiceheart.net/books

Book Gabby to speak at your event: thehospiceheart.net/book-gabby

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Interested in purchasing a GrandPad to stay connected with a senior loved one?

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Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Supporting Your Mental Health While Caregiving with Susan Weinstein, Esq.

Sun, 22 Sep 2024 05:15:07 +0000

Mental health is crucial for overall well-being at every stage of life. It encompasses our emotional, psychological, and social well-being, influencing our thoughts, feelings, actions, stress management, relationships, and decision-making. Supporting your mental health is especially important during caregiving.

In this episode, we discuss the difference between depression and malaise, how to spot depression in our cells and our care partners, and practical strategies and resources to support our mental health on a daily basis. I hope you enjoy our conversation.

TRANSCRIPT AND RESOURCES

Caregiver Recovery

Sun, 22 Sep 2024 05:00:09 +0000

Who knew that understanding the stages of incontinence could make such a difference in our caregiving journey? As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned incontinence is an inevitable - and can be - a challenging part of our journey. It’s a reality and a topic that’s not often discussed. It’s helpful for us to be prepared to navigate incontinence with compassion, dignity, and grace for our care receivers and for us. We are Nancy Treaster and Sue Ryan. Through our experiences, we’ve developed four tips to help you navigate the pre-incontinence and early incontinence phases on your caregiving journey.

Takeaways

Before we introduce your tips, it’s helpful to understand what we mean by ‘pre-incontinence’ and ‘early incontinence’.

Pre-Incontinence

This is the phase before actual incontinence begins, when our care receiver is showing signs incontinence may be on the horizon.

Signs include:

Using the trash can instead of the toilet for toilet paper Not flushing the toilet Resisting drinking to avoid bathroom trips Looking around anxiously (potentially for a bathroom)

Early Incontinence

When actual incontinence begins, it usually starts with urinary incontinence. Your loved one may still be trying to find the bathroom but often doesn’t make it in time.

Signs include:

Not getting to the bathroom fast enough Holding their stomach, bottom, or between their legs

Tip 1. Make it Easy to Find the Bathroom

Yes, to us this sounds simple. To our loved one, they are disconnecting with the signs their bodies are telling them they need to go, and the steps to use the bathroom. One of the most effective ways to support your loved one during pre-incontinence and early incontinence is by making the bathroom as accessible and easy to find as possible.

Tip 2. Schedule Bathroom Breaks

Establishing a consistent bathroom routine can significantly reduce accidents and make the transition into full incontinence more manageable.

Tip 3. Simplify Cleanup

As incontinence progresses, accidents will happen. Being prepared can make cleanup easier and less stressful for both you and your loved one.

Tip 4. Think Positively and Have Lots of Grace

Perhaps the most important tip of all is to maintain a positive attitude and extend grace to both you and your loved one.

Read More in This Blog here

Additional Resources Mentioned

Episode 11 - Cleaning Your Care Receiver here Child proof door knob cover or double deadbolt locks for external doors Child proof door knob covers here Extra tall pet gate from (40” to 70”) - 57” here Disposable incontinence underwear For women here For men here Pads Mattress pads 34”x36” here 72”X36” here Disposable incontinence pads here Brown large pet pee pads here Easy mops Swiffer mop here Bona here Hard surface cleaners Pine Sol here Pooph here Odoban here Fabuloso here Carpet cleaning Resolve Urine Destroyer here Resolve Ultra Pet here Bissell Pet Carpet Cleaner here Resolve Urine Destroyer Carpet Cleaning Machine Formula here

Rate, Subscribe and Share Your Tips on Social Media!

Thanks for listening! If you enjoyed this episode, please leave a review and subscribe on your favorite podcast platform.

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Christy Byrne Yates on Raising Kids While Caring for Parents with Dementia

Sun, 22 Sep 2024 04:45:08 +0000

One parent with dementia is challenging enough, but when you have TWO parents with dementia while raising young children it’s easy to fall into despair and chaos. When Christy Byrne Yates, a licensed educational psychologist, writer, and speaker, found herself in this situation she learned the necessary skills she needed to not only provide care to her parents and children but also to herself.

In this replay of the AlzAuthors Aging & Amazing Books & Chit Chat discussion, she shares her insights, offering practical tips on navigating family dynamics, building a legacy of love in caregiving, and providing emotional resilience and support

Christy's openness about her emotional struggles and the lessons learned from her parents offers a profound exploration of the caregiving experience, reminding listeners of the enduring power of love, empathy, and self-discovery within the caregiving journey. Her unique perspective and heartfelt reflections make this episode a must-listen for anyone seeking valuable insights and guidance in managing the complexities of caregiving for aging parents, especially those dealing with dementia.

Author of Building a Legacy of Love: Thriving in the Sandwich Generation, she’s a member of the AlzAuthors management team, and co-host and producer of the "Untangling Alzheimer's & Dementia" podcast.

In this episode, you will:

Discover the power of self-care while caring for parents with dementia. Uncover the secrets to building a lasting legacy of love in your caregiving journey. Navigate and defuse challenging family dynamics while caring for loved ones. Unlock the top tips for managing the unique challenges of being a sandwich generation caregiver. About Christy Byrne Yates, MS

In addition to being an author, Christy is a Licensed Educational Psychologist (LEP), a credentialed school psychologist, a speaker, and life coach. As the mother of two – now grown – children, she became an expert in navigating life’s challenges and opportunities, including living in the “Sandwich Generation,” those raising children while caring for aging parents.

After the podcast

Read Christy’s AlzAuthors post: Christy Yates Helps Caregivers Raising Children Ease the Squeeze

Purchase Building a Legacy of Love: Thriving in the Sandwich Generation.

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About the Podcast

AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others.

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Why Karaoke and Compression are GREAT with Sarah Dillingham

Sun, 22 Sep 2024 04:15:05 +0000

What's YOUR go-to Karaoke song? Leave a comment, then listen to how Sarah Dillingham is making arthritis care more beautiful. #carelab #carelabit

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Unlocking the Power of Music: An Interview with Tara Jenkins on How Music Heals the Mind and Soul

Sun, 22 Sep 2024 04:00:11 +0000

In this podcast, we interview Tara Jenkins who explains how our brains are constantly firing and making connections when we listen to music. There's a lot of science behind how music can engage different centers of the brain. Music can be a valuable tool for caregivers, both by using it with their loved ones and for themselves. Knowing the music that your loved ones enjoy is a great starting point. Besides other tips she explains how matching your breathing to calming music can help soothe you.

http://www.harmonyindementia

How to Train Your Doctor with Dr. Matthew Tyler

Sat, 21 Sep 2024 17:15:07 +0000

Hospice and palliative physician Dr. Matthew Tyler is teaching us how to have conversations with your healthcare team about what matters most to you. In addition to his work as medical director of palliative care services, Matthew educates the public about having meaningful discussions with their healthcare teams, especially the doctor. He calls it “How to Train Your Doctor”. People with serious illnesses, along with their decision-makers, can get better care if they know how to communicate their needs.

Matthew tackles some of the trickiest topics with his How to Train Your Doctor social media posts. Feeding tubes, CPR/DNR decisions, confusing medical jargon, and palliative care are included in YouTube videos and Instagram posts. Matthew says it’s important to determine what the patient considers a meaningful outcome, and what the goals of the patient care are.

Credit for the healthcare "f-word" (medically futile) goes to Dr. Nathan Gray, M.D. of inkvessel.com.

Connect with Dr. Matthew Tyler at howtotrainyourdoctor.com

Download your free Goals of Care Jump Starter document here.

Website: https://howtotrainyourdoctor.com/

Instagram: https://www.instagram.com/howtotrainyourdoctor/

YouTube: https://www.youtube.com/@howtotrainyourdoctor

Interested in purchasing a GrandPad to stay connected with a senior loved one?

Get more information at https://www.grandpad.net/thoh.

GrandPad website: https://www.grandpad.net/

Social Media for GrandPad

https://facebook.com/grandpad

https://instagram.com/grandpad_social/

https://www.linkedin.com/company/grandpad

https://www.youtube.com/channel/UCuFAJCb7_tTneM_ikABq08Q

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

JEN TREJO: The Power of Love and Advocacy - A Mother's Fight for Better Long-Term Care

Sat, 21 Sep 2024 17:10:07 +0000

How can a system meant to care for our most vulnerable turn into our worst nightmare? Join us as we kick off a special series of Love Conquers Alz episodes, inspired by our soon-to-be-released documentary, "No Country for Old People." We’re honored to have Rick Mountcastle, former U.S. attorney and co-producer of our documentary, with us. Rick offers his eye-opening experiences prosecuting nursing homes for fraud and abuse. Together, we hope to shed light on the urgent need for public awareness and collective action to combat the systemic neglect rampant in the long-term care industry. In this series, we will present personal narratives that serve as powerful calls to action, urging us to demand better care standards and advocate for systemic change.

In this episode, we feature the poignant account of Jen Trejo, who faced unimaginable hardship after her son Christopher (whose story was featured in the Netflix limited series "Painkiller") was prescribed OxyContin. From a mother's gut-wrenching moment of signing surgery papers for her son, to the neglect suffered within skilled nursing facilities, her story uncovers the severe failings of our profit-driven healthcare system. Jen shares the struggle of finding appropriate care for a loved one with a history of drug addiction and the frustrations of a system that prioritizes financial considerations over patient care. Jen also talks about the poor conditions in certain facilities and the lack of support for patients with more intensive care needs are also examined.

We also explore the transformative power of love and advocacy in these challenging times and how collective efforts have sparked progress, especially in addressing the opioid crisis and improving caregiving standards.

From the emotional toll of dealing with addiction and inadequate medical care, to the relentless pursuit of improvement despite resistance, this episode underscores the importance of empathy, persistence, and the human spirit in driving change. Tune in and join us in our mission to make a real difference.

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AgingGayfully™ Happy Grandparents' Day!

Sat, 21 Sep 2024 17:00:11 +0000

Josh and Chris discuss Grandparents Day and the experiences of gay grandparents. They share personal stories and highlight the importance of community and support for aging LGBTQ+ individuals. The conversation emphasizes the value of chosen family and the impact of acceptance and love in the lives of grandparents. They also touch on the challenges faced by gay grandparents and the need for connection and understanding.

Takeaways

Grandparents, including gay grandparents, play a significant role in the lives of their families and can have a lasting impact on their grandchildren.
The experiences of gay grandparents can vary, with some facing acceptance and support from their families while others may experience rejection or strained relationships.
Finding a community of like-minded individuals, such as through support groups or social networks, can provide a sense of belonging and understanding for gay grandparents.
Chosen family, consisting of close friends and mentors, can also play a vital role in providing support and connection for aging LGBTQ+ individuals.
Creating a safe space for sharing stories and experiences can help combat feelings of isolation and provide comfort and validation for gay grandparents.
The theme of Grandparents Day, 'Great Minds Learn Love Legacy,' highlights the importance of lifelong learning, love, and leaving a positive legacy for future generations.

A gay senior, Christopher MacLellan, and an ally, Josh Wilson, podcasting about life, love, liberty and travel.

Don't Say Gay?... Say AgingGayfully™!

AgingGayfully™ is about living life with dignity in an age-friendly society regardless of orientation or economic status because longevity is a justice issue.

AgingGayfully™ is about finding your voice as we age. We are all part of the aging process and have real connections in diversity.

AgingGayfully™ is a modern type of activism that supports the concept of belonging.

AgingGayfully™ is about Adventure, Leisure, Travel, being a citizen of the world, traveling to destinations, and being part of the global community as we age and prosper in body, mind, and spirit.

Caregiving Reinvented: Paul's Innovative Approach to Supporting His Parents

Sat, 21 Sep 2024 16:45:08 +0000

Paul Ptashnick is back with us continuing his story of his caregiving journey. When his father was diagnosed with Parkinson's shortly after retirement, Paul stepped up to provide support, navigating the complexities of his father's declining health. His story takes an unexpected turn when Paul's mother is also diagnosed with Lewy body Parkinson's, requiring him to juggle the care of both parents simultaneously.

The challenges Paul faces are multifaceted, from his mother's phobia of nursing homes to the differing symptoms exhibited by his parents. Paul's proactive approach, including finding a family friend to provide overnight care for his wandering mother, showcases his resourcefulness and dedication. Additionally, Paul's insightful decision to involve his mother in daily tasks like laundry and cleaning demonstrates his understanding of the importance of maintaining a sense of purpose for those living with Parkinson's.

As Paul's caregiving journey evolves, he encounters the complexities of navigating the healthcare system, particularly when his mother transitions to hospice care. Paul's willingness to make tough decisions, such as opting out of hospice at times, highlights his ability to prioritize his mother's well-being and his own mental health. Throughout it all, Paul's commitment to self-care, including seeking therapy, exemplifies the importance of caregivers tending to their own needs to ensure they can continue providing the best possible support.

About Paul:

Paul Ptashnick is a freelance copywriter and fractional marketer focused on B2B startups in the InsurTech, FinTech, and AgeTech spaces. In addition, Paul’s wife Ana is also an entrepreneur, opening Red Apron Charcuterie in 2023.

When Paul and Ana aren’t working or playing with their fur baby Marty, they are usually traveling somewhere. Paul and Ana have visited Peru many times, and they have also spent time in England, Ireland, France, Colombia, and Mexico.

For Paul’s 50th birthday, they have another European vacation planned with stops in Germany, Switzerland, Austria, and Croatia.

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Death With Dignity Dementia A Provacative Conversation

Sat, 21 Sep 2024 16:30:05 +0000

Facing a Difficult Choice: Death with Dignity and Dementia

Death with dignity, also known as medical aid in dying, offers terminally ill individuals the right to control their end-of-life decisions. But what happens when dementia enters the equation? This episode tackles the complex ethical and legal challenges surrounding death with dignity for individuals with dementia.

We'll explore:

The challenges of cognitive decline: How does dementia impact a person's ability to make informed decisions about their own care? Advance directives: A voice for the future: Can these documents truly reflect a person's wishes in the later stages of dementia? Balancing autonomy and compassion: How do we navigate the ethical considerations of respecting a patient's choices while ensuring a humane and dignified death? Discover practical strategies to facilitate open communication with loved ones about end-of-life wishes. Join us as we delve into the medical, legal, and ethical complexities surrounding death with dignity and dementia. D. Liebhart is a nurse and writer. She writes (and sometimes lives) stories about ordinary people in extraordinary circumstances, where they learn that life is rarely predictable and answers to life’s most complex questions are almost never black and white.

House on Fire, her debut novel, was long-listed for the 2022 Petrichor Prize. Her essay Thalassophobia (a true account of a very out-of-the-ordinary honeymoon) won the 2021 Linda Julian Creative Nonfiction Prize from Emrys Journal

Receiving News Your Loved One Has Had A Stroke

Sat, 21 Sep 2024 16:15:11 +0000

In this episode of Finding a Foothold, I discuss where to begin as you struggle to come to grips with the devastating news that your loved one has had a stroke. You are likely entering a new world full of unfamiliar medical jargon, different medical professionals, and so many moving parts.

It is easy to feel overwhelmed by all the information given to you, on top of the whirlwind of emotions caused by your concern about your loved one. Take a deep breath. I'm here to help. And just so you know, I have been in your shoes. During this episode, I will begin to share my personal story as both a caregiver to my mother, who had multiple strokes; And as an occupational therapist who has worked on rehab units and in home health, I will share insights on ways you can navigate the recovery process and share practical strategies that can help you support your loved one's care needs now and when they return home.

Key Points:

The importance of learning: What is a stroke? What type of stroke did your loved one have? The critical role of hope and motivation during recovery. Tune in to hear about how caregivers can stay informed, make the best decisions, and support their loved one's recovery journey.

Tune in for practical advice and heartfelt support, with more episodes to follow.

If you are a caregiver and have a question that you would like to have addressed on the Finding A Foothold Podcast, leave a comment on the website: or

You can also leave a question by filling out this Jotform:

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Consuela Marshall, Occupational Therapist, Caregiver Coach Fall Prevention Specialist Certified Aging in Place Specialist Certified Dementia Care Practitioner Certified Geriatric Care Professional

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Children's Books and Stroke Outlooks: Stroke Recovery and Caregiving with Lori Williams

Sat, 21 Sep 2024 16:00:09 +0000

If you or someone you love has recently had a stroke, this is a MUST LISTEN episode. Hear Lori and Mark's story of stroke survival, along with some of the most vital information to know if you or someone you love is recovering from stroke. #carelab #carelabit

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Find more from Lori at www.loriwilliams-seniorservices.com

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Showing Up For Your Caregiver Friends (with special guest Sabrina Ortolano)

Sat, 21 Sep 2024 15:45:06 +0000

In this episode, Sarah interviews Sabrina Ortolano, who served as a caregiver for her spouse with cancer. They discuss how you can be there for your caregiver friends.

You can find more of us at:

Stelmach Brown Media llc

Please like share and subscribe to our podcast, also if you enjoy our content and to provide us with additional support, you can tip us here https://ko-fi.com/caregiverchroniclespodcast

Or here: https://www.buymeacoffee.com/caregivercg

Unlocking Emotional Awareness: How a Simple Lyft Ride Sparked a Deeper Understanding of Our Needs

Sat, 21 Sep 2024 15:28:04 +0000

In this podcast I share with you how, during a lift I took I had an amazing conversation. As we grow older, we become more aware of what we truly need. We all go through tough times, but often, we don't pay attention to how we're feeling. This lack of awareness makes it difficult to communicate our needs to others. Learning to recognize our emotions is crucial.

Recognizing emotions involves pausing and tuning into our mental and physical states. Are you feeling anxious, tired, or overwhelmed? Identifying the emotion is the first step, but it doesn't stop there. The next step is to accept those emotions without judgment and find ways to express them constructively.

When we become more aware of our emotions, we can start having healthier conversations with those around us.

How to be a Better Healthcare Adovcate with Jacob Kendall

Sat, 07 Sep 2024 04:14:30 +0000

Being an advocate for someone in hospice care is a big job. MSW Jacob Kendall of Demystifying Healthcare is teaching us how to do it well. Advocacy for his own healthcare needs has taught him how to communicate with a healthcare team to get the best care possible. Jacob teaches about the various aspects that influence that care that’s available for patients, including time and communication. He’s also looking from a 30,000 foot view as well, acknowledging that geography, poverty, time, and policies influence the kind of care we receive.

Jacob is a fan of interdisciplinary care. He believes every specialist or discipline should be working together to create more continuity in our healthcare. In addition to clinical providers, Jacob also thinks other modalities add value to our care. Connecting with other people experiencing similar health challenges can be valuable. Jacob brings a multidimensional perspective to his work as a healthcare consumer and an educator.

Connect with Dr. Jacob Kendall, MSW MPH PhD at jacobevanskendall.com.

Talk with Jacob about speaking at your event by clicking here.

Interested in purchasing a GrandPad to stay connected with a senior loved one?

Get more information at https://www.grandpad.net/thoh.

GrandPad website: https://www.grandpad.net/

Social Media for GrandPad

https://facebook.com/grandpad

https://instagram.com/grandpad_social/

https://www.linkedin.com/company/grandpad

https://www.youtube.com/channel/UCuFAJCb7_tTneM_ikABq08Q

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Preparing Young Adults for a Family Member's Dementia: Four Essential Tips / Alzheimer's and Other Dementias

Sat, 07 Sep 2024 04:14:20 +0000

Description

When a close family member is diagnosed with dementia, it can be uniquely challenging for young adults to navigate this new reality. We are Nancy and Merritt Treaster. When Merritt was in his early twenties, his dad, who was 60 at the time, was diagnosed with Frontotemporal dementia. A few short years later, his grandfather, at the age of 85, was diagnosed with Alzheimer’s disease. Merritt’s experiences led us to create this episode to help other young adults. He has distilled his thoughts on how to be better prepared into four essential tips for young adults facing a family member’s dementia diagnosis.

Takeaways

For takeaways click here

Rate, subscribe and share your tips on social media!

Please click here to review, follow or subscribe to our podcast.

If you don’t see your preferred platform, click on Podchaser and click at the bottom “Write my review”

Connect with us and share your tips:

Keywords

Young adult, teenager, boundaries, incontinence, Alzheimer's, dementia, caregiver, caregiving, dementia care, memory care, dementia caregiver blog, Alzheimer's blog, caregiver blog, senior caregiver blog, dementia caregiver tips, how to care for someone with dementia living alone, information on dementia for caregivers, how to be a caregiver for someone with dementia, family caregiver, frontotemporal dementia, dementia caregiver tips, family caregiver, Sue Ryan, Nancy Treaster, Susan J Ryan, Merritt Treaster

Superpowers and the Power of Confidence with Nicole Cuervo

Sat, 07 Sep 2024 04:13:58 +0000

Brandy, Emilia, and guest Nicole Cuervo share their secret superpower wishes, then get down to business discussing beautiful bras... and why everyone should have the chance to feel good in their underwear! #carelab #carelabit

Find Care Equipment solutions at https://www.asksamie.com/

Find Caregiver Training at https://www.higherstandardscaregivertraining.com/

https://www.carelabpodcast.com/

Find more from Springrose at springrose.co

Becoming a Savvy Caregiver

Sat, 07 Sep 2024 04:13:47 +0000

The Savvy Caregiver Program is a training program for caregivers like you. Caregiving is a role far different from being a spouse or child. Those terms describe relationships. Assisting and guiding someone who is living with a chronic illness is the definition of caregiving. It is work.

The caregiving role has a “job description”. Putting together the tasks, the helping, the cleaning up, watching, worrying, everything make up the caregivers job description. Hiring someone to do what you do isn't truly possible. With enough money you can hire people to do many of your caregiving tasks. However, the caregiver role is more than one person can handle.

Caregiving is a job most of us never expected to have and are untrained to do properly. Lacking proper training leads to stress, frustration and sometimes injuries. Taking care of a person living with a demanding illness like Alzheimer's is specialized work. Doing this work successfully requires special skills and knowledge, You also need an outlet and attitude that helps you look after yourself.

Why Do I Need Caregiver Training? Being unprepared for the role of caregiver is common. Lacking awareness of available training or even the need for training is also common. Many family caregivers tackle their role as a caregiver in a way similar to raising children. Unfortunately, this method leads to a lot of stress, frustration and tears. Consider the situation you've found yourself in. Caregiving is likely very different from any other role you have experienced. Seeing, recognizing and understanding that difference are important first steps in appreciating the work you have undertaken as a caregiver.

Most importantly, the Savvy Caregiver Program teaches you how to be a great caregiver. I attended the accelerated version (3 weeks vs 6) this past May. Learning how to be a better care partner to my Mom was a blessing. Taking this training earlier on the disease would have been a huge benefit to my Dad. Between his chronic illnesses and caring for Mom, he had too much on his plate.

What Types of Things Will I Learn In This Training? Firstly, you'll learn about providing contented involvement. In other words, successful caregiving comes down to helping the person be as comfortable & involved & happy as possible. Keeping in mind that a person living with a demanding disorder can still:

zero in on a task or activity stay with it for some time have a pleasant time doing it

Keeping the person involved and content may help lessen confusion and reduce the chances of distress and difficult behaviors. Determining contented involvement takes practice. For instance, think of Goldilocks trying to find a balance between too much and too little. That is to say, a just right amount.

As a result of taking the training program I learned new ways to approach caring for Mom as she declines further. Learning that we, as caregivers, are more in charge than we thought was huge. While we can't control the disease, we can control our reactions. For example. reacting in calm, more understanding ways helps our loved one stay calm. Anyone dealing with someone with Alzheimer's knows that being calm can be a challenge.

Changing our behavior, reactions will change the outcomes of many of our interactions. That's the benefit of becoming a Savvy Caregiver. As a result, our journey as caregivers can be a lot easier.

Shining a Light on Caregiving Youth: Insights from the "Hidden in Plain Sight" Series

Sat, 07 Sep 2024 04:13:35 +0000

In this wrap-up episode, we discussed the "Caregiving Youth Hidden in Plain Sight" special series, a collaboration between JJ and Natalie and My Care Friends CEO Todd Keitz and Katie Seymour (VP of Programming and Community). We were all amazed at how eye-opening it was to learn about the challenges faced by young people caring for family members with disabilities or illnesses. We highlighted the wisdom and resilience shown by many of the youth caregivers featured while acknowledging the need to support those struggling.

In this episode, we underscored the vital role of policies, programs, and community coordination in identifying and assisting youth caregivers, drawing inspiration from successful initiatives in the UK. We stressed the ongoing need to raise awareness and provide resources to connect youth caregivers with the support they need. We urged our listeners to visit the podcast's website, where they can access the full series and contact information for the various organizations featured. We aim to create a centralized hub of information, empowering and assisting this often-overlooked population.

We also discussed the hidden nature of many caregiving programs and the challenge of self-identification among youth caregivers. We discussed ways to help overlooked youth, including a broader focus beyond the US, and the significance of awareness within the community, including schools and teachers.

Support the show

Confessions of a Reluctant Caregiver

Sisterhood of Care, LLC

Website: www.confessionsofareluctantcaregiver.com

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Embracing The Gray

Sat, 07 Sep 2024 04:13:10 +0000

This Week: Josh's Beard Mishap leads to a discussion on the struggles and acceptance of the Aging Process.

We cover:

Ageism in the Media and Lack of Representation The Importance of Representation The Reality of Aging Conclusion: Embrace the Gray and Age Gayfully!

A gay senior, Christopher MacLellan, and an ally, Josh Wilson, podcasting about life, love, liberty and travel.

Don't Say Gay?... Say AgingGayfully™!

AgingGayfully™ is about living life with dignity in an age-friendly society regardless of orientation or economic status because longevity is a justice issue.

AgingGayfully™ is about finding your voice as we age. We are all part of the aging process and have real connections in diversity.

AgingGayfully™ is a modern type of activism that supports the concept of belonging.

AgingGayfully™ is about Adventure, Leisure, Travel, being a citizen of the world, traveling to destinations, and being part of the global community as we age and prosper in body, mind, and spirit.

Finding Purpose and Balance: An Inspiring Conversation with Dr. Kerul Kessel on Navigating Caregiving and Life's Challenges

Sat, 07 Sep 2024 03:48:15 +0000

Today, we will interview Dr. Kerul Kessel, who will share her inspiring life story and offer advice on navigating the caregiving stage of life.

Dr. Kessel highlights that simple activities, like watching lighthearted TV shows or something as calming as walking the dogs, can provide the rest the body and mind need. Being in nature can also help us reconnect with ourselves and regain perspective.

A central theme in her advice is self-awareness. She also encourages involving others in your journey and creating structures that support your efforts to stay centered. Finally, she speaks on the value of giving back to others.

A Pot of Sauce, A Pinch of Love: Cooking Through the Challenges of Dementia with Jeanette Fazzari Jones

Sat, 07 Sep 2024 03:44:57 +0000

In this heartfelt episode of AlzAuthors, we dive into the emotional and practical aspects of caring for loved ones with dementia, with a special focus on family memories and intergenerational bonds. Jeannette Fazzari Jones shares a particularly touching story about her experiences with her grandparents’ dementia, detailing both the struggles and joys she encountered along the way. She is the author of the beautifully illustrated children's book, Meatballs for Grandpa.

We talk about how the many senses like touch and smell impact memory, and how to use sensory activities to connect not just with our person with dementia, but with children who may yearn to stay connected to a beloved person. As an educator, Jeanette speaks to the kinds of activities that can be used with young children who may read or listen to the story. We discuss the traditions of cooking and treasured recipes that are handed down through families that keep family connected. Jeanette is the author of the beautifully illustrated children's book, Meatballs for Grandpa.

After listening to this warm and delicious episode, you might just be inspired to cook a big batch of meatballs!

Connect with Jeannette

Buy Meatballs for Grandpa

Read her AlzAuthors blog post - need to add link

Website

Instagram

Facebook

Twitter/X

About the Moderators

Marianne Sciucco

Christy Byrne Yates

About the Podcast

AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others.

Thanks for listening.

We are a Whole Care Network Featured Podcast

Proud to be on The Health Podcast Network

Find us on The World Podcast Network and babyboomer.org

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How to Plan for Your End of Life

Fri, 30 Aug 2024 14:50:46 +0000

As co-founder of Empowered Endings, Dr. Bob Uslander, is working to shift the paradigm of End of Life Care by supporting, guiding, and teaching an empowered approach to Palliative and End of Life Care. He became aware of the gaps in hospice and palliative care that cause patients to struggle. The deaths of his parents and a dear friend provided a personal perspective into caregiving that formed Bob’s determination to meet the needs of people with serious illness in a better way.

Empowered Endings supports both patients and families through the final stages of life. Bob, his wife Medical Social Worker Elizabeth, and the Empowered Endings team ensure each person feels heard, held, and whole throughout the end of life journey. The team utilizes End of Life Doulas, nurses, a chaplain, and a grief and dementia doula.

Connect with Dr. Bob Uslander:

Website: https://empoweredendings.com/

Empowered Endings Community: https://empoweredendings.com/community/

Empowered Endings Foundation: https://empoweredendings.com/foundation/

Social Media for Empowered Endings

LinkedIn: https://www.linkedin.com/in/bobuslander/

Instagram: https://www.instagram.com/empowered_endings_/

Facebook: https://www.facebook.com/empowerendings/

Interested in purchasing a GrandPad to stay connected with a senior loved one?

Get more information at https://www.grandpad.net/thoh.

GrandPad website: https://www.grandpad.net/

Social Media for GrandPad

https://facebook.com/grandpad

https://instagram.com/grandpad_social/

https://www.linkedin.com/company/grandpad

https://www.youtube.com/channel/UCuFAJCb7_tTneM_ikABq08Q

Connect with Jodi Clock, author of It’s Complicated! at jodieclock.com

Purchase your copy of It’s Complicated! here and learn what you need to know about: Social Security, Medicare, Medicaid, Long Term Care, End-of-Life Wishes and more! It’s Complicated! has a customizable “Family Care Plan” at the end of each chapter. This care plan is also downloadable and free, regardless if you have purchased the book.

Social Media for Jodi Clock

Facebook: https://www.facebook.com/AskJodi/

Twitter (X): https://twitter.com/jodiclock

LinkedIn: https://www.linkedin.com/in/jodi-clock-b988908/

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Stop Judging with Sabrina Ortolano

Fri, 30 Aug 2024 14:50:41 +0000

Sabrina Ortolano has been a caregiver for her wife, Cyndi, since 2014 when she was diagnosed with a rare form of brain cancer. In this episode of the Happy Healthy Caregiver podcast, Sabrina and I talk about her identity crisis that sprouted from caregiving, the importance of body work, fundraising for brain surgery, asking for the right help, and managing judgment from others and unsolicited advice.

Show notes with product and resource links:

https://bit.ly/HHCPod189

Receive the podcast in your email here:

http://bit.ly/2G4qvBv

Order a copy of Elizabeth's book Just for You: a Daily Self Care Journal:

http://bit.ly/HHCjournal

For podcast sponsorship opportunities contact Elizabeth:

https://happyhealthycaregiver.com/contact-us/

The Happy Healthy Caregiver podcast is part of the Whole Care Network. Rate and Review the podcast:

https://bit.ly/HHCPODREVIEW

Navigating Younger Onset Dementia: Insights from a Youth Advocate Olivia and Patti from Lorenzo's House

Fri, 30 Aug 2024 14:50:29 +0000

This episode highlights the impactful work of Lorenzo's House, supporting youth and families dealing with younger onset dementia. Featuring Olivia Compton, a 15-year-old youth leader, and Patti LeFleur, who leads the organization's youth programming, the discussion delves into empowering young caregivers.

Olivia shares her journey, explaining how she found support and community through Lorenzo's House after her father was diagnosed with Lewy Body Dementia. She describes the transformative impact of the organization's "light club" groups, which provide a safe space for young people to connect, share experiences, and learn mindfulness techniques. Patti elaborates on Lorenzo's House's three core programs - the match, clubs, and youth summit - all aim to combat isolation, build alliances, and drive dementia justice. The discussion highlights the organization's commitment to centering youth voices and experiences and empowering young caregivers to advocate for change.

Olivia's wisdom and resilience shine through as she offers advice to other youth navigating the challenges of having a parent with dementia. The episode underscores the critical need to support caregiving youth, who often face stigma and struggle to find resources tailored to their unique experiences. Lorenzo's House emerges as a beacon of hope, providing essential services and fostering a growing community of young advocates determined to make a difference.

About:

Olivia:

Olivia, a 15-year-old 9th grader, is a vital part of Lorenzo's House. After her father's Lewy Body Dementia diagnosis, she found community in the Teen Light Club and served as a Youth Lead at the 2023 and 2024 Youth Summit. Olivia leads mindfulness sessions, openly shares her story, and warmly welcomes others. A talented pianist, cellist, and choir singer, she enjoys video games, reading, crafts, and anime. Passionate about helping peers through similar challenges, Olivia cherishes the connections and friendships she's built at Lorenzo's House.

Patti:

Patti is the former carepartner to her mom, Linda, who had younger-onset dementia - and a former elementary educator of over 10 years. Patti designs and leads our youth programming with intentionality, knowledge and love. Her capacity to connect with family members through lived experience and profound generosity of spirit sets the tone for how Lorenzo’s House shows up for families. Patti has a Masters Degree in Instructional Leadership and is a Certified Dementia Practitioner, has spent countless hours volunteering with people living with neurocognitive disorders, and as a community educator for the Alzheimer’s Association.

Social Media:

Website: https://lorenzoshouse.org/

Facebook: https://www.facebook.com/lorenzoshouseofficial/

Instagram: https

Support the Show.

Confessions of a Reluctant Caregiver

Sisterhood of Care, LLC

Website: www.confessionsofareluctantcaregiver.com

Like us on Facebook!

Tweet with us on Twitter!

Watch us on Youtube!

Pin us on Pinterest!

Link us on LinkedIn!

Tune in on Whole Care Network

Mental Health Services for Adult Children

Fri, 30 Aug 2024 14:50:20 +0000

You don’t know the whole story about mental illness until you’ve heard it from a mother’s perspective. Sydney Graham of Families for Addiction Recovery (Canada), and Lindsey Hoggle, a Health IT Consultant, share their stories as mothers who have struggled for decades to get mental health services for their adult children -- in American and Canadian healthcare and social services systems that were never designed to support mental health. Their revelations will shock you.

Home Safety: Three Essential Tips / Alzheimer's and Other Dementias

Fri, 30 Aug 2024 14:50:05 +0000

You’re going to wish you’d known about padding hard corners earlier in your caregiving journey!

We are Nancy Treaster and Sue Ryan. Through our experiences as caregivers for our family members and loved ones with Alzheimer’s and other types of dementia, we’ve learned ensuring home safety is both vitally important and ever-changing.

In this post, we’re sharing three main tips for managing safety — both inside and outside the home. These help you keep your loved one safe while giving you peace of mind.

Takeaways

For takeaways click here

Additional Resources Mentioned

File of Life: Create a document called File of Life. Child proof door knob cover or double deadbolt locks for external doors Child proof door knob covers here Double dead bolt or code based lock here Child proof cabinet locks here Child proof stove knob covers here Child proof refrigerator latch here Child proof switch plate for garbage disposal here Window sash here Extra tall pet gate from 40” to 70” here Child padding foam here Cameras or baby monitor for the bedroom and bathroom Baby monitors - some come with motion alarms as well here I use Nest Cameras and pay for the Nest Aware feature which gives me access to video history. A friend of mine uses a Ring and swears by it. Whatever kind you get, if your care receiver is still staying home alone, consider one with an intercom Indoor here Grip Socks here Floor lift chairs Indeelift here Lift chairs here

Rate, subscribe and share your tips on social media!

Please click here to review, follow or subscribe to our podcast.

If you don’t see your preferred platform, click on Podchaser and click at the bottom “Write my review”

Connect with us and share your tips:

Keywords

Home safety, child proof, dementia proof, reduce falls, Alzheimers, dementia, caregiver, caregiving, Alzheimers care, dementia care, memory care, best dementia podcast, alzheirmers podcast, caregiver podcast, dementia caregiver podcast, dementia podcast, alzheimers podcast, caregiver podcast, senior caregiver podcast, dementia caregiver tips, frontotemporal dementia, dementia caregiver tips, how to deal with dementia as a caregiver, information on dementia for caregivers, how to be a caregiver for someone with dementia, family caregiver, Sue Ryan, Nancy Treaster, Susan J Ryan

Technology: The Gateway Drug to Independence?! with Dan Josebachvili

Fri, 30 Aug 2024 14:49:43 +0000

Need some more podcast recommendations? Emilia, Brandy, and guest Dan Josebachvili share their current faves, then talk tech, senior safety, and how making senior tech beautiful can also make it more effective. #CareLab #carelabit

Find Care Equipment solutions at https://www.asksamie.com/

Find Caregiver Training at https://www.higherstandardscaregivertraining.com

/https://www.carelabpodcast.com/

Find more from silvertree at www.silvertree.io

The Power of Words: A Balm For Both

Fri, 30 Aug 2024 14:49:27 +0000

The transformative power of creativity can be a balm for both individuals living with cognitive impairment and their caregivers. For caregivers, engaging in artistic endeavors provides a much-needed respite from the demands of caregiving, offering a chance to relax, recharge, and reconnect with their own creative spirit. This self-care is essential to prevent burnout and maintain overall well-being.

For the person with cognitive impairment, creative expression offers a unique avenue for communication, stimulation, and joy. Activities such as painting, music, or dance can help to reduce anxiety, improve mood, and maintain a sense of purpose. These creative pursuits also provide opportunities for social interaction and shared experiences, fostering a deeper connection between the caregiver and the individual they support. By working collaboratively on creative projects,both parties can experience a sense of accomplishment and shared satisfaction.

Our Guest: Mary Crescenzo

Mary Crescenzo is one of five 2022 Individual Winners of the Maude’s Awards for Innovation in Dementia Care. She is an arts strategist/practitioner, master teaching artist, and mult-hyphenate creative whose work as an author spans genre of nonfiction, fiction, essay, reviews, and poetry in both commercial and literary markets, and as blogger and broadcaster. In the realm of theatre, she is playwright of Planet A, director, and actor. Her play, Planet A, is about the good, bad and ugly terrain of Alzheimer’s/dementia. In the world of music, Mary is a Jazz singer, lyricist and librettist and founder of MC3 - a Jazz trio. And this is just the beginning of her list of talents!

"Breaking Free from Burnout: The Power of Letting Go and Delegating for Caregivers"

Fri, 30 Aug 2024 14:38:56 +0000

In this podcast, I share how, after a period of burnout, always feeling tired and stressed, and not being able to sleep well for months, I finally feel rested and liberated after a few days of complete disconnection. I tend to want to have control over everything and everyone’s life, and that is not functional for anyone, especially for caregivers, where there are multiple situations beyond our control.

To truly disconnect, it is necessary to make a list of every single thing we do. Learning to delegate to others and trust them is crucial. It involves thinking about potential issues that might arise and preparing your team with the tools and contacts needed to address anything that could go wrong. Ultimately, it means letting go and trusting the process.

Expanding on this, disconnection doesn't just mean physically stepping away from responsibilities; it's about mental and emotional detachment as well. Delegation involves more than just handing off tasks; it’s about empowering others and fostering a collaborative environment.

This process allows caregivers to recharge and return to their duties with renewed energy and perspective. It’s also important to recognize that letting go of control doesn’t equate to neglect. It means creating a sustainable system where everyone involved is better equipped to handle challenges. By sharing this experience, I hope to encourage other caregivers to prioritize their well-being and find balance in their lives.

Grief Coach Shelby Forsythia on How to Grow Through Grief, Part 2

Sun, 25 Aug 2024 16:05:41 +0000

In part 2 of our grief series with Grief Coach Shelby Forsythia, Shelby talks about identifying your grief allies, different grief styles, and how to create continuing bonds with the ones you’ve lost. As founder of Life After Loss Academy, she uses what she’s learned in the years after her mother’s death to help other grievers make their way through a grief journey. Shelby uses mindfulness techniques and open-ended questions to guide her clients to welcome grief as a teacher. Shelby’s work has been featured in Huffington Post, Bustle, and The Oprah Magazine. Her heart and compassion is palpable in her book Your Grief, Your Way.

Connect with Shelby Forsythia:

Website: https://www.shelbyforsythia.com/

Instagram: https://www.instagram.com/shelbyforsythia/

Facebook: https://www.facebook.com/shelbyforsythia/

Free Podcast: https://www.shelbyforsythia.com/dear-grief-guide-podcast

Free Workshop: https://www.shelbyforsythia.com/free-workshop

Book, Your Grief, Your Way: https://www.shelbyforsythia.com/your-grief-your-way

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Grief Coach Shelby Forsythia on How to Grow Through Grief, Part 1

Sun, 25 Aug 2024 16:05:33 +0000

Grief Coach Shelby Forsythia is teaching us how it’s possible to grow through grief. As founder of Life After Loss Academy, she uses what she’s learned in the years after her mother’s death to help other grievers make their way through a grief journey. Shelby uses mindfulness techniques and open-ended questions to guide her clients to welcome grief as a teacher. Shelby’s work has been featured in Huffington Post, Bustle, and The Oprah Magazine. Her heart and compassion is palpable in her book Your Grief, Your Way.

Connect with Shelby Forsythia:

Website: https://www.shelbyforsythia.com/

Instagram: https://www.instagram.com/shelbyforsythia/

Facebook: https://www.facebook.com/shelbyforsythia/

Free Podcast: https://www.shelbyforsythia.com/dear-grief-guide-podcast

Free Workshop: https://www.shelbyforsythia.com/free-workshop

Book, Your Grief, Your Way: https://www.shelbyforsythia.com/your-grief-your-way

Find all the resources that Barbara Karnes has to offer at bkbooks.com.

Purchase the End of Life Guideline Series Bundle here.

Find Barbara’s new booklet Always Offer, Never Force: Food at the End of Life here.

Read Barbara’s blog here.

Connect with Barbara Karnes on social media: Facebook Insta LinkedIn Twitter Pinterest YouTube

Order your copies of The Hospice Care Plan: A Path to Comfort here, now available in English and Spanish!

Check out the free library of video tutorials from the creators of The Hospice Care Plan hospice nurses Nancy Heyerman and Brenda Kizzire here.

Read more about Nancy and Brenda and their mission to improve hospice care here.

Find Odonata Care on social media: Facebook YouTube IG TikTok

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Exploring Alzheimer's Through Fiction: Marianne Sciucco's Journey

Sun, 25 Aug 2024 16:05:26 +0000

Christy Byrne Yates moderates an Aging & Amazing book club discussion with co-host Marianne Sciucco on the value of fiction in dementia caregiving.

Marianne, a founder and manager of AlzAuthors, and also board president, podcast producer and host, draws from her experiences as a nurse and personal caregiver to share her journey and the inspiration behind her novel, "Blue Hydrangeas: An Alzheimer's Love Story."

A registered nurse, she was drawn into the world of Alzheimer's and dementia care through personal experiences with family members affected by the disease. Working in the dementia unit of a nursing home, she found her calling in caring for individuals impacted by cognitive diseases. Her encounters with patients in various stages of memory impairment sparked a deep curiosity and desire to find solutions to improve their comfort and well-being.

It was a serendipitous meeting with an elderly couple, where the wife had Alzheimer's and the husband was her devoted caregiver, that inspired Marianne to embark on her writing journey. Fueled by her passion for highlighting the often-overlooked male caregivers, her book delves into the emotional complexities of Alzheimer's and the unwavering love and hope that sustains caregivers through the challenges.

Marianne's unique perspective and firsthand experiences bring authenticity to her narrative, offering readers a heartfelt glimpse into the world of Alzheimer's and the profound impact it has on those touched by its reach. She believes fiction can be an in important tool in educating people about Alzheimer's and dementia, offering a "soft landing space," where readers can not only find facts but discover the human story found in all dementia situations.

In this episode, you will:

Explore the process of writing books about Alzheimer's and the impact of storytelling on raising awareness. Gain valuable insights into navigating the complexities of dementia diagnosis and care, empowering you to make informed decisions. Understand the impact of Alzheimer's on families and gain insights into fostering resilience and coping mechanisms. Navigate the complexities of dementia diagnosis and care with valuable insights and expert perspectives. After the podcast

Read Marianne's AlzAuthors post Purchase Blue Hydrangeas, an Alzheimer's love story About the Moderators

Marianne Sciucco

Christy Byrne Yates

About the Podcast

AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others.

Thanks for listening.

We are a Whole Care Network Featured Podcast

Proud to be on The Health Podcast Network

Find us on The World Podcast Network and babyboomer.org

Want to be on the podcast? Here’s what you need to know

We've got merch! Shop our Store

Changing Seasons and Changing Habits in Caregiving with Elizabeth Miller

Sun, 25 Aug 2024 16:05:17 +0000

What can caregiving teach us about ourselves? And how can sandwhich generation caregivers get ready for back-to-school (and the fast following holidays)! #carelabit #carelab

Find more from Elizabeth and follow her at:

https://happyhealthycaregiver.com/

https://www.instagram.com/happyhealthycaregiver/ https://www.facebook.com/happyhealthycaregiver https://www.linkedin.com/in/elizabethbmiller/ https://twitter.com/HHCaregiver

https://www.pinterest.com/HHCaregiver/ https://www.tiktok.com/@happyhealthycaregiver https://www.youtube.com/channel/UCAcYkpMK6I3Y0ep-kyvrZaQ

Find Care Equipment solutions at https://www.asksamie.com/

Find Caregiver Training at https://www.higherstandardscaregivertraining.com/

https://www.carelabpodcast.com/

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Hospice Nurse Penny Hawkins Smith: Unraveling Hospice Care & Normalizing Death and Dying One Video at a Time

Sun, 25 Aug 2024 16:05:09 +0000

What if the shift towards for-profit hospice care models is compromising the quality of your loved one's final days? In this episode, Don and I have a robust conversation on hospice with Penny Hawkins Smith, BSN, RN, CHPN. Hospice Nurse Penny, as she is known to her millions of social media followers, is a nationally certified hospice and palliative care registered nurse with over 17 years of experience with a passion for hospice advocacy and normalizing death and dying.

Have you ever wondered how hospice care is funded and what services are actually covered? We break down the often-misunderstood world of hospice care funding, highlighting the system used by nonprofit agencies and detailing the array of services provided under this model, as well as the hidden truths behind the financial practices of many hospice agencies and their unsettling impact on patient care. We confront the alarming rise in Medicare spending and the exodus of physicians from the field. The episode also tackles the aggressive marketing strategies in the industry and the emotional turmoil families face when navigating palliative and hospice care. From the importance of clear communication and family advocacy to the systemic hurdles within end-of-life care, this conversation offers insights and personal stories that resonate deeply.

Navigating the maze of hospice care decisions can be daunting, especially when facing ethical dilemmas and advocating for compassionate treatment. We explore the critical role of hospice advocacy, the rights of patients and families, and the often-overlooked challenges of caregiving in nursing homes. Through personal anecdotes and professional insights, we shed light on the importance of respecting patient dignity and goals, and the necessity for better education and support in end-of-life decisions. Join us as we call for empathy, open dialogue, and a more humane approach to hospice and elder care.

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Dementia Prevention (with special guest Dr. Mitchell Clionsky)

Sun, 25 Aug 2024 16:04:55 +0000

In this episode, Sarah interview Dr. Mitchell Clionsky about his book, "Dementia Prevention: Using Your Head to Save Your Brain." They also discuss dementia's link to ADHD and sleep apnea.

You can find more about Dr. Clionsky at: BRAINDOC

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Building Trust: The Key to Strong Relationships and a Supportive Network

Sun, 25 Aug 2024 16:04:43 +0000

In this podcast, I discuss how trust is something that is built or broken over time. Trust can grow stronger or be lost depending on actions and experiences. It's essential to establish trust within a support system, and this can be achieved through small challenges that help strengthen it. A robust support system is vital in life, providing a foundation of reliability and confidence that you can rely on in both good times and bad.

Expanding on this, building trust often requires consistent, honest communication and a willingness to be vulnerable. It involves demonstrating reliability, keeping promises, and being transparent in your actions and intentions.

In the context of a support system, trust ensures that members can lean on each other, share openly, and collaborate effectively. It creates an environment where people feel valued and understood, which is crucial for emotional well-being. By nurturing trust, we not only strengthen our relationships but also create a network of support that can help us navigate the complexities of life with greater ease and confidence.

Home Alone - in the Beginning: Six Essential Tips / Alzheimer’s and Other Dementias

Sun, 25 Aug 2024 16:04:26 +0000

If your loved one can’t do three of the things we discuss in this episode, they should not be home alone. As caregivers for our husbands, parents, and other loved ones with Alzheimer’s and other types of dementia, we both know that one of the early goals for our loved one is to help them maintain their independence as long as it's reasonable. You’ll be balancing your concern for their safety with their independence, remembering their ability to stay home alone is temporary. We are Sue Ryan and Nancy Treaster, and through our experiences, we're sharing six key tips for supporting your loved one's ability to be home alone.

Show Notes

During this phase your focus will be to observe and adjust regularly.

Tip 1: Conduct an Audit of Activities of Daily Living

Regularly observe and document your loved one's ability to perform daily tasks. This helps identify patterns of decline and areas where support may be needed.

Tip 2: Monitor Food and Hydration

Ensure your loved one is eating properly and staying hydrated. Set up systems to make food easily accessible and track fluid intake.

Tip 3: Ensure Communication Capabilities

Verify that your loved one can communicate with the outside world and call for help if needed. Consider implementing technology solutions to enhance communication.

Tip 4: Manage Medication

Establish a reliable system for medication management. If your loved one can't take their medication independently, it may be time to reconsider their living situation.

Tip 5: Track for Safety

Implement safety tracking measures, including monitoring driving abilities and using personal tracking devices to ensure your loved one's whereabouts.

Tip 6. Create a Support Team

Build a network of family, friends, and neighbors who can assist in caregiving and emergencies. Keep everyone informed with up-to-date information about your loved one's needs.

Remember, leaving your loved one with dementia at home alone is a temporary situation. While it requires continuous monitoring and can be anxiety-inducing, implementing these strategies can help you navigate this phase more effectively. We're all on this journey together, and with proper planning and support, you'll get through this situation just fine.

Thermostat control Through app https://www.amazon.com/s?k=app+controlled+thermostat+for+house&crid=27O5EFJOCSLLR&sprefix=thermostat+for+house+with+app%2Caps%2C85&ref=nb_sb_ss_pltr-data-refreshed_6_29 Thermostat cover https://www.amazon.com/s?k=thermostat+cover+with+lock&crid=3OHIO7E2YQ8SP&sprefix=thermostat+cover%2Caps%2C146&ref=nb_sb_ss_pltr-data-refreshed_2_16 Electronic medication dispensing and monitoring devices https://www.amazon.com/s?k=Electronic+medication+dispensing+and+monitoring+devices+with+app&crid=2AOUSNW2CGOF5&sprefix=electronic+medication+dispensing+and+monitoring+devices+with+app%2Caps%2C73&ref=nb_sb_noss

Inside and outdoor cameras Indoor https://www.amazon.com/s?k=indoor+cameras+with+intercom&i=tools&crid=1RTJWUD6C53DD&sprefix=indoor+cameras+with+intercom%2Ctools%2C72&ref=nb_sb_noss Outdoor https://www.amazon.com/s?k=outdoor+cameras+with+intercom&i=tools&crid=2ERD6HT2QIK5W&sprefix=outdoor+cameras+with+intercom%2Ctools%2C78&ref=nb_sb_noss Tracking devices for their person Watches https://www.amazon.com/s?k=person+tracking+device&crid=OPZ28JRM2KDU&sprefix=person+t%2Caps%2C96&ref=nb_sb_ss_ts-doa-p_2_8 Shoes https://www.amazon.com/s?k=gps+smart+sole&crid=2DM2XBGVTA5VJ&sprefix=GPS+smart+sole+%2Caps%2C95&ref=nb_sb_ss_ts-doa-p_1_15

Bridging the Gap: Enhancing Policies to Support Caregiving Youth

Sun, 25 Aug 2024 16:03:50 +0000

This week’s special policy panel, featuring experts Marvell Adams Jr. and Toni Gingerelli, discussed policy change and support for caregiving youth. They highlighted the significant gap between the estimated 5.4 million youth caregivers and the likely much larger actual number, emphasizing the need for better data collection through school-based assessments and self-reporting to understand this hidden population's challenges and experiences.

The discussion, featuring Marvell Adams Jr. and Toni Gingerelli, covered the impacts of youth caregiving, such as educational disruptions and mental health struggles. They emphasized the need for recognition, resources, and inclusive policies, praising the national strategy to support family caregivers while calling for more inclusivity of youth caregivers. The conversation highlighted the urgent need for equitable, innovative, and collaborative policy solutions to better serve caregiving youth.

About:

Marvell Adams Jr. is the CEO of Caregiver Action Network (CAN), dedicated to serving caregivers, marginalized communities, and older adults. Inspired by Alzheimer’s disease since high school, he holds a Bachelor’s in Political Science and a Master of Healthcare Administration specializing in Aging Services. CAN aims to improve the quality of life for millions of family caregivers supporting loved ones with chronic conditions, disabilities, or diseases.

Website: www.caregiveraction.org/ Facebook: @CaregiverActionNetwork Instagram: @caregiveraction Linked In: @caregiver-action-network YouTube: @CaregiverAction TikTok: @caregiveraction

Antoinette 'Toni' Gingerelli, Director of Policy and Advocacy for the National Alliance for Caregiving, translates research into policy for America's 53 million family caregivers. She oversees operations for Act on RAISE, Caregiver Nation Network, and the direct care workforce policy portfolio. Previously Chief of Staff for NJ State Senator Vin Gopal, Toni holds a Master of Public Policy from Harvard Kennedy School and is an advocate for gender equity.

Website: https://www.caregiving.org Facebook: https://www.facebook.com/NA4Caregiving/ Instagram: https://www.instagram.com/caregiver_nation/ LinkedIn: https://www.linkedin.com/company/national-alliance-for-caregiving/ Twitter: https://twitter.com/NA4Caregiving YouTube: https://www.youtube.com/c/TheNationalAllianceforCaregiving

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Self Care We Like (& dislike) and Learning to Listen to Your Body with Dannelle LeBlanc

Sun, 25 Aug 2024 15:51:54 +0000

The self care we love…. and the self care we love to hate. Listen to what Brandy, Emilia, and guest Dannelle LeBlanc have to say about self care, then stay tuned to hear about Dannelle’s incredible journey towards wellness. #carelab #carelabit

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Dementia Care Development (with special guest Joan Dipaola

Sun, 25 Aug 2024 15:51:00 +0000

In this episode, Sarah interviews Dementia Care Specialist Joan Dipaola about the struggles with dementia caregiving and what families need to know to help develop a proper caregiving plan.

You can find more of us at:

Stelmach Brown Media llc

And use the special promo code: AMBASSADORMLTV11

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Check out our sponsor http://www.favor-ct.org/

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Mastering the Art of Saying No: The Key to Healthy Boundaries and Personal Well-Being

Sun, 25 Aug 2024 15:49:27 +0000

In this podcast, I'll be discussing the difficulty of saying no and setting boundaries. It's often challenging because people generally don't like hearing "no." However, it's crucial to learn how to say no, even if it might disappoint others. Ultimately, prioritizing your own happiness and well-being can lead to a more peaceful and fulfilling life.

While it's natural to want to avoid conflict or disappointment, it's essential to remember that your own needs and boundaries matter. One approach is to explain your perspective calmly and clearly. This can help others understand your reasoning and reduce any potential negative reactions.

Additionally, you can invite others to contribute to the situation by suggesting they take on the tasks or responsibilities you're declining. This way, you're not just saying no, but also offering a constructive way forward. Another helpful strategy is to brainstorm alternative solutions together. This collaborative approach can often lead to creative and mutually satisfying outcomes.

Ultimately, setting boundaries and saying no when necessary is a vital skill for maintaining healthy relationships and personal well-being. It's about finding a balance between being considerate of others and being true to yourself.

Removing Driving Privileges: Four Essential Tips / Alzheimer’s and Other Dementias

Wed, 14 Aug 2024 14:10:06 +0000

If you can successfully leverage tip one in this episode you will have an easy path to removing driving privileges. As caregivers for our husbands, parents, and other loved ones with Alzheimer’s and other types of dementia, we both learned that driving privileges are a sensitive and important issue to address. In the beginning stages of dementia, our primary goal is to balance safety with our care receivers' desire for independence. We are Sue Ryan and Nancy Treaster, and through our experiences, we've offer four key tips for removing driving privileges.

Show Notes

Takeaways

We offer four tips to help you.

Tip 1: Understand Legal and Insurance Considerations

One of the most effective ways to approach the driving issue is to familiarize yourself with the legal and insurance implications in your area. This involves researching local laws and understanding the potential consequences of allowing someone with dementia to continue driving.

Tip 2: Implement Tracking Measures

For those in the early stages of dementia who are still able to drive safely, tracking can provide peace of mind for caregivers while allowing the care receiver to maintain some independence.

Tip 3: Gradual Transition: Riding Along and Taking Over

As dementia progresses, it's helpful to start riding along frequently and gradually take over driving responsibilities.

Tip 4: Removing Driving Privileges Completely

Sometimes, for safety reasons, we need to take more decisive action to prevent our loved ones from driving.

Additional Resources Mentioned

State laws on dementia
We found this state by state summary online but can’t vouch for the source.
https://www.dementiacarecentral.com/caregiverinfo/driving-problems/#state-laws
Check you state law specifically by searching like this “state name law driving with dementia”
Tracker for their car
Iphone users - Airtag
https://www.amazon.com/s?k=airtag&crid=1BY7R7PYXTG6J&sprefix=airt%2Caps%2C166&ref=nb_sb_ss_ts-doa-p_1_4
Android user - Tile
https://www.amazon.com/s?k=android+tile&crid=2KQYC4CI78EZO&sprefix=android+tile%2Caps%2C99&ref=nb_sb_noss_1
Tracking device for their car
https://www.amazon.com/s?k=person+tracking+device&crid=OPZ28JRM2KDU&sprefix=person+t%2Caps%2C96&ref=nb_sb_ss_ts-doa-p_2_8
Tracking device for their person
Watches
https://www.amazon.com/s?k=person+tracking+device&crid=OPZ28JRM2KDU&sprefix=person+t%2Caps%2C96&ref=nb_sb_ss_ts-doa-p_2_8
Shoes
https://www.amazon.com/s?k=gps+smart+sole&crid=2DM2XBGVTA5VJ&sprefix=GPS+smart+sole+%2Caps%2C95&ref=nb_sb_ss_ts-doa-p_1_15

Rate, subscribe and share your tips on social media!

Thanks for listening! If you enjoyed this episode, please leave a review and subscribe on your favorite podcast platform.

Please click here to review, follow or subscribe to our podcast.

If you don’t see your preferred platform click on Podchaser and click at the bottom “Write my review”

You can log in with Twitter, Facebook or Google
On the right you’ll see a box with “Follow”, “Rate and Review” and “Share”

Connect with us and share your tips:

Website: https://www.thecaregiversjourney.com
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Email: sue@thecaregiversjourney.com, nancy@thecaregiversjourney.com

Keywords

Alzheimers, dementia, caregiver, caregiving, Alzheimers care, dementia care, memory care, best dementia podcast, best alzheirmers podcast, best caregiver podcast, best caregiving podcast, best caregiver podcast, dementia caregiver podcast, dementia podcast, alzheimers podcast, caregiver podcast, senior caregiver podcast, dementia caregiver tips, frontotemporal dementia, dementia caregiver tips, how to deal with dementia as a caregiver, information on dementia for caregivers, how to be a caregiver for someone with dementia, family caregiver, Sue Ryan, Nancy Treaster, Susan J Ryan

Wandering: Ten Essential Tips / Alzheimer’s and Other Dementias

Wed, 14 Aug 2024 14:08:04 +0000

I wish I had known about this child proofing tip before I spent so much money on locksmiths. In this episode we talk about wandering. As caregivers for our husbands, parents, and other loved ones with Alzheimer’s and other types of dementia, we've learned that wandering is a complex and often frightening behavior that requires careful management. Wandering can occur both inside and outside the home, during day or night, and each scenario presents unique challenges. We are Sue Ryan and Nancy Treaster, and through our experiences, we have four tips to address wandering while maintaining our loved ones' dignity as well as ensuring their safety.

Show Notes

Takeaways

Outside Wandering

Tip 1: Use your grapevine

Tip 2: Consider wearable tracking devices

Tip 3: Register them with EMT’s and police

Tip 4: Consider child proof door knob covers on doors that lead to the outside

Tip 5: Consider window sash locks and a pole for any sliding doors

Inside Wandering

Tip 1: Safety proof the areas you allow them to go during the day

Tip 2: Discuss sleeping medication with their doctor

Tip 3: Allow them access at night to only the bedroom and a bathroom

Tip 4: Consider cameras or baby monitors to make sure you can watch them especially at night

Tip 5: Safety proof access to stairs

Additional Resources Mentioned

Tracking devices for their person
Watches
https://www.amazon.com/s?k=person+tracking+device&crid=OPZ28JRM2KDU&sprefix=person+t%2Caps%2C96&ref=nb_sb_ss_ts-doa-p_2_8
Shoes
https://www.amazon.com/s?k=gps+smart+sole&crid=2DM2XBGVTA5VJ&sprefix=GPS+smart+sole+%2Caps%2C95&ref=nb_sb_ss_ts-doa-p_1_15
Child proof door knob cover or double deadbolt locks for external doors
Child proof door knob covers
https://www.amazon.com/s?k=child+proof+door+knob+covers&crid=1VBY69F9OQN3T&sprefix=child+proo%2Caps%2C105&ref=nb_sb_ss_ts-doa-p_3_10
Double dead bolt or code based lock
https://www.amazon.com/s?k=2+key+both+sides+deadbolt+lock+set&i=tools&crid=32L214IRSRSLU&sprefix=2+key+both+sides+deadbolt+lock+set%2Ctools%2C69&ref=nb_sb_noss
Window sash https://www.amazon.com/Defender-Security-9928-Security-Unlocks/dp/B00BOZBGF8?pd_rd_w=1gyHe&content-id=amzn1.sym.378a0f29-5acb-4c80-bc6e-087cd6806daf&pf_rd_p=378a0f29-5acb-4c80-bc6e-087cd6806daf&pf_rd_r=F9XR7F8R8B4H0PHGYRGY&pd_rd_wg=hFzlD&pd_rd_r=9e98be86-af00-40b7-b783-6f58d7839b31&pd_rd_i=B00BOZBGF8&ref_=pd_bap_d_grid_rp_0_1_ec_sr_ppb_i&th=1
Extra tall pet gate from 40” to 70”

https://www.amazon.com/s?k=extra+tall+pet+gate&i=tools&crid=1ZJ0VGQK13QAV&sprefix=extra+tall+pet+gate%2Ctools%2C86&ref=nb_sb_noss_2

Cameras or baby monitor for the bedroom and bathroom
Baby monitors - some come with motion alarms as well
https://www.amazon.com/s?k=baby+monitor+with+motion+detection&i=tools&crid=27MFODCOG9GBV&sprefix=baby+monitor+with+motion+de%2Ctools%2C84&ref=nb_sb_ss_fb_1_27
I use Nest Cameras and pay for the Nest Aware feature which gives me access to video history. A friend of mine uses a Ring and swears by it. Whatever kind you get, if your care receiver is still staying home alone, consider one with an intercom
Indoor
https://www.amazon.com/s?k=indoor+cameras+with+intercom&i=tools&crid=1RTJWUD6C53DD&sprefix=indoor+cameras+with+intercom%2Ctools%2C72&ref=nb_sb_noss
Outdoor
https://www.amazon.com/s?k=outdoor+cameras+with+intercom&i=tools&crid=2ERD6HT2QIK5W&sprefix=outdoor+cameras+with+intercom%2Ctools%2C78&ref=nb_sb_noss
Motion alarm
https://www.amazon.com/s?k=person+indoor+motion+alarm&crid=393V3S00L1T5W&sprefix=person+indoor+motion+alarm%2Caps%2C75&ref=nb_sb_noss

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Communication – in the Beginning: Four Essential Tips / Alzheimer’s and Other Dementias

Wed, 14 Aug 2024 14:06:04 +0000

You are going to wish you knew about the third tip in this episode much earlier! As caregivers for our husbands, parents, and other loved ones with Alzheimer’s disease and other types of dementia, we've learned that communication is a constantly evolving process. In the beginning (the early season of the diagnosis), our primary goal is to help our care receivers maintain as much dignity and independence as possible. We are Sue Ryan and Nancy Treaster, and through our experiences, we've developed four tips to help you communicate.

Show Notes

Takeaways

In this episode, we're talking about communication “in the beginning”. When we say “In the beginning” we mean when you're mostly helping your care receiver manage things (often behind the scenes), while also helping them maintain their independence.

We offer four tips to help you.

Tip 1: Help Them Plan Their Day

One of the most effective ways to support your loved one is by assisting them in planning their day. This involves understanding what they can realistically accomplish and creating a manageable list of tasks for them to do. The list also helps you support them, making it easier to prompt them gently throughout the day to complete these tasks. This approach helps them feel valued and accomplished at day's end.

Tip 2: Simplify and Minimize

As cognitive abilities decline, it's important to simplify instructions and minimize distractions. What worked one week might be too complex the next, so constant observation and adjustments are necessary.

Tip 3: Use Positive Reinforcement and Body Language

Positive reinforcement can have a profound impact on your loved one's mood and cooperation. Even if it feels unnatural at first, offering praise for completing simple tasks can boost their confidence and create a more positive atmosphere.

Tip 4: Share the Truth They Need to Hear

While honesty is important, we've learned that it's often more beneficial to share "the truth they need to hear" rather than the whole truth. Rather than think of this as lying, think of it as providing information in a way that minimizes their – and often our - anxiety and frustration.

Everything you're experiencing in terms of communication during this early season of their dementia may feel challenging and strange. You'll be constantly adapting and adjusting your approach. But, this is just a phase. You will manage through this situation, and it will get better.

Related episodes

2. Memory Loss: Four Essential Tips / Alzheimer’s and Other Dementias / Practical Tips and Candid Conversations

Rate, subscribe and share your tips on social media!

Thanks for listening! If you enjoyed this episode, please leave a review and subscribe on your favorite podcast platform.

Please click here to review, follow or subscribe to our podcast.

If you don’t see your preferred platform, click on Podchaser and click at the bottom “Write my review”

You can log in with Twitter, Facebook or Google
On the right you’ll see a box with “Follow”, “Rate and Review” and “Share”

Connect with us and share your tips:

Website: https://www.thecaregiversjourney.com
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Email: sue@thecaregiversjourney.com, nancy@thecaregiversjourney.com

Keywords

Alzheimer's, dementia, caregiver, caregiving, Alzheimer's care, dementia care, memory care, best dementia podcast, best Alzheimers podcast, best caregiver podcast, best caregiving podcast, best caregiver podcast, dementia caregiver podcast, dementia podcast, Alzheimers podcast, caregiver podcast, senior caregiver podcast, dementia caregiver tips, frontotemporal dementia, dementia caregiver tips, how to deal with dementia as a caregiver, information on dementia for caregivers, how to be a caregiver for someone with dementia, family caregiver, Sue Ryan, Nancy Treaster, Susan J Ryan

Memory Loss: Four Essential Tips / Alzheimer’s and Other Dementias

Wed, 14 Aug 2024 14:04:06 +0000

Does it feel like a punch in the gut every time you realize something new your loved one has forgotten? As caregivers for our husbands, parents, and other loved ones with Alzheimer’s disease and other types of dementia, we've learned that memory loss in the early stages is a challenging journey. In the beginning (the early season of the diagnosis), our primary goal is to help our care receivers maintain as much dignity and independence as possible while providing support behind the scenes. We are Sue Ryan and Nancy Treaster, and through our experiences, we have four main tips that we'd like to share with you.

Show Notes

Takeaways

In this episode, we're talking about memory loss “in the beginning”. When we say “In the beginning” we mean when you're mostly helping your care receiver manage things (often behind the scenes), while also helping them maintain their independence.

We offer four tips to help you.

Tip 1: Figure Out What Information They're Struggling to Remember

One of the most effective ways to support your loved one is by identifying what information they're having trouble remembering. This involves careful observation and adapting your approach to help them maintain their dignity and independence.

Tip 2: Understand and Help with What They Can No Longer Do

As the condition progresses, it’s important to adapt tasks your loved one can no longer manage independently.

Tip 3: Get Other People Involved, As Appropriate

Sharing the diagnosis with others can be a sensitive topic, but it's often crucial for both the caregiver and the care receiver.

Tip 4: Watch Out for UTIs - They Can Muddle the Whole Situation

Urinary Tract Infections (UTIs) can significantly impact cognitive function and behavior in people with dementia and there can often be no symptoms except a sudden cognitive decline.

At the beginning it’s hard to get your head around what is happening. You will get through this phase, and your confidence will grow as you learn to handle each new situation.

Related episodes

3. Communication - in the Beginning: Four Essential Tips / Alzheimer’s and Other Dementias / Practical Tips and Candid Conversations

Rate, subscribe and share your tips on social media!

Thanks for listening! If you enjoyed this episode, please leave a review and subscribe on your favorite podcast platform.

Please click here to review, follow or subscribe to our podcast.

If you don’t see your preferred platform click on Podchaser and click at the bottom “Write my review”

You can log in with Twitter, Facebook or Google
On the right you’ll see a box with “Follow”, “Rate and Review” and “Share”

Connect with us and share your tips:

Website: https://www.thecaregiversjourney.com
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Facebook: https://www.facebook.com/TheCaregiversJourneys/
Email: sue@thecaregiversjourney.com, nancy@thecaregiversjourney.com

Keywords

Meet Our Podcast Team: Why a Podcast for Dementia Caregivers

Wed, 14 Aug 2024 14:02:07 +0000

We are Sue Ryan, Nancy Treaster, and Merritt Treaster. In this episode, we're introducing ourselves to you and sharing why we are so passionate about bringing you practical tips and candid conversations for Alzheimer’s and other dementia family caregivers.

Show Notes

Takeaways

Nancy and I have known each other for many years and have often discussed our caregiving journeys together. We're both passionate about helping you navigate your caregiving journeys with fewer surprises and more confidence.

Our podcast offers practical tips and we have candid conversations to help you tackle day -to -day common dementia challenges. Our purpose is to give you the knowledge and the resources you need to navigate your journey with strength, patience, and peace of mind. We're all on this journey together.

Rate, subscribe and share your tips on social media!

Thanks for listening! If you enjoyed this episode, please leave a review and subscribe on your favorite podcast platform.

Please click here to review, follow or subscribe to our podcast.

If you don’t see your preferred platform click on Podchaser and click at the bottom “Write my review”

You can log in with Twitter, Facebook or Google
On the right you’ll see a box with “Follow”, “Rate and Review” and “Share”

Connect with us and share your tips:

Website: https://www.thecaregiversjourney.com
Instagram: https://www.instagram.com/thecaregiversjourney/
Facebook: https://www.facebook.com/TheCaregiversJourneys/
Email: sue@thecaregiversjourney.com, nancy@thecaregiversjourney.com

Keywords

Alzheimer's, dementia, caregiver, caregiving, Alzheimer's care, dementia care, memory care, best dementia podcast, best Alzheimer's podcast, best caregiver podcast, best caregiving podcast, best caregiver podcast, dementia caregiver podcast, dementia podcast, Alzheimers podcast, caregiver podcast, senior caregiver podcast, dementia caregiver tips, frontotemporal dementia, dementia caregiver tips, how to deal with dementia as a caregiver, information on dementia for caregivers, how to be a caregiver for someone with dementia, family caregiver, Sue Ryan, Nancy Treaster, Merritt Treaster, Susan J Ryan

Finally! Practical tips and candid conversations for Alzheimer's and other dementia family caregivers.

Wed, 14 Aug 2024 14:00:11 +0000

The Caregiver’s Journey is an innovative and refreshing way to learn how to tackle day-to-day Alzheimer's and other dementia family caregiving challenges. Using practical tips and candid conversations, Sue and Nancy help you navigate caregiving’s ups and downs, so you move from feeling frustrated and overwhelmed to confident and supported.

Caring for Dad with Steve Guttenberg

Sat, 10 Aug 2024 15:47:30 +0000

Steve Guttenberg is a beloved Hollywood actor, known for his role in films including Diner, Police Academy, Short Circuit, Three Men and a Baby, Cocoon, and television shows including Ballers and Veronica Mars. We have enjoyed Steve Guttenberg in many roles and now I’d like to spotlight maybe the role that was the most difficult for Steve – the role of family caregiver to his dad and hero, Stanley. Steve wrote about his care experience while reflecting on his childhood and Hollywood career in his new book, Time to Thank.

We learn about why Steve and his sister pursued home dialysis training, how Hollywood’s portrayal of care and death differ from real life, the self-love creed Steve recited with his dad, and all the terrific micro acts of self-care Steve practices to remain happy and healthy.

Show notes with product and resource links:

https://bit.ly/HHCPod187

Receive the podcast in your email here:

http://bit.ly/2G4qvBv

Order a copy of Elizabeth's book Just for You: a Daily Self Care Journal:

http://bit.ly/HHCjournal

For podcast sponsorship opportunities contact Elizabeth:

https://happyhealthycaregiver.com/contact-us/

The Happy Healthy Caregiver podcast is part of the Whole Care Network. Rate and Review the podcast:

https://bit.ly/HHCPODREVIEW

How to Navigate the Dementia Journey With Compassion

Sat, 10 Aug 2024 15:41:52 +0000

Dementia practitioner Mary Anne Oglesby-Sutherly is on a mission to transform the landscape of dementia care. As co-founder of Veranda Ministries, a 501(c)3, Mary Anne has spent two decades telling the stories of people dealing with dementia. Supporting dementia caregivers is her gift, and helping them to remember their person’s legacy is a top priority.

Mary Anne got her start as a family practice nurse, and is now a Certified Dementia Practitioner as well as holding a triple certification as a PAC trainer, consultant, and coach in Teepa Snow’s “Positive Approach to Care” (PAC). As the host of the highly acclaimed podcast, “Aging Angst and Alleluias,” Mary Anne provides invaluable support, education, and encouragement to care partners navigating the intricate journey of dementia care. The care Mary Anne and her team provide through Veranda Ministries recalls the personhood of their patients, validating who they are and promoting their dignity. What an amazing work and life legacy Mary Anne is creating for herself and her family.

Here’s how you can connect with Veranda Ministries:

www.theverandaministries.org

Proactive Perspective in Dementia Care Facebook:

https://www.facebook.com/profile.php?id=61553996411093

Veranda Ministries Facebook:

https://www.facebook.com/TheVerandaMinistries

Veranda's Hidden Heroes Private Support Group on Facebook.

https://www.facebook.com/groups/1851833391499391

Listen to the Aging Angst and Alleluias podcast here.

Find all the resources that Barbara Karnes has to offer at bkbooks.com.

Purchase the End of Life Guideline Series Bundle here.

Find Barbara’s new booklet Always Offer, Never Force: Food at the End of Life here.

Read Barbara’s blog here.

Connect with Barbara Karnes on social media: Facebook Insta LinkedIn Twitter Pinterest YouTube

Order your copies of The Hospice Care Plan: A Path to Comfort here, now available in English and Spanish!

Check out the free library of video tutorials from the creators of The Hospice Care Plan hospice nurses Nancy Heyerman and Brenda Kizzire here.

Read more about Nancy and Brenda and their mission to improve hospice care here.

Find Odonata Care on social media: Facebook YouTube IG TikTok

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

How to Live Fully in Dementia Caregiving with Dr Sheri L Yarbrough

Sat, 10 Aug 2024 15:41:42 +0000

When Alzheimer’s dementia arrived without warning, Dr. Sheri L. Yarbrough (Praxis Senior Care-Giving Solutions)used her ability to view a circumstance from multiple perspectives to understand what her mother was experiencing. That became the genesis for her care management strategy, the Praxis for Care. Living the Praxis for Care helped create her motto: care-giving is what you do for your loved one; giving-care is what you do for both of you.

In this episode, Dr. Yarbrough and I discuss a range of topics, including identifying your need for support and the specific type of support you require as a caregiver. We also talked about focusing on what remains rather than what is lost, allowing relationships to evolve through your dementia journey, and the important difference between caregiving and giving care.

TRANSCRIPT OF EPISODE

Praxis for Care

Not About Us Without Us: Empowering Voices in the Dementia Conversation with Gina Awad

Sat, 10 Aug 2024 15:41:32 +0000

Welcome to the AlzAuthors podcast, where we explore the power of collaboration and unity within the dementia community. In this episode, we're joined by Gina Awad from the U.K, who has channeled her passion for dementia care into valuable insights for caregivers. Her journey began at a young age, witnessing the impact of dementia on individuals in care homes, which fueled her dedication to the cause. Her background in health and social care, combined with her personal experiences, has led her to author the illustrated book "United: Caring for Our Loved Ones with Dementia," providing caregivers with practical strategies and emotional support.

We discuss the challenges of competition in the field of dementia support, emphasizing the importance of working together to benefit those living with dementia and their families.

We also delve into the collaborative process behind the creation of "United." Gina and her illustrator, the late Tony Husband, decided to join forces during COVID-19 lockdown to make a difference for people with dementia and their caregivers.

Throughout the episode, we explore the significance of involving individuals directly impacted by dementia in conversations and initiatives, as emphasized by the phrase "Not about us without us." Gina shares a powerful story about a man with dementia trying to withdraw money from a bank, which led to an opportunity for her to educate bank staff about dementia and share the story in a local paper.

We also talk about the rich support groups available for care partners and those living with dementia, as well as the Reading Well initiative, which released a list of 20 books, including contributions from authors living with dementia, to be available in public libraries across England and Wales.

Join us as we explore the importance of collaboration, unity, and the sharing of experiences within the dementia community through Gina Awad's work and insights.

Connect with Gina

Read her AlzAuthors blog post

Gina hosts a quarterly radio show on Phonic 106.8 FM ‘Living Better with Dementia’ with over 70 shows to tune into at your leisure.: https://www.mixcloud.com/livingwithdementia/

Twitter

About the Moderators

Marianne Sciucco

Christy Byrne Yates

About the Podcast

AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others.

Thanks for listening.

We are a Whole Care Network Featured Podcast

Proud to be on The Health Podcast Network

Find us on The World Podcast Network and babyboomer.org

Want to be on the podcast? Here’s what you need to know

We've got merch! Shop our Store

AgingGayfully™ The Journey of Finding Fulfillment

Sat, 10 Aug 2024 15:41:20 +0000

In this conversation, Josh and Chris discuss the topic of finding fulfillment in life. They explore the idea of knowing oneself and understanding one's purpose. Also: top five beards of history.

Finding fulfillment in life involves knowing oneself and understanding one's purpose. Connection, love, care, and commitment are essential for a fulfilling life. Unlearning past behaviors and beliefs can lead to personal growth and fulfillment. Knowing oneself and embracing one's talents and skills is key to finding meaning in life. The search for fulfillment is an ongoing journey that requires self-reflection and exploration. A gay senior, Christopher MacLellan, and an ally, Josh Wilson, podcasting about life, love, liberty and travel. Don't Say Gay?... Say AgingGayfully™!

Subscribe NOW, where you listen to your favorite podcast.

Learn more at AgingGayfully™.

Caregiving Youth: A Powerful Voice from the Next Generation

Sat, 10 Aug 2024 15:41:10 +0000

At just 18 years old, Kaylin Jean-Louis has already taken on the immense responsibility of caring for her grandmother with Alzheimer's disease. Her story is a powerful testament to the resilience and wisdom of caregiving youth, hidden in plain sight. From a young age, Kaylin has navigated the challenges of her grandmother's declining health, helping her mother with daily routines and advocating for her needs at school. Despite the difficulties, Kaylin has found solace in her passions, such as marching band, which provided a much-needed safe space to express herself.

Kaylin's caregiving journey has not only shaped her personal growth but has also inspired those around her. She has openly shared her experiences with her peers, breaking down the stigma and isolation often faced by young caregivers. Kaylin's willingness to be vulnerable and her desire to support others in similar situations have created a ripple effect, connecting her with like-minded individuals eager to learn and lend a helping hand.

At the heart of Kaylin's story is the deep-rooted family values that have been passed down through generations. Her grandmother's example of selfless service and compassion has instilled in Kaylin a profound sense of purpose, driving her to aspire to inspire others. As Kaylin continues to navigate the complexities of caregiving, her unwavering spirit and determination serve as a beacon of hope for young people facing similar challenges. Her story is a testament to the power of resilience, empathy, and the transformative impact that caregiving can have on one's life.

About Kaylin:

Kaylin Jean-Louis is not just an 18-year-old third-year Broadcast Journalism scholar from Tallahassee, Florida. She is a dynamic force for positive change, embodying the spirit of compassion and service in everything she does. With a humble yet powerful mantra, "I don't want to be famous, I just want to make a difference in people's lives," Kaylin is making an indelible impact on her community and beyond.

Born and raised in Tallahassee, Kaylin discovered her passion early. She founded Kaylin's Caring Konnection, Inc., and the Youth Care Too! Movement, advocating for young caregivers.

Kaylin hosts "Inspiring Moments with Kaylin" on Hallelujah 95.3 FM and "Feel Good Vibes & Motivation" on 90.5 The Flava. Her ultimate goal is to inspire future generations to unlock their full potential and become award-winning multimedia journalists who empower others.

The sisters proudly partner with the Caregiver Action Network. CAN's Caregiver Help Desk offers free support to family caregivers via phone, chat, or email Monday through Friday, 8:00 am - 7:00 pm Eastern. Get answers, resources, support group info, or a listening ear. Visit www.caregiveraction.org/helpdesk/ or call 855-277-3640.

Support the Show.

Confessions of a Reluctant Caregiver

Sisterhood of Care, LLC

Website: www.confessionsofareluctantcaregiver.com

Like us on Facebook!

Tweet with us on Twitter!

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Link us on LinkedIn!

Tune in on Whole Care Network

Mythbusters: Aging in Place Edition

Sat, 10 Aug 2024 15:40:48 +0000

Brandy and Emilia share when they generate their best ideas, then dig deep into aging-in-place myths that must be busted! #carelabit #carelab

Find Care Equipment solutions at https://www.asksamie.com/

Find Caregiver Training at https://www.higherstandardscaregivertraining.com/ https://www.carelabpodcast.com/

@CareLabPodcast @wholecarenetwork @Asksamie @higherstandardscaregiver @higherstandardscaregivertraining

Caregiver Goals and Self Care

Sat, 10 Aug 2024 15:40:31 +0000

Elevate your well-being and sense of accomplishment through caregiver goals, a crucial aspect of self-care. Delve into the transformative power of meditation as a self-care technique, exploring its benefits in the context of caregiving. Discover how setting goals can provide a guiding light in the challenging landscape of caregiving.

Meet our guest, Carlen, as he shares a poignant journey. Just days after Martha Maddux, a spirited mother, and civic activist, turns fifty, she is diagnosed with Alzheimer's disease. Carlen and Martha find themselves freefalling, with no safety net but each other. However, this is not a story about Alzheimer's; it's about the emergence of a path in their darkest hours. Carlen's travels to the backwoods of Kentucky, encounters with a Catholic nun, and a journey to Australia are woven into a narrative of resilience and self-discovery.

As caregivers, finding a path forward is a universal challenge. Carlen's story offers insights into slowing down, embracing meditation, and seeking solace in unexpected places, including Thomas Merton's cabin. This conversation with Carlen is a guide on setting goals and implementing self-care methods, emphasizing the importance of navigating the caregiver's life and lifestyle.

Join us in exploring the intersection of caregiver goals, self-care, and the broader realms of psychology and health. Gain valuable perspectives and practical tips for your own caregiving journey.

Breaking the Silence: Navigating Mental Health with Expert Guidance and Comprehensive Care

Sat, 10 Aug 2024 15:40:11 +0000

In this podcast, I'll be talking about mental health, which is not a common topic. It's something that usually isn't discussed openly. It's important to understand that when someone has a mental health issue, putting in all their effort alone may not be enough to overcome it. Moreover, just dedicating time to oneself, eating healthily, meditating, and exercising doesn't guarantee immunity from mental health problems.

Addressing mental health challenges requires a more comprehensive approach. It's crucial to seek the guidance of a team of experts who can provide the right support and treatment. This team might include therapists, counselors, doctors, and other professionals who specialize in mental health care. Together, they can help create a personalized action plan tailored to the individual's specific needs.

However, it's important to recognize that progress may not be linear, and setbacks can occur. Perseverance is key; consistently following the plan and making adjustments as needed is essential for managing and improving mental health.

By discussing these topics in the podcast, the aim is to break the stigma surrounding mental health and encourage a more open dialogue. It’s vital to acknowledge that mental health is just as important as physical health and deserves attention and care. Understanding that recovery and management often require professional support and a well-rounded approach can help individuals and their loved ones navigate these challenges more effectively.

Uncloseted Media with Spencer Macnaughton

Sat, 10 Aug 2024 15:39:55 +0000

Spencer Mcnaughton is a journalist and producer based in New York City and has worked for the Wall Street Journal, 60 Minutes, and Rolling Stone and teaches LGBTQ journalism at NYU. Spencer has decided to leave mainstream media to launch Uncloseted Media, an investigative LGBTQ news publication that will launch on September 3, 2024.

In this episode, Spencer discusses his motivation for starting Uncloseted Media, a publication dedicated to LGBTQ storytelling. Spencer emphasizes the power of journalism to incite change through storytelling and the importance of balancing data with personal narratives. Spencer also highlights the need for more LGBTQ representation in newsrooms and the goal of uncloseted media to provide consistent and rigorous coverage of LGBTQ issues. He discusses the challenges of finding diverse voices and the impact of storytelling on public sentiment and activism.

To learn more about Uncloseted Media and to subscribe visit: https://www.unclosetedmedia.com/about To contribute a 100% tax-deductible donation select Uncloseted Media from the dropdown menu in this link. https://www.paypal.com/donate/?cmd=_s...

Follow Unclosted Media on social media: Instagram @smacna1 and ‪@UnclosetedMedia‬

Contact Spencer at: spencer.macnaughton1@gmail.com / spencer-macnaughton-48b483b0

Uncloseted Media: Providing objective, nonpartisan, rigorous, original journalism that investigates America’s anti-LGBTQ landscape and elevates everyday American heroes.

Occupational Therapists are an Important Part of Hospice Care

Fri, 02 Aug 2024 17:42:46 +0000

Welcome to Season 9 of The Heart of Hospice Podcast! Occupational Therapists Emilia Bourland and Dr. Brandy Archie are sharing how OTs can improve the quality of life for patients and caregivers on hospice care. OTs are underutilized in end-of-life care, but they’re an essential part of the hospice interdisciplinary team.

There’s a lot of support OTs can offer to make caregiving tasks easier, practical solutions to everyday issues for activities of daily living. Occupational Therapy interventions can include managing equipment, setting up meals, and transfer techniques. It’s about problem-solving to make caregiving tasks easier and promote independence for the patient. Caregivers have a big job, so reducing the caregiving burden goes a long way to improving the end-of-life experience for both the person at end of life and the ones who are providing their care.

Listen to the CareLab podcast here!

YouTube: https://www.youtube.com/channel/UCIieFR9ZQZf4yH59ysOY7aQ or @carelabpodcast

Socials for Dr. Brandy Archie, OTD, OTR/L, CLVT, CLIPP:

https://www.facebook.com/AskSAMIE

https://www.instagram.com/asksamie

https://www.linkedin.com/in/drbrandyarchie/

https://www.linkedin.com/company/asksamie/

https://www.asksamie.com

https://www.youtube.com/channel/UC5kNJnPHL2vU1vv1jTksgJQ

https://www.twitter.com/Ask_SAMIE

Social for Emilia Bourland, OTR, ECHM, CFPS:

https://www.facebook.com/HigherStandardsCaregiverTraining/

https://www.linkedin.com/in/emilia-bourland/

https://www.linkedin.com/company/higher-standards-caregiver-training/

https://www.youtube.com/channel/UCIfN3ImKGD6pVyiVby86zlw or @higherstandardscaregiver

Find all the resources that Barbara Karnes has to offer at bkbooks.com.

Purchase the End of Life Guideline Series Bundle here.

Find Barbara’s new booklet Always Offer, Never Force: Food at the End of Life here.

Read Barbara’s blog here.

Connect with Barbara Karnes on social media: Facebook Insta LinkedIn Twitter Pinterest YouTube

Order your copies of The Hospice Care Plan: A Path to Comfort here, now available in English and Spanish!

Check out the free library of video tutorials from the creators of The Hospice Care Plan hospice nurses Nancy Heyerman and Brenda Kizzire here.

Read more about Nancy and Brenda and their mission to improve hospice care here.

Find Odonata Care on social media: Facebook YouTube IG TikTok

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Caregiving Around the World Panel Discussion

Fri, 02 Aug 2024 17:42:39 +0000

This week's panel discussion unveils the hidden reality of caregiving youth worldwide. Representatives from the US, UK, Canada, and Australian organizations discuss the significant challenges young caregivers face, including lack of awareness, cultural barriers, policy gaps, and limited access to support.

The panelists, each with their unique experiences and insights, share a wealth of knowledge about the needs and experiences of young caregivers in their respective countries. They underscore the importance of early identification, culturally sensitive services, and policy changes to better support this vulnerable population.

Despite the challenges, the discussion highlights the strengths and resilience of young caregivers, who often take on adult responsibilities to support their families. This episode provides a comprehensive overview of the global state of caregiving youth support and the critical work being done to empower and advocate for them.

The panelists invite listeners to support their efforts through donations and awareness-raising initiatives. They emphasize the importance of recognizing and aiding caregiving youth, who play a vital role in their families and communities.

International Panel:

Andy McGowan, Carers Trust (UK)

Madeline Buchner, Little Dreamers (Australia)

Chelsea-Anne Alex, Hospice Toronto - Young Carers Program (Canada)

Connie Siskowski, American Association of Caregiving Youth (US)

Support the Show.

Confessions of a Reluctant Caregiver

Sisterhood of Care, LLC

Website: www.confessionsofareluctantcaregiver.com

Like us on Facebook!

Tweet with us on Twitter!

Watch us on Youtube!

Pin us on Pinterest!

Link us on LinkedIn!

Tune in on Whole Care Network

Share Episode Artwork Caregiving Around the World Panel Discussion 1:02:29 Episode Artwork Growing Up Caring: A Young Carer's Story of Resilience

The Fight for a Parkinsons Cure

Fri, 02 Aug 2024 17:42:29 +0000

Parkinson's disease advocacy is vital in the fight for a cure. Without public awareness and ongoing funding, research progress can stall. Advocacy efforts raise money for crucial research, educate the public about the disease, and create a sense of urgency. Every conversation about Parkinson's disease brings us closer to a future without this debilitating condition.

Our Guest: Dr. George Ackerman Dr. George Ackerman (Sharon’s son) is from Brooklyn, N.Y. Now residing in Florida, he works in the fields of law, police, and education. George lost his mother, Sharon Riff Ackerman on 1/1/2020 due to Parkinson’s Disease.

George wanted to honor his mother and continue to help in the Parkinson’s awareness cause and did not know how to bring change. We started TogetherForSharon® as a family for the purpose of keeping my mother, Sharon Riff Ackerman’s, memory alive and to share the message of Parkinson’s Awareness and hope for a cure.

Today https://www.togetherforsharon.com/ reaches thousands of individuals across the country for PD Awareness. George currently interviews individuals throughout the Parkinson’s community including various foundations, caregivers, and Parkinson’s warriors to help share their stories and causes.

I am on a mission, and nothing will ever stop me until there is a PD Cure.... nothing. Join me, share and we are a family in this mission toward a cure, always! https://www.togetherforsharon.com/about-us/#mission

Author, A Son’s Journey from Parkinson’s Disease Caregiver to Advocate. To order your copy click https://a.co/d/gqUwKJX

Also available in kindle/eBook and Hardcover at https://www.togetherforsharon.com/my-book/

Memory Loss: Four Essential Tips / Alzheimer’s and Other Dementias

Fri, 02 Aug 2024 17:38:53 +0000

Show Notes

Takeaways

We offer four tips to help you.

Tip 1: Figure Out What Information They're Struggling to Remember

Tip 2: Understand and Help with What They Can No Longer Do

As the condition progresses, it’s important to adapt tasks your loved one can no longer manage independently.

Tip 3: Get Other People Involved, As Appropriate

Sharing the diagnosis with others can be a sensitive topic, but it's often crucial for both the caregiver and the care receiver.

Tip 4: Watch Out for UTIs - They Can Muddle the Whole Situation

Urinary Tract Infections (UTIs) can significantly impact cognitive function and behavior in people with dementia and there can often be no symptoms except a sudden cognitive decline.

At the beginning it’s hard to get your head around what is happening. You will get through this phase, and your confidence will grow as you learn to handle each new situation.

Related episodes

3. Communication - in the Beginning: Four Essential Tips / Alzheimer’s and Other Dementias / Practical Tips and Candid Conversations

Rate, subscribe and share your tips on social media!

Thanks for listening! If you enjoyed this episode, please leave a review and subscribe on your favorite podcast platform.

Please click here to review, follow or subscribe to our podcast.

If you don’t see your preferred platform click on Podchaser and click at the bottom “Write my review”

You can log in with Twitter, Facebook or Google On the right you’ll see a box with “Follow”, “Rate and Review” and “Share” Connect with us and share your tips:

Keywords

Life Learnings and Life Insurance w/ Chris Hotchkiss

Fri, 02 Aug 2024 17:38:39 +0000

If you could learn any new skill, what would it be? Find out what Emilia, Brandy, and CareLab guest Chris Hotchkiss choose, then get down to brass tacks about life insurance. #carelabit #carelab

Find Care Equipment solutions at https://www.asksamie.com/

Find Caregiver Training at https://www.higherstandardscaregivertraining.com/

https://www.carelabpodcast.com/

Find Chris on Facebook at the Christopher Hotchkiss Agency page!

@CareLabPodcast @wholecarenetwork @Asksamie @higherstandardscaregiver @higherstandardscaregivertraining

Embracing the Unconventional: Understanding Unique Choices in Elderly Life

Fri, 02 Aug 2024 17:17:48 +0000

Some elderly people make unusual decisions that affect everyone around them. As they reach a certain age, some choose to make decisions that don't follow social norms or simply do what they want and stop doing what they don't want. This behavior might be because, once they retire, they are often encouraged to enjoy their life. It's important to ask them why they do certain things and to be open to accepting different ways of thinking.

As people age, they often reflect on their lives and prioritize what truly matters to them. This can lead to a desire to live more authentically, even if it means breaking away from societal expectations. For example, some may choose to pursue hobbies they never had time for before, or they might express opinions and beliefs more freely. Understanding this perspective requires empathy and a willingness to engage in open dialogue. By asking them about their motivations and listening without judgment, we can learn to appreciate their choices and perhaps gain valuable insights into our own lives. It's an opportunity to embrace diversity in thought and behavior, recognizing that everyone has a unique way of navigating life's journey, especially in their later years.

Helping End of Life Professionals Fill Their Cup

Sun, 28 Jul 2024 18:55:46 +0000

Erin Whalen, founder of Compassionate Coaching, is working to help end of life and grief professionals love their work again. Using her unique gifts, Erin and the Compassionate Coaching theater troop employ “playback theater” to develop engaging programming that centers around giving and receiving empathy. They work with end of life teams to mitigate burnout, enabling the teams to continue providing care for those who are dying.

Erin understands grief, loss, and the importance of caring for ourselves as we care for others. Erin lived her whole life in a state of anticipatory grief for the loss of her older sister, Gina. Gina was born with severe cerebral palsy, and died in 2016. Grief milestones are very familiar to Erin. Now she uses her work at Compassionate Coaching to support those who work to care for the dying.

You can connect with Compassionate Coaching at compassionatecoaching.org.

If you’re interested in playback theater to support your hospice team, click here.

If you’re an end of life worker and want to participate in a Storytelling Workshop, click here.

Find Erin Whalen on LinkedIn here.

Find all the resources that Barbara Karnes has to offer at bkbooks.com.

Purchase the End of Life Guideline Series Bundle here.

Find Barbara’s new booklet Always Offer, Never Force: Food at the End of Life here.

Read Barbara’s blog here.

Connect with Barbara Karnes on social media: Facebook Insta LinkedIn Twitter Pinterest YouTube

Order your copies of The Hospice Care Plan: A Path to Comfort here, now available in English and Spanish!

Check out the free library of video tutorials from the creators of The Hospice Care Plan hospice nurses Nancy Heyerman and Brenda Kizzire here.

Read more about Nancy and Brenda and their mission to improve hospice care here.

Find Odonata Care on social media: Facebook YouTube IG TikTok

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Launching "Poetry for the Dementia Journey": An AlzAuthors Anthology

Sun, 28 Jul 2024 18:55:37 +0000

In this podcast, host Marianne Sciucco is joined by an ensemble of talented poets to officially launch our anthology, Poetry for the Dementia Journey. This collection brings together caregivers who have personally navigated the complexities of caregiving, diagnosis, and emotional upheavals tied to Alzheimer's and dementia.

They write about many of the situations common to caregivers: the impact of the initial diagnosis, moving into assisted living or memory care, saying goodbye. From touching moments with loved ones to the nuanced challenges of caregiving, these poems offer solace, understanding, and a break from the isolating silence often surrounding dementia.

Whether you’re a caregiver, a family member, or someone seeking to understand the impact of Alzheimer's, this anthology and today’s episode provide a profound sense of connection and empathy. You'll experience a myriad of emotions, from sadness to joy, despair and hope. In the end, you will be comforted in knowing that you are not alone.

Takeaways:

· Gain insight into the profound impact of personal storytelling on Alzheimer's.

· Understand the unique challenges and emotional impact of early onset Alzheimer's on families.

· Explore the benefits of creative expression in providing holistic care for individuals with dementia.

Purchase Poetry for the Dementia Journey

Timestamps and page numbers:

2:30 Mariana Mcdonald, Diagnosis, p.30

5:06 Austin Alexis, Dementia Intrigue (not in book)

7:12 Sue Fagalde Lick, You Dance, p.80

8:42 Gail Thomas, A Daughter's Garland, p.114

10:28 Judith H. Montgomery, Mother's Day at Aspen Ridge Assisted Living, p.101

12:10 Ann Campanella, Child Mother, p.62

13:43 Margaret Stawowy, Mother Country, p.162

15:33 Eileen Kennedy, Ritual, p.59

16:41 Joy Johnston, At the Crossroads, p.167

17:47 Sherri Levine, Stealing Flowers from the Neighbors, p.147

20:37 Patricia McKernon Runkle, Given the Mother Word PURE, p.119

21:52 Alan Bern, Boxae, p.17

24:59 Kelly Dumar, Mrs. Bean's Snow, p.158

29:00 Renee Terry Mucci, Life, p.127

30:55 Eileen Kennedy, End of Day, p.60

31:59 Mariana Mcdonald, All the Books, p.31

34:10 Austin Alexis, The Patient, p.95

36:58 Gail Thomas, Alchemy, p.116

39:47 Alan Bern, Dream of Tangles, p.15

40:40 Judith Montgomery, Sometimes, p.103

43:56 Kelly Dumar, How He Asks, p.157

45:15 Ann Campanella, Beyond Words, p.63

47:01 Margaret Stawowy, Signs of Her Decline, p.163

About the Moderator

Marianne Sciucco

About the Podcast

AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others.

Thanks for listening.

We are a Whole Care Network Featured Podcast

Proud to be on The Health Podcast Network

Find us on The World Podcast Network and babyboomer.org

Want to be on the podcast? Here’s what you need to know

We've got merch! Shop our Store

TEACE SNYDER: Filmmaker/Artist - Exploring Human Connection and Voluntary Euthanasia

Sun, 28 Jul 2024 18:55:28 +0000

Can human connection and dignity survive in a profit-driven healthcare system? On this episode of "Love Conquers Alz," we are joined by the talented artist and filmmaker Teace Snyder, who introduces his thought-provoking film "Hold Me." The film explores the emotionally charged and controversial topic of voluntary euthanasia, focusing on a woman whose job is to comfort individuals in their final moments. Teace shares the poignant inspiration behind the film, highlighting the ambiguous professional role of a "holder" and how the film raises essential questions about human connection, grief, and end-of-life care. Our conversation with Snyder sheds light on the delicate balance between personal choice and ethical implications in these profound moments.

Our discussion expands to the broader issues of systemic neglect and the isolating experiences of the elderly and sick in our healthcare system, especially during the COVID-19 pandemic. We draw parallels to solitary confinement and critique the pervasive influence of money in healthcare, particularly within the hospice system. Through a candid examination of systemic corruption and the hidden influence of the nursing home lobby, we aim to inspire grassroots movements and honest conversations. Our goal is to foster empathy and prioritize human dignity in a system too often driven by profit. Join us as we navigate these complex topics with hope and a commitment to meaningful change.

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Dementia & Travel: Experiences & Memories

Sun, 28 Jul 2024 18:55:16 +0000

Travel with Dementia: Creating Unforgettable Moments, One Journey at a Time

Traveling with a loved one with dementia can feel daunting. But what if it could be more? This episode explores the transformative power of travel for individuals with dementia and their caregivers.

Discover how travel can:

Spark Joy and Break Routines: Escape the daily routine and create a sense of adventure for your loved one. Rekindle Memories: Familiar sights, sounds, and activities can trigger treasured memories and light up their face. Strengthen Your Bond: Shared experiences create lasting connections and deepen your relationship. Combat Isolation: Explore new places together and feel a sense of connection to the world. We'll delve into practical tips for planning dementia-friendly trips, from choosing destinations to managing challenges along the way. Learn how travel can become a powerful tool to create precious memories and enrich the lives of both you and your loved one.

About Our Guest Lizette Cloete, an Occupational Therapist and a daughter on this unique journey with you. She has just returned from an Elite Cruises & Vacation where she was part of the support staff for caregivers. With over 30 years as an Occupational Therapist, Lizette has been the “navigator” in many caregiving journeys, guiding 1000’s families through their often turbulent journey into calmer skies while dementia caregiving. Today she's telling you how to make vacation memories a reality.

Leaving a Legacy of Health: Caregiving Experiences and the Drive to Educate Others

Sun, 28 Jul 2024 18:55:06 +0000

Beverly Barnett is a registered nurse and men's health advocate. She has dedicated her life and career to healthcare after developing a passion for nursing as a young girl receiving treatment at a segregated clinic in her hometown. She drew inspiration from the compassionate nurses who cared for her during this difficult time.

Beverly shared her personal caregiving journey of caring for her husband after he was diagnosed with late-stage colorectal cancer. Despite being a nurse, she struggled with feelings of anger that he had ignored symptoms for so long before seeking treatment. She cared for him at home for the three years he battled the disease, which took an emotional toll. After his passing, Barnett was inspired to help educate others, especially black men, about the importance of early detection and regular doctor visits.

Through her nursing experience and family health challenges, Barnett has gained valuable perspectives that she utilizes in her mission to promote proactive healthcare. She continues advocating for men's health issues while also caring for her aging father with dementia. Barnett's story illustrates the lifelong impact of caregiving and how personal experiences can shape one's career and drive to help others.

About Beverly:

For Beverly Barnett, nursing is more than a job—it’s her calling. Inspired by a childhood illness, she pursued practical nursing right after high school and earned a bachelor’s degree within four years. Her dedication led her to obtain a Master of Science in Nursing, allowing her to teach and shape future nurses.

Beverly’s passion extends to men’s wellness, particularly the health of Black men, influenced by her husband’s battle with cancer. She believes chronic illnesses rob families of priceless moments and advocates for men to lead by example in health practices.

Beverly recommends four steps to promote proactive health among Black men: understand your family’s medical history, commit to annual check-ups, share your family’s health history with your doctor, and track health metrics. These steps aim to shift from reactive to proactive health management, fostering a healthier life journey.

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"Exclusive Interview with Caroline Thor: Insights and Inspirations"

Sun, 28 Jul 2024 17:46:23 +0000

In this podcast episode, we have an interview with Caroline. She delves into how our surroundings significantly impact our stress levels and overall well-being. Caroline explains that the environment we inhabit can either contribute to our stress or help us feel more relaxed and at ease.

During the interview, she provides valuable insights into how we can become more aware of our personal lifestyle preferences and shares practical strategies and tips for creating a more supportive and stress-free environment.

Tune in to gain a deeper understanding of the connection between your surroundings and your mental health, and to discover actionable steps you can take to create a more harmonious and fulfilling life.

Book recommended:

Tiny Habits. The small changes that change everything. BJ Fogg

To contact Caroline

https://www.caroline-thor.com/podcast/episodes/

Feeling Well With or Without Medications with Dr. Reshma Kapadia, PHA

Sun, 28 Jul 2024 17:46:12 +0000

Home remedies for feeling good (from the pros!) and how working with a great pharmacist can make us all healthier - this is WAY more than you think! #carelabit #carelab

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What You Need to Know About Hospice Medications with Pharmacist Ellen Fulp

Sat, 20 Jul 2024 17:52:08 +0000

Pharmacist Ellen Fulp is passionate about using medications appropriately to care for patients who are at their most vulnerable. As a part of the hospice interdisciplinary team, Ellen collaborates with the hospice director and nurse to ensure quality of life is supported, and a patient’s suffering is reduced. Caregivers and patients often misunderstand how medication is used in hospice care. Ellen believes in symptom resolution, keeping the patient’s goals of care in mind.

In hospice care, pharmacists do more than just review medications for side effects or adverse effects. They help the clinical team find the best medication options to keep the patient comfortable. That includes finding the right route, the most convenient and safe times for administering the medications, and ensuring the medications are utilized correctly by the patient. When medication diversion (meds being stolen or used by someone else) is a concern, pharmacists coordinate with the hospice team to furnish the meds in a safe, legally compliant way. Pharmacists might not be part of the “core team”, but they’re a vital part of the care of a hospice patient.

Connect with Ellen Fulp, PharmD, MSPC, BCG, Director of Pharmacy Education at AvaCare, on LinkedIn.

Find all the resources that Barbara Karnes has to offer at bkbooks.com.

Purchase the End of Life Guideline Series Bundle here.

Find Barbara’s new booklet Always Offer, Never Force: Food at the End of Life here.

Read Barbara’s blog here.

Connect with Barbara Karnes on social media: Facebook Insta LinkedIn Twitter Pinterest YouTube

Order your copies of The Hospice Care Plan: A Path to Comfort here, now available in English and Spanish!

Check out the free library of video tutorials from the creators of The Hospice Care Plan hospice nurses Nancy Heyerman and Brenda Kizzire here.

Read more about Nancy and Brenda and their mission to improve hospice care here.

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Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Aging in Place with Vinnie Venugopal

Sat, 20 Jul 2024 17:52:01 +0000

Vinnie Venugopal cared for his father and is a Certified Aging In Place Specialist with a passion for entrepreneurship and building solutions.

In this episode of the Happy Healthy Caregiver podcast, Vinnie shares how a 2-week vacation to India with his parents turned into an 8-week caregiving nightmare. Then, when his family was able to return home more attention was needed to help his dad age in place. We also talk about the small changes online and brick and mortar businesses and home builders can do to serve a growing older adult community. And, we learn about a curated website and newsletter Vinnie created to highlight news and popular articles related to the Baby Boomer generation.

Show notes with product and resource links:

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Two Diagnoses, One Love Story: Dissociative Identity Disorder & Alzheimer’s

Sat, 20 Jul 2024 17:51:53 +0000

How would you navigate the complication of having your spouse display Dissociative Identity Disorder - previously called Multiple Personality Disorder - alongside symptoms of Alzheimer’s? Today, we delve into the memoir "Don't Forget to Dance" with Marc Alderdice for our June Books & Chit Chat with Aging and Amazing. Marc takes us on a poignant journey through his wife Mary's battle with early-onset Alzheimer's, starting at age 59, and the extraordinary challenges they faced together, including her struggles with dissociative identity disorder.

We explore the deeply personal experiences that shaped Marc's narrative, his wife Mary’s determination to do all she could to prepare herself for a dementia diagnosis and how his scientific background influenced their approach to Mary's care. Marc also shares how he embraced the role of a male caregiver in a predominantly female sphere, the importance of self-care, and the insights gained from support groups continuing to meet virtually since Covid.

You'll hear about the significance of activities and physical gestures in communicating with nonverbal loved ones, the inspiration behind the book's title, and how Mary, despite her diagnosis, found joy in new hobbies and activities.

Join us as we uncover themes of love, resilience, and the relentless pursuit of happiness amidst the trials of Alzheimer's.

Quote:

I think our journey is positive and encouraging in the sense that it shows you really can make the best out of a bad situation. The person with Alzheimer's and the loved ones can be as happy as possible. It may take some work, and it may take a little bit to change your mindset for how you approach things, but it certainly worked for us. - Marc Alderdice

In this episode, you will:

Understand the unique experiences of the Alzheimer's journey Prepare yourself emotionally and mentally for the impact of Alzheimer's, Discover strategies to arm yourself with the resilience and coping strategies needed to face the journey ahead. Explore the relationship between dissociative identity disorder and Alzheimer's Discover valuable techniques for communicating with nonverbal Alzheimer's patients, fostering deeper connections and understanding. After the Podcast

Buy the Book

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Retirement Jobs and the Adventures of Caregiving with Michele Magner

Sat, 20 Jul 2024 17:51:32 +0000

Anyone else curious about retirement communes???

Michele gives us food for thought on commune living, stages of caregiving, and generally doles out buckets of wisdom that are not to be missed! #carelab #carelabit

@CareLabPodcast @wholecarenetwork @Asksamie @higherstandardscaregivertraining @higherstandardscaregiver

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An Alzheimer's Love Story - Blue Hydrangeas

Sat, 20 Jul 2024 17:51:20 +0000

Blue Hydrangeas is a heartwarming novel that tackles the difficult realities of caring for a spouse with Alzheimer's. It delves into the emotional journey of a partner who must re-evaluate what "everything" means in the face of this disease.Through beautifully crafted characters, the story reminds us that while life may not unfold as we originally planned,getting creative and rethinking our paths can lead to unexpected moments of joy, connection, and even personal growth.Join us as we explore the power of resilience and the profound ways love can blossom anew, even amidst the challenges of Alzheimer's.

AgingGayfully™ Visiting Key West

Sat, 20 Jul 2024 17:51:04 +0000

Josh and Chris discuss the importance of deep connections with others. Chris shares about his experiences visiting Key West and offer recommendations for travelers. The conversation touches on the impact of technology on travel, the flattening of cultures due to globalization, and the need to update information and apps before traveling. They end the episode with a song recommendation and encourage listeners to share their summer travel plans.

A gay senior, Christopher MacLellan, and an ally, Josh Wilson, podcasting about life, love, liberty and travel. Don't Say Gay?... Say AgingGayfully™!

Subscribe NOW, where you listen to your favorite podcast.

Learn more at AgingGayfully™.

Caregiving Rapids: Navigating the River of Aging and Independence

Sat, 20 Jul 2024 17:50:40 +0000

Theresa Wilbanks' caregiving journey began unexpectedly when she lived abroad in Europe with her husband. As her father aged into his 90s, she took on more of an advocacy and support role from a distance. However, a series of health scares brought Theresa back home to the United States to serve as her father's primary caregiver. She dove headfirst into the intense role, unprepared for the emotional toll it would take. Through trial and error, Theresa navigated countless challenges with her father's independence, medical management, and resistance to help. She experienced deep burnout as small conflicts like spilled blueberries came to represent the daily struggles.

Determined to find sustainable strategies, Theresa worked to understand her own emotions and reactions within the caregiving relationship. She embraced mindfulness practices and set boundaries to better support her father while also caring for herself. Theresa's realization of accepting her fate as a caregiver rather than resisting it proved a turning point that allowed her to find meaning and growth in the experience. By openly sharing her journey, Theresa has helped countless other caregivers feel less alone and equipped them with practical tools for building resilience.

Today, Theresa continues her work to help caregivers through her writing, speaking, and role as founder of Sustainable Caregiving. Through the 12 strategies she developed on her own challenging river of a journey, she aims to reframe caregiving as an opportunity rather than a burden. Theresa's authentic storytelling provides hope, insight, and valuable lessons for anyone navigating the complex emotions and realities of caring for an aging loved one.

About Theresa:

Theresa Wilbanks is an author, speaker, podcast host, and founder of Sustainable Caregiving. Theresa’s passion and purpose are to guide family caregivers on their journey as they manage and provide care for a family member.

Theresa’s career enabled her to lead teams and develop training programs. She left it behind to live in France and didn’t look back until caring for her father became necessary. The caregiving experience inspired her to found Sustainable Caregiving and guide fellow family caregivers on their journey.

She became a Certified Caregiving Consultant and realized that more was needed as she began connecting caregivers to resources. Using skills developed in the corporate setting, Theresa deconstructed what made caregiving so overwhelmingly challenging. Through trial, error, and tears, she created the 12 Sustainable Caregiving Strategies to help caregivers navigate their journey empowered with confidence.

Theresa shares her vision of a sustainable caregiving journey and offers hope to family caregivers through speaking and in her book Navigating the Caregiver River: A Journey to Sustainable Caregiving.

Go to https:www.sustainablecaregiving.com for more information on how t

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Confessions of a Reluctant Caregiver

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Dementia Care Development (with special guest Joan Dipaola

Sat, 20 Jul 2024 17:50:24 +0000

In this episode, Sarah interviews Dementia Care Specialist Joan Dipaola about the struggles with dementia caregiving and what families need to know to help develop a proper caregiving plan.

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Evil Smartphones and Advanced Care Planning with Dr. Brittany Lamb

Sat, 20 Jul 2024 17:50:02 +0000

Smartphones... good or evil? Share your opinion in the comments, then stay with us while we talk about advanced care planning and medical decision making with Dr. Brittany Lamb!

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Revenge Bed Procrastination

Sat, 20 Jul 2024 17:49:37 +0000

In this episode, I explain the meaning of the term Revenge bed procrastination. It describes the common practice of attempting to complete unfinished tasks from the day just before bedtime. This concept encourages us to reflect on our nighttime routines and emphasizes the significance of what we do before we sleep.

Many of us fall into the trap of trying to catch up on the day's work during those last few moments before bed. It’s essential to recognize that everyone needs time to decompress. Engaging in stressful activities right before sleeping can negatively affect our rest and overall well-being.

Learning to say no to additional tasks, delegating caregiving responsibilities, and setting aside dedicated time for self-care are important steps. By involving others in our daily responsibilities, we can share the load and reduce our stress.

Furthermore, taking a few minutes each day and a few hours each week for filling out our cups is vital. This time allows us to recharge, ensuring we are better equipped to handle our daily responsibilities and maintain a healthier balance in our lives.

What You Need to Know About Finding Your Grief Style

Sat, 13 Jul 2024 19:18:47 +0000

Funeral director and author Jodi Clock knows personally how each person finds a grief style that’s the best, healthy fit for themselves. As host of the “I Woke Up Dead - Now What?” podcast, Jodi is having conversations about our common experiences with death, shares best practices, and asks the tough questions in order to prepare for end-of-life realities we all will face.

Jodi learned valuable life lessons about grief and loss after experiencing the death of both her parents when Jodi was in her 20’s. As a funeral director, she’s seen all the aspects of grief and how every individual has their own personal style of grief.

In her newest book “It’s Complicated!” - What You Should Know About: Social Security, Medicare, Medicaid, Long Term Care, End-of-Life Wishes and more”, Jodi provides guidance to help people advocate for themselves, know what questions to ask. All too often people receive well intended mis-information. Jodi’s book gives expert advice based on both her professional and personal experiences.

Connect with Jodi Clock at jodiclock.com.

Get your copy of “It’s Complicated! - What You Should Know About: Medicare, Medicaid, Social Security, Long Term Care, End-of-Life Planning and more” here.

See all of Jodi’s books at jodiclock.com/books.

Book Jodi to speak at your event here.

Socials for Jodi:

Website: https://jodiclock.com/

LinkedIn: https://www.linkedin.com/in/jodi-clock-b988908/

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Podcast: https://jodiclock.com/i-woke-up-dead-podcast/

Find all the resources that Barbara Karnes has to offer at bkbooks.com.

Purchase the End of Life Guideline Series Bundle here.

Find Barbara’s new booklet Always Offer, Never Force: Food at the End of Life here.

Read Barbara’s blog here.

Connect with Barbara Karnes on social media: Facebook Insta LinkedIn Twitter Pinterest YouTube

Order your copies of The Hospice Care Plan: A Path to Comfort here, now available in English and Spanish!

Check out the free library of video tutorials from the creators of The Hospice Care Plan hospice nurses Nancy Heyerman and Brenda Kizzire here.

Read more about Nancy and Brenda and their mission to improve hospice care here.

Find Odonata Care on social media: Facebook YouTube IG TikTok

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Balancing Act: Empowering Caregivers to Thrive at Work and Home

Sat, 13 Jul 2024 19:15:59 +0000

In this podcast, I address the challenges women face in various aspects of life. Women are often scrutinized for their appearance, whether they have children, their marital status, and their responsibilities towards elderly parents. Before being hired, women must prove their knowledge and worth, and even after securing a job, they must continually validate their value.

Society imposes caregiver roles on women, expecting them to care for children, the sick, and the elderly. This expectation extends beyond personal life and infiltrates professional settings, where women experience microaggressions and biases. These societal pressures can lead many women, who unexpectedly become caregivers, to leave their jobs.

It's crucial to speak up and bring awareness to these issues. The importance of women's well-being cannot be overstated. Addressing these challenges and advocating for change is essential for creating a more equitable and supportive environment for all women.

Mindfulness in Caregiving with Nancy Gentle Boudrie

Thu, 11 Jul 2024 19:52:10 +0000

Today my guest is Nancy Gentle Boudrie. For 35 years, Nancy helped Business Owners and Corporations achieve peak perform and create exponential success until she found her true passion and purpose working with people to manage high levels of stress and navigate unprecedented challenges.

She blends her business knowledge with her training from Jon Kabat Zinn’s Mindful Based Stress Reduction and Naropa University’s Mindful Leadership Training.

In this episode, Nancy and I discuss what mindfulness is, how to access it, the difference between detachment and dissociation, steps to mindfully accept your emotions, and simple techniques on how to incorporate mindfulness into your caregiving.

SHOW NOTES

Nancy's website - Awaken With Light

Unconditional Love in Action: Honoring Vows Through Sickness and Health

Thu, 11 Jul 2024 19:52:01 +0000

Terrance Hawthorne is the epitome of unconditional love and devotion. For the last two years, he has courageously served as the primary caregiver for his wife LuCretia as she recovers from a brain aneurysm and multiple strokes. Despite facing this incredibly difficult situation, Terrance maintains an inspiring attitude and finds comfort, grace, and purpose in being by LuCretia's side. He honors his marriage vows completely by ensuring LuCretia feels respected, dignified, and engaged in life through small acts of care and involvement in the community. Even while working full-time, Terrance prioritizes LuCretia's needs above all else. He advocates for himself and asks for help when needed to support his wife during her recovery journey better. Terrance's compassion and servant's heart are evident in his actions for LuCretia and others. He hopes to use their story to uplift and empower other caregivers through the Caregiver Lifestyle Foundation.

About Terrance:

Terrance & LuCretia Hawthorne have been married for 23 years and hail from Mobile, Alabama. They relocated to Tampa, Florida in 2002 to embark on a new chapter as Mr. and Mrs. Hawthorne. As a blended family with 7 kids and 11 grandchildren, they dedicated nearly 20 years to serving in Revealing Truth Ministry, actively involved in the Marriage, Outreach, and Homebuyers ministries. Renowned as pillars in their community, they assisted the homeless and supported children in foster care.

Terrance and his wife are the proud owners of Platinum Plus Beauty Studio, a local business that has been serving the community for 18 years. While his wife pursued her dream as a Real Estate Agent, Terrance worked as a Supervisor in a local union and also served as a Credit Repair Agent. Together, they conducted free homebuyers and credit repair classes for the community, emphasizing financial literacy and the importance of building a lasting legacy for families.

In 2020, during the pandemic, a life-altering event occurred when Terrance's wife suffered a Brain Aneurysm and Multiple Strokes, with only a 1% chance of survival. Emerging from a Coma and battling Life Support, her miraculous recovery was a testament to God's purpose. Terrance now serves as her full-time caregiver, standing faithfully by her side through sickness and health. With unwavering hope, they continue to believe in her complete recovery, as healing is her destined path.

Connect with Terrance:

Instagram: @Terrancehawthorne

Facebook: @Terrancehawthorne

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Confessions of a Reluctant Caregiver

Sisterhood of Care, LLC

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How to Have the Hard Conversations Before the Hard Things Happen

Thu, 11 Jul 2024 19:51:50 +0000

Hospice nurse Eileen Spillane of Befriending Death has learned to be comfortable with the uncomfortable. Eileen is the Founder of Befriending Death and has been a Registered Nurse for over thirty years, specializing in Oncology, Critical Care, and Obstetrics. She is a certified Life Coach from New Ventures West, a former Zen Hospice Project Volunteer, a Meditation Teacher, and an Active Travel Guide. She has been at the bedside of many as they transition through the dying process and cares very deeply about this topic.

On the Befriending Death website, Eileen writes that “if we have conversations about it (death), we might loosen up the fear and anxiety around it. If we prepare and share our wishes, we can give our loved ones the gift of clarity and direction so they feel confident they are following our wishes and have the opportunity to grieve without further unnecessary stress”.

Eileen’s courses can benefit everyone, from people with life-changing illnesses to elder law attorneys and caregivers for someone with a chronic illness. The courses include smaller “buddy groups” that create a deeper connection between participants. The Let's Chat About Death course provides an opportunity to investigate what’s important in our lives and make changes that reflect that.

Find Befriending Death at befriendingdeath.com.

Finally! Practical tips and candid conversations for dementia caregivers.

Thu, 11 Jul 2024 19:51:40 +0000

NEW PODCAST COMING TO THE WHOLE CARE NETWORK!

The Caregiver’s Journey is an innovative and refreshing way to learn how to tackle day-to-day dementia family caregiving challenges. Using practical tips and candid conversations, Sue and Nancy help you navigate caregiving’s ups and downs, so you move from feeling frustrated and overwhelmed to confident and supported.

A Peruvian Alzheimer's Adventure

Thu, 11 Jul 2024 19:51:26 +0000

How can getting eldercare for someone with Alzheimer's be better in Peru? To begin with, the cost of living is so much lower in Peru than in the United States. Instead of $600 a day, Barabra Drakes father lived like a king on $600 a month.

If you're listening to this episode, you may be facing terrifying options for a loved one. The cost of care in countries like America, Canada & the United Kingdom can be prohibitively expensive. Many families are faced with choices that are unacceptable but they don't have better options.

It is possible to retire outside the United States. It takes careful research and planning but it may be an option worth considering. Barbar's blog can help you start your research correctly and maybe you too will have a Peruvian Alzheimer's Adventure with your loved one.

What type of caregiving adventure have you been on? We're always looking for guests with interesting stories, helpful advice, anything that might help. Are you a potential guest or know someone who could be? Contact us at fadingmemoriespodcast.com with ideas, suggestions or if you just want to say hi!

An Educated Guest

Thu, 11 Jul 2024 19:44:49 +0000

Jodi sits down with Dr. Lawrence Nespoli about the importance and accessibility of education, failing at retirement and winning at positivity.

About our guest:

Dr. Lawrence A. Nespoli is the former President of the New Jersey Council of County Colleges (NJCCC), the statewide coordinating organization for New Jersey’s community colleges. New Jersey’s community colleges presented him with the inaugural New JerseyCommunity College Legacy Award in 2018, in recognition of the many contributions he made to New Jersey’s community colleges and its students while serving as president for 27 years. Dr. Nespoli is now a faculty member in higher education and community college leadership doctorate programs at Rutgers University, the University of Maryland Global Campus, New Jersey City University, and Rowan University, while also serving as a trustee at his local community college, Mercer County Community College in New Jersey.

The Best and Worst Grab Bars in the World!

Thu, 11 Jul 2024 19:43:15 +0000

Emilia and Brandy share their worst spelling issues, then get real talking about the world best (and worst) grab bars. #carelab #carelabpodcast

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Check out more from Ponte Guilio at https://www.pontegiulio.com/en-US/

On My Way Back To You (with special guest Sarah Cart)

Thu, 11 Jul 2024 19:42:23 +0000

In this episode, Sarah interviews Sarah Cart about her journey caring for her husband as he needed a heart transplant in the early days of Covid and her the book she wrote about her experience.

You can find her book at: On My Way Back to You: One Couple's Journey through Catastrophic Illness to Healing and Hope: Cart, Sarah, Plaskin, Glenn: 9781637632512: Amazon.com: Books

You can find more of us at:

Stelmach Brown Media llc

And use the special promo code: AMBASSADORMLTV11

We are also affiliated with Carewell. Use this code and you can receive 30% off first order

Care Products | 24/7 Service | 30% OFF 1st Autoship - Carewell

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Please like share and subscribe to our podcast, also if you enjoy our content and to provide us with additional support, you can tip us here https://ko-fi.com/caregiverchroniclespodcast

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Raising the Next Generation of Feminist Men: Empowering Boys for an Equal Future

Thu, 11 Jul 2024 19:39:33 +0000

In this podcast, I emphasize the crucial role of raising children with feminist values. When we empower our children with these principles, we pave the way for a future where those in power can lead society towards more equitable and respectful treatment for all. The persistence of machismo in our culture often stems from women teaching boys that there will always be a woman to cater to their needs. This mindset must change.

Consider community centers for the elderly: they require a dedicated team to manage cleaning, administration, caregiving, and meal preparation. This clearly illustrates that caring for an elderly person is a multifaceted job that cannot be handled by just one individual. It's unrealistic and unfair to expect a single person to shoulder such a burden at home.

The reality is that caring for the elderly, much like many other responsibilities, necessitates the collaboration and support of everyone in the household. Each family member must contribute to create a balanced and supportive environment. By teaching our children feminist values, we instill in them the importance of shared responsibilities and mutual respect, which are fundamental for a harmonious and just society. Together, we can challenge and dismantle harmful stereotypes, ensuring a better future for everyone.

Organizing the Copious Care Data with Tara Ross

Wed, 03 Jul 2024 17:13:16 +0000

Tara Ross brings a wealth of personal experience and unwavering support to fellow caregivers, drawing from more than a decade of caregiving roles. Having navigated the complexities of caring for a veteran, her in-laws, and balancing the needs of young children and pets, Tara intimately understands the challenges caregivers face.

In this episode of the Happy Healthy Caregiver podcast, Tara shares her journey of overcoming caregiver burnout and implementing strategies to prevent future exhaustion. She also discusses how her own caregiving journey inspired her to develop innovative products to assist other caregivers. And, Tara introduces a transformative visual tool designed to help caregivers assess their energy levels and maintain balance in their lives.

Show notes with product and resource links:

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The Happy Healthy Caregiver podcast is part of the Whole Care Network. Rate and Review the podcast:

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Cruel and Inhumane Handling

Wed, 03 Jul 2024 17:13:02 +0000

Join Mark and Charles as they explore the shadows of military history, uncovering the stark reality of psychiatric neglect in the armed forces. In this episode your hosts explore Chapter 3 of their book, "Cruel and Inhumane Handling," shedding light on the military's failure to address the full cost of war on soldiers' mental health.

Hear the chilling accounts of ancient and historical practices of punishment for those deemed weak or cowardly, from the Roman legions to the American Civil War. Discover the troubling legacy of branding, barreling, and flogging, and how these brutal tactics aimed to maintain discipline by making examples of those suffering from psychiatric injuries. As Mark and Charles reveal, these "dark strategies" are not relics of the past but continue to haunt military mental health care in various forms, perpetuating a cycle of trauma and neglect.

Through their conversation, the hosts expose the complexities of distinguishing cowardice from war stress injuries and the military's dilemma of balancing the need to fight wars with the obligation to protect the mental well-being of its soldiers. They discuss the phenomenon of "Old Sergeant Syndrome," the inevitable breaking point of even the most battle-hardened veterans, and the implications for military discipline and cohesion.

This episode is a must-listen for anyone interested in the intersection of military history, mental health, and the human cost of war. Tune in for a sobering yet necessary discussion on the urgent need for change in how we address the invisible wounds of battle.

Table of Contents for Discussion

For further insights and to join the conversation, reach out to Mark at mrussellphd@gmail.com. Your engagement can help pave the way for a future where military mental health is no longer a silent battlefield.

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The Facts Do Not Lie. Why Military Mental Health Has Never Worked. Veterans and Researchers Mark Russell and Charles Figley.

Wed, 03 Jul 2024 17:12:53 +0000

Dee Tox engages in a dialogue with two esteemed guests, Dr. Mark Russell and Dr. Charles Figley., both Veterans and clinical psychologists. They bring an unparalleled depth of experience and insight to the conversation about military mental health, trauma, and the systemic issues that perpetuate a cycle of neglect within the armed forces.

Together, they've penned "Psychiatric Casualties," a book that is both a historical chronicle and a clarion call for change. It's a meticulous dissection of the military's recurring missteps in managing war stress issues, backed by a staggering amount of research and evidence. This episode not only digs into the personal narratives of these two warriors but also spotlights the vital message of their collaborative work: the urgent need for genuine care and systemic reform in military mental health.

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Life After Loss: Sue Fagalde Lick's Journey After Caregiving

Wed, 03 Jul 2024 17:12:41 +0000

Welcome back to the podcast where we share the powerful stories of those who have been impacted by Alzheimer's and dementia. In this episode, Christy and Marianne sit down with Sue Fagalde Lick, a remarkable poet, author, musician, and dog lover from the Oregon coast. Sue shares her deeply moving story of caring for her husband, Fred, throughout their Alzheimer’s journey until his passing.

We dive into Sue's earlier work, Childless by Marriage, and explore her latest writings on widowhood and life after dementia, including her poetry anthologies and newly published memoir, No Way Out of This: Loving a Partner with Alzheimer’s, which beautifully intertwines the romance and challenges of life with Fred. Sue opens up about the support she unexpectedly received from friends, the therapeutic value of writing, and the importance of maintaining agency and preparedness as a caregiver.

Sue's candor about the hardships of caregiving in a rural area, the emotional impact of rehoming pets, and the solace she finds in music and community will resonate deeply with listeners.

We also discuss the creation of our new anthology, Poetry for the Dementia Journey, for which Sue volunteered to serve as editor and formatter.

Join us for a heartfelt conversation that highlights resilience, love, and the importance of support systems in the caregiving journey.

Key Takeaways

Living Through Dementia Twice Coping with a Spouse’s Alzheimer's Embracing the Caregiver Role The Difficulties of Relocating for Medical Care The Healing Power of Writing The Role of Pets in Caregiving and Therapy Learn more about Sue at AlzAuthors.com

Connect with Sue

Website

Blog

Facebook author page

Twitter

Can I do It Alone? on Substack

Purchase Sue’s books

No Way Out of This

Gravel Road Ahead

Childless by Marriage

Blue Chip Stamp Guitar

Dining Alfresco with My Dog

About the Hosts

Marianne Sciucco

Christy Byrne Yates

About the Podcast

Thanks for listening.

We are a Whole Care Network Featured Podcast

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Purchase our new anthology, Poetry for the Dementia Journey

EP:62 High Level Transitioning beyond the Frontline

Wed, 03 Jul 2024 17:12:07 +0000

Donna goes solo and engages in a conversation with Dave Peterson, a retired One-Star General and the current Executive Vice President of the San Antonio Chamber of Commerce. Discover the nuances of high-level transition, the value of networking, and the myriad ways the Chamber can be a catalyst for business growth and community engagement. Tune in for a blend of personal stories, expert advice, and actionable strategies that resonate with veterans and civilians alike.

Tune into our CHW Streaming Radio and the full lineup at cominghomewell.com Download on Apple Play and Google Play

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Donna’s Links Website: www.rebel-llc.com Consulting/Coaching Book: Warrior to Patriot Citizen (2017) Blog: Taking Off The Armor IG: @thetransitioningwarrior Twitter: @wtpc FB: The Transitioning Warrior

Jay’s Links Website: https://j2servantleadership.com/ Book: Breaking Average (2020)

Thank you for listening! Be sure to SHARE, LIKE and leave us a REVIEW!

Side Effects, Solutions, and the Power of Persistence in Caregiving

Wed, 03 Jul 2024 17:11:55 +0000

From a young age, Jill Meyer-Lippert was thrust into the caregiver role, helping to care for her grandmother, who had Alzheimer's disease. She balanced supporting her grandmother with school and extracurricular activities.

Later in life, Jill cared for both her mother during breast cancer treatment and her father through various health issues until his passing. Through it all, Jill demonstrated incredible strength, resilience, and compassion. Even in the midst of her own hardships, her primary concern was helping her loved ones.

After losing her father to cancer, Jill found solace in marathon running and other endurance events. She channeled her grief into fundraising for cancer charities. Jill's experiences as a lifelong caregiver inspired her to start Side Effect Support LLC, providing resources to help cancer patients manage oral side effects from treatment. Through her organization, Jill is able to give back and make a positive impact on the lives of others facing similar struggles.

Jill's story is one of perseverance, purpose, and turning personal adversity into opportunity to help others.

About Jill:

Jill Meyer-Lipper is a Registered Dental Hygienist and the founder of Side Effect Support LLC (https://sideeffectsupport.com/). Side Effect Support is an online resource for cancer patients, family caregivers, and healthcare providers that aims to reduce harmful oral side effects of treatments to improve quality of life and treatment outcomes.

Jill is a 2014 recipient of the Sunstar Americas/RDH Award of Distinction, holds a certificate in Oncology Management from the University of Southern Indiana College of Nursing and Health Professionals, and is an instructor for the National Network of Healthcare Hygienists’ Oncology Certificate program. She is a member of the Registered Dental Hygienist Advisory Board for the Oral Cancer Foundation and was named one of the “6 Dental Hygienists You Want to Know” by Dimensions of Dental Hygiene magazine in 2022.

Connect with Jill:

Website: https://sideeffectsupport.com/

Twitter: https://twitter.com/Support_Jill

Instagram: https://www.instagram.com/sideeffectsupportllc/

Facebook: https://www.facebook.com/SideEffectSupportLLC

Linked In: www.linkedin.com/in/jill-meyer-lippert-8ba63050

https://www.linkedin.com/company/side-effect-support-llc

Blog URL: https://sideeffectsupp

Support the Show.

Confessions of a Reluctant Caregiver

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Share Episode Artwork Side Effects, Solutions, and the Power of Persistence in Caregiving

Women and The Broken Health Care System

Wed, 03 Jul 2024 17:11:40 +0000

Fixing it Together

Navigating the healthcare system as a woman can be an uphill battle, with symptoms frequently dismissed, misdiagnosed, or attributed to psychological causes. In this eye-opening episode, you'll learn how to advocate for yourself and receive the quality care you deserve despite the systemic gender biases that persist in medicine.

Discover why women face higher rates of misdiagnosis and unexplained symptoms, and gain invaluable strategies for effectively communicating your concerns to healthcare providers. From understanding your rights as a patient to asking the right questions, you'll be equipped with the knowledge and tools to overcome marginalization and ensure your voice is heard. Prepare to feel empowered to take control of your healthcare journey as you learn to navigate a system that has historically sidelined women's needs. Gain the confidence to demand the comprehensive, unbiased treatment you deserve.

In this episode, listeners will gain invaluable insights from writer and researcher Susan Salenger, author of "Sidelined," who joins us to share her findings and advice.

Breaking Down the Walls of Substance Abuse

Wed, 03 Jul 2024 17:11:27 +0000

In this episode of Veterans for Recovery, host Major John Donovan welcomes Jeremy Drucker to discuss the multifaceted journey of recovery. Jeremy's talks about his background in English literature, his career in public service, and his personal recovery journey. The conversation touches on the complexities of substance use, the importance of a person-centered approach to treatment, and the upcoming Veterans listening session in Minnesota. Join us for an insightful discussion on how recovery can be a path to freedom and self-discovery.

Support the Show.

Tune into our CHW Streaming Radio and the full lineup at cominghomewell.com Download on Apple Play and Google Play

Online-Therapy.com ~ Life Changing Therapy Click here for a 20% discount on your first month.

Thank you for listening! Be sure to SHARE, LIKE and leave us a REVIEW!

When Mom Doesn't Realize How Hard It is On Me!

Wed, 03 Jul 2024 17:04:28 +0000

In this episode, I address a common yet challenging scenario where a caregiver struggles to manage their own life while caring for an appreciative but unaware parent. Join us as we explore:

The signs of caregiver burnout and why recognizing them early is crucial. Strategies for having honest conversations with your loved one about the difficulties you're facing. Practical tips for bringing in additional help, including community resources, professional services, and family support. The importance of making home modifications to ease daily tasks. Gain valuable insights and encouragement to help caregivers navigate their responsibilities without sacrificing their well-being.

Tune in for practical advice and heartfelt support.

If you are a caregiver and have a question that you would like to have addressed on the Caregivers's Finding A Foothold Podcast , you can do so by also dialing (225)-443-9447.

You can also leave a question by filling out this jotform:

https://form.jotform.com/231966483352160

Consuela Marshall, Occupational Therapist, Caregiver Coach Fall Prevention Specialist Certified Aging in Place Specialist Certified Dementia Care Practitioner Certified Geriatric Care Professional

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Changing the Narrative Around Hospice Care with Helen Bauer

Wed, 03 Jul 2024 14:33:06 +0000

Stupid things we know we shouldn't do, understanding hospice, and getting the most out of hospice care with Helen Bauer #carelab #carelabpodcast #hospicecare

@Asksamie @wholecarenetwork2847 @higherstandardscaregiver

Find more from Helen at https://thewholecarenetwork.com/heart-of-hospice/

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Find Caregiver Training at https://www.higherstandardscaregivertraining.com/

https://www.carelabpodcast.com/

On My Way Back To You (with special guest Sarah Cart)

Tue, 02 Jul 2024 03:38:32 +0000

In this episode, Sarah interviews Sarah Cart about her journey caring for her husband as he needed a heart transplant in the early days of Covid and her the book she wrote about her experience.

You can find her book at: On My Way Back to You: One Couple's Journey through Catastrophic Illness to Healing and Hope: Cart, Sarah, Plaskin, Glenn: 9781637632512: Amazon.com: Books

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Please like share and subscribe to our podcast, also if you enjoy our content and to provide us with additional support, you can tip us here https://ko-fi.com/caregiverchroniclespodcast

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HEATHER FINK: COMEDIAN/FILMMAKER/CAREGIVER - Surviving Quicksand

Sun, 30 Jun 2024 14:13:40 +0000

Comedian/Filmmaker/Caregiver HEATHER FINK came to filmmaking from comedy. She has been making funny videos since she was a kid growing up in small town New Jersey. After earning a Philosophy degree from The George Washington University, she began NYU's Grad Film program as Writer/Director. Heather has gone on to direct over 35 comedy short and has been featured on MTV, Dr. Phil, TV Guide Magazine and The Washington Post, to name a few. Most currently, she was featured in the LA Times with, as she said in her post on X, her “my most depressing interview and pull quotes ever!” talking about the residual affect ion her career following the SAG-AFTRA and WGAstrikes in 2023. She currently pays the bills as a Sound Person for film and tv, including Marvel’s “Daredevil” and Hulu’s “The Dropout.”

Heather came to caregiving after her beloved father had a paralyzing stroke. Now, she is taking her life-altering story to the stage with her one-woman show, Quicksand, that chronicles how she navigated her role as a young caregiver after her dad’s stroke and the challenges she faced trying to keep herself from sinking. As Heather says, “From caregiving to death and the midlife crisis, QUICKSAND is a storytelling and clown exploration of the realest sh*t we face.”

We chatted with Heather about the importance of creating a supportive community and shared our personal experiences with grief and loss, and the challenges of balancing personal storytelling with the need to connect with a wider audience in documentary filmmaking.

Don and I had a truly fantastic, funny, and heartfelt exchange with this incredible lady and are sure you are going to enjoy our conversation with the one and only Heather Fink.

Support the Show.

What You Need to Know About Integrative Palliative Care

Sun, 30 Jun 2024 14:12:53 +0000

“What do I need to know about you as a person to take the best care of you?” This is how integrative palliative medicine physician Ddr. Delia Chiaramonte starts conversations with her patients. It’s a Dignity Question that lets her patients know she cares about them as a person. Delia works in integrative palliative medicine to care for the whole person.

Dr. Delia Chiaramonte is a caregiver coach as well as an integrative palliative medicine physician. She’s the founder of the Integrative Palliative Institute and host of The Integrative Palliative Podcast. Dr. Chiaramonte is an adjunct assistant professor at the University of Maryland, has published textbook chapters in the fields of integrative and palliative medicine, and was voted a “Top Doctor” by her physician peers. Dr. Chiaramonte believes that self-care is part of the job description of every clinician.

Delia is the author of Coping Courageously: A Heart-Centered Guide for Navigating a Loved One’s Illness Without Losing Yourself. More information about Dr. Chiaramonte’s Courageous Caregiver program is available at www.CaregivingIsHard.com.

Connect with the Integrative Palliative Institute at integrativepalliative.com.

Find more information on the Courageous Caregiver program at caregivingishard.com.

Download Dr. Chiaramonte’s FREE Guide to Caregiving for Women caring for an aging or ill loved one here.

Find all the resources that Barbara Karnes has to offer at bkbooks.com.

Purchase the End of Life Guideline Series Bundle here.

Find Barbara’s new booklet Always Offer, Never Force: Food at the End of Life here.

Read Barbara’s blog here.

Connect with Barbara Karnes on social media: Facebook Insta LinkedIn Twitter Pinterest YouTube

Order your copies of The Hospice Care Plan: A Path to Comfort here, now available in English and Spanish!

Check out the free library of video tutorials from the creators of The Hospice Care Plan hospice nurses Nancy Heyerman and Brenda Kizzire here.

Read more about Nancy and Brenda and their mission to improve hospice care here.

Find Odonata Care on social media: Facebook YouTube IG TikTok

4th of July Strategies for Someone with Dementia

Sun, 30 Jun 2024 14:10:23 +0000

The 4th of July is full of fun, family, food, and fireworks! All of which is awesome... until the person you're caring for has a panic attack every time they hear a boom. This CareLab episode is full of tips to help people with dementia enjoy the holiday without triggering the fear that fireworks can often spark.

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https://www.carelabpodcast.com/

AgingGayfully™ PRIDE!

Sun, 30 Jun 2024 14:09:27 +0000

Josh and Chris discuss PRIDE month and what it means today.

A gay senior, Christopher MacLellan, and an ally, Josh Wilson, podcasting about life, love, liberty and travel. Don't Say Gay?... Say AgingGayfully™!

Subscribe NOW, where you listen to your favorite podcast.

Learn more at AgingGayfully™.

Interview with founders of Mckenzie meet Alzheimer

Sun, 30 Jun 2024 14:08:48 +0000

In today's podcast, I interview the founders of McKenzie Meets Alzheimer’s. They explain how their project started and provide information, tips, activities, and useful tools to create good moments for families with patients who have this disease.

Mackenzie Meets Alzheimer's Disease (mackenziemeetsalzheimers.com)

End of Life Doula Provides Beautiful Family-Involved Home Funerals

Mon, 24 Jun 2024 19:53:27 +0000

End of Life Doula Trina Wacasey works to ensure that clients and families have the kind of personalized death care they want. Using family-guided care customized to fit their beliefs, needs, and wants, Trina guides caregivers through deaths, post-mortem care, and rituals after death.

After working in the corporate world, Trina was drawn to the work of an end of life doula. She volunteered at a hospice agency with their bereavement program, and completed training at the Conscious Dying Institute. The deep and meaningful conversations had great meaning for her. She was fascinated by how individual people feel about death and advance care planning.

As part of her Doula services, Trina offers families what she calls A Natural Goodbye. It’s an alternative to the traditional funeral. Here’s how she describes it:

“I offer my clients a unique opportunity to say a Natural Goodbye following the death of a loved one as an alternative to a traditional funeral or formal wake or visitation. They are invited to an intimate two hour, informal gathering in a private, safe space in the community for cherished time with their person.”

Trina is an educator, an encourager, and a companion for those who are walking through a death experience with someone they love.

Connect with Trina Wacasey at creatinghonoringspaces.com.

Get a copy of Trina’s Family Involved Death Care Checklist here.

Learn how Trina utilizes the Mini Mobile Suite here.

Find all the resources that Barbara Karnes has to offer at bkbooks.com.

Purchase the End of Life Guideline Series Bundle here.

Read Barbara’s blog here.

Connect with Barbara Karnes on social media: Facebook Insta LinkedIn Twitter Pinterest YouTube

Order your copies of The Hospice Care Plan: A Plan to Comfort here, now available in English and Spanish!

Check out the free library of video tutorials from the creators of The Hospice Care Plan hospice nurses Nancy Heyerman and Brenda Kizzire here.

Read more about Nancy and Brenda and their mission to improve hospice care here.

Find Odonata Care on social media: Facebook YouTube IG TikTok

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Exploring Alzheimer’s Treatments with Dr. Zahydie Burgos Ribot

Mon, 24 Jun 2024 19:52:45 +0000

Dr. Zahydie L. Burgos Ribot cares for her husband, Francisco, also known as Paco, who is living with Young Onset Familial Alzheimer's Disease.

In this episode, Zahydie and Paco share their caregiving journey. They talk about how they took time to understand and cope with Paco's diagnosis and process their feelings of grief before telling others. They also discuss Paco's treatment, including E2814 therapy and Leqembi medication, which help slow down Paco’s Alzheimer’s. And they talk about how they focus on living each day with intention and are enjoying crossing off things from their bucket list.

Show notes with product and resource links:

https://bit.ly/HHCPod184

Receive the podcast in your email here:

http://bit.ly/2G4qvBv

Order a copy of Elizabeth's book Just for You: a Daily Self Care Journal:

http://bit.ly/HHCjournal

For podcast sponsorship opportunities contact Elizabeth:

https://happyhealthycaregiver.com/contact-us/

The Happy Healthy Caregiver podcast is part of the Whole Care Network. Rate and Review the podcast:

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Empowering LGBTQ+ Caregivers: Stories of Love, Loss, and Triumph

Mon, 24 Jun 2024 19:35:29 +0000

This podcast is a replay of our recent panel discussion on LGBTQ+ caregiver concerns, hosted by Sue Evans of Kensington Senior Living and AlzAuthors. Authors Laura Davis, Christopher MacLellan, Vincent Zappacosta, and Douglass Christensen joined Sue, Christy and I as we delved into the complexities of caregiving within the LGBTQ+ community. They shared personal stories, insightful advice, and meaningful discussions about their caregiving journeys, offering knowledge and support to others currently caring for a loved one.

Empathy emerged as a recurring theme during the discussion. The group explored how understanding and compassion are foundational to a positive caregiving experience, especially in the face of stigmas surrounding dementia and LGBTQ+ identities.

The panelists underscored the critical importance of legal documents such as power of attorney and healthcare proxies. These tools grant caregivers the authority needed to make vital decisions during emergencies. The LGBTQ+ community, in particular, benefits from these preparations to navigate potential biases and ensure their loved ones’ wishes are honored. They emphasized that preparing documents and passwords in advance can prevent needless complications, resonating with caregivers who might find themselves thrust into unexpected situations.

The episode illuminated unique challenges faced by LGBTQ+ caregivers. Issues such as isolation and the need to select healthcare providers comfortable with their orientation were discussed candidly. Positive experiences in inclusive areas like California and New York City contrasted with occasional instances of discrimination, as shared by Vincent and Douglas when they faced resistance in having Douglass recognized as family. Legal tools and personal anecdotes underscored the power of preparedness in overcoming personal bigotry and ensuring smooth caregiving and end-of-life processes.

The insights from this episode of the AlzAuthors podcast offer hope and guidance for caregivers, especially those navigating the additional layers of complexity tied to LGBTQ+ identities.

About the Authors

Laura Davis, The Burning Light of Two Stars

Christopher MacLellan, What's the Deal with Caregiving?

Vincent Zappacosta and Douglass Christensen, Dementia-Mama-Drama

About the Moderators

Marianne Sciucco, Blue Hydrangeas, an Alzheimer's love story

Christy Byrne Yates, Building a Legacy of Love: Thriving in the Sandwich Generation

Kensington Senior Living

About the Podcast

Thanks for listening.

We are a Whole Care Network Featured Podcast

Proud to be on The Health Podcast Network

Find us on The World Podcast Network and babyboomer.org

Want to be on the podcast? Here’s what you need to know

We've got merch! Shop our Store

Purchase our new anthology, Poetry for the Dementia Journey

A Love to Remember: A Young Woman's Journey Caring for Her Partner Through ALS

Mon, 24 Jun 2024 19:21:22 +0000

This week, Heidi McCann shares her story and her experience caring for her partner Curtis after he was diagnosed with ALS at 25. Heidi shares how she and Curtis met as teenagers in Vermont and maintained their relationship through college before Curtis began exhibiting symptoms of ALS. When he was diagnosed, Heidi left her job to care for Curtis full-time. She moved with him to his small hometown to be closer to his support system and cared for him over the next year as his condition deteriorated. Heidi and Curtis married 22 days before his passing to declare their commitment to one another.

After Curtis' death, Heidi found new love and purpose, going on to write a book about her caregiving journey of living with and preparing for the death of her partner from ALS. She married again and became a mother of four children. Heidi also now cares for her own mother, who has Parkinson's disease. Throughout the episode, Heidi emphasized the importance of self-care for caregivers and making future plans for support systems. She shares lessons learned from her extensive personal experience of caring for a terminally ill partner through the challenges of ALS.

About Heidi:

Born in Hartford, CT, Heidi Erdmann Vance McCann graduated from the Loomis Chaffee School, where she discovered the power of words. Observing humanity from a young age, her high school years shaped her voice and leadership skills. At Middlebury College, she refined her writing and athletic prowess. After working in development and coaching tennis, she cared for her boyfriend with ALS, ultimately founding a nonprofit in his honor after his passing at age 26.

Over time, Heidi remarried and earned a MALS degree with a concentration in creative writing from Dartmouth College. She returned to the development field at Loomis Chaffee, where she currently works and enjoys tutoring. Living in Simsbury, CT, with her husband, Paul, and their four children - Martha, Ava, Caroline, and James - along with their dogs, Bruin and Bauer, Heidi treasures family time. Setting aside an hour daily for physical activity, she often finds inspiration for future books during this time.

Support the Show.

Confessions of a Reluctant Caregiver

Sisterhood of Care, LLC

Website: www.confessionsofareluctantcaregiver.com

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Going back home

Mon, 24 Jun 2024 19:20:40 +0000

In this podcast, I offer you three pieces of advice I´ve just learn while visitng home:

Invite Others to Help Care for Your Loved One: Sharing the responsibility of caregiving can lighten your load and provide better support for your loved one. Don't Wait Until Tomorrow to Do the Things You Want to Do: Embrace the present and make time for your passions and interests today. Avoid Overloading Yourself with Activities; Be Mindful of What You Do: Focus on being present and intentional with your actions, prioritizing quality over quantity.

When the Whole World Tips (with special guest Celia Landman)

Mon, 24 Jun 2024 19:19:23 +0000

In this episode, Sarah interviews author Celia Landman about her book "When the World Tips" which offer advice for parents whose kids are in crisis.

You can find more us at: Celia Landman – Sharing mindfulness, parenting, support

You can find more of us at:

Stelmach Brown Media llc

And use the special promo code: AMBASSADORMLTV11

We are also affiliated with Carewell. Use this code and you can receive 30% off first order

Care Products | 24/7 Service | 30% OFF 1st Autoship - Carewell

Check out our sponsor http://www.favor-ct.org/

Please like share and subscribe to our podcast, also if you enjoy our content and to provide us with additional support, you can tip us here https://ko-fi.com/caregiverchroniclespodcast

Or here: https://www.buymeacoffee.com/caregivercg

Interview with Garry Evans

Mon, 24 Jun 2024 19:09:46 +0000

Today, I have the pleasure of interviewing Gary Evans, who shares his story as a caregiver and the challenges he had to face to support his loved ones and himself. His goal is to create positive environments with good practices for caregivers.

Link to our new program:

https://www.tumcoeur.com/es/journeytoselfcare

Revolutionary Advocacy for Military Veterans at End of Life

Mon, 24 Jun 2024 19:08:15 +0000

Today’s guest Dr. Qwynn Galloway-Salazar is a Veteran, death doula, compassionate educator, and the founder of In Their Honor, a national initiative raising awareness and addressing Veterans' unique challenges as they approach the end of life. Qwynn is also the spouse of a combat veteran and understands the role of veteran caregivers.

1 in 4 Medicare hospice patients is a U.S. military veteran - a quarter of the Medicare hospice population. Those veterans have special needs when it comes to the end of their lives. Qwynn recognizes the importance of identifying moral injury, a history of combat service, PTSD, and events of military sexual trauma (for both female and male veterans). Discussion of suicidal ideation and depression should also be a part of their end of life care. Often veterans have terminal illnesses that are related to their military service, including Agent Orange and burn pit exposure. The needs of veteran caregivers are unique as well. Their emotional response and grief may include resentment, depression, anger, guilt, and regret.

Find more information about In Their Honor at intheirhonor.info.

Connect with Dr. Qwynn Galloway-Salazar on LinkedIn here.

Find all the resources that Barbara Karnes has to offer at bkbooks.com.

Purchase the End of Life Guideline Series Bundle here.

Read Barbara’s blog here.

Connect with Barbara Karnes on social media: Facebook Insta LinkedIn Twitter Pinterest YouTube

Order your copies of The Hospice Care Plan: A Plan to Comfort here, now available in English and Spanish!

Check out the free library of video tutorials from the creators of The Hospice Care Plan hospice nurses Nancy Heyerman and Brenda Kizzire here.

Read more about Nancy and Brenda and their mission to improve hospice care here.

Find Odonata Care on social media: Facebook YouTube IG TikTok

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Traveling with Your Care Partner with Carol Giuliani

Mon, 24 Jun 2024 18:57:45 +0000

Traveling with your care partner can be stressful. Carol Giuliani of Senior Travel Companion Services is here to provide strategies and some little-known tips for caregivers. She has planned and executed over 125 domestic and international trips through all 50 states and across the globe. In this episode, Carol and I discuss tips for traveling with your care partner, everything from how to plan your trip, which airlines and resources can assist best how to handle long car rides, traveling with medical equipment, and everything in between.

SHOW NOTES

Would You Rather... and How To: Get Insurance to Cover Equipment & Therapy

Mon, 24 Jun 2024 18:47:58 +0000

Join Brandy and Emilia in a fun game of "would you rather", then stay for the serious talk about what's covered by insurance, what's not, and how to get the most of your insurance benefits for equipment and therapy.

Find Care Equipment solutions at https://www.asksamie.com/

Find Caregiver Training at https://www.higherstandardscaregivertraining.com/

Caring for Elderly Parents Alone

Mon, 24 Jun 2024 18:43:46 +0000

"Caring for Elderly Parents Who Live Alone : The I Am Fine Product Story" shares a son's innovative solution for monitoring his mom's wellbeing from across the country. As a tech entrepreneur, he leveraged his expertise to develop the I Am Fine system - providing peace of mind for families with elderly parents living independently. Learn how this simple daily call check-in, with customizable call times and backup alerts, can eliminate the stress of juggling your own life demands while ensuring your elderly parent is safe. Gain insights into using technology to support aging in place, prevent isolation, and embrace your loved one's independence, all while safeguarding their health from afar. If you're a long-distance caregiver for elderly parents, this episode offers a practical solution.

Our Guest - Paul Hammond

Iamfine is the brainchild of Colin and Paul Hammond. Colin lives in the UK while his brother Paul lives on the west coast of America. They designed Iamfine to help them both keep in touch with their mother Isobel who lives alone in Florida.

The brothers regularly speak to their mother and visit several times a year, but busy schedules mean they struggle to check on her every day. Although in her mid-90s, Isobel is healthy, plays golf twice a week, lives in her own home and loves life. Like many elderly people living alone, she is fiercely independent and doesn’t want her sons to be worrying about her.

Drew Pickett, PhD. - LGBTQ Dementia Caregivers

Mon, 24 Jun 2024 17:45:00 +0000

Drew Pickett, PhD, is an Assistant Professor at the Indiana University School of Public Health in Bloomington, IN, where he is also a faculty affiliate of both the IU Center for Aging Research and the IU Center for Sexual Health Promotion. He is passionate about creating support systems for marginalized populations and improving health equity.

His recent research work is focused on developing support systems for LGBTQIA+ caregivers, particularly focused on Alzheimer’s Disease and other forms of dementia. He is interested in understanding the needs of dementia caregivers broadly, as well as the unique needs facing LGBTQIA+ caregivers, to help design tools to reduce the burden and improve the well-being for both caregivers and the people they love and care for.

Working with community and small business partners, he is currently researching to better understand LGBTQIA+ social support systems and to help caregivers plan (legally and financially!) for the future.

For more information about the PAID research study call 812.856.1710 or email wernerlab@iu.edu

Download: CareVirtue Planner: CareVirtue Planner Study Flyer.pdf

Download: LGBTQ Caregiver Social Networks Study Flyer.pdf

Learn more about Care Virtue at carevirtue.com

Podcast Summary:

Drew Pickett, an assistant professor at the Indiana University School of Public Health- Bloomington” discusses the importance of addressing the unique needs of LGBT caregivers dealing with Alzheimer's and dementia. The conversation highlights the challenges faced by LGBT caregivers, such as legal and financial planning, and the lack of support structures. Pickett emphasizes the need for data and research to inform policy and create products that cater to the specific needs of LGBT caregivers. The discussion also touches on the positive aspects of caregiving and the importance of sharing stories to foster understanding and support within the community.

Keywords;

LGBT, caregivers, Alzheimer's, dementia, challenges, support, legal, financial planning, data, research, policy, products, positive aspects, stories

Takeaways:

*Addressing the unique needs of LGBT caregivers dealing with Alzheimer's and dementia is crucial.

*Legal and financial planning are significant challenges for LGBT caregivers.

*Data and research are essential to inform policy and create products that cater to the specific needs of LGBT caregivers.

*Sharing stories fosters understanding and support within the LGBT caregiving community.

*Earn up to $150 for participating in the survey

Titles:

*Addressing the Unique Needs of LGBT Caregivers

*The Power of Sharing Stories in the LGBT Caregiving Community

Sound Bites:

"Addressing the unique needs of LGBT families through tough times."

"The challenges of caregiving for LGBT older adults."

"The financial challenges faced by LGBT caregivers."

Chapters

00:00 Introduction and Importance of LGBT Caregivers

03:11 Addressing the Unique Needs of LGBT Caregivers

09:46 Challenges Faced by LGBT Caregivers

20:21 Recognizing the Joy and Closeness in Caregiving Relationships

25:43 The Importance of Data and Research in Supporting LGBT Caregivers

29:20 The Power of Sharing Stories in the LGBT Caregiving Community

The Method Behind the Caregiving Madness

Wed, 12 Jun 2024 21:12:35 +0000

In this episode, we talk with Helen, Elisabeth, and Jonathan Nash about the gradual progression of care needs that often arise with an aging parent. Imagine standing on the shore of a vast ocean, watching the tide slowly come in - that's how the Nash siblings experienced their mother's increasing health issues and mobility problems. Over time, these changes brought them to the crucial conversation about relocating her to a safer living environment. Their story illustrates how caregiving responsibilities can gently unfold rather than arrive all at once.

Have you ever wondered how siblings can share the load when it comes to caregiving? Each Nash sibling played to their strengths—one coordinated medical care, another provided health guidance and another focused on social needs. We show how dividing duties among family members based on their skills and availability can create an effective care team.

Communication and respect are the pillars of effective caregiving, wouldn't you agree? The Nash siblings emphasize the importance of maintaining consistent messages with their mother and each other to minimize confusion. They also discuss the delicate balance of respecting their mother's autonomy while ensuring her safety. Their approach, rooted in compassion and clarity, offers practical guidance that underscores the value of these qualities in family caregiving situations.

About the Nashes:

The Nashes are a trio of siblings who have embarked on an unexpected journey as family caregivers to their mother, now in her early 90s. With a blend of professional expertise, unwavering dedication, and a touch of humor, they bring their unique combination of strengths to the caregiving table, ensuring their mom’s needs are met while preserving her autonomy and quality of life.

Elisabeth, the oldest daughter, has a background in finance and human resources. She’s the group's master planner. Her analytical thinking helps the caregiving group make the best choices for their mom. She always involves their mom in decision-making and respects her preferences.

Jonathan, the middle child and only son, is retired from the computer software industry. He’s the tech-savvy one of the group, the one who coordinates with their mom’s healthcare providers and caregivers. From ordering groceries to providing transportation, he ensures their mom receives the best care. Jonathan’s the one who makes them laugh with corny puns and irreverent jokes, lightening the mood when things are challenging.

Helen is the baby of the sibling group. She brings her 30+ years of nursing experience to the group, using her expertise to assist with their mom’s medical needs.

Together, the three “kids” make a formidable caregiving team, each bringing unique strengths and skills to the table, whether they are providi

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Paying for Long Term Care with Ben Rao

Wed, 12 Jun 2024 20:58:28 +0000

Ben Rao is the author of Paying For Long Term Care , Co-Founder of Mom's House enterpriser, philanthropist, lover of music, art, and cool shoes whose positivity and energy are contagious.

After going through the journey of placing his beloved step-father, Tom, in to long term care, Ben discovered how difficult and taxing the ordeal was and decided to use the experience he has gained working in the senior space, to help make other families’ journey easier, less stressful, and provide clear direction so that they can focus on what is important to them, and to him, family.

Listen in and learn about Mom's House and how Ben in creating Healing Ties through is book and sincere efforts to make transitions to senior living easier for the entire family.

Pediatric Transition

Wed, 12 Jun 2024 20:50:09 +0000

Join MaryAnne Sterling for an eye-opening discussion with two phenomenal fathers of young adults with special needs, Jeff Cousins from Navigating Life’s Detours and Vik Sharma from tech startup MiraKare. Jeff and Vik spoke to me about the challenges they’ve faced getting appropriate healthcare for their kids as they have transitioned from pediatric to adult care in a healthcare system that is completely unprepared to provide this care. This is an amazing discussion and may impact someone you know.

Learning the Truth About Autism and Grief

Wed, 12 Jun 2024 20:11:22 +0000

Dr. Kenneth Doka and Alex Lamorie of the Hospice Foundation of America’s Autism and Grief Project are advocates for people with autism. Dr. Doka is a prolific author, editor, and lecturer, past president of the Association for Death Education and Counseling, and a member and past chair of the International Work Group on Death, Dying, and Bereavement.

Alex Lamorie is an undergraduate student at the University of Maryland Global Campus and an autism advocate. He serves as an advisor on the Hospice Foundation of America's Autism & Grief Project. Alex's expressive grief artwork was featured in 2021 in the textbook Superhero Grief: The Transformative Power of Loss.

For any professional who works with grieving adults, having awareness of the needs of persons on the autism spectrum is an important part of their education. Adults with autism can be overlooked by bereavement and grief workers because their grief expression might look maladaptive, perceived as inappropriate, or not present at all. Alex, along with other autistic adults, contributes a vital perspective in his role as an advisor for the Autism and Grief Project.

The Autism & Grief Project provides resources for persons with autism, their families or intimate network, and grief and bereavement professionals. You can find the Project at autismandgrief.org.

Hear why Alex serves on the advisory board here.

If you’re an adult with autism, there’s support for you here.

If you’re a family member, caregiver, or support person for someone with autism who’s grieving, click here.

If you’re a clergy person, grief or bereavement professional, find resources here.

Socials for the Autism and Grief Project: Facebook Twitter (X) Insta YouTube

Find more information about the Hospice Foundation of America here.

Find all the resources that Barbara Karnes has to offer at bkbooks.com.

Purchase the End of Life Guideline Series Bundle here.

Read Barbara’s blog here.

Connect with Barbara Karnes on social media: Facebook Insta LinkedIn Twitter Pinterest YouTube

Order your copies of The Hospice Care Plan: A Plan to Comfort here, now available in English and Spanish!

Check out the free library of video tutorials from the creators of The Hospice Care Plan hospice nurses Nancy Heyerman and Brenda Kizzire here.

Read more about Nancy and Brenda and their mission to improve hospice care here.

Find Odonata Care on social media: Facebook YouTube IG TikTok

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Let´s get cozy

Wed, 12 Jun 2024 20:07:46 +0000

In this podcast, I talk about preparing the place where you will have your loved one so that you feel happy and full of energy. If we are caregivers, it is important that the environment in that physical space is adequate and where we feel happy. Regarding your loved one, it is necessary to take into account their physical care needs, such as having space in the bathroom for special seats, or the existence of ramps or railings, or a hospital bed if needed. I recommend decluttering and letting go of things we have accumulated that we no longer use or like.

link to new program: https://www.tumcoeur.com/es/journeytoselfcare

Learn About State Sponsored Tax Credits and the Credit For Caring Act

Fri, 07 Jun 2024 15:11:33 +0000

In this episode of Your Future Self, Christopher MacLellan and Monica Stanchula cover the landscape of caregiving, government support, and tax credits for family caregivers. They discuss the challenges faced by family caregivers and the importance of tax credits in alleviating financial burdens. Additionally, they highlight the Credit for Caring Act of 2024 and its potential impact on caregivers. The conversation emphasizes the need for better record-keeping and the bipartisan nature of caregiving advocacy.

You can see the video podcast here:

https://youtu.be/NJ-_2sWCMQw

Keywords

caregiving, tax credits, family caregivers, government support, Credit for Caring Act, bipartisan advocacy, financial burden, record-keeping

Takeaways

The landscape of caregiving and the challenges faced by family caregivers are complex and multifaceted.

Tax credits play a crucial role in alleviating the financial burden on family caregivers and are an important aspect of government support.

The Credit for Caring Act of 2024 has bipartisan support and aims to provide tax credits to caregivers, highlighting the growing recognition of caregiving as a significant social issue.

Better record-keeping is essential for caregivers to benefit from tax credits and financial support.

Advocacy for caregivers is bipartisan and aims to address the diverse needs of caregivers from various backgrounds and circumstances.

Titles

The Importance of Record-Keeping for Caregivers

Navigating the Landscape of Caregiving and Tax Credits

Sound Bites

"Your ability to interact with the care system and your rights being honored as a caregiver and your ability to get the information and the services that you need at home are better than the other states."

"This bill would give a caregiver a tax credit of up to $5,000 for 30% of the long-term care expenses not to exceed $2,000 in a taxable year."

Managing Falls with Steve Powell - Caregiver Spotlight

Wed, 05 Jun 2024 23:00:36 +0000

Steve Powell cared for both of his parents as their health and mobility declined. His experiences mitigating many falls for his parents, prompted his invention of a device designed to lift individuals safely and comfortably off the floor.

In this episode, Steve and I chat about aging in place, fall prevention, perfectionism, and why he has the well-deserved nickname of ‘The Singing Wine Maker.’

Show notes with product and resource links:

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Order a copy of Elizabeth's book Just for You: a Daily Self Care Journal:

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DR ETHELLE LORD - Learn about Transactional Dementia Intelligence: A Systemic Model of Dementia Care

Wed, 05 Jun 2024 23:00:25 +0000

SEASON 9 Premiere! Episode 90 features our esteemed guest, Dr. Ethelle Lord, is an author, practitioner, educator, management coach, presenter, mother and grandmother, and a pioneer in the containment of dementia.

Spending 21 years in the care of her husband Larry, living with vascular dementia and Alzheimer’s truly motivated Dr. Lord's career path as a Global Dementia Care Shape and the founding president of the International Caregivers Association, a Dementia-Management-Consultant and Creator of the “Transactional Dementia Intelligence” or TDI business model of dementia care, a WHOLE SYSTEM which includes management, training, care, and coaching.

She has also authored the enlightening book, "Alzheimer and Dementia Coaching: Taking a Systems Approach in Creating an Alzheimer's Friendly Healthcare Workforce."

As Dr. Lord says, “One of the biggest challenges people face is the lack of basic information on where to begin, what to do, and how to do it.” Well this dementia warrior is helping the world, face those challenges - and Don and I were honored to have her with us on Love Conquers Alz!

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Love After Memory Care: A Caregivers Powerful Story

Wed, 05 Jun 2024 23:00:16 +0000

Love After Memory Care: A Caregiver's Powerful Story" chronicles one man's journey with his wife as dementia forces them into the heartbreaking transition to memory care. However, his story showcases how love transcends memory loss.

You'll gain insights on continuing to cherish your loved one through the memory care experience, understanding why temporary distance may be necessary, and what policy changes could better support dementia caregivers. If you're facing the emotional turmoil of a partner's cognitive decline, this episode offers hope, wisdom and a path forward with love.

Our Guest - Max Sherman

Get "Releasing the Butterfly" Here

Max Sherman has served as Texas State Senator, President of West Texas State University, Dean of the Lyndon B Johnson School of Public Affairs, President of the National Association of Schools of Public Affairs, Vice President of the Harry S Truman Scholarship Foundation, as well as on numerous boards, including the Austin Presbyterian Theological Seminary, PCUSA Committee on Theological Education, and Federation of State of Humanities Councils. He published a book of several of the major political speeches of Barbara Jordan, his friend and colleague, entitled Barbara Jordan: Speaking the Truth with Eloquent Thunder (UT Press, 2010).

AgingGayfully™ Dimensions of Our Wellness, Part Two

Wed, 05 Jun 2024 23:00:08 +0000

Josh and Chris discuss the different and important parts of our wellness, not just physical wellness but also, mental, emotional, spiritual, intellectual, and occupational.

A gay senior, Christopher MacLellan, and an ally, Josh Wilson, podcasting about life, love, liberty and travel. Don't Say Gay?... Say AgingGayfully™!

Subscribe NOW, where you listen to your favorite podcast.

Learn more at AgingGayfully™.

Patience, Kindness, and Humor: Lessons from Caregiving with Vicki Tapia (Book Club Replay)

Wed, 05 Jun 2024 22:59:57 +0000

Vicki Tapia is a founder of AlzAuthors and the author of Somebody Stole My Iron: A Family Memoir of Dementia. In this replay of a recent Aging and Amazing book club discussion, Vicki shares profound insights from her personal experiences. She discusses how caring for two parents with dementia placed a considerable strain on her personal support system. A long-distance caregiver, she found the challenges of managing her parent's concerning behaviors and medical needs from 200 miles away daunting. Their rural community and limited medical resources confounded the situation as well. Her only sibling's chosen absence from the situation was another stressor. Newly married, she was reticent to lean on her supportive physician husband too hard. Her adult children were also supportive but lived far away, making it difficult to ask them for help.

A lifelong journaler, she resolved her feelings and worries by putting pen to paper, eventually coming to the realization that she had written a book. Initially, she hesitated to publish her book due to privacy concerns but was encouraged to do so by positive feedback. Her decision to publish was also influenced by her desire to help others navigate similar experiences. Somebody Stole My Iron was published in 2014 and was a finalist for the High Plains Book Awards in 2015. Each chapter ends with "Lesson Learned," imparting valuable insight and inspiration to caregivers.

Three Key Takeaways

1. Finding Humor in Hardships: Vicki emphasizes the importance of finding humor in difficult situations, which can provide emotional relief and resilience.

2. The Necessity of Self-Care: Vicki's guilt over taking a trip is a common sentiment among caregivers. Her mother's philosophy, "life is for the living," underscores the need for self-care and balance, reminding caregivers to also focus on their own well-being.

3. Patience and Kindness: Through her experience, Vicki learned the crucial caregiving virtues of patience, respect, and kindness. She advises new caregivers to meet their loved ones where they are and to let go of guilt and expectations.

Learn more about Vicki at AlzAuthors.com.

About the Moderators

Marianne Sciucco, Blue Hydrangeas, an Alzheimer's love story

Christy Byrne Yates, Building a Legacy of Love: Thriving in the Sandwich Generation

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From Soldier to Caregiver : A Veteran's Son Battles Dementia with Love and Mindfulness

Wed, 05 Jun 2024 22:59:48 +0000

Zander Keig grew up in an unconventional household, as his father explored alternative spiritual practices like meditation and yoga alongside his career in engineering. Zander was exposed to these ideas from a young age. When COVID lockdowns began, Zander and his wife had to care for his father full-time while working remotely, which caused stress and isolation. Zander's father's health rapidly declined after moving to assisted living.

When his father was scammed out of $18,000, Zander realized something was wrong as his father had always been very conscientious but no longer recognized scams. Zander would move his father to Florida, taking on the role of primary caregiver for his elderly father, who was living with dementia.

Despite the challenges of caring for his declining father, Zander tapped into various support systems, attending both grief and all-male caregiver support groups. During visits, Zander focused on sensory experiences over memories of visiting his father. Today, Zander is committed to helping other LGBTQ caregivers by sharing his story and resources through consultative services.

The Remarkable Story of Humanist Chaplain D.S. Moss

Tue, 04 Jun 2024 19:12:05 +0000

Devin (D.S.) Moss brings a sense of reverence for life and a curiosity about death to his work as a chaplain. During a conversation with a Zen Master about Buddhist beliefs about the afterlife, the suggestion was made to him that he would make a good chaplain. Devin didn’t think he could do the work of spiritual care because of his humanist beliefs. He doesn’t believe in God. Turns out the Zen Master didn’t believe in God, either.

Despite a religious upbringing, Devin embraces nontheistic, or humanist, beliefs. His sense of exploration led him to attend seminary and become a chaplain. He has found great fullness and human connection in the work of a chaplain. After completing his CPE (Clinical Pastoral Education) internship, Devin accepted a position to provide spiritual care for an inmate on death row in Oklahoma. He spent most of 2023 supporting convicted murderer Phillip Hancock. Their relationship culminated in Hancock’s death by execution in November of that year.

D.S. is also the host of the Memento Mori podcast, a show about spirituality and death he started before he became a chaplain. He’s continuing his exploration and questioning in a new podcast coming the end of summer, 2024. You can find him at mystartingpoint.life.

Connect with Devin (D.S.) Moss on IG or IG for Remember to Die.

Watch Devin’s talk at EndWell 2023 here.

Find all the resources that Barbara Karnes has to offer at bkbooks.com.

Purchase the End of Life Guideline Series Bundle here.

Read Barbara’s blog here.

Connect with Barbara Karnes on social media: Facebook Insta LinkedIn Twitter Pinterest YouTube

Order your copies of The Hospice Care Plan: A Plan to Comfort here, now available in English and Spanish!

Check out the free library of video tutorials from the creators of The Hospice Care Plan hospice nurses Nancy Heyerman and Brenda Kizzire here.

Read more about Nancy and Brenda and their mission to improve hospice care here.

Find Odonata Care on social media: Facebook YouTube IG TikTok

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

From Grossed Out to Planned Out: Being prepared to bring a loved one home

Tue, 04 Jun 2024 19:09:57 +0000

Even healthcare pros get grossed out sometimes. Find out what gets us gagging but keep listening to learn what you do in order to be prepared to bring your care partner home safely after a hospital or rehab stay.

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Period Pain Caregiving (with special guest Isabella Thor)

Tue, 04 Jun 2024 19:07:45 +0000

In this episode, Sarah interviews Isabella Thor who is a Certified Nutritional Therapy Practitioner. They discuss ways to treat period pain through nutrition.

You can find more of Isabella at: Isabella Thor., NTP

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Navigating Life's Fires with Proactive Planning

Tue, 04 Jun 2024 19:06:37 +0000

As the youngest of four children, I benefited from having parents with ample experience in child-rearing. Their seasoned approach instilled in me a valuable lesson: understanding the consequences of my actions and analyzing the reasons behind their outcomes. This mindset has proven invaluable throughout my life, becoming a habitual practice in my decision-making process.

Many individuals navigate life as if extinguishing one fire after another, reacting to crises as they arise. However, by contemplating potential outcomes and understanding their repercussions, we proactively safeguard ourselves against adversity. This proactive approach is evident in our decisions to secure car, home, health, and life insurance policies.

Planning for the future of our loved ones serves as a preemptive measure, shielding us from life's unexpected challenges and ensuring we are not caught off guard.

Book your space with me at this link: https://calendar.google.com/calendar/u/0/appointments/schedules/AcZssZ0fqsZwD15-7qxxZK6YsLkkAePeswcfJj4ILEwXndYYAVDwHysGYxJhuDZhLSAZnbvKWGh-Nt7X

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Beyond Duty: Embracing the Chaos and Compassion of Caregiving

Wed, 29 May 2024 21:06:37 +0000

Elizabeth Miller has extensive experience as a family caregiver. She cared for her aging parents with chronic illnesses as they desired to age in place, which required much travel and coordination between siblings. She also cares for her older brother Tom, who has developmental and intellectual disabilities. Elizabeth shares moving her family members to different living situations as her parents' health declined. She continues caring for her brother, Tom, along with her siblings.

Elizabeth started the Happy Healthy Caregiver podcast and resources to share her knowledge and lessons learned from her caregiving journey. Through being open about her experiences, she has helped many other caregivers. Her podcast and newsletter provide practical self-care tips that empower caregivers. She emphasizes the importance of addressing all aspects of well-being, including physical, emotional, intellectual, spiritual, social, and professional fulfillment.

Elizabeth's caregiving experiences have transformed her career path. Where she previously worked in corporate settings, she now focuses full-time on supporting family caregivers through her business. She encourages letting go of expectations and having faith that things will work out, as she has survived difficult life challenges and transitions through caregiving.

About Elizabeth:

Elizabeth Miller is a family caregiver, caregiver advocate, speaker, author, podcast host, Certified Caregiving Consultant, and Certified Senior Advisor. Her personal experiences caring for aging parents with chronic and terminal illnesses and for a sibling with developmental disabilities inspired her to create Happy Healthy Caregiver, LLC, in 2015. She is an empty nester living in Marietta, GA with her husband and two dogs.

Connect with Elizabeth:

Instagram: https://www.instagram.com/happyhealthycaregiver/ Facebook: https://www.facebook.com/happyhealthycaregiver LinkedIn: https://www.linkedin.com/in/elizabethbmiller/ Twitter: https://twitter.com/HHCaregiver Pinterest: https://www.pinterest.com/HHCaregiver/ TikTok: https://www.tiktok.com/@happyhealthycaregiver YouTube: https://www.youtube.com/channel/UCAcYkpMK6I3Y0ep-kyvrZaQ

Support the Show.

Confessions of a Reluctant Caregiver

Sisterhood of Care, LLC

Website: www.confessionsofareluctantcaregiver.com

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Thrive With Holistic Dementia Treatments

Wed, 29 May 2024 21:06:27 +0000

Beyond Medication: Exploring Holistic Approaches to Dementia Care

Dementia is a progressive condition impacting millions globally. While there's currently no cure, there are ways to manage symptoms, improve quality of life for those living with dementia, and offer invaluable support to caregivers.

Care goes beyond medication. This episode dives into the world of holistic treatments that support the overall well-being of individuals with dementia. Learn how:

Cannabis and CBD offer potential relief: Discover the emerging research on using these substances to manage specific dementia symptoms, while understanding the importance of professional guidance. Natural therapies empower your loved one: Explore the benefits of cognitive stimulation therapy, exercise, and creative outlets like music or art therapy. Nutrition plays a vital role: Learn how dietary choices and supplements like omega-3s and antioxidants can contribute to cognitive health. Personalized care matters most: Discover how tailoring these holistic approaches to your loved one's unique needs can optimize their well-being.

Join us as we explore the power of holistic dementia care and empower you to create a more comprehensive support system for your loved one.

Our Guest: Megan Mbengue is the founder of TrustedCannaNurse.com. They are here to help guide you through nurse formulated CBD products, cannabis consultations, and microdosing programs. Megan is part of the podcast because she wanted to inform you of what's available, the best ways to use holistic and plant based medicines, and dispel the myths and stigma behind plant based treatments.

Navigating Alzheimer's with Poetry: Insights from Caregivers and Poets

Wed, 29 May 2024 21:06:18 +0000

Welcome to another insightful episode of Untangling Alzheimer's and Dementia, and a replay of our recent book club with Aging and Amazing. In this episode, we bring together a panel of poets who share a common thread—each has navigated the challenges of caring for a loved one with dementia. Your hosts, Marianne Sciucco and Ann Campanella, along with guest authors Daniel Potts, MD, Sue Fagalde Lick, Sherri Levine, and Margaret Stawowy delve into the world of poetry as a powerful outlet for expressing the complex emotions tied to Alzheimer's and dementia care.

Listen as these courageous caregivers discuss how poetry provides solace and a sense of connection amidst the trials of caregiving. From Sherri Levine's poignant reflections on taking flowers to her mother in hospice, to Margaret Stawowy's candid portrayal of medicating her mother, and Dan Potts’s therapeutic use of art and poetry to connect with his father, each story shines a light on the personal battles and moments of tenderness that define the caregiving experience.

We also have laughter amid the hardships as Sue Lick shares a day in the life at a nursing home through her evocative poetry. Don't miss her heartwarming tale of memory care residents joyously indulging in ice cream.

Tune in to find inspiration, empathy, and perhaps a new way to process your own experiences through the beauty of poetry.

Three Key Takeaways

1. Therapeutic Expression: Poetry serves as a potent form of therapy, helping caregivers process complex emotions and find joy amidst adversity.

2. Community and Support: Sharing stories and artistic expressions can cultivate a community of support, making the dementia journey less isolating.

3. Finding Humor: Embracing moments of joy and laughter is crucial, as highlighted by our lighthearted story, showing the importance of positivity in caregiving.

About the Authors

Sherri Levine, Stealing Flowers from the

Neighbors

Sue Fagalde Lick, Gravel Road Ahead

Daniel Potts, MD, Bringing Art to Life

Margaret Stawowy, co-editor of Storms

of the Inland Sea, an anthology with Jim Cokas

About the Moderators

Ann Campanella, What Flies Away and The Beach Poems

Marianne Sciucco, Blue Hydrangeas, an Alzheimer's love story

Pre-order our new anthology, Poetry for the Dementia Journey.

About the Podcast

Thanks for listening.

We are a Whole Care Network Featured Podcast

Proud to be on The Health Podcast Network

Find us on The World Podcast Network and babyboomer.org

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Body Aware Living: We Can Get Better At Being Ourselves!

Wed, 29 May 2024 21:04:51 +0000

Switching from my usual role as host of the Body Aware Living Podcast, in this interview I join Jill Hart as a guest on her You World Order Showcase podcast. Together we explore how our individual preferences aren't just fun – they're a celebration of freedom and a powerful tool to improve our self-care. Our talk includes: - Discovering what helps you feel like your favorite self - Creating long-term wellness by minimizing set backs - A fall reduction technique for caregivers and seniors called, 3 Steps to Success - What is “Concierge Coaching”? How mix-and-match services improves care for clients - Why our bodies are an accurate and useful source of information

Please share this with your loved ones. 00:00 Body Aware Living and Wellness Strategies 08:45 Caring for the Caregiver 09:47 Concierge Coaching 16:09 Being a Multi-Home Nomad 17:59 Supportive Concierge Coaching for Life Changes 26:07 Support Through Life's Challenges 31:00 Giving support to people during and after difficult times. 41:00 Margo’s Book - Body Aware Grieving; A Fitness Trainer's Guide To Caring For Your Health During Sad Times. 41:41 Exploring Body Awareness and Self-Care

Host Bio/contact: Jill Hart The Coach's Alchemist & Host of the You World Order Showcase Podcast Founder of The You World Order Community & Podcast (Podcasting - Attracting Clients & Building Authority)

Website: https://www.thecoachsalchemist.com/ Facebook Group: Podcasting-Attracting Clients & Brand Authority https://www.facebook.com/groups/theyouworldorder

Guest Bio/contact info: Margo Rose

Margo Rose has been a personal trainer for over 20 years specializing in functional fitness. She has also written a book called Body Aware Grieving; A Fitness Trainer's Guide To Caring For Your Health During Sad Times. Body Aware Living is a new blend of these two systems of healing and self-care. On this website you will find: the Body Aware Living podcast, articles and videos about wellness in Margo Media section and description of her coaching services

Website: https://www.BodyAwareLiving.com

Body Aware Grieving has been created to help you, or someone you care about, adjust to a loss or big life change. This link is one way to get the book quickly: https://www.amazon.com/Body-Aware-Grieving-Fitness-Trainers/dp/0692459189

Also available from other vendors including this independent Bookshop organization: https://bookshop.org/books/body-aware-grieving-a-fitness-trainer-s-guide-to-caring-for-your-health-during-sad-times/9780692459188

Follow Body Aware Living on Facebook https://www.facebook.com/BodyAwareLiving

Your Night Routine

Wed, 29 May 2024 20:59:51 +0000

Creating a morning routine is usually easier than establishing a nighttime routine. The nighttime routine begins when the day's work is done and we prepare for the next day.

For nighttime routines, I suggest two things: sharing your day with someone you love. This is crucial because we often isolate ourselves. It could be as simple as calling a friend, having dinner with family, or going out with friends.

Additionally, I recommend doing something for yourself—something you enjoy or something your body craves. Practice mindfulness during this activity, whether it's reading, eating, exercising, or simply relaxing.

Book your space with me at this link: https://calendar.google.com/calendar/u/0/appointments/schedules/AcZssZ0fqsZwD15-7qxxZK6YsLkkAePeswcfJj4ILEwXndYYAVDwHysGYxJhuDZhLSAZnbvKWGh-Nt7X

For more information contact us at: hello@tumcoeur.com

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Conscious Mastery with Astara Teal Summers

Mon, 27 May 2024 18:04:17 +0000

In this WCNFluencer episode, Christopher MacLellan visits with Astara Teal Summers about her music and the power of music in healing and personal growth. Astara and Chris discuss the importance of self-awareness and self-love in creating a life by conscious design.

Astara introduces her two courses, the Conscious Mastery Life Course and the Conscious Mastery Facilitator Certification Course, which provide tools and guidance for personal growth and helping others. Both Astara and Chris emphasize the importance of journaling, positive thoughts, and slowing down to connect with oneself. Astara shares her vision of a world where people love themselves and each other, creating inner peace and positive change.

Takeaways

Music can be a powerful tool for healing and personal growth.
Self-awareness and self-love are essential in creating a life by conscious design.
Journaling and positive thoughts can help in the process of self-discovery and personal growth.
Astara offers two courses, the Conscious Mastery Life Course and the Conscious Mastery Facilitator Certification Course, to guide individuals in their personal growth journey and help them become facilitators of healing and transformation.

Learn More at: Conscious Mastery

Titles

Creating a Life by Conscious Design
Tools for Personal Growth and Helping Others

Sound Bites

"Music is healing, it's what connects people, I think, on a level that transcends the conversation."
"Inner peace emanates into your home, and to your family, wherever you go. And then it reverberates out into the world."
"The Conscious Mastery Life Course: Digging into the Journey of Self-Discovery and Personal Growth"

Chapters

00:00

Introduction and Welcoming Astara

08:10

Creating a Life by Conscious Design

24:08

The Conscious Mastery Facilitator Certification Course: Tools and Guidance for Helping Others

30:41

Journaling and Positive Thoughts for Self-Discovery

An Informative Discussion on How to Serve Military Veterans on Hospice

Sat, 25 May 2024 17:53:02 +0000

1 in 4 Medicare hospice patients is a U.S. military veteran. End of life workers need to know how to take care of their special needs and enhance their quality of life. It’s important for EOL teams to know the signs of PTSD and how to listen when these patients (and their caregivers!) are communicating what they need.

Many military veterans experience trauma, guilt, and anger, causing what is identified as “soul injury”. Having a soul injury or PTSD creates a need for specialized care. Opus Peace has a great inventory tool for assessing whether someone has experienced a soul injury. The Soul Inventory is available for free on the Opus Peace website. You can access the Soul Injury Inventory here.

Every discipline on the hospice team, including the End of Life (or Death) Doula, brings skills that seriously ill and terminally ill veterans need. The caregivers providing support for those veterans need support as well. Those caregivers are advocates, coordinators, and spokespersons for the veterans they care about.

Find all the resources that Barbara Karnes has to offer at bkbooks.com.

Purchase the End of Life Guideline Series Bundle here.

Read Barbara’s blog here.

Connect with Barbara Karnes on social media: Facebook Insta LinkedIn Twitter Pinterest YouTube

Want to know more about doulas, or connect with others who are doing death doula work? Visit internationaldoulalifemovement.com.

If you’re interested in becoming a certified death doula through IDLM, click here.

Access all the courses that IDLM provides here.

See all the events that IDLM is offering by clicking here.

Connect with IDLM on social media. Facebook IG YouTube

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Talking to Kids about Dementia with Alder Allensworth - Caregiver Spotlight

Sat, 25 May 2024 17:52:34 +0000

Alder Allensworth cared for her mother who had Alzheimer’s and her father who had vascular dementia. Alder’s inspiration to co-create a children’s tool kit for families came from watching her mother interact with her grandchildren.

In this episode of the Happy Healthy Caregiver podcast, we talk about the resources Alder and her friend Brenda created to help children better understand dementia. Alder shares the benefits of having structure in our days, how a continuing care retirement community was the right fit for her parents for a while, how FMLA allowed her to be present for her parents in their final weeks, and what her daily energizing self-care practices look like.

Show notes with product and resource links:

https://bit.ly/HHCPod182

Receive the podcast in your email here:

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Order a copy of Elizabeth's book Just for You: a Daily Self Care Journal:

http://bit.ly/HHCjournal

For podcast sponsorship opportunities contact Elizabeth:

https://happyhealthycaregiver.com/contact-us/

The Happy Healthy Caregiver podcast is part of the Whole Care Network. Rate and Review the podcast:

https://bit.ly/HHCPODREVIEW

The Voluntold Caregiver: One Man’s Journey of Helping His Parents

Sat, 25 May 2024 17:52:18 +0000

David O'Leary had never seen himself as a caregiver but found himself in that role when his aging parents nominated him to be in charge of their affairs. As the next to youngest of 5 children, David was surprised by his parents' decision but stepped up to take on the responsibility. He organized his parents' paperwork and finances and helped care for his mother in her final years at home.

After losing his wife, David's father, Joe struggled with loneliness. But on a cruise in his 80s, Joe met and fell in love with another widow, Ellis. David supported their marriage, which brought Joe ten more happy years. When Joe passed, David kept his memory alive with Joe the Monkey, a stuffed animal, accompanying him as he settled his father's estate.

Throughout it all, David found rewards in caring for his family that outweighed any frustrations. He encouraged open conversations about planning with his now-adult sons, hoping to ease their future as caregivers. With humor and dedication, David approached his unexpected caregiver role with the same love and commitment he has had for his wife of 41 years. His story shows how caregiving brings families together across generations through life's challenges.

About David:

David O'Leary is a retired insurance executive with a long career in the industry. He is the fourth child out of five, with one older sister and three younger brothers. David has been married for nearly 41 years and has two adult sons. One of his sons is married, although, much to David’s chagrin, he does not have any grandchildren yet.

Connect with David:

Linked In: linkedin.com/in/dwoleary

Support the Show.

Confessions of a Reluctant Caregiver

Sisterhood of Care, LLC

Website: www.confessionsofareluctantcaregiver.com

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Spice Girls & Financial Woes with Kimberly Whiter

Sat, 25 May 2024 17:50:19 +0000

Which Spice Girl are Brandy, Emilia, and Kimberly (and which are YOU? Reach out to CareLabPodcast on social media and let us know!) Then let's get real talking about just WHY senior care is so expensive!

Find Care Equipment solutions at AskSAMIE

Find Caregiver Training at Higher Standards Caregiver Training

Find more from Kimberly at https://www.eldercaresolutionsinc.com

#carelabit #carelab

Caregiver Coaching (with special guest Edla Prevette)

Sat, 25 May 2024 17:10:51 +0000

In this episode, Sarah interviews children's therapist Edla Prevette. They discuss coaching for caregivers as well as Edla's journey caring for her parents.

You can find more of Edla at: Edla Prevette - Help with Caregiving for Your Aging Parents

You can find more of us at:

Stelmach Brown Media llc

And use the special promo code: AMBASSADORMLTV11

We are also affiliated with Carewell. Use this code and you can receive 30% off first order

Care Products | 24/7 Service | 30% OFF 1st Autoship - Carewell

Check out our sponsor http://www.favor-ct.org/

Please like share and subscribe to our podcast, also if you enjoy our content and to provide us with additional support, you can tip us here https://ko-fi.com/caregiverchroniclespodcast

Or here: https://www.buymeacoffee.com/caregivercg

What It Really Takes to be a Hospice Caregiver

Sat, 18 May 2024 14:28:33 +0000

Christina Keys can tell you the realities of being a caregiver for someone with a serious illness - the good, the bad, and the ugly. As the sole caregiver for her mother following a catastrophic stroke, Christina experienced financial, emotional, mental, physical, and relational impacts. The relationship between the two women was complicated, following a history of childhood abuse.

When her mom needed end of life care, Christina was juggling a full-time job as well as all of her mom’s care. The caregiving needs became much more intense, often requiring two people. End of life conversations were frequent so Christina knew exactly what her mother’s wishes were. One specific request was a casket from Costco! The hospice care got off to a rough start at first, but Christina found an agency that was a better fit for her mom’s care. Knowing she would need the additional support, Christina also engaged an End of Life Doula. Christina has taken the memories of her caregiving experience and all the lessons she’s learned to support other caregivers.

You can connect with Christina and the services she provides at christinakeys.com.

Socials for Christina Keys: Facebook TikTok Instagram LinkedIn

Find more caregiving resources at caregiving.com.

Want to know more about doulas, or connect with others who are doing death doula work? Visit internationaldoulalifemovement.com.

If you’re interested in becoming a certified death doula through IDLM, click here.

Access all the courses that IDLM provides here.

See all the events that IDLM is offering by clicking here.

Connect with IDLM on social media. Facebook IG YouTube

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

MAX SHERMAN: Former Texas Senator/Author of “Releasing the Butterfly: A Love Affair in Four Acts” -A Caregiver's Story and Journey

Sat, 18 May 2024 14:28:22 +0000

“I’m a lawyer by trade, politician by practice, and an academic by accident.” These are the musings of the remarkable, and I have to say, charming, Max Sherman.

In Episode 89, we interviewed a young and energetic 89 years old, Max Sherman. Max's life has been significantly influenced by women. But one in particular has shaped who he is today. In 1953 Max was among 4 high school boys conducting a church service at a local jail when he first laid eyes on a Gene Alice, who was there with her fold up field organ. And their love affair still thrives to this day...

In 2002 Gene Alice started noticing that something was different and soon after was diagnosed with Alzheimer’s. Through the inevitable progression of the disease Max and Gene Alice’s journey together is now chronicled in the beautiful and poignant memoir, “Releasing the Butterfly: A Love Affair in Four Acts”. It's a caregiver's story and journey. An honest, heart wrenching and insightful look at not only the disease but of a bond that could not be broken.

Max shares many of the insights he has gained as a caregiver, and thoughts on how to maintain connection even while grieving the losses of the fading abilities of a spouse living with Alzheimer’s.

Max boasts a rather formidable body of work which includes: Texas State Senator, President of West Texas State University, and Dean of the LBJ School of Public Affairs. His leadership roles also include President of the National Association of Schools of Public Affairs and Vice President of the Harry S. Truman Scholarship Foundation. AND recently he was honored as an 80 over 80 recipients.

Don and I had the best conversation chatting with the author of this ode to a 70 year love-affair that will warm your heart and make you want to fall in love all over again!

Support the Show.

The 3 Worst Pieces of Adaptive Equipment

Sat, 18 May 2024 14:22:28 +0000

Brandy and Emilia each talk about the 3 pieces of adaptive equipment they absolutely LOATHE.... spoiler alert: they don't agree! Plus, you'll learn the secret you've been dying to know - how many pairs of glasses does Brandy own???

Find Care Equipment solutions at AskSAMIE

Find Caregiver Training at Higher Standards Caregiver Training

#carelabit #carelab

Let´s Get Financial

Sat, 18 May 2024 14:22:19 +0000

In this podcast episode, I delve into the critical significance of crafting and adhering to a comprehensive financial strategy. Understanding the purpose of our finances, delineating our spending priorities, and envisioning our desired lifestyle are pivotal aspects of financial planning. By clearly defining our financial objectives and lifestyle preferences, we empower ourselves to make informed decisions that align with our long-term goals.

I advocate for cultivating financial awareness and engaging in open dialogues with our loved ones to gain insights into their aspirations and priorities. By cultivating a shared understanding of each other's financial goals and lifestyle preferences, we can collaboratively navigate financial decisions and build a more fulfilling future together.

Book your space with me at this link: https://calendar.google.com/calendar/u/0/appointments/schedules/AcZssZ0fqsZwD15-7qxxZK6YsLkkAePeswcfJj4ILEwXndYYAVDwHysGYxJhuDZhLSAZnbvKWGh-Nt7X

For more information contact us at: hello@tumcoeur.com

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The Pianist's Only Daughter (with special guest Kathryn Betts Adams)

Sat, 18 May 2024 14:19:47 +0000

In this week's episode, Sarah interview author Kathryn Betts Adams about her book "The Pianist's Only Daughter." They discuss her journey as a caregiver for her parents.

You can learn more about Kathryn at: HOME | Agingcaregivinghuman (kathrynbettsadams.com)

You can find more of us at:

Stelmach Brown Media llc

And use the special promo code: AMBASSADORMLTV11

We are also affiliated with Carewell. Use this code and you can receive 30% off first order

Care Products | 24/7 Service | 30% OFF 1st Autoship - Carewell

Check out our sponsor http://www.favor-ct.org/

Please like share and subscribe to our podcast, also if you enjoy our content and to provide us with additional support, you can tip us here https://ko-fi.com/caregiverchroniclespodcast

Or here: https://www.buymeacoffee.com/caregivercg

Pete Warner - Advocating for Veterans Rights

Wed, 15 May 2024 18:47:33 +0000

Special guest Pete Werner, a retired Air Force Lieutenant Colonel and current Council President for the Military Officers Association of America (MOAA) in Tennessee, joins Donna and Jay in this episode as they explore the pivotal role MOAA plays in advocating for veterans' rights on Capitol Hill.

Pete shares stirring stories of MOAA's achievements, including the fight to protect Tricare for life and the establishment of scholarships for ROTC cadets. He also emphasizes the importance of remembering the silent heroes—the spouses and dependents—who support our service members from the home front.

Join us as we uncover the power of advocacy, the strength in numbers, and the ongoing mission of service that extends beyond the uniform. Because as Pete reminds us, with MOAA's motto ringing true, we "never stop serving."

To learn more about MOAA and how you can get involved, visit moaa.org and tune into this episode to hear firsthand the impact of collective action and dedicated service.

Tune into our CHW Streaming Radio and the full lineup at cominghomewell.com Download on Apple Play and Google Play

Online-Therapy.com ~ Life Changing Therapy Click here for a 20% discount on your first month.

Jay’s Links Website: https://j2servantleadership.com/ Book: Breaking Average (2020)

Thank you for listening! Be sure to SHARE, LIKE and leave us a REVIEW!

A Provocative Conversation-Death With Dignity & Dementia

Wed, 15 May 2024 18:46:11 +0000

We'll explore:

The challenges of cognitive decline: How does dementia impact a person's ability to make informed decisions about their own care?

Advance directives: A voice for the future: Can these documents truly reflect a person's wishes in the later stages of dementia?

Balancing autonomy and compassion: How do we navigate the ethical considerations of respecting a patient's choices while ensuring a humane and dignified death?

Discover practical strategies to facilitate open communication with loved ones about end-of-life wishes. Join us as we delve into the medical, legal, and ethical complexities surrounding death with dignity and dementia.

Our Guest:

D. Liebhart is a nurse and writer. She writes (and sometimes lives) stories about ordinary people in extraordinary circumstances, where they learn that life is rarely predictable and answers to life’s most complex questions are almost never black and white.

A Liberating Path of Recovery

Wed, 15 May 2024 18:45:18 +0000

This episode is a deep dive into the transformative journey of V4R guest Mike from the grips of alcoholism to the liberating path of recovery, particularly within the Veteran and service member communities.

This episode is a story of personal triumph and a testament to the service mentality underpinning successful recovery. Mike's dedication to helping others through his unique approach to the recovery steps offers profound insights into building a solid foundation for a sober life and the ripple effect of service in the recovery community.

Support the Show.

Tune into our CHW Streaming Radio and the full lineup at cominghomewell.com Download on Apple Play and Google Play

Online-Therapy.com ~ Life Changing Therapy Click here for a 20% discount on your first month.

Thank you for listening! Be sure to SHARE, LIKE and leave us a REVIEW!

You Must Include Your Needs In The Caregiving Plan

Wed, 15 May 2024 18:07:23 +0000

Caring for your parents is honorable but also challenging. You want to do all you can to make things easier for them, so you put all your energy and effort into trying to meet their every need. When you do this, you often do it at the expense of your own mental and physical well-being, and this can have dire consequences.

Family caregivers often neglect their health as well as sacrifice other meaningful relationships and interests in their life because they don't have an effective plan which takes in account their needs in addition to the needs of their loved one.

Listen to this podcast episode and gain insight into developing a healthy caregiving plan. See how this quote, "If you don't have a plan, any road will lead you there and you will achieve goals you didn't set" is a depiction of what can happen in caregiving when you are not intentional about including YOU in the caregiving plan.

If you are a caregiver and have a question that you would like to have addressed on the Caregivers's Finding A Foothold Podcast , you can do so by also dialing (225)-443-9447.

You can also leave a question by filling out this jotform:

https://form.jotform.com/231966483352160

Consuela Marshall, Occupational Therapist, Family Caregiver Coach Certified Aging in Place Specialist Certified Dementia Care Practitioner Certified Geriatric Care Professional

Like us on Facebook. https://www.facebook.com/FindingAFoothold/

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Embracing the Caregiving Journey: Lan Phan on Transforming Pain into Purpose

Wed, 15 May 2024 18:06:05 +0000

Lan Phan, a former caregiver for her mother with advanced-stage dementia, shares her decade-long journey. As Vietnamese refugees, Lan's mother worked tirelessly as a hairdresser to support their family. In her late 70s, her health declined, prompting Lan to leave her job in New York and move to California to care for her mother.

Lan faced challenges in finding full-time care and making decisions with her siblings about her mother's living situation. Her mother's dementia progressed, requiring 24/7 care and eventually a memory care facility. Navigating the healthcare system, advocating for her mother's needs, and dealing with caregiver burnout took a toll on Lan.

Lan's experience inspired her to start her own company and pursue speaking and writing to assist others. She realized the value of living intentionally and pursuing dreams, as time and mental capacity are finite. Lan aims to honor her mother's sacrifices by living fully and helping others through her work.

About Lan:

Lan Phan is an author and speaker known for her expertise in purpose, mindset, and continuous improvement. Her expertise has made her a sought-after consultant for Fortune 500 companies, where she advises CEOs and C-Suite executives to help them navigate the dynamic realms of business and innovation. Her thought leadership can be found in prestigious publications like The Harvard Business Review, Forbes, and Money.

As a keynote speaker, Lan has graced prominent platforms, including the United Nations, Stanford University, NYU Law, and events hosted by Fortune 100 companies like PepsiCo, Warner Media, Citi, Bank of America, Disney, and Meta. On LinkedIn and YouTube, her content reaches an audience of millions annually, resonating deeply across diverse demographics. Phan is named as one of the top 100 LinkedIn creators globally and top ten in Management and Leadership.

A Stanford University alumnus, she was honored with the J.E. Wallace Sterling Award, which recognized her significant impact through leadership and community service. She also holds a master's degree from the Harvard Graduate School of Education. Lan resides in New York with her husband, Kevin, and their daughter, Morgan.

Connect with Lan:

Website: lanphan.co

Website Company: communityofseven.com

LinkedIn: linkedin.com/in/lanphan

Instagram: Instagram.com/lanphanc7

Facebook: facebook.com/communityofseven

Support the Show.

Confessions of a Reluctant Caregiver

Sisterhood of Care, LLC

Website: www.confessionsofareluctantcaregiver.com

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Transforming Your Pain & Cultivating Resilience with Natalie Bedard

Wed, 15 May 2024 17:33:08 +0000

Natalie is a beacon of resilience and empowerment, dedicated to guiding others on their energy-healing and self-discovery journey. Despite facing profound challenges, including a life-threatening illness and the demands of single parenthood to three boys, Natalie has emerged stronger and more determined than ever.

Now, Natalie shares her wisdom and experiences to help others tap into their inner potential and navigate their own paths of growth.

She has been a caregiver in many ways and shares her unique journey with us in this episode.

She understands that transformation requires consistent practice and encourages small, manageable steps toward self-improvement.

Learn more about Natalie at https://linktr.ee/Liftoneself

Join The Self-Caregiver for our next FREE online workshop! Learn more

Fridays and Boundaries with Lisa Kendall

Mon, 13 May 2024 14:59:33 +0000

Friday fun and a new and powerful way to look at caregiver boundaries with Lisa Kendall. #carelab #carelabit

Find Lisa at https://lisakendallconsulting.com/

Find Care Equipment solutions at AskSAMIE

Find Caregiver Training at Higher Standards Caregiver Training

https://www.carelabpodcast.com/

The Amazing Work of an End of Life Doula

Fri, 10 May 2024 14:36:21 +0000

This trio of End of Life Doulas is educating the public and other doulas about EOL doula work, and how they support people as they die. Diane Button, Gabby Jimenez, and Angela Shook are sharing their wisdom along with practical guidance for doula work. With heart, compassion, and respect for the intensity of death, the three EOL doulas discussed the unknowns about doulas. They openly acknowledge the difficulties doulas face when starting their practice, and the public’s lack of awareness about doula work.

Diane, Gabby, and Angela have collaborated to write The Doula Tool Kit: The Complete Practical Guide for End-of-Life Doulas & Caregivers. It’s the quintessential guide to the services of EOL (or death) doulas, providing tips and templates for new doulas to jump-start their doula practice. Caregivers, nurses, and other hospice workers can benefit from the book as well. Anyone working with someone with a serious illness or their caregivers should know the work of End of Life Doulas.

Purchase a copy of The Doula Tool Kit: The Complete Practical Guide for End-of-Life Doulas & Caregivers by clicking here.

Connect with Diane Button at dianebutton.com

Find Angela Shook at angelashook.com.

Connect with Gabby Jimenez at The Hospice Heart website.

Want to know more about doulas, or connect with others who are doing death doula work? Visit internationaldoulalifemovement.com.

If you’re interested in becoming a certified death doula through IDLM, click here.

Access all the courses that IDLM provides here.

See all the events that IDLM is offering by clicking here.

Connect with IDLM on social media. Facebook IG YouTube

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

AgingGayfully™ Dimensions of Our Wellness, Part One

Fri, 10 May 2024 14:36:11 +0000

Josh and Chris discuss the different and important parts of our wellness, not just physical wellness but also, mental, emotional, spiritual, intellectual, and occupational.

A gay senior, Christopher MacLellan, and an ally, Josh Wilson, podcasting about life, love, liberty and travel. Don't Say Gay?... Say AgingGayfully™!

Subscribe NOW, where you listen to your favorite podcast.

Learn more at AgingGayfully™.

The Magic of Making Mistakes

Fri, 10 May 2024 14:32:36 +0000

As I watched a basketball game, it struck me that life would lack excitement without mistakes. Basketball, baseball, and all sports would be flawless and therefore less engaging.

Mistakes provide opportunities for growth and improvement. They prompt us to try new approaches and learn from our errors.

The frustration of failure often serves as a catalyst for progress. This concept resonates deeply in caregiving, where each day presents new challenges and opportunities for adaptation.

Deprescribing Medications with DeLon Canterbury

Thu, 09 May 2024 23:42:39 +0000

More than half of Americans take four or more medications a day. That number increases to at least seven when we add over-the-counter medications. All of these have side effects and interactions. Today my guest is DeLon Canterbury, Founder of Geriatrix.org who hopes to revolutionize the way we look at medications by educating the public on deprescribing.

In this episode, we discuss the importance of knowing the medications your care partners are taking, what he considers dangerous drugs, the most over prescribed drugs and how to discuss deprescribing with your care partners physician.

SHOW NOTES

Speak Your Truth with Allison Breininger - Caregiver Spotlight

Wed, 08 May 2024 21:30:30 +0000

Allison Breininger has an MA in Education and spent twenty years in the realm of education. At 31, she became a caregiver for her husband, Sean, when he was diagnosed with the rare genetic disease Fanconi Anemia. She has been by his side through countless treatments and experienced firsthand that caregivers are in what she calls ‘the negative space’: vital yet overlooked and unsupported.

In this episode, Allison shares why caregivers are part of the story and need to be recognized, why the oxygen mask analogy falls short, what tried and true tools help her in her caregiving life, and why ‘brightsiding’ is detrimental for care advocacy and caregiver wellness.

Show notes with product and resource links:

https://bit.ly/HHCPod181

Receive the podcast in your email here:

http://bit.ly/2G4qvBv

Order a copy of Elizabeth's book Just for You: a Daily Self Care Journal:

http://bit.ly/HHCjournal

For podcast sponsorship opportunities contact Elizabeth:

https://happyhealthycaregiver.com/contact-us/

The Happy Healthy Caregiver podcast is part of the Whole Care Network. Rate and Review the podcast:

https://bit.ly/HHCPODREVIEW

The Dark Side Part II: Coping with Mental Anguish

Wed, 08 May 2024 21:30:21 +0000

Mark Russell and Charles Figley unpack the complexities of psychiatric casualties, exploring the full scope of mental health crises and the systemic failures in addressing them. From cultural idioms of distress to the mislabeling of combat veterans, they shine a light on the urgent need for a holistic approach to military mental health care.

They navigate the intricate web of neuropsychiatric diagnoses, the stigmatization of mental health issues, and the dire consequences of untreated psychological injuries. This episode serves as a stark reminder of the real and devastating impact of chronic stress on our service members, and the pressing need for change in military mental health policies.

Listen in as Mark and Charles share their personal encounters with compassion fatigue, revealing the raw and human side of those tasked with the care of our nation's heroes. Their candid conversation is a call to action, urging us to acknowledge and address the invisible wounds of war with the same urgency and respect as physical injuries.

Tune into our CHW Streaming Radio and the full lineup at cominghomewell.com Download on Apple Play and Google Play

Online-Therapy.com ~ Life Changing Therapy Click here for a 20% discount on your first month.

Thank you for listening! Be sure to SHARE, LIKE and leave us a REVIEW!

How Are You Really Doing? Why We Can Miss Our Loved Ones' Warning Signs.

Wed, 08 May 2024 21:30:11 +0000

Dr. Angela Porter and Andre Miller are joining Dee Tox and Leslie for an in-depth conversation about recognizing and responding to the signs of struggle in our loved ones, co-workers, and selves. As healthcare workers, military personnel, and first responders, we're often the go-to people for others in crisis, yet our own battles can blind us to the needs of those around us.

This discussion digs into the importance of self-care as a prerequisite for being present and supportive for others. Dr. Porter sheds light on the early warning signs of mental health issues and suggests practical steps for intervention, emphasizing the need for a 'warm handoff' and persistent, genuine engagement. Andre shares his personal journey, highlighting the courage it takes to seek help and the strength found in vulnerability.

This episode is a call to action for all of us to listen with the intent to understand, to be persistent in our care for others, and to prioritize our well-being. It's a powerful reminder that we're not alone, and that addressing our own issues can make us better helpers and healers in our professional and personal lives.

Nurses and Medics: This is your platform! We want to hear your stories of the good, the bad and the ugly. Send us an email at cominghomewell@gmail.com

Do you know a health worker that needs a laugh? B2B N.F.L.T.G. Certificate click here

Get the ammo you need to seize your day at Soldier Girl Coffee Use Code CHW10 for a 10% off at checkout!

Special Thanks to Artwork: Joe Weber @joeweber_tattoos

Intro/Outro/Disclaimer Credits: Pam Barragan Host of 2200TAPS Podcast "Racer" by Infraction https://bit.ly/41HlWTk Music promoted by Inaudio: ...

Through Thick and Thin: A Caregiver's Love Story

Wed, 08 May 2024 21:29:59 +0000

Will Durocher, a devoted husband and caregiver, shares his heartfelt story of caring for his wife, Teresa. After several years of marriage, Teresa was diagnosed with dementia. Their love story began at church, where they formed a deep bond rooted in their shared faith. As Teresa's condition progressed, Will took on the primary caregiver role, navigating complex systems such as Medicaid to ensure she received the necessary support.

Caring for Teresa presented challenges, but Will found solace in providing small acts of kindness each day, bringing comfort to her. Even after Teresa's passing, her legacy continued to inspire Will through letters and stories that revealed her generous nature. Will attributes his strength and resilience during this difficult time to his unwavering faith. While deeply missing Teresa, Will finds solace in working on his classic car and connecting with others who understand the unique challenges of caregiving. This helps him cope with his loss while honoring Teresa's cherished memory.

About Will:

Will Duroucher's life changed drastically in 2010. Just a few years after marrying his sweetheart, Theresa, she was diagnosed with dementia. Will became her primary caregiver and jumped into learning about dementia and how to help Theresa. He talked to other caregivers and read everything he could find on the topic. There's no one-size-fits-all guide for caregivers, so Will has had to learn and adapt as he goes. It's a tough job, but Will is resilient and compassionate and always puts Theresa first.

When Will's not taking care of Theresa, he likes to relax by doing yard work. He finds it meditative and reflective. He also enjoys restoring a classic 1950s Mercury car. It's a challenging project, but it's something he's passionate about and feel a sense of accomplishment.

Support the Show.

Confessions of a Reluctant Caregiver

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Challenges Caregiving for Difficult People

Wed, 08 May 2024 21:29:38 +0000

Feeling Strained in Your Caregiving Role? Rebuild a Stronger Relationship!

Develop empathy and understanding: Discover techniques to see things from your loved one's perspective and address the root causes of difficult behaviors.

Set healthy boundaries: Learn how to prioritize your own well-being while effectively caring for your loved one's needs.

Communicate openly and compassionately: Develop stronger communication skills to foster a more respectful and supportive relationship.

We'll share the inspiring story of a daughter who transformed her caregiving experience by shifting her perspective and prioritizing self-care. Discover how you too can create a healthier relationship dynamic and navigate the challenges of caregiving with greater confidence.

Our Guest:

Sherri Yarborough is caring for her 93 year old mother. She also started Praxis Senior Caregiving Solutions. She realized that to survive caring for her Mom, she was going to have to rectify their past relationship struggles. This episode, she shares how she made that happen.. She earned her Ph.D. in Educational Policy Studies from the University of Illinois at Urbana-Champaign. Her education as a policy analyst was an invaluable tool for managing the interpersonal changes to the relationship with her mother.

Train Yourself to Be Happy with Certified Happiness Trainer Tamara Zoner

Wed, 08 May 2024 21:29:26 +0000

Certified Happiness Trainer? What does that even mean!? I had the pleasure of interviewing Tamara Zoner, certified life coach, meditation teacher, and happiness trainer to discuss these very things!

We break down how cultivating mindfulness, more time for self-care, and establishing boundaries can all contribute to our happiness.

Tamara also has extensive experience working in the professional caregiving space which gave me the opportunity to ask her some of those questions caregivers are longing to ask the professional caregivers in their own loved ones' lives.

To learn more about Tamara and grab her FREEBIE, head to: www.alifeyoulovenow.com

Peg Andrae with Guitar for Vets

Wed, 08 May 2024 21:29:14 +0000

Strum the chords of healing with Peg Andre from Guitars for Vets. Discover how this incredible organization orchestrates the power of music to soothe the souls of Veterans battling PTSD, TBI, and other challenges. Peg shares the journey of Guitars for Vets, from its humble beginnings in Milwaukee to its nationwide reach, offering veterans ten free guitar lessons and the joy of a new acoustic guitar upon graduation.

In this heartwarming conversation, Peg recounts transformative stories of Veterans who found solace in strings, overcoming obstacles, and finding their rhythm in life through the guitar's gentle embrace. Whether you're a Veteran seeking a melodic outlet, a music lover curious about the program, or someone interested in becoming an instructor, this episode resonates with the spirit of service and the transformative power of music.

For more information on how to participate, volunteer, or support Guitars for Vets, visit guitars4vets.org. Tune in and let the music of hope and healing play on.

Support the Show.

Tune into our CHW Streaming Radio and the full lineup at cominghomewell.com Download on Apple Play and Google Play

Online-Therapy.com ~ Life Changing Therapy Click here for a 20% discount on your first month.

Thank you for listening! Be sure to SHARE, LIKE and leave us a REVIEW!

Soul Sisters: Sara Cooper and Jodi O'Donnell-Ames

Tue, 07 May 2024 13:33:54 +0000

Multitalented Sara Cooper has been a commercial real estate lender, an event planner and a marketing guru in her professional career. The founder of Cooper Creative Group has even mastered the culinary arts.

Mary Oliver quote: "Watch now how I start the day: in happiness, in kindness."

Icebucket challenge video:

Jodi and Sara talk ALS: https://www.facebook.com/watch/?v=1431811063660783

https://www.facebook.com/jodi.odonnellames/videos/748797545180004

Early Onset Dementia

Tue, 07 May 2024 13:22:36 +0000

Benedetto who shares his important story about being diagnosed with Early Onset Dementia at 42 and Dementia Care expert Gary Joseph LeBlanc from the Dementia Spotlight Foundation .

Listen in and learn how David and Gary are inspiring other and creating Healing Ties by sharing their stories and critical resources to help those with faced with this diagnosis be better prepared for their own personal journey.

Not So Little Book of Cancer Caregiving (with special guest Jim Cooper)

Tue, 07 May 2024 13:14:11 +0000

In this episode, Sarah interviews Jim Cooper, author of the book "Not So Little Book of Cancer Caregiving." They discuss Jim's journey caring for his wife as she battled brain cancer and what inspired him to write the book.

You can find more of Jim at:

https://www.facebook.com/FacePlantbooks

And you find his book on Amazon: amazon.com/Not-Little-Book-Cancer-Caregiving/dp/098882132X

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Interview with Paula Muller

Tue, 07 May 2024 13:13:27 +0000

In this episode of the podcast, I had the pleasure of interviewing Paula Muller, the visionary founder of Carelink360. Carelink360 is a revolutionary device designed to bridge the gap between elders and their loved ones.

Paula sheds light on the profound consequences of loneliness and isolation among the elderly population, emphasizing the detrimental effects on cognitive health and overall well-being. Drawing from her expertise, she shares four insightful recommendations aimed at mitigating cognitive decline and promoting mental wellness in seniors.

From heartwarming anecdotes to practical advice, this interview with Paula Muller serves as a testament to the power of innovation in enhancing the quality of life for seniors and strengthening intergenerational bonds. Join us as we explore the intersection of technology, compassion, and aging gracefully.

Book your space with me at this link: https://calendar.google.com/calendar/u/0/appointments/schedules/AcZssZ0fqsZwD15-7qxxZK6YsLkkAePeswcfJj4ILEwXndYYAVDwHysGYxJhuDZhLSAZnbvKWGh-Nt7X

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Carelink360 web page CareLink360™ | Changing The Way The World Ages™ (mycarelink360.com)

Shelley Henry is an Advocate for Quality Hospice Care

Fri, 03 May 2024 16:20:38 +0000

Hospice nurse Shelley Henry is supporting nurses working in end of life care with advocacy, video tips, and support for their self care. Shelley uses the two words “divine intervention” to describe how she got ino working with patients at the end of their lives. After 20 years in the hospice industry, Shelley remains committed to preserving the art of hospice nursing. She’s the president of The Amity Group, a staffing firm exclusively catering to hospice. Shelley posts videos across her social media platforms featuring practical tips and guidance for hospice nursing.

Shelley has designed a nurses’ bag that has all the pockets and places that hospice nurses need. Check out the Tip Bag (along with her hospice documentation resources) at amitystaffing.com.

Find all the training and consulting services of the Amity Group here.

Watch Shelley’s videos on her social media. Facebook LinkedIn IG TikTok

Want to know more about doulas, or connect with others who are doing death doula work? Visit internationaldoulalifemovement.com.

If you’re interested in becoming a certified death doula through IDLM, click here.

Access all the courses that IDLM provides here.

See all the events that IDLM is offering by clicking here.

Connect with IDLM on social media. Facebook IG YouTube

If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.

Book podcast host Helen Bauer to speak at your event or conference by emailing helen@theheartofhospice.com.

Seize the Day: Embracing Life's Moments with Alzheimer's

Wed, 01 May 2024 21:12:48 +0000

Perhaps you can’t cure or even prevent Alzheimer’s, but what if you could slow the disease progression? Want to unlock the secrets to living in the moment with Alzheimer's? Get ready to embrace practical advice and actionable insights for a positive journey with Alzheimer's and dementia in this podcast with Danel Gibbs, MD.

He’s a retired neurologist with extensive knowledge in the anatomy of the brain and the disease process of Alzheimer's and dementia. His personal experience living with Alzheimer's provides a unique perspective, enhancing his credibility in discussing practical approaches to managing these conditions. He’s the author of "A Tattoo on My Brain" and "Dispatches from the Land of Alzheimer's," which offer a collection of essays and vignettes that provide valuable insights into the cognitive health and well-being of those living with Alzheimer's or dementia. His writing style, which simplifies complex scientific concepts, ensures that his work is accessible to a wide range of audiences, and his contributions to the understanding and management of Alzheimer's and dementia make him an essential guest on the podcast.

Quotes:

“For those of us on the Alzheimer's journey, it's really important to embrace the moment and not dwell on the frustration of trying to remember the past and plan for the future. Happiness and peace come from focusing on the moment.” - Daniel Gibbs, M.D.

“We don't have to wait for a cure. We can just do things that really make a significant difference, that are available, evidence proven, and don't cost anything. Except maybe a gym membership.” - Daniel Gibbs, M.D.

In this episode, you will:

Explore real-life experiences of living with Alzheimer's and gain insights on managing the daily challenges.
Discover the surprising link between sense of smell loss and Alzheimer's disease, and how it may impact early detection.
Uncover the powerful impact of exercise on slowing the progression of Alzheimer's and enhancing overall well-being.
Learn about dietary approaches that may help slow down the advancement of Alzheimer's disease.

Resources mentioned:

After the Podcast

Buy the Dispatches from the Land of Alzheimer's and A Tattoo on My Brain

Watch the documentary A Tattoo on My Brain

Read Daniel’s AlzAuthors Post

Visit Daniel’s Blog

Listen to Previous Podcasts:

Daniel Gibbs, MD Untangles His Personal Battle Against Alzheimer’s Disease

Writing Through the Fog

About the Podcast

Thanks for listening.

We are a Whole Care Network Featured Podcast

Proud to be on The Health Podcast Network

Find us on The World Podcast Network and babyboomer.org

Want to be on the podcast? Here’s what you need to know

We've got merch! Shop our Store

A Beautiful Conversation About Death with Sarah Cavenaugh

Mon, 29 Apr 2024 12:37:04 +0000

Sarah Cavanaugh believes having conversations about death helps us clear the air and find peace, whether those discussions are in person or in our hearts and minds. Sarah is the founder of Peaceful Exit, a company that explores all aspects of grief and loss. She co-designed a curriculum to open the conversation around the physical, psychological, and spiritual aspects of death and dying.

She also hosts Peaceful Exit, a podcast that explores life, death and grief. In each episode, she talks with an author who has written extensively on the topic to help us normalize death as part of the human experience, no matter who you are, no matter your politics, spiritual faith or socioeconomic status. Peaceful Exit explores how to radically accept our eventual demise, how to talk about it and even plan for it. But it’s not all doom and gloom – there's joy, meaning and connection to be found in exploring the messiness of death, dying and grief.

Connect with Sarah Cavanaugh, host of the Peaceful Exit podcast:

Website: peacefulexit.net

Podcast: Peaceful Exit

Online Courses

Contact Peaceful Exit

Socials: Insta Facebook LI

Want to know more about doulas, or connect with others who are doing death doula work? Visit internationaldoulalifemovement.com.

If you’re interested in becoming a certified death doula through IDLM, click here.

Access all the courses that IDLM provides here.

See all the events that IDLM is offering by clicking here.

Connect with IDLM on social media. Facebook IG YouTube

If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Messy Caregiving with Sisters Natalie and JJ - Caregiver Spotlight

Mon, 29 Apr 2024 12:36:52 +0000

Natalie Elliott Handy and JJ Elliott Hill are sisters. Together, along with a third sister Emilie, they manage care for their mom who is living with Parkinson’s disease. Natalie is also a caregiver for her spouse, Jason, who receives palliative care to help navigate his cancer journey.

In this episode, we discuss all the total messiness around family caregiving. We talk about letting go of perfectionism, getting access to your parent’s finances, the benefits of palliative care, and they both confess their guilty pleasures.

Show notes with product and resource links:

https://bit.ly/HHCPod180

Receive the podcast in your email here:

http://bit.ly/2G4qvBv

Order a copy of Elizabeth's book Just for You: a Daily Self Care Journal:

http://bit.ly/HHCjournal

For podcast sponsorship opportunities contact Elizabeth:

https://happyhealthycaregiver.com/contact-us/

The Happy Healthy Caregiver podcast is part of the Whole Care Network. Rate and Review the podcast:

https://bit.ly/HHCPODREVIEW

The Dark Side of Military Mental Health

Mon, 29 Apr 2024 12:36:43 +0000

In episode 5 Mark and Charles unravel the complex tapestry of war's psychological toll. They shed light on the broad spectrum of conditions that afflict service members beyond PTSD, including medically unexplained physical symptoms, neuropsychiatric diagnoses, and traumatic grief reactions.

This discussion is not just a critique but a call to action, highlighting the dire need for comprehensive mental health care that honors the full cost of war. It's a sobering reminder that the battle doesn't end when the war does, and the scars of conflict extend far beyond the physical.

For anyone who's served, loved someone who's served, or simply cares about the wellbeing of our service members, this episode is a must-listen. It's a conversation that could spark the change needed to address the mental health crisis our military faces.

Table of Contents for Discussion

Have questions, thoughts or suggestions on topics? Email Mark at mrussellphd@gmail.com

Tune into our CHW Streaming Radio and the full lineup at cominghomewell.com Download on Apple Play and Google Play

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Thank you for listening! Be sure to SHARE, LIKE and leave us a REVIEW!

Laughter, Tears and Connection: Discussing a Novel Born from Alzheimer's Experience

Mon, 29 Apr 2024 12:36:27 +0000

Delight in the surprising journey of Ruth Stevens, from crafting a stage play to penning a heartfelt novel about Alzheimer's. Delve into the unexpected twists and turns as Ruth shares her personal experiences and the emotional impact of her work. Stay tuned for eye-opening insights on turning personal stories into fiction and a sneak peek into her upcoming duology. Get ready to be captivated by Ruth's incredible journey, as she shares the highs and lows of her creative process.

For our March installment of Books & Chit Chat, our monthly Book Club collaboration with Aging & Amazing, we talk with Ruth Stevens, a former public relations professional from New York City and LA, and the author of the debut novel "Stage Seven," inspired, in part, by her personal experience dealing with her mother's Alzheimer's disease and decline. A fiction story acquisitions editor with AlzAuthors and a member of the Dramatists Guild of America and Women's Fiction Writers Association, Ruth brings a unique perspective to her writing, infusing humor and tenderness into a difficult topic. Her storytelling abilities, honed through a career in creative writing, advertising campaigns, and numerous articles for magazines, newspapers, and journals, shine through in her work, offering a compelling and relatable portrayal of Alzheimer's and its impact on family dynamics. Like enjoying a performance of her play, you’ll laugh, you’ll cry, you’ll learn a lot. Have a listen.

Quote:

“I feel like your play gave me permission to move on with my life”. - Audience member

In this episode, you will:

Explore real-life Alzheimer's caregiving experiences and gain insights into navigating the challenges with compassion and understanding. Discover the art of turning personal stories into compelling fiction, finding inspiration from the heart-wrenching yet beautiful moments of caregiving. Uncover the captivating journey within the novel "Stage Seven" by Ruth Stevens, delving into the emotional landscape of Alzheimer's and its impact on families. Understand the profound impact of Alzheimer's on family dynamics, gaining new perspectives on how to navigate relationships and support systems during difficult times. After the Podcast

Buy the Book Stage Seven

Find more about Ruth Stevens at https://ruthfstevens.com/

Listen to Ruth on on the Hilarity for Charity (HFC) and AlzAuthors Summer Book Club

Follow Ruth on Social Media:

Instagram

Facebook

Goodreads

Blog

About the Podcast

Thanks for listening.

We are a Whole Care Network Featured Podcast

Proud to be on The Health Podcast Network

Find us on The World Podcast Network and babyboomer.org

Want to be on the podcast? Here’s what you need to know

We've got merch! Shop our Store

Nadia Merchant ~ Writing with a Purpose

Mon, 29 Apr 2024 12:36:09 +0000

Dee Tox and Leslie Yancey sit down with Nadia Merchant, a police officer from Ontario grappling with the aftermath of trauma. Nadia bravely shares her journey through the eyes of a first responder who, despite being accustomed to saving others, finds herself in need of rescue. After confronting the reality of her PTSD, Nadia discusses the difficult transition from acknowledging to digesting the impact of her experiences, and the challenge of finding purpose beyond the badge.

Her story is a powerful testament to the resilience of the human spirit and the importance of seeking help when the weight of our burdens becomes too heavy to bear alone. Nadia's courage to speak out offers a beacon of hope and solidarity to anyone facing their own battles, reminding us that even heroes need heroes sometimes.

Tune in for an intimate conversation that underscores the universal emotional experience we all share and the significance of extending a hand to those in need.

Follow Nadia's inspiring poetry on Instagram at @she's_writing_now and join the conversation about mental health, resilience, and recovery.

Nurses and Medics: This is your platform! We want to hear your stories of the good, the bad and the ugly. Send us an email at cominghomewell@gmail.com

Do you know a health worker that needs a laugh? B2B N.F.L.T.G. Certificate click here

Get the ammo you need to seize your day at Soldier Girl Coffee Use Code CHW10 for a 10% off at checkout!

Special Thanks to Artwork: Joe Weber @joeweber_tattoos

Intro/Outro/Disclaimer Credits: Pam Barragan Host of 2200TAPS Podcast "Racer" by Infraction https://bit.ly/41HlWTk Music promoted by Inaudio: ...

Working Beyond 55 - What does the job market have for me? with Carolynne Mahood of On Your Own Time

Mon, 29 Apr 2024 12:35:52 +0000

Meeka Marsolais & Katrina Prescott speak with Carolynne Mahood, Principal of On Your Own Time, and fully accredited HR Professional. We unravel the evolving concepts or work and retirement beyond age 55. With over 45 years of HR expertise, Carolynne shares invaluable insights into the changing nature of retirement. Discover how individuals are redefining this life stage, seeking purpose, and contributing their skills in innovative ways. Carolynne provides practical advice for those contemplating a career shift post-55. We explore the shifting dynamics of retirement, including the desire for ongoing personal and professional growth. Whether you're an individual entering this phase, already enjoying retirement, or supporting someone on this journey, this episode offers concise and actionable perspectives on thriving in the dynamic landscape beyond 55.

Bridging Gaps in Care: Ali Ahmadi's Caregiver Revolution

Mon, 29 Apr 2024 12:35:30 +0000

Ali Ahmadi's caregiving journey began unexpectedly when his mother-in-law was diagnosed with stage four lymphoma cancer over seven years ago. As a former Navy aviator and aerospace engineer, Ali prided himself on navigating difficult situations. However, nothing could have prepared him for the challenges of caring for his ill mother-in-law while balancing work and family responsibilities. Ali and his wife decided to bring her into their home without hesitation. Still, they soon found themselves overwhelmed trying to manage her complex medical needs and navigate the healthcare system alone.

At his wit's end, Ali was introduced to the TCARE protocol. Developed by researchers at the University of Wisconsin-Milwaukee, TCARE helped Ali and his family better understand the emotional toll of caregiving through clinical assessments. To Ali's surprise, the recommended care plan focused on marriage counseling rather than just medical support. This unexpected recommendation opened Ali's eyes to how caregiving impacted every aspect of his life. Through TCARE, Ali also discovered local resources he didn't know existed, like free family counseling. Inspired by the difference TCARE made, Ali developed the program into the caregiver support platform it is today.

Now, Ali dedicates his career to helping other caregivers avoid burnout through TCARE's individualized support plans and focus on preventing emotional hardships. Driven by his caregiving experiences and commitment to family, Ali continues working tirelessly to validate caregivers' challenges and connect them with the resources needed to care for their loved ones without sacrificing their well-being.

About Ali:

Ali Ahmadi is a veteran of three venture-backed tech startups, having raised over $100 million in funding. A former U.S. Naval Aviator, he holds an M.S. and B.S. in Aerospace Engineering from Embry-Riddle Aeronautical University and an Executive MBA from Washington University in St. Louis. Ahmadi has vast experience in the Software-as-a-Service (SaaS) industry and has developed strategic partnerships with Fortune 100 companies, including Microsoft, RGA, PwC, SAP, Salesforce, McKinsey, and Aflac.

Currently, he serves as the CEO and Co-Founder of TCARE, a company that provides a CMS-approved platform aimed at reducing family caregiver burnout and delaying nursing home placement through predictive analytics. TCARE has formed significant partnerships with companies such as Aflac, BlueCross BlueShield, Microsoft, Unum, Anthem, Cigna, and UnitedHealthcare.

Support the Show.

Confessions of a Reluctant Caregiver

Sisterhood of Care, LLC

Website: www.confessionsofareluctantcaregiver.com

Like us on Facebook!

Tweet with us on Twitter!

Watch us on Youtube!

Pin us on Pinterest!

Link us on LinkedIn!

Tune in on Whole Care Network

Darrin Bowser and the World of Whiskey Distilling

Mon, 29 Apr 2024 12:35:04 +0000

Embark on a journey beyond the military with Donna and Jay as they dip into the world of whiskey distilling with Army Logistics Colonel Darren Bowser. In this episode of Beyond the Frontline, Darren shares his extraordinary transition from a 37-year military career to mastering the art of whiskey making. Discover how he leveraged his military skills in logistics to navigate the intricate processes of distilling, from grain to barrel, and the unexpected paths that led him to become a part of Tennessee's rich whiskey heritage.

Darren's story is a testament to the boundless opportunities awaiting Veterans beyond service, proving that with determination and adaptability, one can turn a passion into a new vocation. Get inspired by his foresight, meticulous planning, and the pursuit of happiness in retirement, which he affectionately dubs his transition to "Colonel Grandpa."

Tune into our CHW Streaming Radio and the full lineup at cominghomewell.com Download on Apple Play and Google Play

Online-Therapy.com ~ Life Changing Therapy Click here for a 20% discount on your first month.

Jay’s Links Website: https://j2servantleadership.com/ Book: Breaking Average (2020)

Thank you for listening! Be sure to SHARE, LIKE and leave us a REVIEW!

Mystery Gardens & When it's Time for Senior Living with Ron Braun

Mon, 29 Apr 2024 12:34:37 +0000

When is it time for senior living.... and what the heck is a mystery garden???

Find Care Equipment solutions at AskSAMIE

Find Caregiver Training at Higher Standards Caregiver Training

Find Ron at Find Ron at https://carepatrol.com/kcmo/

https://www.carelabpodcast.com/

CINDY 'N CHRISTINA HARDIN WEISS: Adaptive Equipment Gurus Making Caregiving Safe and Sound

Mon, 29 Apr 2024 12:34:22 +0000

Don Priess and I were so excited to talk to Christina ‘n Cindy Hardin-Weiss WEISS (https://adaptiveequipmentcorner.com), the founders of Adaptive Equipment and Caregiving Corner, IMHO - THE best place to go for educational and instructional videos and home medical equipment product reviews for professional caregivers, families caring for a loved one, and older adults who want to age in place.

We are such HUGE fans of these ladies. Cindy and Christina bring years of expert knowledge and hands on experience to their educational videos and adaptive equipment reviews. If they endorse it - you know it's good! They literally put each and every product to the test! Even adult diapers! Come on! They are the real deal! They are the Ralph Nader for Caregivers.

Cindy Hardin-Weiss is a Physical Therapist and has spent the majority of her career in home healthcare. Her passion is to assist people in maintaining their independence, especially when it makes a difference in their ability to remain in their homes.

Christina Hardin-Weiss is a Speech/Language/Dysphagia Therapist. She has spent most of her career treating patients in skilled nursing facilities. She enjoys working with individuals who have dementia and their families, as well as those that have difficulty eating, chewing, and swallowing due to illness or disease.

Their mission is to help you maintain yours or your loved one's dignity and independence while remaining safely in the comfort and familiarity of your home. It is a noble cause indeed and we can’t wait for you tto get to know Cindy and Christina Hardin-Weiss.

Please listen on your favorite platform (https://linktr.ee/LCALZ) and/or watch us on our YouTube Channel (https://www.youtube.com/channel/UCRgcPBktXGd5ubfJf4xmJRA).

And share, share, share!

Cracking the Code of Burnout Prevention with Annika Egglestone

Mon, 29 Apr 2024 12:33:42 +0000

Want a cheat code to get out of burn out OR keep it from happening in the first place? This is your episode.

Annika Egglestone is a burnout prevention coach and international speaker.

She has been an entrepreneur for over 10 years and was forced to shut down her business due to burnout in 2019.

After a 2-year recovery journey, she now teaches workshops worldwide and is passionate about helping busy people find time and energy to create joy.

While Annika isn't a caregiver, she works with entrepreneurs. Aren't we caregivers practically running our own cottage industries?!

This episode was heart-warming, eye-opening, and a lot of fun!

You will love Annika AND her code-cracking insights about BURNOUT!

Download Annika's 5-Day Burnout Rescue Guide.

Grab your FREE 15-minute Self-Care Assessment Call with me!

Elizabeth Miller Provides Practical Tips for Remote Caregivers

Mon, 29 Apr 2024 12:33:18 +0000

As a caregiver her entire adult life, Elizabeth Miller has learned how to find the joy in the caregiving life. As a Certified Caregiving Consultant, she helps other caregivers make the best of their own experience. Elizabeth joined forces with her siblings to provide support for their parents, and for her developmentally delayed brother. Each sibling brought his or her own skill set and strength to the care. Elizabeth played the role of primary caregiver, sandwich caregiver (caring for parents and children simultaneously), and remote caregiver (providing support from a distance).

After the death of her father, Elizabeth and her siblings moved their mom and brother Tom closer to where she lived. She describes the impact of that caregiving as stressful, overwhelming, isolating. It affected her mental and physical health in negative ways. Elizabeth learned how to care for herself and set boundaries to maintain her health while she cared for the health of her family and her mom.

If you’re needing support and guidance as a caregiver, Elizabeth Miller can help. Her company, Happy Healthy Caregiver, can help you become happier and healthier.

Connect with Elizabeth’s Certified Caregiving Consultant Services at happyhealthycaregiver.com

Check out the Happy Healthy Caregiver podcast for support and caregiving resources.

Book Elizabeth Miller to speak at your next conference or event.

Connect with Happy Healthy Caregiver on social media: Facebook Twitter Insta LI YouTube

Register for the Tree of Life Conference from the International Doula Life Movement here.

Want to know more about doulas, or connect with others who are doing death doula work? Visit internationaldoulalifemovement.com.

If you’re interested in becoming a certified death doula through IDLM, click here.

Access all the courses that IDLM provides here.

See all the events that IDLM is offering by clicking here.

Connect with IDLM on social media. Facebook IG YouTube

If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Define your mood through your actions

Mon, 29 Apr 2024 12:32:57 +0000

Suzi invites listeners to a candid exploration of moods and their transient grip on our lives. With a vibrant blend of personal anecdotes, psychological insights, and a touch of theatrical wisdom, Suzi challenges the notion that our moods should dictate our actions.

Suzi's call to action is clear: rise above fleeting thoughts and feelings and choose actions that shape a life of intent and purpose. Whether you're waking up to a new day or facing unexpected hurdles, this episode is a compelling reminder that you have the power to define your mood through your actions.

Music credit to Kalvin Love for the podcast’s theme song “Bee Your Best Self”

Tune into our CHW Streaming Radio and the full lineup at cominghomewell.com Download on Apple Play and Google Play

Online-Therapy.com ~ Life Changing Therapy Click here for a 20% discount on your first month.

Contact Suzi at suzigma@gmail.com or (818) 470-2013 and share your story. suzilandolphi.com vetsandplayers.org wildhorserescue.org

Thank you for listening! Be sure to SHARE, LIKE and leave us a REVIEW!

AgingGayfully™ Not Acting Our Age, The My Green Folder Movie Project

Mon, 29 Apr 2024 12:32:40 +0000

Chris and Josh explore the phrase "Act your age", discuss Chris' film project "My Green Folder" and answer the question: "What are the next three places you would like to travel?"

A gay senior, Christopher MacLellan, and an ally, Josh Wilson, podcasting about life, love, liberty and travel. Don't Say Gay?... Say AgingGayfully™!

Subscribe NOW, where you listen to your favorite podcast.

Learn more at AgingGayfully™.

Straight to the Point - VA Home Loan for Veterans

Mon, 29 Apr 2024 12:30:31 +0000

Tyler and Paul talk about the Home Loan Guarantee with the VA with no money down and no private mortgage insurance. Get your pad of paper and pen ready so you can get your ducks in a row to purchase your own home.

Call 877 827 3702 to learn more.

Support the Show.

Tune into our CHW Streaming Radio and the full lineup at cominghomewell.com Download on Apple Play and Google Play

Online-Therapy.com ~ Life Changing Therapy Click here for a 20% discount on your first month.

Thank you for listening! Be sure to SHARE, LIKE and leave us a REVIEW!

Grounded Illumination with Felice DiMartino

Mon, 29 Apr 2024 12:30:11 +0000

Jodi sits down with Felice about the moment that changed her life forever and how she continues to honor her body, mind and spirit.

Books:

Life With a Traumatic Brain Injury by Amy Zellmer

Proof of Heaven--A Neurosurgeon's Journey Into the Afterlife by Eben Alexander, M.D.

The future of aged care in Canada: a conversation about the film 'Stolen Time'

Mon, 29 Apr 2024 12:29:41 +0000

Meeka Marsolais & Katrina Prescott delve deep into the heart of the groundbreaking documentary, 'Stolen Time' with its visionary director, Helene Klodawksy, and UBC Assistant Professor, Dr. Julia Henderson. 'Stolen Time' exposes the stark realities faced by vulnerable individuals under the care of powerful corporations driven by profit margins. As aging populations worldwide amplify the urgency for accountability, 'Stolen Time' unveils the intricate layers of a mass tort against some of the world's most influential for-profit long-term care corporations accused of neglect and exploitation. This episode offers profound insights into the making of 'Stolen Time' and confronts pressing questions surrounding aging care in Canada and the imperative for systemic change.

Manage Caregiver Grief When They Don't Remember a Death

Mon, 29 Apr 2024 12:29:09 +0000

Manage Caregiver Grief.

My Mom didn’t remember her husband had died. Since she thought I was her best friend, it was hard not to be able to share Dad memories with her. Caring for someone who doesn't remember the death of a loved one presents unique emotional and practical challenges. The caregiver must navigate the delicate balance between honesty and protecting their loved one from the pain of loss repeatedly. Witnessing their confusion and distress can be emotionally draining. It's essential to offer reassurance and comfort while maintaining their dignity and sense of autonomy.

Potential solutions include redirecting conversations away from the topic of the deceased, engaging in activities that bring joy and distraction, and creating a supportive environment with familiar routines. Seeking support from healthcare professionals, support groups, and family members can also provide much-needed emotional support for both the caregiver and their loved one. Additionally, practicing self-care and acknowledging one's own grief is crucial in maintaining resilience while providing care in such challenging circumstances.

Our Guest

Carlos Olivas is caring for his Dad, Carlos Olivas, Jr. aka Charlie Robot. Carlos got this name from a family friend who was impressed by his tireless and achieving efforts. "Charlie" has been on a creative journey his entire life.

While managing the struggles of day-to-day dementia care, Carlos has to manage the emotions present since the death of his brother. Dad doesn't remember his other son is gone, making the emotional juggling act harder.

Interview with Elizabeth Miller

Mon, 29 Apr 2024 11:33:09 +0000

On today's podcast, I have the pleasure of interviewing Elizabeth Miller. She will generously share her personal journey as a caregiver, discussing the importance of self-care across eight key categories. Elizabeth will also provide valuable tips that have personally helped her along the way. Join us as we gain insights from Elizabeth's experiences and learn practical self-care strategies for caregivers.

You can reach Elizabeth Miller at:

https://happyhealthycaregiver.com/

Book your space with me at this link: https://calendar.google.com/calendar/u/0/appointments/schedules/AcZssZ0fqsZwD15-7qxxZK6YsLkkAePeswcfJj4ILEwXndYYAVDwHysGYxJhuDZhLSAZnbvKWGh-Nt7X

You can also find us on:

https://www.instagram.com/tumcoeur?igsh=aHF3dWJhN3k3MzQ2

https://web.facebook.com/tumcoeur?_rdc=1&_rdr

Gail Rubin "The Doyenne of Death" Shares Practical Tips for Creating an Advance Care Plan

Mon, 29 Apr 2024 11:32:44 +0000

Gail Rubin, The Doyenne of Death, has been talking about death and dying for years - and she’s still alive. As an award-winning death speaker, Gail uses humor and film clips to educate the public about advance care planning, funeral pre-planning, and estate planning. She’s a Certified Thanatologist and a featured speaker at TEDxABQ, where she spoke on “A Good Goodbye”.

Gail is the author of four books on end-of-life, including A Good Goodbye: Funeral Planning for Those Who Don’t Plan to Die. She also designed the Newly-Dead Game, a thought-provoking way to help start funeral planning conversations in a fun, non-threatening way.

You can connect with Gail Rubin at AGoodGoodbye.com.

Watch Gail’s TEDx ABQ talk on YouTube.

Want to watch people play the Newly-Dead Game? Click here.

Find out how you can host a Before I Die Festival in your hometown at beforeidiefestivals.com.

Register for the Tree of Life Conference from the International Doula Life Movement here.

Want to know more about doulas, or connect with others who are doing death doula work? Visit internationaldoulalifemovement.com.

If you’re interested in becoming a certified death doula through IDLM, click here.

Access all the courses that IDLM provides here.

See all the events that IDLM is offering by clicking here.

Connect with IDLM on social media. Facebook IG YouTube

If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Burst Pipes + Fall Prevention

Mon, 29 Apr 2024 10:18:02 +0000

Subfreezing plumbing problems and fall prevention tips for the kitchen! #carelabit #carelab

Find Care Equipment solutions at AskSAMIE

Find Caregiver Training at Higher Standards Caregiver Training

https://www.carelabpodcast.com/

Marriage and Caregiving (with special guests Kristin Faith & Todd Evans)

Mon, 29 Apr 2024 10:17:48 +0000

In this episode, Sarah and Jeremy interview Kristin Faith and Todd Evans from Disability Parenting to discuss their book How to Build a Thriving Marriage as You Care for Children with Disabilities. They also share advice for couples raising children with disabilities.

You can learn more about Kristin and Todd at: Giving Parents of Children with Chronic Illnesses & Disabilities the Keys to Thrive - Disability Parenting

You can find more of us at:

Stelmach Brown Media llc

And use the special promo code: AMBASSADORMLTV11

We are also affiliated with Carewell. Use this code and you can receive 30% off first order

Care Products | 24/7 Service | 30% OFF 1st Autoship - Carewell

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Please like share and subscribe to our podcast, also if you enjoy our content and to provide us with additional support, you can tip us here https://ko-fi.com/caregiverchroniclespodcast

Or here: https://www.buymeacoffee.com/caregivercg

Caregiving and Your Nervous System. What You Need to Know with Erin Antroinen of Next Gen Caregivers

Mon, 29 Apr 2024 10:17:39 +0000

Caregiver burnout is real, but it is also elusive. So many strategies are only temporary fixes for an ongoing problem.

In this interview with Erin Antroinen, we break down the root cause of our burnout and how to tap into our inner ability to regulate our nervous system. While we cannot always change our circumstances, we can change our body's response to our circumstances.

Hear Erin's unique caregiving journey.

How she experienced burnout and recovered from it.

Learn how your nervous system communicates with you so that you can understand the signs of burnout before you are completely depleted.

To learn more about Erin and her work with Next Gen Caregivers, click here.

To download the Hit Pause and Press On Guided Meditation Series, click here.

Dogs vs. Cats + Being an Advocate with Christopher MacLellan

Mon, 29 Apr 2024 09:51:54 +0000

Have a laugh with Brandy, Emilia, and Christopher MacLellan while they talk animals and advocacy! #carelabit #carelab

Find Care Equipment solutions at AskSAMIE

Find Caregiver Training at Higher Standards Caregiver Training

Find More Resources at Whole Care Network

https://www.carelabpodcast.com/

Spice Up Your Life

Mon, 29 Apr 2024 09:16:47 +0000

In today's podcast, I'll discuss the intriguing parallels between a Mexican restaurant, where you can choose from various salsas to spice up your plate, and real-life decision-making. We'll explore how, even amidst struggles with a caregiver situation, you have the power to make choices about how to live each moment of your life. Join me as we draw inspiration from the flavors of life and the freedom to shape our own paths, even in challenging times.

Book your space with me at this link: https://calendar.google.com/calendar/u/0/appointments/schedules/AcZssZ0fqsZwD15-7qxxZK6YsLkkAePeswcfJj4ILEwXndYYAVDwHysGYxJhuDZhLSAZnbvKWGh-Nt7X

You can also find us on:

https://www.instagram.com/tumcoeur?igsh=aHF3dWJhN3k3MzQ2

https://web.facebook.com/tumcoeur?_rdc=1&_rdr

Preventing Dementia with Dr Mitchell Clionsky

Thu, 11 Apr 2024 13:00:15 +0000

Dementia. While we know it’s a progressive, neurodevelopmental condition with over 200 types, there are still many questions of why and how it occurs.

My guest, Mitchell Clionsky, PhD is a board-certified clinical neuropsychologist with 45 years of experience evaluating and treating patients with cognitive impairment, dementia, ADHD, and traumatic brain injury.

Dr Clionsky, along with his wife and partner Dr Emily Clionsky have treated more than 25,000 patients with cognitive impairment.

They have taken their experience and research and combined it with the most current scientific findings about to create their new book, Dementia Prevention, Using your head to save your brain a practical guide that empowers you to improve your brain's future.

We cover a lot of topics today - our genes, common health issues, sleep, hearing, our habits, and the lifestyle changes we can make to support ourselves.

SHOW NOTES

BRAINDOC.COM

The Ultimate Value of Precious Time Described by Jennifer O'Brien

Thu, 11 Apr 2024 03:19:32 +0000

Jennifer O’Brien is sharing details of her caregiving journey, telling the story of her husband’s life-limiting illness and how she’s learned to make the most of Precious Time. After working 35+ years as a practice management consultant to physicians, Jennifer supported her husband Bob up to and through the end of his life. As a hospice and palliative care physician, Bob knew what to expect from his illness. He and Jennifer experienced all the ups and downs of serious illness and caregiving for someone who’s dying. The art journal she kept as a form of self-care during Bob’s 22-month illness was published as The Hospice Doctor's Widow: A Journal. The book has won several awards for both its content and design.

Jennifer shares her story, wisdom, and experience to help others understand the role of family caregivers and the importance of end-of-life preparations. The concept of Precious Time is a way of communicating gently and respectfully that time is limited, and death is approaching. She also sees it as a way for healthcare practitioners to avoid creating unrealistic hope in the minds of families, patients, and caregivers.

You can get a copy of Jennifer’s FREE Download Precious Time at https://www.hospicedrswidow.com/resources.

Order your copy of The Hospice Doctor’s Widow: A Journal:

Bookshop.org Barnes & Noble Amazon

Jennifer’s website: hospicedrswidow.com Jennifer on social media: Facebook Insta LI YouTube

Want to know more about doulas, or connect with others who are doing death doula work? Visit internationaldoulalifemovement.com.

If you’re interested in becoming a certified death doula through IDLM, click here.

Access all the courses that IDLM provides here.

See all the events that IDLM is offering by clicking here.

Connect with IDLM on social media. Facebook IG YouTube

If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.

Book podcast host Helen Bauer to speak at your event or conference by emailing helen@theheartofhospice.com.

Evolution of Military Psychiatry

Thu, 11 Apr 2024 03:19:18 +0000

Join Dr. Mark Russell and Dr. Charles Figley as they navigate the complex history of military mental health, uncovering the silent suffering behind the heroism. Their conversation takes a critical look at the evolution of military psychiatry, from the days of the Civil War to our contemporary conflicts, and the often-overlooked psychological traumas that accompany them.

Mark and Charles will bring these crucial conversations to the forefront, honoring the full spectrum of sacrifice made by our military personnel.

Table of Contents for Discussion

Have questions, thoughts or suggestions on topics? Email Mark at mrussellphd@gmail.com

Tune into our CHW Streaming Radio and the full lineup at cominghomewell.com Download on Apple Play and Google Play

Online-Therapy.com ~ Life Changing Therapy Click here for a 20% discount on your first month.

Thank you for listening! Be sure to SHARE, LIKE and leave us a REVIEW!

Hope for Caregivers with Peter Rosenberger - Caregiver Spotlight

Thu, 11 Apr 2024 03:19:09 +0000

Meet Peter Rosenberger who has been a family caregiver for over 38 years for a spouse with severe disabilities. Peter is fluent in the language of caregiver and has navigated a medical nightmare that has mushroomed to 85+ major operations—including the amputation of both of his wife Gracie’s legs below the knee.

In this episode, Peter recounts his experience attempting to admit himself to a mental hospital, discusses why caregiving shouldn't hinder us from embracing life, shares his strategies for finding moments of stillness and pursuing energizing hobbies, and outlines the ways he spreads hope among caregivers.

Show notes with product and resource links:

https://bit.ly/HHCPod179

Receive the podcast in your email here:

http://bit.ly/2G4qvBv

Order a copy of Elizabeth's book Just for You: a Daily Self Care Journal:

http://bit.ly/HHCjournal

For podcast sponsorship opportunities contact Elizabeth:

https://happyhealthycaregiver.com/contact-us/

The Happy Healthy Caregiver podcast is part of the Whole Care Network. Rate and Review the podcast:

https://bit.ly/HHCPODREVIEW

What are we YELLING about?

Thu, 11 Apr 2024 03:18:58 +0000

Did you now yelling hurts you physically, emotionally, intellectually and spirtiually?

Explore into the power of words and the impact of your voice. Suzi's personal journey from silence to shouting, as she candidly shares her transformation from a childhood overshadowed by fear and intimidation to an adulthood where yelling became a reflex in relationships. Suzy's story is a testament to the deep-seated effects of familial trauma, the cycle of yelling and name-calling, and the courage to find one's voice in a healthier, more constructive manner.

Suzi's invitation to embrace silence over shouting, compassion over condemnation, and self-love over self-destruction is a powerful call to action for us all.

Music credit to Kalvin Love for the podcast’s theme song “Bee Your Best Self”

Tune into our CHW Streaming Radio and the full lineup at cominghomewell.com Download on Apple Play and Google Play

Online-Therapy.com ~ Life Changing Therapy Click here for a 20% discount on your first month.

Contact Suzi at suzigma@gmail.com or (818) 470-2013 and share your story. suzilandolphi.com vetsandplayers.org wildhorserescue.org

Thank you for listening! Be sure to SHARE, LIKE and leave us a REVIEW!

Chris MacLellan - Validation, Resources & Respite for Caregivers

Thu, 11 Apr 2024 03:18:39 +0000

In this heartfelt episode of Bullets 2 Bedpans, Dee Tox is joined by special guest, Chris MacLellan. Chris, a seasoned caregiver and advocate, as he shares his insights on the complexities of navigating the healthcare system, the emotional rollercoaster of caring for a loved one, and the importance of building a strong relationship with medical professionals. From his days in pastoral education to his intimate experience caring for his partner Richard, Chris imparts wisdom that transcends the clinical aspects of care, touching on the human elements of love, commitment, and the indelible impact of asking "why?". This conversation is a must-listen for anyone in the caregiving field, whether professional or personal, as it underscores the critical role of advocacy, the power of story-sharing, and the necessity of setting a daily intention for self-care.

Join us for an episode that not only honors those on the front lines of care but also provides a sanctuary for those who seek solace and understanding in their caregiving roles.

Nurses and Medics: This is your platform! We want to hear your stories of the good, the bad and the ugly. Send us an email at cominghomewell@gmail.com

Do you know a health worker that needs a laugh? B2B N.F.L.T.G. Certificate click here

Get the ammo you need to seize your day at Soldier Girl Coffee Use Code CHW10 for a 10% off at checkout!

Special Thanks to Artwork: Joe Weber @joeweber_tattoos

Intro/Outro/Disclaimer Credits: Pam Barragan Host of 2200TAPS Podcast "Racer" by Infraction https://bit.ly/41HlWTk Music promoted by Inaudio: ...

Dementia Travel Experiences Memories

Thu, 11 Apr 2024 02:54:16 +0000

Embarking on journeys with a loved one living with dementia isn't just about moving from one place to another; it's about weaving a tapestry of unforgettable moments. Despite the hurdles, travel becomes a beacon of joy, a sanctuary from the mundane. Exploring new horizons becomes a catalyst, lighting up forgotten corners of the mind and kindling sparks of connection. Together, these shared adventures become lifelines, knitting hearts closer and dispelling the shadows of isolation. In the embrace of unfamiliar landscapes, there's a magical alchemy at play - where every smile, every whispered conversation, becomes a cherished gem in the mosaic of memories. Through travel, we defy the boundaries of circumstance, crafting experiences that transcend time, leaving an indelible mark on the journey of caregiving.

About Our Guest

Lizette Cloete, an Occupational Therapist and a daughter on this unique journey with you. She has just returned from an Elite Cruises & Vacation where she was part of the support staff for caregivers. With over 30 years as an Occupational Therapist, Lizette has been the “navigator” in many caregiving journeys, guiding 1000’s families through their often turbulent journey into calmer skies while dementia caregiving. Today she's telling you how to make vacation memories a reality.

Sam Timbrook Helping Caregivers Heal

Thu, 11 Apr 2024 01:54:22 +0000

Having served as a Pastor and public school special educator, my life changed when I became a caregiver for his wife and child.

Despite holding a Master's degree in counseling and a doctor of ministry, Sam was unprepared for this life-changing responsibility.

Now, as a Board Certified Master Mental Health Life Coach, Sam has created a 501(c3) program focusing on caregivers and grief.

Listen in and learn how Sam is creating Healing Ties all around us!

To learn more about SamTimbrook's non-profit, visit Sam Timbrook

A Spiritual Journey Sharing Forgiveness and Possibilities to Inspire the Rest of Your Life

Thu, 11 Apr 2024 01:41:01 +0000

This interview changed my life. I am still in awe of my encounter with Kathleen Donnelly Israel, a caregiver, spiritual seeker, healer, and pilgrim on the Camino Santiago.

Her caregiving journey led her to her deep study, knowledge of spiritual healing practices, and her quest to walk the Camino, sharing her story and holding space for others to share theirs.

My time speaking with her was enlightening, encouraging, and healing and I know it will be for you too!

If you are uncertain of who you are outside of caregiving or wondering what life beyond caregiving could be (and perhaps feel guilty about thinking of that), I invite you to listen to this interview with Kathleen.

And then buy her book Wisdom on the Camino; I am reading it now, and it is like walking with her!

For more about living your life beyond caregiving without feeling guilty AND still giving compassionate care to your loved one, head to The Self-Caregiver:

Website

Instagram

Supporting YOUR Brain Health!

Thu, 11 Apr 2024 01:03:13 +0000

In this episode, Emilia and Brandy talk about sleep struggles of motherhood, then go on to discuss how people caring for others can support their own continued brain health. #carelab @CareLabPodcast

Find Care Equipment solutions at AskSAMIE

Find Caregiver Training at Higher Standards Caregiver Training

https://www.carelabpodcast.com/

Prescription for Admission (with special guest Dr. Monique Nugent)

Thu, 11 Apr 2024 00:54:59 +0000

In this episode, Sarah interview author Dr. Monique Nugent. The pair discuss her work as a doctor in a hospital setting along with her book about all the things you need to know during hospital stays.

You can find more of Dr. Nugent and her book at:

Dr. Monique Nugent - Author of Prescription for Admission (drmoniquenugent.com)

You can find more of us at:

Stelmach Brown Media llc

And use the special promo code: AMBASSADORMLTV11

We are also affiliated with Carewell. Use this code and you can receive 30% off first order

Care Products | 24/7 Service | 30% OFF 1st Autoship - Carewell

Check out our sponsor http://www.favor-ct.org/

Please like share and subscribe to our podcast, also if you enjoy our content and to provide us with additional support, you can tip us here https://ko-fi.com/caregiverchroniclespodcast

Or here: https://www.buymeacoffee.com/caregivercg

This Is Good News!

Thu, 11 Apr 2024 00:44:49 +0000

Imagine a world where anything is possible. It's a captivating thought, isn't it? Now, more than ever, we live in a time of unprecedented innovation, progress, and limitless potential. This is precisely what the podcast "This is good news" explores, and it's why you won't want to miss out on the inspiring stories and insights it has to offer.

In a world where anything is possible, this podcast serves as a beacon of hope, inspiration, and motivation. So, why not join the journey of discovery? Tune in to "This is good news" and explore a world where the extraordinary is becoming the new norm. It's not just good news—it's a roadmap to a future limited only by our imaginations.

For more information on Susan Hyatt, find her at Susan

Hyatt, Master Certified Life & Business Coach

Book your space with me at this link: https://calendar.google.com/calendar/u/0/appointments/schedules/AcZssZ0fqsZwD15-7qxxZK6YsLkkAePeswcfJj4ILEwXndYYAVDwHysGYxJhuDZhLSAZnbvKWGh-Nt7X

You can also find us on:

https://www.instagram.com/tumcoeur?igsh=aHF3dWJhN3k3MzQ2

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How to Provide LGBTQ Inclusive Care From Kimberly Acquaviva

Thu, 04 Apr 2024 05:03:05 +0000

The story of the terminal illness and death of Kimberly Acquaviva’s wife Kathy is powerful, intense, real… and human. As a hospice social worker and LGBTQ+ community advocate, Kim knows what good end of life care looks like. During their experience with Kathy’s end stage cervical cancer, the women discovered that none of the hospice agencies where they lived had LGBTQ - inclusive non-discrimination statements. Both Kathy and Kim were determined not to settle for anything less than the best care. They made the decision not to use hospice.

In this interview, Kimberly shares the details of their experience, including their communication style, how they connected with friends and family on social media, and the way they made decisions that affected their 19-year old son. Kimberly and Kathy shaped Kathy’s end of life experience in their own way. Quality of life for them meant autonomy, advocacy, and allowing their journey to create change in the hospice industry. They were teachers for the hospice industry, causing a ripple effect of change that expanded awareness of what inclusive care looks like.

Kimberly chronicled the story of Kathy’s illness and death in her book The Handbook of LGBTQIA-Inclusive Hospice and Palliative Care (October 2023). You can order your copy here.

Connect with Kimberly Acquaviva at kimberly-acquaviva.com

Find Kimberly on LinkedIn and X (Twitter).

Order your copies of The Care Plan from Odonata here. It’s available in English and Spanish!

Check out the free video tutorials from Nancy Heyerman and Brenda Kizzire here.

Want to know more about doulas, or connect with others who are doing death doula work? Visit internationaldoulalifemovement.com.

If you’re interested in becoming a certified death doula through IDLM, click here.

Access all the courses that IDLM provides here.

See all the events that IDLM is offering by clicking here.

Connect with IDLM on social media. Facebook IG YouTube

If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Follow The Heart of Hospice: Facebook, IG Twitter (X) LinkedIn.

Doc Joe McDaniel - Emergency Medicine

Thu, 04 Apr 2024 05:02:57 +0000

Doc Mac...the myth, the man, the legend. Husband, Dad, 37-year Veteran spanning Coast Guard, Navy, Air Force, rescue swimmer, avionics, search and rescue, and Emergency Medicine guru for 20+years...and still going strong. He loves to learn, loves to teach, and hates bureaucracy and bullshit. His entire career has been one transition after another, and is also what keeps his life interesting.

Dee Tox and MZ were able to nail him down and talk about his unconventional journey to becoming a physician, his thoughts on nurses, the struggles he saw and dealt with during COVID, when he is the calmest, getting kicked out of training, life after the military, and what makes medicine most enjoyable. Listen to the end to hear a few of his more interesting ER escapades.

Nurses and Medics: This is your platform! We want to hear your stories of the good, the bad and the ugly. Send us an email at cominghomewell@gmail.com

Do you know a health worker that needs a laugh? B2B N.F.L.T.G. Certificate click here

Get the ammo you need to seize your day at Soldier Girl Coffee Use Code CHW10 for a 10% off at checkout!

Special Thanks to Artwork: Joe Weber @joeweber_tattoos

Intro/Outro/Disclaimer Credits: Pam Barragan Host of 2200TAPS Podcast "Racer" by Infraction https://bit.ly/41HlWTk Music promoted by Inaudio: ...

Tom Rempfer - Unyielding and Hoping4Justice

Thu, 04 Apr 2024 05:00:23 +0000

We are catching up with a previous guest, ret. Col. Tom Rempfer as we continue the conversation about finding justice for those who have served. Tom uses his organization Hoping4Justice.org to request Vaccine Mandate Record Corrections by the POTUS.

To learn more:

Thesis award from the Naval Postgraduate School... https://www.chds.us/ed/anthrax-vaccine-a-dilemma-for-homeland-security/

Whistleblower talk for the Naval Postgraduate School... https://www.chds.us/ed/alumni-short-talks-whistle-blowing-an-unyielding-duty/

Support the show Tune into our CHW Streaming Radio and the full lineup at cominghomewell.com Download on Apple Play and Google Play

Online-Therapy.com ~ Life Changing Therapy Click here for a 20% discount on your first month.

Thank you for listening! Be sure to SHARE, LIKE and leave us a REVIEW!

Nurse and Author Theresa Brown

Thu, 04 Apr 2024 04:50:06 +0000

This episode features our interview with New York Times columnist and best selling author Theresa Brown. Theresa is a nurse, writer and advocate. We chat about how she became a writer and clinician, how her experience as a patient changed her clinical work and what the future holds for her.

To learn more about Theresa and to purchase her new book, visit: https://www.theresabrownrn.com/

Visit our website, join our mailing list and follow us on social media to learn more about the Waiting Room Revolution: https://waitingroomrevolution.com

Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0

JENNY ABELING: Introducing Kids to Long Term Care

Thu, 04 Apr 2024 04:27:09 +0000

Advocate. Leader. Caregiver. Jenny Abeling is dedicated to helping those in need, through the complexities of long-term care. Currently she is the Governor’s Commissioner on Senior Services, working tirelessly to raise up senior related needs across the State of Oregon.

Formerly the Essential Worker Healthcare Trust Director, Jenny led a first in the nation approach to lift Long -Term Care workers by supporting their health and wellness.

Now she has launched JennyAbeling.com, where she provides personalized support to individuals, families and Long -Term Care workers, helping to navigate their care needs.

Featured on CNN, Jenny shares her knowledge and experience through media, podcasts, speaking engagements, and events to harmonize empathy with her unique expertise.

Jenny was recently honored by the Gray Panthers as a recipient of the coveted Above and Beyond Award honoring Long-term Care Workers.

No Jenny has branched out as an author with A Kids Book About Long-Term Care, titled A Kids Book About Long-Term Care. She truly is a bright light in the world of caregiving and we were thrilled to have the opportunity to talk to her!

Support the show JOIN THE MOVEMENT FOR NURSING HOME REFORM BY SUPPORTING THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND ME Follow us on Twitter, FB, IG, & TiK Tok

Caregiving Confessions: Emotional Rollercoasters, Miracles, and Moving Mountains

Thu, 04 Apr 2024 04:14:35 +0000

Todd Keitz shares his journey as a caregiver for his parents. After noticing she looked worse each week on video calls, he organized doctor's appointments and flew to Florida to accompany his mother to visits. He advocated strongly for her medical care, successfully transferring her to a better facility. Todd took over his parents' healthcare decisions and was their main advocate during his mother's 17 hospitalizations over 22 months. He also helped his father make difficult decisions about cancer treatment when he was diagnosed a few months later.

Todd discusses the emotional toll of caregiving. He experienced PTSD from constant cancer testing and waiting for results. Todd shares how he regained some control in his life after caregiving by writing about his journey and starting a podcast. He hopes to help other caregivers by sharing resources and stories. Todd emphasizes the importance of maintaining a positive mindset while caregiving and finding one's voice when advocating for patients with medical professionals.

About Todd:

Todd Kietz is a passionate advocate for social good with a history of integrating community engagement and social impact into his life, starting from his teenage years volunteering in senior living centers. His commitment to social change has led him to create inter-generational programs, volunteer for Special Olympics, develop business curriculum for high schools, teach for Junior Achievement, mentor for Big Brothers Big Sisters, and consult in the healthcare industry. He also worked with the South Korean government on technology company consultancy in the 2000s.

In 2012, Todd co-founded Stock4Good, aiming to simplify stock donations to 501(c)3 organizations. In 2018, he moved to Florida to care for his parents, facing life-threatening diseases, an experience that inspired him to start My Care Friends, a platform supporting caregivers and patient advocates. Additionally, Todd contributes to the caregiving community as a member of the National Advisory Council of the American Association of Caregiving Youth and serves on the board of SayAh!, focusing on health literacy. He is also the Founder/CEO of 17 Commerce, bridging healthcare and technology through exceptional products.

Todd holds a degree from Temple University, where he studied Business and Economics.

Connect with Todd:

Website: www.mycarefriends.com & www.17commerce.com Twitter/X: @toddkeitz @mycarefriends @1day1weekblog @17commercellc Instagram: mycarefrien

Support the show Confessions of a Reluctant Caregiver

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Essential Caregiving Knowledge Zen From Zero

Thu, 04 Apr 2024 04:13:05 +0000

Essential Caregiver Knowledge = Zen From Zero

Navigating the relentless journey of caregiving, fraught with challenges that threaten to overwhelm, requires comprehensive knowledge. Each decision feels like a weight, each responsibility a burden too heavy to bear alone. But amidst the chaos, this week's guest offers solace and sanctuary. Alex brings a wealth of insights, understanding legal complexities, financial burdens, and medical care intricacies like no other. This knowledge was gained from caring for one parent, then the other. What she learned from caring for her Dad, she used to maintain her sanity while caring for her Mom.

With her guidance, you'll find the strength to confront challenges. Legal understanding becomes a shield against uncertainty, financial literacy empowers against scarcity, and medical awareness ensures proper care. Investing in caregiver knowledge is a lifeline, promising to lift burdens and breathe new life into weary souls. So heed their wisdom, for it holds the promise of peace, security, and the comfort of knowing you're not alone in this journey.

About Our Guest - Alexandra Free Having spent twenty years working in live television I had become a pro at putting out fires when they popped up. No matter how much you may have rehearsed for a show, when the cameras start rolling, you just never know what can happen. Your brain learns to problem solve at warp speed, so that if a situation does arise, you’re usually ready for it. Although, no amount of prepping could have prepared me for what laid ahead with my mother, I knew I needed a plan. A plan on how I was going to care for her. A plan on how I was going to afford that care. And a plan on how to navigate this new and final chapter of our lives. So, I packed up my life and my TV career in Los Angeles and moved back to the east coast to be closer to her, and to the rest of my family.

Through trial and error and a lot of research, I managed to navigate the next decade of my mother’s care with fortitude and grace. Avoiding being crushed both financially and mentally by the situation, and actually becoming a better and stronger person because of it.

I truly wish you didn’t have to be here. I honestly wish I had never been there myself. But if everything my mother and I went through means that I can help you somehow, shape, or form, then at least it all wouldn’t have been in vain.

Person Centered Approached to Dementia Care

Thu, 04 Apr 2024 03:56:53 +0000

Judy Cornish is an author, founder of the Dementia & Alzheimer’s Wellbeing Network (DAWN®), creator of the DAWN Method® and retired elder law attorney.

Her two books (The Dementia Handbook and Dementia With Dignity) take person-centered dementia care from theory to practice by identifying the skills not lost to dementia.

Through DAWN, Judy provides counseling, private classes, and an online video program for families and home caregivers.

Judy's goal is to help families learn how to truly support their loved ones and enjoy more companionship as they live with dementia.

Listen in and learn how Judy creates Healing Ties through a person-centered approach to dementia care.

Coping with the Emotional Roller-coaster of Caregiving with Humor and Resilience

Thu, 04 Apr 2024 03:31:18 +0000

My guest, Rebecca Sugar, became the family caregiver for her ailing father, as well as her elderly family friend and childhood nanny as she neared the end of her life.

Rebecca learned how to be a family caregiver on the job, taking responsibility for her elderly father through multiple spinal cord surgeries at the age of 79. It was an emotional rollercoaster, and she hopes that her personal experience and insight with a spiritual undertone will resonate with those who can relate.

Buy Rebecca Sugar's book, Everything Is A Little Broken" HERE

Access FREE self-care resources for caregivers & learn more about The Self-Caregiver Community HERE.

Download my FREE guided meditation series for caregivers, 'HIT PAUSE & PRESS ON" HERE

Ge personal guidance & coaching in The EMPOWERED Self-Caregiver Cohort HERE

The Caregiving Podcaster: Broadcasting Resources from His Unique Vantage Point

Thu, 04 Apr 2024 03:25:13 +0000

When you’re caregiving, it can often feel like you are out there on your own without direction or resources. Sometimes, it can even feel like your healthcare providers aren’t able to meet your needs. If any of this sounds familiar, this episode will be of comfort.

Our special guest is Lance A. Slatton.

Lance A. Slatton, the founder of a prominent home care company in southeastern Michigan, brings a wealth of personal experience and professional expertise to the table. His caregiving journey, rooted in profound connections with his grandparents and later involving the care of his grandmother during her dementia and his father's health crisis, has deeply influenced his perspective on family caregiver support. Drawing from these experiences, Lance established his own home care company, driven by a commitment to improving caregiver well-being and patient care. His unique insights, stemming from real-life situations, position him as a credible and valuable resource for individuals navigating similar caregiving challenges.

Quotes:

Knowing you are not alone is crucial. Seek out others who can understand and relate to what you're going through and educate yourself. - Lance A. Slatton

If you've seen one person with dementia, you've only seen that one person. There are so many different variables and all these situations. - Lance A. Slatton

I wanted to put something out there that is talking to family caregivers. It's half book, half guide, going through the whole caregiving journey with a lot of great resources and information. - Lance A. Slatton

In this episode, you will:

Uncover effective caregiving challenges and innovative solutions for better patient care. Learn how to utilize valuable resources for dementia care to improve your loved one's quality of life. Explore practical ways to enhance family caregiver support and well-being. Understand the impact of personal caregiving experiences on professional paths and career growth. Learn about upcoming collaborations on the All Home Care Matters Podcast Hear about Lance’s forthcoming book! After the Podcast

Enriched Life Home Care Services https://www.elhcs.com/

All Home Care Matters Podcast https://allhomecarematters.com/

Lance's Book: All Home Care Matters Official Family Caregivers' Guide

Ethics of Social Media show: Social Media Episode

Unboxing Show: Unboxing Episode

About the Podcast

Thanks for listening.

We are a Whole Care Network Featured Podcast

Proud to be on The Health Podcast Network

Find us on The World Podcast Network and babyboomer.org

Want to be on the podcast? Here’s what you need to know

We've got merch! Shop our Store

The Thing You Do For Yourself

Thu, 04 Apr 2024 03:17:14 +0000

In this episode of CareLab, Brandy, Emilia, and guest Maria Lindbergh of ToiletTalk talk about the concrete ways they have found to prevent burnout in their own lives, along with resources to help family caregivers create their own time for self care. #carelab @carelabpodcast

Find Care Equipment solutions at AskSAMIE

Find Caregiver Training at Higher Standards Caregiver Training

Paying for Long Term Care with Jason van den Brand - Caregiver Spotlight

Wed, 27 Mar 2024 04:00:14 +0000

Meet family caregiver Jason van den Brand, who managed end-of-life care for his grandmother and father over an eight-year span. This experience led him to start his own company, Wellahead, which helps families get matched with the best way to pay for long-term care.

In this episode, we talk about how Jason managed care from a 3,000-mile distance, how his family paid for long-term care for his family members, why millions of dollars in veterans benefits for care goes unused, why he ddidn'twait to use long-term care insurance, what to avoid when paying for care, how owning your a home provides extended term care payment options for consideration, and how his family values posted in his office inform how he celebrates his successes.

Show notes with product and resource links:

https://bit.ly/HHCPod178

Receive the podcast in your email here:

http://bit.ly/2G4qvBv

Order a copy of EElizabeth'sbook Just for You: a Daily Self Care Journal:

http://bit.ly/HHCjournal

For podcast sponsorship opportunities, contact Elizabeth:

https://happyhealthycaregiver.com/contact-us/

The Happy Healthy Caregiver podcast is part of the Whole Care Network. Rate and Review the podcast:

https://bit.ly/HHCPODREVIEW

How a State Senator Improved Hospice Care in Her Home State

Tue, 26 Mar 2024 14:13:20 +0000

Senator Meg Kappel turned her experience as a caregiver for her terminally ill mother into advocacy and now works to promote hospice care in her home state.

Meg believes a true legacy - one that lasts - is a legacy of kindness. Years of working as a special education teacher taught her the importance of seeing people and meeting them where they are. As a caregiver along with her siblings, Meg experienced all the nuances of caregiving for her mom. Her mom chose hospice care when her ovarian cancer grew beyond treatment. Meg advocated for her mother and ensured her wishes were carried out.

As a state senator, Meg has promoted improvements for hospice care in her home state of Illinois. House Bill 1117 allowed hospice programs that own or operate separate hospice residences to serve up to 24 people per location, rather than the current 20 people per location cap. Additionally, the measure expanded the number of licensed hospice locations per county from five to 16. These changes allowed increased access to hospice care for seriously ill people across the state.

Read more about Senator Meg Cappel’s work here.

Order your copies of The Care Plan here. It’s available in English and Spanish!

Check out the free video tutorials from Nancy Heyerman and Brenda Kizzire here.

Want to know more about doulas, or connect with others who are doing death doula work? Visit internationaldoulalifemovement.com.

If you’re interested in becoming a certified death doula through IDLM, click here.

Access all the courses that IDLM provides here.

See all the events that IDLM is offering by clicking here.

Connect with IDLM on social media. Facebook IG YouTube

If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Follow The Heart of Hospice: Facebook, IG Twitter (X) LinkedIn.

A War to Die For: Combat and Mental Health

Tue, 26 Mar 2024 14:13:13 +0000

Join Mark and Charles on a journey through time as they trace the roots of military medicine back to Roman legions, navigating the delicate balance between maintaining an effective fighting force and providing essential mental health support. They trace the silhouette of war’s psychological toll that unravels the changing perceptions and legal battles that have shaped how we view and treat our warriors' invisible wounds.

Table of Contents for Discussion

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Thank you for listening! Be sure to SHARE, LIKE and leave us a REVIEW!

You Can’t Make This Up: Finding Humor in Hard Times of Caregiving

Tue, 26 Mar 2024 14:13:06 +0000

This week, we're giving you all an update on our caregiving journeys—kind of like a quarterly catch-up! We chat about the hurdles of advocating for our mom's medical needs and getting her to appointments. By sharing our stories, we hope to help you learn about Medicaid benefits and the importance of speaking up. We also dive into the emotional side of caregiving, from tough moments to finding humor and healing through sharing tales.

We get real about family dynamics as our sister Emilie steps back from caregiving. We respect her decision while recognizing the changes it brings. We touch on experiences with hospice care, the financial strains on caregivers, and our push for tax credits to honor unpaid family caregivers. Throughout, we aim to uplift and connect with you by sharing our honest caregiving highs and lows.

On a personal note, Natalie opens up about her worries about her husband Jason's upcoming cancer scans. Even with palliative care, the shadow of cancer affects our marriage. In the end, this episode is all about community, self-care, and navigating the maze of caring for our loved ones.

Support the show Confessions of a Reluctant Caregiver

Sisterhood of Care, LLC

Website: www.confessionsofareluctantcaregiver.com

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Alzheimer's Fight: Still Me

Tue, 26 Mar 2024 14:12:56 +0000

Living with Alzheimer's can be challenging, but lifestyle changes play a crucial role in maintaining cognitive health. Regular physical exercise, a balanced diet rich in fruits, vegetables, and omega-3 fatty acids, staying mentally active through puzzles or learning new skills, socializing, and managing stress can all help preserve cognitive function. These changes may not stop the progression of Alzheimer's, but they can significantly improve quality of life and potentially delay symptoms.

About Our Guest

Alzheimer's is scary. But you can still find ways to be you after the diagnosis.

Rebecca Chopp never expected a routine annual checkup to uncover symptoms that ultimately revealed she has early-stage Alzheimer's disease. The news was devastating.

After recovering from the shock and grappling with the changes Alzheimer's meant for her life plans, Rebecca knew the next steps: retire from her stressful job leading the University of Denver, hold on to the core of herself for as long as possible, and find ways each day to live well so that her remaining time with her family and friends can be as rich and meaningful as possible.

This honest and hope-filled book--Still Me--chronicles Rebecca's efforts, with the help of her family, friends, and medical team, to reshape her life for a healthy and vibrant approach to living with Alzheimer's, showing that an illness does not define us. Rebecca also provides thoughtful questions, encouragement, and suggestions for those living with Alzheimer's, their caregivers, and those who fear the diagnosis.

AgingGayfully™ Traveling to London

Tue, 26 Mar 2024 14:01:30 +0000

Josh give a run down on traveling to London and Chris announces his Epcot tour!

A gay senior, Christopher MacLellan, and an ally, Josh Wilson, podcasting about life, love, liberty and travel. Don't Say Gay?... Say AgingGayfully™!

Subscribe NOW, where you listen to your favorite podcast.

Learn more at AgingGayfully™.

Familiar Wilsons Media produces content to bring people together. We are curious hopeful and try not to take ourselves too seriously - admittedly, with varying degrees of success.

Lottery City... and constipation

Tue, 26 Mar 2024 14:01:20 +0000

In this episode of CareLab, Brandy and Emilia share their lottery cities, then take a deep dive into the causes and solutions to one of humanity's oldest problems.... constipation. #CareLab @CareLabPodcast

Find Care Equipment solutions at AskSAMIE

Find Caregiver Training at Higher Standards Caregiver Training

Welcome to the CareLab

Tue, 26 Mar 2024 14:01:11 +0000

What is CareLab? Listen to this quick intro of the show and it's hosts! #carelab @carelabpodcast

When Duty Becomes Privilege: Reframing Caregiving as an Act of Love

Tue, 26 Mar 2024 14:00:13 +0000

This is a replay of our book club discussion with our friends at Aging & Amazing. "Books & Chit Chat" is a monthly book club featuring a title from the AlzAuthors collection. Throughout the month, readers participate in a discussion in the book club's Circle community at Aging & Amazing, then meet with the author for an in-depth discussion of the book and the caregiving journey. The online discussions are typically moderated by Andrea Couture, but she was unavailable for this episode so AlzAuthor founder, manager and author Marianne Sciucco is in her place for this episode.

Florrie Munat, the author behind "Be Brave, a Wife's Journey through Caregiving," brings a deeply personal and touching account of her caregiving experience for her husband, Chuck, who faced a stroke and Lewy body dementia. Through her memoir, Florrie provides a candid and insightful portrayal of the challenges and triumphs she encountered, offering a beacon of hope and understanding for caregivers navigating similar paths. Her tender storytelling and unwavering strength make her a compelling and relatable guest, bringing a wealth of wisdom and empathy to our discussion on the complexities of dementia caregiving. We're honored to have Florrie's unique perspective and compassionate voice on the Podcast.

Quote:

When love and duty are one, then Grace is within you. - Florrie Munat

In this episode, you will:

Gain insights into the caregiving journey for dementia patients and discover effective support strategies. Explore the therapeutic benefits of writing as a tool for caregivers to navigate their emotions and experiences. Learn how to effectively navigate complex family dynamics in the context of providing care for individuals with dementia. Discover the powerful benefits of journaling as a coping mechanism and reflective practice during the caregiving journey. Understand the unique challenges and symptoms associated with Lewy Body Dementia to better support individuals with this condition. After the Podcast

Purchase Be Brave: A Wife’s Journey Through

Caregiving, which is available as a paperback, and on Audible

Note: We are an Amazon Associate and may receive a small

commission on book sales at no cost to you

Connect with Aging & Amazing

Hear Florrie speak about Lewy Body Dementia on Untangling Alzheimer's & Dementia

Read Florrie's AlzAuthors post: Memoir, Be Brave: A Wife’s Journey Through Caregiving by Florrie Munat

About the Podcast

Thanks for listening.

We are a Whole Care Network Featured Podcast

Proud to be on The Health Podcast Network

Find us on The World Podcast Network and babyboomer.org

Want to be on the podcast? Here’s what you need to know

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Equip Yourself for Growth

Tue, 26 Mar 2024 13:59:57 +0000

Stripping down the complexities of our emotional and mental 'equipment' that shape our personal growth.

Suzi invites you to take stock of your own life 'equipment.' Arm yourself intellectually, spiritually, and financially, as well as physically and emotionally. Learn how to shed the unnecessary and embrace strategies that propel you forward. It's time to redefine what it means to be 'crazy well' and arm yourself for the battles ahead, with a focus on self-care and seeking help when you need it most.

Music credit to Kalvin Love for the podcast’s theme song “Bee Your Best Self”

Tune into our CHW Streaming Radio and the full lineup at cominghomewell.com Download on Apple Play and Google Play

Online-Therapy.com ~ Life Changing Therapy Click here for a 20% discount on your first month.

Contact Suzi at suzigma@gmail.com or (818) 470-2013 and share your story. suzilandolphi.com vetsandplayers.org wildhorserescue.org

Thank you for listening! Be sure to SHARE, LIKE and leave us a REVIEW!

Your Future Self - Putting It All Together

Tue, 26 Mar 2024 13:59:31 +0000

What are your priorities when planning for your future care?

We conclude Season One of Your Future Self by "Putting It All Together" so you can find your path to Healthy Aging.

That's because "Your Future Self is in your control!"

Summary > Show Notes

In this episode, Monica and Chris recap the pillars of care that have been discussed throughout the series. They cover the importance of physical health, including setting daily intentions and spending time outdoors. They also discuss the social aspect of caregiving and the five stages of grief that caregivers often experience. The hosts then delve into the legal and financial issues that caregivers need to consider, such as getting organized and creating a budget. Finally, they explore the role of spirituality in caregiving and the power of sharing one's story. The episode concludes with a message of gratitude and encouragement for listeners to continue planning for their future selves.

Chapters

00:00 Introduction and Recap

02:22 Physical Health

05:17 Social Health

13:27 Legal and Financial Issues

20:20 Spirituality

23:40 Conclusion

Anna Larson - An Expert on the Military Spouse Transition

Tue, 26 Mar 2024 13:59:10 +0000

Anna Larson is a woman who wears many hats. As an expert on the military spouse transition as they cross over from active duty to civilian life. It is her mission to create opportunities for connection, support, and provide resources for milspouses going through the retirement process.

Anna also co-host the 15{ish} Minute Coffee Chat - a small business/entrepreneur livestream and podcast where Anna and Selena bring on experts that show you how to do business better (and WAY more fun.)

Follow Anna on LinkedIn

Tune into our CHW Streaming Radio and the full lineup at cominghomewell.com Download on Apple Play and Google Play

Online-Therapy.com ~ Life Changing Therapy Click here for a 20% discount on your first month.

Jay’s Links Website: https://j2servantleadership.com/ Book: Breaking Average (2020)

Thank you for listening! Be sure to SHARE, LIKE and leave us a REVIEW!

Sue Ryan The Journey Begins with You

Tue, 26 Mar 2024 13:56:36 +0000

For more than thirty-five years, Author Susan Ryan has been in the role of non-professional (unpaid) caregiving support for family and loved ones.

Through her experience as a family caregiver (currently navigating her husband’s care with his diagnosis of Alzheimer’s Disease), Susan has moved from feeling frustrated, overwhelmed, and yes - sometimes frightened to confident and balanced navigating the transitions of being care receivers those who support us, and I are on in our journey.

As a dynamic and international speaker, Sue's Free caregiving tips are a must-have, no matter where you are on your caregiving journey.

Listen in and learn how Sue is creating Healing Ties all around us!

Caregiving, Love , and Resiliency: A Conversation with Sarah Cart

Tue, 26 Mar 2024 13:52:43 +0000

Meet fellow caregiver (and now my friend!) SARAH CART! When she and her husband, Ben, became empty nesters, the two moved to the Florida Keys, but they returned every summer to the Pennsylvania Poconos, where each had lifelong family connections. Then came COVID-19. The pandemic, combined with Ben’s health issues, necessitated their sheltering in place in Florida for the entirety of 2020. In the wake of Ben’s undergoing miraculous lifesaving measures, they have been afforded the unanticipated gift of a future and, more than ever before, relish time spent with family and friends.

In our interview, Sarah shares shares honestly, openly and willingly about her experiences and triumphs as a caregiver and wife to her beloved husband.

We also talk about her new book, "On My Way Back to You."

We are doing a GIVEAWAY! Want to win a copy of Sarah's book?

Join The Self-Caregiver Community and automatically be entered to to WIN!

Value in Movement (with special guest Mercedes Fernandez)

Tue, 26 Mar 2024 13:51:40 +0000

In this episode, Sarah interviews physiotherapist Mercedes Fernandez about her work helping older adults and caregivers understand the value of movement. She also discusses her journey as a caregiver for her grandfather.

You can find more of Mercedes at:

Telehealth Appointments for Geriatric Physiotherapy (mouvement.info)

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People Want and are Willing to Help

Tue, 26 Mar 2024 13:48:30 +0000

Honestly, we all need to start asking for help. And this episode will blow your mind, Christy Yates and myself will talk about the importance of asking for help and how to do it. We need to stop being afraid of asking and just going. People are willing to help, but if we always say that we are managing ok then that's what people understand. Instead, if someone asks and you are grateful later and return the favor then we as a community that need so much from each other will be better. You can find Christy on her website :

Website: https://www.christyyates.com

How to Improve Patient Care With Pastoral Thanatolgist Joelle Johns

Thu, 14 Mar 2024 18:08:33 +0000

Joelle Johns believes telling people they’re dying allows them to say their goodbyes, do the final things they want to do, apologize, and forgive. Joelle is a death midwife and grief counselor, as well as a pastoral thanatologist and clinical chaplain, having just completed her designation as a Board Certified Clinical Chaplain (BCC). She also holds a certificate in Death Midwifery.

As a pastoral thanatologist, Joelle supports those dying and those grieving, coaching them in healthy psychospiritual habits. Advance care plan conversations are also part of her work. Joelle’s seen the impact of avoiding those discussions about end-of-life wishes. Her experiences as a Hospice Chaplain have shown her the deep meaning and commonality death carries for all of us.

Connect with Rev. Joelle Johns via email: revjoellejohns@gmail.com.

Find Joelle on social media: FB, LinkedIn.

Order your copies of The Care Plan here. It’s available in English and Spanish!

Check out the free video tutorials from Nancy Heyerman and Brenda Kizzire here.

Want to know more about doulas or connect with others who are doing death doula work? Visit internationaldoulalifemovement.com.

If you’re interested in becoming a certified death doula through IDLM, click here.

Access all the courses that IDLM provides here.

See all the events that IDLM is offering by clicking here.

Connect with IDLM on social media. Facebook IG YouTube

If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.

Book podcast host Helen Bauer to speak at your event or conference by emailing helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Follow The Heart of Hospice: Facebook, IG, Twitter (X), LinkedIn.

Embracing Vulnerability with Nicole Will - Caregiver Spotlight

Thu, 14 Mar 2024 18:08:24 +0000

Nicole Will cared for her grandma Betty and has dedicated her career to enhancing the well-being of older adults, their families, and healthcare professionals. Nicole's approach blends heartfelt advocacy with strategic innovation, making her a sought-after voice in the care economy.

In this episode, we discuss how vulnerability instigates change in our lives and in the care economy, tips for those looking into senior living options, the hope that is being delivered from age tech initiatives, healthy grab-and-go meal replacements, and why living with your grandma as a teenager comes with mixed emotions.

Show notes with product and resource links:

https://bit.ly/HHCPod177

Receive the podcast in your email here:

http://bit.ly/2G4qvBv

Order a copy of Elizabeth's book Just for You: a Daily Self Care Journal:

http://bit.ly/HHCjournal

For podcast sponsorship opportunities, contact Elizabeth:

https://happyhealthycaregiver.com/contact-us/

The Happy Healthy Caregiver podcast is part of the Whole Care Network. Rate and Review the podcast:

https://bit.ly/HHCPODREVIEW

DR. MITCH CLIONSKY - Dementia Prevention: Using Your Head to Save Your Brain

Thu, 14 Mar 2024 18:08:12 +0000

Don and I both agree that Episode 85 (wow!) ranks as one of our favorites to date. Our amazing guest, Dr. Mitchell Clionsky, is a board-certified neuropsychologist with more than 30 years of clinical experience and has treated more than 20,000 patients with cognitive problems. Dr. Clionsky understands the toll of memory disorders as both a caring professional and as the son of his mother, Muriel, who died in 2008 from dementia. Dr. Clionsky holds staff privileges in four hospitals, and in addition to dementia, he evaluates ADHD, concussions, and a variety of neurological conditions. From years of patient data, Dr. Clionsky and his wife/partner Emily Clionsky, MD have developed the Memory Orientation Screening Test or MOST, a highly valid measure that provides a single, numerical score that reflects cognitive status and change over time. MOST helps identify -cognitive problems- earlier in the deterioration process so health professionals can intervene and help their patients live better lives. Now Dr. Clionsky and his wife, Emily, have taken what they do in their consulting room and have written a new book, Dementia Prevention: Using Your Head to Save Your Brain. It's an exciting, fun to read, motivating, and potentially life changing read that is the culmination of 45 years of extensive clinical evaluation and treatment. Scientifically detailed and vetted by Johns Hopkins University doctors and content experts, it is translated into terms that almost everyone will understand.

8 out of 10 people over 55 say that Alzheimer’s disease and other dementias are a major concern. Well now there is something that can be done. Dementia is not inevitable, but for 1 out of 2 people it is preventable. And we are so excited to share all about this fascinating breakthrough. Enjoy!!

Connect with Dr. Clionsky here. LINKEDIN FACEBOOK

Nurse Meg - Helping other on their Journey to Success

Thu, 14 Mar 2024 18:08:02 +0000

Registered Nurse, Nurse Educator, Study Coach, and Mentor! Nurse Meg joins Dee Tox and MZ to discuss her mission to help nurses and students be successful in their healthcare journey.

Stay tuned to the end when we talk about the paranormal.

Nurses and Medics: This is your platform! We want to hear your stories of the good, the bad and the ugly. Send us an email at cominghomewell@gmail.com

Do you know a health worker that needs a laugh? B2B N.F.L.T.G. Certificate click here

Get the ammo you need to seize your day at Soldier Girl Coffee. Use Code CHW10 for 10% off at checkout!

Special Thanks to Artwork: Joe Weber @joeweber_tattoos

Intro/Outro/Disclaimer Credits: Pam Barragan Host of 2200TAPS Podcast "Racer" by Infraction https://bit.ly/41HlWTk Music promoted by Inaudio: ...

Accepting Care: Caregiver Perspective

Thu, 14 Mar 2024 17:53:41 +0000

Accepting Care - A Caregivers Perspective. When caregivers transition into the role of care recipients, their perspective often undergoes a profound shift. Experiencing vulnerability and dependence firsthand can cultivate empathy, understanding, and a newfound appreciation for the challenges faced by those they once cared for. Accepting this role reversal fosters humility, insight, and a deeper recognition of the complexities inherent in providing and receiving care, leading to a more compassionate and holistic approach to caregiving.

About Our Guest

Christopher MacLellan started The Whole Care Network after his experience as family caregiver balancing care and career. With 10 years of experience as the director of an information and referral service hotline, he grew a passion for advocacy in caregiving. He saw firsthand the difficulty in finding trusted information and resources to sustain a healthy and productive lifestyle at home and work. For Chris, the focus of The Whole Care Network is bringing information to family caregivers through shared stories and easy-to-consume media organized within 4 Pillars of Care. Christopher became a care recipient several years ago, and it may not be a surprise to learn that he struggled with accepting care after his time being a care provider.

Spiritual Pillar

Thu, 14 Mar 2024 17:53:15 +0000

What are your priorities when planning for your future care?

In this episode of Your Future Self, we introduce you to our Spiritual Pillar of Care,

On the Whole Care Network, we understand spirituality can have different meanings for everyone. And we respect and embrace all spirituality.

Our spiritual pillar is focused on the entire person, rather a holistic point of view of all the aspects of you that are revealed in your role as a caregiver.

Our Spiritual Pillar will demonstrate the healing power of storytelling and how sharing one's story can bring you inner peace and comfort.

Summary > Show Notes

In this episode, Monica and Chris discuss the spiritual pillar of care and how it relates to holistic well-being and caregiving. They emphasize the importance of taking control of one's actions and reactions, especially in the face of compassion fatigue. The hosts also highlight the power of telling one's story as a way to find validation, comfort, and direction. They encourage listeners to look beyond caregiving and consider their future selves, including their aspirations and desires for life after caregiving ends. The episode concludes with a discussion on the connection and support found within the caregiver tribe.

Takeaways

Take control of your actions and reactions, especially in the face of compassion fatigue.

Telling your story can provide validation, comfort, and direction.

Consider your future self and what you want for your life after caregiving ends.

Find connection and support within the caregiver tribe.

Chapters

00:0 Introduction to the Spiritual Pillar

03:17 Compassion Fatigue and Taking Control

06:41 The Power of Telling Your Story

09:07 Looking Beyond Caregiving

12:29 Finding Personal Identity and Direction

15:46 Accepting the End and Planning for the Future

19:19 The Connection and Support of the Caregiver Tribe

21:46 Conclusion and Call to Action

Jenny Laine, Founder (JennyLaineCo)

Thu, 14 Mar 2024 17:52:58 +0000

It's always a special treat when we have friends, family and just close people come on the show and this episode is just that.

Hold onto your seats as we sit down with a very special guest, Ms. Jenny Laine, to discuss some intense childhood/adult trauma but how she's been able to find healing and most of all...how's she found purpose in her story.

This bad ass woman is shaking things up in the industry but most of all showing up as the best version of herself for her, her loved ones and most of all...all 7 of her babies! We are so blessed to have her and most of all blessed to share her story with you!

Connect with Jenny Laine: Instagram Handle @jennylaineco

Music: "Mirror Mirror" by As Strange As Angels

Support the show Find us on all major streaming platforms or connect with us if you're ready to share your story.

Link to be on the show: https://2200taps.com/podcast

Are you ready for the next YOU?

Thu, 14 Mar 2024 17:51:03 +0000

Suzi invites you to put the time and energy into becoming the next you. Life will always be changing so don't be afraid to jump right in. Push outside your comfort zone. Welcome the challenge and use your creativity into making the next you.

Music credit to Kalvin Love for the podcast’s theme song “Bee Your Best Self”

Tune into our CHW Streaming Radio and the full lineup at cominghomewell.com Download on Apple Play and Google Play

Online-Therapy.com ~ Life Changing Therapy Click here for a 20% discount on your first month.

Contact Suzi at suzigma@gmail.com or (818) 470-2013 and share your story. suzilandolphi.com vetsandplayers.org wildhorserescue.org

Thank you for listening! Be sure to SHARE, LIKE and leave us a REVIEW!

Why Is Grandma Naked?

Thu, 14 Mar 2024 17:18:15 +0000

Ellen Prober Rittberg is an award-winning journalist whose humorous essays and features have appeared in the NY Times, HuffPost, Reader's Digest, and other major platforms.

After being a caregiver to her mother for six years and realizing even though, as an attorney, she'd represented senior citizens for many years and had written reports and recommendations for judges on other cases, and she felt overwhelmed and largely clueless when she began caregiving.

From her personal and professional experience ….Ellen wrote Why is Grandma Naked? Caring for Your Aging Parent…. practically and humorously because of her belief that all caregivers are somewhat stressed, and humor can lighten the burden.

Listen in and learn how Ellen is creating Healing Ties by sharing her story and special humor practically and humorously because of her belief that all caregivers are stressed to some extent, and humor can lighten the burden.

Ralph "Gable" Crowder - A Man with a Mission

Thu, 14 Mar 2024 17:17:55 +0000

Joining Donna and Jay today is Ralph "Gable" Crowder, a former Navy Command Master Chief, currently serves as the Director of Community Engagement at @bigmentorsa. Gable is extremely well versed in identifying principals of leadership, motivation, empowerment, personnel management, strategic planning, and training.

Tune into our CHW Streaming Radio and the full lineup at cominghomewell.com Download on Apple Play and Google Play

Online-Therapy.com ~ Life Changing Therapy Click here for a 20% discount on your first month.

Jay’s Links Website: https://j2servantleadership.com/ Book: Breaking Average (2020)

Thank you for listening! Be sure to SHARE, LIKE and leave us a REVIEW!

Self, Sacrifice, and Service: A Caregiver's Notebook

Thu, 14 Mar 2024 16:09:20 +0000

Jennifer Jenkins embodies the unwavering spirit of a lifelong caregiver. Her journey began at just 15, caring for her grandmother after cancer surgery. Later, tragedy struck when her brother, James, was wounded in Iraq. Alongside raising her infant child, Jennifer became his full-time caregiver and a tireless advocate for wounded veterans. Her responsibilities extended to her mother following a stroke, and despite these immense challenges, Jennifer welcomed a premature daughter into her life.

Jennifer emphasizes the importance of counseling and self-care, including journaling and yoga, throughout her incredible journey. While gradually transitioning some of her brother's care to his partner, she remains a dedicated caregiver and an inspiration to those balancing family and the extraordinary demands of caregiving. Jennifer's story is a testament to resilience, compassion, and the necessity of support for those who dedicate their lives to caring for others.

About Jennifer:

Jennifer Jenkins understands the complexities of being a full-time caregiver. “I had to start from scratch finding the answers,” says Jennifer. “My brother’s care required a unique set of skills that my background did not include. That’s why the connections I’ve made through Wounded Warrior Project® (WWP) have been invaluable.”

In 2005, her brother James was wounded in combat while on a mission with his Army Stryker Brigade in Iraq. James endured a traumatic brain injury (TBI), partial hearing and vision loss, damage to his spine, and post-traumatic stress disorder (PTSD).

Jennifer’s journey has helped her understand the sacrifices, challenges, and unmet needs that caregivers face daily. Her message of love and support is clear and empathetic: “I do not see my brother’s needs as a burden. If I had to drop everything to help him, I would, and, quite frankly, I sometimes have. Thankfully, Wounded Warrior Project is always there to help us, too.”

Support the show Confessions of a Reluctant Caregiver

Sisterhood of Care, LLC

Website: www.confessionsofareluctantcaregiver.com

Like us on Facebook!

Tweet with us on Twitter!

Watch us on Youtube!

Pin us on Pinterest!

Link us on LinkedIn!

Tune in on Whole Care Network

AgingGayfully™ Is Time Passing Too Quickly?

Thu, 14 Mar 2024 16:08:51 +0000

We discuss the elasticity of time and ways to make the most out of the time we have. Plus, a quiz on British slang!

A gay senior, Christopher MacLellan, and an ally, Josh Wilson, podcasting about life, love, liberty and travel. Don't Say Gay?... Say AgingGayfully™!

Subscribe NOW, where you listen to your favorite podcast.

Learn more at AgingGayfully™.

Familiar Wilsons Media produces content to bring people together. We are curious and hopeful and try not to take ourselves too seriously - admittedly, with varying degrees of success.

Finding Meaning in Caregiving with Dr Allison Applebaum

Thu, 14 Mar 2024 09:00:16 +0000

Dr Allison Applebaum is an Associate Attending Psychologist in the Department of Psychiatry and Behavioral Sciences at Memorial Sloan Kettering Cancer Center (MSK) and the Founding Director of their Caregivers Clinic, the first of its kind in any Comprehensive Cancer Center in the US. Dr Applebaum amplifies the voices of family caregivers in her scientific journals, editorials, and research, which focuses on developing innovative ways to identify, prepare, and support caregivers.

Through this work, she also addresses the distress experienced due to increasing responsibilities. In Allison's new book, Stand By Me: A Guide to Navigating Modern, Meaningful Caregiving. She brings not only her professional experience to the subject but also her journey of caring for her beloved father, Stanley Applebaum. In our conversation today, we discuss her book, the experience of living in the in-between as a family caregiver, and how caregivers can find meaning and purpose while juggling the responsibilities and emotional ups and downs.

Allisonapplebaum.com

Book - Stand By Me - A Guide to Navigating Modern, Meaningful Caregiving

SHOW NOTES

Jodi Sits Down with Artist and Cancer Survivor Tom Prather

Wed, 13 Mar 2024 19:27:20 +0000

Jodi sits down with artist, podcaster, and cancer survivor Tom Prather to talk about dreaming big, meeting his idol Eddie Van Halen, and the creative thinking that has fueled his entrepreneurial journey.

Website: https://www.thebluewave.net/

Podcast: https://podcasts.apple.com/us/podcast/making-waves-with-tom-prather/id1291939396

ATP Healthcare (with special guest Timothy Poore)

Wed, 13 Mar 2024 18:49:44 +0000

In this episode, Sarah interviews Timothy Poore from ATP Healthcare. They discuss his company's efforts to help place patients in facilities after hospital care.

You can learn more about ATP Healthcare at ATP HealthCare

You can find more of us at:

Stelmach Brown Media LLC

We are also affiliated with Memory Lane TV. It is a multi-sensory and engaging series of programs adapted for people living with memory loss and their care partners. Check them out at: http://www.watchmemorylane.com?code=ambassadormltv11

And use the special promo code: AMBASSADORMLTV11

We are also affiliated with Carewell. Use this code and you can receive 30% off first order

Care Products | 24/7 Service | 30% OFF 1st Autoship - Carewell

Check out our sponsor http://www.favor-ct.org/

Please like, share and subscribe to our podcast, also if you enjoy our content and to provide us with additional support, you can tip us here: https://ko-fi.com/caregiverchroniclespodcast

Or here: https://www.buymeacoffee.com/caregivercg

Taking Care of Yourself When Being a Long Distance Caregiver

Wed, 13 Mar 2024 18:49:31 +0000

Are you a long-distance caregiver? So was Marianne Scuicco. Her compelling story about taking care of her mom and step-dad is fabulous. She's a great example of how prioritizing yourself is so important. Let's discover how she could juggle a job, a kid, a husband, and a long-distance caregiving situation. You can also find her on her website, in AlzAuthors, at her email, and you can listen to her in her podcast.

PART 2: Caregivers in Recovery, My Interview with Chris Carberg

Wed, 13 Mar 2024 18:49:19 +0000

PART 2 of my interview with Chris Carberg, a passionate digital media founder, most notably as the co-founder of PostpartumDepression.org and now as the founder and CEO of AddictionHelp.com, one of the fastest-growing addiction and mental health informational websites.

Chris has combined his personal triumph over addiction and ongoing recovery with his entrepreneurial spirit to create digital solutions centered on mental health.

He also happens to have been a caregiver! In this part of the interview he shares more about his work with AddictionHelp.com

Join The Self-Caregiver Community

Follow @theselfcaregiver

Go to AddictionHelp.com to learn more about their resources, support, and to connect with Chris.

PostpartumDepression.org

FREE SELF-CARE RESOURCE FOR CAREGIVERS>>>

Hit Pause and Press On Guided Meditation Series (Three 5-minute audio meditations designed to keep you grounded when the bottom drops out!)

Life Experiences Offer Opportunities for Death Doula Jo-Anne Haun

Tue, 05 Mar 2024 14:37:52 +0000

Death Doula Jo-Anne Haun has found growth and meaning in working with the dying. As co-founder of Death Doula Network International, Jo-Anne works to support and educate about the work of death doulas. Jo-Anne uses her personal gift of gentle humor in her volunteer work as a therapy clown (Code Name: Buttons). Jo-Anne’s habit of incorporating a little fun into a discussion about end of life wishes is a gentle lead-in to deeper conversations about dying and death.

You can connect with Jo-Anne Haun at eola.ca.

Find Death Doula Network International at ddnint.com.

Order your copies of The Care Plan here. It’s available in English and Spanish!

Check out the free video tutorials from Nancy Heyerman and Brenda Kizzire here.

Want to know more about doulas, or connect with others who are doing death doula work? Visit internationaldoulalifemovement.com.

If you’re interested in becoming a certified death doula through IDLM, click here.

Access all the courses that IDLM provides here.

See all the events that IDLM is offering by clicking here.

Connect with IDLM on social media. Facebook IG YouTube

If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.

Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Follow The Heart of Hospice: Facebook, IG Twitter (X) LinkedIn.

Dustin Beluscak - Merging Vets and Players

Tue, 05 Mar 2024 14:37:44 +0000

Today Suzi revisits with Dustin Beluscak, Virtual Program Manager for Merging Vets and Players, about how far he has come in his healing and his resources.

Dustin served in the Army National Guard from 1999 to 2006. After he left the service, he ended up in transitional housing while looking to change his life. He decided to start saying 'yes' to healthy changes and now as the Virtual Manager of MVP he is able to help others to join him on this same journey.

Music credit to Kalvin Love for the podcast’s theme song “Bee Your Best Self”

Tune into our CHW Streaming Radio and the full lineup at cominghomewell.com Download on Apple Play and Google Play

Online-Therapy.com ~ Life Changing Therapy Click here for a 20% discount on your first month.

Contact Suzi at suzigma@gmail.com or (818) 470-2013 and share your story. suzilandolphi.com vetsandplayers.org wildhorserescue.org

Thank you for listening! Be sure to SHARE, LIKE and leave us a REVIEW!

Grace Under Pressure: A Caregiver's Journey from Professional to Personal

Tue, 05 Mar 2024 14:37:35 +0000

By Christy Byrne Yates, MS, California, US

Podcast Description: Discover the unexpected truth about dementia care from a professional who found herself on the other side of caregiving. Get ready to uncover the surprising insights that transformed her perspective and could change yours, too. Find out what left her reevaluating her own caregiving advice and how she's now championing an empowering approach for other caregivers. It's a revelation that could reshape how you think about dementia care and caregiving.

Mary Ann Drummond, a highly experienced nurse with a career spanning over 30 years, is a prominent figure in the realm of dementia care. Her book, Meet Me Where I Am: An Alzheimer's Care Guide, is a comprehensive resource derived from her extensive work in memory care settings. It offers practical strategies and insights tailored to the unique challenges of dementia caregiving. In collaboration with Dr. Beatrice Tauber Prior, Mary Ann co-authored Grandma and Me, a children's guide for Alzheimer's and dementia, emphasizing her commitment to addressing the broader impact of these conditions on families. With her wealth of nursing knowledge and literary skills, Mary Ann's contributions have significantly advanced the understanding and support available for individuals with dementia and their caregivers.

Quotes:

“Give yourself grace. You're only human. There will be days when you don't always do exactly what you might know to do, but it's not wrong. It's just human.”

“It's about capabilities. It's less about the limitations and more about the abilities.”

In this episode, you will:

Gain valuable insights into dementia care from real-life experiences. Discover the importance of prioritizing self-care as a caregiver. Learn to recognize and leverage individual capabilities in dementia care. Overcome challenges in decision-making as a caregiver for someone with dementia. Explore how to create a dementia-friendly caregiving environment for enhanced well-being. After the Podcast

· Meet Me Where I Am – An Alzheimer’s Care Guide

· Grandma and Me – A Kid’s Guide for Alzheimer’s and Dementia

I Choose to Remember, a reminiscence therapy aid - available exclusively on the Angel Tree Publishing website. Connect with MaryAnn

Twitter at @RNforAlz for more information and updates.

About the Podcast

Thanks for listening.

We are a Whole Care Network Featured Podcast

We've got merch! Shop our Store

The Unseen Battle Scars of the Mind

Tue, 05 Mar 2024 14:37:26 +0000

War wounds are not always visible, and the battle scars of the mind can be as debilitating as any physical injury. Mark and Charles open up a long-overdue discussion on the unseen struggles of military mental health, tracing the historical neglect and systemic shortcomings in armed forces' approaches. The conversation is both a history lesson and a current affairs class, as we uncover declassified documents and share from-the-front anecdotes that reveal the stark contrast between lessons learned from physical warfare and the often-ignored psychological aftereffects. Mark and Charles shed light on the depth of these issues, from the repeated cycle of learning and forgetting to the pervasive stigma that keeps our service members from seeking the help they so desperately need.

This conversation is not just about the failures of the past but also about the potential for reform—ensuring that every soldier's sacrifice is honored, not just in medals and commendations, but in the care they receive for all their wounds, seen and unseen.

Tune into our CHW Streaming Radio and the full lineup at cominghomewell.com Download on Apple Play and Google Play

Online-Therapy.com ~ Life Changing Therapy Click here for a 20% discount on your first month.

Thank you for listening! Be sure to SHARE, LIKE and leave us a REVIEW!

Your Future Self - Financial Pillar

Tue, 05 Mar 2024 14:37:17 +0000

What are your priorities when planning for your future care?

In this episode of Your Future Self, we introduce you to our Financial Pillar of Care, which features special guests: The Caregiver Attorney, Amanda Singleton, and her husband, Ryan Singleton, a Consumer Affairs attorney from Singleton Legal.

Financial stress is overwhelming and can impact your overall well-being. Assessing the long-term financial impact of caregiving is critical.

Reduction or loss of income and increased healthcare costs often go hand-in-hand with caregiving. Ideally, financial plans were made by your loved one in anticipation of a need for long-term care. However, that is not the norm.

Our Financial Pillar is filled with real-life stories and expert advice to help you put a plan in place to keep your financial pillar level and firm.

Download Your Future Self Financial Care tips from Singleton Legal for this episode HERE

Summary - Show Notes

In this episode, hosts Monica Stanchula and Christopher MacLellan discuss the financial pillar of caregiving with experts Amanda Singleton and Ryan Singleton. They emphasize the importance of legal and financial planning, organizing, creating a budget, and separating personal and caregiving expenses. They also discuss the significance of signing documents as a power of attorney and the essential legal documents that caregivers should have. The conversation highlights the need for difficult discussions and caring for oneself and loved ones. The episode concludes with red flags for seeking legal advice.

Takeaways

Legal and financial planning is crucial for caregivers to protect themselves and their loved ones.

Getting organized and creating a budget are essential steps in managing caregiving expenses.

Caregivers should be cautious when signing documents as a power of attorney and ensure they understand their responsibilities.

Difficult conversations about end-of-life wishes and funeral planning are essential for caregivers and their loved ones.

Red flags for seeking legal advice include lawsuits, significant debt, and inability to pay monthly minimums.

Chapters

00:00 Introduction

02:21 Introducing the Experts

06:14 The Importance of Legal and Financial Planning

07:11 Getting Organized and Creating a Budget

10:53 Separating Personal and Caregiving Expenses

13:41 Signing Documents as a Power of Attorney

17:29 Protecting Yourself Financially

21:49 The Importance of Having Difficult Conversations

26:52 Essential Legal Documents for Caregivers

31:03 Presenting Life Care Documents at Hospitals

35:38 Taking Care of Yourself and Your Loved Ones

39:41 Red Flags for Seeking Legal Advice

Courageous Motherhood: A Caregiver's Journey through Disability and Hope

Tue, 05 Mar 2024 14:36:55 +0000

Jessica Patay shares her journey as a caregiver for her son, Ryan, who was diagnosed with Prader-Willi Syndrome at five weeks. Prader-Willi Syndrome is a rare genetic disorder that requires 24/7 supervision and care due to its associated symptoms, including low muscle tone, delayed milestones, and an insatiable food drive. Jessica talks about the difficulties she faced with her newborn, Ryan, who was unable to cry or suck and needed a feeding tube and occupational therapy. Managing Ryan's anxiety about eating is an ongoing challenge that requires constant monitoring of the kitchen.

Jessica discusses the impact of her son Ryan's condition on her family and the importance of maintaining a healthy balance. She prioritizes spending one-on-one time with her other children and taking trips without Ryan. Jessica also emphasizes the importance of having a supportive community and resources for caregivers. She has created an organization called "We Are Brave Together" to provide a platform for caregivers of disabled children to connect and find support.

Jessica plans to set up a care plan for her son Ryan before she and her husband become incapacitated or pass away. She also emphasizes the need to take breaks as a caregiver and empower their children to survive without them.

About Jessica:

Jessica Patay is the founder and executive director of We Are Brave Together (WABT), a 501(c)(3)nonprofit organization that supports caregiving moms with children of all types of disabilities and neuro-diverse diagnoses. In addition, she is a sought-after speaker, podcast guest, writer retreat coordinator, fundraiser, mother of three, social influencer, and a champion of self-care practices and their positive effect on motherhood. Jessica excels at creating and supporting communities of caregiving moms, and she is a visionary for the disability community worldwide.

Jessica’s mission is to combat the isolation and burnout that these moms and their families face by creating supportive, resourceful, and empowering communities and meaningful connections. Her vision is that every family in the disability community is strengthened, equipped, and inspired for their unique journey. This vision has fueled WABT’s growth in 6 years into an international community of over 2200 moms, representing all 50 states and 24 countries. Jessica has helped launch dozens of support groups throughout the U.S., New Zealand, and Australia. To extend her outreach, Jessica hosts a podcast, “Brave Together with Jessica Patay,” which offers a library of inspirational stories and resources for the disability community.

Connect with Jessica:

Web https://www.wearebravetogether.org/

Facebook https://www.facebook.com/wearebravetogether/

Instagram https://www.instagram.com/wearebravetogether/

Support the show Confessions of a Reluctant Caregiver

Sisterhood of Care, LLC

Website: www.confessionsofareluctantcaregiver.com

Like us on Facebook!

Tweet with us on Twitter!

Watch us on Youtube!

Pin us on Pinterest!

Link us on LinkedIn!

Tune in on Whole Care Network

No One Without Song

Tue, 05 Mar 2024 14:36:42 +0000

Through her marvelous book: "The Courage to Care: Being Fully Present with the Dying" Rev. Linda Bryce's mission is to pass on her understandings and show us how to be there at the bedside, fully present with anyone who is dying, and sharing in the mystery and wonder of death—and after.

When there is someone at our side, challenging times become more bearable. Whether it is an unexpected life-ending diagnosis, loss of employment or even of the ability to go places and see people, the presence of another alongside us offers reassurance and a confirmation of our value and membership in a circle of compassion, caring and love.

Through the great work of Rev Linda, she is helping us keep love in hearts because love is music for the soul

Listen in and learn how Rev. Linda and the chorus of Bedside Singers are creating Healing Ties all around us!

VA Disability Rating Reductions: Strategies and Rights for Veterans

Tue, 05 Mar 2024 14:36:26 +0000

Navigating the murky waters of VA rating reductions can feel like an uphill battle, but with the right knowledge and guidance, it's a fight you can win. In today's episode Tyler talks with Bill Libby, Legal Liaison for the Virginia Department of Veteran Services as he walks you through the maze of procedures and rights you're entitled to when facing this overwhelming challenge.

Support the show Tune into our CHW Streaming Radio and the full lineup at cominghomewell.com Download on Apple Play and Google Play

Online-Therapy.com ~ Life Changing Therapy Click here for a 20% discount on your first month.

Thank you for listening! Be sure to SHARE, LIKE and leave us a REVIEW!

New Dementia Connections Menopause Your Brain

Tue, 05 Mar 2024 14:36:04 +0000

Dementia Connections: Menopause & Your Brain. Studies have shown that postmenopausal women may experience changes in memory, cognitive function, and an elevated risk of developing Alzheimer's disease, the most common form of dementia. Estrogen's neuroprotective effects include promoting the production of neurotransmitters and enhancing cerebral blood flow, which are vital for optimal brain function. The abrupt hormonal shifts during menopause may contribute to the disruption of these processes.

Understanding the intricate interplay between menopause, hormones, and dementia is crucial for developing targeted interventions and therapies. While research is ongoing, maintaining hormonal balance and adopting lifestyle measures that support cognitive health during menopause may prove pivotal in reducing the risk of dementia in postmenopausal women.

My guest, Amita Sharma, is the founder of NourishDoc. Their goal is a world without chronic conditions, suffering, or health discrimination for any reason. NourishDoc will serve the community worldwide by bringing the most trusted experts and evidence-based holistic medicine information.

AgingGayfully™ Alabama IVF Ruling and That Oklahoma Politician

Tue, 05 Mar 2024 14:35:38 +0000

Chris and Josh discuss the recent Alabama Supreme Court case in which the court held that frozen embryos should be considered as living beings, allowing for in vitro fertilization clinics to be held liable for the accidental loss of embryos under Alabama's Wrongful Death of a Minor law, plus the Oklahoma politician who reveled in the death of a non-binary teen.

A gay senior, Christopher MacLellan, and an ally, Josh Wilson, podcasting about life, love, liberty and travel. Don't Say Gay?... Say AgingGayfully™!

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Learn more at AgingGayfully™.

Familiar Wilsons Media produces content to bring people together. We are curious and hopeful and try not to take ourselves too seriously - admittedly, with varying degrees of success.

Advocacy 2.0 - From Caregiver to Case Manager

Tue, 05 Mar 2024 14:35:07 +0000

Advocacy 2.0 - From caregiver to case manager for your loved one. Sometimes a family member has to become more than an advocate when someone is in the hospital, connecting all the dots and making sure everyone is on the same page. Hospital Warrior Bonnie Friedman talks with Nancy Elisburg who has a PhD in common sense and plenty of tips and experience to share.

Episode 69:Jennifer Klassen, Shannon Reimer & Dr. Cornelius J Woelk

Tue, 05 Mar 2024 14:34:50 +0000

This episode features our conversation with Jennifer Klassen, Shannon Reimer and Dr. Cornelius J Woelk, all providers working with Southern Health- Sante Sud in Winnipeg, Manitoba. We chat about how they have used the seven keys in their work in the community.

Pre orders are available now for our book Hope for the Best, Plan for the Rest: 7 Keys to Navigating a Life Changing Diagnosis. We also have a special preorder offer, visit our website and submit your receipt to get a chapter right away! Visit waitingroomrevolution.com

Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0

Connie Siskowski, Founder and President of American Association of Caregiving Youth

Tue, 05 Mar 2024 14:34:24 +0000

Jodi sits down with Dr. Connie Siskowski, Founder and President of American Association of Caregiving Youth to talk about her childhood caregiving experience, why she started AACY and becoming a CNN Hero.

Links:

American Associate of Caregiving Youth

AACUY News & Videos

End of Life Planners (with special guest Katie Matthews)

Tue, 05 Mar 2024 14:33:49 +0000

In this episode, Sarah interviews Katie Matthews, the founder of Legacero, about end-of-life planners. They discuss how these planners can help family members recognize a person's wishes should something happen to them unexpectedly.

You can find out more about Katie, end of life planners and Legacero at her website:

Home - Legacero™ End of Life Planning

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A 2-part interview with Chris Carberg, Founder of addictionhelp.com (part 1)

Tue, 05 Mar 2024 14:33:33 +0000

In this episode, I speak with Chris Carberg, a passionate digital media founder, most notably as the co-founder of PostpartumDepression.org and now as the founder and CEO of AddictionHelp.com, one of the fastest-growing addiction and mental health informational websites.

Chris has combined his personal triumph over addiction and ongoing recovery with his entrepreneurial spirit to create digital solutions centered on mental health.

He also happens to have been a caregiver. There was so much we wanted to discuss that I decided to split the interview up into two episodes, so be sure to listen and subscribe to get notified next week when part 2 of the interview is released!

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Go to AddictionHelp.com to learn more about their resources, support, and to connect with Chris.

PostpartumDepression.org

FREE SELF-CARE RESOURCE FOR CAREGIVERS>>>

Hit Pause and Press On Guided Meditation Series (Three 5-minute audio meditations designed to keep you grounded when the bottom drops out!)

Why You Need Support

Tue, 05 Mar 2024 14:33:13 +0000

Let's get emotional with me. In this episode, I open myself and my journey as a caregiver. I've been a caregiver for almost 20 years, I've been the support for mental health as well as physical well being, and my journey began when I was really young, was not expecting to become one. It has definitely been a roller coaster. I learn the hard way that we all need a support system, and we all need help. If anything, let me support you because I know very well how hard it can be! I'm here for you, and you can find me here.

Getting Curious with Teepa Snow

Sat, 02 Mar 2024 19:18:39 +0000

Teepa Snow, MS, OTR/L, FAOTA, is an Occupational Therapist with over forty years of rich and varied clinical and academic experience. Her experiences led her to the development of the GEMS® States of Brain Change and the Positive Approach® training strategies.

Her company, Positive Approach to Care® (PAC), provides online and in-person education and products to support those living with brain change. She also founded the Snow Approach Foundation, a nonprofit organization based in Hillsborough, North Carolina. Teepa presents with extraordinary expertise and humor to audiences throughout the world.

After several former podcast guests spoke so highly of Teepa Snow and her Positive Approach to Care, I invited her to be a guest on the podcast. In this episode we hear directly from Teepa including her own caregiving story.

When we get curious about the actions, behaviour and communication of a loved one living with dementia we can use the information they provide to support them where they need support. By getting curious, things can change.

Check out Teepa's website for great information; and her YouTube channel for videos addressing specific situations.

Our Social Pillar of Care

Fri, 01 Mar 2024 13:33:05 +0000

What are your priorities when planning for your future care?

In this episode of Your Future Self we introduce you to our Social Pillar of Care.

All too often, and unnecessarily, caregiving is a lonely undertaking for you and your loved one.

Over time and all too often, caregiving breeds isolation. Loss of social outlets and limited interactions with family and friends are common which can lead to depression and despair.

While caregiving can be hard, there are great joys too.

Our Social Pillar will provide you with the tools to help you stay connected to your hobbies, your friends, and your family and how to create a care team to help alleviate some of the caregiving burden and maintain those vital social ties.

Download Your Future Self Social Pillar of Care tips for this episode HERE

Summary

In this episode, hosts Christopher MacLellan and Monica Stinchula discuss the social side of caregiving and the potential hazards of social distancing. They explore the impact of caregiving on identity and perception of danger, as well as the concept of compassion fatigue and emotional bankruptcy. The hosts emphasize the importance of moving forward after caregiving and taking care of one's social self. They also discuss the changes in relationships that occur during and after caregiving and the five stages of grief. The episode concludes with a focus on rebuilding social connections and engaging in self-reflection.

Takeaways

Social distancing can lead to a potential hazard of cutting oneself off from others, emphasizing the importance of maintaining social connections. Caregivers often lose their identity and purpose in the midst of caregiving, and it is important to prioritize self-care. The caregiving experience can impact one's perception of danger and lead to feelings of numbness and desensitization. Compassion fatigue and emotional bankruptcy are common among caregivers, and it is important to recognize and address these issues. Moving forward after caregiving involves rebuilding one's life and social connections and taking action to create a fulfilling future. Rebuilding social connections is vital for caregivers, and it is important to nurture authentic relationships that provide support and companionship. Chapters